Autism Poem

[Guest guest]

One Voice Will Be Heard

When you were born my heart you stole

With my every breath you filled my soul,

From that day forward right from the start,

The love you gave embraced my heart,

As with all mothers, each day I grew

My mind filled with thoughts of you,

I'd daydream of the thing's we'd share

Like late night bottles and teddy bears,

Those first steps and skinned up knees

Like bedtime stories and ABC's.

I thought of things that you'd want to know

Like why flowers smell, and why they grow,

I thought of life's little lessons we could share,

Like keeping your chin up, and playing fair.

When I first saw your precious face;

I prayed your life be touched with grace,

Each Night I thanked the angels from above;

And thanked god for your unending love,

As I was ready to lay you down to sleep

I said our prayers, and I kissed you cheek,

I would count your fingers and toes;

I memorized you eyes and your nose,

I lingered at your nursery door,

Awed each day how I'd love you more,

Though your misty eyes, I dim the light

Softly whispering, " I love you " each night,

Then one day like a thief in the night

You have stoled her soul and was out of sight,

When she raised at dawn's early light,

She couldn't talk, that day nothing was right,

She crawled like a baby, even though she could walk,

Then she would follow bricks, yet couldn't talk.

At twenty- four months, man could you sing

You could say every word, but they didn't mean a thing,

This wasn't the same, not like before

You use to say, " Mommy, I love you more. "

You mimed the walls all through the night

Sleeping four to six hours a night,

Singing and rocking, as you wept,

I cannot remember the last time you slept

Where did you go, wherever it is I want to go

Don't you know how much I miss you so,

I miss the kisses, and big teddy bear hugs,

The swimming pools, and even the bugs,

At night when it is dark I cry for you,

The things you will face, discrimination too,

This thief's name is autism, and no one quite knows,

How it takes you, how to treat it, and man it shows,

No one has a cure, no medicine; no one has a clue,

If we all would work together this is what it would do,

The trumpets from the heavens began to roar,

Soon after angels and the news began to soar,

Though out the lands, by man, animals, yes even by bird,

The message given was, " One Voice Will Be Heard! "

The message One Voice, One Story, One Child at a Time

Autism's Awakening the bells they did chime

This news included; Parents, Teachers, Professionals and more;

Working together hand in hand this news it did soar,

From city to city and state to state, through out the lands,

A new day is coming, get ready, and start up the bands,

We are fighting the thief, yet the battle is not won

Yet, think were we would be without the Power of One!

Written By:

L.D. Wedewer

President/ Found Autism Awakening (One Voice Will Be Heard!)

COSAC Iowa Autism Ambassador

Unlocking Autism Iowa Representative (Power Of One!)

[Guest guest]

Copied from a local list.  I passed it on to some family members after a little

" rough " family Christmas party, and and acknowledgement from one of my uncles

(who observed someone be rude to my child and how my child responded to it and

was affected by it - just snatched him up off the couch and stole his seat,

banged his leg on the coffee table, then said he was trying to kick him - which

he was not).  Anyway, my uncle said your kids are so wierd but we love them

anyway.  Sweet, huh?  He was also apologizing about the fact that the whole

family believes that we just don't discipline them enough.

It was a pleasant little chat and makes me wonder why I haven't moved to another

state yet.

Autism Christmas Poem

Posted by: " zmaverickz " Zmaverickz@...   mrtumlin

Sat Dec 18, 2010 8:08 am (PST)

Autism Christmas Poem

" Twas the Night Before Christmas

....And all through the house

The creatures were stirring

....Yes, even the mouse

We tried melatonin

And gave a hot bath

Asleep early for Christmas?

....an unlikely path

The children were finally

All nestled in bed

When visions of Christmas

Ran through my OWN head

Did I get the right gift?

The right color and style?

Would there be a blank stare

Or even, maybe, a smile?

Friends & family come

But they don't understand

The pleasure she gets

Just from bending her hands.

" Just make her stop it, " some say

" Just tell her " no " ,

" You must learn to be tough.. "

On and on they go...

We smile and nod

Because we know deep inside

The debate is moot

Let them all take a side

We know what it's like

To live with the spectrum

The struggles, triumphs

achievements and regressions.

But what some don't know

And what some don't see

Is the joy that we feel

Over simplicity.

She said " hello " !

She ate something green!

She looked me in my eyes

She did not cause a scene!

She peed on the potty!

Who cares if she's ten;

She stopped saying the same thing

Again and again! "

Some others don't realize

Just how we can cope

How we bravely hang on

At the end of our rope

But what they don't see

Is the joy we can't hide

When our children with autism

Make the tiniest stride

We may look at others

Without the problems we face

With envy, with wonder,

Or even distaste,

What we want them to know

What's important to see

Is that children with autism

Bring simplicity.

We don't get excited

Over expensive things

We jump for joy

With the progress work brings

Children with autism

Try so hard every day

That they make us proud

More than words can say.

They work even harder

Than you or I

To achieve something small

To reach a star in the sky

So to those who don't get it

Or can't get a clue

Take a walk in our shoes

And I'll assure you…

That even 10 minutes

Into the walk

You'll look at us all

With respect, even shock.

You will realize

What it is we go through

And the next time you see us

I can assure you

That you won't say a thing

You'll be quiet and learn,

Like the years I learned to

When the tables were turned.

~ Muczyk

[Guest guest]

,

You are right, there isn't anyone except a parent who lives this that that

understands just how hard it is to have a child with this thing we call

autism. We had the same issues with . Don't you love how your

well-meaning relatives can't wait to tell you all the reasons your child is

out of control? They are convinced the problem is your parenting. You are

not strict enough and don't set clear limits. We all know " good parenting "

involves consistency but we know this is more than that.

And dealing with your family is a whole other story, so I won't go there.

But don't you just love how this is all your fault and you are spoiling your

child? Like we don't have enough on our plates without their observations

and HELP!!! Put their comments out of your head and realize it is their

ignorance and total lack of compassion that makes them more awful than our

kids. Now who has trouble with empathy? Just always just do what your

kiddo needs. I had to learn early on not to get embarrassed by anything and

not to worry about what anyone thinks.

Marcia

P.S. I loved the poem.

[Guest guest]

Love the poem. Thanks for sharing it. The holidays can be so stressful, and

there are always going to be relatives who just don't get it. I really

appreciate those who ask questions and try to understand and offer to help in

any way they can.

[Guest guest]

I've been told by some of the finest people in the business that it's all my

fault. That's almost as helpful as family.

Mindy

Sent from my iPhone

On Dec 27, 2010, at 8:45 AM, " and Marcia Hinds " <hindssite@...>

wrote:

> ,

>

> You are right, there isn't anyone except a parent who lives this that that

> understands just how hard it is to have a child with this thing we call

> autism. We had the same issues with . Don't you love how your

> well-meaning relatives can't wait to tell you all the reasons your child is

> out of control? They are convinced the problem is your parenting. You are

> not strict enough and don't set clear limits. We all know " good parenting "

> involves consistency but we know this is more than that.

>

> And dealing with your family is a whole other story, so I won't go there.

> But don't you just love how this is all your fault and you are spoiling your

> child? Like we don't have enough on our plates without their observations

> and HELP!!! Put their comments out of your head and realize it is their

> ignorance and total lack of compassion that makes them more awful than our

> kids. Now who has trouble with empathy? Just always just do what your

> kiddo needs. I had to learn early on not to get embarrassed by anything and

> not to worry about what anyone thinks.

>

> Marcia

>

> P.S. I loved the poem.

>

>

[Guest guest]

That poem is awesome. I can't imagine the pain of being judged by someone who

will never know the mountains you climb every day. I have been very blessed with

an understanding family, but I realize this is not always the case.

God Bless you all for standing up for and standing by your children. They are

blessed to have you as parents.

Robyn

From: TAMMYandRYAN K <rtnkraft_1@...>

Subject: Re: Autism Poem

" nids " < >

Date: Monday, December 27, 2010, 6:23 AM

 

Love the poem. Thanks for sharing it. The holidays can be so stressful,

and there are always going to be relatives who just don't get it. I really

appreciate those who ask questions and try to understand and offer to help in

any way they can.