Fwd: [cherab_archive] Re: Re: Seizures and NV - Ref#41213320

[Guest guest]

worth looking into if your child suffers from seizures

---------- Forwarded message ----------

From: Barbara <helpmespeak@...>

Date: Fri, Oct 8, 2010 at 1:01 PM

Subject: [cherab_archive] Re: [ ] Re: Seizures and NV -

Ref#41213320

Cherab Foundation Childrensapraxianet Archive <

cherab_archive@...>

Barbara posted:

It would certainly be worth a try.

Warmest wishes,

Barbara A , M.S.,CCC-SLP

President,

Help Me Speak, LLC

www.helpmespeak.com

2500 Wallington Way

Suite 103

Marriottsville, MD 21104

410-442-9791

Ask me about NutriiVeda!

On Oct 7, 2010, at 4:13 PM, " adnan107 " wrote:

Does anyone know if this nv would work for tremors in an adult too?

Hi all! Am looking to put together informal " case studies " showing how NV

has

become a viable part of helping those with seizures. We know it's helping

many

other conditions as well but unlike others -this is something concrete that

nobody can say is wishful thinking. I know there are many lurkers in the

group

-please know that just like the following we will not use any names or any

way

for anyone to know who you are. The following 3 parents did agree to speak

with

professionals however- and you may or may not wish to speak with other

parents.

I'm sure some of you will recognize 2 of the 3 parents in the case studies

below. If you have a story you'd like to share in this as well which is

being

passed on to the doctors please email me at lisa@... (lisa at cherab.org)

And...if you have not yet done so...PLEASE take the survey

http://pursuitofresearch.org/survey.html

10 YEAR OLD MALE WITH APRAXIA, AUTISM AND SEIZURE DISORDERS. LAST SEIZURE

WAS

DURING FIRST WEEK ON NV AND CHILD REMAINS SEIZURE FREE TO THIS DAY GOING ON

10

MONTHS AS OF OCTOBER 2010, 3 MONTHS NOW OFF MEDICATION. PRIOR TO NV HE ON 2

MEDICATIONS AND SCHEDULED FOR A PARTIAL LOBOTOMY AT KENNEDY KRIEGER …CHILD

NEVER

NEEDED NOR HAD THE SURGERY ONCE ON NV. IN ADDITION TO ELIMINATION OF

SEIZURES

AND INCREASES TO SPEECH AND LANGUAGE, AND NO MORE OF SON COMPLAINING HIS

HEAD

HURTS.

Note from parent about 4 months into putting her son on NV; " I was told

about

it back in January and of course I was thinking it was like a million other

products out there that parents with special needs children try. However,

being

skeptical I did order it and started my son (9yrs) on it once a day (2

scoops).

Shortly after he started it I noticed very slight differences. He seemed to

have a healthy look or glow to him; his temper seemed to have leveled off

instead of extreme highs and lows. My son seemed to be grasping or

understanding language a bit more too. The most drastic of all the changes

is

that as of today my son remains seizure free!! My son has been having

uncontrolled seizures for three years now despite whatever medications we

have

tried. He has gone through many types of testing procedures and we were on

the

road to have a surgery consult to remove the portion of his right temporal

lobe

where his seizures were occurring. Today my son is drinking NV twice a day

(4

scoops) and is seizure free going on 15 weeks! We have dropped his seizure

medications twice now and still remain seizure free. I remain optimistic

that

when we hit the six months marker my son's neurologist will help us to

slowly

remove all seizure medications. I am in awe of NV and what it has done for

our

family. "

Note from parent right after 6 months seizure free from NV " I am very

skeptical about most things. I do think out of the box but for us we do not

do

any special diets or minerals. With that being said there is not one thing

in NV

that would be harmful so I put (my then 9 year old son) on it back on Jan.

2010.

My son is very verbal but struggles with speech/Lang and a whole other host

of

issues. My biggest concern back in Jan. was my 9 year old's uncontrolled

seizures, which were ever two weeks at best. As of last week has hit

SIX

months seizure free!!!! And I type that with tears in my eyes. So if you ask

me

is it worth trying NV I would have to say hell ya!!!!

6 AND A HALF YEAR OLD WITH SEVERE AUTISM, MENTAL RETARDATION, AND SEIZURES.

CHILD WAS PREVIOUS ON A MEDICATION FOR SEIZURES AND ANOTHER FOR SLEEP. DUE

TO

NV BOTH MEDICATION HAVE BEEN ELIMINATED. PROFESSIONALS THAT WORK WITH THE

CHILD

HAVE NOTED CHANGES. IN ADDITION TO ELIMINATION OF MEDICATIONS, IMPROVEMENTS

IN

MOTOR PLANNING, MUSCLE TONE, AND MOOD ARE NOTED.

Parent notes " The biggest thing for us was that we stopped giving Logan the

Topomax we'd been giving him for seizures and the Clonadine (sp?) we'd give

him

to aid his sleep. NV has completely controlled his seizures and his sleep is

better than it's ever been. Once we took him off the other meds his eyes

began

to twinkle again. We had just not noticed how much the meds had " dulled "

him. He

has returned to doing things like playing with certain toys, babbling and

playing catch that he used to do before the meds but had given up. He

exhibited

much more ability to entertain himself and was more patient when he needed

something. "

14 YEARS OLD WITH AUTISM, APRAXIA WITH SEIZURES. TEEN WAS ON SEIZURE

MEDICATION FOR 9 YEARS TO TRY TO PREVENT HIS GRAND MAL SEIZURES. PRIOR TO NV

HE

HAD NEVER HAD A NORMAL EEG. SINCE NV TEEN HAS BEEN SEIZURE FREE GOING ON 8

MONTHS AND OFF ALL SEIZURE MEDICATION. IN ADDITION, FOR THE FIRST TIME IN

HIS

LIFE, SINCE NV TEEN NOW HAS A NORMAL EEG. NUMEROUS OTHER IMPROVEMENTS ARE

NOTED

(SEE NOTE FROM PARENT BELOW WHICH WAS FROM RIGHT BEFORE MEDICATION WAS

STOPPED)

IMPORTANT TO NOTE: 14 YEAR OLD'S 10 YEAR OLD SISTER ALSO DIAGNOSED WITH

AUTISM,

APRAXIA AND SEIZURES HAS SIMILAR AND OTHER IMPROVEMENTS ON NV (SEE BELOW).

Note from parent " Hi Everyone, My children have had an incredible week!

First

off, (my 14 year old son) will be off his seizure medication Tegretol in 3

weeks! He has been on this med. for 9 years.

I am thrilled for him to be off of medication since I am not a BIG fan of

any

meds. and their host of side effects.

This week he went on a school field trip to ____ Marine _____. He was with

his

teacher and speech therapist most of time. They were ecstatic that he was

talking the whole day, saying " what's that " and pointing, " come over here "

" where

we going " . He even responded to something that was said over the loud

speaker!!

I spoke to the neurologist about NV when both of my children were on it for

3

wks already, and he told me to keep giving it to them, because he saw a

change

in them from the previous apt

I also noticed that my 14 year old son does multitask more. For example, he

used to drink something and sit or stand in one place, but now he walks

around

with drinks or finger foods, also holding something in one hand and throwing

something out with the other. He used to put down the one thing first and

then

do the 2nd thing. I think this is another positive result. Also my 10 year

old

daughter can now hold her cereal bowl up in the air and eat her cereal while

watching TV! ( well the TV part is not that great but they have to have some

vices too!)

Also they had their Special Olympic horseback riding lesson yesterday and

it

was the first day that the instructor was teaching them left and right

turns.

Well, (my 10 year old daughter) was pulling on the correct reins when the

instructor called out and I didn't even know that she knew her left from her

right!! (my 14 year old son) did this as well!

They have been on NV since February and it's not that I see something new

every day but it's consistent and they are definitely changing. We are even

seeing improvements in the toileting area which is HUGE (you saw how old

they

are) in cooperation and success.

My daughter had a terrible sleep issue last year and it lasted about 8

months,

she was waking up to 5 times a night, we were sleeping in there, it was a

nightmare, finally her neuro. dr. put her on Clonidine, which is a blood

pressure med. that they use on kids because 1. they don't like to use

sedatives

on kids and 2. the main side effect is sleep. So we did that and behavioral.

Well, we got her to the point of only waking up 1 time a night and this

lasted

for a couple of months, so I told the Dr. that I wanted her off the

Clonidine,

and I was just going to accept the fact that she (and I) would be waking up

every night. Well guess what, back in February when she started NV, she

slept

through the night after being on it 1 DAY!!! My husband and I were in shock,

she

is still sleeping through the night. "

~~~~~~~~~~~~~~~~~~~~

Again if you have an update you'd like to share in confidence you can do so

by

emailing me lisa@... or by filling in the survey here

http://pursuitofresearch.org/survey.html

=====

[Guest guest]

I'm sorry but what is NV?

Thanks,

S

>

> Hi all! Am looking to put together informal " case studies " showing how NV

> has

> become a viable part of helping those with seizures. We know it's helping

> many

> other conditions as well but unlike others -this is something concrete that

> nobody can say is wishful thinking. I know there are many lurkers in the

> group

> -please know that just like the following we will not use any names or any

> way

> for anyone to know who you are. The following 3 parents did agree to speak

> with

> professionals however- and you may or may not wish to speak with other

> parents.

> I'm sure some of you will recognize 2 of the 3 parents in the case studies

> below. If you have a story you'd like to share in this as well which is

> being

> passed on to the doctors please email me at lisa@ (lisa at cherab.org)

>

> And...if you have not yet done so...PLEASE take the survey

> http://pursuitofresearch.org/survey.html

>

> 10 YEAR OLD MALE WITH APRAXIA, AUTISM AND SEIZURE DISORDERS. LAST SEIZURE

> WAS

> DURING FIRST WEEK ON NV AND CHILD REMAINS SEIZURE FREE TO THIS DAY GOING ON

> 10

> MONTHS AS OF OCTOBER 2010, 3 MONTHS NOW OFF MEDICATION. PRIOR TO NV HE ON 2

> MEDICATIONS AND SCHEDULED FOR A PARTIAL LOBOTOMY AT KENNEDY KRIEGER …CHILD

> NEVER

> NEEDED NOR HAD THE SURGERY ONCE ON NV. IN ADDITION TO ELIMINATION OF

> SEIZURES

> AND INCREASES TO SPEECH AND LANGUAGE, AND NO MORE OF SON COMPLAINING HIS

> HEAD

> HURTS.

>

> Note from parent about 4 months into putting her son on NV; " I was told

> about

> it back in January and of course I was thinking it was like a million other

> products out there that parents with special needs children try. However,

> being

> skeptical I did order it and started my son (9yrs) on it once a day (2

> scoops).

> Shortly after he started it I noticed very slight differences. He seemed to

> have a healthy look or glow to him; his temper seemed to have leveled off

> instead of extreme highs and lows. My son seemed to be grasping or

> understanding language a bit more too. The most drastic of all the changes

> is

> that as of today my son remains seizure free!! My son has been having

> uncontrolled seizures for three years now despite whatever medications we

> have

> tried. He has gone through many types of testing procedures and we were on

> the

> road to have a surgery consult to remove the portion of his right temporal

> lobe

> where his seizures were occurring. Today my son is drinking NV twice a day

> (4

> scoops) and is seizure free going on 15 weeks! We have dropped his seizure

> medications twice now and still remain seizure free. I remain optimistic

> that

> when we hit the six months marker my son's neurologist will help us to

> slowly

> remove all seizure medications. I am in awe of NV and what it has done for

> our

> family. "

>

> Note from parent right after 6 months seizure free from NV " I am very

> skeptical about most things. I do think out of the box but for us we do not

> do

> any special diets or minerals. With that being said there is not one thing

> in NV

> that would be harmful so I put (my then 9 year old son) on it back on Jan.

> 2010.

> My son is very verbal but struggles with speech/Lang and a whole other host

> of

> issues. My biggest concern back in Jan. was my 9 year old's uncontrolled

> seizures, which were ever two weeks at best. As of last week has hit

> SIX

> months seizure free!!!! And I type that with tears in my eyes. So if you ask

> me

> is it worth trying NV I would have to say hell ya!!!!

>

> 6 AND A HALF YEAR OLD WITH SEVERE AUTISM, MENTAL RETARDATION, AND SEIZURES.

> CHILD WAS PREVIOUS ON A MEDICATION FOR SEIZURES AND ANOTHER FOR SLEEP. DUE

> TO

> NV BOTH MEDICATION HAVE BEEN ELIMINATED. PROFESSIONALS THAT WORK WITH THE

> CHILD

> HAVE NOTED CHANGES. IN ADDITION TO ELIMINATION OF MEDICATIONS, IMPROVEMENTS

> IN

> MOTOR PLANNING, MUSCLE TONE, AND MOOD ARE NOTED.

>

> Parent notes " The biggest thing for us was that we stopped giving Logan the

> Topomax we'd been giving him for seizures and the Clonadine (sp?) we'd give

> him

> to aid his sleep. NV has completely controlled his seizures and his sleep is

> better than it's ever been. Once we took him off the other meds his eyes

> began

> to twinkle again. We had just not noticed how much the meds had " dulled "

> him. He

> has returned to doing things like playing with certain toys, babbling and

> playing catch that he used to do before the meds but had given up. He

> exhibited

> much more ability to entertain himself and was more patient when he needed

> something. "

>

> 14 YEARS OLD WITH AUTISM, APRAXIA WITH SEIZURES. TEEN WAS ON SEIZURE

> MEDICATION FOR 9 YEARS TO TRY TO PREVENT HIS GRAND MAL SEIZURES. PRIOR TO NV

> HE

> HAD NEVER HAD A NORMAL EEG. SINCE NV TEEN HAS BEEN SEIZURE FREE GOING ON 8

> MONTHS AND OFF ALL SEIZURE MEDICATION. IN ADDITION, FOR THE FIRST TIME IN

> HIS

> LIFE, SINCE NV TEEN NOW HAS A NORMAL EEG. NUMEROUS OTHER IMPROVEMENTS ARE

> NOTED

> (SEE NOTE FROM PARENT BELOW WHICH WAS FROM RIGHT BEFORE MEDICATION WAS

> STOPPED)

> IMPORTANT TO NOTE: 14 YEAR OLD'S 10 YEAR OLD SISTER ALSO DIAGNOSED WITH

> AUTISM,

> APRAXIA AND SEIZURES HAS SIMILAR AND OTHER IMPROVEMENTS ON NV (SEE BELOW).

>

> Note from parent " Hi Everyone, My children have had an incredible week!

> First

> off, (my 14 year old son) will be off his seizure medication Tegretol in 3

> weeks! He has been on this med. for 9 years.

> I am thrilled for him to be off of medication since I am not a BIG fan of

> any

> meds. and their host of side effects.

>

> This week he went on a school field trip to ____ Marine _____. He was with

> his

> teacher and speech therapist most of time. They were ecstatic that he was

> talking the whole day, saying " what's that " and pointing, " come over here "

> " where

> we going " . He even responded to something that was said over the loud

> speaker!!

>

> I spoke to the neurologist about NV when both of my children were on it for

> 3

> wks already, and he told me to keep giving it to them, because he saw a

> change

> in them from the previous apt

>

> I also noticed that my 14 year old son does multitask more. For example, he

> used to drink something and sit or stand in one place, but now he walks

> around

> with drinks or finger foods, also holding something in one hand and throwing

> something out with the other. He used to put down the one thing first and

> then

> do the 2nd thing. I think this is another positive result. Also my 10 year

> old

> daughter can now hold her cereal bowl up in the air and eat her cereal while

> watching TV! ( well the TV part is not that great but they have to have some

> vices too!)

>

> Also they had their Special Olympic horseback riding lesson yesterday and

> it

> was the first day that the instructor was teaching them left and right

> turns.

> Well, (my 10 year old daughter) was pulling on the correct reins when the

> instructor called out and I didn't even know that she knew her left from her

> right!! (my 14 year old son) did this as well!

>

> They have been on NV since February and it's not that I see something new

> every day but it's consistent and they are definitely changing. We are even

> seeing improvements in the toileting area which is HUGE (you saw how old

> they

> are) in cooperation and success.

>

> My daughter had a terrible sleep issue last year and it lasted about 8

> months,

> she was waking up to 5 times a night, we were sleeping in there, it was a

> nightmare, finally her neuro. dr. put her on Clonidine, which is a blood

> pressure med. that they use on kids because 1. they don't like to use

> sedatives

> on kids and 2. the main side effect is sleep. So we did that and behavioral.

> Well, we got her to the point of only waking up 1 time a night and this

> lasted

> for a couple of months, so I told the Dr. that I wanted her off the

> Clonidine,

> and I was just going to accept the fact that she (and I) would be waking up

> every night. Well guess what, back in February when she started NV, she

> slept

> through the night after being on it 1 DAY!!! My husband and I were in shock,

> she

> is still sleeping through the night. "

>

> ~~~~~~~~~~~~~~~~~~~~

>

> Again if you have an update you'd like to share in confidence you can do so

> by

> emailing me lisa@ or by filling in the survey here

> http://pursuitofresearch.org/survey.html

>

> =====

>

[Guest guest]

The only part is the whey. We recently started the protocol and were told

no dairy. Otherwise, I have heard good things about NV.

>

> Hi all! Am looking to put together informal " case studies " showing how NV

> has

> become a viable part of helping those with seizures. We know it's helping

> many

> other conditions as well but unlike others -this is something concrete that

> nobody can say is wishful thinking. I know there are many lurkers in the

> group

> -please know that just like the following we will not use any names or any

> way

> for anyone to know who you are. The following 3 parents did agree to speak

> with

> professionals however- and you may or may not wish to speak with other

> parents.

> I'm sure some of you will recognize 2 of the 3 parents in the case studies

> below. If you have a story you'd like to share in this as well which is

> being

> passed on to the doctors please email me at lisa@ (lisa at cherab.org)

>

> And...if you have not yet done so...PLEASE take the survey

> http://pursuitofresearch.org/survey.html

>

> 10 YEAR OLD MALE WITH APRAXIA, AUTISM AND SEIZURE DISORDERS. LAST SEIZURE

> WAS

> DURING FIRST WEEK ON NV AND CHILD REMAINS SEIZURE FREE TO THIS DAY GOING ON

> 10

> MONTHS AS OF OCTOBER 2010, 3 MONTHS NOW OFF MEDICATION. PRIOR TO NV HE ON 2

> MEDICATIONS AND SCHEDULED FOR A PARTIAL LOBOTOMY AT KENNEDY KRIEGER …CHILD

> NEVER

> NEEDED NOR HAD THE SURGERY ONCE ON NV. IN ADDITION TO ELIMINATION OF

> SEIZURES

> AND INCREASES TO SPEECH AND LANGUAGE, AND NO MORE OF SON COMPLAINING HIS

> HEAD

> HURTS.

>

> Note from parent about 4 months into putting her son on NV; " I was told

> about

> it back in January and of course I was thinking it was like a million other

> products out there that parents with special needs children try. However,

> being

> skeptical I did order it and started my son (9yrs) on it once a day (2

> scoops).

> Shortly after he started it I noticed very slight differences. He seemed to

> have a healthy look or glow to him; his temper seemed to have leveled off

> instead of extreme highs and lows. My son seemed to be grasping or

> understanding language a bit more too. The most drastic of all the changes

> is

> that as of today my son remains seizure free!! My son has been having

> uncontrolled seizures for three years now despite whatever medications we

> have

> tried. He has gone through many types of testing procedures and we were on

> the

> road to have a surgery consult to remove the portion of his right temporal

> lobe

> where his seizures were occurring. Today my son is drinking NV twice a day

> (4

> scoops) and is seizure free going on 15 weeks! We have dropped his seizure

> medications twice now and still remain seizure free. I remain optimistic

> that

> when we hit the six months marker my son's neurologist will help us to

> slowly

> remove all seizure medications. I am in awe of NV and what it has done for

> our

> family. "

>

> Note from parent right after 6 months seizure free from NV " I am very

> skeptical about most things. I do think out of the box but for us we do not

> do

> any special diets or minerals. With that being said there is not one thing

> in NV

> that would be harmful so I put (my then 9 year old son) on it back on Jan.

> 2010.

> My son is very verbal but struggles with speech/Lang and a whole other host

> of

> issues. My biggest concern back in Jan. was my 9 year old's uncontrolled

> seizures, which were ever two weeks at best. As of last week has hit

> SIX

> months seizure free!!!! And I type that with tears in my eyes. So if you ask

> me

> is it worth trying NV I would have to say hell ya!!!!

>

> 6 AND A HALF YEAR OLD WITH SEVERE AUTISM, MENTAL RETARDATION, AND SEIZURES.

> CHILD WAS PREVIOUS ON A MEDICATION FOR SEIZURES AND ANOTHER FOR SLEEP. DUE

> TO

> NV BOTH MEDICATION HAVE BEEN ELIMINATED. PROFESSIONALS THAT WORK WITH THE

> CHILD

> HAVE NOTED CHANGES. IN ADDITION TO ELIMINATION OF MEDICATIONS, IMPROVEMENTS

> IN

> MOTOR PLANNING, MUSCLE TONE, AND MOOD ARE NOTED.

>

> Parent notes " The biggest thing for us was that we stopped giving Logan the

> Topomax we'd been giving him for seizures and the Clonadine (sp?) we'd give

> him

> to aid his sleep. NV has completely controlled his seizures and his sleep is

> better than it's ever been. Once we took him off the other meds his eyes

> began

> to twinkle again. We had just not noticed how much the meds had " dulled "

> him. He

> has returned to doing things like playing with certain toys, babbling and

> playing catch that he used to do before the meds but had given up. He

> exhibited

> much more ability to entertain himself and was more patient when he needed

> something. "

>

> 14 YEARS OLD WITH AUTISM, APRAXIA WITH SEIZURES. TEEN WAS ON SEIZURE

> MEDICATION FOR 9 YEARS TO TRY TO PREVENT HIS GRAND MAL SEIZURES. PRIOR TO NV

> HE

> HAD NEVER HAD A NORMAL EEG. SINCE NV TEEN HAS BEEN SEIZURE FREE GOING ON 8

> MONTHS AND OFF ALL SEIZURE MEDICATION. IN ADDITION, FOR THE FIRST TIME IN

> HIS

> LIFE, SINCE NV TEEN NOW HAS A NORMAL EEG. NUMEROUS OTHER IMPROVEMENTS ARE

> NOTED

> (SEE NOTE FROM PARENT BELOW WHICH WAS FROM RIGHT BEFORE MEDICATION WAS

> STOPPED)

> IMPORTANT TO NOTE: 14 YEAR OLD'S 10 YEAR OLD SISTER ALSO DIAGNOSED WITH

> AUTISM,

> APRAXIA AND SEIZURES HAS SIMILAR AND OTHER IMPROVEMENTS ON NV (SEE BELOW).

>

> Note from parent " Hi Everyone, My children have had an incredible week!

> First

> off, (my 14 year old son) will be off his seizure medication Tegretol in 3

> weeks! He has been on this med. for 9 years.

> I am thrilled for him to be off of medication since I am not a BIG fan of

> any

> meds. and their host of side effects.

>

> This week he went on a school field trip to ____ Marine _____. He was with

> his

> teacher and speech therapist most of time. They were ecstatic that he was

> talking the whole day, saying " what's that " and pointing, " come over here "

> " where

> we going " . He even responded to something that was said over the loud

> speaker!!

>

> I spoke to the neurologist about NV when both of my children were on it for

> 3

> wks already, and he told me to keep giving it to them, because he saw a

> change

> in them from the previous apt

>

> I also noticed that my 14 year old son does multitask more. For example, he

> used to drink something and sit or stand in one place, but now he walks

> around

> with drinks or finger foods, also holding something in one hand and throwing

> something out with the other. He used to put down the one thing first and

> then

> do the 2nd thing. I think this is another positive result. Also my 10 year

> old

> daughter can now hold her cereal bowl up in the air and eat her cereal while

> watching TV! ( well the TV part is not that great but they have to have some

> vices too!)

>

> Also they had their Special Olympic horseback riding lesson yesterday and

> it

> was the first day that the instructor was teaching them left and right

> turns.

> Well, (my 10 year old daughter) was pulling on the correct reins when the

> instructor called out and I didn't even know that she knew her left from her

> right!! (my 14 year old son) did this as well!

>

> They have been on NV since February and it's not that I see something new

> every day but it's consistent and they are definitely changing. We are even

> seeing improvements in the toileting area which is HUGE (you saw how old

> they

> are) in cooperation and success.

>

> My daughter had a terrible sleep issue last year and it lasted about 8

> months,

> she was waking up to 5 times a night, we were sleeping in there, it was a

> nightmare, finally her neuro. dr. put her on Clonidine, which is a blood

> pressure med. that they use on kids because 1. they don't like to use

> sedatives

> on kids and 2. the main side effect is sleep. So we did that and behavioral.

> Well, we got her to the point of only waking up 1 time a night and this

> lasted

> for a couple of months, so I told the Dr. that I wanted her off the

> Clonidine,

> and I was just going to accept the fact that she (and I) would be waking up

> every night. Well guess what, back in February when she started NV, she

> slept

> through the night after being on it 1 DAY!!! My husband and I were in shock,

> she

> is still sleeping through the night. "

>

> ~~~~~~~~~~~~~~~~~~~~

>

> Again if you have an update you'd like to share in confidence you can do so

> by

> emailing me lisa@ or by filling in the survey here

> http://pursuitofresearch.org/survey.html

>

> =====

>