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>

> From: ne Kieffer <theocean@...>

>

> Has anyone on this list tried the new Progen(I think thats what its

> called)...this is the new gancylor-(spelled wrong I am sure)-it normally

> comes in IV form but this new one is in capsule form and I hear it does

> not get into the blood stream as well but I also heard that if its taken

> along with other antivirals like Valtrex or something that I might be

> pretty affective.

Is this available by perscription now? If so, where?

patti

--

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  • 2 years later...

Hi Donna -

I have taken Valtrex and am currently on Acyclovir. I

usually herx for about 2 days before I start to feel

better - body aches,chills mostly. I have tolerated

both meds well - we are alternating them so my body

doesn't acclimate to them.

Good luck - Jennie

Message: 19

Date: Wed, 10 Oct 2001 23:25:03 -0400

From: " Donna Pruitt " <donnap@...>

Subject: antivirals

Has anyone taken Famvir, Acyclovir, or both? What were

the benefits,

side effects, or if you took both, which one seemed to

help more?

I have very high RNaseL activity, so Cheney put me on

Famvir. It seems

to be totally wiping me out, with intolerable pain,

headaches,

exhaustion, listlessness and of course, my old

familiar breathing difficulties.

I assume it is a bad herx, as some of the pain is

diminishing, and i'm

starting to have night sweats and fevers (my reg temp

is about 97.2F

due to hypothyroid problems my other doc can't get a

handle on) from late

afternoon on. When I spoke with his office, he said I

shouldn't be in

that much pain (i.e., he didn't want me in that much

pain), and

suggested I switch to Acyclovir. I did not speak with

him personally, but his

office person said that he said something about

different people

reacting differently to different drugs, and it wasn't

a so much that

Acyclovir is a lesser or less potent drug. I have not

tested positive for

anything, but have had shingles in the past, as well

as cold sores, sores in

my nose (which my EI doc says is Herpes of some

variety) and canker

sores. The EI doc's allergy extracts include extract

for herpes type

viruses, and that has kept the canker sores and cold

and nose sores at bay

for over two years. So Cheney's going for a general

cover for Herpes

and will retest RNaseL in 30 days to see if there are

any changes.

I've never taken any antivirals before, and this herx

with Famvir is

similar to the herxes with everything else I have ever

taken in its early

stages, including Isoprinosine, although this is by

far the most severe

herx. (Assuming it is not an allergic reaction, but I

think after 8

days if it was an allergic reaction it would continue

to get worse, rather

than change its pattern). Any ideas about these drugs?

Thanks, Donna in NC

__________________________________________________

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Hi Jennie,

Thanks, and how often do you alternate the two? Have you been on them long?

Donna in NC

re: Antivirals

> Hi Donna -

> I have taken Valtrex and am currently on Acyclovir. I

> usually herx for about 2 days before I start to feel

> better - body aches,chills mostly. I have tolerated

> both meds well - we are alternating them so my body

> doesn't acclimate to them.

>

> Good luck - Jennie

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Donna,

Aciclovir, as it's now spelt, is an early antiviral effective

against a number of Herpes group viral infections. It works by interfering

with the viral replication process thereby reducing the viral load. It works

best when used at the onset of Herpes group infections, such as Chicken Pox,

Shingles, Cold Sores etc., but does not eliminate the viral material.

However, it unlike earlier antiviral drugs it leaves healthy cells intact

and therefore has a low level of toxicity.

Generally, Aciclovir can be taken by most people without any

problems provided there are no problems with the Kidneys. If so, caution

must be used.

Recently, Valaciclovir has been introduced as a Pro Drug of

Aciclovir, that is it delivers Aciclovir more effectively. This means

Valaciclovir can offer the same benefit as Aciclovir, but can achieve blood

concentrations in oral tablet form that can only be achieved by Aciclovir

using the Intravenous method. This means oral Valaciclovir is a cheaper more

effective version of Aciclovir when presented as tablets.

My own experiences of Antiviral drugs, that is Ribavirin and

Isoprinosine, have shown that they prevent a relapse in my CFS, known as ME

in the UK, but do not make my CFS any better even when used for several

months. However, I have now discovered that my main problem is a chronic

fungal infection that these drugs will not deal with, but what they do offer

is a reduction on the immune load when dealing with acute viral infections

and therefore indirectly help prevent my immune system from being deflected

from its attempts to deal with the fungal problem.

I hope the information helps answer your question.

Best wishes,

Andy Porter

antivirals

> Has anyone taken Famvir, Acyclovir, or both? What were the benefits, side

effects, or if you took both, which one seemed to help more?

>

> I have very high RNaseL activity, so Cheney put me on Famvir. It seems to

be totally wiping me out, with intolerable pain, headaches, exhaustion,

listlessness and of course, my old familiar breathing difficulties. I assume

it is a bad herx, as some of the pain is diminishing, and i'm starting to

have night sweats and fevers (my reg temp is about 97.2F due to hypothyroid

problems my other doc can't get a handle on) from late afternoon on. When I

spoke with his office, he said I shouldn't be in that much pain (i.e., he

didn't want me in that much pain), and suggested I switch to Acyclovir. I

did not speak with him personally, but his office person said that he said

something about different people reacting differently to different drugs,

and it wasn't a so much that Acyclovir is a lesser or less potent drug. I

have not tested positive for anything, but have had shingles in the past, as

well as cold sores, sores in my nose (which my EI doc says is Herpes of some

variety) and canker sores. The EI doc's allergy

> extracts include extract for herpes type viruses, and that has kept the

canker sores and cold and nose sores at bay for over two years. So Cheney's

going for a general cover for Herpes and will retest RNaseL in 30 days to

see if there are any changes.

>

> I've never taken any antivirals before, and this herx with Famvir is

similar to the herxes with everything else I have ever taken in its early

stages, including Isoprinosine, although this is by far the most severe

herx. (Assuming it is not an allergic reaction, but I think after 8 days if

it was an allergic reaction it would continue to get worse, rather than

change its pattern). Any ideas about these drugs?

>

> Thanks, Donna in NC

>

>

>

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Thanks Andy!

Donna in NC

Re: antivirals

> Donna,

> Aciclovir, as it's now spelt, is an early antiviral effective

against a number of Herpes group viral infections. It works by interfering

with the viral replication process thereby reducing the viral load....

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Donna,

I forgot to mention that Valaciclovir is a trade name used in

the UK, whilst in the USA and Canada I believe the name Valtrex is used.

There is no difference between the products other than the likes of Glaxo

Kline using different names for the same product in different

countries. It appears the Pharmaceutical companies like this approach since

it would appear that they can charge higher prices at least in the UK.

Best regards,

Andy Porter

Re: antivirals

>

>

> > Donna,

> > Aciclovir, as it's now spelt, is an early antiviral

effective

> against a number of Herpes group viral infections. It works by interfering

> with the viral replication process thereby reducing the viral load....

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

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  • 4 years later...

,

If you look on the home page on the left hand side

you'll see a box. In it, you can click on Files. One of the files

you'll find is called " Viral Information and Resources " . This would

be a good place to start if you're looking for answers regarding

anything viral and autism: it contains information and links. One

of the links you won't want to miss is to 's page. I will be

updated the " Viral Information and Resources " page very soon to

include information, particularly on the need to ramp up the natural

antivirals slowly and the negative effects of the " healing

regression " .

Anita

>

> Hi, I hope this doesn't sound too silly a question, but what

exactly

> are antivirals? I keep seeing it come up in posts and I just saw a

> really wonderful video testimonial of a beautiful recovered little

boy

> on Generation Rescue where treatment involved antivirals, diet &

> supplements, and I've tried searching for information on

antivirals

> but I'm not quite sure what I'm looking for. So if anyone is

willing

> to explain what they are, are there different types, where to buy,

> would all kids benefit from being on them or are they a fix for

> certain virus issues? And if so, how do you know if your child has

> virus issues. Also are there any negatives to using them?

> I really just don't understand anything about them so any/all

> information would be much appreciated.

> Thanks so much in advance :)

> Regards,

>

>

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>

> Hi, I hope this doesn't sound too silly a question, but what exactly

> are antivirals?

Supplements and/or medications which help to eliminate viruses. There

are several different types, and they work on the viruses in different

ways.

Valtrex is a medication that prevents the virus from replicating.

ViraStop enzyme digests the cell wall of the virus, allowing your

immune system [if it is working] or your anti-viral, to eliminate the

virus.

Olive leaf extract is a natural/herbal anti-viral. So is vitamin A

and C. Lauricidin also works well.

> would all kids benefit from being on them or are they a fix for

> certain virus issues?

I have read that Valtrex works only on herpes virus, but I don't know

if that is true or not.

High dose vitamin A protocol is very effective for measles virus.

I have had great success using ViraStop and OLE, and now adding in

Lauricidin.

>> And if so, how do you know if your child has

> virus issues.

I gave my kids OLE a few winters ago, to prevent colds and flu. When

I tried to remove it, they severely regressed. This is how I knew

they were virus kids.

You can request a viral panel, I know Dr. McCandless recommends

Immunosciences Lab.

>> Also are there any negatives to using them?

As viruses are leaving the body [ " dying off " , altho viruses are not

technically alive, so they don't technically die], it does tend to

cause a LOT of yeast.

Dana

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  • 1 month later...
Guest guest

I'd like to know that as well..should we treat our kids as though they have a

virus? Does it hurt to treat them as such?

Ramesh Kannan <shivakannan@...> wrote:

Hi all,

We recently did an autism panel testing through

Immunosciences lab. it shows that our son doesn't have

the measeles virus. Apparently, the rubeola titer is

normal. but, I understand from previous posts that

there are other viral panels too which we haven't

done. Would it be o.kay. to try a broad spectrum

antiviral like Virastop, whether or not there are

viral issues. I know that there are several parents in

this list use antivirals for some issues. Is the

antiviral like Virasop tailored to work on a

particular viral issue? Just wanted to get more

information about it.

Thanks in advance.

Meenakshi.

__________________________________________________

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Guest guest

Our DAN! uses a medication called Acyclovir to treat viral

infections when a child comes back with super high viral titers. My

son hasn't been on it but many people I know have used it with their

child. I know that a lot of AIDS patients uses it but then again

AIDS is a viral infection.

-Crystal

www.sashasrecovery.com

http://photos./sashasrecovery

> Hi all,

>

> We recently did an autism panel testing through

> Immunosciences lab. it shows that our son doesn't have

> the measeles virus. Apparently, the rubeola titer is

> normal. but, I understand from previous posts that

> there are other viral panels too which we haven't

> done. Would it be o.kay. to try a broad spectrum

> antiviral like Virastop, whether or not there are

> viral issues. I know that there are several parents in

> this list use antivirals for some issues. Is the

> antiviral like Virasop tailored to work on a

> particular viral issue? Just wanted to get more

> information about it.

>

> Thanks in advance.

>

> Meenakshi.

>

> __________________________________________________

>

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Guest guest

My son did the premier Autism Panel of ISL too and low titers for measles, but

since he was too low on vitamin A despite supplementation of CLO, we did a

high Vitamin A protocol with great lasting benefits. So just because the

titers don't show up in the test doesn't mean it isn't there.

I assume that Virastop would be a really safe alternative as it is a enzyme.

Best,

H

--- Ramesh Kannan <shivakannan@...> wrote:

> Hi all,

>

> We recently did an autism panel testing through

> Immunosciences lab. it shows that our son doesn't have

> the measeles virus. Apparently, the rubeola titer is

> normal. but, I understand from previous posts that

> there are other viral panels too which we haven't

> done. Would it be o.kay. to try a broad spectrum

> antiviral like Virastop, whether or not there are

> viral issues. I know that there are several parents in

> this list use antivirals for some issues. Is the

> antiviral like Virasop tailored to work on a

> particular viral issue? Just wanted to get more

> information about it.

>

> Thanks in advance.

>

> Meenakshi.

>

> __________________________________________________

>

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Guest guest

Knowing what I have learned from treating my child, I would if OCD is present

and behavioral issues are a problem.

Haleh

--- lisa lally <tsbbcrw@...> wrote:

> I'd like to know that as well..should we treat our kids as though they have

> a virus? Does it hurt to treat them as such?

>

>

> Ramesh Kannan <shivakannan@...> wrote:

> Hi all,

>

> We recently did an autism panel testing through

> Immunosciences lab. it shows that our son doesn't have

> the measeles virus. Apparently, the rubeola titer is

> normal. but, I understand from previous posts that

> there are other viral panels too which we haven't

> done. Would it be o.kay. to try a broad spectrum

> antiviral like Virastop, whether or not there are

> viral issues. I know that there are several parents in

> this list use antivirals for some issues. Is the

> antiviral like Virasop tailored to work on a

> particular viral issue? Just wanted to get more

> information about it.

>

> Thanks in advance.

>

> Meenakshi.

>

> __________________________________________________

>

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Guest guest

What tests do we do to check for viruses? We just did bloodwork for a CBC, CMP

and for thyroid. Is this another blood test through the doctor?

sashasrecovery <sashasrecovery@...> wrote: Our DAN! uses a medication

called Acyclovir to treat viral

infections when a child comes back with super high viral titers. My

son hasn't been on it but many people I know have used it with their

child. I know that a lot of AIDS patients uses it but then again

AIDS is a viral infection.

-Crystal

www.sashasrecovery.com

http://photos./sashasrecovery

> Hi all,

>

> We recently did an autism panel testing through

> Immunosciences lab. it shows that our son doesn't have

> the measeles virus. Apparently, the rubeola titer is

> normal. but, I understand from previous posts that

> there are other viral panels too which we haven't

> done. Would it be o.kay. to try a broad spectrum

> antiviral like Virastop, whether or not there are

> viral issues. I know that there are several parents in

> this list use antivirals for some issues. Is the

> antiviral like Virasop tailored to work on a

> particular viral issue? Just wanted to get more

> information about it.

>

> Thanks in advance.

>

> Meenakshi.

>

> __________________________________________________

>

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Guest guest

Meenakshi,

I started my son on a viral protocol without running viral titres

(or at least any that were of any use). It is obvious from his

reaction that he has viral issues. This, in spite of the fact that

he had almost none of the soft signs of viral problems (see viral

file for that information and other stuff you might find useful).

I also know there are people who have used a viral protocol in spite

of the complete viral titres tests showing no high numbers and ahve

had success.

I personally think that using natural antivirals, like Virastop, in

a way where you titrate up cautiously is something many parents of

ASD kids should try. The more I read about viruses and our kids

compromised immune systems, the more I believe that a good number

of our kids have these problems. I would also encourage you, if you

are considering a viral protocol, to be sure to use immune boosters,

perhaps even in advance to prepare for it.

As for Virastop, it will digest the protein sheath of any virus

which has one, so it is not formulated for only one particular virus.

I hope this helps,

Anita

>

> Hi all,

>

> We recently did an autism panel testing through

> Immunosciences lab. it shows that our son doesn't have

> the measeles virus. Apparently, the rubeola titer is

> normal. but, I understand from previous posts that

> there are other viral panels too which we haven't

> done. Would it be o.kay. to try a broad spectrum

> antiviral like Virastop, whether or not there are

> viral issues. I know that there are several parents in

> this list use antivirals for some issues. Is the

> antiviral like Virasop tailored to work on a

> particular viral issue? Just wanted to get more

> information about it.

>

> Thanks in advance.

>

> Meenakshi.

>

> __________________________________________________

>

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Guest guest

It is another blood test (or series of blood tests). Lots of people

use Immunosciences, but I had mine done through the hospital. We

tested for CMV, EBV, Herpes 1 and 2, HHV6, measles, rubella, and

probably some others that I can't think of. Hopefully others will

round out the list. You can get a good idea if you go to the

Immunosciences lab website and look at their test offerings. One

(the Premier Autism Panel (?)) was put together on Dr. McCandless'

request. To the extent this information is not 100% correct, I hope

someone will jump in. But it should be enough to get you started.

Anne

> > Hi all,

> >

> > We recently did an autism panel testing through

> > Immunosciences lab. it shows that our son doesn't have

> > the measeles virus. Apparently, the rubeola titer is

> > normal. but, I understand from previous posts that

> > there are other viral panels too which we haven't

> > done. Would it be o.kay. to try a broad spectrum

> > antiviral like Virastop, whether or not there are

> > viral issues. I know that there are several parents in

> > this list use antivirals for some issues. Is the

> > antiviral like Virasop tailored to work on a

> > particular viral issue? Just wanted to get more

> > information about it.

> >

> > Thanks in advance.

> >

> > Meenakshi.

> >

> > __________________________________________________

> >

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Guest guest

Vaccine titers for the MMR usually....

-Crystal

> > Hi all,

> >

> > We recently did an autism panel testing through

> > Immunosciences lab. it shows that our son doesn't have

> > the measeles virus. Apparently, the rubeola titer is

> > normal. but, I understand from previous posts that

> > there are other viral panels too which we haven't

> > done. Would it be o.kay. to try a broad spectrum

> > antiviral like Virastop, whether or not there are

> > viral issues. I know that there are several parents in

> > this list use antivirals for some issues. Is the

> > antiviral like Virasop tailored to work on a

> > particular viral issue? Just wanted to get more

> > information about it.

> >

> > Thanks in advance.

> >

> > Meenakshi.

> >

> > __________________________________________________

> >

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Guest guest

>>Would it be o.kay. to try a broad spectrum

> antiviral like Virastop, whether or not there are

> viral issues.

I have used olive leaf extract as a preventive, to keep away colds and

flu during the winter months. Also, Virastop would be benign, you

could give it even if there are no current virus issues.

>>Is the

> antiviral like Virasop tailored to work on a

> particular viral issue?

It would help eliminate most, if not all, virus issues, especially if

used in combination with another anti-viral, altho some people have

good success with Virastop alone.

Dana

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Guest guest

__

My understanding from those more knowledgeable than I (Dr. JM & Stan Kurtz)

is that Valtrex is much more effective than Acyclovir.

Our DAN! uses a medication called Acyclovir to treat viral

infections when a child comes back with super high viral titers. My

son hasn't been on it but many people I know have used it with their

child. I know that a lot of AIDS patients uses it but then again

AIDS is a viral infection.

-Crystal

www.sashasrecovery.com

http://photos./sashasrecovery

--

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.1.385 / Virus Database: 268.3.2/294 - Release Date: 3/27/2006

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Guest guest

The acyclovir really helped Ben when he broke out with shingles

around his neck three years after his chickenpox vaccine, and had

pneumonia at the same time. His speech articulation suddenly became

clear and age-appropriate afterwards as if the latent chickenpox

virus in his cranial nerves had been affecting him all that time.

Peace,

Kathy E.

On Mar 28, 2006, at 5:14 PM, & Elsass wrote:

>

>

> __

> My understanding from those more knowledgeable than I (Dr. JM &

> Stan Kurtz)

> is that Valtrex is much more effective than Acyclovir.

>

>

> Our DAN! uses a medication called Acyclovir to treat viral

> infections when a child comes back with super high viral titers. My

> son hasn't been on it but many people I know have used it with their

> child. I know that a lot of AIDS patients uses it but then again

> AIDS is a viral infection.

>

> -Crystal

> www.sashasrecovery.com

> http://photos./sashasrecovery

>

>

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.1.385 / Virus Database: 268.3.2/294 - Release Date:

> 3/27/2006

>

>

>

>

>

>

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  • 1 year later...

>

> A friend just told me it was recommended that she use OLE only 30

> days then switch to OoO. Anyone know why this would be recommended?

> And, are capsules as effective as (yucky tasting!) drops?

I used OLE for over 2 years, along with other anti-virals, to address

viruses for my kids. I used capsules.

Dana

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  • 2 years later...
Guest guest

We are on our 3rd antiviral Famvir then acyclovir now starting on valtrex

tomorrow.

My grandson has had terrible time with eye sincitivity

to light. Dr. Goldberb says this is due to viruses.

He doesn`t want to go outside(swim) one of his favorite things to do. Will turn

off his TV constantly covering his eyes. He also has major auditory problems

constantly covering his ears.

Has anyone have this with their child? What antiviral worked for your child?

We were hoping & praying the acyclovir would be the one to work. He is also on

immunivor(no breaks).

Dr. says to target diet. The only thing to rid is Vans waffles & take out

pizza. We are constantly watching his diet.

Searching appreciate any replies.

Thanks

Carole

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Guest guest

My girl is been on the 3 antivirals two times each. Dr. G change them if the

virus keeps the same.

In my case it began coming down the 2nd time of Famvir (1:160), and this second

time she was with immunovir too.

Note that she was on Immunovir for 8 months before.

Not necesarily will keep down then, it returns to 1:320 after while.For my girl

is not so easy to fight HHV6, she got Rosseolla when she was 2 moths age, so i

guess her immune system got used to this virus.

The third time in Famvir he increased the dose, i really scared this time with

the die off.

Does any other have a similar experience?

>

> We are on our 3rd antiviral Famvir then acyclovir now starting on valtrex

tomorrow.

> My grandson has had terrible time with eye sincitivity

> to light. Dr. Goldberb says this is due to viruses.

> He doesn`t want to go outside(swim) one of his favorite things to do. Will

turn off his TV constantly covering his eyes. He also has major auditory

problems constantly covering his ears.

> Has anyone have this with their child? What antiviral worked for your child?

> We were hoping & praying the acyclovir would be the one to work. He is also on

immunivor(no breaks).

> Dr. says to target diet. The only thing to rid is Vans waffles & take out

pizza. We are constantly watching his diet.

> Searching appreciate any replies.

> Thanks

> Carole

>

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Guest guest

Hi,

wanted to find out which auditory integration therapy worked for your child.

thanks

sunira

From: cotter.mary1@...

Date: Sat, 7 Aug 2010 09:18:12 +0100

Subject: Re: Antivirals

Did the sensitivity to light and sound sensitivity start since on anti

viral . If not check out irlen lenses makers a hugh difference to

light sensitivity. Auditory integration therapy helped big time with

sound sensuitivy our son constantly had hands over ears for certain

sounds. We still deal with viral issue but light and sound sensitivity

really decreased with other treatments. Irlen website gives you

checklist worth looking into

On 8/7/10, chocolatiluv <chocolatiluv@...> wrote:

> We are on our 3rd antiviral Famvir then acyclovir now starting on valtrex

> tomorrow.

> My grandson has had terrible time with eye sincitivity

> to light. Dr. Goldberb says this is due to viruses.

> He doesn`t want to go outside(swim) one of his favorite things to do. Will

> turn off his TV constantly covering his eyes. He also has major auditory

> problems constantly covering his ears.

> Has anyone have this with their child? What antiviral worked for your child?

> We were hoping & praying the acyclovir would be the one to work. He is also

> on immunivor(no breaks).

> Dr. says to target diet. The only thing to rid is Vans waffles & take out

> pizza. We are constantly watching his diet.

> Searching appreciate any replies.

> Thanks

> Carole

>

>

--

Cotter

5 Pollerton Manor

Carlow

059 9134964

087 2637921

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  • 1 month later...

When I was tested for viruses, these came up: Herpes1, 6, EBV and parvo.

My fibro doctor, Dr. Dantini, from Florida does phone consults

and works with your regular physician. Check him out on the internet. I

sent blood to labs and he prescirbed Valtrex or acyclovir (generic) and

I was on it for a year. It really helped lower my levels. I took 1 mg 3

times daily with Zantac to buffer the stomach. It really helps. Whenever

I feel a virus overload (my throat glands get sore and swollen) I take

1-2 gm per day for a couple of days and I'm good to go again.

in La Selva Beach CA

On 9/19/2010 10:19 AM, sb2boys wrote:

>

> I have Herpes I and II, Epstein Barr and CMV. I've never been tested

> for HHV-6. Which antiviral is best for helping these?

>

> Thank you! :)

>

> Sue

>

>

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