Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Hi - We use the Cranial Tech in Phoenix too and they are so awesome!! My sons head was also mishapen at birth and then gradually got worse and we decided to go for it. Making the decision to band was the hardest part of the process for us. Xavier has been banded for about 4.5 months and will be graduating on 12/22!I can not really help you with insurance because we had to pay out of pocket. Donna and Xavier DOCBand 7/25 adn 10/8 in Phoenix, AZ > We are new to the Docbands. Our daughter had a traumatic birth and > most likely had a flattening of the head inutero. Our dr. referred > us to Cranial technologies. We had debated about the process but > didn't really know what encouraged many of you to do the procedure. > Our daughters head was extremely misshaped at birth but gradually got > better. Still not to wear she does not have a conehead. Her ears are > misaligned and has some bossing of the forehead. We have decided to > start the procedure and get her fitted tomorrow. I guess I'm looking > to hear were doing the right thing. Did many of you pursue this > because the head is misshaped or for other medical reasons? HOw much > luck have you had with insurance coverage. I'm not looking forward to > much if any from ours. Has anyone used BC/BS in Phoenix. This is a > PPO that we do independently. Thanks for your help! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Hi Stephaine, Welcome to the group. I've never heard of anyone regretting banding their baby. I'm sure you made the right decision for your son. Where are you located? We may have a member in your area the uses/used the place you are going to. On what grounds did your insurance company deny? Please let us know when 's band is in and how he's adjusting. > Hi everyone, > > I just found this group today and it looks like a nice place to be! > Our son, , was just scanned today for his helmet. He had > torticollis and developed plagiocephaly as a result. He is 6 months > old and apparently, it's a mild case. We had the measurements faxed > to insurance today and they are denying coverage. I think we are > going to go ahead and have him wear the helmet anyways, even though > I'm not looking forward to it. The children's hospital will let us > set up payments, so it might take us 2 years to pay for it! The > orthotist thinks it might just be around 4 months that he needs it. > Any encouragement from anyone? I'm feeling overwhelmed and exhausted > at all the decisions we've had to make, and I'm hoping we have made > the right one. > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Thanks for the welcome! I know we won't regret it, but I don't want to miss out on cuddle time and just seeing him as a baby these next few months. We are in Washington. We went to Children's Hospital in Seattle for his scanning. We'll get the helmet next Friday, the 13th. You call it a band...I thought it was a helmet. -Steph > > Hi everyone, > > > > I just found this group today and it looks like a nice place to be! > > Our son, , was just scanned today for his helmet. He had > > torticollis and developed plagiocephaly as a result. He is 6 months > > old and apparently, it's a mild case. We had the measurements faxed > > to insurance today and they are denying coverage. I think we are > > going to go ahead and have him wear the helmet anyways, even though > > I'm not looking forward to it. The children's hospital will let us > > set up payments, so it might take us 2 years to pay for it! The > > orthotist thinks it might just be around 4 months that he needs it. > > Any encouragement from anyone? I'm feeling overwhelmed and > exhausted > > at all the decisions we've had to make, and I'm hoping we have made > > the right one. > > > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 , Since you said was scanned and not casted, I thought you were getting the STARband. I looked in out helmet/band database and it looks like will be getting the Clarren Helmet. Please keep us posted on his progress and enjoy his naked little head for the next week. > > > Hi everyone, > > > > > > I just found this group today and it looks like a nice place to > be! > > > Our son, , was just scanned today for his helmet. He had > > > torticollis and developed plagiocephaly as a result. He is 6 > months > > > old and apparently, it's a mild case. We had the measurements > faxed > > > to insurance today and they are denying coverage. I think we are > > > going to go ahead and have him wear the helmet anyways, even > though > > > I'm not looking forward to it. The children's hospital will let > us > > > set up payments, so it might take us 2 years to pay for it! The > > > orthotist thinks it might just be around 4 months that he needs > it. > > > Any encouragement from anyone? I'm feeling overwhelmed and > > exhausted > > > at all the decisions we've had to make, and I'm hoping we have > made > > > the right one. > > > > > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 Hi and welcome to the group. I know where you're at, the decisions and the exhaustion. I think most of us in the group can relate to you on that. Getting the helmet for is a great decision, no matter the cost. Though it is difficult for you, the parent, to see your little one with a helmet at FIRST, soon you'll think how odd he looks w/o it. It kind of becomes part of them. In fact, not too long ago someone posted on how they kind of miss the thing since their kiddo graduated from it. That will be me, I know I'll miss it and, at one point I wanted to stop Jaxson from wearing it all together. The sweat (and oh the stink) are going to be worth it. When has graduated from his, you will see a much rounder noggin. He will not know now all that went on, but, when he's 15 and has a great round head, he'll thank you. Best wishes and keep us posted! Kim mom to Kaela (9) and Jaxson 7 mo tort/plagio/CranioCap > Hi everyone, > > I just found this group today and it looks like a nice place to be! > Our son, , was just scanned today for his helmet. He had > torticollis and developed plagiocephaly as a result. He is 6 months > old and apparently, it's a mild case. We had the measurements faxed > to insurance today and they are denying coverage. I think we are > going to go ahead and have him wear the helmet anyways, even though > I'm not looking forward to it. The children's hospital will let us > set up payments, so it might take us 2 years to pay for it! The > orthotist thinks it might just be around 4 months that he needs it. > Any encouragement from anyone? I'm feeling overwhelmed and exhausted > at all the decisions we've had to make, and I'm hoping we have made > the right one. > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 Hi & welcome!! Glad you are with us. I see and others have given you great replies. I know I've read of a few past members use the Clarren Helmet. It is a very overwhelming & stressful time the first several wks of a helmet. I was in tears the first several days my baby was banded. But my daughter was happy as usual, couldn't have cared less about that band on top of her head Go figure. I'ms ure your son will adjust just fine too. Let us know when the helmet is in. Debbie > > > > Hi everyone, > > > > > > > > I just found this group today and it looks like a nice place to > > be! > > > > Our son, , was just scanned today for his helmet. He had > > > > torticollis and developed plagiocephaly as a result. He is 6 > > months > > > > old and apparently, it's a mild case. We had the measurements > > faxed > > > > to insurance today and they are denying coverage. I think we > are > > > > going to go ahead and have him wear the helmet anyways, even > > though > > > > I'm not looking forward to it. The children's hospital will let > > us > > > > set up payments, so it might take us 2 years to pay for it! The > > > > orthotist thinks it might just be around 4 months that he needs > > it. > > > > Any encouragement from anyone? I'm feeling overwhelmed and > > > exhausted > > > > at all the decisions we've had to make, and I'm hoping we have > > made > > > > the right one. > > > > > > > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 Hi , Deciding whether or not to band was very difficult for us as well, but we are so glad we did it now! He got his band at 10mos. and will be in it for just over 4 months. We are very happy with the improvement and have little doubts that he would still have a very flat head if we "let it round out on it's own"! In fact, the time seemed to go by pretty quickly. The estimated 4 months for us, but I tried not to get my hopes set on that date in case it took longer.....Now I can't believe it's almost over....and he has a nice little round head! Good luck! and /DOC/10-7-03 @10mos./PAstripes6060 <taime@...> wrote: Hi Stephaine,Welcome to the group. I've never heard of anyone regretting banding their baby. I'm sure you made the right decision for your son. Where are you located? We may have a member in your area the uses/used the place you are going to. On what grounds did your insurance company deny? Please let us know when 's band is in and how he's adjusting.> Hi everyone,> > I just found this group today and it looks like a nice place to be! > Our son, , was just scanned today for his helmet. He had > torticollis and developed plagiocephaly as a result. He is 6 months > old and apparently, it's a mild case. We had the measurements faxed > to insurance today and they are denying coverage. I think we are > going to go ahead and have him wear the helmet anyways, even though > I'm not looking forward to it. The children's hospital will let us > set up payments, so it might take us 2 years to pay for it! The > orthotist thinks it might just be around 4 months that he needs it. > Any encouragement from anyone? I'm feeling overwhelmed and exhausted > at all the decisions we've had to make, and I'm hoping we have made > the right one.> > -For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 Steph, Welcome to the group. My daughter was banded at 4.5 months and is currently in her 2nd band. I have not regretted it for a moment. You will learn to enjoy bath time a lot, since you get to cuddle while you dry him off : ) It'll be over before you know it. mom to na Re: New here Thanks for the welcome! I know we won't regret it, but I don't want to miss out on cuddle time and just seeing him as a baby these next few months.We are in Washington. We went to Children's Hospital in Seattle for his scanning. We'll get the helmet next Friday, the 13th. You call it a band...I thought it was a helmet.-Steph> > Hi everyone,> > > > I just found this group today and it looks like a nice place to be! > > Our son, , was just scanned today for his helmet. He had > > torticollis and developed plagiocephaly as a result. He is 6 months > > old and apparently, it's a mild case. We had the measurements faxed > > to insurance today and they are denying coverage. I think we are > > going to go ahead and have him wear the helmet anyways, even though > > I'm not looking forward to it. The children's hospital will let us > > set up payments, so it might take us 2 years to pay for it! The > > orthotist thinks it might just be around 4 months that he needs it. > > Any encouragement from anyone? I'm feeling overwhelmed and > exhausted > > at all the decisions we've had to make, and I'm hoping we have made > > the right one.> > > > -For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 Hi! and Welcome! I think you are making good decisions for . It is overwhelming at first, but soon the helmet is part of your daily life. will thank you for his round head someday! You will get used to seeing in his helmet. I adjusted to Raegan's band quickly, and soon I didn't even notice the band. I'm actually going to miss it a little when she graduates! Hang in there! and let us know how you are doing! mom to Bryce 3, Kaelyn 6mos, Raegan 6mos (DOC Band 12/22/03) Overland Park, KS > Hi everyone, > > I just found this group today and it looks like a nice place to be! > Our son, , was just scanned today for his helmet. He had > torticollis and developed plagiocephaly as a result. He is 6 months > old and apparently, it's a mild case. We had the measurements faxed > to insurance today and they are denying coverage. I think we are > going to go ahead and have him wear the helmet anyways, even though > I'm not looking forward to it. The children's hospital will let us > set up payments, so it might take us 2 years to pay for it! The > orthotist thinks it might just be around 4 months that he needs it. > Any encouragement from anyone? I'm feeling overwhelmed and exhausted > at all the decisions we've had to make, and I'm hoping we have made > the right one. > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 Hi Sephanie and welcome to our group. Im taking the liberty to answer your post because, as all of us, I know how are you feeling. My son, Ignacio, has been wearing his band since 12/2/03 and we are getting band #2 on Feb 17. We live in Puerto Rico and we are travelling every ten days to Miami to get the treatment. At present time, we still dont know if our insurance will cover the treatment but we have no regrets whatsoever. Ignacio's plagio was diagnosed between moderate and severe. The correction he has gotten up until now its been incredible. I know what you mean about not being able to cuddle his little head but time will pass so fast that you will not believe it. Welcome again and keep in touch. Annie Mom to twins, Ignacio (DOC 12/2/03) and San , PR > Hi everyone, > > I just found this group today and it looks like a nice place to be! > Our son, , was just scanned today for his helmet. He had > torticollis and developed plagiocephaly as a result. He is 6 months > old and apparently, it's a mild case. We had the measurements faxed > to insurance today and they are denying coverage. I think we are > going to go ahead and have him wear the helmet anyways, even though > I'm not looking forward to it. The children's hospital will let us > set up payments, so it might take us 2 years to pay for it! The > orthotist thinks it might just be around 4 months that he needs it. > Any encouragement from anyone? I'm feeling overwhelmed and exhausted > at all the decisions we've had to make, and I'm hoping we have made > the right one. > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 Hi , Welcome to the group. Your son is at a wonderful age for correction and will benefit greatly from the helmet. I think we all felt hesitant at first but I have no heard of one person that upon graduation from the helmet regrets the decision. Especially at your son's age. My son was banded at 6 months (5 months adjusted age) and within a week (I kid you not!) I could see rounding. He just graduated this last week and I am just so thrilled and so appreciative for the treatment he got. I can not believe I ever had second thoughts! I think and hope you will find that once gets his helmet it really is not as bad as you had imagined. Aida,n my son,wore his helmet for about 4 months as well, but in the last month he did not wear it all the time because he was sick on and off, and he looks great! And I am not just saying that as his mother, the dr's concur! Welcome to the group. The hardest part of this treatment seems to be the weeks leading up to when our little ones get their helmets. After that it gets much easier! Deb w/ Aidan C DOC grad 2/5 > > > > Hi everyone, > > > > I just found this group today and it looks like a nice place to > be! > > Our son, , was just scanned today for his helmet. He had > > torticollis and developed plagiocephaly as a result. He is 6 > months > > old and apparently, it's a mild case. We had the measurements > faxed > > to insurance today and they are denying coverage. I think we are > > going to go ahead and have him wear the helmet anyways, even > though > > I'm not looking forward to it. The children's hospital will let us > > set up payments, so it might take us 2 years to pay for it! The > > orthotist thinks it might just be around 4 months that he needs > it. > > Any encouragement from anyone? I'm feeling overwhelmed and > exhausted > > at all the decisions we've had to make, and I'm hoping we have > made > > the right one. > > > > - > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 My ped thought that it may round out enough in the next 2 months that we wouldn't need a band. I, of course, want my baby to be perfect, like every does, so I'm continually worring about it now. --- In Plagiocephaly , " Ian REDMAN " <IanAdele@r...> wrote: > Hi Kim, > > It may be better to see someone before 6 months, perhaps you should have > another chat with your pead, as its best to start the helmet treatment as > early as possible, actually having the helmet by 5 1/2 months. > > This is the time our son had his helmet, he had severe plagio 19mm asemetry, > which went down to 9mm after only 5 weeks. > > Keep trying the repo, but go for the helmet if required, they work great and > are no problem to the child. > > The older the child starts the helmet treatment, the longer they have to > wear them. > > Good luck to you and your child. > > Ian. Manchester, England. > > > New here > > > > I'm Kim in Houston. My son has not been diagnosed with plagio, but > > my ped said we'd evaluate at 6 mos (he's 4 mos now) and she'd send me > > to the neurosurgeon at that time if needed. I'm trying to find out > > all I can to help prevent h having to be banded. He refuses to > > sleep on his back now, so that helps some, but will no pressure be as > > helpful as pressure on the protruding side? Any other suggestions to > > help us out? > > > > I'll read more, and I'm so happy to hear the success stories already. > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 Hi Kim & welcome: I know Christie will reply with helpful repositioning techniques shortly. In the mean time, chk out our FILES & LINKS " repositioning " folders for a ton of helpful tips, products & information! If I was you, I'd strongly suggest asking your ped for a referral NOW to the specialist. Ped. neuros often have a several week to months waiting list to be seen for plagiocephaly, so it certainly wouldn't hurt to get an appt now vs later. Hopefully, you could have success w/repo & just cancel the appt if you wouldn't need it at that time. Time is VERY important with plagio correction, so I'd strongly urge you to get a referral & appt w/a ped. neuro asap vs waiting. Debbie Abby's mom DOCGrad MI > I'm Kim in Houston. My son has not been diagnosed with plagio, but > my ped said we'd evaluate at 6 mos (he's 4 mos now) and she'd send me > to the neurosurgeon at that time if needed. I'm trying to find out > all I can to help prevent h having to be banded. He refuses to > sleep on his back now, so that helps some, but will no pressure be as > helpful as pressure on the protruding side? Any other suggestions to > help us out? > > I'll read more, and I'm so happy to hear the success stories already. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 Hi Kim and welcome to the group. At four months you definitely have time to try repo if that's the route you want to go. However, you may want to get your appointment with the neuro for h when he would be 6 months because sometimes it can take a month or more just to get in to see the specialists. After that, then you have to start fighting with your insurance company for the preapproval and so forth. So you might want to get all of you appointments made, just in case. You can always cancel them. We started repoing at 2 months, but we really didn't know what we were doing and had not found this group yet, so we didn't get good results. At 6 months we started pressing our ped for a referral to a neuro. We finally convinced them and saw the neuro at about 7.5 or 8 months. We thought about it for another few weeks. Took Matt for an eval at Cranial Technologies at around 8.5 months. Thought about it for a week or so more. Fought with the insurance companies for a few more weeks, finally got in for the casting about 9.5 months, and then received the band at 10 months. So you can see that it can be a long drawn out process, and I think we ran into relatively few delays considering what some parents have to go through. Good Luck repoing....It's a tough job, but some parents on the list are having excellent results and I'm sure they will chime in with some great advice and helpful hints! and (DOCgrad/10-7-03 to 2-13-04 @10mos./PA)kimsach <kimsach@...> wrote: I'm Kim in Houston. My son has not been diagnosed with plagio, but my ped said we'd evaluate at 6 mos (he's 4 mos now) and she'd send me to the neurosurgeon at that time if needed. I'm trying to find out all I can to help prevent h having to be banded. He refuses to sleep on his back now, so that helps some, but will no pressure be as helpful as pressure on the protruding side? Any other suggestions to help us out?I'll read more, and I'm so happy to hear the success stories already.For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Welcome Kim, I'm behind, so I'm sure you've received wonderful responses. mom to na DOC #1 10-27 to 11-26 DOC #2 12-10 to ?? South Carolina New here I'm Kim in Houston. My son has not been diagnosed with plagio, but my ped said we'd evaluate at 6 mos (he's 4 mos now) and she'd send me to the neurosurgeon at that time if needed. I'm trying to find out all I can to help prevent h having to be banded. He refuses to sleep on his back now, so that helps some, but will no pressure be as helpful as pressure on the protruding side? Any other suggestions to help us out?I'll read more, and I'm so happy to hear the success stories already.For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 kimsach <kimsach@...> wrote: I'm Kim in Houston. My son has not been diagnosed with plagio, but my ped said we'd evaluate at 6 mos (he's 4 mos now) and she'd send me to the neurosurgeon at that time if needed. I'm trying to find out all I can to help prevent h having to be banded. ************************* The best preventive measures would probably be to avoid having your son in bouncy seats or hauling him around (like at restaurants) in car seats and leaving him in a supine (on back) position for extended periods of time. Tummy time as much as he can stand helps, too. We made the mistake of carrying our son around in his car seat everywhere because he was so happy in it and usually napping, plus he loved his bouncy seat. We didn't know any better! It's hard to follow this regimen because sometimes you have to put the baby down to get other things done, but limiting time on his back will do wonders. ...Mom to Judah (DOCGrad #1 12/31/2003 / DOCBand #2 2/20/2004) Dallas, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Hi Kim! I could only mimic what replied! We did the exact same thing...car seat & bouncy chair...CaitlÃn loved them! Unfortunately, she would scream during tummy time and no matter what repositioning we attempted, she would wriggle out of it!! My brother's girlfriend is a pediatrician here in Houston and even suggested putting the crib mattress on a slight incline to force CaitlÃn to look right while sleeping. Instead, she just outsmarted us and looked up the incline!! Our own pediatrician told as at the 2 month visit that plagio could be an issue and at the 4 month visit we got the referral. Just keep trying tummy time and repositioning. Good luck and keep us posted! & CaitlÃn in Houston > I'm Kim in Houston. My son has not been diagnosed > with plagio, but > my ped said we'd evaluate at 6 mos (he's 4 mos now) > and she'd send me > to the neurosurgeon at that time if needed. I'm > trying to find out > all I can to help prevent h having to be banded. > ************************* > > The best preventive measures would probably be to > avoid having your son in bouncy seats or hauling him > around (like at restaurants) in car seats and leaving > him in a supine (on back) position for extended > periods of time. Tummy time as much as he can stand > helps, too. We made the mistake of carrying our son > around in his car seat everywhere because he was so > happy in it and usually napping, plus he loved his > bouncy seat. We didn't know any better! > > It's hard to follow this regimen because sometimes you > have to put the baby down to get other things done, > but limiting time on his back will do wonders. > > ...Mom to Judah (DOCGrad #1 12/31/2003 / DOCBand > #2 2/20/2004) > Dallas, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Hi , Welcome to the group. Unfortunately, you are not alone in your quest to convince your doctor of your concern. Most of us on this board have heard the same thing. Making an appointment with CT was a great first step. They can take a look at your babies and let you know if they would indeed benefit from banding. They'd also be able to arm you with information that you can go back to your ped with. If you are available tonight, we are going to have a chat session at 7:00pm PST time. You can get to know some of our members and we'll be able to answer more questions. Where are you located? , mom to Makenna LLUMC helmet grad --- In Plagiocephaly , " rwatts080577 " <rewatts@a...> wrote: > I have twins who are 15 wks old. They were both head down for my > entire last trimester and they were born with a flat side. Ever > since their two week ped appt I have been asking their ped about > their heads b/c it really concerns me. She sort of keeps brushing > me off saying " they'll go back to normal when they start sitting > up " . I am very nervous about leaving it to chance. I have an appt > April 7th at cranial tech for a consultation. Does anyone have any > advice for " convincing " my babies ped that I have a reason to be > concerned? I would also love some advice/tips on repositioning. My > babies are very stubborn and they really prefer one side. > Thanks in advance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Hi , I also wanted to let you know that your babies are at an excellent age for correction. Keep up the good work. Please also see the " Repos Headquarters " our files section. That will give you some great advice. Your babies are still good candidates for Repo. --- In Plagiocephaly , " rwatts080577 " <rewatts@a...> wrote: > I have twins who are 15 wks old. They were both head down for my > entire last trimester and they were born with a flat side. Ever > since their two week ped appt I have been asking their ped about > their heads b/c it really concerns me. She sort of keeps brushing > me off saying " they'll go back to normal when they start sitting > up " . I am very nervous about leaving it to chance. I have an appt > April 7th at cranial tech for a consultation. Does anyone have any > advice for " convincing " my babies ped that I have a reason to be > concerned? I would also love some advice/tips on repositioning. My > babies are very stubborn and they really prefer one side. > Thanks in advance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Hi , Welcome to the group, and congratulations on your twins! Correction of plagiocephaly is a time-sensitive one, whether you are aggressively repo'ing or getting a helmet/band, so I commend you on scheduling an evaluation with CT for your twins. Don't let your pediatrician's opinion that they'll round out on their own deter you from a proper evaluation, because you are right - doing nothing means you are leaving things to chance... there's no assertion the twins' heads will round out on their own. Aggressive repositioning means at the very least, keeping your babies off of the flat areas 24 hours a day, seven days a week, whether in the crib, your arms, the stroller, the carseats, etc. Repo is very, very difficult with just one baby, let alone two. Respositioning works best on younger babies, such as babies your twins age. With younger babies, that must sleep on their backs due to SIDS risk, nighttime repo can be somewhat of a challenge. What is their sleeping and napping position like? There is also a condition common to the majority of plagio babies called " torticollis. " Have you discussed tort with your pediatrician? Tort, which limits the range of motion of the babies' heads and necks, severely undermines repo efforts. Usually repo is unsuccessful or impossible until the tort is resolved. Even though your babies " prefer " looking to one side, can they turn their head easily the other way to view toys, etc.? Also common in plagio babies are asymmetries in addition to just a flat area on the back of the head. There can be ear misalignment, facial asymmetry, or even forehead bossing. The best way to view these asymmetries is to look up at the baby from the chin view, look down at the head from the top view, or to hold your baby up in the mirror and view the reflection. Do you know if either of your twins has any accompanying asymmetries? There is a lot of repo information here at the site in the LINKS/REPO AND TUMMY TIME folder and the FILES/REPO HEADQUARTERS folder. Check out the repo products for some items which may be of help to a busy mom of twins like yourself. Would you let me know if I can help out in any way with repo, and please let us know how your consult goes next month? Take care, Christie (Mom to Repo'd Remy) --- In Plagiocephaly , " rwatts080577 " <rewatts@a...> wrote: > I have twins who are 15 wks old. They were both head down for my > entire last trimester and they were born with a flat side. Ever > since their two week ped appt I have been asking their ped about > their heads b/c it really concerns me. She sort of keeps brushing > me off saying " they'll go back to normal when they start sitting > up " . I am very nervous about leaving it to chance. I have an appt > April 7th at cranial tech for a consultation. Does anyone have any > advice for " convincing " my babies ped that I have a reason to be > concerned? I would also love some advice/tips on repositioning. My > babies are very stubborn and they really prefer one side. > Thanks in advance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 I agree that you're doing the best thing by going to CT. They'll tell you what the deal is. Unfortunately, a lot of Ped. don't know all there is to know about it. Mine kept saying that the more they're off of their heads, the better it will get. Well at 15 months, 's head is still flat in the back. We went to CT 2 weeks ago and she said that at 7 months filling out will slow down alot. So at 15 weeks, you definatetly have time, but if they don't sit up early, then there might be problems. and (my twins) didn't sit up until they were about 9 months (they were 2 months early though) 's head slowed down on rounding out at about 9 months. Anyway, good luck at CT. Debbie & to be DOC Banded --- In Plagiocephaly , " rwatts080577 " <rewatts@a...> wrote: > I have twins who are 15 wks old. They were both head down for my > entire last trimester and they were born with a flat side. Ever > since their two week ped appt I have been asking their ped about > their heads b/c it really concerns me. She sort of keeps brushing > me off saying " they'll go back to normal when they start sitting > up " . I am very nervous about leaving it to chance. I have an appt > April 7th at cranial tech for a consultation. Does anyone have any > advice for " convincing " my babies ped that I have a reason to be > concerned? I would also love some advice/tips on repositioning. My > babies are very stubborn and they really prefer one side. > Thanks in advance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 , Welcome to the group! I see that you've received some good replies already and that Christie, our repo mod as already replied, I'll just second everything you've already been told! --- In Plagiocephaly , " rwatts080577 " <rewatts@a...> wrote: > I have twins who are 15 wks old. They were both head down for my > entire last trimester and they were born with a flat side. Ever > since their two week ped appt I have been asking their ped about > their heads b/c it really concerns me. She sort of keeps brushing > me off saying " they'll go back to normal when they start sitting > up " . I am very nervous about leaving it to chance. I have an appt > April 7th at cranial tech for a consultation. Does anyone have any > advice for " convincing " my babies ped that I have a reason to be > concerned? I would also love some advice/tips on repositioning. My > babies are very stubborn and they really prefer one side. > Thanks in advance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Hi . I see that you've already had some great replies, so welcome to the group! All I can really suggest to you is to keep on top of it, which you're doing a great job of, and to get another opinion. Some peds unfortunately just don't have the education. My ped said at that age that it was no big deal too, and when we did go to a neurosurgeion, my Hannah was diagnosed as severe. My ped just didn't have the knowledge about the subject and fortunately I didn't settle for her answer! A Cranial Tech consult will give you a great idea of where your twins stand. Please let us know how their appt goes. , mom to Hannah, DOC #3 3/30 Cape Cod, ma --- In Plagiocephaly , " rwatts080577 " <rewatts@a...> wrote: > I have twins who are 15 wks old. They were both head down for my > entire last trimester and they were born with a flat side. Ever > since their two week ped appt I have been asking their ped about > their heads b/c it really concerns me. She sort of keeps brushing > me off saying " they'll go back to normal when they start sitting > up " . I am very nervous about leaving it to chance. I have an appt > April 7th at cranial tech for a consultation. Does anyone have any > advice for " convincing " my babies ped that I have a reason to be > concerned? I would also love some advice/tips on repositioning. My > babies are very stubborn and they really prefer one side. > Thanks in advance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Hi and welcome to the group. Our pediatrican referred us to a ped neurosurgeon for treatment. Most peds aren't educated enough to know how to treat this. We were lucky that our ped knew enough about it to know where to send us for treatment. You may want to ask your ped for a referral. If you let us know what area you're in, someone here might have a good doctor for you. Also check the database section - there's a doctor's list there. Good luck! in NJ mom to Jake 21mo(doc band grad 2003) and Tyler 4 yrs. --- In Plagiocephaly , " rwatts080577 " <rewatts@a...> wrote: > I have twins who are 15 wks old. They were both head down for my > entire last trimester and they were born with a flat side. Ever > since their two week ped appt I have been asking their ped about > their heads b/c it really concerns me. She sort of keeps brushing > me off saying " they'll go back to normal when they start sitting > up " . I am very nervous about leaving it to chance. I have an appt > April 7th at cranial tech for a consultation. Does anyone have any > advice for " convincing " my babies ped that I have a reason to be > concerned? I would also love some advice/tips on repositioning. My > babies are very stubborn and they really prefer one side. > Thanks in advance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Hi , I'm going to jump on 's reply and tell you to keep on what you are doing. Also, check out the files section. There are a ton of articles there that you can print off and take to the ped's office. Since my son was dx'd with tort and plagio, it has become my mission to educate everyone I can about it, including medical personnel that should know better! Good luck at CT. They may also have some information that you can take back to your ped's office. - mom to Aidan > > I have twins who are 15 wks old. They were both head down for my > > entire last trimester and they were born with a flat side. Ever > > since their two week ped appt I have been asking their ped about > > their heads b/c it really concerns me. She sort of keeps brushing > > me off saying " they'll go back to normal when they start sitting > > up " . I am very nervous about leaving it to chance. I have an > appt > > April 7th at cranial tech for a consultation. Does anyone have > any > > advice for " convincing " my babies ped that I have a reason to be > > concerned? I would also love some advice/tips on repositioning. > My > > babies are very stubborn and they really prefer one side. > > Thanks in advance. > > Quote Link to comment Share on other sites More sharing options...
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