Re: ssri's/NK counts, Lymes Disease/XMRV, etc

[Guest guest]

Thank you, Gaylen, for responding.  I really appreciate the input.  I feel

like

a skydiver ready to jump out, but who is clenching the sides of the opening for

dear life.

How old is your son and what kind of quick positive results did you see?  Does

he keep advancing? 

My son is 9 and just learning to read.  He has memorized many Dolche sight

words

and we are working ever so slowly on math facts.  Handwriting is still not

great.  But he is a fabulous bright loving kid!  He has a NK count of 1,

though!  He has reddish circles under his eyes, is quite slender, and has had

constipation issues.  He is foggy a lot of the time, echolalia's scripts or

lines from movies, and has had a siezure disorder that was diagnosed when he was

6 months old.  That summer of 2001, when I was nursing him I was bit by a deer

tick, which I didn't find for 72 hours!!! I started with joint pain almost

immediately, but did not get treated for Lymes until 2008!  And neither did

he. 

We both continue antibiotic treatment for this.  Apparently, there could be a

connection of XMRV with Lymes and Autism.  I gave blood for the study this

summer, but haven't heard back whether I tested positive or not.

We did Neurofeedback this summer and it unlocked a veritable torrent of

language, clarity, and social/familial interaction.  I'm happy to hear Dr G

supports NF.

Do you guys think Dr G could help my son?

Thank you so much, Sheryl

 

________________________________

From: " Googahly@... " <Googahly@...>

Sent: Tue, December 7, 2010 7:39:08 AM

Subject: Re: ssri's

 

From my understanding in talking to various doctors and people who have

used SSRIs, it varies greatly with the individual. My son and husband have

either had very quick positive results from various SSRIs or very quick

negative side effects. The longest either of them ever stuck with one that

didn't fit was a month and the symptoms did not improve until it was removed,

even with dosage changes. It then took a few weeks for things to level

off.

On one, my son did extraordinarily well for the first month and then some

dark thoughts started creeping in. These were more his fears about various

friends dying or bad things happening to people, rather than the suicidal

thoughts they warn to watch for. Since he a few of his friends died when

younger, fearing friends dying wasn't a new thing, it just became much

stronger and more obsessive. I think other negative side effects many

experience are also possibly a worsening of something that is already there

rather

than brand new problem.

SSRIs can be tremendously helpful but you do need to watch carefully and

alert the doc right away if there are any negatives, even a few months in.

Gaylen

In a message dated 12/7/2010 12:28:07 A.M. Central Standard Time,

ssaturnino@... writes:

I need to hear from you regarding ssri's. Does every one have a hard time

after starting them? Have your kids worked through a tough time on one or

did you switch and things got better?

[Guest guest]

Sheryl,

Your son sounds so much like my mild/mod " A " word son, Noah. He turned 10 in

June. He was very ill with a variety of neuro issues. I couldn't believe the

improvement after a year on the protocol. We still have a long way to go but are

consistently moving forward now.

All the best,

Robyn

From: Sheryl Saturnino <ssaturnino@...>

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

Date: Tuesday, December 7, 2010, 10:28 AM

 

Thank you, Gaylen, for responding.  I really appreciate the input.  I

feel like

a skydiver ready to jump out, but who is clenching the sides of the opening for

dear life.

How old is your son and what kind of quick positive results did you see?  Does

he keep advancing? 

My son is 9 and just learning to read.  He has memorized many Dolche sight

words

and we are working ever so slowly on math facts.  Handwriting is still not

great.  But he is a fabulous bright loving kid!  He has a NK count of 1,

though!  He has reddish circles under his eyes, is quite slender, and has had

constipation issues.  He is foggy a lot of the time, echolalia's scripts or

lines from movies, and has had a siezure disorder that was diagnosed when he was

6 months old.  That summer of 2001, when I was nursing him I was bit by a deer

tick, which I didn't find for 72 hours!!! I started with joint pain almost

immediately, but did not get treated for Lymes until 2008!  And neither did

he. 

We both continue antibiotic treatment for this.  Apparently, there could be a

connection of XMRV with Lymes and Autism.  I gave blood for the study this

summer, but haven't heard back whether I tested positive or not.

We did Neurofeedback this summer and it unlocked a veritable torrent of

language, clarity, and social/familial interaction.  I'm happy to hear Dr G

supports NF.

Do you guys think Dr G could help my son?

Thank you so much, Sheryl

 

________________________________

From: " Googahly@... " <Googahly@...>

Sent: Tue, December 7, 2010 7:39:08 AM

Subject: Re: ssri's

 

From my understanding in talking to various doctors and people who have

used SSRIs, it varies greatly with the individual. My son and husband have

either had very quick positive results from various SSRIs or very quick

negative side effects. The longest either of them ever stuck with one that

didn't fit was a month and the symptoms did not improve until it was removed,

even with dosage changes. It then took a few weeks for things to level

off.

On one, my son did extraordinarily well for the first month and then some

dark thoughts started creeping in. These were more his fears about various

friends dying or bad things happening to people, rather than the suicidal

thoughts they warn to watch for. Since he a few of his friends died when

younger, fearing friends dying wasn't a new thing, it just became much

stronger and more obsessive. I think other negative side effects many

experience are also possibly a worsening of something that is already there

rather

than brand new problem.

SSRIs can be tremendously helpful but you do need to watch carefully and

alert the doc right away if there are any negatives, even a few months in.

Gaylen

In a message dated 12/7/2010 12:28:07 A.M. Central Standard Time,

ssaturnino@... writes:

I need to hear from you regarding ssri's. Does every one have a hard time

after starting them? Have your kids worked through a tough time on one or

did you switch and things got better?

[Guest guest]

Thanks, Robyn!  That is very encouraging!  Did he have siezures or Lyme?  If

so,

have they improved?

Thanks,

Sheryl

________________________________

From: Robyn & Greg Coggins <rngcoggs@...>

Sent: Tue, December 7, 2010 10:46:42 AM

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

 

Sheryl,

Your son sounds so much like my mild/mod " A " word son, Noah. He turned 10 in

June. He was very ill with a variety of neuro issues. I couldn't believe the

improvement after a year on the protocol. We still have a long way to go but are

consistently moving forward now.

All the best,

Robyn

From: Sheryl Saturnino <ssaturnino@...>

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

Date: Tuesday, December 7, 2010, 10:28 AM

 

Thank you, Gaylen, for responding.  I really appreciate the input.  I feel

like

a skydiver ready to jump out, but who is clenching the sides of the opening for

dear life.

How old is your son and what kind of quick positive results did you see?  Does

he keep advancing? 

My son is 9 and just learning to read.  He has memorized many Dolche sight

words

and we are working ever so slowly on math facts.  Handwriting is still not

great.  But he is a fabulous bright loving kid!  He has a NK count of 1,

though!  He has reddish circles under his eyes, is quite slender, and has had

constipation issues.  He is foggy a lot of the time, echolalia's scripts or

lines from movies, and has had a siezure disorder that was diagnosed when he was

6 months old.  That summer of 2001, when I was nursing him I was bit by a deer

tick, which I didn't find for 72 hours!!! I started with joint pain almost

immediately, but did not get treated for Lymes until 2008!  And neither did

he. 

We both continue antibiotic treatment for this.  Apparently, there could be a

connection of XMRV with Lymes and Autism.  I gave blood for the study this

summer, but haven't heard back whether I tested positive or not.

We did Neurofeedback this summer and it unlocked a veritable torrent of

language, clarity, and social/familial interaction.  I'm happy to hear Dr G

supports NF.

Do you guys think Dr G could help my son?

Thank you so much, Sheryl

 

________________________________

From: " Googahly@... " <Googahly@...>

Sent: Tue, December 7, 2010 7:39:08 AM

Subject: Re: ssri's

 

From my understanding in talking to various doctors and people who have

used SSRIs, it varies greatly with the individual. My son and husband have

either had very quick positive results from various SSRIs or very quick

negative side effects. The longest either of them ever stuck with one that

didn't fit was a month and the symptoms did not improve until it was removed,

even with dosage changes. It then took a few weeks for things to level

off.

On one, my son did extraordinarily well for the first month and then some

dark thoughts started creeping in. These were more his fears about various

friends dying or bad things happening to people, rather than the suicidal

thoughts they warn to watch for. Since he a few of his friends died when

younger, fearing friends dying wasn't a new thing, it just became much

stronger and more obsessive. I think other negative side effects many

experience are also possibly a worsening of something that is already there

rather

than brand new problem.

SSRIs can be tremendously helpful but you do need to watch carefully and

alert the doc right away if there are any negatives, even a few months in.

Gaylen

In a message dated 12/7/2010 12:28:07 A.M. Central Standard Time,

ssaturnino@... writes:

I need to hear from you regarding ssri's. Does every one have a hard time

after starting them? Have your kids worked through a tough time on one or

did you switch and things got better?

[Guest guest]

Yes, he had a seizure disorder and a neurological condition called Cyclical

Vomiting Syndrome. He would vomit for a week out of every month and get

debilitating migraines. Doctors at UCLA said there was no cure and could only

give us Zofran for nausea and vomiting, but it never stopped the episodes. Four

months into the protocol, the vomiting stopped and the frequency of

migraines were reduced considerably. Now he rarely has even headaches now. We

weaned him off seizure meds last year and he's had no re-occurrence of seizures.

My oldest son (Asperger's) also had seizures and he has been successfully weaned

from meds for that.

Regarding NK cells, two of my boys have low NKs and both have seen improvement

on the protocol. My oldest just reached 9%. He was under 3% before treatment.

HTH,

Robyn

From: Sheryl Saturnino <ssaturnino@...>

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

Date: Tuesday, December 7, 2010, 10:28 AM

 

Thank you, Gaylen, for responding.  I really appreciate the input.  I feel

like

a skydiver ready to jump out, but who is clenching the sides of the opening for

dear life.

How old is your son and what kind of quick positive results did you see?  Does

he keep advancing? 

My son is 9 and just learning to read.  He has memorized many Dolche sight

words

and we are working ever so slowly on math facts.  Handwriting is still not

great.  But he is a fabulous bright loving kid!  He has a NK count of 1,

though!  He has reddish circles under his eyes, is quite slender, and has had

constipation issues.  He is foggy a lot of the time, echolalia's scripts or

lines from movies, and has had a siezure disorder that was diagnosed when he was

6 months old.  That summer of 2001, when I was nursing him I was bit by a deer

tick, which I didn't find for 72 hours!!! I started with joint pain almost

immediately, but did not get treated for Lymes until 2008!  And neither did

he. 

We both continue antibiotic treatment for this.  Apparently, there could be a

connection of XMRV with Lymes and Autism.  I gave blood for the study this

summer, but haven't heard back whether I tested positive or not.

We did Neurofeedback this summer and it unlocked a veritable torrent of

language, clarity, and social/familial interaction.  I'm happy to hear Dr G

supports NF.

Do you guys think Dr G could help my son?

Thank you so much, Sheryl

 

________________________________

From: " Googahly@... " <Googahly@...>

Sent: Tue, December 7, 2010 7:39:08 AM

Subject: Re: ssri's

 

From my understanding in talking to various doctors and people who have

used SSRIs, it varies greatly with the individual. My son and husband have

either had very quick positive results from various SSRIs or very quick

negative side effects. The longest either of them ever stuck with one that

didn't fit was a month and the symptoms did not improve until it was removed,

even with dosage changes. It then took a few weeks for things to level

off.

On one, my son did extraordinarily well for the first month and then some

dark thoughts started creeping in. These were more his fears about various

friends dying or bad things happening to people, rather than the suicidal

thoughts they warn to watch for. Since he a few of his friends died when

younger, fearing friends dying wasn't a new thing, it just became much

stronger and more obsessive. I think other negative side effects many

experience are also possibly a worsening of something that is already there

rather

than brand new problem.

SSRIs can be tremendously helpful but you do need to watch carefully and

alert the doc right away if there are any negatives, even a few months in.

Gaylen

In a message dated 12/7/2010 12:28:07 A.M. Central Standard Time,

ssaturnino@... writes:

I need to hear from you regarding ssri's. Does every one have a hard time

after starting them? Have your kids worked through a tough time on one or

did you switch and things got better?

[Guest guest]

Goodness, Robyn!  Now THAT is encouraging!!!  Wow!  That makes me very

excited!

Thank you so much for sharing that!

Sheryl

________________________________

From: Robyn & Greg Coggins <rngcoggs@...>

Sent: Tue, December 7, 2010 11:12:08 AM

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

 

Yes, he had a seizure disorder and a neurological condition called Cyclical

Vomiting Syndrome. He would vomit for a week out of every month and get

debilitating migraines. Doctors at UCLA said there was no cure and could only

give us Zofran for nausea and vomiting, but it never stopped the episodes. Four

months into the protocol, the vomiting stopped and the frequency of

migraines were reduced considerably. Now he rarely has even headaches now. We

weaned him off seizure meds last year and he's had no re-occurrence of seizures.

My oldest son (Asperger's) also had seizures and he has been successfully weaned

from meds for that.

Regarding NK cells, two of my boys have low NKs and both have seen improvement

on the protocol. My oldest just reached 9%. He was under 3% before treatment.

HTH,

Robyn

From: Sheryl Saturnino <ssaturnino@...>

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

Date: Tuesday, December 7, 2010, 10:28 AM

 

Thank you, Gaylen, for responding.  I really appreciate the input.  I feel

like

a skydiver ready to jump out, but who is clenching the sides of the opening for

dear life.

How old is your son and what kind of quick positive results did you see?  Does

he keep advancing? 

My son is 9 and just learning to read.  He has memorized many Dolche sight

words

and we are working ever so slowly on math facts.  Handwriting is still not

great.  But he is a fabulous bright loving kid!  He has a NK count of 1,

though!  He has reddish circles under his eyes, is quite slender, and has had

constipation issues.  He is foggy a lot of the time, echolalia's scripts or

lines from movies, and has had a siezure disorder that was diagnosed when he was

6 months old.  That summer of 2001, when I was nursing him I was bit by a deer

tick, which I didn't find for 72 hours!!! I started with joint pain almost

immediately, but did not get treated for Lymes until 2008!  And neither did

he. 

We both continue antibiotic treatment for this.  Apparently, there could be a

connection of XMRV with Lymes and Autism.  I gave blood for the study this

summer, but haven't heard back whether I tested positive or not.

We did Neurofeedback this summer and it unlocked a veritable torrent of

language, clarity, and social/familial interaction.  I'm happy to hear Dr G

supports NF.

Do you guys think Dr G could help my son?

Thank you so much, Sheryl

 

________________________________

From: " Googahly@... " <Googahly@...>

Sent: Tue, December 7, 2010 7:39:08 AM

Subject: Re: ssri's

 

From my understanding in talking to various doctors and people who have

used SSRIs, it varies greatly with the individual. My son and husband have

either had very quick positive results from various SSRIs or very quick

negative side effects. The longest either of them ever stuck with one that

didn't fit was a month and the symptoms did not improve until it was removed,

even with dosage changes. It then took a few weeks for things to level

off.

On one, my son did extraordinarily well for the first month and then some

dark thoughts started creeping in. These were more his fears about various

friends dying or bad things happening to people, rather than the suicidal

thoughts they warn to watch for. Since he a few of his friends died when

younger, fearing friends dying wasn't a new thing, it just became much

stronger and more obsessive. I think other negative side effects many

experience are also possibly a worsening of something that is already there

rather

than brand new problem.

SSRIs can be tremendously helpful but you do need to watch carefully and

alert the doc right away if there are any negatives, even a few months in.

Gaylen

In a message dated 12/7/2010 12:28:07 A.M. Central Standard Time,

ssaturnino@... writes:

I need to hear from you regarding ssri's. Does every one have a hard time

after starting them? Have your kids worked through a tough time on one or

did you switch and things got better?

[Guest guest]

No problem, Sheryl. I am not exaggerating when I say that Dr. G saved us. I was

so afraid, especially for Noah, but my other boys were ill, too. My GP

understood, listened and didn't hesitate to send us to specialists. All of them

said virtually the same thing: " What do you expect; he's autistic. " Wow, didn't

realize autism caused seizures and vomiting episodes! Silly me....

The approach is not a " shot in the dark " like so many other approaches.

It's sound scientific research and plain good medicine. My children are living

proof!

All the best,

Robyn

From: Sheryl Saturnino <ssaturnino@...>

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

Date: Tuesday, December 7, 2010, 10:28 AM

 

Thank you, Gaylen, for responding.  I really appreciate the input.  I feel

like

a skydiver ready to jump out, but who is clenching the sides of the opening for

dear life.

How old is your son and what kind of quick positive results did you see?  Does

he keep advancing? 

My son is 9 and just learning to read.  He has memorized many Dolche sight

words

and we are working ever so slowly on math facts.  Handwriting is still not

great.  But he is a fabulous bright loving kid!  He has a NK count of 1,

though!  He has reddish circles under his eyes, is quite slender, and has had

constipation issues.  He is foggy a lot of the time, echolalia's scripts or

lines from movies, and has had a siezure disorder that was diagnosed when he was

6 months old.  That summer of 2001, when I was nursing him I was bit by a deer

tick, which I didn't find for 72 hours!!! I started with joint pain almost

immediately, but did not get treated for Lymes until 2008!  And neither did

he. 

We both continue antibiotic treatment for this.  Apparently, there could be a

connection of XMRV with Lymes and Autism.  I gave blood for the study this

summer, but haven't heard back whether I tested positive or not.

We did Neurofeedback this summer and it unlocked a veritable torrent of

language, clarity, and social/familial interaction.  I'm happy to hear Dr G

supports NF.

Do you guys think Dr G could help my son?

Thank you so much, Sheryl

 

________________________________

From: " Googahly@... " <Googahly@...>

Sent: Tue, December 7, 2010 7:39:08 AM

Subject: Re: ssri's

 

From my understanding in talking to various doctors and people who have

used SSRIs, it varies greatly with the individual. My son and husband have

either had very quick positive results from various SSRIs or very quick

negative side effects. The longest either of them ever stuck with one that

didn't fit was a month and the symptoms did not improve until it was removed,

even with dosage changes. It then took a few weeks for things to level

off.

On one, my son did extraordinarily well for the first month and then some

dark thoughts started creeping in. These were more his fears about various

friends dying or bad things happening to people, rather than the suicidal

thoughts they warn to watch for. Since he a few of his friends died when

younger, fearing friends dying wasn't a new thing, it just became much

stronger and more obsessive. I think other negative side effects many

experience are also possibly a worsening of something that is already there

rather

than brand new problem.

SSRIs can be tremendously helpful but you do need to watch carefully and

alert the doc right away if there are any negatives, even a few months in.

Gaylen

In a message dated 12/7/2010 12:28:07 A.M. Central Standard Time,

ssaturnino@... writes:

I need to hear from you regarding ssri's. Does every one have a hard time

after starting them? Have your kids worked through a tough time on one or

did you switch and things got better?

[Guest guest]

Grrrrrrr!!!!!!!!

________________________________

From: Robyn & Greg Coggins <rngcoggs@...>

Sent: Tue, December 7, 2010 10:43:21 PM

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

 

No problem, Sheryl. I am not exaggerating when I say that Dr. G saved us. I was

so afraid, especially for Noah, but my other boys were ill, too. My GP

understood, listened and didn't hesitate to send us to specialists. All of them

said virtually the same thing: " What do you expect; he's autistic. " Wow, didn't

realize autism caused seizures and vomiting episodes! Silly me....

The approach is not a " shot in the dark " like so many other approaches.

It's sound scientific research and plain good medicine. My children are living

proof!

All the best,

Robyn

From: Sheryl Saturnino <ssaturnino@...>

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

Date: Tuesday, December 7, 2010, 10:28 AM

 

Thank you, Gaylen, for responding.  I really appreciate the input.  I feel

like

a skydiver ready to jump out, but who is clenching the sides of the opening for

dear life.

How old is your son and what kind of quick positive results did you see?  Does

he keep advancing? 

My son is 9 and just learning to read.  He has memorized many Dolche sight

words

and we are working ever so slowly on math facts.  Handwriting is still not

great.  But he is a fabulous bright loving kid!  He has a NK count of 1,

though!  He has reddish circles under his eyes, is quite slender, and has had

constipation issues.  He is foggy a lot of the time, echolalia's scripts or

lines from movies, and has had a siezure disorder that was diagnosed when he was

6 months old.  That summer of 2001, when I was nursing him I was bit by a deer

tick, which I didn't find for 72 hours!!! I started with joint pain almost

immediately, but did not get treated for Lymes until 2008!  And neither did

he. 

We both continue antibiotic treatment for this.  Apparently, there could be a

connection of XMRV with Lymes and Autism.  I gave blood for the study this

summer, but haven't heard back whether I tested positive or not.

We did Neurofeedback this summer and it unlocked a veritable torrent of

language, clarity, and social/familial interaction.  I'm happy to hear Dr G

supports NF.

Do you guys think Dr G could help my son?

Thank you so much, Sheryl

 

________________________________

From: " Googahly@... " <Googahly@...>

Sent: Tue, December 7, 2010 7:39:08 AM

Subject: Re: ssri's

 

From my understanding in talking to various doctors and people who have

used SSRIs, it varies greatly with the individual. My son and husband have

either had very quick positive results from various SSRIs or very quick

negative side effects. The longest either of them ever stuck with one that

didn't fit was a month and the symptoms did not improve until it was removed,

even with dosage changes. It then took a few weeks for things to level

off.

On one, my son did extraordinarily well for the first month and then some

dark thoughts started creeping in. These were more his fears about various

friends dying or bad things happening to people, rather than the suicidal

thoughts they warn to watch for. Since he a few of his friends died when

younger, fearing friends dying wasn't a new thing, it just became much

stronger and more obsessive. I think other negative side effects many

experience are also possibly a worsening of something that is already there

rather

than brand new problem.

SSRIs can be tremendously helpful but you do need to watch carefully and

alert the doc right away if there are any negatives, even a few months in.

Gaylen

In a message dated 12/7/2010 12:28:07 A.M. Central Standard Time,

ssaturnino@... writes:

I need to hear from you regarding ssri's. Does every one have a hard time

after starting them? Have your kids worked through a tough time on one or

did you switch and things got better?

[Guest guest]

Just a comment but it took several years before I could see the light at the end

of the tunnel. We had some ups and then regression in the beginning but it took

the whole ball of wax to see true gains. I hate to say it but the curve was

based on two items. 1) Dr G is very methodical in making changes to not hurt

these kids, drove me nuts. I wanted it now and considered moving on often. 2) It

took a couple of years for me to figure out just what foods and environmental

exposures caused the regression.

It is a long slow progression, the damage (Oxidative stress, brain damage) takes

a long time to heal. Compare it to a stroke, very similar. Good medicine and

good science is at the core of the protocol but all kids can and will improve

with time. Just my thoughts.

________________________________

From: <thecolemans4@...>

Sent: Sun, December 12, 2010 9:08:48 PM

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

Grrrrrrr!!!!!!!!

________________________________

From: Robyn & Greg Coggins <rngcoggs@...>

Sent: Tue, December 7, 2010 10:43:21 PM

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

No problem, Sheryl. I am not exaggerating when I say that Dr. G saved us. I was

so afraid, especially for Noah, but my other boys were ill, too. My GP

understood, listened and didn't hesitate to send us to specialists. All of them

said virtually the same thing: " What do you expect; he's autistic. " Wow, didn't

realize autism caused seizures and vomiting episodes! Silly me....

The approach is not a " shot in the dark " like so many other approaches.

It's sound scientific research and plain good medicine. My children are living

proof!

All the best,

Robyn

From: Sheryl Saturnino <ssaturnino@...>

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

Date: Tuesday, December 7, 2010, 10:28 AM

Thank you, Gaylen, for responding. I really appreciate the input. I feel like

a skydiver ready to jump out, but who is clenching the sides of the opening for

dear life.

How old is your son and what kind of quick positive results did you see? Does

he keep advancing?

My son is 9 and just learning to read. He has memorized many Dolche sight words

and we are working ever so slowly on math facts. Handwriting is still not

great. But he is a fabulous bright loving kid! He has a NK count of 1,

though! He has reddish circles under his eyes, is quite slender, and has had

constipation issues. He is foggy a lot of the time, echolalia's scripts or

lines from movies, and has had a siezure disorder that was diagnosed when he was

6 months old. That summer of 2001, when I was nursing him I was bit by a deer

tick, which I didn't find for 72 hours!!! I started with joint pain almost

immediately, but did not get treated for Lymes until 2008! And neither did he.

We both continue antibiotic treatment for this. Apparently, there could be a

connection of XMRV with Lymes and Autism. I gave blood for the study this

summer, but haven't heard back whether I tested positive or not.

We did Neurofeedback this summer and it unlocked a veritable torrent of

language, clarity, and social/familial interaction. I'm happy to hear Dr G

supports NF.

Do you guys think Dr G could help my son?

Thank you so much, Sheryl

________________________________

From: " Googahly@... " <Googahly@...>

Sent: Tue, December 7, 2010 7:39:08 AM

Subject: Re: ssri's

From my understanding in talking to various doctors and people who have

used SSRIs, it varies greatly with the individual. My son and husband have

either had very quick positive results from various SSRIs or very quick

negative side effects. The longest either of them ever stuck with one that

didn't fit was a month and the symptoms did not improve until it was removed,

even with dosage changes. It then took a few weeks for things to level

off.

On one, my son did extraordinarily well for the first month and then some

dark thoughts started creeping in. These were more his fears about various

friends dying or bad things happening to people, rather than the suicidal

thoughts they warn to watch for. Since he a few of his friends died when

younger, fearing friends dying wasn't a new thing, it just became much

stronger and more obsessive. I think other negative side effects many

experience are also possibly a worsening of something that is already there

rather

than brand new problem.

SSRIs can be tremendously helpful but you do need to watch carefully and

alert the doc right away if there are any negatives, even a few months in.

Gaylen

In a message dated 12/7/2010 12:28:07 A.M. Central Standard Time,

ssaturnino@... writes:

I need to hear from you regarding ssri's. Does every one have a hard time

after starting them? Have your kids worked through a tough time on one or

did you switch and things got better?

[Guest guest]

You raise a good comparison of to mild stroke. I have been looking into

this & it is amazing clinically the similarity of the symptoms. Sensory issues,

speech loss, loss of muscle strength, anxiety & other thinking type issues are

very common in a ischemic attack in the brain or a hypoperfusion -

the hypothesis in .

What I find disturbing is the obliviousness of the academic & mainstream medical

institutions of this possibility & convenience of labeling everything with the

A word & recommending the standard ABA etc. Lot of kids & families will be

better served if they improve the Diagnosis of child development delays based on

all available medical literature than just a DSM manual written by folks who

still probably believe in the refrigerator mother theory.

I suspect a reason for the inaction is the fear of implication of vaccines - but

knowing what they know now & not putting the right research focus & attention

into this for that reason is I think criminal.

Ok I am venting.

________________________________

From: Bill klimas <klimas_bill@...>

Sent: Sun, December 12, 2010 6:29:11 PM

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

Just a comment but it took several years before I could see the light at the end

of the tunnel. We had some ups and then regression in the beginning but it took

the whole ball of wax to see true gains. I hate to say it but the curve was

based on two items. 1) Dr G is very methodical in making changes to not hurt

these kids, drove me nuts. I wanted it now and considered moving on often. 2) It

took a couple of years for me to figure out just what foods and environmental

exposures caused the regression.

It is a long slow progression, the damage (Oxidative stress, brain damage) takes

a long time to heal. Compare it to a stroke, very similar. Good medicine and

good science is at the core of the protocol but all kids can and will improve

with time. Just my thoughts.

________________________________

From: <thecolemans4@...>

Sent: Sun, December 12, 2010 9:08:48 PM

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

Grrrrrrr!!!!!!!!

________________________________

From: Robyn & Greg Coggins <rngcoggs@...>

Sent: Tue, December 7, 2010 10:43:21 PM

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

No problem, Sheryl. I am not exaggerating when I say that Dr. G saved us. I was

so afraid, especially for Noah, but my other boys were ill, too. My GP

understood, listened and didn't hesitate to send us to specialists. All of them

said virtually the same thing: " What do you expect; he's autistic. " Wow, didn't

realize autism caused seizures and vomiting episodes! Silly me....

The approach is not a " shot in the dark " like so many other approaches.

It's sound scientific research and plain good medicine. My children are living

proof!

All the best,

Robyn

From: Sheryl Saturnino <ssaturnino@...>

Subject: Re: ssri's/NK counts, Lymes Disease/XMRV, etc

Date: Tuesday, December 7, 2010, 10:28 AM

Thank you, Gaylen, for responding. I really appreciate the input. I feel like

a skydiver ready to jump out, but who is clenching the sides of the opening for

dear life.

How old is your son and what kind of quick positive results did you see? Does

he keep advancing?

My son is 9 and just learning to read. He has memorized many Dolche sight words

and we are working ever so slowly on math facts. Handwriting is still not

great. But he is a fabulous bright loving kid! He has a NK count of 1,

though! He has reddish circles under his eyes, is quite slender, and has had

constipation issues. He is foggy a lot of the time, echolalia's scripts or

lines from movies, and has had a siezure disorder that was diagnosed when he was

6 months old. That summer of 2001, when I was nursing him I was bit by a deer

tick, which I didn't find for 72 hours!!! I started with joint pain almost

immediately, but did not get treated for Lymes until 2008! And neither did he.

We both continue antibiotic treatment for this. Apparently, there could be a

connection of XMRV with Lymes and Autism. I gave blood for the study this

summer, but haven't heard back whether I tested positive or not.

We did Neurofeedback this summer and it unlocked a veritable torrent of

language, clarity, and social/familial interaction. I'm happy to hear Dr G

supports NF.

Do you guys think Dr G could help my son?

Thank you so much, Sheryl

________________________________

From: " Googahly@... " <Googahly@...>

Sent: Tue, December 7, 2010 7:39:08 AM

Subject: Re: ssri's

From my understanding in talking to various doctors and people who have

used SSRIs, it varies greatly with the individual. My son and husband have

either had very quick positive results from various SSRIs or very quick

negative side effects. The longest either of them ever stuck with one that

didn't fit was a month and the symptoms did not improve until it was removed,

even with dosage changes. It then took a few weeks for things to level

off.

On one, my son did extraordinarily well for the first month and then some

dark thoughts started creeping in. These were more his fears about various

friends dying or bad things happening to people, rather than the suicidal

thoughts they warn to watch for. Since he a few of his friends died when

younger, fearing friends dying wasn't a new thing, it just became much

stronger and more obsessive. I think other negative side effects many

experience are also possibly a worsening of something that is already there

rather

than brand new problem.

SSRIs can be tremendously helpful but you do need to watch carefully and

alert the doc right away if there are any negatives, even a few months in.

Gaylen

In a message dated 12/7/2010 12:28:07 A.M. Central Standard Time,

ssaturnino@... writes:

I need to hear from you regarding ssri's. Does every one have a hard time

after starting them? Have your kids worked through a tough time on one or

did you switch and things got better?