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Re: Austim according Stop Calling It Autism! (SCIA)

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Posted
Posted

I would love to hear what Dr G's comments are on this as well.

Austim according Stop Calling It Autism! (SCIA)

Hello all,

Below is a link to a new page just created at the Stop Calling It Autism!

website. It describes the science SCIA believes in and helps explain most of the

medical, cognitive and behavioral problems that children with autism suffer

from. This is the same science that helped my son improve from a severely

autistic child to a child that is doing as well as any child that never suffered

from autism. is doing so well that we were able to take him off many of

the medications he was taking including Tenex, Paxil and Diflucan. How did we do

that? By inhibiting microglial activation as suggested as a possible treatment

for mental illnesses by the Nobel Prize-winning University of Utah geneticist

Capecchi in his recent study.

Nobel winner ties mental illness to immune defect

http://tinyurl.com/373k5mr

It doesn't matter if you treat the infections that activated the microglial

cells in the first place; the microglial cells will remain active for years

after the infections have been treated. That is the reason of why many children

that are being treated for infections don't improve like doctors and the parents

expect.

Many people ask me how I was able to inhibit my son 's microglial

activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs. Many

research studies have proposed the use of NSAIDs as a possible treatment to

target the microglia. The problem is that currently, there are no doctors that

will risk prescribing the dose that needs to be given for it to be able to

inhibit the microglial activation. That is why I decided to form Stop Calling It

Autism! If we can provide large amounts of evidence that children with autism

suffer from immune system dysfunction and microglial activation maybe we could

expedite the development of medications that can target the microglia and be

safe at the same time.

Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

Microglial Functions

http://www.mdpi.com/1424-8247/3/6/1949/pdf

SCIA is working very hard and it is in the final medical approval stage for a

nationwide medical disease registry that will provide evidence that children

with autism suffer from immune system dysfunction and microglial activation.

Autism according to SCIA

http://www.stopcallingitautism.org/autism.html

Regards,

Stop Calling It Autism!

http://www.stopcallingitautism.org

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Posted
Posted

,

How did you know about Glial activation? Are there biomarkers for it?

Thanks,

Kay

________________________________

From: <jrodrig6605@...>

Sent: Tue, December 28, 2010 9:20:21 PM

Subject: Austim according Stop Calling It Autism! (SCIA)

Hello all,

Below is a link to a new page just created at the Stop Calling It Autism!

website. It describes the science SCIA believes in and helps explain most of

the medical, cognitive and behavioral problems that children with autism suffer

from. This is the same science that helped my son improve from a

severely autistic child to a child that is doing as well as any child that never

suffered from autism. is doing so well that we were able to take him off

many of the medications he was taking including Tenex, Paxil and Diflucan. How

did we do that? By inhibiting microglial activation as suggested as a possible

treatment for mental illnesses by the Nobel Prize-winning University of Utah

geneticist Capecchi in his recent study.

Nobel winner ties mental illness to immune defect

http://tinyurl.com/373k5mr

It doesn't matter if you treat the infections that activated the microglial

cells in the first place; the microglial cells will remain active for years

after the infections have been treated. That is the reason of why many children

that are being treated for infections don't improve like doctors and the parents

expect.

Many people ask me how I was able to inhibit my son 's microglial

activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs. Many

research studies have proposed the use of NSAIDs as a possible treatment to

target the microglia. The problem is that currently, there are no doctors that

will risk prescribing the dose that needs to be given for it to be able to

inhibit the microglial activation. That is why I decided to form Stop Calling

It Autism! If we can provide large amounts of evidence that children with

autism suffer from immune system dysfunction and microglial activation maybe we

could expedite the development of medications that can target the microglia and

be safe at the same time.

Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

Microglial Functions

http://www.mdpi.com/1424-8247/3/6/1949/pdf

SCIA is working very hard and it is in the final medical approval stage for a

nationwide medical disease registry that will provide evidence that children

with autism suffer from immune system dysfunction and microglial activation.

Autism according to SCIA

http://www.stopcallingitautism.org/autism.html

Regards,

Stop Calling It Autism!

http://www.stopcallingitautism.org

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Posted
Posted

Kay,

I learned about the microglial activation by doing medical research and by

coincidence as well. There are biomarkers for it, SCIA is working with

researchers around the globe to put together a lab test panel that will test for

immune system dysfunction and microglial activation. The lab test panel will be

available as part of the medical study we want parents nationwide to enroll

their children in.

Once the medical study is launched, parents will be able to learn everything

about it at the SCIA's website. They will also be able to enroll their children

at the SCIA's website using a computer system that we are building that will

help parents and SCIA manage the study participants and the study data

electronically.

Regards,

Stop Calling It Autism!

http://www.stopcallingitautism.org

>

> ,

> How did you know about Glial activation? Are there biomarkers for it?

>

> Thanks,

> Kay

>

>

>

> ________________________________

> From: <jrodrig6605@...>

>

> Sent: Tue, December 28, 2010 9:20:21 PM

> Subject: Austim according Stop Calling It Autism! (SCIA)

>

>

> Hello all,

> Below is a link to a new page just created at the Stop Calling It Autism!

> website. It describes the science SCIA believes in and helps explain most of

> the medical, cognitive and behavioral problems that children with autism

suffer

> from. This is the same science that helped my son improve from a

> severely autistic child to a child that is doing as well as any child that

never

> suffered from autism. is doing so well that we were able to take him

off

> many of the medications he was taking including Tenex, Paxil and Diflucan.

How

> did we do that? By inhibiting microglial activation as suggested as a

possible

> treatment for mental illnesses by the Nobel Prize-winning University of Utah

> geneticist Capecchi in his recent study.

>

>

> Nobel winner ties mental illness to immune defect

> http://tinyurl.com/373k5mr

>

> It doesn't matter if you treat the infections that activated the microglial

> cells in the first place; the microglial cells will remain active for years

> after the infections have been treated. That is the reason of why many

children

> that are being treated for infections don't improve like doctors and the

parents

> expect.

>

> Many people ask me how I was able to inhibit my son 's microglial

> activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs. Many

> research studies have proposed the use of NSAIDs as a possible treatment to

> target the microglia. The problem is that currently, there are no doctors

that

> will risk prescribing the dose that needs to be given for it to be able to

> inhibit the microglial activation. That is why I decided to form Stop Calling

> It Autism! If we can provide large amounts of evidence that children with

> autism suffer from immune system dysfunction and microglial activation maybe

we

> could expedite the development of medications that can target the microglia

and

> be safe at the same time.

>

> Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

> Microglial Functions

> http://www.mdpi.com/1424-8247/3/6/1949/pdf

>

> SCIA is working very hard and it is in the final medical approval stage for a

> nationwide medical disease registry that will provide evidence that children

> with autism suffer from immune system dysfunction and microglial activation.

>

>

> Autism according to SCIA

> http://www.stopcallingitautism.org/autism.html

>

> Regards,

>

> Stop Calling It Autism!

> http://www.stopcallingitautism.org

>

>

>

>

>

>

>

>

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,

I respectfully but completely disagree with telling parents to do a high dose of

NSAIDS (especially if many of them have gut issues) when you are not their

doctor. The reason why alleviating these co-infections isnt deactivating the

microglia is because not all triggers are being addressed. For example, if a

child has allergies, chemical sensitivities, microbial translocation, and

especially a retrovirus (ie XMRV?) These children need these issues treated.

NSAIDS are an adjunct therapy, not a principal one. We need to find out what

infections and inflammatory triggers are happening in our children. NSAIDS are a

short=term help, they are not long term drugs.

-Jen

> >

> > ,

> > How did you know about Glial activation? Are there biomarkers for it?

> >

> > Thanks,

> > Kay

> >

> >

> >

> > ________________________________

> > From: <jrodrig6605@>

> >

> > Sent: Tue, December 28, 2010 9:20:21 PM

> > Subject: Austim according Stop Calling It Autism! (SCIA)

> >

> >

> > Hello all,

> > Below is a link to a new page just created at the Stop Calling It Autism!

> > website. It describes the science SCIA believes in and helps explain most

of

> > the medical, cognitive and behavioral problems that children with autism

suffer

> > from. This is the same science that helped my son improve from a

> > severely autistic child to a child that is doing as well as any child that

never

> > suffered from autism. is doing so well that we were able to take him

off

> > many of the medications he was taking including Tenex, Paxil and Diflucan.

How

> > did we do that? By inhibiting microglial activation as suggested as a

possible

> > treatment for mental illnesses by the Nobel Prize-winning University of Utah

> > geneticist Capecchi in his recent study.

> >

> >

> > Nobel winner ties mental illness to immune defect

> > http://tinyurl.com/373k5mr

> >

> > It doesn't matter if you treat the infections that activated the microglial

> > cells in the first place; the microglial cells will remain active for years

> > after the infections have been treated. That is the reason of why many

children

> > that are being treated for infections don't improve like doctors and the

parents

> > expect.

> >

> > Many people ask me how I was able to inhibit my son 's microglial

> > activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs. Many

> > research studies have proposed the use of NSAIDs as a possible treatment to

> > target the microglia. The problem is that currently, there are no doctors

that

> > will risk prescribing the dose that needs to be given for it to be able to

> > inhibit the microglial activation. That is why I decided to form Stop

Calling

> > It Autism! If we can provide large amounts of evidence that children with

> > autism suffer from immune system dysfunction and microglial activation maybe

we

> > could expedite the development of medications that can target the microglia

and

> > be safe at the same time.

> >

> > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

> > Microglial Functions

> > http://www.mdpi.com/1424-8247/3/6/1949/pdf

> >

> > SCIA is working very hard and it is in the final medical approval stage for

a

> > nationwide medical disease registry that will provide evidence that children

> > with autism suffer from immune system dysfunction and microglial activation.

> >

> >

> > Autism according to SCIA

> > http://www.stopcallingitautism.org/autism.html

> >

> > Regards,

> >

> > Stop Calling It Autism!

> > http://www.stopcallingitautism.org

> >

> >

> >

> >

> >

> >

> >

> >

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Posted
Posted

, how did you get to the right dose of the drug needed to inhibit the

microglial activation and how did you know what drugs to use?

Thanks for sharing

 

Karla

From: <jrodrig6605@...>

Subject: Austim according Stop Calling It Autism! (SCIA)

Date: Tuesday, December 28, 2010, 9:20 PM

 

Hello all,

Below is a link to a new page just created at the Stop Calling It Autism!

website. It describes the science SCIA believes in and helps explain most of the

medical, cognitive and behavioral problems that children with autism suffer

from. This is the same science that helped my son improve from a severely

autistic child to a child that is doing as well as any child that never suffered

from autism. is doing so well that we were able to take him off many of

the medications he was taking including Tenex, Paxil and Diflucan. How did we do

that? By inhibiting microglial activation as suggested as a possible treatment

for mental illnesses by the Nobel Prize-winning University of Utah geneticist

Capecchi in his recent study.

Nobel winner ties mental illness to immune defect

http://tinyurl.com/373k5mr

It doesn't matter if you treat the infections that activated the microglial

cells in the first place; the microglial cells will remain active for years

after the infections have been treated. That is the reason of why many children

that are being treated for infections don't improve like doctors and the parents

expect.

Many people ask me how I was able to inhibit my son 's microglial

activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs. Many

research studies have proposed the use of NSAIDs as a possible treatment to

target the microglia. The problem is that currently, there are no doctors that

will risk prescribing the dose that needs to be given for it to be able to

inhibit the microglial activation. That is why I decided to form Stop Calling It

Autism! If we can provide large amounts of evidence that children with autism

suffer from immune system dysfunction and microglial activation maybe we could

expedite the development of medications that can target the microglia and be

safe at the same time.

Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

Microglial Functions

http://www.mdpi.com/1424-8247/3/6/1949/pdf

SCIA is working very hard and it is in the final medical approval stage for a

nationwide medical disease registry that will provide evidence that children

with autism suffer from immune system dysfunction and microglial activation.

Autism according to SCIA

http://www.stopcallingitautism.org/autism.html

Regards,

Stop Calling It Autism!

http://www.stopcallingitautism.org

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Hi Karla,

Back in 2007, when my son's autistic symptoms were very severe, he developed a

chronic bacterial and viral infection that kept him with a high fever for 7 days

straight. During that time, the only way I was able to keep his fever down was

with children's Motrin. The interesting thing was that during that time, even

though he was extremely sick that he could talk a few more words than usual and

that he was a little bit more alert. I had no idea at the time what was

happening. didn't eat anything during the time he was sick. After the

6th day of me giving the Motrin three times per day, he started developing

stomach pain. We took him to the doctor and the doctor said he was ok. At the

7th day he was grabbing his stomach in pain and he started coughing blood clots

the size a bit smaller to coffee grains. At that time I took him to the

emergency room. He was hospitalized for two days. The doctors told me that the

reason of why he develop the stomach pain and bleeding was because the

Children's Motrin was administered with empty stomach and it caused stomach

bleeding. They also told me that Motrin was a non steroidal anti-inflammatory

drug.

Once he got better I took him to Dr. Uszler in California for a scheduled brain

SPECT scan. Dr. Uszler told me that suffered from neuroinflammation.

Once Dr. Uszler said that a bulb in my brain lighted up and I was able to

recognize the relationship between the NSAIDs and neuroinflammation. That is

what sparked my medical research.

Now, how did I find out the right dose? That is a very good question and still

today I feel that there was Divine Intervention involved in all this. I read a

medical study in which they were researching the effects of NSAIDs on

inflammation. I read the article wrong and gave a dose different to the one in

the article. That mistake was the best mistake I have made in my life. Any

dose, other than the one I gave my son and it would not have worked.

Everything else that the pediatrician and the two immunologists were doing for

my son was right, but what they were missing was treating the microglial

activation which the NSAIDs helped with.

Regards,

>

> , how did you get to the right dose of the drug needed to inhibit the

microglial activation and how did you know what drugs to use?

>

> Thanks for sharing

>  

> Karla

>

>

>

> From: <jrodrig6605@...>

> Subject: Austim according Stop Calling It Autism! (SCIA)

>

> Date: Tuesday, December 28, 2010, 9:20 PM

>

>

>  

>

>

>

> Hello all,

> Below is a link to a new page just created at the Stop Calling It Autism!

website. It describes the science SCIA believes in and helps explain most of the

medical, cognitive and behavioral problems that children with autism suffer

from. This is the same science that helped my son improve from a severely

autistic child to a child that is doing as well as any child that never suffered

from autism. is doing so well that we were able to take him off many of

the medications he was taking including Tenex, Paxil and Diflucan. How did we do

that? By inhibiting microglial activation as suggested as a possible treatment

for mental illnesses by the Nobel Prize-winning University of Utah geneticist

Capecchi in his recent study.

>

> Nobel winner ties mental illness to immune defect

> http://tinyurl.com/373k5mr

>

> It doesn't matter if you treat the infections that activated the microglial

cells in the first place; the microglial cells will remain active for years

after the infections have been treated. That is the reason of why many children

that are being treated for infections don't improve like doctors and the parents

expect.

>

> Many people ask me how I was able to inhibit my son 's microglial

activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs. Many

research studies have proposed the use of NSAIDs as a possible treatment to

target the microglia. The problem is that currently, there are no doctors that

will risk prescribing the dose that needs to be given for it to be able to

inhibit the microglial activation. That is why I decided to form Stop Calling It

Autism! If we can provide large amounts of evidence that children with autism

suffer from immune system dysfunction and microglial activation maybe we could

expedite the development of medications that can target the microglia and be

safe at the same time.

>

> Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

Microglial Functions

> http://www.mdpi.com/1424-8247/3/6/1949/pdf

>

> SCIA is working very hard and it is in the final medical approval stage for a

nationwide medical disease registry that will provide evidence that children

with autism suffer from immune system dysfunction and microglial activation.

>

> Autism according to SCIA

> http://www.stopcallingitautism.org/autism.html

>

> Regards,

>

> Stop Calling It Autism!

> http://www.stopcallingitautism.org

>

>

>

>

>

>

>

>

>

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Posted
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Dr. Goldberg is completely opposed to the use of NSAIDs the way I did it with my

son. I had to combine Dr. Goldberg's and other two immunologists treatments

with my own which was the NSAIDs. The other immunologists were making sure that

was doing ok even though they refused to prescribe the Ibuprofen.

Thanks,

>

> Does Dr. Goldberg use these non-steroidal anti- inflammatory drugs or did you

have to combine his treatment with your own?

> Thank you,

> Colleen

>

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Posted
Posted

Dr. G has never prescribed or recommended NSAIDS for anything except as a short

term remedy for fever and pain; knowing him as well as I do, I can't imagine

that he would prescribe them for any kind of long-term therapy in children. The

side-effects of long-term use of NSAIDS (gastro-intestinal bleeding, etc.) are

well known.

I would also be interested in his comments on this.

Donna

>

> Does Dr. Goldberg use these non-steroidal anti- inflammatory drugs or did you

have to combine his treatment with your own?

> Thank you,

> Colleen

>

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Posted
Posted

Often we have to take the best of the protocols we beleive in to help our kids.

I'm assuming your immunologists are not local.

> >

> > Does Dr. Goldberg use these non-steroidal anti- inflammatory drugs or did

you have to combine his treatment with your own?

> > Thank you,

> > Colleen

> >

>

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I agree with Jen, treating one piece of a multitude of problems is not going to

stop the problem. You have to look at the source not the result.

Kathy on

Austim according Stop Calling It Autism! (SCIA)

> >

> >

> > Hello all,

> > Below is a link to a new page just created at the Stop Calling It Autism!

> > website. It describes the science SCIA believes in and helps explain most of

> > the medical, cognitive and behavioral problems that children with autism

suffer

> > from. This is the same science that helped my son improve from a

> > severely autistic child to a child that is doing as well as any child that

never

> > suffered from autism. is doing so well that we were able to take him

off

> > many of the medications he was taking including Tenex, Paxil and Diflucan.

How

> > did we do that? By inhibiting microglial activation as suggested as a

possible

> > treatment for mental illnesses by the Nobel Prize-winning University of Utah

> > geneticist Capecchi in his recent study.

> >

> >

> > Nobel winner ties mental illness to immune defect

> > http://tinyurl.com/373k5mr

> >

> > It doesn't matter if you treat the infections that activated the microglial

> > cells in the first place; the microglial cells will remain active for years

> > after the infections have been treated. That is the reason of why many

children

> > that are being treated for infections don't improve like doctors and the

parents

> > expect.

> >

> > Many people ask me how I was able to inhibit my son 's microglial

> > activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs. Many

> > research studies have proposed the use of NSAIDs as a possible treatment to

> > target the microglia. The problem is that currently, there are no doctors

that

> > will risk prescribing the dose that needs to be given for it to be able to

> > inhibit the microglial activation. That is why I decided to form Stop

Calling

> > It Autism! If we can provide large amounts of evidence that children with

> > autism suffer from immune system dysfunction and microglial activation maybe

we

> > could expedite the development of medications that can target the microglia

and

> > be safe at the same time.

> >

> > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

> > Microglial Functions

> > http://www.mdpi.com/1424-8247/3/6/1949/pdf

> >

> > SCIA is working very hard and it is in the final medical approval stage for

a

> > nationwide medical disease registry that will provide evidence that children

> > with autism suffer from immune system dysfunction and microglial activation.

> >

> >

> > Autism according to SCIA

> > http://www.stopcallingitautism.org/autism.html

> >

> > Regards,

> >

> > Stop Calling It Autism!

> > http://www.stopcallingitautism.org

> >

> >

> >

> >

> >

> >

> >

> >

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I do more than agree. I believe that recommending unapproved over dosage and off

label over the counter medications is extremely irresponsible. Just because you

put your child at risk does not allow you to recommend that other children that

may or may not suffer from similar issues can survive this. We all understand

that each and every child is affected by Autism differently and what worked for

you may well kill another child. You openly admit your use of Ibuprofen

hospitalized your son, What were ypu thinking and how do you qualify it had a

positive effect over everything else that was happening!

You should put away you ego and stop tauting a none existent medical degree when

you have no clue as to who is reading your posts or what you are recommending

will do to their kid!

________________________________

From: " JOSKAT95@... " <JOSKAT95@...>

Sent: Thu, December 30, 2010 3:10:21 PM

Subject: Re: Re: Austim according Stop Calling It Autism! (SCIA)

I agree with Jen, treating one piece of a multitude of problems is not going to

stop the problem. You have to look at the source not the result.

Kathy on

Austim according Stop Calling It Autism! (SCIA)

> >

> >

> > Hello all,

> > Below is a link to a new page just created at the Stop Calling It Autism!

> > website. It describes the science SCIA believes in and helps explain most of

> > the medical, cognitive and behavioral problems that children with autism

>suffer

>

> > from. This is the same science that helped my son improve from a

> > severely autistic child to a child that is doing as well as any child that

>never

>

> > suffered from autism. is doing so well that we were able to take him

>off

>

> > many of the medications he was taking including Tenex, Paxil and Diflucan.

>How

>

> > did we do that? By inhibiting microglial activation as suggested as a

>possible

>

> > treatment for mental illnesses by the Nobel Prize-winning University of Utah

> > geneticist Capecchi in his recent study.

> >

> >

> > Nobel winner ties mental illness to immune defect

> > http://tinyurl.com/373k5mr

> >

> > It doesn't matter if you treat the infections that activated the microglial

> > cells in the first place; the microglial cells will remain active for years

> > after the infections have been treated. That is the reason of why many

>children

>

> > that are being treated for infections don't improve like doctors and the

>parents

>

> > expect.

> >

> > Many people ask me how I was able to inhibit my son 's microglial

> > activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs. Many

> > research studies have proposed the use of NSAIDs as a possible treatment to

> > target the microglia. The problem is that currently, there are no doctors

>that

>

> > will risk prescribing the dose that needs to be given for it to be able to

> > inhibit the microglial activation. That is why I decided to form Stop

Calling

>

> > It Autism! If we can provide large amounts of evidence that children with

> > autism suffer from immune system dysfunction and microglial activation maybe

>we

>

> > could expedite the development of medications that can target the microglia

>and

>

> > be safe at the same time.

> >

> > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

> > Microglial Functions

> > http://www.mdpi.com/1424-8247/3/6/1949/pdf

> >

> > SCIA is working very hard and it is in the final medical approval stage for

a

>

> > nationwide medical disease registry that will provide evidence that children

> > with autism suffer from immune system dysfunction and microglial activation.

> >

> >

> > Autism according to SCIA

> > http://www.stopcallingitautism.org/autism.html

> >

> > Regards,

> >

> > Stop Calling It Autism!

> > http://www.stopcallingitautism.org

> >

> >

> >

> >

> >

> >

> >

> >

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When I read the post I did not feel like was recommending NSAIDS, I just

read it as it had helped his son.

> > >

> > > ,

> > > How did you know about Glial activation? Are there biomarkers for it?

> > >

> > > Thanks,

> > > Kay

> > >

> > >

> > >

> > > ________________________________

> > > From: <jrodrig6605@>

> > >

> > > Sent: Tue, December 28, 2010 9:20:21 PM

> > > Subject: Austim according Stop Calling It Autism! (SCIA)

> > >

> > >

> > > Hello all,

> > > Below is a link to a new page just created at the Stop Calling It Autism!

> > > website. It describes the science SCIA believes in and helps explain most

of

> > > the medical, cognitive and behavioral problems that children with autism

suffer

> > > from. This is the same science that helped my son improve from a

> > > severely autistic child to a child that is doing as well as any child that

never

> > > suffered from autism. is doing so well that we were able to take

him off

> > > many of the medications he was taking including Tenex, Paxil and Diflucan.

How

> > > did we do that? By inhibiting microglial activation as suggested as a

possible

> > > treatment for mental illnesses by the Nobel Prize-winning University of

Utah

> > > geneticist Capecchi in his recent study.

> > >

> > >

> > > Nobel winner ties mental illness to immune defect

> > > http://tinyurl.com/373k5mr

> > >

> > > It doesn't matter if you treat the infections that activated the

microglial

> > > cells in the first place; the microglial cells will remain active for

years

> > > after the infections have been treated. That is the reason of why many

children

> > > that are being treated for infections don't improve like doctors and the

parents

> > > expect.

> > >

> > > Many people ask me how I was able to inhibit my son 's microglial

> > > activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs.

Many

> > > research studies have proposed the use of NSAIDs as a possible treatment

to

> > > target the microglia. The problem is that currently, there are no doctors

that

> > > will risk prescribing the dose that needs to be given for it to be able to

> > > inhibit the microglial activation. That is why I decided to form Stop

Calling

> > > It Autism! If we can provide large amounts of evidence that children with

> > > autism suffer from immune system dysfunction and microglial activation

maybe we

> > > could expedite the development of medications that can target the

microglia and

> > > be safe at the same time.

> > >

> > > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

> > > Microglial Functions

> > > http://www.mdpi.com/1424-8247/3/6/1949/pdf

> > >

> > > SCIA is working very hard and it is in the final medical approval stage

for a

> > > nationwide medical disease registry that will provide evidence that

children

> > > with autism suffer from immune system dysfunction and microglial

activation.

> > >

> > >

> > > Autism according to SCIA

> > > http://www.stopcallingitautism.org/autism.html

> > >

> > > Regards,

> > >

> > > Stop Calling It Autism!

> > > http://www.stopcallingitautism.org

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Posted
Posted

Kathy,

Read the following webpage that SCIA put together and remember that you read it

from SCIA first.

Autism according to SCIA

http://www.stopcallingitautism.org/autism.html

You are missing a very important point in your practice if you don't target the

microglia in your patients with autism. Parents and their children deserve

better and that is what SCIA will continue to provide them. Did you know that

the microglial cells stay activated for years after antiviral treatment? If you

didn't, you heard it from SCIA first. If you did, can you tell the parents and

everybody in this list what you are doing to address the problem?

The article in the " According To SCIA " webpage is based on research made by

renowned researchers including the Nobel Prize Winning Capecchi and the

s Hopkins School of Medicine. Articles like these ones and the many to come

will help health care professionals that have autism practices like yours help

their patients better. It will also help parents find the answers they have

been looking for.

Happy Holidays,

Stop Calling It Autism!

> > >

> > > ,

> > > How did you know about Glial activation? Are there biomarkers for it?

> > >

> > > Thanks,

> > > Kay

> > >

> > >

> > >

> > > ________________________________

> > > From: <jrodrig6605@>

> > >

> > > Sent: Tue, December 28, 2010 9:20:21 PM

> > > Subject: Austim according Stop Calling It Autism! (SCIA)

> > >

> > >

> > > Hello all,

> > > Below is a link to a new page just created at the Stop Calling It Autism!

> > > website. It describes the science SCIA believes in and helps explain most

of

> > > the medical, cognitive and behavioral problems that children with autism

suffer

> > > from. This is the same science that helped my son improve from a

> > > severely autistic child to a child that is doing as well as any child that

never

> > > suffered from autism. is doing so well that we were able to take

him off

> > > many of the medications he was taking including Tenex, Paxil and Diflucan.

How

> > > did we do that? By inhibiting microglial activation as suggested as a

possible

> > > treatment for mental illnesses by the Nobel Prize-winning University of

Utah

> > > geneticist Capecchi in his recent study.

> > >

> > >

> > > Nobel winner ties mental illness to immune defect

> > > http://tinyurl.com/373k5mr

> > >

> > > It doesn't matter if you treat the infections that activated the

microglial

> > > cells in the first place; the microglial cells will remain active for

years

> > > after the infections have been treated. That is the reason of why many

children

> > > that are being treated for infections don't improve like doctors and the

parents

> > > expect.

> > >

> > > Many people ask me how I was able to inhibit my son 's microglial

> > > activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs. Many

> > > research studies have proposed the use of NSAIDs as a possible treatment

to

> > > target the microglia. The problem is that currently, there are no doctors

that

> > > will risk prescribing the dose that needs to be given for it to be able to

> > > inhibit the microglial activation. That is why I decided to form Stop

Calling

> > > It Autism! If we can provide large amounts of evidence that children with

> > > autism suffer from immune system dysfunction and microglial activation

maybe we

> > > could expedite the development of medications that can target the

microglia and

> > > be safe at the same time.

> > >

> > > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

> > > Microglial Functions

> > > http://www.mdpi.com/1424-8247/3/6/1949/pdf

> > >

> > > SCIA is working very hard and it is in the final medical approval stage

for a

> > > nationwide medical disease registry that will provide evidence that

children

> > > with autism suffer from immune system dysfunction and microglial

activation.

> > >

> > >

> > > Autism according to SCIA

> > > http://www.stopcallingitautism.org/autism.html

> > >

> > > Regards,

> > >

> > > Stop Calling It Autism!

> > > http://www.stopcallingitautism.org

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Posted
Posted

I agree with . I don't feel like was recommending anything. I read

his email as what HE did to help his child get better. That is what these

groups are for. For sharing ideas and being there for one another.

-

Sent on the Sprint® Now Network from my BlackBerry®

Austim according Stop Calling It Autism! (SCIA)

> > >

> > >

> > > Hello all,

> > > Below is a link to a new page just created at the Stop Calling It Autism!

> > > website. It describes the science SCIA believes in and helps explain most

of

> > > the medical, cognitive and behavioral problems that children with autism

suffer

> > > from. This is the same science that helped my son improve from a

> > > severely autistic child to a child that is doing as well as any child that

never

> > > suffered from autism. is doing so well that we were able to take

him off

> > > many of the medications he was taking including Tenex, Paxil and Diflucan.

How

> > > did we do that? By inhibiting microglial activation as suggested as a

possible

> > > treatment for mental illnesses by the Nobel Prize-winning University of

Utah

> > > geneticist Capecchi in his recent study.

> > >

> > >

> > > Nobel winner ties mental illness to immune defect

> > > http://tinyurl.com/373k5mr

> > >

> > > It doesn't matter if you treat the infections that activated the

microglial

> > > cells in the first place; the microglial cells will remain active for

years

> > > after the infections have been treated. That is the reason of why many

children

> > > that are being treated for infections don't improve like doctors and the

parents

> > > expect.

> > >

> > > Many people ask me how I was able to inhibit my son 's microglial

> > > activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs.

Many

> > > research studies have proposed the use of NSAIDs as a possible treatment

to

> > > target the microglia. The problem is that currently, there are no doctors

that

> > > will risk prescribing the dose that needs to be given for it to be able to

> > > inhibit the microglial activation. That is why I decided to form Stop

Calling

> > > It Autism! If we can provide large amounts of evidence that children with

> > > autism suffer from immune system dysfunction and microglial activation

maybe we

> > > could expedite the development of medications that can target the

microglia and

> > > be safe at the same time.

> > >

> > > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

> > > Microglial Functions

> > > http://www.mdpi.com/1424-8247/3/6/1949/pdf

> > >

> > > SCIA is working very hard and it is in the final medical approval stage

for a

> > > nationwide medical disease registry that will provide evidence that

children

> > > with autism suffer from immune system dysfunction and microglial

activation.

> > >

> > >

> > > Autism according to SCIA

> > > http://www.stopcallingitautism.org/autism.html

> > >

> > > Regards,

> > >

> > > Stop Calling It Autism!

> > > http://www.stopcallingitautism.org

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Posted
Posted

I disagree, . This is a list for discussing treatments and

parents who are sincerely wanting to learn about would be greatly confused

by 's posts about seeing Dr Goldberg and yet going against his

recommendations. There are plenty of other lists to discuss other modes of

treatments.

Respectfully,

Jen

> > > >

> > > > ,

> > > > How did you know about Glial activation? Are there biomarkers for it?

> > > >

> > > > Thanks,

> > > > Kay

> > > >

> > > >

> > > >

> > > >________________________________

> > > > From: <jrodrig6605@>

> > > >

> > > > Sent: Tue, December 28, 2010 9:20:21 PM

> > > > Subject: Austim according Stop Calling It Autism! (SCIA)

> > > >

> > > >

> > > > Hello all,

> > > > Below is a link to a new page just created at the Stop Calling It

Autism!

> > > > website. It describes the science SCIA believes in and helps explain

most of

> > > > the medical, cognitive and behavioral problems that children with autism

suffer

> > > > from. This is the same science that helped my son improve from a

> > > > severely autistic child to a child that is doing as well as any child

that never

> > > > suffered from autism. is doing so well that we were able to take

him off

> > > > many of the medications he was taking including Tenex, Paxil and

Diflucan. How

> > > > did we do that? By inhibiting microglial activation as suggested as a

possible

> > > > treatment for mental illnesses by the Nobel Prize-winning University of

Utah

> > > > geneticist Capecchi in his recent study.

> > > >

> > > >

> > > > Nobel winner ties mental illness to immune defect

> > > > http://tinyurl.com/373k5mr

> > > >

> > > > It doesn't matter if you treat the infections that activated the

microglial

> > > > cells in the first place; the microglial cells will remain active for

years

> > > > after the infections have been treated. That is the reason of why many

children

> > > > that are being treated for infections don't improve like doctors and the

parents

> > > > expect.

> > > >

> > > > Many people ask me how I was able to inhibit my son 's microglial

> > > > activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs.

Many

> > > > research studies have proposed the use of NSAIDs as a possible treatment

to

> > > > target the microglia. The problem is that currently, there are no

doctors that

> > > > will risk prescribing the dose that needs to be given for it to be able

to

> > > > inhibit the microglial activation. That is why I decided to form Stop

Calling

> > > > It Autism! If we can provide large amounts of evidence that children

with

> > > > autism suffer from immune system dysfunction and microglial activation

maybe we

> > > > could expedite the development of medications that can target the

microglia and

> > > > be safe at the same time.

> > > >

> > > > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

> > > > Microglial Functions

> > > > http://www.mdpi.com/1424-8247/3/6/1949/pdf

> > > >

> > > > SCIA is working very hard and it is in the final medical approval stage

for a

> > > > nationwide medical disease registry that will provide evidence that

children

> > > > with autism suffer from immune system dysfunction and microglial

activation.

> > > >

> > > >

> > > > Autism according to SCIA

> > > > http://www.stopcallingitautism.org/autism.html

> > > >

> > > > Regards,

> > > >

> > > > Stop Calling It Autism!

> > > > http://www.stopcallingitautism.org

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Posted
Posted

I almost never comment on this list anymore (a long-timer that goes back

13 yrs with Goldberg), but I find 's representations difficult to

ignore. To recommend to someone to contact SCIA for a prescription is

irresponsible and to represent that the SCIA medical registry is scientifically

credible is in poor judgement and misleading. I do not see any medical board

behind SCIA and if all it is is and his wife, than what is it really?

Despite the best of intentions, all of this medical jargon is too much for a

non-MD to be putting out there without a medical board vetting it.

, I respect the progress you have made with (congrats!), but you

need to be careful on how you present yourself to this list and other

interested parties. You are going too far. You are a parent with a success

story, not a credentialed professional (unless I am mistaken). Just a

friendly piece of advice.

In a message dated 12/30/2010 7:26:57 P.M. Eastern Standard Time,

jlhank80@... writes:

I disagree, . This is a list for discussing treatments and

parents who are sincerely wanting to learn about would be greatly

confused by 's posts about seeing Dr Goldberg and yet going against his

recommendations. There are plenty of other lists to discuss other modes of

treatments.

Respectfully,

Jen

> > > >

> > > > ,

> > > > How did you know about Glial activation? Are there biomarkers for

it?

> > > >

> > > > Thanks,

> > > > Kay

> > > >

> > > >

> > > >

> > > >________________________________

> > > > From: <jrodrig6605@>

> > > > _ _ (mailto: )

> > > > Sent: Tue, December 28, 2010 9:20:21 PM

> > > > Subject: Austim according Stop Calling It Autism! (SCIA)

> > > >

> > > >

> > > > Hello all,

> > > > Below is a link to a new page just created at the Stop Calling It

Autism!

> > > > website. It describes the science SCIA believes in and helps

explain most of

> > > > the medical, cognitive and behavioral problems that children with

autism suffer

> > > > from. This is the same science that helped my son improve

from a

> > > > severely autistic child to a child that is doing as well as any

child that never

> > > > suffered from autism. is doing so well that we were able to

take him off

> > > > many of the medications he was taking including Tenex, Paxil and

Diflucan. How

> > > > did we do that? By inhibiting microglial activation as suggested

as a possible

> > > > treatment for mental illnesses by the Nobel Prize-winning

University of Utah

> > > > geneticist Capecchi in his recent study.

> > > >

> > > >

> > > > Nobel winner ties mental illness to immune defect

> > > > _http://tinyurl.com/373k5mr_ (http://tinyurl.com/373k5mr)

> > > >

> > > > It doesn't matter if you treat the infections that activated the

microglial

> > > > cells in the first place; the microglial cells will remain active

for years

> > > > after the infections have been treated. That is the reason of why

many children

> > > > that are being treated for infections don't improve like doctors

and the parents

> > > > expect.

> > > >

> > > > Many people ask me how I was able to inhibit my son 's

microglial

> > > > activation. I did it by using Non-Steroidal Anti-Inflammatory

Drugs. Many

> > > > research studies have proposed the use of NSAIDs as a possible

treatment to

> > > > target the microglia. The problem is that currently, there are no

doctors that

> > > > will risk prescribing the dose that needs to be given for it to be

able to

> > > > inhibit the microglial activation. That is why I decided to form

Stop Calling

> > > > It Autism! If we can provide large amounts of evidence that

children with

> > > > autism suffer from immune system dysfunction and microglial

activation maybe we

> > > > could expedite the development of medications that can target the

microglia and

> > > > be safe at the same time.

> > > >

> > > > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation:

Effects on

> > > > Microglial Functions

> > > > _http://www.mdpi.com/1424-8247/3/6/1949/pdf_

(http://www.mdpi.com/1424-8247/3/6/1949/pdf)

> > > >

> > > > SCIA is working very hard and it is in the final medical approval

stage for a

> > > > nationwide medical disease registry that will provide evidence

that children

> > > > with autism suffer from immune system dysfunction and microglial

activation.

> > > >

> > > >

> > > > Autism according to SCIA

> > > > _http://www.stopcallingitautism.org/autism.html_

(http://www.stopcallingitautism.org/autism.html)

> > > >

> > > > Regards,

> > > >

> > > > Stop Calling It Autism!

> > > > _http://www.stopcallingitautism.org_

(http://www.stopcallingitautism.org/)

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > [Non-text portions of this message have been removed]

> > > >

> > >

> >

>

>

>

>

>

> [Non-text portions of this message have been removed]

>

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Posted
Posted

Hi . I will be bringing the write up(the pharmaceutical review) to

my sons physician as a possible solution to some of his problems. I have

tried almost everything (treatment protocols) over the 11 years of his

illness,and you have given me some hope. Thank you very much for your

posts. Best Regards,Tammy F.

>

> I almost never comment on this list anymore (a long-timer that goes back

> 13 yrs with Goldberg), but I find 's representations difficult to

> ignore. To recommend to someone to contact SCIA for a prescription is

> irresponsible and to represent that the SCIA medical registry is

> scientifically

> credible is in poor judgement and misleading. I do not see any medical

> board

> behind SCIA and if all it is is and his wife, than what is it

> really?

> Despite the best of intentions, all of this medical jargon is too much

> for a

> non-MD to be putting out there without a medical board vetting it.

>

> , I respect the progress you have made with (congrats!),

> but you

> need to be careful on how you present yourself to this list and other

> interested parties. You are going too far. You are a parent with a

> success

> story, not a credentialed professional (unless I am mistaken). Just a

> friendly piece of advice.

>

>

>

>

> In a message dated 12/30/2010 7:26:57 P.M. Eastern Standard Time,

> jlhank80@... <mailto:jlhank80%40> writes:

>

> I disagree, . This is a list for discussing treatments and

> parents who are sincerely wanting to learn about would be greatly

> confused by 's posts about seeing Dr Goldberg and yet going

> against his

> recommendations. There are plenty of other lists to discuss other

> modes of

> treatments.

> Respectfully,

> Jen

>

>

> > > > >

> > > > > ,

> > > > > How did you know about Glial activation? Are there biomarkers for

> it?

> > > > >

> > > > > Thanks,

> > > > > Kay

> > > > >

> > > > >

> > > > >

> > > > >________________________________

> > > > > From: <jrodrig6605@>

> > > > > _ <mailto:_%40>_

> (mailto: <mailto:%40>)

> > > > > Sent: Tue, December 28, 2010 9:20:21 PM

> > > > > Subject: Austim according Stop Calling It Autism! (SCIA)

> > > > >

> > > > >

> > > > > Hello all,

> > > > > Below is a link to a new page just created at the Stop Calling It

> Autism!

> > > > > website. It describes the science SCIA believes in and helps

> explain most of

> > > > > the medical, cognitive and behavioral problems that children with

> autism suffer

> > > > > from. This is the same science that helped my son improve

> from a

> > > > > severely autistic child to a child that is doing as well as any

> child that never

> > > > > suffered from autism. is doing so well that we were

> able to

> take him off

> > > > > many of the medications he was taking including Tenex, Paxil and

> Diflucan. How

> > > > > did we do that? By inhibiting microglial activation as suggested

> as a possible

> > > > > treatment for mental illnesses by the Nobel Prize-winning

> University of Utah

> > > > > geneticist Capecchi in his recent study.

> > > > >

> > > > >

> > > > > Nobel winner ties mental illness to immune defect

> > > > > _http://tinyurl.com/373k5mr_ (http://tinyurl.com/373k5mr)

> > > > >

> > > > > It doesn't matter if you treat the infections that activated the

> microglial

> > > > > cells in the first place; the microglial cells will remain active

> for years

> > > > > after the infections have been treated. That is the reason of why

> many children

> > > > > that are being treated for infections don't improve like doctors

> and the parents

> > > > > expect.

> > > > >

> > > > > Many people ask me how I was able to inhibit my son 's

> microglial

> > > > > activation. I did it by using Non-Steroidal Anti-Inflammatory

> Drugs. Many

> > > > > research studies have proposed the use of NSAIDs as a possible

> treatment to

> > > > > target the microglia. The problem is that currently, there are no

> doctors that

> > > > > will risk prescribing the dose that needs to be given for it

> to be

> able to

> > > > > inhibit the microglial activation. That is why I decided to form

> Stop Calling

> > > > > It Autism! If we can provide large amounts of evidence that

> children with

> > > > > autism suffer from immune system dysfunction and microglial

> activation maybe we

> > > > > could expedite the development of medications that can target the

> microglia and

> > > > > be safe at the same time.

> > > > >

> > > > > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation:

> Effects on

> > > > > Microglial Functions

> > > > > _http://www.mdpi.com/1424-8247/3/6/1949/pdf_

> (http://www.mdpi.com/1424-8247/3/6/1949/pdf)

> > > > >

> > > > > SCIA is working very hard and it is in the final medical approval

> stage for a

> > > > > nationwide medical disease registry that will provide evidence

> that children

> > > > > with autism suffer from immune system dysfunction and microglial

> activation.

> > > > >

> > > > >

> > > > > Autism according to SCIA

> > > > > _http://www.stopcallingitautism.org/autism.html_

> (http://www.stopcallingitautism.org/autism.html)

> > > > >

> > > > > Regards,

> > > > >

> > > > > Stop Calling It Autism!

> > > > > _http://www.stopcallingitautism.org_

> (http://www.stopcallingitautism.org/)

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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Posted
Posted

Dear :

I respecfully have to say, that I admire 's courage to write his message in

this group and others, knowing the resistance some people in this group may

have. Still is more admirable standing for what he knows got his son better and

trying to help others that have the same situtaion to help their kids. Still,

he posts in this group knowing that parents like me will be interested in

knowing what is out there that can get our kids better.

Please read carefully his message, I read it many times and I could not find

anyplace where was prescribing a drug to anyone.

Research about microglial activation and the links with Autism is extensive. Use

of NSAID to treat microglial activation is not new, there is a lot of info out

there to read and learn. is sharing what he knows and showing the living

proof that it worked for his son.

Years ago, Autism was believed not to be treatable. Today, the story is

different, thanks to people that thought different and stood up for what was

right and wanted to help others.

Regards,

Lorna Ortiz, PhD.

President and Cofounder

Curando el Autismo (CEA)

lorna.ortiz@...

www.curandoelautismo.com

From: DGreg21541@...

Date: Thu, 30 Dec 2010 19:50:32 -0500

Subject: Re: Re: Austim according Stop Calling It Autism! (SCIA)

I almost never comment on this list anymore (a long-timer that goes back

13 yrs with Goldberg), but I find 's representations difficult to

ignore. To recommend to someone to contact SCIA for a prescription is

irresponsible and to represent that the SCIA medical registry is scientifically

credible is in poor judgement and misleading. I do not see any medical board

behind SCIA and if all it is is and his wife, than what is it really?

Despite the best of intentions, all of this medical jargon is too much for a

non-MD to be putting out there without a medical board vetting it.

, I respect the progress you have made with (congrats!), but you

need to be careful on how you present yourself to this list and other

interested parties. You are going too far. You are a parent with a success

story, not a credentialed professional (unless I am mistaken). Just a

friendly piece of advice.

In a message dated 12/30/2010 7:26:57 P.M. Eastern Standard Time,

jlhank80@... writes:

I disagree, . This is a list for discussing treatments and

parents who are sincerely wanting to learn about would be greatly

confused by 's posts about seeing Dr Goldberg and yet going against his

recommendations. There are plenty of other lists to discuss other modes of

treatments.

Respectfully,

Jen

> > > >

> > > > ,

> > > > How did you know about Glial activation? Are there biomarkers for

it?

> > > >

> > > > Thanks,

> > > > Kay

> > > >

> > > >

> > > >

> > > >________________________________

> > > > From: <jrodrig6605@>

> > > > _ _ (mailto: )

> > > > Sent: Tue, December 28, 2010 9:20:21 PM

> > > > Subject: Austim according Stop Calling It Autism! (SCIA)

> > > >

> > > >

> > > > Hello all,

> > > > Below is a link to a new page just created at the Stop Calling It

Autism!

> > > > website. It describes the science SCIA believes in and helps

explain most of

> > > > the medical, cognitive and behavioral problems that children with

autism suffer

> > > > from. This is the same science that helped my son improve

from a

> > > > severely autistic child to a child that is doing as well as any

child that never

> > > > suffered from autism. is doing so well that we were able to

take him off

> > > > many of the medications he was taking including Tenex, Paxil and

Diflucan. How

> > > > did we do that? By inhibiting microglial activation as suggested

as a possible

> > > > treatment for mental illnesses by the Nobel Prize-winning

University of Utah

> > > > geneticist Capecchi in his recent study.

> > > >

> > > >

> > > > Nobel winner ties mental illness to immune defect

> > > > _http://tinyurl.com/373k5mr_ (http://tinyurl.com/373k5mr)

> > > >

> > > > It doesn't matter if you treat the infections that activated the

microglial

> > > > cells in the first place; the microglial cells will remain active

for years

> > > > after the infections have been treated. That is the reason of why

many children

> > > > that are being treated for infections don't improve like doctors

and the parents

> > > > expect.

> > > >

> > > > Many people ask me how I was able to inhibit my son 's

microglial

> > > > activation. I did it by using Non-Steroidal Anti-Inflammatory

Drugs. Many

> > > > research studies have proposed the use of NSAIDs as a possible

treatment to

> > > > target the microglia. The problem is that currently, there are no

doctors that

> > > > will risk prescribing the dose that needs to be given for it to be

able to

> > > > inhibit the microglial activation. That is why I decided to form

Stop Calling

> > > > It Autism! If we can provide large amounts of evidence that

children with

> > > > autism suffer from immune system dysfunction and microglial

activation maybe we

> > > > could expedite the development of medications that can target the

microglia and

> > > > be safe at the same time.

> > > >

> > > > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation:

Effects on

> > > > Microglial Functions

> > > > _http://www.mdpi.com/1424-8247/3/6/1949/pdf_

(http://www.mdpi.com/1424-8247/3/6/1949/pdf)

> > > >

> > > > SCIA is working very hard and it is in the final medical approval

stage for a

> > > > nationwide medical disease registry that will provide evidence

that children

> > > > with autism suffer from immune system dysfunction and microglial

activation.

> > > >

> > > >

> > > > Autism according to SCIA

> > > > _http://www.stopcallingitautism.org/autism.html_

(http://www.stopcallingitautism.org/autism.html)

> > > >

> > > > Regards,

> > > >

> > > > Stop Calling It Autism!

> > > > _http://www.stopcallingitautism.org_

(http://www.stopcallingitautism.org/)

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Posted
Posted

Hi ,

 

Thank you for sharing. This is amazing. I keep hearing over and over again that

the best cures or treatments are found by mistake. I want to make that same

mistake too and keep praying and hoping that I do. But, I'm still waiting.

Congratulations for making the mistake.

 

Karla

>

>

> From: <jrodrig6605@...>

> Subject: Austim according Stop Calling It Autism! (SCIA)

>

> Date: Tuesday, December 28, 2010, 9:20 PM

>

>

>  

>

>

>

> Hello all,

> Below is a link to a new page just created at the Stop Calling It Autism!

website. It describes the science SCIA believes in and helps explain most of the

medical, cognitive and behavioral problems that children with autism suffer

from. This is the same science that helped my son improve from a severely

autistic child to a child that is doing as well as any child that never suffered

from autism. is doing so well that we were able to take him off many of

the medications he was taking including Tenex, Paxil and Diflucan. How did we do

that? By inhibiting microglial activation as suggested as a possible treatment

for mental illnesses by the Nobel Prize-winning University of Utah geneticist

Capecchi in his recent study.

>

> Nobel winner ties mental illness to immune defect

> http://tinyurl.com/373k5mr

>

> It doesn't matter if you treat the infections that activated the microglial

cells in the first place; the microglial cells will remain active for years

after the infections have been treated. That is the reason of why many children

that are being treated for infections don't improve like doctors and the parents

expect.

>

> Many people ask me how I was able to inhibit my son 's microglial

activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs. Many

research studies have proposed the use of NSAIDs as a possible treatment to

target the microglia. The problem is that currently, there are no doctors that

will risk prescribing the dose that needs to be given for it to be able to

inhibit the microglial activation. That is why I decided to form Stop Calling It

Autism! If we can provide large amounts of evidence that children with autism

suffer from immune system dysfunction and microglial activation maybe we could

expedite the development of medications that can target the microglia and be

safe at the same time.

>

> Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

Microglial Functions

> http://www.mdpi.com/1424-8247/3/6/1949/pdf

>

> SCIA is working very hard and it is in the final medical approval stage for a

nationwide medical disease registry that will provide evidence that children

with autism suffer from immune system dysfunction and microglial activation.

>

> Autism according to SCIA

> http://www.stopcallingitautism.org/autism.html

>

> Regards,

>

> Stop Calling It Autism!

> http://www.stopcallingitautism.org

>

>

>

>

>

>

>

>

>

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Posted
Posted

, can you send us the article that you read on NSAIDs and neuroinflammation?

Would sencirely appreciate it.

 

Karla 

>

>

> From: <jrodrig6605@...>

> Subject: Austim according Stop Calling It Autism! (SCIA)

>

> Date: Tuesday, December 28, 2010, 9:20 PM

>

>

>  

>

>

>

> Hello all,

> Below is a link to a new page just created at the Stop Calling It Autism!

website. It describes the science SCIA believes in and helps explain most of the

medical, cognitive and behavioral problems that children with autism suffer

from. This is the same science that helped my son improve from a severely

autistic child to a child that is doing as well as any child that never suffered

from autism. is doing so well that we were able to take him off many of

the medications he was taking including Tenex, Paxil and Diflucan. How did we do

that? By inhibiting microglial activation as suggested as a possible treatment

for mental illnesses by the Nobel Prize-winning University of Utah geneticist

Capecchi in his recent study.

>

> Nobel winner ties mental illness to immune defect

> http://tinyurl.com/373k5mr

>

> It doesn't matter if you treat the infections that activated the microglial

cells in the first place; the microglial cells will remain active for years

after the infections have been treated. That is the reason of why many children

that are being treated for infections don't improve like doctors and the parents

expect.

>

> Many people ask me how I was able to inhibit my son 's microglial

activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs. Many

research studies have proposed the use of NSAIDs as a possible treatment to

target the microglia. The problem is that currently, there are no doctors that

will risk prescribing the dose that needs to be given for it to be able to

inhibit the microglial activation. That is why I decided to form Stop Calling It

Autism! If we can provide large amounts of evidence that children with autism

suffer from immune system dysfunction and microglial activation maybe we could

expedite the development of medications that can target the microglia and be

safe at the same time.

>

> Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

Microglial Functions

> http://www.mdpi.com/1424-8247/3/6/1949/pdf

>

> SCIA is working very hard and it is in the final medical approval stage for a

nationwide medical disease registry that will provide evidence that children

with autism suffer from immune system dysfunction and microglial activation.

>

> Autism according to SCIA

> http://www.stopcallingitautism.org/autism.html

>

> Regards,

>

> Stop Calling It Autism!

> http://www.stopcallingitautism.org

>

>

>

>

>

>

>

>

>

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Posted
Posted

Why are you all so hard on and his posts. He is just like any

other parent telling us what worked for him and his son. He is sharing

information. He is not forcing us to do what he did. I don't get it. It almost

sounds like a personal thing toward him, like a dislike. If you dislike him,

keep it to yourself instead of influencing others. Sorry, I'm new and neutral to

all of this but it is so obvious that you have something against him. I do not

get what it is. He is only sharing what worked for him just like many other

parents have done so in this list and I don't hear you attacking those parents.

 

What is this? If I'm completely off base, help me understand please.

 

Thanks

 

Karla

From: Bill klimas <klimas_bill@...>

Subject: Re: Re: Austim according Stop Calling It Autism! (SCIA)

Date: Thursday, December 30, 2010, 1:14 PM

 

I do more than agree. I believe that recommending unapproved over dosage and off

label over the counter medications is extremely irresponsible. Just because you

put your child at risk does not allow you to recommend that other children that

may or may not suffer from similar issues can survive this. We all understand

that each and every child is affected by Autism differently and what worked for

you may well kill another child. You openly admit your use of Ibuprofen

hospitalized your son, What were ypu thinking and how do you qualify it had a

positive effect over everything else that was happening!

You should put away you ego and stop tauting a none existent medical degree when

you have no clue as to who is reading your posts or what you are recommending

will do to their kid!

________________________________

From: " JOSKAT95@... " <JOSKAT95@...>

Sent: Thu, December 30, 2010 3:10:21 PM

Subject: Re: Re: Austim according Stop Calling It Autism! (SCIA)

I agree with Jen, treating one piece of a multitude of problems is not going to

stop the problem. You have to look at the source not the result.

Kathy on

Austim according Stop Calling It Autism! (SCIA)

> >

> >

> > Hello all,

> > Below is a link to a new page just created at the Stop Calling It Autism!

> > website. It describes the science SCIA believes in and helps explain most of

> > the medical, cognitive and behavioral problems that children with autism

>suffer

>

> > from. This is the same science that helped my son improve from a

> > severely autistic child to a child that is doing as well as any child that

>never

>

> > suffered from autism. is doing so well that we were able to take him

>off

>

> > many of the medications he was taking including Tenex, Paxil and Diflucan.

>How

>

> > did we do that? By inhibiting microglial activation as suggested as a

>possible

>

> > treatment for mental illnesses by the Nobel Prize-winning University of Utah

> > geneticist Capecchi in his recent study.

> >

> >

> > Nobel winner ties mental illness to immune defect

> > http://tinyurl.com/373k5mr

> >

> > It doesn't matter if you treat the infections that activated the microglial

> > cells in the first place; the microglial cells will remain active for years

> > after the infections have been treated. That is the reason of why many

>children

>

> > that are being treated for infections don't improve like doctors and the

>parents

>

> > expect.

> >

> > Many people ask me how I was able to inhibit my son 's microglial

> > activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs. Many

> > research studies have proposed the use of NSAIDs as a possible treatment to

> > target the microglia. The problem is that currently, there are no doctors

>that

>

> > will risk prescribing the dose that needs to be given for it to be able to

> > inhibit the microglial activation. That is why I decided to form Stop

Calling

>

> > It Autism! If we can provide large amounts of evidence that children with

> > autism suffer from immune system dysfunction and microglial activation maybe

>we

>

> > could expedite the development of medications that can target the microglia

>and

>

> > be safe at the same time.

> >

> > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

> > Microglial Functions

> > http://www.mdpi.com/1424-8247/3/6/1949/pdf

> >

> > SCIA is working very hard and it is in the final medical approval stage for

a

>

> > nationwide medical disease registry that will provide evidence that children

> > with autism suffer from immune system dysfunction and microglial activation.

> >

> >

> > Autism according to SCIA

> > http://www.stopcallingitautism.org/autism.html

> >

> > Regards,

> >

> > Stop Calling It Autism!

> > http://www.stopcallingitautism.org

> >

> >

> >

> >

> >

> >

> >

> >

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Posted
Posted

Hi Jen,

 

Let me ask you so that I don't violate any implied policies: I'm following the

protocol, if beside the protocol, I happen to discover something that

greatly helped my son, you wouldn't want me to post it in this list and share it

with all parents? What do you think parents on this list answer to this

question? Don't you think they would like to know?

 

Thanks for your reply

 

Karla

From: <jlhank80@...>

Subject: Re: Austim according Stop Calling It Autism! (SCIA)

Date: Thursday, December 30, 2010, 4:26 PM

 

I disagree, . This is a list for discussing treatments and

parents who are sincerely wanting to learn about would be greatly confused

by 's posts about seeing Dr Goldberg and yet going against his

recommendations. There are plenty of other lists to discuss other modes of

treatments.

Respectfully,

Jen

> > > >

> > > > ,

> > > > How did you know about Glial activation? Are there biomarkers for it?

> > > >

> > > > Thanks,

> > > > Kay

> > > >

> > > >

> > > >

> > > >________________________________

> > > > From: <jrodrig6605@>

> > > >

> > > > Sent: Tue, December 28, 2010 9:20:21 PM

> > > > Subject: Austim according Stop Calling It Autism! (SCIA)

> > > >

> > > >

> > > > Hello all,

> > > > Below is a link to a new page just created at the Stop Calling It

Autism!

> > > > website. It describes the science SCIA believes in and helps explain

most of

> > > > the medical, cognitive and behavioral problems that children with autism

suffer

> > > > from. This is the same science that helped my son improve from a

> > > > severely autistic child to a child that is doing as well as any child

that never

> > > > suffered from autism. is doing so well that we were able to take

him off

> > > > many of the medications he was taking including Tenex, Paxil and

Diflucan. How

> > > > did we do that? By inhibiting microglial activation as suggested as a

possible

> > > > treatment for mental illnesses by the Nobel Prize-winning University of

Utah

> > > > geneticist Capecchi in his recent study.

> > > >

> > > >

> > > > Nobel winner ties mental illness to immune defect

> > > > http://tinyurl.com/373k5mr

> > > >

> > > > It doesn't matter if you treat the infections that activated the

microglial

> > > > cells in the first place; the microglial cells will remain active for

years

> > > > after the infections have been treated. That is the reason of why many

children

> > > > that are being treated for infections don't improve like doctors and the

parents

> > > > expect.

> > > >

> > > > Many people ask me how I was able to inhibit my son 's microglial

> > > > activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs.

Many

> > > > research studies have proposed the use of NSAIDs as a possible treatment

to

> > > > target the microglia. The problem is that currently, there are no

doctors that

> > > > will risk prescribing the dose that needs to be given for it to be able

to

> > > > inhibit the microglial activation. That is why I decided to form Stop

Calling

> > > > It Autism! If we can provide large amounts of evidence that children

with

> > > > autism suffer from immune system dysfunction and microglial activation

maybe we

> > > > could expedite the development of medications that can target the

microglia and

> > > > be safe at the same time.

> > > >

> > > > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

> > > > Microglial Functions

> > > > http://www.mdpi.com/1424-8247/3/6/1949/pdf

> > > >

> > > > SCIA is working very hard and it is in the final medical approval stage

for a

> > > > nationwide medical disease registry that will provide evidence that

children

> > > > with autism suffer from immune system dysfunction and microglial

activation.

> > > >

> > > >

> > > > Autism according to SCIA

> > > > http://www.stopcallingitautism.org/autism.html

> > > >

> > > > Regards,

> > > >

> > > > Stop Calling It Autism!

> > > > http://www.stopcallingitautism.org

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Posted
Posted

Hello ,

I think you have not read the information from the page below.

Autism According to SCIA

http://www.stopcallingitautism.org/autism.html

Asking parents to get their MDs to contact SCIA for advice it is a great idea,

because that way we make sure that children get professional help. By the way,

something we have in our plans at SCIA is to train doctors all over the country

in how to treat children with autism based on the correct science. Science

based on work from brilliant MDs and researchers including the Nobel Prize

Winner Capecchi. This is something that we all know it is desperately

needed and for some reason I find very disturbing that you can take your child

to only three places in the USA when there are so many children needing help.

Why doesn't Dr. Goldberg, Kathy on and Dr. Bruce go to autism

conferences to share the knowledge even though I think it is incomplete, but can

help many children? Why hasn't been taught to doctors all over the United

States in order to help so many children with autism? You know the answer to

that question because you have been around for long enough.

At SCIA we will give parents and MDs around the country the tools need to treat

children with autism better and without guessing anymore. And at the same time

we will provide the evidence is needed for many families to be able to get the

help they need and hopefully get the right medications developed. We are not

sitting around waiting for another 17 years to go by and not find help for

children with autism. We are looking for help for all of them NOW!

When you say a non-MD was able to get his son the way I got it says a lot

about my character. I could just go away and do nothing, because my son is

doing so much better. Instead you will hear from me and SCIA for a long time to

come, because we won't stop until every kid with autism receives the medical

help they need and deserve.

This is a non-MD that has done what many MDs haven't. I have many MDs that have

contacted me desperately asking for help for their children. I have had these

MDs sitting down in my house having a cup of coffee listening to me explain to

them what autism really is.

I will share my knowledge with everybody that needs it. That is mine and SCIA's

goal. We will not rest until everybody understands what autism is. If you

don't agree with what we have been trying to do, so be it, you are not the first

one and you won't be the last one.

Don't forget to read the following page. You can learn a lot from it.

Autism According to SCIA

http://www.stopcallingitautism.org/autism.html

Happy Holidays!

Stop Calling It Autism!

> > > > >

> > > > > ,

> > > > > How did you know about Glial activation? Are there biomarkers for

> it?

> > > > >

> > > > > Thanks,

> > > > > Kay

> > > > >

> > > > >

> > > > >

> > > > >________________________________

> > > > > From: <jrodrig6605@>

> > > > > _ _ (mailto: )

> > > > > Sent: Tue, December 28, 2010 9:20:21 PM

> > > > > Subject: Austim according Stop Calling It Autism! (SCIA)

> > > > >

> > > > >

> > > > > Hello all,

> > > > > Below is a link to a new page just created at the Stop Calling It

> Autism!

> > > > > website. It describes the science SCIA believes in and helps

> explain most of

> > > > > the medical, cognitive and behavioral problems that children with

> autism suffer

> > > > > from. This is the same science that helped my son improve

> from a

> > > > > severely autistic child to a child that is doing as well as any

> child that never

> > > > > suffered from autism. is doing so well that we were able to

> take him off

> > > > > many of the medications he was taking including Tenex, Paxil and

> Diflucan. How

> > > > > did we do that? By inhibiting microglial activation as suggested

> as a possible

> > > > > treatment for mental illnesses by the Nobel Prize-winning

> University of Utah

> > > > > geneticist Capecchi in his recent study.

> > > > >

> > > > >

> > > > > Nobel winner ties mental illness to immune defect

> > > > > _http://tinyurl.com/373k5mr_ (http://tinyurl.com/373k5mr)

> > > > >

> > > > > It doesn't matter if you treat the infections that activated the

> microglial

> > > > > cells in the first place; the microglial cells will remain active

> for years

> > > > > after the infections have been treated. That is the reason of why

> many children

> > > > > that are being treated for infections don't improve like doctors

> and the parents

> > > > > expect.

> > > > >

> > > > > Many people ask me how I was able to inhibit my son 's

> microglial

> > > > > activation. I did it by using Non-Steroidal Anti-Inflammatory

> Drugs. Many

> > > > > research studies have proposed the use of NSAIDs as a possible

> treatment to

> > > > > target the microglia. The problem is that currently, there are no

> doctors that

> > > > > will risk prescribing the dose that needs to be given for it to be

> able to

> > > > > inhibit the microglial activation. That is why I decided to form

> Stop Calling

> > > > > It Autism! If we can provide large amounts of evidence that

> children with

> > > > > autism suffer from immune system dysfunction and microglial

> activation maybe we

> > > > > could expedite the development of medications that can target the

> microglia and

> > > > > be safe at the same time.

> > > > >

> > > > > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation:

> Effects on

> > > > > Microglial Functions

> > > > > _http://www.mdpi.com/1424-8247/3/6/1949/pdf_

> (http://www.mdpi.com/1424-8247/3/6/1949/pdf)

> > > > >

> > > > > SCIA is working very hard and it is in the final medical approval

> stage for a

> > > > > nationwide medical disease registry that will provide evidence

> that children

> > > > > with autism suffer from immune system dysfunction and microglial

> activation.

> > > > >

> > > > >

> > > > > Autism according to SCIA

> > > > > _http://www.stopcallingitautism.org/autism.html_

> (http://www.stopcallingitautism.org/autism.html)

> > > > >

> > > > > Regards,

> > > > >

> > > > > Stop Calling It Autism!

> > > > > _http://www.stopcallingitautism.org_

> (http://www.stopcallingitautism.org/)

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > [Non-text portions of this message have been removed]

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been removed]

> >

>

>

>

>

>

>

>

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Posted
Posted

I have seen provide some interesting information to the list & his efforts

to share what worked for him to others is admirable.

I have also noticed that most of his responses (like the one below) are to point

parents to his website and/or suggestions to enroll in some research that his

organization is working on & potential benefits of what he is developing for

parents - something I think he ought to be transparent about with parents

already going through a lot.

Is his intentions just information sharing of what worked for him

or recruiting candidates for his research etc or other.

________________________________

From: <jlhank80@...>

Sent: Wed, December 29, 2010 1:23:21 PM

Subject: Re: Austim according Stop Calling It Autism! (SCIA)

,

I respectfully but completely disagree with telling parents to do a high dose of

NSAIDS (especially if many of them have gut issues) when you are not their

doctor. The reason why alleviating these co-infections isnt deactivating the

microglia is because not all triggers are being addressed. For example, if a

child has allergies, chemical sensitivities, microbial translocation, and

especially a retrovirus (ie XMRV?) These children need these issues treated.

NSAIDS are an adjunct therapy, not a principal one. We need to find out what

infections and inflammatory triggers are happening in our children. NSAIDS are a

short=term help, they are not long term drugs.

-Jen

> >

> > ,

> > How did you know about Glial activation? Are there biomarkers for it?

> >

> > Thanks,

> > Kay

> >

> >

> >

> > ________________________________

> > From: <jrodrig6605@>

> >

> > Sent: Tue, December 28, 2010 9:20:21 PM

> > Subject: Austim according Stop Calling It Autism! (SCIA)

> >

> >

> > Hello all,

> > Below is a link to a new page just created at the Stop Calling It Autism!

> > website. It describes the science SCIA believes in and helps explain most

of

>

> > the medical, cognitive and behavioral problems that children with autism

>suffer

>

> > from. This is the same science that helped my son improve from a

> > severely autistic child to a child that is doing as well as any child that

>never

>

> > suffered from autism. is doing so well that we were able to take him

>off

>

> > many of the medications he was taking including Tenex, Paxil and Diflucan.

>How

>

> > did we do that? By inhibiting microglial activation as suggested as a

>possible

>

> > treatment for mental illnesses by the Nobel Prize-winning University of Utah

> > geneticist Capecchi in his recent study.

> >

> >

> > Nobel winner ties mental illness to immune defect

> > http://tinyurl.com/373k5mr

> >

> > It doesn't matter if you treat the infections that activated the microglial

> > cells in the first place; the microglial cells will remain active for years

> > after the infections have been treated. That is the reason of why many

>children

>

> > that are being treated for infections don't improve like doctors and the

>parents

>

> > expect.

> >

> > Many people ask me how I was able to inhibit my son 's microglial

> > activation. I did it by using Non-Steroidal Anti-Inflammatory Drugs. Many

> > research studies have proposed the use of NSAIDs as a possible treatment to

> > target the microglia. The problem is that currently, there are no doctors

>that

>

> > will risk prescribing the dose that needs to be given for it to be able to

> > inhibit the microglial activation. That is why I decided to form Stop

>Calling

>

> > It Autism! If we can provide large amounts of evidence that children with

> > autism suffer from immune system dysfunction and microglial activation maybe

>we

>

> > could expedite the development of medications that can target the microglia

>and

>

> > be safe at the same time.

> >

> > Non-Steroidal Anti-Inflammatory Drugs and Brain Inflammation: Effects on

> > Microglial Functions

> > http://www.mdpi.com/1424-8247/3/6/1949/pdf

> >

> > SCIA is working very hard and it is in the final medical approval stage for

a

>

> > nationwide medical disease registry that will provide evidence that children

> > with autism suffer from immune system dysfunction and microglial activation.

> >

> >

> > Autism according to SCIA

> > http://www.stopcallingitautism.org/autism.html

> >

> > Regards,

> >

> > Stop Calling It Autism!

> > http://www.stopcallingitautism.org

> >

> >

> >

> >

> >

> >

> >

> >

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