Fw: [mb12valtrex] Re: Topics for the mb12valtrex list

[Guest guest]

Stan Kurtz on the defense!

----- Forwarded Message ----

From: kurtzstan <stankurtz@...>

mb12 valtrex

Sent: Wed, August 25, 2010 11:52:29 AM

Subject: [mb12 valtrex] Re: Topics for the mb12 valtrex list

Dear Marcia,

Your post was emailed privately to me. There are moderators that have

instructions to remove users that inflame other members and maybe your questions

have been asked before and in my mind I don't spend time here much and I thought

I would answer this knowing full well that it may not change anything.

I believe I understand your questions and I thought I would clarify a few things

in hope that it helps keep the focus on the exploration for our kids and not

hearsay. I'm really not important at all in this group so I see anything about

me good or bad as being a relative waste of time unless it relates to Ethan's

story or someone's story that was helped.

First, Ethan did go to Dr. Goldberg for about 8 months in 2004 (I think) and I

believe G's focus on using antivirals is valuable and I am grateful for his

work.

I am also grateful for the diets and MB12 and for HBOT and for other methods

that are supported by science and parent experiences (including my own) and most

of those things, in my experience, caused Dr. Goldberg to respond like an

allergic reaction and I believe you may know what I mean. I happen to care for

Dr. G very much and I also respect that his view is his view (and different from

mine) and it doesn't seem to change no matter how much science or parent reports

exist and I had spent a goodly amount of time with him back and I tried and it

was clear he wasn't wanting to move.

Around the same time I was deeply involved with the Defeat Autism Now! community

and they were not in the mindset at looking at antiviral therapy and Goldberg

had already upset that group in 1995 at the first DAN! when, as I have heard. I

wasn't there, he responded in a way that made a lasting impression on DAN! and

it seems they never got over it.

So, I was in a place where I saw value in the viral concept and I also believed

in supplements and diets that I had been experimenting with for my child, some

from DAN! some from other places and I had a specific vision in my mind about

what could help at least a group of kids including my own and that's when I

opened the MB12Valtrex group. When the main influences in the community that I

cared about wouldn't get along and when my own observations were being asked for

by parents and were not yet accepted in the community. Now today, DAN! tracks

cases of antiviral therapy responses in their typical form 34 (I think that's

the number, it's been some time). At least while I was there and later I was on

their board, antivirals were in the DAN! physician's training manual and it was

spoken about in the DAN! Think Tank several times that I observed. That

happened mainly, in my view and from what their director told me, because of my

relationship with DAN! and years of me kindly and patiently holding the viral

flag, while at the same time parents were reporting results. I was working at

it from the inside. One thing of value was the data we were collecting here in

the group. Parent reports and the polls data that you hopefully still see

requests for on a monthly basis.

I notice this wasn't part of your question, but I believe underneath underneath

it, well, it might help to know how this group started. It started because

there was a need and that's why it continues and when the need ends the group

will end.

So back in the day wasn't going to move from his tight view (in my

opinion) and we loved him and we saw clearly that Ethan's particular recovery

was based on multiple factors, not just an antiviral. The diet, the use of

bacterial controls and the use of supplements including MB12 made a clear, and I

can say today, lasting improvement and I still believe the combination of things

we did was the key to his particularly amazing recovery. Diet still makes a big

different, HBOT helped, no question as did the supplements we gave him.

Clearly. If the was open to more than his protocol there might not need

to be an MB12 Valtrex group, but since the group has the number of members it

has and is still growing I see a continuing invitation to keep it open and I

tend to gravitate to where it is being asked to serve. When that invitation

ends, I will be happy to shut the group down.

As far as making money off of the community, you are mostly correct and I can

tell you more.

I had a school that included MB12Valtrex concepts in it. Organic diet, a chef,

diet education for parents, supplements available, non-toxic products, no

pesticides at the school, no vaccinations required, OT therapy swings, a free

HBOT chamber and more. I had the school from 2004 until 2008 approximately.

The school was in Van Nuys CA, a very mixed area and I was able to keep the

tuition down to $120 to $135 dollars a week including the food program so almost

anyone could afford it. Ultimately, between my family and that school I had

little time for anything else and people were asking me for help and I said yes

as much as I could to anyone that showed up at the school for who emailed me and

for several years I didn't charge anyone but I couldn't answer everyone.

Then parents who had money started offering money as an incentive and for a few

months I tried it. We were burning though our saving with the school and I

didn't mind but the savings was ending so I took that as a sign to be more open

to accepting money. Mind you for years I wasn't taking a dime and I believed

that capitalism was the cause of autism and I was in therapy over it because in

my prior work life I was a clear capitalist.

So I was volunteering at Defeat Autism Now! At Talk About Curing Autism and

just about anywhere I was asked to help in any possible way including clean

floors or carry bags.

So back to me open to taking money. It only lasted for a few month and this

was, I'm guessing, back in 08 and totaled maybe a few thousand dollars, I'm

guessing, maybe less. My response to those people was if they wanted to pay,

great, and if they didn't great. I don't believe I said no to anyone because of

money ever and if I did I apologize for that and I am open to making it up to

those parents if they exist and if so they can contact me (and I'm guessing I

never said no because of money). So that was for a period of about three months

in 2008 (I think). And to be clear about having to be a doctor to accept money,

you don't have to be a doctor to coach people in California as a naturopathic

practitioner and believe it or not you didn't need a license at the time. My

wife and I checked with the state prior to doing it. I don't exactly remember

what happened but my focus at the time went away from that focus and it went

away.

, another way that I have, arguably, made money is the selling of MB12

lollipops. The first thing I made (some say invented) was the nasal spray and

that I gave away to the pharmacies and they still sell it and I was offered

revenue from it and I didn't take it. Literally millions of dollars of nasal

spray has been sold over the years. None of which I made money on.

The nasal spray has greatly improved lives, or so I'm told and I like to believe

it and I'm grateful.

Now the MB12 lollipop company I started is a for profit company and my wife

holds ownership of a share of that company and it is run by a lovely and caring

gentleman and you could criticize that and I'm comfortable with the value of the

product and the company to the community. That product works using nerves on

the tongue that others products have never considered to use for the

administration of getting MB12 to the brain and nervous system. That said, we

still don't have a savings to speak of, so relatively speaking most of the

income is within the company itself... costs of manufacturing and

infrastructure, etc. And there it is.

Changing gears, I keep this group open to people in the community or really

any community as long as the focus is to work together and not inflame others.

Target me in your mind, fine, talk to friends, great, no problem, your business,

and when it's done here and if it may disregulate progress and it may not be in

the best interest of the group. Fighting or prodding or inflaming or irritating

another member (and I'm not saying for sure you are doing that because I only

read one post so what do I know) isn't productive... or so I believe.

Maybe this post give you more to be upset at, and, of course, that's up to you,

and that's about as transparent as I can be and my invitation is for the members

in the group to put the passion of having an affected child on the goal of

helping the child and not on inflammation of people in the group.

And if you want to be upset at me, it's really your business and when parents go

back and forth with me as a reason... we'll that's still your business and if

it's affecting others in the group and goes against the goals of the group I

don't believe anyone wins and I really with you and your family and all of the

families here the best. And I have no idea if this email is helpful to you and

here it is either way. In my mind the email probably has little value because

whatever I may have done in my past, good or bad, doesn't change where your

child is and the wisdom you folks have to share with each other and I hope that

in the end you find enough to help your child as much as possible.

My best,

Stan

ps. I didn't proof read this, so please forgives for any typos or the lack of

good writing. I need to run and bye for now.

--- In mb12 valtrex , " and Marcia Hinds " <hindssite@...>

wrote:

>

> Cheryl,

>

> Your post concerns me. Aren't we all here for the same thing? To find

> answers for kids with Autism. Bill is simply stating research and what

> worked for his kid and has no financial incentive for doing so. I can't say

> the same for Stan Kurtz (who also was a patient of Goldberg). He is making

> a living off his kid's autism. It infuriates me that he is not a medical

> doctor and yet I'm told charges $200/hour for a consult with parents. What

> is wrong with this picture? Those of us following the protocol have

> nothing to gain by posting here. We just want to help kids. I once made a

> promise to God. You make mine better and I will work to make them all

> better. So I have to live up to my end of the bargain. McCarthy in

> her own book admitted that her son was not doing well but she was going on

> TV promoting her parenting book to bring in the bacon.

>

>

>

> You openly admit that Dr. G helped your kid. I understand why you left.

> Dr. G can be difficult to work with. I left myself for several years after

> getting tired of arguing with Dr.G. But the reality is, he is right in his

> medical protocol and the best at the medical issues. I still don't agree

> with him behaviorally or educationally. But if even one kid benefits from

> what Bill said it should be posted. Open discussion and dialogue and

> difference of opinion is the how things should work on any list.

>

> Marcia Hinds

>

>

>

>

>

> I'm going to have to say that I'm going to have to defer to the title of the

> list here. Everyone that joins this list has an opportunity to read the home

> page description. This list is to discuss biomedical treatment options and

> is for those looking at MB12, HBOT, Chelation, etc. Sooo, my point here is

> that this is not the place for this discussion. Please take it to the

> list or offlist.

>

> Just in case anyone has forgotten, here is an excerpt from the message on

> the Home Page:

>

> This private research group, started by Stan Kurtz, a parent of a recovered

> child, offers parent support for people who are interested in the new

> Revitapop Methylcobalamin (MB12) Lollipop, nasal spray MB12, Valtrex,

> natural antivirals, virastop, Olive Leaf Extract (OLE), LDM100, antifungal

> therapy, bacterial therapy, Hyperbaric Oxygen Therapy (HBOT), and diet for

> anti-infectious therapy and chronic illness including autism, ADHD,

> fibromyalgia, asthma, eczema, chronic fatigue, hypotonia, mitochondrial

> dysfunction or disorder, sensory integration dysfunction, dyslexia and other

> chronic illness.

>

> If these things do not apply to you, I'm not sure what made you join the

> list.

>

> I don't want to hear any more about how supps are bad, b12 is bad, chelation

> is bad, etc. If there's something constructive to say regarding any of these

> things, feel free to do so, if you have experience with these things, feel

> free to say it. But no more discussion of how everything is wrong but .

> I'm done moderating it, I'm done getting the complaints. This list is for

> those that are actually doing those things and I'm not going to continue

> reminding people of that. If you are looking to discuss , there's a

> list for that and they are very supportive and willing to help and answer

> questions. I know because I used to be on it.

>

> There was nothing particularly wrong with Bill's post. I'm not mad, I'm just

> tired of dealing with this. I'm tired of having to remind people that while

> may not like these things, this is not a list and I would

> appreciate it if the attempt to turn it into one would end. I'm not killing

> my son by giving him Vitamin C, thankyouverymuch.

>

> It's over. No mas. Anyone interested can join the list, there's no law

> that says people can't join multiple lists (I myself belong to about 20).

> But take the discussion there or offlist.

>

> I will start moderating people and deleting posts. If I have to delete too

> many posts, I will start removing members. I repeat, this is *not* a

> list. Take it there, please.

>

> But I did appreciate Dr. Klimas's explanation, very informative. I wish it

> had been left at that and this e-mail didn't have to be written.

>

> Cheryl

> ~http://www.gryffins-tail.blogspot.com

> <http://www.gryffins-tail.blogspot.com>

> <http://www.gryffins-tail.blogspot.com>

>

[Guest guest]

Bill,

The discussion by Stan Kurtz and myself started as a result of a post where

the moderator threatened to stop posting things about but has no

trouble talking about things that could be potentially harmful to kids.

Many of us were told to stop posting on the Valtrex list and take it to the

list.

To which I said, " Bill is simply stating research and what worked for his

kid and has no financial incentive for doing so. I can't say the same for

Stan Kurtz (who also was a patient of Goldberg). He is making a living off

his kid's autism. It infuriates me that he is not a medical doctor and yet

I'm told charges $200/hour for a consult with parents. What is wrong with

this picture? Those of us following the protocol have nothing to gain

by posting here. We just want to help kids get better. "

You openly admit that Dr. G helped your kid. I understand why you left. Dr.

G can be difficult to work with. I left myself for several years after

getting tired of arguing with Dr.G. But the reality is, he is right in his

medical

protocol and the best at the medical issues. I still don't agree with him

behaviorally or educationally. But if even one kid benefits from what Bill

said it should be posted. Open discussion and dialogue and difference of

opinion is

the how things should work on any list.

As long as you are sharing, here is my response to what Stan Kurtz said on

the Valtrex list:

Stan,

Thank you for responding to my post. You have to do what your conscience

allows. I would NEVER ask for, nor accept, money (whether you call it a

" donation " or a fee). As parents of these kids, we are all stuck in this

lifeboat together. We have to help each other survive this hell. Parents

can (and have) called me anytime (I mean anytime) for help and I happily

give it. God and I have a pact. Since He helped mine get better, I will

help everyone else's. No cover charge.

When parents call me and ask for medical advice I tell them what Dr.

Goldberg, Dr. or Dr. Baker have said to me. When they ask me what I

think, I tell them what has worked for my child, not what may work for

theirs. I want nothing more than to retire from the autism world because my

son is in college, has friends, and is one of the most engaging people I

have ever met. But I can't, as long as there are parents who need help.

As parents we belong to a very unique group, I call it the " A-club. " None of

us ever asked to become members. But, because of our kids, we were all

forced to be in it together. Only another parent understands what it is

like to live with this diagnosis day in and day out. The isolation and

loneliness can be overwhelming. The hardest part is to continue to get up

every day, and not give up on our kids. My kid was kicked out of the

A-Club. I want everyone's kids kicked out too.

Just by being members of this list, the parents are actively looking for the

answers to help their children. They understand that everything we have

read or were told about autism is not necessarily true. I believe that what

we are talking about is NOT a debilitating psychiatric disorder without any

hope for recovery. Autism is treatable for most children.

My son, , was diagnosed when he was four years old. A leading authority

on autism said he would never be okay. He was going to end up in a group

home. Today, does all the things the professionals said would never

happen. He studies mechanical engineering at a university on a merit

scholarship. excels academically and is a member of the Engineering

Honor Society (top 10% GPA). He is a member of Sigma Chi Fraternity and was

president of the Jewish Student Association. is a typical college

student who drinks an occasional beer, goes on dates, stays out too late

with friends and then sleeps through eight o'clock classes. I couldn't be

more proud.

List mates, please email me privately and I will forward information on what

we did to help my child recover.

Best,

Marcia Hinds

hindssite@...

[Guest guest]

Marcia!!! Wish I could give you a big hug right now!!!!

-Jen

>

> Bill,

>

> The discussion by Stan Kurtz and myself started as a result of a post where

> the moderator threatened to stop posting things about but has no

> trouble talking about things that could be potentially harmful to kids.

> Many of us were told to stop posting on the Valtrex list and take it to the

> list.

>

>

>

> To which I said, " Bill is simply stating research and what worked for his

> kid and has no financial incentive for doing so. I can't say the same for

> Stan Kurtz (who also was a patient of Goldberg). He is making a living off

> his kid's autism. It infuriates me that he is not a medical doctor and yet

> I'm told charges $200/hour for a consult with parents. What is wrong with

> this picture? Those of us following the protocol have nothing to gain

> by posting here. We just want to help kids get better. "

>

>

>

> You openly admit that Dr. G helped your kid. I understand why you left. Dr.

> G can be difficult to work with. I left myself for several years after

> getting tired of arguing with Dr.G. But the reality is, he is right in his

> medical

> protocol and the best at the medical issues. I still don't agree with him

> behaviorally or educationally. But if even one kid benefits from what Bill

> said it should be posted. Open discussion and dialogue and difference of

> opinion is

> the how things should work on any list.

>

>

>

>

>

> As long as you are sharing, here is my response to what Stan Kurtz said on

> the Valtrex list:

>

>

>

> Stan,

>

>

>

> Thank you for responding to my post. You have to do what your conscience

> allows. I would NEVER ask for, nor accept, money (whether you call it a

> " donation " or a fee). As parents of these kids, we are all stuck in this

> lifeboat together. We have to help each other survive this hell. Parents

> can (and have) called me anytime (I mean anytime) for help and I happily

> give it. God and I have a pact. Since He helped mine get better, I will

> help everyone else's. No cover charge.

>

>

>

> When parents call me and ask for medical advice I tell them what Dr.

> Goldberg, Dr. or Dr. Baker have said to me. When they ask me what I

> think, I tell them what has worked for my child, not what may work for

> theirs. I want nothing more than to retire from the autism world because my

> son is in college, has friends, and is one of the most engaging people I

> have ever met. But I can't, as long as there are parents who need help.

>

>

>

> As parents we belong to a very unique group, I call it the " A-club. " None of

> us ever asked to become members. But, because of our kids, we were all

> forced to be in it together. Only another parent understands what it is

> like to live with this diagnosis day in and day out. The isolation and

> loneliness can be overwhelming. The hardest part is to continue to get up

> every day, and not give up on our kids. My kid was kicked out of the

> A-Club. I want everyone's kids kicked out too.

>

> Just by being members of this list, the parents are actively looking for the

> answers to help their children. They understand that everything we have

> read or were told about autism is not necessarily true. I believe that what

> we are talking about is NOT a debilitating psychiatric disorder without any

> hope for recovery. Autism is treatable for most children.

>

> My son, , was diagnosed when he was four years old. A leading authority

> on autism said he would never be okay. He was going to end up in a group

> home. Today, does all the things the professionals said would never

> happen. He studies mechanical engineering at a university on a merit

> scholarship. excels academically and is a member of the Engineering

> Honor Society (top 10% GPA). He is a member of Sigma Chi Fraternity and was

> president of the Jewish Student Association. is a typical college

> student who drinks an occasional beer, goes on dates, stays out too late

> with friends and then sleeps through eight o'clock classes. I couldn't be

> more proud.

>

> List mates, please email me privately and I will forward information on what

> we did to help my child recover.

>

> Best,

>

> Marcia Hinds

>

> hindssite@...

>

>

>

>

>

>

>

>

[Guest guest]

Hi Listmates,

Now I'm confused! I thought this is the Dr. Goldberg) list! If

it isn't it, can someone please post the correct address?

Thanks,

Argie

On Aug 27, 2010, at 3:46 AM, and Marcia Hinds wrote:

> Bill,

>

> The discussion by Stan Kurtz and myself started as a result of a

> post where

> the moderator threatened to stop posting things about but has no

> trouble talking about things that could be potentially harmful to

> kids.

> Many of us were told to stop posting on the Valtrex list and take it

> to the

> list.

>

> To which I said, " Bill is simply stating research and what worked

> for his

> kid and has no financial incentive for doing so. I can't say the

> same for

> Stan Kurtz (who also was a patient of Goldberg). He is making a

> living off

> his kid's autism. It infuriates me that he is not a medical doctor

> and yet

> I'm told charges $200/hour for a consult with parents. What is wrong

> with

> this picture? Those of us following the protocol have nothing

> to gain

> by posting here. We just want to help kids get better. "

>

> You openly admit that Dr. G helped your kid. I understand why you

> left. Dr.

> G can be difficult to work with. I left myself for several years after

> getting tired of arguing with Dr.G. But the reality is, he is right

> in his

> medical

> protocol and the best at the medical issues. I still don't agree

> with him

> behaviorally or educationally. But if even one kid benefits from

> what Bill

> said it should be posted. Open discussion and dialogue and

> difference of

> opinion is

> the how things should work on any list.

>

> As long as you are sharing, here is my response to what Stan Kurtz

> said on

> the Valtrex list:

>

> Stan,

>

> Thank you for responding to my post. You have to do what your

> conscience

> allows. I would NEVER ask for, nor accept, money (whether you call

> it a

> " donation " or a fee). As parents of these kids, we are all stuck in

> this

> lifeboat together. We have to help each other survive this hell.

> Parents

> can (and have) called me anytime (I mean anytime) for help and I

> happily

> give it. God and I have a pact. Since He helped mine get better, I

> will

> help everyone else's. No cover charge.

>

> When parents call me and ask for medical advice I tell them what Dr.

> Goldberg, Dr. or Dr. Baker have said to me. When they ask me

> what I

> think, I tell them what has worked for my child, not what may work for

> theirs. I want nothing more than to retire from the autism world

> because my

> son is in college, has friends, and is one of the most engaging

> people I

> have ever met. But I can't, as long as there are parents who need

> help.

>

> As parents we belong to a very unique group, I call it the " A-club. "

> None of

> us ever asked to become members. But, because of our kids, we were all

> forced to be in it together. Only another parent understands what it

> is

> like to live with this diagnosis day in and day out. The isolation and

> loneliness can be overwhelming. The hardest part is to continue to

> get up

> every day, and not give up on our kids. My kid was kicked out of the

> A-Club. I want everyone's kids kicked out too.

>

> Just by being members of this list, the parents are actively looking

> for the

> answers to help their children. They understand that everything we

> have

> read or were told about autism is not necessarily true. I believe

> that what

> we are talking about is NOT a debilitating psychiatric disorder

> without any

> hope for recovery. Autism is treatable for most children.

>

> My son, , was diagnosed when he was four years old. A leading

> authority

> on autism said he would never be okay. He was going to end up in a

> group

> home. Today, does all the things the professionals said would

> never

> happen. He studies mechanical engineering at a university on a merit

> scholarship. excels academically and is a member of the

> Engineering

> Honor Society (top 10% GPA). He is a member of Sigma Chi Fraternity

> and was

> president of the Jewish Student Association. is a typical college

> student who drinks an occasional beer, goes on dates, stays out too

> late

> with friends and then sleeps through eight o'clock classes. I

> couldn't be

> more proud.

>

> List mates, please email me privately and I will forward information

> on what

> we did to help my child recover.

>

> Best,

>

> Marcia Hinds

>

> hindssite@...

>

>

[Guest guest]

Argie-

I was JUST thinking the same thing myself! Did these two somehow

get mixed up on the internet? I hope the group has not been hacked.

If that is the case, we probably ALL need to be removed and a new group

started. I don't want my email corrupted! This has already happened to a few

friends of mine on Facebook......miserable!

Also, I have never signed up with the mb12 valtrex group (actually, never heard

of it until now.......maybe, I need to join that group instead). Is there still

a moderator on the group? I hope this gets resolved soon.

-ED

Sent on the Sprint® Now Network from my BlackBerry®

Re: Re:Fw: [mb12 valtrex] Re: Topics for the mb12 valtrex list

Hi Listmates,

Now I'm confused! I thought this is the Dr. Goldberg) list! If

it isn't it, can someone please post the correct address?

Thanks,

Argie

On Aug 27, 2010, at 3:46 AM, and Marcia Hinds wrote:

> Bill,

>

> The discussion by Stan Kurtz and myself started as a result of a

> post where

> the moderator threatened to stop posting things about but has no

> trouble talking about things that could be potentially harmful to

> kids.

> Many of us were told to stop posting on the Valtrex list and take it

> to the

> list.

>

> To which I said, " Bill is simply stating research and what worked

> for his

> kid and has no financial incentive for doing so. I can't say the

> same for

> Stan Kurtz (who also was a patient of Goldberg). He is making a

> living off

> his kid's autism. It infuriates me that he is not a medical doctor

> and yet

> I'm told charges $200/hour for a consult with parents. What is wrong

> with

> this picture? Those of us following the protocol have nothing

> to gain

> by posting here. We just want to help kids get better. "

>

> You openly admit that Dr. G helped your kid. I understand why you

> left. Dr.

> G can be difficult to work with. I left myself for several years after

> getting tired of arguing with Dr.G. But the reality is, he is right

> in his

> medical

> protocol and the best at the medical issues. I still don't agree

> with him

> behaviorally or educationally. But if even one kid benefits from

> what Bill

> said it should be posted. Open discussion and dialogue and

> difference of

> opinion is

> the how things should work on any list.

>

> As long as you are sharing, here is my response to what Stan Kurtz

> said on

> the Valtrex list:

>

> Stan,

>

> Thank you for responding to my post. You have to do what your

> conscience

> allows. I would NEVER ask for, nor accept, money (whether you call

> it a

> " donation " or a fee). As parents of these kids, we are all stuck in

> this

> lifeboat together. We have to help each other survive this hell.

> Parents

> can (and have) called me anytime (I mean anytime) for help and I

> happily

> give it. God and I have a pact. Since He helped mine get better, I

> will

> help everyone else's. No cover charge.

>

> When parents call me and ask for medical advice I tell them what Dr.

> Goldberg, Dr. or Dr. Baker have said to me. When they ask me

> what I

> think, I tell them what has worked for my child, not what may work for

> theirs. I want nothing more than to retire from the autism world

> because my

> son is in college, has friends, and is one of the most engaging

> people I

> have ever met. But I can't, as long as there are parents who need

> help.

>

> As parents we belong to a very unique group, I call it the " A-club. "

> None of

> us ever asked to become members. But, because of our kids, we were all

> forced to be in it together. Only another parent understands what it

> is

> like to live with this diagnosis day in and day out. The isolation and

> loneliness can be overwhelming. The hardest part is to continue to

> get up

> every day, and not give up on our kids. My kid was kicked out of the

> A-Club. I want everyone's kids kicked out too.

>

> Just by being members of this list, the parents are actively looking

> for the

> answers to help their children. They understand that everything we

> have

> read or were told about autism is not necessarily true. I believe

> that what

> we are talking about is NOT a debilitating psychiatric disorder

> without any

> hope for recovery. Autism is treatable for most children.

>

> My son, , was diagnosed when he was four years old. A leading

> authority

> on autism said he would never be okay. He was going to end up in a

> group

> home. Today, does all the things the professionals said would

> never

> happen. He studies mechanical engineering at a university on a merit

> scholarship. excels academically and is a member of the

> Engineering

> Honor Society (top 10% GPA). He is a member of Sigma Chi Fraternity

> and was

> president of the Jewish Student Association. is a typical college

> student who drinks an occasional beer, goes on dates, stays out too

> late

> with friends and then sleeps through eight o'clock classes. I

> couldn't be

> more proud.

>

> List mates, please email me privately and I will forward information

> on what

> we did to help my child recover.

>

> Best,

>

> Marcia Hinds

>

> hindssite@...

>

>

[Guest guest]

I think it's just a forward from that list, so the name is still in the subject

line, and the thread has just been continued.

I think it's all good - just the subject line.

________________________________

From: " erikadyan71@... " <erikadyan71@...>

Sent: Fri, August 27, 2010 11:04:46 AM

Subject: Re: Re:Fw: [mb12 valtrex] Re: Topics for the mb12 valtrex list

Argie-

I was JUST thinking the same thing myself! Did these two somehow

get mixed up on the internet?  I hope the group has not been hacked. 

If that is the case, we probably ALL need to be removed and a new group

started.  I don't want my email corrupted!  This has already happened to a few

friends of mine on Facebook......miserable!

Also, I have never signed up with the mb12 valtrex group (actually, never heard

of it until now.......maybe, I need to join that group instead).  Is there still

a moderator on the group?  I hope this gets resolved soon.

-ED

Sent on the Sprint® Now Network from my BlackBerry®

Re: Re:Fw: [mb12 valtrex] Re: Topics for the mb12 valtrex list

Hi Listmates,

Now I'm confused!  I thought this is the Dr. Goldberg) list!  If 

it isn't it, can someone please post the correct address?

Thanks,

Argie

On Aug 27, 2010, at 3:46 AM, and Marcia Hinds wrote:

> Bill,

>

> The discussion by Stan Kurtz and myself started as a result of a 

> post where

> the moderator threatened to stop posting things about but has no

> trouble talking about things that could be potentially harmful to 

> kids.

> Many of us were told to stop posting on the Valtrex list and take it 

> to the

> list.

>

> To which I said, " Bill is simply stating research and what worked 

> for his

> kid and has no financial incentive for doing so. I can't say the 

> same for

> Stan Kurtz (who also was a patient of Goldberg). He is making a 

> living off

> his kid's autism. It infuriates me that he is not a medical doctor 

> and yet

> I'm told charges $200/hour for a consult with parents. What is wrong 

> with

> this picture? Those of us following the protocol have nothing 

> to gain

> by posting here. We just want to help kids get better. "

>

> You openly admit that Dr. G helped your kid. I understand why you 

> left. Dr.

> G can be difficult to work with. I left myself for several years after

> getting tired of arguing with Dr.G. But the reality is, he is right 

> in his

> medical

> protocol and the best at the medical issues. I still don't agree 

> with him

> behaviorally or educationally. But if even one kid benefits from 

> what Bill

> said it should be posted. Open discussion and dialogue and 

> difference of

> opinion is

> the how things should work on any list.

>

> As long as you are sharing, here is my response to what Stan Kurtz 

> said on

> the Valtrex list:

>

> Stan,

>

> Thank you for responding to my post. You have to do what your 

> conscience

> allows. I would NEVER ask for, nor accept, money (whether you call 

> it a

> " donation " or a fee). As parents of these kids, we are all stuck in 

> this

> lifeboat together. We have to help each other survive this hell. 

> Parents

> can (and have) called me anytime (I mean anytime) for help and I 

> happily

> give it. God and I have a pact. Since He helped mine get better, I 

> will

> help everyone else's. No cover charge.

>

> When parents call me and ask for medical advice I tell them what Dr.

> Goldberg, Dr. or Dr. Baker have said to me. When they ask me 

> what I

> think, I tell them what has worked for my child, not what may work for

> theirs. I want nothing more than to retire from the autism world 

> because my

> son is in college, has friends, and is one of the most engaging 

> people I

> have ever met. But I can't, as long as there are parents who need 

> help.

>

> As parents we belong to a very unique group, I call it the " A-club. "  

> None of

> us ever asked to become members. But, because of our kids, we were all

> forced to be in it together. Only another parent understands what it 

> is

> like to live with this diagnosis day in and day out. The isolation and

> loneliness can be overwhelming. The hardest part is to continue to 

> get up

> every day, and not give up on our kids. My kid was kicked out of the

> A-Club. I want everyone's kids kicked out too.

>

> Just by being members of this list, the parents are actively looking 

> for the

> answers to help their children. They understand that everything we 

> have

> read or were told about autism is not necessarily true. I believe 

> that what

> we are talking about is NOT a debilitating psychiatric disorder 

> without any

> hope for recovery. Autism is treatable for most children.

>

> My son, , was diagnosed when he was four years old. A leading 

> authority

> on autism said he would never be okay. He was going to end up in a 

> group

> home. Today, does all the things the professionals said would 

> never

> happen. He studies mechanical engineering at a university on a merit

> scholarship. excels academically and is a member of the 

> Engineering

> Honor Society (top 10% GPA). He is a member of Sigma Chi Fraternity 

> and was

> president of the Jewish Student Association. is a typical college

> student who drinks an occasional beer, goes on dates, stays out too 

> late

> with friends and then sleeps through eight o'clock classes. I 

> couldn't be

> more proud.

>

> List mates, please email me privately and I will forward information 

> on what

> we did to help my child recover.

>

> Best,

>

> Marcia Hinds

>

> hindssite@...

>

>

[Guest guest]

Marcia was posting things on the mb12 valtrex list and she forwarded them to

for general interest. It is a one time event (maybe two) There is no confusion

or crossover. This is the list only.

________________________________

From: <thecolemans4@...>

Sent: Fri, August 27, 2010 3:13:09 PM

Subject: Re: Re:Fw: [mb12 valtrex] Re: Topics for the mb12 valtrex list

I think it's just a forward from that list, so the name is still in the subject

line, and the thread has just been continued.

I think it's all good - just the subject line.

________________________________

From: " erikadyan71@... " <erikadyan71@...>

Sent: Fri, August 27, 2010 11:04:46 AM

Subject: Re: Re:Fw: [mb12 valtrex] Re: Topics for the mb12 valtrex list

Argie-

I was JUST thinking the same thing myself! Did these two somehow

get mixed up on the internet? I hope the group has not been hacked.

If that is the case, we probably ALL need to be removed and a new group

started. I don't want my email corrupted! This has already happened to a few

friends of mine on Facebook......miserable!

Also, I have never signed up with the mb12 valtrex group (actually, never heard

of it until now.......maybe, I need to join that group instead). Is there still

a moderator on the group? I hope this gets resolved soon.

-ED

Sent on the Sprint® Now Network from my BlackBerry®

Re: Re:Fw: [mb12 valtrex] Re: Topics for the mb12 valtrex list

Hi Listmates,

Now I'm confused! I thought this is the Dr. Goldberg) list! If

it isn't it, can someone please post the correct address?

Thanks,

Argie

On Aug 27, 2010, at 3:46 AM, and Marcia Hinds wrote:

> Bill,

>

> The discussion by Stan Kurtz and myself started as a result of a

> post where

> the moderator threatened to stop posting things about but has no

> trouble talking about things that could be potentially harmful to

> kids.

> Many of us were told to stop posting on the Valtrex list and take it

> to the

> list.

>

> To which I said, " Bill is simply stating research and what worked

> for his

> kid and has no financial incentive for doing so. I can't say the

> same for

> Stan Kurtz (who also was a patient of Goldberg). He is making a

> living off

> his kid's autism. It infuriates me that he is not a medical doctor

> and yet

> I'm told charges $200/hour for a consult with parents. What is wrong

> with

> this picture? Those of us following the protocol have nothing

> to gain

> by posting here. We just want to help kids get better. "

>

> You openly admit that Dr. G helped your kid. I understand why you

> left. Dr.

> G can be difficult to work with. I left myself for several years after

> getting tired of arguing with Dr.G. But the reality is, he is right

> in his

> medical

> protocol and the best at the medical issues. I still don't agree

> with him

> behaviorally or educationally. But if even one kid benefits from

> what Bill

> said it should be posted. Open discussion and dialogue and

> difference of

> opinion is

> the how things should work on any list.

>

> As long as you are sharing, here is my response to what Stan Kurtz

> said on

> the Valtrex list:

>

> Stan,

>

> Thank you for responding to my post. You have to do what your

> conscience

> allows. I would NEVER ask for, nor accept, money (whether you call

> it a

> " donation " or a fee). As parents of these kids, we are all stuck in

> this

> lifeboat together. We have to help each other survive this hell.

> Parents

> can (and have) called me anytime (I mean anytime) for help and I

> happily

> give it. God and I have a pact. Since He helped mine get better, I

> will

> help everyone else's. No cover charge.

>

> When parents call me and ask for medical advice I tell them what Dr.

> Goldberg, Dr. or Dr. Baker have said to me. When they ask me

> what I

> think, I tell them what has worked for my child, not what may work for

> theirs. I want nothing more than to retire from the autism world

> because my

> son is in college, has friends, and is one of the most engaging

> people I

> have ever met. But I can't, as long as there are parents who need

> help.

>

> As parents we belong to a very unique group, I call it the " A-club. "

> None of

> us ever asked to become members. But, because of our kids, we were all

> forced to be in it together. Only another parent understands what it

> is

> like to live with this diagnosis day in and day out. The isolation and

> loneliness can be overwhelming. The hardest part is to continue to

> get up

> every day, and not give up on our kids. My kid was kicked out of the

> A-Club. I want everyone's kids kicked out too.

>

> Just by being members of this list, the parents are actively looking

> for the

> answers to help their children. They understand that everything we

> have

> read or were told about autism is not necessarily true. I believe

> that what

> we are talking about is NOT a debilitating psychiatric disorder

> without any

> hope for recovery. Autism is treatable for most children.

>

> My son, , was diagnosed when he was four years old. A leading

> authority

> on autism said he would never be okay. He was going to end up in a

> group

> home. Today, does all the things the professionals said would

> never

> happen. He studies mechanical engineering at a university on a merit

> scholarship. excels academically and is a member of the

> Engineering

> Honor Society (top 10% GPA). He is a member of Sigma Chi Fraternity

> and was

> president of the Jewish Student Association. is a typical college

> student who drinks an occasional beer, goes on dates, stays out too

> late

> with friends and then sleeps through eight o'clock classes. I

> couldn't be

> more proud.

>

> List mates, please email me privately and I will forward information

> on what

> we did to help my child recover.

>

> Best,

>

> Marcia Hinds

>

> hindssite@...

>

>

[Guest guest]

Thank you for clarifying. It was a post by " Cheryl? " was the

confusing one for me.

Argie

On Aug 27, 2010, at 4:17 PM, Bill klimas wrote:

> Marcia was posting things on the mb12 valtrex list and she forwarded

> them to

> for general interest. It is a one time event (maybe two) There is no

> confusion

> or crossover. This is the list only.

>

> ________________________________

> From: <thecolemans4@...>

>

> Sent: Fri, August 27, 2010 3:13:09 PM

> Subject: Re: Re:Fw: [mb12 valtrex] Re: Topics for the

> mb12 valtrex list

>

> I think it's just a forward from that list, so the name is still in

> the subject

> line, and the thread has just been continued.

> I think it's all good - just the subject line.

>

>

> ________________________________

> From: " erikadyan71@... " <erikadyan71@...>

>

> Sent: Fri, August 27, 2010 11:04:46 AM

> Subject: Re: Re:Fw: [mb12 valtrex] Re: Topics for the

> mb12 valtrex list

>

> Argie-

>

> I was JUST thinking the same thing myself! Did these two

> groups somehow

> get mixed up on the internet? I hope the group has not

> been hacked.

>

> If that is the case, we probably ALL need to be removed and a new

> group

> started. I don't want my email corrupted! This has already happened

> to a few

> friends of mine on Facebook......miserable!

> Also, I have never signed up with the mb12 valtrex group (actually,

> never heard

> of it until now.......maybe, I need to join that group instead). Is

> there still

>

> a moderator on the group? I hope this gets resolved soon.

>

> -ED

> Sent on the Sprint® Now Network from my BlackBerry®

>

> Re: Re:Fw: [mb12 valtrex] Re: Topics for the

> mb12 valtrex list

>

> Hi Listmates,

>

> Now I'm confused! I thought this is the Dr. Goldberg) list! If

> it isn't it, can someone please post the correct address?

>

> Thanks,

> Argie

> On Aug 27, 2010, at 3:46 AM, and Marcia Hinds wrote:

>

> > Bill,

> >

> > The discussion by Stan Kurtz and myself started as a result of a

> > post where

> > the moderator threatened to stop posting things about but has

> no

> > trouble talking about things that could be potentially harmful to

> > kids.

> > Many of us were told to stop posting on the Valtrex list and take it

> > to the

> > list.

> >

> > To which I said, " Bill is simply stating research and what worked

> > for his

> > kid and has no financial incentive for doing so. I can't say the

> > same for

> > Stan Kurtz (who also was a patient of Goldberg). He is making a

> > living off

> > his kid's autism. It infuriates me that he is not a medical doctor

> > and yet

> > I'm told charges $200/hour for a consult with parents. What is wrong

> > with

> > this picture? Those of us following the protocol have nothing

> > to gain

> > by posting here. We just want to help kids get better. "

> >

> > You openly admit that Dr. G helped your kid. I understand why you

> > left. Dr.

> > G can be difficult to work with. I left myself for several years

> after

> > getting tired of arguing with Dr.G. But the reality is, he is right

> > in his

> > medical

> > protocol and the best at the medical issues. I still don't agree

> > with him

> > behaviorally or educationally. But if even one kid benefits from

> > what Bill

> > said it should be posted. Open discussion and dialogue and

> > difference of

> > opinion is

> > the how things should work on any list.

> >

> > As long as you are sharing, here is my response to what Stan Kurtz

> > said on

> > the Valtrex list:

> >

> > Stan,

> >

> > Thank you for responding to my post. You have to do what your

> > conscience

> > allows. I would NEVER ask for, nor accept, money (whether you call

> > it a

> > " donation " or a fee). As parents of these kids, we are all stuck in

> > this

> > lifeboat together. We have to help each other survive this hell.

> > Parents

> > can (and have) called me anytime (I mean anytime) for help and I

> > happily

> > give it. God and I have a pact. Since He helped mine get better, I

> > will

> > help everyone else's. No cover charge.

> >

> > When parents call me and ask for medical advice I tell them what Dr.

> > Goldberg, Dr. or Dr. Baker have said to me. When they ask me

> > what I

> > think, I tell them what has worked for my child, not what may work

> for

> > theirs. I want nothing more than to retire from the autism world

> > because my

> > son is in college, has friends, and is one of the most engaging

> > people I

> > have ever met. But I can't, as long as there are parents who need

> > help.

> >

> > As parents we belong to a very unique group, I call it the " A-club. "

> > None of

> > us ever asked to become members. But, because of our kids, we were

> all

> > forced to be in it together. Only another parent understands what it

> > is

> > like to live with this diagnosis day in and day out. The isolation

> and

> > loneliness can be overwhelming. The hardest part is to continue to

> > get up

> > every day, and not give up on our kids. My kid was kicked out of the

> > A-Club. I want everyone's kids kicked out too.

> >

> > Just by being members of this list, the parents are actively looking

> > for the

> > answers to help their children. They understand that everything we

> > have

> > read or were told about autism is not necessarily true. I believe

> > that what

> > we are talking about is NOT a debilitating psychiatric disorder

> > without any

> > hope for recovery. Autism is treatable for most children.

> >

> > My son, , was diagnosed when he was four years old. A leading

> > authority

> > on autism said he would never be okay. He was going to end up in a

> > group

> > home. Today, does all the things the professionals said would

> > never

> > happen. He studies mechanical engineering at a university on a merit

> > scholarship. excels academically and is a member of the

> > Engineering

> > Honor Society (top 10% GPA). He is a member of Sigma Chi Fraternity

> > and was

> > president of the Jewish Student Association. is a typical

> college

> > student who drinks an occasional beer, goes on dates, stays out too

> > late

> > with friends and then sleeps through eight o'clock classes. I

> > couldn't be

> > more proud.

> >

> > List mates, please email me privately and I will forward information

> > on what

> > we did to help my child recover.

> >

> > Best,

> >

> > Marcia Hinds

> >

> > hindssite@...

> >

> >