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In a message dated 12/23/02 6:21:40 PM Eastern Standard Time, pinnut3200@... writes:

I just got my recent lab results. My Christmas gift was a report of

all normal reading except my SGOT's and that was only three

points from normal. Yea! It appears that the increase in

prednisone is doing the trick.

Congrats !

Cheryl

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> Happy Christmas to everyone - for the first time I've organised

our family Christmas Dinner down on our beautiful local beach.

Miles of beautiful sand, driftwood and shells. Bought extra chilly

bins to hold all the food and pavs. Sun umbrellas ready to go, I've

glued tinsel all around the edges. I'm going to arm wrestle my

husband into playing Santa emerging from the surf. He thinks Im

going over the top but so what. Actually Santa emerging from the

sea may not be such a great idea as he will have to wear a

lifejacket. Ill have to think more on this one.

>

> God bless you all

> love Jan (NZ)

Jan,

What a fun party you will have! May I come? I would love some

warm sunshine on my face right about now. I can picture the

whole party from your description. Have a GREAT time!

It was chilly here all day. We will definitely have a white

Christmas, so Santa will have to come on his sleigh,

snowboard, or skiis and not from the surf.

I just got my recent lab results. My Christmas gift was a report of

all normal reading except my SGOT's and that was only three

points from normal. Yea! It appears that the increase in

prednisone is doing the trick.

Loes, I wanted to tell you earlier that your little girl is a

sweetheart. I hope she is feeling better now so you can all enjoy

the holiday.

Tony, it is so good to have you back. I sent you a card by snail

mail as well. May 2003 bring you many blessings.

Dave, sorry to hear about your kidney cancer. As bleak as things

appear now, it may be a blessing that the cancer is in the kidney

and nowhere else. I have several friends who had kidney cancer

and are doing very well with only one kidney. Any cancer is

devastating, but this one may be one that can be dealt with

quickly and effectively.

Merry Christmas everyone,

(in Wyoming)

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" Bought extra chilly bins to hold all the food and pavs. "

Jan - My co-workers and I (from Miami) are curious. What are pavs?

Your celebration sounds like it will be a blast!! Have fun and forget about AIH

for a day.

Love and prayers -

gina

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- Pavolova, the traditional New Zealand dessert. A huge meringue, crisp

on the outside with melt in the mouth marshmellow inside, topped with

whipped cream, then kiwifruit,strawberries or blueberries, with chocolate

grated over the top. (its the diameter approx of a large dinner plate with

about five or six inch depth. Actually after writing this, I dont know

whether Ill be able to eat any, I feel nauseas already!!

Love Jan

Re: [ ] CHRISTMAS

> " Bought extra chilly bins to hold all the food and pavs. "

>

> Jan - My co-workers and I (from Miami) are curious. What are pavs?

>

> Your celebration sounds like it will be a blast!! Have fun and forget

about AIH for a day.

>

> Love and prayers -

> gina

>

>

>

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  • 2 years later...

Your post actually did come through in my email 12-16-05 10:48pm, so please

let's not make such a big deal about it and be so judgmental.

Peace to all for this season of joy!

n

n Keener

Independent Distributor, Market America

www.thekeenerkorner.unfranchise.com

1-800-211-1202 ext: 27006

(828) 320-0040 cell

" Some people dream of success...while others wake up and work hard at it. "

My plan B, do you have one yet?

Christmas

> What I posted has to do with the Christmas holiday and Chritianity is

> what Christmas is all about. It is about the birth of our Lord and

> Savior. It always has been. The secular world has divided our nation

> and continues to lead our world into damnation......

> I can't imagine that during this time of year that post would be

> removed...

> Well I guess if I just said happy holidays, it would be more

> politically correct.

> I will never take part or be part of any website or organization that

> would dishonor our CREATOR.

>

> I will pray for all of you....

>

>

>

>

>

>

>

>

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  • 2 weeks later...

Helen - we are praying for Nick a quick recovery. We had a great Christmas

- it was quite and peaceful. I have noticed that to much excitement sends

Hunter into the yucky zone. Happy New Year - Sandi Ken Hunter (7 Systemic)

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geeze--just when i start to " dry up " from reading about all the

touching things the kids do-here's your nick with another one to

make me well-up.that's just TOO CUTE!!!!

>

> HI everyone.

> I hope you all had a fun, safe and memory filled holiday. Nick

> continues to be sick. he started on the 23rd with high fevers and

> vomiting, did a little better on the 24th, although he spent much

of

> the day laying around. I did bribe him long enough to get some

cute

> shots of the kids dressed up in their finery. Christmas Day he did

> ok, was very tired and did lay around a lot, but still tried to

join

> in the activities. We went to the movies to see the Lion, witch

and

> the wardrobe but he was not interested and fussed the entire time.

> Sadly the vomiting returned last night along with headaches. Hes

not

> eaten since the 23rd except for a hand full of popcorn and a dry

bun

> and has lost 3lbs. I sure hope he snaps out of this soon.

>

> But i must share with you the story of the jingle bell, on the

> evening of the 23rd as Nick lay moaning on the sofa he whispered

to

> me that he would be the best little boy on Xmas and all he wanted

> from Santa was a jingle bell from the sleigh. I managed to find a

> bell on Christmas eve and as we lay out Santas gifts and the

> stockings, i lay the bell on top of Nicks.

>

> You should have seen his face when he saw it, we all pretended we

> had forgotten he asked for one. But Nick was just in awe, the

smile

> was priceless and he kept repeating, santa knows you know. nick

has

> been questioning the whole " is santa real " this year, but he came

> up to me and said that he just knew santa was real and this proves

> it!!!!! We watched the Polar express today and thats where this

> whole jingle bell thing comes from i found out, i have never read

> the book, but Nick did last week in school and now i know why he

> asked for it.

>

> I hope your christmas's had magical moments in just as mine did.

>

> hugs Helen and (8,systemic)

>

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geeze--just when i start to " dry up " from reading about all the

touching things the kids do-here's your nick with another one to

make me well-up.that's just TOO CUTE!!!!

>

> HI everyone.

> I hope you all had a fun, safe and memory filled holiday. Nick

> continues to be sick. he started on the 23rd with high fevers and

> vomiting, did a little better on the 24th, although he spent much

of

> the day laying around. I did bribe him long enough to get some

cute

> shots of the kids dressed up in their finery. Christmas Day he did

> ok, was very tired and did lay around a lot, but still tried to

join

> in the activities. We went to the movies to see the Lion, witch

and

> the wardrobe but he was not interested and fussed the entire time.

> Sadly the vomiting returned last night along with headaches. Hes

not

> eaten since the 23rd except for a hand full of popcorn and a dry

bun

> and has lost 3lbs. I sure hope he snaps out of this soon.

>

> But i must share with you the story of the jingle bell, on the

> evening of the 23rd as Nick lay moaning on the sofa he whispered

to

> me that he would be the best little boy on Xmas and all he wanted

> from Santa was a jingle bell from the sleigh. I managed to find a

> bell on Christmas eve and as we lay out Santas gifts and the

> stockings, i lay the bell on top of Nicks.

>

> You should have seen his face when he saw it, we all pretended we

> had forgotten he asked for one. But Nick was just in awe, the

smile

> was priceless and he kept repeating, santa knows you know. nick

has

> been questioning the whole " is santa real " this year, but he came

> up to me and said that he just knew santa was real and this proves

> it!!!!! We watched the Polar express today and thats where this

> whole jingle bell thing comes from i found out, i have never read

> the book, but Nick did last week in school and now i know why he

> asked for it.

>

> I hope your christmas's had magical moments in just as mine did.

>

> hugs Helen and (8,systemic)

>

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---Hi Helen,

Hope Nick is feeling better. His story made me laugh as my 10 year

old was questioning Santa last year. Unbeknownst to me he had asked

Santa to leave a sign to prove he was real. Well in the cleanup of

wrapping paper etc... I managed to leave a Santa hat from somewhere

near his presents. He got up at 5 am and woke me to show his proof.

Sometimes Santa works in mysterious ways:)

Hope the coming year is better for all of our kids.

Melinda and Lily Grace 8

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Hello All!

I too hope everyone had a joyful holiday.

Both my girls had a stomach virus but it allowed us, for once, to

stay home and lounge around all day.

left the funniest yet sweetest note to Santa. She left a

list of things she wanted him to leave for her friends and myself.

She wanted me to get a new refrigerator and an extreme back

massager. She also asked him to bring her friends mother a new coat

because she doesn't have money to buy a new one.

At the top of the list she put another friends older brother. He

likes to tease her. She wanted Santa to leave him: coal, coal,

coal, coal, coal, coal, coal, coal, coal and some more coal.

The last person on the list was her school principal. She was to

also get coal, coal, coal, coal, coal, coal and some more coal.

Kids, gotta love them!

Here's to a brand new pain free year for all our JRA children!

and 9 (poly JRA)

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How sweet! I miss those moments with old kids. I hope Nick is feeling better

soon - push those fluids and let us know how he is doing, Michele

(18,pauci & spondy)

Christmas

HI everyone.

I hope you all had a fun, safe and memory filled holiday. Nick

continues to be sick. he started on the 23rd with high fevers and

vomiting, did a little better on the 24th, although he spent much of

the day laying around. I did bribe him long enough to get some cute

shots of the kids dressed up in their finery. Christmas Day he did

ok, was very tired and did lay around a lot, but still tried to join

in the activities. We went to the movies to see the Lion, witch and

the wardrobe but he was not interested and fussed the entire time.

Sadly the vomiting returned last night along with headaches. Hes not

eaten since the 23rd except for a hand full of popcorn and a dry bun

and has lost 3lbs. I sure hope he snaps out of this soon.

But i must share with you the story of the jingle bell, on the

evening of the 23rd as Nick lay moaning on the sofa he whispered to

me that he would be the best little boy on Xmas and all he wanted

from Santa was a jingle bell from the sleigh. I managed to find a

bell on Christmas eve and as we lay out Santas gifts and the

stockings, i lay the bell on top of Nicks.

You should have seen his face when he saw it, we all pretended we

had forgotten he asked for one. But Nick was just in awe, the smile

was priceless and he kept repeating, santa knows you know. nick has

been questioning the whole " is santa real " this year, but he came

up to me and said that he just knew santa was real and this proves

it!!!!! We watched the Polar express today and thats where this

whole jingle bell thing comes from i found out, i have never read

the book, but Nick did last week in school and now i know why he

asked for it.

I hope your christmas's had magical moments in just as mine did.

hugs Helen and (8,systemic)

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Hi Helen:

I hope Nick feels better soon. Loved the story of the bell, glad you found

one on Christmas Eve. We went out to the movies too. My in laws/out laws have

done this for years. I think it just might be a new tradition for us. We

saw Fun with Dick and Jane.

Take care.

Patty

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  • 1 year later...

Carol, last Christmas I wasn't driving yet, so I shopped online and my husband drove us to my parents' for our family celebration. I'm not typical in that we don't have kids and my husband is from Israel and doesn't give a hoot for Christmas. I used to decorate when I had piano students coming in, but I get no positive reinforcement for it any more so I figure I'm doing well if i get the house clean and light the menorah. I buy for the relatives we'll see and cook something and that's about it.

If you're shortly out of major spine surgery, or majorly in need of it, good heavens, nobody expects you to do much, or shouldn't, and there's really no law you have to. At least that's Green's Theory of Scoli Christmas, and I'm sticking with it.

Sharon

[ ] Christmas

How are (and did) some of you fair for your first Christmas post-op? I'm having alot of pain down my rt. leg from bending and moving to get the decorations going. I'm going to have to have my 17 yr. old daughter help me a lot. I didn't think it would be this difficult. Now---shopping for Christmas? I can't even think about that yet!!! UGGGHHH!!!How do you do it all? Painfully yours, Carol

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Carol,

I'm approaching my first Christmas post-op, but my advice from

Thanksgiving and from just general disability stuff I've had in the

past is to be sure to have help. I don't know if you have any friends

or extended family who are still helping you (versus the impatient ones

who think you've had plenty of time to recover), but if so, recruit

them to help with the physical stuff - hauling boxes to decorate, going

on a grocery shopping trip for you, cleaning up your house a bit, etc.

It's really hard to ask for help, especially the first few times, but

if it means the difference between you being able to enjoy the holidays

versus you being stressed out or exhausted then it will be well worth

the effort. And in my experience, unless you have that special helper

who knows what needs to be done with being asked, it's best to become a

leader and delegate tasks to people - " Hubby - I need you to <task>,

Daughter - I need for you to <task>, and Friend - It would be a huge

help if you could do <task> for me because my back has been extra sore

lately and I don't want to push it. "

Are you guys hosting a holiday dinner?

As far as the Christmas present shopping goes - that's supposed to be

the fun part :) So try to get people to help with the " boring " stuff

so you can enjoy the good stuff!

>

> How are (and did) some of you fair for your first Christmas post-op?

> I'm having alot of pain down my rt. leg from bending and moving to

get

> the decorations going. I'm going to have to have my 17 yr. old

daughter

> help me a lot. I didn't think it would be this difficult. Now---

> shopping for Christmas? I can't even think about that yet!!!

UGGGHHH!!!

> How do you do it all?

>

> Painfully yours,

> Carol

>

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I am not planning to do any decorating. I asked my kids if they

wanted to do it, and they both said they don't want to do it. One of

my daughter's friends said she would come do the decorating for me,

but I think we will go without decorations.

I did buy a couple of small decorative items for my cubicle at work.

Last year, I put a small ceramic lighted tree on the top of the roll

top desk with the gifts on the desk under the tree. It works for me.

>

> How are (and did) some of you fair for your first Christmas post-

op?

> I'm having alot of pain down my rt. leg from bending and moving to

get

> the decorations going. I'm going to have to have my 17 yr. old

daughter

> help me a lot. I didn't think it would be this difficult. Now---

> shopping for Christmas? I can't even think about that yet!!!

UGGGHHH!!!

> How do you do it all?

>

> Painfully yours,

> Carol

>

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One great thing about having had the revision surgery -- I love

shopping now! I can walk all around several shopping centers!

>

> Carol, last Christmas I wasn't driving yet, so I shopped online and

my husband drove us to my parents' for our family celebration. I'm

not typical in that we don't have kids and my husband is from Israel

and doesn't give a hoot for Christmas. I used to decorate when I had

piano students coming in, but I get no positive reinforcement for it

any more so I figure I'm doing well if i get the house clean and

light the menorah. I buy for the relatives we'll see and cook

something and that's about it.

>

> If you're shortly out of major spine surgery, or majorly in need of

it, good heavens, nobody expects you to do much, or shouldn't, and

there's really no law you have to. At least that's Green's Theory of

Scoli Christmas, and I'm sticking with it.

>

> Sharon

>

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Sharon,

you wrote: “One great thing about having had the revision surgery -- I

love

shopping now! I can walk all around several shopping centers!”

“Boy does that sound lovely! I

still haven’t done any “mall” Christmas shopping yet and I

haven’t had the revision. It’s just that my back starts hurting

after about 2-3 hours on those hard floors. Thank God for internet shopping!

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I agree with Sharon! It's great to go to the mall! I went to a mall in October in Georgia for the first time. It was next to my husband's motel room. It had two levels and I was able to walk the whole thing. My ITB went into spasms but my back never bothered me! It is great to shop for hours again! (I had my surgery 7 months ago.)

Peggy

RE: [ ] Re: Christmas

Sharon, you wrote: “One great thing about having had the revision surgery -- I love shopping now! I can walk all around several shopping centers!”

“Boy does that sound lovely! I still haven’t done any “mall” Christmas shopping yet and I haven’t had the revision. It’s just that my back starts hurting after about 2-3 hours on those hard floors. Thank God for internet shopping!

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Hi, .

That was ne, not me. Wish I could say I love walking, but I really think I have fibromyalgia, now that I can't blame the leg pain on spinal nerve issues. Once I got off the methadone the walking for exercise pretty much went out the window.

Sharon

RE: [ ] Re: Christmas

Sharon, you wrote: “One great thing about having had the revision surgery -- I love shopping now! I can walk all around several shopping centers!”

“Boy does that sound lovely! I still haven’t done any “mall” Christmas shopping yet and I haven’t had the revision. It’s just that my back starts hurting after about 2-3 hours on those hard floors. Thank God for internet shopping!

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Carol,

Please don't stress about what doesn't get done this Christmas! No

doubt your family are pleased to have a warm, loving,home to spend

the holidays at.

My advice....go the Epicurious.com site and find an interesting

Christmas Dinner menu....then print out a recipe for each

person/family to get who is coming for dinner. If you feel very much

in need of being the " doer " , you can write the shopping list that

goes with it...and tuck in the $$ to cover the expense. Give it in a

nice Christas envelope to each attendee and watch the fun they get to

have helping make something yummy.

If the internet hasn't met your shopping needs this year, how about

looking at the great crafting opportunites you can do in your own

livingroom? I have to say one of my favorite gifts I gave...was the

year I was 10 months post op. I went through my recipe book, and my

mothers, and printed out and put together a " family cookbook " . I know

if these recipes don't get " captured " they will disappear eventually!

If you feel very creative you can make them kind of as a scrap book

too...you know...putting photos of the grandmother the recipe came

from on the same page. My family loved them.

My husbands favorite gift recently was from his mom. She went through

and sorted both son's pictures into albums, kind of a " story of my

life, so far " . It really is neat to get a 40 year book...not just the

baby years!

The season is about love and sharing...not about what you buy! I am

sure you can create that right at home, despite what the retailers

want you to think. Over here in Denmark the whole thing is so much

less commercial. The stores are still closed on Saturday at 1pm...can

you believe it??!!!

Take Care,

Cam

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Sharon – I think I need a “cheat sheet” to keep

everybody, their doctors, their fusions, their families, their circumstances

straight! J It’s like when I married into my husband’s large

family of 12 siblings, spouses and 40 nieces and nephews. I don’t know

how Cam and the others do it. Merry

Christmas!

From:

[mailto: ] On Behalf Of Sharon Green

Sent: Sunday, December 09, 2007

10:44 PM

To:

Subject: Re: [ ]

Re: Christmas

Hi, .

That was ne, not me. Wish I could say I love

walking, but I really think I have fibromyalgia, now that I can't blame the leg

pain on spinal nerve issues. Once I got off the methadone the walking for

exercise pretty much went out the window.

Sharon

RE:

[ ] Re: Christmas

Sharon,

you wrote: “One great thing about having had the revision surgery -- I

love

shopping now! I can walk all around several shopping centers!”

“Boy does that sound lovely! I still

haven’t done any “mall” Christmas shopping yet and I

haven’t had the revision. It’s just that my back starts hurting

after about 2-3 hours on those hard floors. Thank God for internet

shopping!

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  • 1 year later...

To all members of the Rheumatic group,

 

I wish you all a Merry Christmas and the best for your health in 2009

 

Eva

From: soheila A <soadl80@...>

Subject: Re: rheumatic L-lysine for Rheumatide arthritise

rheumatic

Date: Saturday, December 6, 2008, 4:52 PM

Hello group

 

I was found the an intersting information about L-lysine to treat rheumatie

arthritise and related disease. 

http://www.krysalis .net/rheumatism. htm

The author is    W. Gregg, Ph.D.

He believes in mycoplasma infection as cause of the autoimmune diseases.

l-lysine is  an amino acid which apperently doesn't have side effects. I am

going to try it myself.   

 

soheila

 

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