New here

[Guest guest]

Hi, it sounds like almost everyone has pediatricians who don't care

about plagio at all - I don't understand it!

You might get some correction! My son (who is now 2.5 yrs old),

showed some changes around the 20th month continuing very slightly

until recently. He never had a helmet though. I repo'd him when he

was a baby.

I may be totally off the mark but it might help with growth

(therefore change) if you make sure he's eating well during this

period, fruit and broccoli, perhaps a multi-vitamin just for this

period of time. I may be totally wrong about this but it's just my

gut instinct as my son has always had a healthy appetite and is a

good grower!

Good luck to you. Janice.

--- In Plagiocephaly , " tortibaby " <sugrill@j...>

wrote:

> Hello. Just found this group.

>

> My 18 month old son has tort and untreated plagio. I got him into

a

> band last week after raging at his docs up here (in Seattle) and

> finally flying down to San Diego for a DOC Band out-of-pocket. Has

> anyone else from Washington state run into this inept care? When I

> finally got a referral to Children's they said they could see my

son

> in 5 weeks but that they weren't going to band a 17 month old. We

are

> in an HMO and boy are they slow to notice a problem! Is the

> healthcare system entirely organized around waiting for mommies to

> figure everything out?

>

> Sorry for the cranky tone but my son is stuck with his plagio now -

-

> the DOC band isn't going to give him very good results. Good thing

> he's cute as a bug and doesn't need a perfect head! Any info from

> anyone in the Seattle area would be appreciated. Including how to

> smack a pediatrician's kneecap with a baseball bat...

>

>

>

> Mom of , 18 months

> Seattle

[Guest guest]

Hello

Welcome to the group. Glad you found us. We have a few members

that had their babies banded at a later age. Hopefully they will

jump in and give you plenty of advice. There are before and after

pictures in the Photo section. Maybe you could post some of

as well. Love the name. Don't give up. There is still time for

to get some good correction, and you are doing everything for

him that you can. He will be thankful later on.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad 02/04

--- In Plagiocephaly , " tortibaby " <sugrill@j...>

wrote:

> Hello. Just found this group.

>

> My 18 month old son has tort and untreated plagio. I got him into

a

> band last week after raging at his docs up here (in Seattle) and

> finally flying down to San Diego for a DOC Band out-of-pocket. Has

> anyone else from Washington state run into this inept care? When I

> finally got a referral to Children's they said they could see my

son

> in 5 weeks but that they weren't going to band a 17 month old. We

are

> in an HMO and boy are they slow to notice a problem! Is the

> healthcare system entirely organized around waiting for mommies to

> figure everything out?

>

> Sorry for the cranky tone but my son is stuck with his plagio now -

-

> the DOC band isn't going to give him very good results. Good thing

> he's cute as a bug and doesn't need a perfect head! Any info from

> anyone in the Seattle area would be appreciated. Including how to

> smack a pediatrician's kneecap with a baseball bat...

>

>

>

> Mom of , 18 months

> Seattle

[Guest guest]

Hi -

Just wanted to say hi and to let you know we are in the same boat. Jake is now 17 mos as of 5/16. We drive to Cleveland (for the DOC band) from Cincinnati so it's about a 4 1/2 hour drive each way.

It really irks me that I have asked about the helmet for Jake at different appointments and even at his PT appointments for over a year now. Finally it took me making the call and demanding the prescription before anything was done. This past weekend he was cast which was a truely missearble experience for him! We will be going back up in little less than two weeks to get his band and then the fun begins. at Straight Ahead in Cleveland does believe we are going to see improvement in Jake.

How has your son adjusted to the band?

Best of luck to you and hopefully we can get these kids to hit a great growth spurt for us!

(Mom to Jake cast for DOC band 5/15 1 day before he turned 17 months)tortibaby <sugrill@...> wrote:

Hello. Just found this group. My 18 month old son has tort and untreated plagio. I got him into a band last week after raging at his docs up here (in Seattle) and finally flying down to San Diego for a DOC Band out-of-pocket. Has anyone else from Washington state run into this inept care? When I finally got a referral to Children's they said they could see my son in 5 weeks but that they weren't going to band a 17 month old. We are in an HMO and boy are they slow to notice a problem! Is the healthcare system entirely organized around waiting for mommies to figure everything out?Sorry for the cranky tone but my son is stuck with his plagio now -- the DOC band isn't going to give him very good results. Good thing he's cute as a bug and doesn't need a perfect head! Any info from anyone in the Seattle area would be

appreciated. Including how to smack a pediatrician's kneecap with a baseball bat...Mom of , 18 monthsSeattleFor more plagio info

[Guest guest]

Hi ,

Welcome to the group! Unfortunately your story is all too familiar :

(. Thats great that even though it took longer you were able to

stick with it and get treatment for your son. Your son could still

have some good results at his age from a DOCband. I see you've

already been referred to the picture in our B & A section of the

19.5 month old. My Hannah got her third band at 15 mos and we have

seen some correction that we've been happy with. Just keep your

fingers crossed for a good growth spurt now!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

--- In Plagiocephaly , " tortibaby " <sugrill@j...>

wrote:

> Hello. Just found this group.

>

> My 18 month old son has tort and untreated plagio. I got him into

a

> band last week after raging at his docs up here (in Seattle) and

> finally flying down to San Diego for a DOC Band out-of-pocket. Has

> anyone else from Washington state run into this inept care? When I

> finally got a referral to Children's they said they could see my

son

> in 5 weeks but that they weren't going to band a 17 month old. We

are

> in an HMO and boy are they slow to notice a problem! Is the

> healthcare system entirely organized around waiting for mommies to

> figure everything out?

>

> Sorry for the cranky tone but my son is stuck with his plagio now -

-

> the DOC band isn't going to give him very good results. Good thing

> he's cute as a bug and doesn't need a perfect head! Any info from

> anyone in the Seattle area would be appreciated. Including how to

> smack a pediatrician's kneecap with a baseball bat...

>

>

>

> Mom of , 18 months

> Seattle

[Guest guest]

Hi,

Welcome to the group. I don't know anything about Osteopaths. But I

do know we have info on treatment in Switzerland, if you're

interested:

Cranio-Faciales-Centrum (cfc) Hirslanden, Schanzweg 7, CH- 5000 Aarau

PD. Dr.Dr. Beat Hammer, Dr.Dr. Dennis Rohner

+41 (0)62 836 78 78, cfc@...

www.cranio-online.de, www.craniofacial.ch

The younger a baby is banded the better and faster the correction. A

baby your daughter's age has the potential to receive 100%

correction. It is a must that the person treating your baby's plagio

has experience doing so. Please keep us posted.

> Hi,

> One of my 3 1/2 month old twins has just been diagnosed with

plagio. I think she

> has had it since birth, but since she needed heart surgery I didn't

think much about

> her head shape. Anyhow, we can't see the specialist (she was

diagnosed by a plastic

> surgeon) until 21 july, so we are now aggressively repositioning.

>

> I think her plagio is pretty bad. I have been noticing that one of

her eyes looks

> smaller for a few weeks now. I guess my questions are:

>

> How 'good' will she look after treatment? The plastic surgeon was

keen on a helmet.

>

> She was a little premature, so her corrected age is 3 months. Does

this give us more

> time?

>

> I live in switzerland, and will take her to an osteopath asap to

see if he can help at all.

> Has anyone gone this route?

>

> Thanks, Catriona and Naomi(3 1/2 months) Switzerland.

[Guest guest]

Hello Catriona,

Welcome to the group! This must be tough for you after already going

through so much with your little ones. I'll second everything that

said. At this optimum age your daughter should receive

excellent correction. I have heard good things about cranial

osteopaths. I tried one here in the states and didn't enjoy the

experience but that was just one dcotor. Good luck!

Natasha

> Hi,

> One of my 3 1/2 month old twins has just been diagnosed with

plagio. I think she

> has had it since birth, but since she needed heart surgery I didn't

think much about

> her head shape. Anyhow, we can't see the specialist (she was

diagnosed by a plastic

> surgeon) until 21 july, so we are now aggressively repositioning.

>

> I think her plagio is pretty bad. I have been noticing that one of

her eyes looks

> smaller for a few weeks now. I guess my questions are:

>

> How 'good' will she look after treatment? The plastic surgeon was

keen on a helmet.

>

> She was a little premature, so her corrected age is 3 months. Does

this give us more

> time?

>

> I live in switzerland, and will take her to an osteopath asap to

see if he can help at all.

> Has anyone gone this route?

>

> Thanks, Catriona and Naomi(3 1/2 months) Switzerland.

[Guest guest]

Hello Catriona

Welcome to the board. I am in Germany and my daughter was banded by

Dr. Blecher. If I recall correctly that would be the one banding

your daughter in Switzerland as well. He usually doesn't band

babies till I believe it's 5months of age, but of course this is a

case by case. Can you call the center that you will be going to and

have your daughter put on a waiting list so if someone canceles they

would call you?. Please do keep us updated on how things turn out

and good luck.

Before I forget. Here is the email of the member we have in

Switzerland. I'm not sure her son is still in the helmet, but he

was banded by Dr. Blecher there.

osalim75@...

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad 02/04

> Hi,

> One of my 3 1/2 month old twins has just been diagnosed with

plagio. I think she

> has had it since birth, but since she needed heart surgery I

didn't think much about

> her head shape. Anyhow, we can't see the specialist (she was

diagnosed by a plastic

> surgeon) until 21 july, so we are now aggressively repositioning.

>

> I think her plagio is pretty bad. I have been noticing that one of

her eyes looks

> smaller for a few weeks now. I guess my questions are:

>

> How 'good' will she look after treatment? The plastic surgeon was

keen on a helmet.

>

> She was a little premature, so her corrected age is 3 months. Does

this give us more

> time?

>

> I live in switzerland, and will take her to an osteopath asap to

see if he can help at all.

> Has anyone gone this route?

>

> Thanks, Catriona and Naomi(3 1/2 months) Switzerland.

[Guest guest]

Hi and welcome to the group! We are glad you found this group as

well! Sounds like your son is one lucky kiddo! We look forward to

hearing of 's banding journey and his graduation. Thanks for

introducing yourself and . Feel free to check out

our " photo " section and add some of if you want. We love

seeing banded babies.

Dustie, mom to , DOCGrad'03

Texas

--- In Plagiocephaly , " USA_EH93 " <usa_eh93@y...>

wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday

for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people

are

> very accepting of his helmet, others are just plain nosey. I was

in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the

woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live

in

> North Carolina ,in Wilmington.

[Guest guest]

hi there,

and welcome to the group. i know how you feel about people

being nosy. i had a police officer(a woman no less) ask me if i had

dropped my daughter. i looked her square in the face and told

her " yes i sure did " she looked appalled at my answer so i

continued, " everyone told me i had a " bouncing baby girl " , but no

matter how many times i try...she doesn't BOUNCE!!! " the woman didn't

know what to say as everyone in the office laughed. she turned around

and went back in her office as i was explaining to another parent the

real reason!! hopefully your son will " graduate " soon!!!

kelly(mom to kathryn 9mths,plagio/brachy/tort,banded 5/03/texas)

--- In Plagiocephaly , " USA_EH93 " <usa_eh93@y...>

wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday

for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people

are

> very accepting of his helmet, others are just plain nosey. I was in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live

in

> North Carolina ,in Wilmington.

[Guest guest]

Hi!

Welcome to the group!

I am so glad your son is another success Starband story!

People are very weird. I cannot believe the reactions, so I made myself

a flyer to give it to these noisy people. I am happy to talk to people

who are REALLY wondering and concerned. I hate talking to rude people

though. It is good to get the info. out though because the more the

public knows the better. I give the flyer out so I don't have to talk

as much anymore.The comment I hate the most is, " OH MY KIDS SLEPT ON

ALL THEIR BELLIES " .......It KILLS me.I just want to slap them. LOL.

Like I WAS the one who goofed up, by having sleep on his back.

My husband jokes around too and says is a crash test dummy

child. LOL

Keep up the good work mom!

Krissy

ph's mom

Starband 4/28/04

Palm Harbor, FL

On Jun 18, 2004, at 12:25 PM, USA_EH93 wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people are

> very accepting of his helmet, others are just plain nosey. I was in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live in

> North Carolina ,in Wilmington.

>

>

>

>

> For more plagio info

[Guest guest]

Welcome and 's Mommy! This is a great group, lots of

information and support. Glad to hear your son is getting such good

correction. I also have an older baby in a DOC band, he's almost 9

months now and I'm hoping he'll be out of it by his 1 year birthday.

Good luck to you!

Mia

09/22/03 - brachy, tort, DOC banded 05/27/04

--- In Plagiocephaly , " USA_EH93 " <usa_eh93@y...>

wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday

for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people

are

> very accepting of his helmet, others are just plain nosey. I was in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live

in

> North Carolina ,in Wilmington.

[Guest guest]

Hi and welcome to the group. I'm glad your son has had such great

results from his STARband! We love pictures if you want to share!

The comments you get w/a banded baby certainly can be interesting!

My daughter has been banded for just over a year now and I think (or

at least hope!) that we've heard it all!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

--- In Plagiocephaly , " USA_EH93 " <usa_eh93@y...>

wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday

for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people

are

> very accepting of his helmet, others are just plain nosey. I was

in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the

woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live

in

> North Carolina ,in Wilmington.

[Guest guest]

Welcome! I'm glad that you found us too. :-) I am fairly new and am

so happy that I found these great people. I am so happy to hear that

you may be at the end of 's treatment with such great

progress. I would love to see the little cutie. My grandma shares

his birthday. :-) I love Wilmington, NC!

Thank you for giving me ideas on how to repsond to rude people. We

are starting treatment on 6/29. I look forward to getting to know

you.

Sue

Colin F. (brachy, rt plagio)

STARband 6/29

Buffalo, NY

--- In Plagiocephaly , " USA_EH93 " <usa_eh93@y...>

wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday

for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people

are

> very accepting of his helmet, others are just plain nosey. I was in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live

in

> North Carolina ,in Wilmington.

[Guest guest]

Hi and welcome to the group. I am so glad your son is having such great

correction. Please keep us posted on his progress.

Angie and Jenna(STAR grad)

new here

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people are

> very accepting of his helmet, others are just plain nosey. I was in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live in

> North Carolina ,in Wilmington.

>

>

>

>

> For more plagio info

[Guest guest]

Hello there, and welcome to the group. Sounds like has

everyting going for him. ) Please let us know how your

adjustment goes.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad 02/04

--- In Plagiocephaly , " USA_EH93 " <usa_eh93@y...>

wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday

for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people

are

> very accepting of his helmet, others are just plain nosey. I was

in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the

woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live

in

> North Carolina ,in Wilmington.

[Guest guest]

Hi,

Welcome to the group!

I am so happy to hear about your son's rounding and aymmetry

correction in his Starband since he started wearing it. We have had

several new members recently posting about opportunities for ear

misalignment correction, so I know your post will provide them with

a great deal of encouragement on this possibility!

We always love to pass along great experiences at various orthos...

would you mind sharing what Starband facility your son is going to?

Hopefully your son will graduate from his Starband soon - would you

let us know how his adjustment goes on Monday and if you get a

tentative graduation timeline?

Take care,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " USA_EH93 " <usa_eh93@y...>

wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday

for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people

are

> very accepting of his helmet, others are just plain nosey. I was

in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the

woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live

in

> North Carolina ,in Wilmington.

[Guest guest]

HI ,

Welcome to the group. Sadly at 2 years old the only way to correct

plagio is through surgery. Cranial Tech only band babies up to 24

months and Orthomerica only up to 18 months. Can you post a pic of

your son?

--- In Plagiocephaly , " xtlsmom7702 " <Tigger5140@a...>

wrote:

> Hello all! My name is and some of you might know me from

the

> torticollis board because I know a lot of you are duel members.

> Well, let me give a brief history about my son, Xavier. He was

born7-

> 7-02 and was 9lbs even. We noticed his torticollis and it was

> diagnosed at 2 months. He has been going to physical therapy ever

> since and we thought it went away, but it seems to have come back.

> We thought it might have been due to a problem with his vision so

we

> took him to a pediatric optomitrist who said his eyes were ok, but

> asked if we ever got him checked out by a crainial facial doctor

> becaues he has an asymmetrical head. Now I knew his head was not

> symmetrical, he has a bump on the back left side of his head and to

> the right it is slanted, but it is not severe. This optomitrist,

> however, felt that it was. His pediatrician and physical therapist

> have never voiced any concern about it so it had never worried me.

> So that is our story. Does anyone else have an experience like

this

> one? Is it possible to treat the head when kids are this old? Is

it

> OK to just leave it be? PLEASE HELP!

> All feed back is appreciated!

> -

> Chicago

> Xavier 2 yrs old, torticollis, hip dysplasia

[Guest guest]

,

I don't know of any treatment with helmeting or banding that can be

done after the child is 24 months. I'm so sorry! Many of us had

our pediatricians, specialists, etc. blow off our concerns of our

babies' headshape asymmetry, or even not flag it at all as in

Xavier's case. There doesn't seem to be an established scale across

medical professions of mild, moderate, or severe yet. Options at

your son's age which you might be interested in include alternative

therapy which a few group members have had experience with (see the

links/alternative treatments section of the group.) There is

another group at for parents of children with untreated

plagio, and they also may be able to help you with some information

regarding experience with alternative treatments, support for

children with untreated plagio, or information about any improvement

with natural rounding-out at your son's more advanced age. Their

group " OlderPlag " is at:

OlderPlag/

I wish I had more information and help to offer you!

Christie (Mom to Repo'd Remy)

> Hello all! My name is and some of you might know me from

the

> torticollis board because I know a lot of you are duel members.

> Well, let me give a brief history about my son, Xavier. He was

born7-

> 7-02 and was 9lbs even. We noticed his torticollis and it was

> diagnosed at 2 months. He has been going to physical therapy ever

> since and we thought it went away, but it seems to have come

back.

> We thought it might have been due to a problem with his vision so

we

> took him to a pediatric optomitrist who said his eyes were ok, but

> asked if we ever got him checked out by a crainial facial doctor

> becaues he has an asymmetrical head. Now I knew his head was not

> symmetrical, he has a bump on the back left side of his head and

to

> the right it is slanted, but it is not severe. This optomitrist,

> however, felt that it was. His pediatrician and physical

therapist

> have never voiced any concern about it so it had never worried

me.

> So that is our story. Does anyone else have an experience like

this

> one? Is it possible to treat the head when kids are this old? Is

it

> OK to just leave it be? PLEASE HELP!

> All feed back is appreciated!

> -

> Chicago

> Xavier 2 yrs old, torticollis, hip dysplasia

[Guest guest]

Hi ,

Like said, the only option now would be surgery. Take some

comfort in the fact that it can't be too bad if it didn't bother

you. My son was banded twice and at age 2 still has a noticeable

flat spot. Of course no one seems to notice it but me..... You

might want to join the older plagio group to talk with other

parents who didn't seek treatment.

Natasha

--- In Plagiocephaly , " xtlsmom7702 " <Tigger5140@a...>

wrote:

> Hello all! My name is and some of you might know me from

the

> torticollis board because I know a lot of you are duel members.

> Well, let me give a brief history about my son, Xavier. He was

born7-

> 7-02 and was 9lbs even. We noticed his torticollis and it was

> diagnosed at 2 months. He has been going to physical therapy ever

> since and we thought it went away, but it seems to have come back.

> We thought it might have been due to a problem with his vision so

we

> took him to a pediatric optomitrist who said his eyes were ok, but

> asked if we ever got him checked out by a crainial facial doctor

> becaues he has an asymmetrical head. Now I knew his head was not

> symmetrical, he has a bump on the back left side of his head and to

> the right it is slanted, but it is not severe. This optomitrist,

> however, felt that it was. His pediatrician and physical therapist

> have never voiced any concern about it so it had never worried me.

> So that is our story. Does anyone else have an experience like

this

> one? Is it possible to treat the head when kids are this old? Is

it

> OK to just leave it be? PLEASE HELP!

> All feed back is appreciated!

> -

> Chicago

> Xavier 2 yrs old, torticollis, hip dysplasia

[Guest guest]

Hi ,

Welcome to the group! We're glad you found us. What type of helmets

are your girls in? Where are you located? How long have they been

banded? Are you seeing correction? Sorry for all the quesitons!

--- In Plagiocephaly , " " <mytwosetsoftwins@y...>

wrote:

> Hi,

> I just found this board and am very excited to get to know others

who

> also have children with plagiocephaly. I have twin daughers who

are

> 19 months and both have plagiocephaly and are in the helmets right

> now. I look forward to reading the posts and getting advice. I'm

so

> glad I found this board.

>

>

[Guest guest]

Hi ,

Glad you found us and yup I know exactly what you mean. I was

thrilled to find these guys too. You are at least on top of your

girls plagio WTG!!!! I had never heard of such a thing before..

amazing huh?

What bands are your girls in? How long have they been banded? Where

do u guyslive? ect............... give us the scoop lol

Sheri mom to Kadie 5 1/2 months tort/resolved plagio/repoing

Keep us posted on the girls progress

> Hi,

> I just found this board and am very excited to get to know others

who

> also have children with plagiocephaly. I have twin daughers who

are

> 19 months and both have plagiocephaly and are in the helmets right

> now. I look forward to reading the posts and getting advice. I'm

so

> glad I found this board.

>

>

[Guest guest]

Thank you . We are located in Portland, Oregon and have been in

the helmets for about 8 months. One of the girls is almost

completely done while the other one, who was worse to start with is

making a little progress and is about 1/2 way to being done. No

problem about all the questions. What about your child/children?

Are you have any improvement? Where are you located? We have the

DOC bands.

> > Hi,

> > I just found this board and am very excited to get to know others

> who

> > also have children with plagiocephaly. I have twin daughers who

> are

> > 19 months and both have plagiocephaly and are in the helmets

right

> > now. I look forward to reading the posts and getting advice.

I'm

> so

> > glad I found this board.

> >

> >

[Guest guest]

Hi ,

What Cranial Tech office are you going to? I went to Cranial Tech in

NJ. My daughter graduated a year ago this past May. She received

awesome correction. I'm located on Long Island in New York. I'd love

to see pic of your girls.

> > > Hi,

> > > I just found this board and am very excited to get to know

others

> > who

> > > also have children with plagiocephaly. I have twin daughers

who

> > are

> > > 19 months and both have plagiocephaly and are in the helmets

> right

> > > now. I look forward to reading the posts and getting advice.

> I'm

> > so

> > > glad I found this board.

> > >

> > >

[Guest guest]

Hi ,

We go to Hanger Prosetics (sp?). I'm so glad your daughter

graduated. I will see if I can get some pictures up on the website.

> > > > Hi,

> > > > I just found this board and am very excited to get to know

> others

> > > who

> > > > also have children with plagiocephaly. I have twin daughers

> who

> > > are

> > > > 19 months and both have plagiocephaly and are in the helmets

> > right

> > > > now. I look forward to reading the posts and getting

advice.

> > I'm

> > > so

> > > > glad I found this board.

> > > >

> > > >

[Guest guest]

,

If you go to Hanger then you have the hanger band, not DOCbands.

DOCbands are only available through Cranial Technologies and licensed

centers. Were you told your girls were in DOCbands? I can't wait to

see the pictures. Are your girls identical?

> > > > > Hi,

> > > > > I just found this board and am very excited to get to know

> > others

> > > > who

> > > > > also have children with plagiocephaly. I have twin

daughers

> > who

> > > > are

> > > > > 19 months and both have plagiocephaly and are in the

helmets

> > > right

> > > > > now. I look forward to reading the posts and getting

> advice.

> > > I'm

> > > > so

> > > > > glad I found this board.

> > > > >

> > > > >