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In a message dated 6/11/2006 3:18:57 PM Eastern Daylight Time, circe@... writes:

both of these people are wonderful! I work at a group home for retarded adults, and I cannot tell you how appalling their diets are. A nutritionist is paid for her low calorie low fat diets. Everything is "lite" or diet (lots of aspartame)--the big treat is "lite" lowfat Kool Whip. They even have "lite" or zero fat salad dressing, it's so unbelievable. And of course no salt.

gracia

Gracia,

Yes, I was appalled also at the fare at a nursing home. My mother-in-law was in one last year and I knew she wouldn't last with what they were feeding her, she died at Christmas. It almost seems that they are trying to kill them off, but they are just following the guidelines of these organizations that masquerade as being concerned for our health. What a crock!

Bonnie

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hm, you fry regular bananas? I have never known of anyone doing that. I love Plantains and when I go to my favorite Spanish restaurant I always get them. I might have to try regular bananas as well.

Allyn

Re: Re: Diet question

In a message dated 6/11/2006 6:52:44 PM Eastern Daylight Time, aferris7272@... writes:

As much as I love Plantains they are so high is sugar I can’t eat them very often. I need to pull her book back out

I use regular bananas, not Plantains. Yes, they are high in sugar, but the coconut oil stabilizes the sugar. It is a treat I don't do it all the time.

Bonnie

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Bananas come ready to eat and frying cannot improve them, nutritionally.

Dr. Randall Scripter

http://anaturalway.com/

http://tbrlabs.com/anaturalway/

>

> In a message dated 6/7/2006 5:33:49 PM Eastern Daylight Time,

> aferris7272@... writes:

> I have just started taking this much so I am going to have be

creative and

> come up with some other stuff.

> There is a book out called, " Eat Fat, Lose Fat, " by Sally Fallon and

Dr.

> Enig that has a lot of great recipes and ideas for using Virgin

Coconut Oil.

> I love frying bananas in it.

>

> Bonnie

>

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true but fried plantains are yummy

gracia (who has got relatives in Panama and Cuba)

Bananas come ready to eat and frying cannot improve them, nutritionally.Dr. Randall Scripterhttp://anaturalway.com/http://tbrlabs.com/anaturalway/>> In a message dated 6/7/2006 5:33:49 PM Eastern Daylight Time, > aferris7272@... writes:> I have just started taking this much so I am going to have becreative and > come up with some other stuff. > There is a book out called, "Eat Fat, Lose Fat," by Sally Fallon andDr. > Enig that has a lot of great recipes and ideas for using VirginCoconut Oil. > I love frying bananas in it.> > Bonnie>

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Bonnie, Thanks, we try at least.  I was fortunate to come from a family who liked to cook.  I grew up on real food.  I can remember being about 10 years old and hearing my parents talk about an uncle of mine who owned a fast food restaurant, my stepfather made the comment  that eating that way was a slow death.  That always stuck with me.  Very few people I know actually know how to cook from scratch.  It's just too much trouble.  LinnOn Jun 12, 2006, at 7:57 AM, braguet@... wrote:In a message dated 6/11/2006 6:23:44 PM Eastern Daylight Time, linnmiller@... writes:When I told the dietician I wouldn't be needing it, she asked why.  I told her that I didn't allow my kids to eat that way to begin with, I certainly wasn't going to allow my daughter to start eating like that after being diagnosed.  I had to go out of my way to find a book that listed real whole foods.  Their motto is that everybody eats like that so they just go with the flow.  You'd think it would be part of their job to teach people how to manage food, but it's obvious that dieticians don't necessarily know much about nutrition.I fully agree with you that they don't even try to teach the dangers of eating wrong.  Maybe they don't even know themselves.  How great of you to give your kids a great foundation on nutrition, they will appreciate it later if they don't already. Bonnie

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Linn

your emails are very hard fo rme to read. I have to scroll sideways.

????

gracia

Bonnie,

Thanks, we try at least. I was fortunate to come from a family who liked to cook. I grew up on real food. I can remember being about 10 years old and hearing my parents talk about an uncle of mine who owned a fast food restaurant, my stepfather made the comment that eating that way was a slow death. That always stuck with me. Very few people I know actually know how to cook from scratch. It's just too much trouble.

Linn

On Jun 12, 2006, at 7:57 AM, braguet@... wrote:

In a message dated 6/11/2006 6:23:44 PM Eastern Daylight Time, linnmiller@... writes:

When I told the dietician I wouldn't be needing it, she asked why. I told her that I didn't allow my kids to eat that way to begin with, I certainly wasn't going to allow my daughter to start eating like that after being diagnosed. I had to go out of my way to find a book that listed real whole foods. Their motto is that everybody eats like that so they just go with the flow. You'd think it would be part of their job to teach people how to manage food, but it's obvious that dieticians don't necessarily know much about nutrition.

I fully agree with you that they don't even try to teach the dangers of eating wrong. Maybe they don't even know themselves. How great of you to give your kids a great foundation on nutrition, they will appreciate it later if they don't already.

Bonnie

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it must be in how Linn has set up her email, because I have the same problem.......

Karin

GUHDO USA Inc. 1135 JVL Court Marietta, GA 30066 770-592-4766 (phone) 770-592-1714 (fax) www.guhdo.com

-----Original Message-----From: iodine [mailto:iodine ]On Behalf Of GraciaSent: Tuesday, June 13, 2006 11:28 AMiodine Subject: Re: Diet question

Linn

your emails are very hard fo rme to read. I have to scroll sideways.

????

gracia

Bonnie, Thanks, we try at least. I was fortunate to come from a family who liked to cook. I grew up on real food. I can remember being about 10 years old and hearing my parents talk about an uncle of mine who owned a fast food restaurant, my stepfather made the comment that eating that way was a slow death. That always stuck with me. Very few people I know actually know how to cook from scratch. It's just too much trouble.

Linn

On Jun 12, 2006, at 7:57 AM, braguet@... wrote:

In a message dated 6/11/2006 6:23:44 PM Eastern Daylight Time, linnmiller@... writes:

When I told the dietician I wouldn't be needing it, she asked why. I told her that I didn't allow my kids to eat that way to begin with, I certainly wasn't going to allow my daughter to start eating like that after being diagnosed. I had to go out of my way to find a book that listed real whole foods. Their motto is that everybody eats like that so they just go with the flow. You'd think it would be part of their job to teach people how to manage food, but it's obvious that dieticians don't necessarily know much about nutrition.

I fully agree with you that they don't even try to teach the dangers of eating wrong. Maybe they don't even know themselves. How great of you to give your kids a great foundation on nutrition, they will appreciate it later if they don't already.

Bonnie

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Gracia, That's odd, I haven't heard that complaint before.  Occasionally I get an email from someone that does that.  We use Apple computers, I wonder if that could be it.  Linn On Jun 13, 2006, at 10:28 AM, Gracia wrote: Linnyour emails are very hard fo rme to read.  I have to scroll sideways.????graciaBonnie, Thanks, we try at least.  I was fortunate to come from a family who liked to cook.  I grew up on real food.  I can remember being about 10 years old and hearing my parents talk about an uncle of mine who owned a fast food restaurant, my stepfather made the comment  that eating that way was a slow death.  That always stuck with me.  Very few people I know actually know how to cook from scratch.  It's just too much trouble.  LinnOn Jun 12, 2006, at 7:57 AM, braguet@... wrote:In a message dated 6/11/2006 6:23:44 PM Eastern Daylight Time, linnmiller@... writes:When I told the dietician I wouldn't be needing it, she asked why.  I told her that I didn't allow my kids to eat that way to begin with, I certainly wasn't going to allow my daughter to start eating like that after being diagnosed.  I had to go out of my way to find a book that listed real whole foods.  Their motto is that everybody eats like that so they just go with the flow.  You'd think it would be part of their job to teach people how to manage food, but it's obvious that dieticians don't necessarily know much about nutrition.I fully agree with you that they don't even try to teach the dangers of eating wrong.  Maybe they don't even know themselves.  How great of you to give your kids a great foundation on nutrition, they will appreciate it later if they don't already. Bonnie

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  • 1 year later...

The milk tests are 50% accurate and test 2 things. There are 1200

things in milk that could be an issue so that is the deal there.

Celiac panels in immature immune systems have accuracy issues but

there is 1 part of the panel that is very telling and accurate to

98%. But, there are issues with lab ranges and who ran the test. This

I learned at a celiac conference in Manhattan, not just my opinion.

But, assuming your child is not celiac, there are other reasons a kid

could benefit from gluten-free. The child could be gluten sensitive.

Hard poop is not good and you do need to wonder if there is enough

fiber, if she is getting the right vitamins, etc. I did diet first

but backtracked to be sure we needed to stay on the diet. Some things

that may help you decide would be the following tests:

Direct Vitamin Intake labs

Hair Elements test

Genetic testing for DQ1, 2, and 8

There are othes, I think they are listed in the malabsorption folder.

If you decide on this diet prep yourself, don't just try to recreate

the old diet or overrely on subs. It could do more harm than good.

Also, make sure you replace the good that is in the things you are

eliminating like vitamins A, B complex, D,E,K and cal/mag among

others.

If you need help the TACA website is helpful. You can do this if you

have to and only you will know. As for the sadness, it lessens when

the belly hurts less and the poop comes out normal. It still stinks

for the parents but it is our job to engage them in food prep,

explain good choices, why we eat differently and how it helps us. I

eat what my kids eat so they feel less deprived and I try to approach

it as a cultural thing instead of a deprivation thing. The kids pick

up on your approach so you have to sign on fully once you have

researched and decided this is the way to go. I posted some allergy

stuff yesterday. Peanut allergies are often related to other

allergins and I think milk is one. Many times folks see no

improvement off milk because they have not fully eliminated it or

have not been off long enough. In a severely damaged gut you may not

see immediate results. Same holds true if the allergy is being masked

by supplements.

Good luck!

>

> I was considering staring a milk and wheat free diet. I had a milk

> allergy test and a celiac panel ran on my 5 year old apraxic

daughter.

> Both tests came back negative. Can I trust that because the tests

are e

> negative that there is no need to change my daughters diet. I had

> eliminated most all dairy from her diet and didn't notice any

> difference. Her bowel movement have always been regular but are

like

> rocks and are never loose, even on fish oil. I don't want to change

my

> daughter's diet if I don't have to. She is allergic to peanuts and

I

> gets so sad when she can't eat what other are, even when I offer

her

> other treats. Any advice or opinions would be appriciated.

> Thank you, Lola

>

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Lola,

My son's came back negative as well. But via elimination dieting and

observation, I know that my child is 'intolerant' (not allergic but the

reactions are very similiar) of casien. We have done elimination with gluten

and we are okay in that departement though I find that Mark has reactions to

items which are too 'yeasty' ie Subway Submarine's whole wheat bread is a no-no

but can tolerate the wraps. Perhaps there might be something else in that bread

formulation that affects him.... I am just assuming that it is the yeast. I can

now 'tell' when he is affected by something but I cannot always tell what that

something is!

It seems that many kids with speech and auditory issues have trouble with the

casien in milk so if you want to try a milk elimination diet for 3 weeks and

then add milk products back in to your daughters diet and watch for results,

that is the easiest method to really know for sure. Milk products, even in

trace amounts, can cause my son's ears to get congested, his speech to slur, his

balance to be affected, he gets a glazed look to his eyes, his hands go numb as

well as his lips. In addition, now when he gets pure milk products, it is

diarrhea city and he is in agony. When he got milk all of the time, he would

only get diarrhea/constipation in 'bouts'. Once the item leaves the system and

the system starts to heal.... when it is reintroduced, the reactions are severe.

The thing is, he couldn't know these things until he was fee of the symptoms for

a while. It took us a good 6 months (because I was an extreme sceptic and

really didn't want to change my lifestyle) to really 'see' what milk did to him.

We would 'kinda' eliminate milk... you know, still eat the cheese and not worry

about packaged products. Well, Mark's academics were all up/down and all over

the place. The teachers were complaining how his performance was inconsistent

(I left the cheese on the lunchtime sandwich so he would have the pm 'blues').

Also his therapy was all over the place with regards to consistency as well.

One day, I gave him an ice-cream sundae from Dairy Queen after a few good,

strict days of being off of milk. Within 20 minutes, he practicly lost all of

his hearing! We sat down to watch a movie and he had to sit on the floor next

to the speaker in order to hear it. He also had trouble understanding the plot

and context of the movie (normally easy items for him) and his balance started

to dissipate (like a drunken soldier). Later he had horrible, horrible diarrhea

and that was it for me..... NO MORE CASIEN!

At least until I healed his tummy. Now with digestive enzymes by Huston

Neutraceuticals Mark can eat pizza, some white breads, some cookies (though not

many), etc. He still cannot eat straight milk, whipped or sour cream, yogurt

but that's okay. Life is pretty normal though he was pretty sick after

Halloween.....

So.... if you really, really want to try it..... No milk, even trace amounts in

breads, and 'stuff'. This means you have to label read with a vengence for a

while. No soy either as it affects most of our kids in pretty much the same

way. In addition, soy is often over-processed and is full of estrogen so it

really is not a healthy alternative.

Start with casien as it is easiest. Gluten is tough to eliminate from ones life

and the changes are dramatic. It also takes a lot longer to completely leave

the body. Casien is relatively easy to do and the results are often dramatic if

your child is a responder.

Janice

Mother of Mark, 13

[sPAM][ ] Diet Question

I was considering staring a milk and wheat free diet. I had a milk

allergy test and a celiac panel ran on my 5 year old apraxic daughter.

Both tests came back negative. Can I trust that because the tests are e

negative that there is no need to change my daughters diet. I had

eliminated most all dairy from her diet and didn't notice any

difference. Her bowel movement have always been regular but are like

rocks and are never loose, even on fish oil. I don't want to change my

daughter's diet if I don't have to. She is allergic to peanuts and I

gets so sad when she can't eat what other are, even when I offer her

other treats. Any advice or opinions would be appriciated.

Thank you, Lola

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The only thing is, if casein really is the issue, the gluten protein

is similar so that is why, if you can get it, it is nice to have the

genetic testing.

>

> Lola,

>

> My son's came back negative as well. But via elimination dieting

and observation, I know that my child is 'intolerant' (not allergic

but the reactions are very similiar) of casien. We have done

elimination with gluten and we are okay in that departement though I

find that Mark has reactions to items which are too 'yeasty' ie

Subway Submarine's whole wheat bread is a no-no but can tolerate the

wraps. Perhaps there might be something else in that bread

formulation that affects him.... I am just assuming that it is the

yeast. I can now 'tell' when he is affected by something but I

cannot always tell what that something is!

>

> It seems that many kids with speech and auditory issues have

trouble with the casien in milk so if you want to try a milk

elimination diet for 3 weeks and then add milk products back in to

your daughters diet and watch for results, that is the easiest method

to really know for sure. Milk products, even in trace amounts, can

cause my son's ears to get congested, his speech to slur, his balance

to be affected, he gets a glazed look to his eyes, his hands go numb

as well as his lips. In addition, now when he gets pure milk

products, it is diarrhea city and he is in agony. When he got milk

all of the time, he would only get diarrhea/constipation in 'bouts'.

Once the item leaves the system and the system starts to heal....

when it is reintroduced, the reactions are severe.

>

> The thing is, he couldn't know these things until he was fee of the

symptoms for a while. It took us a good 6 months (because I was an

extreme sceptic and really didn't want to change my lifestyle) to

really 'see' what milk did to him. We would 'kinda' eliminate

milk... you know, still eat the cheese and not worry about packaged

products. Well, Mark's academics were all up/down and all over the

place. The teachers were complaining how his performance was

inconsistent (I left the cheese on the lunchtime sandwich so he would

have the pm 'blues'). Also his therapy was all over the place with

regards to consistency as well. One day, I gave him an ice-cream

sundae from Dairy Queen after a few good, strict days of being off of

milk. Within 20 minutes, he practicly lost all of his hearing! We

sat down to watch a movie and he had to sit on the floor next to the

speaker in order to hear it. He also had trouble understanding the

plot and context of the movie (normally easy items for him) and his

balance started to dissipate (like a drunken soldier). Later he had

horrible, horrible diarrhea and that was it for me..... NO MORE

CASIEN!

>

> At least until I healed his tummy. Now with digestive enzymes by

Huston Neutraceuticals Mark can eat pizza, some white breads, some

cookies (though not many), etc. He still cannot eat straight milk,

whipped or sour cream, yogurt but that's okay. Life is pretty normal

though he was pretty sick after Halloween.....

>

> So.... if you really, really want to try it..... No milk, even

trace amounts in breads, and 'stuff'. This means you have to label

read with a vengence for a while. No soy either as it affects most

of our kids in pretty much the same way. In addition, soy is often

over-processed and is full of estrogen so it really is not a healthy

alternative.

>

> Start with casien as it is easiest. Gluten is tough to eliminate

from ones life and the changes are dramatic. It also takes a lot

longer to completely leave the body. Casien is relatively easy to do

and the results are often dramatic if your child is a responder.

>

> Janice

> Mother of Mark, 13

>

>

> [sPAM][ ] Diet Question

>

>

> I was considering staring a milk and wheat free diet. I had a

milk

> allergy test and a celiac panel ran on my 5 year old apraxic

daughter.

> Both tests came back negative. Can I trust that because the tests

are e

> negative that there is no need to change my daughters diet. I had

> eliminated most all dairy from her diet and didn't notice any

> difference. Her bowel movement have always been regular but are

like

> rocks and are never loose, even on fish oil. I don't want to

change my

> daughter's diet if I don't have to. She is allergic to peanuts

and I

> gets so sad when she can't eat what other are, even when I offer

her

> other treats. Any advice or opinions would be appriciated.

> Thank you, Lola

>

>

>

>

>

>

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My son's blood tests came back negative as well, but our GI wants him

to stay off gluten because we have seen such positive results. She

promised me false negatives on these blood tests are common.

We've found it easy to eliminate gluten (at home) but much harder to

give up milk because our son LOVES the stuff more than any other food

group available. As an infant, he tested positive for casein allergy

and had no choice other than to be breast fed. In turn, I could not

eat any beef or dairy because the protein transfers through the

mother's milk.

In the near future we will move to eliminate casein from his diet as

well. Any advice on making this switch would be helpful. (He can not

tolerate soy milk, so our alternatives are narrowed quite a bit.)

Thanks.

>

> I was considering staring a milk and wheat free diet. I had a milk

> allergy test and a celiac panel ran on my 5 year old apraxic

daughter.

> Both tests came back negative. Can I trust that because the tests

are e

> negative that there is no need to change my daughters diet. I had

> eliminated most all dairy from her diet and didn't notice any

> difference. Her bowel movement have always been regular but are like

> rocks and are never loose, even on fish oil. I don't want to change

my

> daughter's diet if I don't have to. She is allergic to peanuts and I

> gets so sad when she can't eat what other are, even when I offer her

> other treats. Any advice or opinions would be appriciated.

> Thank you, Lola

>

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I will second what Janice has to say about casen. My charlie had done

wonderful without milk and milk products. It has been difficult, but worth

it. His speech is now here and much clearer when he does not have milk or

milk products in his system. Over the weekend, he had pizza, cake and ice

cream, Yesterday, I major screwed up and gave him a 1/4 glass of milk

(mine). Major sensory stuff - touching face and ears and hair. Voice was

slurred bigtime.

I do wish he was old enough to tell me what and how it affects him. For now,

I will stick wtih enzymes and make sure that he gets the proper calcuium /

magnesium.

P.S. We had EI conference today. It was a breeze telling the EI evaulator

about Apraxia. You gotta laugh otherwise I would fall down and sob and the

lack of knowedge. Thanks to you all I can laugh. Knowledge is power for our

kiddos.

Colleen

Mother of Charlie 29 months

Re: [ ] Diet Question

Lola,

My son's came back negative as well. But via elimination dieting and

observation, I know that my child is 'intolerant' (not allergic but the

reactions are very similiar) of casien. We have done elimination with gluten

and we are okay in that departement though I find that Mark has reactions to

items which are too 'yeasty' ie Subway Submarine's whole wheat bread is a

no-no but can tolerate the wraps. Perhaps there might be something else in

that bread formulation that affects him.... I am just assuming that it is

the yeast. I can now 'tell' when he is affected by something but I cannot

always tell what that something is!

It seems that many kids with speech and auditory issues have trouble with

the casien in milk so if you want to try a milk elimination diet for 3 weeks

and then add milk products back in to your daughters diet and watch for

results, that is the easiest method to really know for sure. Milk products,

even in trace amounts, can cause my son's ears to get congested, his speech

to slur, his balance to be affected, he gets a glazed look to his eyes, his

hands go numb as well as his lips. In addition, now when he gets pure milk

products, it is diarrhea city and he is in agony. When he got milk all of

the time, he would only get diarrhea/constipation in 'bouts'. Once the item

leaves the system and the system starts to heal.... when it is reintroduced,

the reactions are severe.

The thing is, he couldn't know these things until he was fee of the symptoms

for a while. It took us a good 6 months (because I was an extreme sceptic

and really didn't want to change my lifestyle) to really 'see' what milk did

to him. We would 'kinda' eliminate milk... you know, still eat the cheese

and not worry about packaged products. Well, Mark's academics were all

up/down and all over the place. The teachers were complaining how his

performance was inconsistent (I left the cheese on the lunchtime sandwich so

he would have the pm 'blues'). Also his therapy was all over the place with

regards to consistency as well. One day, I gave him an ice-cream sundae from

Dairy Queen after a few good, strict days of being off of milk. Within 20

minutes, he practicly lost all of his hearing! We sat down to watch a movie

and he had to sit on the floor next to the speaker in order to hear it. He

also had trouble understanding the plot and context of the movie (normally

easy items for him) and his balance started to dissipate (like a drunken

soldier). Later he had horrible, horrible diarrhea and that was it for

me..... NO MORE CASIEN!

At least until I healed his tummy. Now with digestive enzymes by Huston

Neutraceuticals Mark can eat pizza, some white breads, some cookies (though

not many), etc. He still cannot eat straight milk, whipped or sour cream,

yogurt but that's okay. Life is pretty normal though he was pretty sick

after Halloween.....

So.... if you really, really want to try it..... No milk, even trace amounts

in breads, and 'stuff'. This means you have to label read with a vengence

for a while. No soy either as it affects most of our kids in pretty much the

same way. In addition, soy is often over-processed and is full of estrogen

so it really is not a healthy alternative.

Start with casien as it is easiest. Gluten is tough to eliminate from ones

life and the changes are dramatic. It also takes a lot longer to completely

leave the body. Casien is relatively easy to do and the results are often

dramatic if your child is a responder.

Janice

Mother of Mark, 13

[sPAM][ ] Diet Question

I was considering staring a milk and wheat free diet. I had a milk

allergy test and a celiac panel ran on my 5 year old apraxic daughter.

Both tests came back negative. Can I trust that because the tests are e

negative that there is no need to change my daughters diet. I had

eliminated most all dairy from her diet and didn't notice any

difference. Her bowel movement have always been regular but are like

rocks and are never loose, even on fish oil. I don't want to change my

daughter's diet if I don't have to. She is allergic to peanuts and I

gets so sad when she can't eat what other are, even when I offer her

other treats. Any advice or opinions would be appriciated.

Thank you, Lola

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I can tell you what it does to me as an adult:

Headache, peripheral neuropathy, blurred vision, right ear pain that

makes you want to strangle a cat and liver pain, bigtime. At times

itchy skin.

It takes a lot to do all of this but early on when I cheated it

happened and now the longer I am off the worse it is on a cheat.

>

> I will second what Janice has to say about casen. My charlie had

done

> wonderful without milk and milk products. It has been difficult,

but worth

> it. His speech is now here and much clearer when he does not have

milk or

> milk products in his system. Over the weekend, he had pizza, cake

and ice

> cream, Yesterday, I major screwed up and gave him a 1/4 glass of

milk

> (mine). Major sensory stuff - touching face and ears and hair.

Voice was

> slurred bigtime.

>

> I do wish he was old enough to tell me what and how it affects him.

For now,

> I will stick wtih enzymes and make sure that he gets the proper

calcuium /

> magnesium.

>

> P.S. We had EI conference today. It was a breeze telling the EI

evaulator

> about Apraxia. You gotta laugh otherwise I would fall down and sob

and the

> lack of knowedge. Thanks to you all I can laugh. Knowledge is power

for our

> kiddos.

>

> Colleen

>

> Mother of Charlie 29 months

>

>

>

>

>

> Re: [ ] Diet Question

>

>

>

> Lola,

>

> My son's came back negative as well. But via elimination dieting and

> observation, I know that my child is 'intolerant' (not allergic but

the

> reactions are very similiar) of casien. We have done elimination

with gluten

> and we are okay in that departement though I find that Mark has

reactions to

> items which are too 'yeasty' ie Subway Submarine's whole wheat

bread is a

> no-no but can tolerate the wraps. Perhaps there might be something

else in

> that bread formulation that affects him.... I am just assuming that

it is

> the yeast. I can now 'tell' when he is affected by something but I

cannot

> always tell what that something is!

>

> It seems that many kids with speech and auditory issues have

trouble with

> the casien in milk so if you want to try a milk elimination diet

for 3 weeks

> and then add milk products back in to your daughters diet and watch

for

> results, that is the easiest method to really know for sure. Milk

products,

> even in trace amounts, can cause my son's ears to get congested,

his speech

> to slur, his balance to be affected, he gets a glazed look to his

eyes, his

> hands go numb as well as his lips. In addition, now when he gets

pure milk

> products, it is diarrhea city and he is in agony. When he got milk

all of

> the time, he would only get diarrhea/constipation in 'bouts'. Once

the item

> leaves the system and the system starts to heal.... when it is

reintroduced,

> the reactions are severe.

>

> The thing is, he couldn't know these things until he was fee of the

symptoms

> for a while. It took us a good 6 months (because I was an extreme

sceptic

> and really didn't want to change my lifestyle) to really 'see' what

milk did

> to him. We would 'kinda' eliminate milk... you know, still eat the

cheese

> and not worry about packaged products. Well, Mark's academics were

all

> up/down and all over the place. The teachers were complaining how

his

> performance was inconsistent (I left the cheese on the lunchtime

sandwich so

> he would have the pm 'blues'). Also his therapy was all over the

place with

> regards to consistency as well. One day, I gave him an ice-cream

sundae from

> Dairy Queen after a few good, strict days of being off of milk.

Within 20

> minutes, he practicly lost all of his hearing! We sat down to watch

a movie

> and he had to sit on the floor next to the speaker in order to hear

it. He

> also had trouble understanding the plot and context of the movie

(normally

> easy items for him) and his balance started to dissipate (like a

drunken

> soldier). Later he had horrible, horrible diarrhea and that was it

for

> me..... NO MORE CASIEN!

>

> At least until I healed his tummy. Now with digestive enzymes by

Huston

> Neutraceuticals Mark can eat pizza, some white breads, some cookies

(though

> not many), etc. He still cannot eat straight milk, whipped or sour

cream,

> yogurt but that's okay. Life is pretty normal though he was pretty

sick

> after Halloween.....

>

> So.... if you really, really want to try it..... No milk, even

trace amounts

> in breads, and 'stuff'. This means you have to label read with a

vengence

> for a while. No soy either as it affects most of our kids in pretty

much the

> same way. In addition, soy is often over-processed and is full of

estrogen

> so it really is not a healthy alternative.

>

> Start with casien as it is easiest. Gluten is tough to eliminate

from ones

> life and the changes are dramatic. It also takes a lot longer to

completely

> leave the body. Casien is relatively easy to do and the results are

often

> dramatic if your child is a responder.

>

> Janice

> Mother of Mark, 13

>

> [sPAM][ ] Diet Question

>

> I was considering staring a milk and wheat free diet. I had a milk

> allergy test and a celiac panel ran on my 5 year old apraxic

daughter.

> Both tests came back negative. Can I trust that because the tests

are e

> negative that there is no need to change my daughters diet. I had

> eliminated most all dairy from her diet and didn't notice any

> difference. Her bowel movement have always been regular but are

like

> rocks and are never loose, even on fish oil. I don't want to change

my

> daughter's diet if I don't have to. She is allergic to peanuts and

I

> gets so sad when she can't eat what other are, even when I offer

her

> other treats. Any advice or opinions would be appriciated.

> Thank you, Lola

>

>

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Water, quick and dirty.

> >

> > I was considering staring a milk and wheat free diet. I had a

milk

> > allergy test and a celiac panel ran on my 5 year old apraxic

> daughter.

> > Both tests came back negative. Can I trust that because the tests

> are e

> > negative that there is no need to change my daughters diet. I had

> > eliminated most all dairy from her diet and didn't notice any

> > difference. Her bowel movement have always been regular but are

like

> > rocks and are never loose, even on fish oil. I don't want to

change

> my

> > daughter's diet if I don't have to. She is allergic to peanuts

and I

> > gets so sad when she can't eat what other are, even when I offer

her

> > other treats. Any advice or opinions would be appriciated.

> > Thank you, Lola

> >

>

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I Third everything below....

My 3 boys have improved significantly since we got serious the end of

July about being Milk free.

The ped told me at my youngest son's 15 mo check up that he was " 1000

times better than when she met him in April of 2007 " and " I never

would have believed this if I hadn't seen it with my own eyes. "

Also,

We are " usually " sick with colds from August to May every year. THis

year we actually have only had one serious cold that went through the

kids - after christmas of course. It has been a very nice change!!!

The dr's are forgetting my name now as I don't see them 1-4 times a month.

>

> I will second what Janice has to say about casen. My charlie had done

> wonderful without milk and milk products. It has been difficult, but

worth

> it. His speech is now here and much clearer when he does not have

milk or

> milk products in his system. Over the weekend, he had pizza, cake

and ice

> cream, Yesterday, I major screwed up and gave him a 1/4 glass of milk

> (mine). Major sensory stuff - touching face and ears and hair. Voice was

> slurred bigtime.

>

> I do wish he was old enough to tell me what and how it affects him.

For now,

> I will stick wtih enzymes and make sure that he gets the proper

calcuium /

> magnesium.

>

> P.S. We had EI conference today. It was a breeze telling the EI

evaulator

> about Apraxia. You gotta laugh otherwise I would fall down and sob

and the

> lack of knowedge. Thanks to you all I can laugh. Knowledge is power

for our

> kiddos.

>

> Colleen

>

> Mother of Charlie 29 months

>

>

>

>

>

> Re: [ ] Diet Question

>

>

>

> Lola,

>

> My son's came back negative as well. But via elimination dieting and

> observation, I know that my child is 'intolerant' (not allergic but the

> reactions are very similiar) of casien. We have done elimination

with gluten

> and we are okay in that departement though I find that Mark has

reactions to

> items which are too 'yeasty' ie Subway Submarine's whole wheat bread

is a

> no-no but can tolerate the wraps. Perhaps there might be something

else in

> that bread formulation that affects him.... I am just assuming that

it is

> the yeast. I can now 'tell' when he is affected by something but I

cannot

> always tell what that something is!

>

> It seems that many kids with speech and auditory issues have trouble

with

> the casien in milk so if you want to try a milk elimination diet for

3 weeks

> and then add milk products back in to your daughters diet and watch for

> results, that is the easiest method to really know for sure. Milk

products,

> even in trace amounts, can cause my son's ears to get congested, his

speech

> to slur, his balance to be affected, he gets a glazed look to his

eyes, his

> hands go numb as well as his lips. In addition, now when he gets

pure milk

> products, it is diarrhea city and he is in agony. When he got milk

all of

> the time, he would only get diarrhea/constipation in 'bouts'. Once

the item

> leaves the system and the system starts to heal.... when it is

reintroduced,

> the reactions are severe.

>

> The thing is, he couldn't know these things until he was fee of the

symptoms

> for a while. It took us a good 6 months (because I was an extreme

sceptic

> and really didn't want to change my lifestyle) to really 'see' what

milk did

> to him. We would 'kinda' eliminate milk... you know, still eat the

cheese

> and not worry about packaged products. Well, Mark's academics were all

> up/down and all over the place. The teachers were complaining how his

> performance was inconsistent (I left the cheese on the lunchtime

sandwich so

> he would have the pm 'blues'). Also his therapy was all over the

place with

> regards to consistency as well. One day, I gave him an ice-cream

sundae from

> Dairy Queen after a few good, strict days of being off of milk.

Within 20

> minutes, he practicly lost all of his hearing! We sat down to watch

a movie

> and he had to sit on the floor next to the speaker in order to hear

it. He

> also had trouble understanding the plot and context of the movie

(normally

> easy items for him) and his balance started to dissipate (like a drunken

> soldier). Later he had horrible, horrible diarrhea and that was it for

> me..... NO MORE CASIEN!

>

> At least until I healed his tummy. Now with digestive enzymes by Huston

> Neutraceuticals Mark can eat pizza, some white breads, some cookies

(though

> not many), etc. He still cannot eat straight milk, whipped or sour

cream,

> yogurt but that's okay. Life is pretty normal though he was pretty sick

> after Halloween.....

>

> So.... if you really, really want to try it..... No milk, even trace

amounts

> in breads, and 'stuff'. This means you have to label read with a

vengence

> for a while. No soy either as it affects most of our kids in pretty

much the

> same way. In addition, soy is often over-processed and is full of

estrogen

> so it really is not a healthy alternative.

>

> Start with casien as it is easiest. Gluten is tough to eliminate

from ones

> life and the changes are dramatic. It also takes a lot longer to

completely

> leave the body. Casien is relatively easy to do and the results are

often

> dramatic if your child is a responder.

>

> Janice

> Mother of Mark, 13

>

> [sPAM][ ] Diet Question

>

> I was considering staring a milk and wheat free diet. I had a milk

> allergy test and a celiac panel ran on my 5 year old apraxic daughter.

> Both tests came back negative. Can I trust that because the tests are e

> negative that there is no need to change my daughters diet. I had

> eliminated most all dairy from her diet and didn't notice any

> difference. Her bowel movement have always been regular but are like

> rocks and are never loose, even on fish oil. I don't want to change my

> daughter's diet if I don't have to. She is allergic to peanuts and I

> gets so sad when she can't eat what other are, even when I offer her

> other treats. Any advice or opinions would be appriciated.

> Thank you, Lola

>

>

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We like Hemp Milk. I find it at a couple of local healthfood

stores. We prefer it to rice milk. Tastes a lot like soy milk and

comes in vanilla, original and chocolate. The lady at the

healthfood store also told me they have potato milk if we begin to

run out of options, but I haven't tried it.

I also like the Hemp Protein powder to add protein to the diet as an

alternative to the whey protein we can no longer use. It is dark

green and does have a sort of grassy taste to it, but it isn't bad.

I hide it well in GF/CF/SF/EF pancakes made with GF oat flour.

> >

> > I was considering staring a milk and wheat free diet. I had a

milk

> > allergy test and a celiac panel ran on my 5 year old apraxic

> daughter.

> > Both tests came back negative. Can I trust that because the

tests

> are e

> > negative that there is no need to change my daughters diet. I

had

> > eliminated most all dairy from her diet and didn't notice any

> > difference. Her bowel movement have always been regular but are

like

> > rocks and are never loose, even on fish oil. I don't want to

change

> my

> > daughter's diet if I don't have to. She is allergic to peanuts

and I

> > gets so sad when she can't eat what other are, even when I offer

her

> > other treats. Any advice or opinions would be appriciated.

> > Thank you, Lola

> >

>

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Share on other sites

Re: EI

Our OT from EI is the best. She was quietly supportive of my journey

despite her mainstream bent because she saw I was really looking to

be safe, found family history and the water to be a part of this, and

trusted my judgment. I asked her if I was the craziest mom she had.

She told me I was the most alternative who stuck with it. I think she

is referring to moms who did GFCF at Mcs and HBOT and then

whined that nothing worked. You gotta research and have a plan, as

you do Colleen. No one at EI will be getting that any time soon.

> >

> > I will second what Janice has to say about casen. My charlie had

> done

> > wonderful without milk and milk products. It has been difficult,

> but worth

> > it. His speech is now here and much clearer when he does not have

> milk or

> > milk products in his system. Over the weekend, he had pizza, cake

> and ice

> > cream, Yesterday, I major screwed up and gave him a 1/4 glass of

> milk

> > (mine). Major sensory stuff - touching face and ears and hair.

> Voice was

> > slurred bigtime.

> >

> > I do wish he was old enough to tell me what and how it affects

him.

> For now,

> > I will stick wtih enzymes and make sure that he gets the proper

> calcuium /

> > magnesium.

> >

> > P.S. We had EI conference today. It was a breeze telling the EI

> evaulator

> > about Apraxia. You gotta laugh otherwise I would fall down and

sob

> and the

> > lack of knowedge. Thanks to you all I can laugh. Knowledge is

power

> for our

> > kiddos.

> >

> > Colleen

> >

> > Mother of Charlie 29 months

> >

> >

> >

> >

> >

> > Re: [ ] Diet Question

> >

> >

> >

> > Lola,

> >

> > My son's came back negative as well. But via elimination dieting

and

> > observation, I know that my child is 'intolerant' (not allergic

but

> the

> > reactions are very similiar) of casien. We have done elimination

> with gluten

> > and we are okay in that departement though I find that Mark has

> reactions to

> > items which are too 'yeasty' ie Subway Submarine's whole wheat

> bread is a

> > no-no but can tolerate the wraps. Perhaps there might be

something

> else in

> > that bread formulation that affects him.... I am just assuming

that

> it is

> > the yeast. I can now 'tell' when he is affected by something but

I

> cannot

> > always tell what that something is!

> >

> > It seems that many kids with speech and auditory issues have

> trouble with

> > the casien in milk so if you want to try a milk elimination diet

> for 3 weeks

> > and then add milk products back in to your daughters diet and

watch

> for

> > results, that is the easiest method to really know for sure. Milk

> products,

> > even in trace amounts, can cause my son's ears to get congested,

> his speech

> > to slur, his balance to be affected, he gets a glazed look to his

> eyes, his

> > hands go numb as well as his lips. In addition, now when he gets

> pure milk

> > products, it is diarrhea city and he is in agony. When he got

milk

> all of

> > the time, he would only get diarrhea/constipation in 'bouts'.

Once

> the item

> > leaves the system and the system starts to heal.... when it is

> reintroduced,

> > the reactions are severe.

> >

> > The thing is, he couldn't know these things until he was fee of

the

> symptoms

> > for a while. It took us a good 6 months (because I was an extreme

> sceptic

> > and really didn't want to change my lifestyle) to really 'see'

what

> milk did

> > to him. We would 'kinda' eliminate milk... you know, still eat

the

> cheese

> > and not worry about packaged products. Well, Mark's academics

were

> all

> > up/down and all over the place. The teachers were complaining how

> his

> > performance was inconsistent (I left the cheese on the lunchtime

> sandwich so

> > he would have the pm 'blues'). Also his therapy was all over the

> place with

> > regards to consistency as well. One day, I gave him an ice-cream

> sundae from

> > Dairy Queen after a few good, strict days of being off of milk.

> Within 20

> > minutes, he practicly lost all of his hearing! We sat down to

watch

> a movie

> > and he had to sit on the floor next to the speaker in order to

hear

> it. He

> > also had trouble understanding the plot and context of the movie

> (normally

> > easy items for him) and his balance started to dissipate (like a

> drunken

> > soldier). Later he had horrible, horrible diarrhea and that was

it

> for

> > me..... NO MORE CASIEN!

> >

> > At least until I healed his tummy. Now with digestive enzymes by

> Huston

> > Neutraceuticals Mark can eat pizza, some white breads, some

cookies

> (though

> > not many), etc. He still cannot eat straight milk, whipped or

sour

> cream,

> > yogurt but that's okay. Life is pretty normal though he was

pretty

> sick

> > after Halloween.....

> >

> > So.... if you really, really want to try it..... No milk, even

> trace amounts

> > in breads, and 'stuff'. This means you have to label read with a

> vengence

> > for a while. No soy either as it affects most of our kids in

pretty

> much the

> > same way. In addition, soy is often over-processed and is full of

> estrogen

> > so it really is not a healthy alternative.

> >

> > Start with casien as it is easiest. Gluten is tough to eliminate

> from ones

> > life and the changes are dramatic. It also takes a lot longer to

> completely

> > leave the body. Casien is relatively easy to do and the results

are

> often

> > dramatic if your child is a responder.

> >

> > Janice

> > Mother of Mark, 13

> >

> > [sPAM][ ] Diet Question

> >

> > I was considering staring a milk and wheat free diet. I had a

milk

> > allergy test and a celiac panel ran on my 5 year old apraxic

> daughter.

> > Both tests came back negative. Can I trust that because the tests

> are e

> > negative that there is no need to change my daughters diet. I had

> > eliminated most all dairy from her diet and didn't notice any

> > difference. Her bowel movement have always been regular but are

> like

> > rocks and are never loose, even on fish oil. I don't want to

change

> my

> > daughter's diet if I don't have to. She is allergic to peanuts

and

> I

> > gets so sad when she can't eat what other are, even when I offer

> her

> > other treats. Any advice or opinions would be appriciated.

> > Thank you, Lola

> >

> >

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Thanks . I always forget about hemp milk. It is sitting in the

fridge. I better start using it!

> > >

> > > I was considering staring a milk and wheat free diet. I had a

> milk

> > > allergy test and a celiac panel ran on my 5 year old apraxic

> > daughter.

> > > Both tests came back negative. Can I trust that because the

> tests

> > are e

> > > negative that there is no need to change my daughters diet. I

> had

> > > eliminated most all dairy from her diet and didn't notice any

> > > difference. Her bowel movement have always been regular but are

> like

> > > rocks and are never loose, even on fish oil. I don't want to

> change

> > my

> > > daughter's diet if I don't have to. She is allergic to peanuts

> and I

> > > gets so sad when she can't eat what other are, even when I

offer

> her

> > > other treats. Any advice or opinions would be appriciated.

> > > Thank you, Lola

> > >

> >

>

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How nutritious is hemp milk? Does it compare to cow, soy, or almond?

-jimk

ilizzy03 wrote:

>

> Thanks . I always forget about hemp milk. It is sitting in the

> fridge. I better start using it!

>

>

> > > >

> > > > I was considering staring a milk and wheat free diet. I had a

> > milk

> > > > allergy test and a celiac panel ran on my 5 year old apraxic

> > > daughter.

> > > > Both tests came back negative. Can I trust that because the

> > tests

> > > are e

> > > > negative that there is no need to change my daughters diet. I

> > had

> > > > eliminated most all dairy from her diet and didn't notice any

> > > > difference. Her bowel movement have always been regular but are

> > like

> > > > rocks and are never loose, even on fish oil. I don't want to

> > change

> > > my

> > > > daughter's diet if I don't have to. She is allergic to peanuts

> > and I

> > > > gets so sad when she can't eat what other are, even when I

> offer

> > her

> > > > other treats. Any advice or opinions would be appriciated.

> > > > Thank you, Lola

> > > >

> > >

> >

>

>

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Cow's milk is only nutritious if you are not malabsorbing. My kids

have milk issues but they still did get some benefits though it

harmed them overall. Soy milk is bad news per the GI. Too much

fortification (rather than inherent nutrition) and too much estrogen.

Almond milk is too sweet, can tear the gut, and is either a phenol or

salicylate I think which does other not so great stuff to our kids.

Hemp so far as I can tell is pretty good stuff. Anything with a

history of the government stopping it from getting to us always

intrigues me which is why stevia piques my interest lately. I do not

know what is added versus inherent in hemp milk and do want to find

out.

Here you go:

http://www.worldpantry.com/cgi-

bin/ncommerce3/ExecMacro/livingharvest/hemp101.d2w/report

http://www.post-gazette.com/pg/07123/782900-34.stm

> > > > >

> > > > > I was considering staring a milk and wheat free diet. I had

a

> > > milk

> > > > > allergy test and a celiac panel ran on my 5 year old apraxic

> > > > daughter.

> > > > > Both tests came back negative. Can I trust that because the

> > > tests

> > > > are e

> > > > > negative that there is no need to change my daughters diet.

I

> > > had

> > > > > eliminated most all dairy from her diet and didn't notice

any

> > > > > difference. Her bowel movement have always been regular but

are

> > > like

> > > > > rocks and are never loose, even on fish oil. I don't want to

> > > change

> > > > my

> > > > > daughter's diet if I don't have to. She is allergic to

peanuts

> > > and I

> > > > > gets so sad when she can't eat what other are, even when I

> > offer

> > > her

> > > > > other treats. Any advice or opinions would be appriciated.

> > > > > Thank you, Lola

> > > > >

> > > >

> > >

> >

> >

>

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One of the magazines I receive recently did a positive article about

hemp milk, and they included some recipes, too. It was either

Alternative Medicine or Natural Health. Check out their websites.

Perhaps you'll find a link to the article.

in NJ

> > > > > >

> > > > > > I was considering staring a milk and wheat free diet. I

had

> a

> > > > milk

> > > > > > allergy test and a celiac panel ran on my 5 year old

apraxic

> > > > > daughter.

> > > > > > Both tests came back negative. Can I trust that because

the

> > > > tests

> > > > > are e

> > > > > > negative that there is no need to change my daughters

diet.

> I

> > > > had

> > > > > > eliminated most all dairy from her diet and didn't notice

> any

> > > > > > difference. Her bowel movement have always been regular

but

> are

> > > > like

> > > > > > rocks and are never loose, even on fish oil. I don't want

to

> > > > change

> > > > > my

> > > > > > daughter's diet if I don't have to. She is allergic to

> peanuts

> > > > and I

> > > > > > gets so sad when she can't eat what other are, even when I

> > > offer

> > > > her

> > > > > > other treats. Any advice or opinions would be appriciated.

> > > > > > Thank you, Lola

> > > > > >

> > > > >

> > > >

> > >

> > >

> >

>

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I have Living Harvest Brand. It comes in Original, Vanilla and

Chocolate where I buy it. Here is what is in the original:

Calories: 130

Calories from fat: 30

total Fat 3 g

Sat Fat0.5g

Trans fat 0

Cholesterol 0

Sodium 120mg

Potassium 113g

Total Carb 20 g

dietary Fiber 1g

Sugars 15g

Protein 4 g

Vit A 18%

Calcium 46%

Vit D 25%

Thiamin 7%

Niacin 7%

Vitamin B12 25%

Magnesium 19%

Vit C 0%

Iron 15%

Vit E 13%

Riboflavin 31%

Folic Acid 5%

Phosphorus 42%

Zinc 9%

It boasts 700mg of Omega 3, 2000mg of Omeaga 6 in each 8 oz glass.

Hope that helps!

> > > > >

> > > > > I was considering staring a milk and wheat free diet. I

had a

> > > milk

> > > > > allergy test and a celiac panel ran on my 5 year old

apraxic

> > > > daughter.

> > > > > Both tests came back negative. Can I trust that because the

> > > tests

> > > > are e

> > > > > negative that there is no need to change my daughters

diet. I

> > > had

> > > > > eliminated most all dairy from her diet and didn't notice

any

> > > > > difference. Her bowel movement have always been regular

but are

> > > like

> > > > > rocks and are never loose, even on fish oil. I don't want

to

> > > change

> > > > my

> > > > > daughter's diet if I don't have to. She is allergic to

peanuts

> > > and I

> > > > > gets so sad when she can't eat what other are, even when I

> > offer

> > > her

> > > > > other treats. Any advice or opinions would be appriciated.

> > > > > Thank you, Lola

> > > > >

> > > >

> > >

> >

> >

>

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Share on other sites

Can one cook with it? Have you? If so how has it worked out?

> > > > > >

> > > > > > I was considering staring a milk and wheat free diet. I

> had a

> > > > milk

> > > > > > allergy test and a celiac panel ran on my 5 year old

> apraxic

> > > > > daughter.

> > > > > > Both tests came back negative. Can I trust that because

the

> > > > tests

> > > > > are e

> > > > > > negative that there is no need to change my daughters

> diet. I

> > > > had

> > > > > > eliminated most all dairy from her diet and didn't notice

> any

> > > > > > difference. Her bowel movement have always been regular

> but are

> > > > like

> > > > > > rocks and are never loose, even on fish oil. I don't want

> to

> > > > change

> > > > > my

> > > > > > daughter's diet if I don't have to. She is allergic to

> peanuts

> > > > and I

> > > > > > gets so sad when she can't eat what other are, even when I

> > > offer

> > > > her

> > > > > > other treats. Any advice or opinions would be appriciated.

> > > > > > Thank you, Lola

> > > > > >

> > > > >

> > > >

> > >

> > >

> >

>

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Yes! It worked out just fine.

> > > > > > >

> > > > > > > I was considering staring a milk and wheat free diet.

I

> > had a

> > > > > milk

> > > > > > > allergy test and a celiac panel ran on my 5 year old

> > apraxic

> > > > > > daughter.

> > > > > > > Both tests came back negative. Can I trust that

because

> the

> > > > > tests

> > > > > > are e

> > > > > > > negative that there is no need to change my daughters

> > diet. I

> > > > > had

> > > > > > > eliminated most all dairy from her diet and didn't

notice

> > any

> > > > > > > difference. Her bowel movement have always been

regular

> > but are

> > > > > like

> > > > > > > rocks and are never loose, even on fish oil. I don't

want

> > to

> > > > > change

> > > > > > my

> > > > > > > daughter's diet if I don't have to. She is allergic to

> > peanuts

> > > > > and I

> > > > > > > gets so sad when she can't eat what other are, even

when I

> > > > offer

> > > > > her

> > > > > > > other treats. Any advice or opinions would be

appriciated.

> > > > > > > Thank you, Lola

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

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