Pandas

September 22, 2003

thanks so much for calling. i'll need a fax no. my older six year old took it

and gave it top the dog! my email is theriotr@... thanks so much

laura [ ] PANDAS

All

I got the immunosciences PANDAS panel back for my son, Steve (5 yo, 53

lbs, autism) and apparently he's got elevated Strep IgG titers (244 for

a reference range of 0-100). Has anyone received a similar result and

does anyone know the most efficacious treatment. I'm fairly jaded

concerning antibiotics but am willing to try something that is safe (as

we NOW know how to prevent yeast overgrowth in the gut). Thanks so

much!

S. Hooker, Ph.D., P.E.

Staff Engineer

Pacific Northwest National Laboratory

MSIN K6-96

902 Battelle Blvd.

Richland, WA 99352

Ph. (509) 376-4451

Fx. (509) 376-2526

Mo. (509) 366-2269

Email: brian.hooker@...

September 22, 2003

Wow - we just have one kid... My hat is off to you!

Fx. 509-376-2526

Re: [ ] PANDAS

thanks so much for calling. i'll need a fax no. my older six year old

took it and gave it top the dog! my email is theriotr@...

thanks so much laura [ ] PANDAS

All

I got the immunosciences PANDAS panel back for my son, Steve (5 yo, 53

lbs, autism) and apparently he's got elevated Strep IgG titers (244

for

a reference range of 0-100). Has anyone received a similar result and

does anyone know the most efficacious treatment. I'm fairly jaded

concerning antibiotics but am willing to try something that is safe

(as

we NOW know how to prevent yeast overgrowth in the gut). Thanks so

much!

S. Hooker, Ph.D., P.E.

Staff Engineer

Pacific Northwest National Laboratory

MSIN K6-96

902 Battelle Blvd.

Richland, WA 99352

Ph. (509) 376-4451

Fx. (509) 376-2526

Mo. (509) 366-2269

Email: brian.hooker@...

September 22, 2003

Oops - this was supposed to be off group - mea culpa!

Re: [ ] PANDAS

thanks so much for calling. i'll need a fax no. my older six year old

took it and gave it top the dog! my email is theriotr@...

thanks so much laura [ ] PANDAS

All

I got the immunosciences PANDAS panel back for my son, Steve (5 yo, 53

lbs, autism) and apparently he's got elevated Strep IgG titers (244

for

a reference range of 0-100). Has anyone received a similar result and

does anyone know the most efficacious treatment. I'm fairly jaded

concerning antibiotics but am willing to try something that is safe

(as

we NOW know how to prevent yeast overgrowth in the gut). Thanks so

much!

S. Hooker, Ph.D., P.E.

Staff Engineer

Pacific Northwest National Laboratory

MSIN K6-96

902 Battelle Blvd.

Richland, WA 99352

Ph. (509) 376-4451

Fx. (509) 376-2526

Mo. (509) 366-2269

Email: brian.hooker@...

February 13, 2004

The PANDAS expert is Dr. Sue Swedo at the NIH. She is having great

success with Zithromax.

Check out this link:

http://intramural.nimh.nih.gov/research/pdn/web.htm

[ ] PANDAS

Hi everyone,

My son has what looks like PANDAS, among other things.

Has anyone ever had a child with this, and if so, is this treatable? And

if so, what treatment did you use?

My DAN! has suggested transfer factor #5.

Any help any of you wise people can give me would truly be

appreciated.

Jen

=======================================================

February 13, 2004

> Hi everyone,

>

> My son has what looks like PANDAS, among other things.

>

> Has anyone ever had a child with this, and if so, is this treatable?

> And if so, what treatment did you use?

>

> My DAN! has suggested transfer factor #5.

>

> Any help any of you wise people can give me would truly be

> appreciated.

>

> Jen

Hi Jen, my son had a PANDAS reaction 18 months ago and has had 2

clear cut exacerbations since then. The first episode came 6 weeks

after a severe cox sackie viral infection (foot and mouth disease)

there is a known PANDAS type reation to viral infections as well as

strep. It was a one day not there the next day wham kind of onset. He

refused to touch anything, would use his elbows...could not walk

through a door w/o wiping at it etc, could not stand dirt or spills.

He was tried on paxil but got extremely hyper so had to stop. He had

probable tic-like tongue movements with this. most symptoms faded on

their own after 6-8 weeks. Everytime he gets sick some symptoms will

flare, almost a year from the first episode he had another but with

different symptoms, this time he pulled out his eyelashes, eyebrows

and hair. Along with the OCD he is way less able to transition, more

aggressive and decreased fine mottor ability. This last exacerbation

was not as intense but has lasted longer, the symptoms started fading

around the time I started monolaurin, but maybe it was also fading

with time alone. What can you tell me about transfer factor, what is

#5, what company makes it ?

January 21, 2008

I wouldn't do the antibiotics because that would mess up the balance in the gut.

There are natural products to take for viral issues and also for the yeast.

PANDAS

Ok, doing some wonderful reading. Bock's book, " Healing the New

Childhood epidemics " . A must read guys, love it so far.

Ok, any one treat PANDAS? I'm going to dive into the research. We get the

melt downs, sensitive, and have the ADHD PDD-NOS thing going. His body is

still " up " there!

Thinking back years ago. My nt son had strep/pneumonia at like 5-6 months.

It was over the weekend, urgent care. They wanted me to follow up with my

family doctor on Monday to see how he was doing. My family doctor said no

way he could have had strep, I must have heard wrong. I remember hearing

something like kids under 2 don't get strep. Anyway, I didn't, and the

doctors report was received, I was right he tested positive for strep. So

it was, he must be a carrier! Whatever!

So, fast forward a year or so later. My nt son again sick, he tested

positive for strep. This is his second time, and last I might add. So they

ask me if my older child has been sick. No, but they wanted to test him

too. I was shocked when he tested positive. So he got a shot in the rear

and they thought maybe he was a carrier. So, we've never had strep again in

our house since but..

My assumption is they do a strep test to see if positive, both a quick and a

long one, right? How long is the antibiotic treatment!

We've been working so hard on the yeast, biocidin now for almost a month I

think, customer probiotics. So if we did do antibiotics, it would really

stir things up but might be worth it. I could also do the antibiotics for

the clostridia too in his system, we've been doing biomedical!

Anyone, please, do the testing? What was treatment? What ya think?

Thanks

Tammy

Still searching for answers!!!!! !

January 21, 2008

If your child has strep, NOT taking antibiotics has some serious consequences,

kidney and heart disease, namely.

Not a problem with trying natural methods, first, but make certain and get them

retested to make sure the strep is gone. Lots of kids out there with bad/weak

hearts which shorten their lifespan due to untreated strep. It's nothing to mess

around with.

Fwiw, ours had to take an antibiotic for strep and she got BETTER on it.

PANDAS

Ok, doing some wonderful reading. Bock's book, " Healing the New

Childhood epidemics " . A must read guys, love it so far.

Ok, any one treat PANDAS? I'm going to dive into the research. We get the

melt downs, sensitive, and have the ADHD PDD-NOS thing going. His body is

still " up " there!

Thinking back years ago. My nt son had strep/pneumonia at like 5-6 months.

It was over the weekend, urgent care. They wanted me to follow up with my

family doctor on Monday to see how he was doing. My family doctor said no

way he could have had strep, I must have heard wrong. I remember hearing

something like kids under 2 don't get strep. Anyway, I didn't, and the

doctors report was received, I was right he tested positive for strep. So

it was, he must be a carrier! Whatever!

So, fast forward a year or so later. My nt son again sick, he tested

positive for strep. This is his second time, and last I might add. So they

ask me if my older child has been sick. No, but they wanted to test him

too. I was shocked when he tested positive. So he got a shot in the rear

and they thought maybe he was a carrier. So, we've never had strep again in

our house since but..

My assumption is they do a strep test to see if positive, both a quick and a

long one, right? How long is the antibiotic treatment!

We've been working so hard on the yeast, biocidin now for almost a month I

think, customer probiotics. So if we did do antibiotics, it would really

stir things up but might be worth it. I could also do the antibiotics for

the clostridia too in his system, we've been doing biomedical!

Anyone, please, do the testing? What was treatment? What ya think?

Thanks

Tammy

Still searching for answers!!!!! !

January 21, 2008

He's not sick, never was " sick " when he tested positive, like 3-4 years ago.

I'm assuming he got a shot on penicillin in the rear.

Do you remember what kind of antibiotic she had, like amoxilcian, and did

fine, the normal like 10 days like course?

I was reading, only one site, too tired late last night. Said there was no

test for PANDAS so taking him in for a strep test may be a waste of time or

money. Just look into it I guess.

Tammy

Re: PANDAS

If your child has strep, NOT taking antibiotics has some serious

consequences, kidney and heart disease, namely.

Not a problem with trying natural methods, first, but make certain and get

them retested to make sure the strep is gone. Lots of kids out there with

bad/weak hearts which shorten their lifespan due to untreated strep. It's

nothing to mess around with.

Fwiw, ours had to take an antibiotic for strep and she got BETTER on it.

PANDAS

Ok, doing some wonderful reading. Bock's book, " Healing the New

Childhood epidemics " . A must read guys, love it so far.

Ok, any one treat PANDAS? I'm going to dive into the research. We get the

melt downs, sensitive, and have the ADHD PDD-NOS thing going. His body is

still " up " there!

Thinking back years ago. My nt son had strep/pneumonia at like 5-6 months.

It was over the weekend, urgent care. They wanted me to follow up with my

family doctor on Monday to see how he was doing. My family doctor said no

way he could have had strep, I must have heard wrong. I remember hearing

something like kids under 2 don't get strep. Anyway, I didn't, and the

doctors report was received, I was right he tested positive for strep. So

it was, he must be a carrier! Whatever!

So, fast forward a year or so later. My nt son again sick, he tested

positive for strep. This is his second time, and last I might add. So they

ask me if my older child has been sick. No, but they wanted to test him

too. I was shocked when he tested positive. So he got a shot in the rear

and they thought maybe he was a carrier. So, we've never had strep again in

our house since but..

My assumption is they do a strep test to see if positive, both a quick and a

long one, right? How long is the antibiotic treatment!

We've been working so hard on the yeast, biocidin now for almost a month I

think, customer probiotics. So if we did do antibiotics, it would really

stir things up but might be worth it. I could also do the antibiotics for

the clostridia too in his system, we've been doing biomedical!

Anyone, please, do the testing? What was treatment? What ya think?

Thanks

Tammy

Still searching for answers!!!!! !

January 21, 2008

There is a blood test to see if the ASO and DNAse B AB

titers are elevated. If so, then combined with the

behavioral issues, the doc can diagnose PANDAS.

We just started prophylactic antibiotics for it. 250

mg of Zithromax each week (one boy gets a pill the

other gets liquid) and 600,000 units of bicillin per

month by injection.

There is a biofilm protocol; I'm not sure if it can be

combined or not, or what the effect of that is. I'd

like to know, because, I'd like to try that if it

would speed up the action of the antibiotics.

Anyone know?

Amy O

--- Tamara Kuhn <tkuhn1@...> wrote:

> He's not sick, never was " sick " when he tested

> positive, like 3-4 years ago.

> I'm assuming he got a shot on penicillin in the

> rear.

>

> Do you remember what kind of antibiotic she had,

> like amoxilcian, and did

> fine, the normal like 10 days like course?

>

> I was reading, only one site, too tired late last

> night. Said there was no

> test for PANDAS so taking him in for a strep test

> may be a waste of time or

> money. Just look into it I guess.

>

> Tammy

>

> Re: PANDAS

>

> If your child has strep, NOT taking antibiotics has

> some serious

> consequences, kidney and heart disease, namely.

>

> Not a problem with trying natural methods, first,

> but make certain and get

> them retested to make sure the strep is gone. Lots

> of kids out there with

> bad/weak hearts which shorten their lifespan due to

> untreated strep. It's

> nothing to mess around with.

>

> Fwiw, ours had to take an antibiotic for strep and

> she got BETTER on it.

>

> PANDAS

>

> Ok, doing some wonderful reading. Bock's

> book, " Healing the New

> Childhood epidemics " . A must read guys, love it so

> far.

>

> Ok, any one treat PANDAS? I'm going to dive into the

> research. We get the

> melt downs, sensitive, and have the ADHD PDD-NOS

> thing going. His body is

> still " up " there!

>

> Thinking back years ago. My nt son had

> strep/pneumonia at like 5-6 months.

> It was over the weekend, urgent care. They wanted me

> to follow up with my

> family doctor on Monday to see how he was doing. My

> family doctor said no

> way he could have had strep, I must have heard

> wrong. I remember hearing

> something like kids under 2 don't get strep. Anyway,

> I didn't, and the

> doctors report was received, I was right he tested

> positive for strep. So

> it was, he must be a carrier! Whatever!

>

> So, fast forward a year or so later. My nt son again

> sick, he tested

> positive for strep. This is his second time, and

> last I might add. So they

> ask me if my older child has been sick. No, but they

> wanted to test him

> too. I was shocked when he tested positive. So he

> got a shot in the rear

> and they thought maybe he was a carrier. So, we've

> never had strep again in

> our house since but..

>

> My assumption is they do a strep test to see if

> positive, both a quick and a

> long one, right? How long is the antibiotic

> treatment!

>

> We've been working so hard on the yeast, biocidin

> now for almost a month I

> think, customer probiotics. So if we did do

> antibiotics, it would really

> stir things up but might be worth it. I could also

> do the antibiotics for

> the clostridia too in his system, we've been doing

> biomedical!

>

> Anyone, please, do the testing? What was treatment?

> What ya think?

>

> Thanks

>

> Tammy

>

> Still searching for answers!!!!! !

>

> [Non-text portions of this message have been

> removed]

>

__________________________________________________________

> Looking for last minute shopping deals?

> Find them fast with Search. http://tools.

>

<http://tools.search./newsearch/category.php?category=shopping>

>

search./newsearch/category.php?category=shopping

>

> [Non-text portions of this message have been

> removed]

>

> [Non-text portions of this message have been

> removed]

>

> [Non-text portions of this message have been

> removed]

>

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

January 21, 2008

Tammy,

No, no test for PANDAS, but thinking you want ASO strep titers run. We did run

those and her's were negative.

There are a number of antibiotics which are " safer " for our kids, Zithromax and

Cefzil are two of the ones condsidered safer. However, as said, you do

have to be careful as any antibiotic will eat up good bacteria along with the

bad.

I did just read that Barberines (golden seal, oregon grape and barberry) were

equal to antibiotics in treating strep although I have to say we used those with

no luck. I have used Golden Seal on myself and it knocked several colds out,

flat, but for her, they did not work.

What we did was really increase her probiotics during the antibiotic we which

was Zithromax, very short course, 5 days, one dose a day.

We have also used Amoxicillion with good results. But If I were you, I'd want to

know if he tested positive for ASO strep titers.

Good luck,

PANDAS

Ok, doing some wonderful reading. Bock's book, " Healing the New

Childhood epidemics " . A must read guys, love it so far.

Ok, any one treat PANDAS? I'm going to dive into the research. We get the

melt downs, sensitive, and have the ADHD PDD-NOS thing going. His body is

still " up " there!

Thinking back years ago. My nt son had strep/pneumonia at like 5-6 months.

It was over the weekend, urgent care. They wanted me to follow up with my

family doctor on Monday to see how he was doing. My family doctor said no

way he could have had strep, I must have heard wrong. I remember hearing

something like kids under 2 don't get strep. Anyway, I didn't, and the

doctors report was received, I was right he tested positive for strep. So

it was, he must be a carrier! Whatever!

So, fast forward a year or so later. My nt son again sick, he tested

positive for strep. This is his second time, and last I might add. So they

ask me if my older child has been sick. No, but they wanted to test him

too. I was shocked when he tested positive. So he got a shot in the rear

and they thought maybe he was a carrier. So, we've never had strep again in

our house since but..

My assumption is they do a strep test to see if positive, both a quick and a

long one, right? How long is the antibiotic treatment!

We've been working so hard on the yeast, biocidin now for almost a month I

think, customer probiotics. So if we did do antibiotics, it would really

stir things up but might be worth it. I could also do the antibiotics for

the clostridia too in his system, we've been doing biomedical!

Anyone, please, do the testing? What was treatment? What ya think?

Thanks

Tammy

Still searching for answers!!!!! !

January 21, 2008

Hi Amy,

The biofilm protocol contains EDTA, which some feel is not a good idea for

anyone who has mercury, fwiw. I did read after just one case where the child got

worse with the Biofilm protocol. Have not read that it helped anyone, not saying

it didn't, just saying I haven't read it.

PANDAS

>

> Ok, doing some wonderful reading. Bock's

> book, " Healing the New

> Childhood epidemics " . A must read guys, love it so

> far.

>

> Ok, any one treat PANDAS? I'm going to dive into the

> research. We get the

> melt downs, sensitive, and have the ADHD PDD-NOS

> thing going. His body is

> still " up " there!

>

> Thinking back years ago. My nt son had

> strep/pneumonia at like 5-6 months.

> It was over the weekend, urgent care. They wanted me

> to follow up with my

> family doctor on Monday to see how he was doing. My

> family doctor said no

> way he could have had strep, I must have heard

> wrong. I remember hearing

> something like kids under 2 don't get strep. Anyway,

> I didn't, and the

> doctors report was received, I was right he tested

> positive for strep. So

> it was, he must be a carrier! Whatever!

>

> So, fast forward a year or so later. My nt son again

> sick, he tested

> positive for strep. This is his second time, and

> last I might add. So they

> ask me if my older child has been sick. No, but they

> wanted to test him

> too. I was shocked when he tested positive. So he

> got a shot in the rear

> and they thought maybe he was a carrier. So, we've

> never had strep again in

> our house since but..

>

> My assumption is they do a strep test to see if

> positive, both a quick and a

> long one, right? How long is the antibiotic

> treatment!

>

> We've been working so hard on the yeast, biocidin

> now for almost a month I

> think, customer probiotics. So if we did do

> antibiotics, it would really

> stir things up but might be worth it. I could also

> do the antibiotics for

> the clostridia too in his system, we've been doing

> biomedical!

>

> Anyone, please, do the testing? What was treatment?

> What ya think?

>

> Thanks

>

> Tammy

>

> Still searching for answers!!!!! !

>

> [Non-text portions of this message have been

> removed]

>

__________________________________________________________

> Looking for last minute shopping deals?

> Find them fast with Search. http://tools.

>

<http://tools.search./newsearch/category.php?category=shopping>

>

search./newsearch/category.php?category=shopping

>

> [Non-text portions of this message have been

> removed]

>

> [Non-text portions of this message have been

> removed]

>

> [Non-text portions of this message have been

> removed]

>

__________________________________________________________

Never miss a thing. Make your home page.

http://www./r/hs

January 21, 2008

Neuroimmune Science labs has a test called the PANDAS profile that

tests 12 markets that indicate you have PANDAS. We ran it on my son

who fit the symptoms profile to a t and all 12 markers were abnormal,

very abnormal.

Kerrie

Sent from my iPhone

On Jan 21, 2008, at 10:51 AM, " " <Ladyshrink111@...>

wrote:

> Tammy,

>

> No, no test for PANDAS, but thinking you want ASO strep titers run.

> We did run those and her's were negative.

>

> There are a number of antibiotics which are " safer " for our kids,

> Zithromax and Cefzil are two of the ones condsidered safer. However,

> as said, you do have to be careful as any antibiotic will eat

> up good bacteria along with the bad.

>

> I did just read that Barberines (golden seal, oregon grape and

> barberry) were equal to antibiotics in treating strep although I

> have to say we used those with no luck. I have used Golden Seal on

> myself and it knocked several colds out, flat, but for her, they did

> not work.

>

> What we did was really increase her probiotics during the antibiotic

> we which was Zithromax, very short course, 5 days, one dose a day.

>

> We have also used Amoxicillion with good results. But If I were you,

> I'd want to know if he tested positive for ASO strep titers.

>

> Good luck,

>

> PANDAS

>

> Ok, doing some wonderful reading. Bock's book, " Healing the

> New

> Childhood epidemics " . A must read guys, love it so far.

>

> Ok, any one treat PANDAS? I'm going to dive into the research. We

> get the

> melt downs, sensitive, and have the ADHD PDD-NOS thing going. His

> body is

> still " up " there!

>

> Thinking back years ago. My nt son had strep/pneumonia at like 5-6

> months.

> It was over the weekend, urgent care. They wanted me to follow up

> with my

> family doctor on Monday to see how he was doing. My family doctor

> said no

> way he could have had strep, I must have heard wrong. I remember

> hearing

> something like kids under 2 don't get strep. Anyway, I didn't, and

> the

> doctors report was received, I was right he tested positive for

> strep. So

> it was, he must be a carrier! Whatever!

>

> So, fast forward a year or so later. My nt son again sick, he tested

> positive for strep. This is his second time, and last I might add.

> So they

> ask me if my older child has been sick. No, but they wanted to test

> him

> too. I was shocked when he tested positive. So he got a shot in the

> rear

> and they thought maybe he was a carrier. So, we've never had strep

> again in

> our house since but..

>

> My assumption is they do a strep test to see if positive, both a

> quick and a

> long one, right? How long is the antibiotic treatment!

>

> We've been working so hard on the yeast, biocidin now for almost a

> month I

> think, customer probiotics. So if we did do antibiotics, it would

> really

> stir things up but might be worth it. I could also do the

> antibiotics for

> the clostridia too in his system, we've been doing biomedical!

>

> Anyone, please, do the testing? What was treatment? What ya think?

>

> Thanks

>

> Tammy

>

> Still searching for answers!!!!! !

>

January 21, 2008

For my daughter the ant-Dnase was high when ASO were always in nl

range. You are fortunate that someone actually takes interest and

wants to treat this!! We haven't had such luck. Like , the

naturals did not seem to help much. We're planning to begin the

biofilm protocol when the agents arrive. fwiw, I also have a

grandson, 8y, recovered from a toddler mess of toxic lead and

mercury. About 3-4x/yr he gets very OCD. It always responds to

treatment for strep!! The rapid strep is neg and the culture is

positive if they let it sit long enough. All it takes anymore for him

to get treated is a phone call to the doc.

>

> Tammy,

>

> No, no test for PANDAS, but thinking you want ASO strep titers run.

We did run those and her's were negative.

>

> There are a number of antibiotics which are " safer " for our kids,

Zithromax and Cefzil are two of the ones condsidered safer. However,

as said, you do have to be careful as any antibiotic will eat

up good bacteria along with the bad.

>

> I did just read that Barberines (golden seal, oregon grape and

barberry) were equal to antibiotics in treating strep although I have

to say we used those with no luck. I have used Golden Seal on myself

and it knocked several colds out, flat, but for her, they did not

work.

>

> What we did was really increase her probiotics during the

antibiotic we which was Zithromax, very short course, 5 days, one

dose a day.

>

> We have also used Amoxicillion with good results. But If I were

you, I'd want to know if he tested positive for ASO strep titers.

>

> Good luck,

>

> PANDAS

>

> Ok, doing some wonderful reading. Bock's book, " Healing

the New

> Childhood epidemics " . A must read guys, love it so far.

>

> Ok, any one treat PANDAS? I'm going to dive into the research. We

get the

> melt downs, sensitive, and have the ADHD PDD-NOS thing going. His

body is

> still " up " there!

>

> Thinking back years ago. My nt son had strep/pneumonia at like 5-

6 months.

> It was over the weekend, urgent care. They wanted me to follow up

with my

> family doctor on Monday to see how he was doing. My family doctor

said no

> way he could have had strep, I must have heard wrong. I remember

hearing

> something like kids under 2 don't get strep. Anyway, I didn't,

and the

> doctors report was received, I was right he tested positive for

strep. So

> it was, he must be a carrier! Whatever!

>

> So, fast forward a year or so later. My nt son again sick, he

tested

> positive for strep. This is his second time, and last I might

add. So they

> ask me if my older child has been sick. No, but they wanted to

test him

> too. I was shocked when he tested positive. So he got a shot in

the rear

> and they thought maybe he was a carrier. So, we've never had

strep again in

> our house since but..

>

> My assumption is they do a strep test to see if positive, both a

quick and a

> long one, right? How long is the antibiotic treatment!

>

> We've been working so hard on the yeast, biocidin now for almost

a month I

> think, customer probiotics. So if we did do antibiotics, it would

really

> stir things up but might be worth it. I could also do the

antibiotics for

> the clostridia too in his system, we've been doing biomedical!

>

> Anyone, please, do the testing? What was treatment? What ya think?

>

> Thanks

>

> Tammy

>

> Still searching for answers!!!!! !

>

January 21, 2008

>>I was right he tested positive for strep. So

> it was, he must be a carrier! Whatever!

I eliminated strep at my house with olive leaf extract.

Dana

January 21, 2008

thanks rachel, i'll keep that in mind kim

PANDAS

Ok, doing some wonderful reading. Bock's book, " Healing the New

Childhood epidemics " . A must read guys, love it so far.

Ok, any one treat PANDAS? I'm going to dive into the research. We get the

melt downs, sensitive, and have the ADHD PDD-NOS thing going. His body is

still " up " there!

Thinking back years ago. My nt son had strep/pneumonia at like 5-6 months.

It was over the weekend, urgent care. They wanted me to follow up with my

family doctor on Monday to see how he was doing. My family doctor said no

way he could have had strep, I must have heard wrong. I remember hearing

something like kids under 2 don't get strep. Anyway, I didn't, and the

doctors report was received, I was right he tested positive for strep. So

it was, he must be a carrier! Whatever!

So, fast forward a year or so later. My nt son again sick, he tested

positive for strep. This is his second time, and last I might add. So they

ask me if my older child has been sick. No, but they wanted to test him

too. I was shocked when he tested positive. So he got a shot in the rear

and they thought maybe he was a carrier. So, we've never had strep again in

our house since but..

My assumption is they do a strep test to see if positive, both a quick and a

long one, right? How long is the antibiotic treatment!

We've been working so hard on the yeast, biocidin now for almost a month I

think, customer probiotics. So if we did do antibiotics, it would really

stir things up but might be worth it. I could also do the antibiotics for

the clostridia too in his system, we've been doing biomedical!

Anyone, please, do the testing? What was treatment? What ya think?

Thanks

Tammy

Still searching for answers!!!!! !

January 21, 2008

thanks

PANDAS

Ok, doing some wonderful reading. Bock's book, " Healing the New

Childhood epidemics " . A must read guys, love it so far.

Ok, any one treat PANDAS? I'm going to dive into the research. We get the

melt downs, sensitive, and have the ADHD PDD-NOS thing going. His body is

still " up " there!

Thinking back years ago. My nt son had strep/pneumonia at like 5-6 months.

It was over the weekend, urgent care. They wanted me to follow up with my

family doctor on Monday to see how he was doing. My family doctor said no

way he could have had strep, I must have heard wrong. I remember hearing

something like kids under 2 don't get strep. Anyway, I didn't, and the

doctors report was received, I was right he tested positive for strep. So

it was, he must be a carrier! Whatever!

So, fast forward a year or so later. My nt son again sick, he tested

positive for strep. This is his second time, and last I might add. So they

ask me if my older child has been sick. No, but they wanted to test him

too. I was shocked when he tested positive. So he got a shot in the rear

and they thought maybe he was a carrier. So, we've never had strep again in

our house since but..

My assumption is they do a strep test to see if positive, both a quick and a

long one, right? How long is the antibiotic treatment!

We've been working so hard on the yeast, biocidin now for almost a month I

think, customer probiotics. So if we did do antibiotics, it would really

stir things up but might be worth it. I could also do the antibiotics for

the clostridia too in his system, we've been doing biomedical!

Anyone, please, do the testing? What was treatment? What ya think?

Thanks

Tammy

Still searching for answers!!!!! !

January 21, 2008

We don't do antibiotics at all with my daugther. Although she has

PANDAS induced tourettes ... she is otherwise NT.

She is on a strict rotation diet just like her twin brother. She

takes many of the same supplements as he does. She is on tons of

vitamin c and tons of probiotics as well as the MB12 shots and

several other supplementation.

The reason is when we ran he testing for allergy / intollerances and

when we ran he testing like the OATS ... much of her test came out

looking like her twin brother's looked.

A year ago her tourettes was bad ... and caused her a whole lot of

misery and frustration.

Now she is well on her way to a full recovery. The only time she

ever really has bad tics anymore is during her period ... when her

hormones are all out of wack. We are working on stabilizing them

more ... so that they don't take such a huge dip and cause her to

crash and burn if you know what I mean.

Our DAN said that antibiotics don't really help since the virus is

gone ... It is the antibodies that the body made that seems to be

the problem...

Melinda

>

> thanks rachel, i'll keep that in mind kim

> PANDAS

>

> Ok, doing some wonderful reading. Bock's book, " Healing

the New

> Childhood epidemics " . A must read guys, love it so far.

>

> Ok, any one treat PANDAS? I'm going to dive into the research. We

get the

> melt downs, sensitive, and have the ADHD PDD-NOS thing going. His

body is

> still " up " there!

>

> Thinking back years ago. My nt son had strep/pneumonia at like 5-

6 months.

> It was over the weekend, urgent care. They wanted me to follow up

with my

> family doctor on Monday to see how he was doing. My family doctor

said no

> way he could have had strep, I must have heard wrong. I remember

hearing

> something like kids under 2 don't get strep. Anyway, I didn't,

and the

> doctors report was received, I was right he tested positive for

strep. So

> it was, he must be a carrier! Whatever!

>

> So, fast forward a year or so later. My nt son again sick, he

tested

> positive for strep. This is his second time, and last I might

add. So they

> ask me if my older child has been sick. No, but they wanted to

test him

> too. I was shocked when he tested positive. So he got a shot in

the rear

> and they thought maybe he was a carrier. So, we've never had

strep again in

> our house since but..

>

> My assumption is they do a strep test to see if positive, both a

quick and a

> long one, right? How long is the antibiotic treatment!

>

> We've been working so hard on the yeast, biocidin now for almost

a month I

> think, customer probiotics. So if we did do antibiotics, it would

really

> stir things up but might be worth it. I could also do the

antibiotics for

> the clostridia too in his system, we've been doing biomedical!

>

> Anyone, please, do the testing? What was treatment? What ya think?

>

> Thanks

>

> Tammy

>

> Still searching for answers!!!!! !

>

April 4, 2008

My daughter has PANDAS ... and she is now all but recovered. She has

a minor minor head shake (tic) left ... but her PANDAS markers have

come down significantly.

Yeast treatment can cause bacterial overgrowth... this causes

Aggression in many children ... DOES he take OLE or something

similar for bacterial issues.

High doses of vitamin C help with eliminating the strep issues of

PANDAS as well as OLE, Lyseine.

My child also needed to be on a gluten free casein free corn free and

soy free diet. She also has several other food allergies that we

address.

My child also has to have allergy shots. Her PANDAS is stirred up by

environmental issues as well...

5HTP helps her sleep... doesn't need it much anymore ... we have

gotten rid of the viral thing ... Virastop helps eliminate viruses

and so does baking soda. I give 1/4t. of non-aluminum baking soda to

her if her tics get out of control ... always gets it right back

under control ...

Epsom salt baths help ... especially along with some baking soda.

The baking soda helps to slightly alter their body pH ... so that

virus can't easily survive. I don't do the baking soda thing every

day ... just when things are bad. Her bad days now look much better

than her good days use to look.... that is how much healing she has

had.

We have never done IVIG ... have you considered LDN? It is an

immune modulater and CHEAP ... It is prescription.

She lacks folinic acid and MB12 also ... so she gets these things....

She has improved and improved to the point she no longer stands out

as different at all.

All just some thoughts of things I didn't see you already trying.

Melinda

>

> My daughter was told that her son, 8 year old, has the marker for

PANDAS. His antiDNAse-B titer was 608.

> He is very hyper, very stimming, very mouthy, has several food and

seasonal allergies, severe allergy to peanut, has problem with

focusing and learning in school, it was also determined that he has

Tactile Kinesthetic issues. He doesn't sleep much. He talks non

stop, same questions over and over and over. He has just recovered

from Pyroulia. His good bacteria is low. We stopped enzymes one

month ago because he had become very aggressive and defiant. He

also, just recovered from yeast overgrowth, which right now is okay.

The DAN doctor would like him to undergo the IVIG, but since it is

quite expensive she will send them some antibiotic and other herbal

supplements made by her compound pharmacy. Anyway, does anyone have

any idea how best to treat this. He was first diagnosed as ADHD,

then PDD-NOS..... He takes magnesium, zinc, vitamin B6 (I believe),

just stopped GABA, it did not work for him, will start INOSITOL. I

bought the miracle belt, I saw

> publicized on the news, but so far it does not do anything for

him.

>

> Thank you for reading me. God Bless You all!

> Enrica

>

______________________________________________________________________

______________

> You rock. That's why Blockbuster's offering you one month of

Blockbuster Total Access, No Cost.

> http://tc.deals./tc/blockbuster/text5.com

>

April 4, 2008

Thank you Melinda, for your reply. I will show it to my daughter.

Enrica

My daughter has PANDAS ... and she is now all but recovered. She has

a minor minor head shake (tic) left ... but her PANDAS markers have

come down significantly.

Yeast treatment can cause bacterial overgrowth.. . this causes