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P.S. we only eliminated the big triggers

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,

We only eliminated the big triggers from 's diet. Dairy being the most

important one to eliminate for him and too many sugars. You can make

yourself crazy with diet. Try to eliminate the foods in the most allergic

column of the allergy blood test. used to come up off the charts

allergic to garlic but now it is okay. You can drive yourself crazy with

worrying what you can and cannot feed them. Some find it so taxing and

restrictive that they eventually give up the diet and even the medical

treatments. That is a big mistake. The medical component is essential to

recovery.

Instead, I wish parents would just try to concentrate on eliminating the big

triggers that greatly affect their child's immune systems instead of wasting

hours washing pink dye off the Diflucan tablets. There are

only a finite number of hours in each day and you need to spend your time on

the things that will make the biggest difference for your child instead of

sweating the small stuff. It would be better to spend this time working to

teach your child the things they missed.

Each kid is different and you need to do the best you can without making

yourself or your child apprehensive about what they eat. It is important

that your kid not feel totally different and that you do not wake up every

morning (like I did) afraid to feed your child anything because it may cause

a reaction. For most kids with immune problems, the most offending foods are

usually dairy, whole wheat, and milk chocolate. And foods are not the only

allergens that affect our kids. I still use " All " laundry detergent with no

dyes and perfumes " to alleviate some stress on 's immune system.

Best,

Marcia

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,

I feel awful about what you and Josh are going through. I know there are

parents like you who work tirelessly to help their kids, but their medical

issues are extremely difficult to treat. When I read stories like yours, I

feel so guilty that mine is okay and yours is not. It is obvious, you would

do anything for your child, and it is just chance that mine has an immune

system that is working better with treatment. I think it is people like you

that make me stay on this list when I just want to be out of the autism

world. We must find the answers to make them all better.

Have you tried the dreaded ABA? I know Dr G hates ABA. Besides Dr. G, ABA

is the thing that helped the most. We used ABA techniques we used to

help learn what he missed. If you can't get a kid to do anything or

attend, you can't teach them anything. As soon as listened and

focused, we moved to a more natural way of learning where we used what he

loved to motivate him.

Dr G and I argue about ABA constantly. Although I disagree with Dr Goldberg

about using ABA. I do agree with what he says about that there are some

people out there doing ABA just to make money. They feed on our fear and

desire to do anything to help our children. In addition, some of them

charge a fortune and yet use untrained people to work with our kids. And

worse are those who are doing ABA incorrectly. Many of them even have big

titles and degrees behind their names.

You may have already tried ABA, but if not be careful if you decide to go

down this path. I didn't realize it at the time, but we were fortunate that

there was no one to do ABA in Minnesota. We brought someone in to teach us

and we did it ourselves. Less expensive and better for our kids because we

were trained in the techniques so we could use them throughout the day to

help our child.

I do know some kids are so affected, nothing works well and this saddens me.

Some kids have immune systems that are just not working. But never give up

hope because none of us know when something new will be discovered that

will help these kids who are more difficult cases. Please call if I can

help in any way.

Marcia

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Marcia,

What you've told us about ABA makes sense for filling in the gaps, but I know

very little about the method. Our family has always used more of a

DIR/Greenspan/Floortime approach (which worked great for our high functioning

kid, not so great for our low functioning kid). We've had training and know

Floortime inside and out, but I don't know where to even begin in thinking about

ABA, or evaluating possible providers. Is there a book or website you can

recommend that gives a good overview of ABA, the fundamentals and underlying

philosophy? I like to be a little informed myself before I go and try to find

someone to help us with a particular method.

Thanks!

Tammy

Re:P.S. we only eliminated the big triggers

,

I feel awful about what you and Josh are going through. I know there are

parents like you who work tirelessly to help their kids, but their medical

issues are extremely difficult to treat. When I read stories like yours, I

feel so guilty that mine is okay and yours is not. It is obvious, you would

do anything for your child, and it is just chance that mine has an immune

system that is working better with treatment. I think it is people like you

that make me stay on this list when I just want to be out of the autism

world. We must find the answers to make them all better.

Have you tried the dreaded ABA? I know Dr G hates ABA. Besides Dr. G, ABA

is the thing that helped the most. We used ABA techniques we used to

help learn what he missed. If you can't get a kid to do anything or

attend, you can't teach them anything. As soon as listened and

focused, we moved to a more natural way of learning where we used what he

loved to motivate him.

Dr G and I argue about ABA constantly. Although I disagree with Dr Goldberg

about using ABA. I do agree with what he says about that there are some

people out there doing ABA just to make money. They feed on our fear and

desire to do anything to help our children. In addition, some of them

charge a fortune and yet use untrained people to work with our kids. And

worse are those who are doing ABA incorrectly. Many of them even have big

titles and degrees behind their names.

You may have already tried ABA, but if not be careful if you decide to go

down this path. I didn't realize it at the time, but we were fortunate that

there was no one to do ABA in Minnesota. We brought someone in to teach us

and we did it ourselves. Less expensive and better for our kids because we

were trained in the techniques so we could use them throughout the day to

help our child.

I do know some kids are so affected, nothing works well and this saddens me.

Some kids have immune systems that are just not working. But never give up

hope because none of us know when something new will be discovered that

will help these kids who are more difficult cases. Please call if I can

help in any way.

Marcia

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There is a great book by Shira Richman called (I believe) A Parents Guide to

Applied Behavioral Analysis(or something along those lines sorry!)  But her

books are great because they are easy to read and teach ABA in a common-sense

way . I am not home now, so I am going by my weak memory.......! 

From: and Marcia Hinds <hindssite@...>

Subject: Re:P.S. we only eliminated the big triggers

hindssite@...,

Date: Friday, October 22, 2010, 8:26 AM

 

,

I feel awful about what you and Josh are going through. I know there are

parents like you who work tirelessly to help their kids, but their medical

issues are extremely difficult to treat. When I read stories like yours, I

feel so guilty that mine is okay and yours is not. It is obvious, you would

do anything for your child, and it is just chance that mine has an immune

system that is working better with treatment. I think it is people like you

that make me stay on this list when I just want to be out of the autism

world. We must find the answers to make them all better.

Have you tried the dreaded ABA? I know Dr G hates ABA. Besides Dr. G, ABA

is the thing that helped the most. We used ABA techniques we used to

help learn what he missed. If you can't get a kid to do anything or

attend, you can't teach them anything. As soon as listened and

focused, we moved to a more natural way of learning where we used what he

loved to motivate him.

Dr G and I argue about ABA constantly. Although I disagree with Dr Goldberg

about using ABA. I do agree with what he says about that there are some

people out there doing ABA just to make money. They feed on our fear and

desire to do anything to help our children. In addition, some of them

charge a fortune and yet use untrained people to work with our kids. And

worse are those who are doing ABA incorrectly. Many of them even have big

titles and degrees behind their names.

You may have already tried ABA, but if not be careful if you decide to go

down this path. I didn't realize it at the time, but we were fortunate that

there was no one to do ABA in Minnesota. We brought someone in to teach us

and we did it ourselves. Less expensive and better for our kids because we

were trained in the techniques so we could use them throughout the day to

help our child.

I do know some kids are so affected, nothing works well and this saddens me.

Some kids have immune systems that are just not working. But never give up

hope because none of us know when something new will be discovered that

will help these kids who are more difficult cases. Please call if I can

help in any way.

Marcia

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Also " Educate Toward Recovery " - best $80 bucks I ever spent!

Sent from my iPhone

On Oct 22, 2010, at 9:20 AM, Lynn Capone <ecapne@...> wrote:

There is a great book by Shira Richman called (I believe) A Parents Guide to

Applied Behavioral Analysis(or something along those lines sorry!) But her

books are great because they are easy to read and teach ABA in a common-sense

way . I am not home now, so I am going by my weak memory.......!

From: and Marcia Hinds <hindssite@...>

Subject: Re:P.S. we only eliminated the big triggers

hindssite@...,

Date: Friday, October 22, 2010, 8:26 AM

,

I feel awful about what you and Josh are going through. I know there are

parents like you who work tirelessly to help their kids, but their medical

issues are extremely difficult to treat. When I read stories like yours, I

feel so guilty that mine is okay and yours is not. It is obvious, you would

do anything for your child, and it is just chance that mine has an immune

system that is working better with treatment. I think it is people like you

that make me stay on this list when I just want to be out of the autism

world. We must find the answers to make them all better.

Have you tried the dreaded ABA? I know Dr G hates ABA. Besides Dr. G, ABA

is the thing that helped the most. We used ABA techniques we used to

help learn what he missed. If you can't get a kid to do anything or

attend, you can't teach them anything. As soon as listened and

focused, we moved to a more natural way of learning where we used what he

loved to motivate him.

Dr G and I argue about ABA constantly. Although I disagree with Dr Goldberg

about using ABA. I do agree with what he says about that there are some

people out there doing ABA just to make money. They feed on our fear and

desire to do anything to help our children. In addition, some of them

charge a fortune and yet use untrained people to work with our kids. And

worse are those who are doing ABA incorrectly. Many of them even have big

titles and degrees behind their names.

You may have already tried ABA, but if not be careful if you decide to go

down this path. I didn't realize it at the time, but we were fortunate that

there was no one to do ABA in Minnesota. We brought someone in to teach us

and we did it ourselves. Less expensive and better for our kids because we

were trained in the techniques so we could use them throughout the day to

help our child.

I do know some kids are so affected, nothing works well and this saddens me.

Some kids have immune systems that are just not working. But never give up

hope because none of us know when something new will be discovered that

will help these kids who are more difficult cases. Please call if I can

help in any way.

Marcia

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