Guest guest Posted December 13, 2010 Report Share Posted December 13, 2010 My grandson has been on going on 3 yrs.reading these post about older children on this protcol having more difficult time getting better. He has improved tremendously on awareness, alertness, eye contact physically more healthy(days not felling well) still not much speech. We do speech therapy O.T.Music therapy ect. He has days when he is great happy, participating in play,then next day he can be totally opposite back to not sleeping, not eating, all the PANDAS symptoms. Reading these post thinking the antibiotic (Erped) is not working anymore he has been on this for a yr. QUESTION FOR ANYONE WITH A DIFFICULT CASE?? Has your child done this? If so what is the next step? Is there another antibiotic that will work for him? We live in Ohio do ph. consults with Dr. G. my daughter is consulting thru E-Mail also just wondering what parents with children this age are doing. We are always very optimistic & believe this is the right treatment for him also know this is a long road ahead for him to get better.Very difficult seeing all these ups & downs. Thanks Carole Quote Link to comment Share on other sites More sharing options...
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