Re: [Stop Calling It Autism!] Important: List of agents that activate or inhibit microglia

[Guest guest]

Hi .

I am glad your son does not have to follow the diet or no longer take

medications after what I would guess would be less than four years?. I think it

is important to note that your son is an individual who responded very well to

various protocols and you have done a lot, but I don't think that you should be

suggesting treatment is there now for that  possibility for all kids to not have

to take medication or follow a long-term diet because the evidence it not there

yet. If there are more kids out there like your son who responded with exactly

with what you have done, please correct me, but from what I am reading, this is

one child.

 

Some kids might have to always be on a diet and medications depending on the

degree of severity of their condition or how poor their immune system might be. 

You cannot judge this based on the outcome for your son.  It seems like whatever

you did to fight the microglial worked for you, but there is not way to say that

this will happen with other kids .  I know that you are trying to help, but as a

parent who has been there for a while, I thought it was important to careful. By

the way, my son is making steady, safe progress and is no where near what he was

like when he was severely autistic at two years old under Dr. Goldberg's

treatment.   He is now 12 years old. I was told that he would never talk,

understand anything that I would say to him based on a scan, he had no language,

no means for obtaining language, and was so severely internally distracted, he

stuck out like a sore thumb no matter where we went.  He would scream and

tantrum over

anything that he suddenly became obsessed with.  I used to wear sunglasses when

going on short walks when he was young  because he would always start screaming

about something in public and I would be in tears from all the stress. He is

light years away from that now .

 

 You seem to have a lot of information and will be so helpful to this cause. I

know that you must be so happy for how well your son is doing and I applaud

everything that you have done, but please be careful about what is suggested

because a lot of parents are new and what worked for you might not work for

others.(For example, I would never want to see a kid go off of the dairy- free

diet too soon and we don't know exactly who people are seeing.) Unless I am

wrong, there is not evidence to suggest this outcome would happen with

positively with other children,   Again, a lot of these kids will be on

medication for maybe the rest of their lives or at least longer than you

son because like Dr. Kendall suggested in the radio link that you sent,

there could be 15,000 viruses out there that the body has to deal with,has not

been identified, and these kids respond differently where their bodies do not

fight the viruses the same.  Each kid is

different.  So for some of us, unfortunately, it might be more medication and

no dairy for quite a long time or for the rest of their lives.

 

Please keep doing what you are doing to spread the word about the immune system

relationship and your connections with those doctors who work safely like Dr.

Goldberg.  You seem to have a great understanding and I really do not want to

come off as negative towards your organization, but there is a great deal of

debate in this community and the evidence is not there some of your statements

..  For example, I really have a problem with you stating that those who suggest

this is like diabetes are wrong is very off-base because of what you have found

with your son. The evidence is not there to support this statement with the

general " autistic " population. 

 

The last thing I want to do is debate with other parents who are trying to help

and hope you understand that none of us will agree on anything. I think we all

have to revise from time-to-time.

 

I hope you understand that I am not attacking you. Take care.

 

 

Lynn

 

 

 

Dear list mates,

At the end of this post is a list of agents that activate or inhibit

microglia.   A handful of people

have misunderstood what our goal at SCIA is or maybe we have not made it clear

enough even

though it has been spelled out clearly in the organization's mission and beliefs

page in the SCIA's website. 

I have pasted it below for your convenience.  We will continue to explain it  to

people until everybody is in the same page. 

After all, we all have to work as a unit if we want to be heard and something to

be done for all the children that suffer from autism. 

WE ARE NOT TELLING ANYBODY TO GIVE THEIR CHILDREN ANY MEDICATIONS!  We are

providing

information and using my son's example of how a child went from being severely

autistic to completely normal

by treating his immune system and the microglial activation.  I knew people

would ask what we did and

because SCIA is here to help and educate people we told them. 

If we have to explain this over and over, we will be happy to do it until the

people that are confused

gets it.

SCIA's mission and beliefs

http://www.stopcallingitautism.org/missionandbeliefs.html

OUR MISSION

  Our mission is to provide evidence that autism is  a set of symptoms caused by

a medical disease.

SCIA BELIEVES

 - That there is a direct connection between autism and the immune system

 - That a medical disease registry providing evidence that children with

   autism suffer from immune system dysfunction will offer evidence that we are

   in the midst of devastating medical epidemic.

 - That once children with autism are diagnosed with immune system

   dysfunction, much needed therapies will be then covered by their parents'

   health insurance companies.

 - That the success of our movement will help expedite the development of

    effective medications for treating children suffering from autism.

 - That together we will give children with autism an undeniable voice that

    will finally put an end to this medical epidemic.

What SCIA is providing is something we believe it has never been offered in the

past, which is an

understanding for parents and medical professionals of what the medical problems

that lead

to autism.  And all of it supported by science from the best medical researchers

in the world.

Autism According to SCIA

http://www.stopcallingitautism.org/autism.html

A summary of this page is that there is evidence of the following

1. Individuals with autism suffer from microglial activation

2. Microglia can become activated by infections agents (viruses, bacteria,

etc...)

3. Once the microglial cells are activated the glutathione levels decline

resulting in

   metal toxicity and oxidative stress

4. Microglial activation can impair natural killer (NK) cell dysfunction leading

to

   many infections (yeast, bacterial and viral)

5. Microglial Activation can result in seizures

6. Microglial activation can cause sleep disorders

7. Low NK Cell levels caused by Microglial activation can cause allergies

My son suffered from metal toxicity, infections, allergies, vitiligo and

severe autistic

symptoms.

We are saying that if you treat the infections children with autism have, follow

a diet,

support the immune system and on top of that inhibit the microglial activation

children can improve

in ways that nobody thought they were capable of. 

If you read the SCIA beliefs, we say that " That the success of our movement will

help expedite the development of effective medications for treating children

suffering from autism. " The evidence collected with the registry data and the

possible treatments already being researched

will help expedite this process.

I used my son's example of what it is possible.  We knew this was going to cause

some people from

other organizations get upset, but the science speaks for itself.  Look at

the videos below were taken less than 3 years

apart from each other.

before

After

You have seen how went from being severely autistic to a completely

normal child that is now

in first grade, his grades are in the mid 80s and improving, he stands up in

front of his class to

talk about what the teacher is presenting, he always want to answer questions,

he doesn't need any

support/shadow and you have heard him talk when just two years ago he suffered

from severe

speech impairments. 

The same group that is very upset about us talking about the microglial

activation inhibitors

also say that children with autism have to take medications for the rest of

their lives.

They compare it to people suffering with diabetes that they need to take insulin

for the rest of their lives.

That is not true, because doesn't need any more antifungal medications,

ADD medications,

SSRIs and several other medications he used to take in the past.  In just two

years of treatment!

He doesn't even need to be on a diet any longer, he can eat pizza, bread, ice

cream, and basically we don't have to worry about what he eats.  His lab tests

now come back almost picture perfect, just like any healthy child would.  And we

slowly continue taking him off the remaining medications.

If microglial activation can lead to the medical symptoms described above.  It

makes total sense that

the symptoms would go away if you can control the microglia.  is a living

proof of that and Science speaks for itself as explained by the Autism According

To SCIA page.

Autism According to SCIA

http://www.stopcallingitautism.org/autism.html

Microglia: Professional Scavengers of the Central Nervous System and Possible

Targets for New MS Therapies

http://tinyurl.com/28ektv7

Microlia inhibitors

Glucocorticoids

Vitamins A, E, and D

TGF-beta

Chondroitin sulfate

Minocycline

CD200R

Signal-regulatory protein 1 (CD172a)

Jagged-1

PPAR-gamma

Galectin-1

NSAIDs - http://www.mdpi.com/1424-8247/3/6/1949/pdf

Microglia Activators

LPS

Bacterial, viral products

ATP

Fibrin

Thrombin

Inflammatory cytokines (IFN-g, M-CSF)

Beta-amyloid

Fractalkine

Please feel free to ask any questions if you still have any doubts.  We are here

to clarify

any questions you might have.

Regards,

Stop Calling It Autism!

http://www.stopcallingitautism.org