Seizures

[Guest guest]

My son used to have seizures and I know how scary it can be. You do need to

be extra careful chelating a seizure-prone kid but seizures very often

disappear or are greatly reduced with careful chelation. The thing that made

the

most difference for my son and others I know was watching mineral levels

carefully, especially magnesium, since often mineral imbalance can trigger

seizures.

We saw a very clear pattern of rounds of liquid magnesium supplementation

would stop rounds of seizures pretty quickly. I also gave him 1-2 weeks of

liquid

multi-mineral supplements after every round of chelation and took longer

breaks in between than most people on this list do. Thankfully, he has only had

three very mild seizures since completing chelation a bit more than two years

ago. Prior to chelation, at his sickest, he was having more than ten a day.

Gaylen

[Guest guest]

One additional thought -- of the kids I know who have had big problems with

ALA, all but one were seizure-prone so I'd suggest going very slowly and

carefully if you are using ALA to chelate.

Gaylen

[Guest guest]

Hi We did just do the 60 minute eeg..I talked to her neurologist

about the 24hr one and he would do it but I know she would not leave

the electrodes in..she has alot of sensory issues with her head..he

also said he has a room we can do a longer one in but she would have

alot if issues in a confined area...I dont know what else to do..

I think we just have to watch her as close as we can to see if it

will happen again...??

> > Hi I have a question for anyone..Our Daughter Machaela had a

> seizure

> > on saturday night at 9pm, this has never happened before..she

also

> > had another one at 600am on sunday morning..the second one was

> very

> > mild..Im wondering if anyone can tell me a good place to look

for

> > information on this..her pediatric neurologic says that he will

> > count this only as one seizure as it was her first one and

> happened

> > within 24hr period of time it was sort of a cluster effect..she

> was

> > hospitalized for 2 night and is home now..we decided not to use

> anti

> > seizure medication as it was her first one..we also did a eeg

but

> > she had to be sediated and the sediation they used is also anti

> > seizure med..but we used the least amout of med we could and we

> hope

> > that it has some accurate reading..Has this happened to others

and

> > can anyone? Im so worried and scared for her...Should I continue

> > with the chelation and her other supplements?

> > Thanks in advance..

> >

[Guest guest]

Hi she is 9 years old...to young for puberty right???

-

-- In , " zookpr56 " <Mcro99@a...> wrote:

> You didn't mention how old she is but if she has reached puberty

> there seems to be a connection for girls with hormonal

fluctuations

> causing seizures at various times of the month. Progesterone

helps

> this. You can look into Catamenial (sp?) seizures.

> Michele

>

>

> > Check her taurine levels. Many mercury-toxic children are low

in

> taurine

> > and this leads to seizures. If you are moving mercury, the

taurine

> levels

> > may be affected.

> > Our son was tested and his taurine was low, so we have

supplemented

> him and

> > not seen much of seizures since.

> >

> > Barb

> > [ ] seizures

> >

> >

> > > Hi I have a question for anyone..Our Daughter Machaela had a

> seizure

> > > on saturday night at 9pm, this has never happened before..she

also

> > > had another one at 600am on sunday morning..the second one was

> very

> > > mild..Im wondering if anyone can tell me a good place to look

for

> > > information on this..her pediatric neurologic says that he will

> > > count this only as one seizure as it was her first one and

> happened

> > > within 24hr period of time it was sort of a cluster

effect..she

> was

> > > hospitalized for 2 night and is home now..we decided not to

use

> anti

> > > seizure medication as it was her first one..we also did a eeg

but

> > > she had to be sediated and the sediation they used is also anti

> > > seizure med..but we used the least amout of med we could and

we

> hope

> > > that it has some accurate reading..Has this happened to others

and

> > > can anyone? Im so worried and scared for her...Should I

continue

> > > with the chelation and her other supplements?

> > > Thanks in advance..

> > >

> > >

> > >

> > >

> > >

> > > =======================================================

> > >

[Guest guest]

Well, not really. Are you seeing any signs?? A lot of girls are

actually staring today at younger and younger ages. My daughter at

10, my sister at 9.

> > > Check her taurine levels. Many mercury-toxic children are low

> in

> > taurine

> > > and this leads to seizures. If you are moving mercury, the

> taurine

> > levels

> > > may be affected.

> > > Our son was tested and his taurine was low, so we have

> supplemented

> > him and

> > > not seen much of seizures since.

> > >

> > > Barb

> > > [ ] seizures

> > >

> > >

> > > > Hi I have a question for anyone..Our Daughter Machaela had a

> > seizure

> > > > on saturday night at 9pm, this has never happened before..she

> also

> > > > had another one at 600am on sunday morning..the second one

was

> > very

> > > > mild..Im wondering if anyone can tell me a good place to look

> for

> > > > information on this..her pediatric neurologic says that he

will

> > > > count this only as one seizure as it was her first one and

> > happened

> > > > within 24hr period of time it was sort of a cluster

> effect..she

> > was

> > > > hospitalized for 2 night and is home now..we decided not to

> use

> > anti

> > > > seizure medication as it was her first one..we also did a eeg

> but

> > > > she had to be sediated and the sediation they used is also

anti

> > > > seizure med..but we used the least amout of med we could and

> we

> > hope

> > > > that it has some accurate reading..Has this happened to

others

> and

> > > > can anyone? Im so worried and scared for her...Should I

> continue

> > > > with the chelation and her other supplements?

> > > > Thanks in advance..

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > =======================================================

> > > >

[Guest guest]

We have had remarkable response with GFCF diet for this problem!!

Since implementing it 4 years ago(once we got up to speed knowledge

wise!), we can relate almost every seizure episode to a dietary

infraction. One of the most difficult things was getting info on the

seizure med - tegretol sr had a milk coating that we/pharmacy had no

clue about. It took several calls to the manu. to get accurate info.

Our daughter had been on 600mg per day. She is down to 100mg at

bedtime-mainly because I'm fearful of taking her off totally. We have

seen NO seizures related to dosage withdrawal, which we have done

slowly. We have been chelating for almost 3 years and have seen no

seizures that I can relate to the chelation cycle. Other food items

that cause problems for her include peanut, soy and chocolate. We

also exclude the hydrogenated fats as Andy recomends. Definitely

worth a try!

From: " gongee321 " <kgongee@a...>

Date: Tue Oct 19, 2004 5:40 pm

Subject: my friends child with seizers!!!

Please help!!

My friends child. He is 3.5yrs old. On the spectrum. She told me

that he has seizurs ( 10 sec. ones few times a day). He is on medicin

that controls them. The mother would like to get him off the

medicin, because it makes him tired etc.

If anyone has or had this issue, please let us know what you did to

keep the seizurs under control without prescribed medicin?

He is not following the DAN protocol or the GFCF diet at this point.

(Never has). Has not done any chelation either.

What worked for you guys??

[Guest guest]

Llynne,

Our 19 year old has a seizure history. 'Partial complex' is the label

for what began at age nine after 3 years of bad migraines. The

episodes were infrequent at first, 2-3 times per week and progressed

to many times daily. Evaluations at a major U and Mayos produced no

help-we rejected offers of a temperol lobotomy! She was on tegretol,

tegretol sr and depakote. The depakote actually seemed to provoke

seizures with episodes occurring 1-1.5 hours after dosing- we dropped

that drug after a short time. After reading Seroussi's book in the

summer of 2000, I implemented GFCF, cold turkey. The next few days

were VERY stressful as she had what appeared to be DT like withdrawal

symptoms; 3 days of seizure after seizure, tapering by end of day 3

and gone by day 5. Once we got pure on the diet, we have been able to

relate 99.9% of seizures to a dietary infraction. Even her tegretol

had a milk coating that would trigger the seizures. They don't appear

until about 8-12 hours after eating an offending food. Usually she

will wake up with an episode, have several throughout the day(12-18)

and taper by bedtime. She has gone from 600-800mg tegretol per day to

100mg at bedtime( mainly for my mental health!) since then. Also in

the summer of 2000, she had IgG testing for gluten and casein which

showed very elevated levels to both. Neither traditional/non

traditional allergy testing nor the Great Plains profile ever showed

this. She remains quite sensitive to both gluten and casein. This

fall she had a day of seizures in mid Sept and another just one

seizure last week- a far cry fron the many daily that we used to see.

None of the chelating we have done has been associated with seizures.

She does get more irritable sometimes - what I call 'pre-seizure

behavior' but we've not seen it progress to seizures with either

DMSA, ALA or td-DMPS. Her liver function studies have also remained

normal with all this. Thyroid function still stinks though.

Improvements that have come about include a gradual awakening of what

you and I think of as normal sensory function-hands and feet are no

longer 'asleep', bluish in color or stone cold. Cuts and scrapes get

attention now. She'll wear hats, coats and mittens in the winter

without protest. She's reading the paper and talking about the school

sports teams-generally much more interested in the world about her.

Pupils are beginning to respond normally to light. One thing that we

have seen for a long time now is urinary urgency and frequency that

begins about 24 hours into a round and subsides within a day after

the round is over. I hope this means that her pituitary is getting

cleared. We did a few rounds of the td-DMPS late this summer and

early fall. We were unable to work up to more that 6-8 gtts per day

without seeing a nasty, right sided skin rash. The rash did respond

to an otc yeast cream but was quite severe and has left scars. We've

gone back to DMSA/ALA on a 3/4 cycle. In reading the Minimata long

term follow ups, it seems that our childrens' symtoms of poisoning

will only worsen with time unless we do the positive interventions

NOW that can clear some of the toxins. For me, that would mean that I

would live with some extra seizures now to clear her system as best

that I can. We lost our neurologist of 9 years because he did

not 'like' the idea of chelation. He was convinced that there were no

symptoms of mercury poisoning-even though our child had approx 85% of

the symptom's outlined on the 2 page synopsis of the paper by Redwood

et al. He refused to run any of the tests that Andy suggests to

comfirm. He would not even do a thyroid profile on a child who could

not stay awake during a normal day. I did/do have the support of an

internist who usually run the tests I request. I also use Direct lab

Services for those he won't authorize, if I feel a need for

verification. I would urge you to look upon these folks with the

credentials as 'consultants' who can help you along the way, if

they/you choose. You don't have to divulge all of your choices for

your child to them. The seizure history has allowed us to keep track

of liver function, electrolytes, CBC, all with the 'blessings of

mainstream' with no mention that our primary concern involves

chelation. Once I found the mercury connection, I knew the problem.

It was intimidating to begin chelation without any support but the

benfits for our daughter have been worth it. Thankfully, you both

have much time on your sides that we did not. Your children are

young! and need your help!!

>>From: " " <joeycmiller@s...>

>>Date: Mon Nov 29, 2004 11:03 pm

>>Subject: Re: Chelating & Seizure disorders

>>Hi Llynne,

I have the same concerns as you too. My daughter has a severe

seizure disorder also. We have an appointment at the end of December

to discuss TD DMPS. Meanwhile we will see her neurologist to see

what he says too. I don't know if he will give us any answers and

may not even like the idea of chelation. I did post a question not

long ago to some of the lists and the replies aid that their

children's seizures improved. However I don't think that any of the

children had near the number of seizures that your son or my

daughter have.

My daughter is on Depakote and Phenobarbitol and I'm not sure how

chelation will affect any of the medications.

>

> Hello,

>

> I haven't been on this list for awhile. Is anyone on this list

> chelating themselves or a child that is taking medication for a

> seizure disorder?

>

> There is some concern about a possible contradiction. We are

> hoping to start TD-DMPS with my 8-year old son, who is taking

> Tegretol for Frontal Temperal Lobe seizures as well as partial

> complex seizures. We just started the Tegretol when latest EEG

> showed multiple seizures (at least 10 per hour). He has had a big

> regression over the past year and has become dangerously

aggressive.

>

> I would really like to hear from ANYBODY who is chelation with

TD-

> DMPS and has discussed any issues with their doctors concerning

> seizures and medication.

>

> Thank You so much,

>

> Llynne

[Guest guest]

>

> Llynne,

> Our 19 year old has a seizure history. 'Partial complex' is the

label

> for what began at age nine after 3 years of bad migraines. The

> episodes were infrequent at first, 2-3 times per week and

progressed

> to many times daily.

Hi ,

Thank you for writting this..My son is 18 years old and has

Lennox Gastaut syndrome, He has gone through periods of having

hundreds and hundreds of seizures in a day, He was in ICU in status

seizures hooked up to a 24 hr EEG He was having 10-15 sec breaks

from seizing about every 15-20 minutes. I have been so scared to

chelate him because of his medicine. You are the first one I have

seen that has chelated with severe seizures. My son did terrible

with Tegretol. He is on Lamictal and Nitrazepam. We switched

Depakene for Lamictal, I want to switch back to the Depakene and get

rid of the lamictal, I think Depakene is safer.

What you said about our kids getting worse with age is true. My son

is getting worse. He has no fillings and has never had fish in his

life. He is on a pureed diet. He is having trouble now with liquids,

he refuses to drink. This has been an ongoing issue for a few years

off and on.

I wish I would have known all of this years ago, Before I had

children. It hurts so much knowing there are children who could be

saved through chelation, and Mercury poisoning can be PREVENTED. We

live in a sick society that cares more about corporation profits

then sick children, This is so disgraceful.

Donna

[Guest guest]

Seizures have been well controlled for our daughter once we found

the food connection. Before that, she had been on tegretol and

depakote, escalating doses with absolutely NO relief from the

seizures. We saw several dozen per day at one point. Keeping her on a

gfcf diet has been remarkable for controlling the seizures. Peanut,

chocolate(even without the casein) soy, high phenols, dyes also

produce a pre seizure irritability and sometimes lead into seizures.

None of these seizure episodes occur directly after ingesting an

offending item. It usually takes 8-12 hours to see the seizure

response. I generally find a hidden item/wrapper hidden in her

closet. We have been able to reduce her medication, tegretol sr, to

100mg at bedtime(110# 20 year old). Our doc calls this a 'homeopathic

dose.' I'm reluctant to discontinue it completely. We have chelated

for 3+ years now and have seen no seizure response that I can relate

to chelation. We do see some irritability sometimes. I don't know

about 'safe to chelate' while on the drug. I looked at our daughter's

seizures as a response to her overall toxicty and could not justify

NOT chelating no matter what medicine she was taking.

From: " Loida " <lmonta99@h...>

Date: Fri Jan 14, 2005 8:18 am

Subject: Lamictal

My 3 1/2 year-old autistic son has just been prescribed Lamictal for

the seizures he's having while asleep. We never even knew he was

suffering from seizures. An EEG showed that he has seizures in both

temporal lobes which affect speech. No wonder he is still non-

verbal. I am just wondering if anyone has any advice or insight on

this drug or condition. I believe the heavy metal toxicity is

contributing to the seizures. Has anyone here stopped having

seizures after detoxifying? Has anyone had a good or bad experience

with Lamictal? Is it safe to chelate while on this drug? I haven't

started chelation on him yet but was about to. Now I don't know if

it'll be safe. Any info will be greatly appreciated.

[Guest guest]

From: " joannet633 " <kjt@h...>

Joanne,

Seizures for our daughter were/are directly related to gluten and

casein intake. Once we found this connection 4.5yrs ago we can

related almost every episode to a dietary infraction. She was 15 when

we implemented dietary restrictions. It took awhile to refine it -

even her seizure med had a milk coating on it. It took quite some

time for the pharm maker to own up to that- several months and many

phone calls. We did the gluten and casein withdrawal suddenly. It was

3 days of he.. with many, many seizures; tapering by the end of day 3

and gone by day 5. Intake of either of these substances still results

in seizures about 8-12 hours after ingestion. She will have a day

full of seizures-up to 2 dozen or so and then be done with it. Her's

have not been labelled with 'tonic-clonic' although some are close to

this. Other things that cause neuro irritability for her include

peanut, chocolate, soy, high, quick carb eating. Andy suggested

elimination of hydrogenated fats and that has helped also. We've been

chelating for 3 yrs, have seen slow, steady improvements. Please post

the hair test so folks on the list can give you feed back. This is

the greatest group for help and support. 14 years is NOT too old for

help!!

Date: Mon Jan 31, 2005 3:07 am

Subject: DDI test results

Hi, I've reviewed the Counting rules but am not sure. If any of you

could take a look at our DDI hair test results that I just posted in

the Files section, I'd really appreciate it. They're

under " Joanne/Jordan " for myself and our son.

Jordan is 14yo, has PDD, osteoporosis and a severe, intractable

seizure disorder. And while he has many developmental issues and

concerns, his seizure disorder is probably the most troubling. We've

just about tried everything but still he has anywhere from 5-20 tonic

clonic seizures daily. I don't know what his future holds but we'll

keep on plugging away until we get some answers.

Thanks! Joanne

[Guest guest]

Thanks for the info. Our hair results are posted

under " Files " , " DDI Hair Results " , then " Joanne/Jordan test

results " .

Is there a good site that I can learn more about gluten and casein

problems? Do these metabolic problems all stem from some metal

toxicity? Being a newbie to all of this....does chelating usually

take that long?

Thanks again! Joanne

>

> From: " joannet633 " <kjt@h...>

> Joanne,

> Seizures for our daughter were/are directly related to gluten and

> casein intake. Once we found this connection 4.5yrs ago we can

> related almost every episode to a dietary infraction. She was 15

when

> we implemented dietary restrictions. It took awhile to refine it -

> even her seizure med had a milk coating on it. It took quite some

> time for the pharm maker to own up to that- several months and many

> phone calls. We did the gluten and casein withdrawal suddenly. It

was

> 3 days of he.. with many, many seizures; tapering by the end of day

3

> and gone by day 5. Intake of either of these substances still

results

> in seizures about 8-12 hours after ingestion. She will have a day

> full of seizures-up to 2 dozen or so and then be done with it.

Her's

> have not been labelled with 'tonic-clonic' although some are close

to

> this. Other things that cause neuro irritability for her include

> peanut, chocolate, soy, high, quick carb eating. Andy suggested

> elimination of hydrogenated fats and that has helped also. We've

been

> chelating for 3 yrs, have seen slow, steady improvements. Please

post

> the hair test so folks on the list can give you feed back. This is

> the greatest group for help and support. 14 years is NOT too old

for

> help!!

>

>

> Date: Mon Jan 31, 2005 3:07 am

> Subject: DDI test results

>

>

> Hi, I've reviewed the Counting rules but am not sure. If any of you

> could take a look at our DDI hair test results that I just posted in

> the Files section, I'd really appreciate it. They're

> under " Joanne/Jordan " for myself and our son.

>

> Jordan is 14yo, has PDD, osteoporosis and a severe, intractable

> seizure disorder. And while he has many developmental issues and

> concerns, his seizure disorder is probably the most troubling. We've

> just about tried everything but still he has anywhere from 5-20

tonic

> clonic seizures daily. I don't know what his future holds but we'll

> keep on plugging away until we get some answers.

>

> Thanks! Joanne

[Guest guest]

Trileptal depletes

biotin

calcium

folic acid

Vit D

according to Drug Induced Nutrient Depletion Handbook, by 4 pharmacists...

Pelton, LaValle, Hawkins and Krinsky

Maybe this info wil help??

-GA

seizures

Hi, recently Machaela has had seizures..only 2 in 4 months but we

started her on seizures meds..we used carbatrol 1st but she was so

sleepy all day we switched to trileptal..here is the issues, she did

really well on it for 2 weeks, very happy, smiling all the time,

sleeping well, now all of a sudden she is moody, throws tantrums if

you tell her no, not sleeping so well, and also needs alot of

sensory, deep pressure and obsessed with things....She has had all

these issues before but now it even seems worse..she is also getting

peptizyde, zyme prime, mg, zn ,carnosine, ca at night, I cant figure

out why she did so well when she started on the trileptal and now

its totally opposite. Any ideals or suggestions? she gets so upset

and its very hard to calm her down, she is so loving at times then

boom total change...We really need help pls let me know anyones

thoughts...

Machaela is 9 years old...also deaf

thanks

[Guest guest]

Hi,

I am giving her Calcium but maybe not enough, should I add biotin,

Folic acid and vit d..?? if so how much do you think...

She had a awful day at school, she was sreaming and tantrum and

had a real bad meltdown...pls help with any suggestions...

Thanks

> Trileptal depletes

> biotin

> calcium

> folic acid

> Vit D

> according to Drug Induced Nutrient Depletion Handbook, by 4

pharmacists... Pelton, LaValle, Hawkins and Krinsky

>

>

> Maybe this info wil help??

> -GA

> seizures

>

>

>

>

> Hi, recently Machaela has had seizures..only 2 in 4 months but

we

> started her on seizures meds..we used carbatrol 1st but she was

so

> sleepy all day we switched to trileptal..here is the issues, she

did

> really well on it for 2 weeks, very happy, smiling all the time,

> sleeping well, now all of a sudden she is moody, throws tantrums

if

> you tell her no, not sleeping so well, and also needs alot of

> sensory, deep pressure and obsessed with things....She has had

all

> these issues before but now it even seems worse..she is also

getting

> peptizyde, zyme prime, mg, zn ,carnosine, ca at night, I cant

figure

> out why she did so well when she started on the trileptal and

now

> its totally opposite. Any ideals or suggestions? she gets so

upset

> and its very hard to calm her down, she is so loving at times

then

> boom total change...We really need help pls let me know anyones

> thoughts...

> Machaela is 9 years old...also deaf

> thanks

>

>

>

>

>

>

>

>

[Guest guest]

>

>

> Hi,

> I am giving her Calcium but maybe not enough, should I add biotin,

> Folic acid and vit d..?? if so how much do you think...

Biotin depletes magnesium and causes major constipation and muscle

cramps unless you give it with magnesium. However, when I added

biotin and magnesium, my son improved. So definitely something to

consider. Just watch for those issues and add magnesium accordingly.

I give 500 mcg biotin and 150 mg magnesium per day for my kids.

Dana

[Guest guest]

Hi how much vit d should I give..I am just so worried right now, 2

days now I had to pick her up at school, she is just having alot of

melt downs, they cant get her to to anything, she is happy when she

first comes into school, then when they ask her to do anything she

freaks out, all she wants to do is walk or be pulled in the wagon,

they bring her to the OT gym and she is ok but then when they leave

its terrible...everything is obsessive, if she eats shes obsessed

with it, if she stems shes obsessed with it, etc etc, I dont know

what to so, I feel like I am lost and I need to help find out what

is wrong. She also is very happy then all of a sudden will get so

upset for no reason, head banging and screaming, this also happens

at home, but not as bad..What about TMG ?? or does anyone have any

personal experiences with autism and seizures...Why would the

Trileptal seems to work the first 10 day and now she is going at a

very down ward sprial...Please please can anyone offer me any

support or guidance...

Thanks

Mother of Machalea 9years old...

> >

> >

> > Hi,

> > I am giving her Calcium but maybe not enough, should I add

biotin,

> > Folic acid and vit d..?? if so how much do you think...

>

>

> Biotin depletes magnesium and causes major constipation and muscle

> cramps unless you give it with magnesium. However, when I added

> biotin and magnesium, my son improved. So definitely something to

> consider. Just watch for those issues and add magnesium

accordingly.

> I give 500 mcg biotin and 150 mg magnesium per day for my kids.

>

> Dana

[Guest guest]

>

> Hi how much vit d should I give..

I don't know. You can start at USRDA and work up if required.

I am just so worried right now, 2

> days now I had to pick her up at school, she is just having alot of

> melt downs, they cant get her to to anything, she is happy when she

> first comes into school, then when they ask her to do anything she

> freaks out, all she wants to do is walk or be pulled in the wagon,

> they bring her to the OT gym and she is ok but then when they leave

> its terrible...everything is obsessive, if she eats shes obsessed

> with it, if she stems shes obsessed with it, etc etc,

This sounds like possibly an environmental allergy to something in her

regular classroom [carpet cleaner, teacher's perfume, bug killer, mold

in a/c ducts, etc] or she is being mistreated by someone in that

classroom.

>>Why would the

> Trileptal seems to work the first 10 day and now she is going at a

> very down ward sprial...

Check the side effects of that medication, see if you notice something

http://www.danasview.net/parent3.htm#medications

Or she might not tolerate the medication, you should discuss changing

it with her doctor.

Dana

[Guest guest]

Thank you dana, I will check into the enviroment, I sometimes think

its the winter time...I can say that I know she is not being abused

put we always have to consider this..and thanks for the info on the

rx..

> >

> > Hi how much vit d should I give..

>

>

> I don't know. You can start at USRDA and work up if required.

>

>

> I am just so worried right now, 2

> > days now I had to pick her up at school, she is just having alot

of

> > melt downs, they cant get her to to anything, she is happy when

she

> > first comes into school, then when they ask her to do anything

she

> > freaks out, all she wants to do is walk or be pulled in the

wagon,

> > they bring her to the OT gym and she is ok but then when they

leave

> > its terrible...everything is obsessive, if she eats shes

obsessed

> > with it, if she stems shes obsessed with it, etc etc,

>

>

> This sounds like possibly an environmental allergy to something in

her

> regular classroom [carpet cleaner, teacher's perfume, bug killer,

mold

> in a/c ducts, etc] or she is being mistreated by someone in that

> classroom.

>

>

> >>Why would the

> > Trileptal seems to work the first 10 day and now she is going at

a

> > very down ward sprial...

>

>

> Check the side effects of that medication, see if you notice

something

>

> http://www.danasview.net/parent3.htm#medications

>

> Or she might not tolerate the medication, you should discuss

changing

> it with her doctor.

>

> Dana

[Guest guest]

I would just like to add that it's true seizure meds do deplete

nutrients, a big however is that you want to be careful if you

decide to makeup for those nutrients with supplements, then you

could be lowering the seizure threshold. There are known ways

certain seizure meds work and there are unknown ways. It is not

understood if this depletion of nutrients actually helps to stop the

seizure (especially the B vitamins). I would do a lot of reading

before I added any vitamins over the " flintstone " doses. (My

daughter is on depakene for seizures).

Mindy

>

> Hi, recently Machaela has had seizures..only 2 in 4 months but we

> started her on seizures meds..we used carbatrol 1st but she was so

> sleepy all day we switched to trileptal..here is the issues, she

did

> really well on it for 2 weeks, very happy, smiling all the time,

> sleeping well, now all of a sudden she is moody, throws tantrums

if

> you tell her no, not sleeping so well, and also needs alot of

> sensory, deep pressure and obsessed with things....She has had all

> these issues before but now it even seems worse..she is also

getting

> peptizyde, zyme prime, mg, zn ,carnosine, ca at night, I cant

figure

> out why she did so well when she started on the trileptal and now

> its totally opposite. Any ideals or suggestions? she gets so upset

> and its very hard to calm her down, she is so loving at times then

> boom total change...We really need help pls let me know anyones

> thoughts...

> Machaela is 9 years old...also deaf

> thanks

[Guest guest]

We've been able to tie almost every seizure episode to a dietary

infraction since beginning gfcfsf. I have very slowly withdrawn

seizure med. Even at high doses, it was not providing anti convulsant

activity and we were seeing many seizures per day[before gfcfsf]. In

2001, we lost our neurologist over the vaccine/mercury/seizure

connection as he refused to even read info I brought him and told us

he would not see our daughter anymore. We are getting pressured now to

give seizure meds again[by a really great doc who has no neuro

expertise]. She still responds this way with a dietary infraction-she

plugs machines at school etc so there is approx 1 episode per month

that I usually don't call anyone about. We use UltraseMT 18 with food

and sometimes dipan-9[Thorne product] which has helped to normalize

stool. We've been through the mill of enzymes. No plant based ones are

tolerated. My question is are there any enzymes, script or otherwise,

which will prevent seizures with an accidental infraction? Does anyone

know if celiacs[not an official dx here] who respond with seizures are

helped by anticonvusants/which ones? if they ever outgrow this

response? IgA plummented years ago and has stayed 'not measurable.'

Any way to get this up and going again? Thanks,

[Guest guest]

> when we also added daily extra B6, and now she doesn't need the pain

> pills either. People have a lot of biochemical individuality as far

> as their need for B6 (or in some cases P5P, (which is a partially

> metabolized form of B6). There is a possibility that it (regular use

> of 25 or 50 mg of B6) might help your daughter.

I have a seizure recovery story using B vitamins, at the bottom of

this page

http://www.danasview.net/vitamina.htm

Dana

[Guest guest]

Sue,

What caused your son's seizure?

Patty

>

> Shari this is awful, I know from personal experience how scary it

is to

> watch, my son had a seizure years ago.

> I have heard of women having seizures but thought that it only

happened

> before they got the implants out and if I am correct you have had

yours removed

> for some years.

>

>

> I am not of any help I know but I wanted to wish you well and hope

you find

> out what triggered this attack.

>

> Love Sue.

>

[Guest guest]

Lecithin is supposed to help nerves heal. High-ish doses of vitamin c

(like 2 grams or more a day) is supposed to help tissue healing in

general.

You probably already know this, but raw milk contains a lot to aid in

nervous system growth.

I have a distant cousin whose daughter lost some 80% of her brain at 2

months from an anyrism. They've tried all kinds of stuff to help her

brain re-grow and heal. And they've had some success, she's not a

vegetable in fact they have hopes of getting her somewhat mobile on

her own and she can communicate a little. They even found some outfit

that will sell you sheep's brain to inject into the kids - somehow the

injected brain cells help the body to re-grow brain cells. I'm not so

sure of that one, but I'd guess eating brain wouldn't hurt, at least

it would have the building blocks.

--- In , Idol <Idol@...>

wrote:

>

> The daughter of a friend of mine is having seizures after a car

> accident, and I'm wondering what to recommend besides a low-carb,

> high-fat diet. Any thoughts? References?

>

>

>

> -

>

[Guest guest]

Here's one reference:

http://www.healthworks2000.com/Lecithin%20and%20Choline%20Redeemed.htm

--- In , " haecklers " <haecklers@...>

wrote:

>

> Lecithin is supposed to help nerves heal.

[Guest guest]

Magnesium supplementation might help as well, as I was looking for

references for the lecithin supplements, I came across several about

magnesium reducing the frequency of seizures, here's a typical

reference

http://www.life-enthusiast.com/twilight/research_magnesiumchloride.htm

--- In , Idol <Idol@...>

wrote:

>

> The daughter of a friend of mine is having seizures after a car

> accident, and I'm wondering what to recommend besides a low-carb,

> high-fat diet. Any thoughts? References?

>

>

>

> -

>

[Guest guest]

MSG and also aspartame are known to cause seizures in those

susceptible to them and also headaches, which some say are precursors

to seizures. Since they interfere with the flow of GABA, which is

known to inhibit seizures, that makes a lot of sense. I read a study

where they used MSG to induce seizures in rats for a study. Since she

has this injury that's causing the seizures, she should probably avoid

MSG and aspartame, at least until she's healed.

As far as the GABA supplementation, as far as I could tell from my

brief review, it's more likely to be a problem for the 50% of people

born with epilepsy, though keeping the GABA levels up will certainly

help those who have seizures from injury. GABA taken orally is poorly

utilized in the brain and the best way to get it is to maintain good

populations of the beneficial bacteria in the gut that make it by

consuming oligiosaccharides and possibly some s. boulardii or

probiotics to get rid of any pathogenic or even neutral bacteria

taking up space there. The drugs that try to increase GABA levels in

the brain often have pretty bad side effects (like hallucinations) and

are sometimes addictive, like valium.