Guest guest Posted October 21, 2010 Report Share Posted October 21, 2010 , We only eliminated the big triggers from 's diet. Dairy being the most important one to eliminate for him and too many sugars. You can make yourself crazy with diet. Try to eliminate the foods in the most allergic column of the allergy blood test. used to come up off the charts allergic to garlic but now it is okay. You can drive yourself crazy with worrying what you can and cannot feed them. Some find it so taxing and restrictive that they eventually give up the diet and even the medical treatments. That is a big mistake. The medical component is essential to recovery. Instead, I wish parents would just try to concentrate on eliminating the big triggers that greatly affect their child's immune systems instead of wasting hours washing pink dye off the Diflucan tablets. There are only a finite number of hours in each day and you need to spend your time on the things that will make the biggest difference for your child instead of sweating the small stuff. It would be better to spend this time working to teach your child the things they missed. Each kid is different and you need to do the best you can without making yourself or your child apprehensive about what they eat. It is important that your kid not feel totally different and that you do not wake up every morning (like I did) afraid to feed your child anything because it may cause a reaction. For most kids with immune problems, the most offending foods are usually dairy, whole wheat, and milk chocolate. And foods are not the only allergens that affect our kids. I still use " All " laundry detergent with no dyes and perfumes " to alleviate some stress on 's immune system. Best, Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 , I feel awful about what you and Josh are going through. I know there are parents like you who work tirelessly to help their kids, but their medical issues are extremely difficult to treat. When I read stories like yours, I feel so guilty that mine is okay and yours is not. It is obvious, you would do anything for your child, and it is just chance that mine has an immune system that is working better with treatment. I think it is people like you that make me stay on this list when I just want to be out of the autism world. We must find the answers to make them all better. Have you tried the dreaded ABA? I know Dr G hates ABA. Besides Dr. G, ABA is the thing that helped the most. We used ABA techniques we used to help learn what he missed. If you can't get a kid to do anything or attend, you can't teach them anything. As soon as listened and focused, we moved to a more natural way of learning where we used what he loved to motivate him. Dr G and I argue about ABA constantly. Although I disagree with Dr Goldberg about using ABA. I do agree with what he says about that there are some people out there doing ABA just to make money. They feed on our fear and desire to do anything to help our children. In addition, some of them charge a fortune and yet use untrained people to work with our kids. And worse are those who are doing ABA incorrectly. Many of them even have big titles and degrees behind their names. You may have already tried ABA, but if not be careful if you decide to go down this path. I didn't realize it at the time, but we were fortunate that there was no one to do ABA in Minnesota. We brought someone in to teach us and we did it ourselves. Less expensive and better for our kids because we were trained in the techniques so we could use them throughout the day to help our child. I do know some kids are so affected, nothing works well and this saddens me. Some kids have immune systems that are just not working. But never give up hope because none of us know when something new will be discovered that will help these kids who are more difficult cases. Please call if I can help in any way. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 Marcia, What you've told us about ABA makes sense for filling in the gaps, but I know very little about the method. Our family has always used more of a DIR/Greenspan/Floortime approach (which worked great for our high functioning kid, not so great for our low functioning kid). We've had training and know Floortime inside and out, but I don't know where to even begin in thinking about ABA, or evaluating possible providers. Is there a book or website you can recommend that gives a good overview of ABA, the fundamentals and underlying philosophy? I like to be a little informed myself before I go and try to find someone to help us with a particular method. Thanks! Tammy Re:P.S. we only eliminated the big triggers , I feel awful about what you and Josh are going through. I know there are parents like you who work tirelessly to help their kids, but their medical issues are extremely difficult to treat. When I read stories like yours, I feel so guilty that mine is okay and yours is not. It is obvious, you would do anything for your child, and it is just chance that mine has an immune system that is working better with treatment. I think it is people like you that make me stay on this list when I just want to be out of the autism world. We must find the answers to make them all better. Have you tried the dreaded ABA? I know Dr G hates ABA. Besides Dr. G, ABA is the thing that helped the most. We used ABA techniques we used to help learn what he missed. If you can't get a kid to do anything or attend, you can't teach them anything. As soon as listened and focused, we moved to a more natural way of learning where we used what he loved to motivate him. Dr G and I argue about ABA constantly. Although I disagree with Dr Goldberg about using ABA. I do agree with what he says about that there are some people out there doing ABA just to make money. They feed on our fear and desire to do anything to help our children. In addition, some of them charge a fortune and yet use untrained people to work with our kids. And worse are those who are doing ABA incorrectly. Many of them even have big titles and degrees behind their names. You may have already tried ABA, but if not be careful if you decide to go down this path. I didn't realize it at the time, but we were fortunate that there was no one to do ABA in Minnesota. We brought someone in to teach us and we did it ourselves. Less expensive and better for our kids because we were trained in the techniques so we could use them throughout the day to help our child. I do know some kids are so affected, nothing works well and this saddens me. Some kids have immune systems that are just not working. But never give up hope because none of us know when something new will be discovered that will help these kids who are more difficult cases. Please call if I can help in any way. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 There is a great book by Shira Richman called (I believe) A Parents Guide to Applied Behavioral Analysis(or something along those lines sorry!) But her books are great because they are easy to read and teach ABA in a common-sense way . I am not home now, so I am going by my weak memory.......! From: and Marcia Hinds <hindssite@...> Subject: Re:P.S. we only eliminated the big triggers hindssite@..., Date: Friday, October 22, 2010, 8:26 AM  , I feel awful about what you and Josh are going through. I know there are parents like you who work tirelessly to help their kids, but their medical issues are extremely difficult to treat. When I read stories like yours, I feel so guilty that mine is okay and yours is not. It is obvious, you would do anything for your child, and it is just chance that mine has an immune system that is working better with treatment. I think it is people like you that make me stay on this list when I just want to be out of the autism world. We must find the answers to make them all better. Have you tried the dreaded ABA? I know Dr G hates ABA. Besides Dr. G, ABA is the thing that helped the most. We used ABA techniques we used to help learn what he missed. If you can't get a kid to do anything or attend, you can't teach them anything. As soon as listened and focused, we moved to a more natural way of learning where we used what he loved to motivate him. Dr G and I argue about ABA constantly. Although I disagree with Dr Goldberg about using ABA. I do agree with what he says about that there are some people out there doing ABA just to make money. They feed on our fear and desire to do anything to help our children. In addition, some of them charge a fortune and yet use untrained people to work with our kids. And worse are those who are doing ABA incorrectly. Many of them even have big titles and degrees behind their names. You may have already tried ABA, but if not be careful if you decide to go down this path. I didn't realize it at the time, but we were fortunate that there was no one to do ABA in Minnesota. We brought someone in to teach us and we did it ourselves. Less expensive and better for our kids because we were trained in the techniques so we could use them throughout the day to help our child. I do know some kids are so affected, nothing works well and this saddens me. Some kids have immune systems that are just not working. But never give up hope because none of us know when something new will be discovered that will help these kids who are more difficult cases. Please call if I can help in any way. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 Also " Educate Toward Recovery " - best $80 bucks I ever spent! Sent from my iPhone On Oct 22, 2010, at 9:20 AM, Lynn Capone <ecapne@...> wrote: There is a great book by Shira Richman called (I believe) A Parents Guide to Applied Behavioral Analysis(or something along those lines sorry!) But her books are great because they are easy to read and teach ABA in a common-sense way . I am not home now, so I am going by my weak memory.......! From: and Marcia Hinds <hindssite@...> Subject: Re:P.S. we only eliminated the big triggers hindssite@..., Date: Friday, October 22, 2010, 8:26 AM , I feel awful about what you and Josh are going through. I know there are parents like you who work tirelessly to help their kids, but their medical issues are extremely difficult to treat. When I read stories like yours, I feel so guilty that mine is okay and yours is not. It is obvious, you would do anything for your child, and it is just chance that mine has an immune system that is working better with treatment. I think it is people like you that make me stay on this list when I just want to be out of the autism world. We must find the answers to make them all better. Have you tried the dreaded ABA? I know Dr G hates ABA. Besides Dr. G, ABA is the thing that helped the most. We used ABA techniques we used to help learn what he missed. If you can't get a kid to do anything or attend, you can't teach them anything. As soon as listened and focused, we moved to a more natural way of learning where we used what he loved to motivate him. Dr G and I argue about ABA constantly. Although I disagree with Dr Goldberg about using ABA. I do agree with what he says about that there are some people out there doing ABA just to make money. They feed on our fear and desire to do anything to help our children. In addition, some of them charge a fortune and yet use untrained people to work with our kids. And worse are those who are doing ABA incorrectly. Many of them even have big titles and degrees behind their names. You may have already tried ABA, but if not be careful if you decide to go down this path. I didn't realize it at the time, but we were fortunate that there was no one to do ABA in Minnesota. We brought someone in to teach us and we did it ourselves. Less expensive and better for our kids because we were trained in the techniques so we could use them throughout the day to help our child. I do know some kids are so affected, nothing works well and this saddens me. Some kids have immune systems that are just not working. But never give up hope because none of us know when something new will be discovered that will help these kids who are more difficult cases. Please call if I can help in any way. Marcia Quote Link to comment Share on other sites More sharing options...
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