please help

[Guest guest]

In a message dated 2/12/2000 3:24:35 PM Eastern Standard Time,

RTC@... writes:

> http://hometown.aol.com/lindartc/index.htm

You are up and running ....... It did take a few sec's to turn up and

you might think it was a blank page coming up if one did not wait....

[Guest guest]

Hi,

It actually loaded quite quickly for me. I looked at it the other day, and

didn't have any problems then, either. I do get a message telling me I don't

have the necessary plug-in, but don't know what that plug-in is. I'm on a

Mac, so it might be something unavailable to me, since I do a lot of

surfing, and have most of the Mac regulars.

Jean

----------

>From: RTC@...

>rheumaticonelist

>Subject: rheumatic please help

>Date: Sat, Feb 12, 2000, 2:13 PM

>

> From: RTC@...

>

> Someone wrote to me that when they tried to get to my website about Mixed

> Connective Tissue disorder all they got was a blank page. Would someone go

> there and see if it is working.

> Thank you for your help.

> http://hometown.aol.com/lindartc/index.htm

>

>

> ---------------------------

[Guest guest]

,

I tried it and all I got was a blank page. Sorry. T.

[Guest guest]

I tried again and got the same thing. Document Done and the page still just

had the AOL hometown logo header. I even entered mixed connective tissue

disease in the search area, hit go. It gave me 11 sites to look up. One of

them was yours. I clicked on it and got the same response. Nothing.

Carol/Piney

Re: rheumatic please help

> From: 1984@...

>

> In a message dated 2/12/2000 3:24:35 PM Eastern Standard Time,

> RTC@... writes:

> > http://hometown.aol.com/lindartc/index.htm

> You are up and running ....... It did take a few sec's to turn up

and

> you might think it was a blank page coming up if one did not wait....

>

> ---------------------------

[Guest guest]

Sometimes if a page fails to load on the initial visit, the browsers will

keep that failed load in cache, and never get around to loading it correctly

again until the browser's cache is cleared. This particularly happens with

frames, which 's site uses.

I had a friend unable to load a site of mine last summer, and she had to

manually delete the cache from the system folder before it ever loaded

correctly. Once again, I'm on a Mac, and don't know specifically how all

this translates to windows, but that might be the trouble for those unable

to load the page.

Jean

----------

>From: " Bob Zarn " <bzarn@...>

><RTC@...>, <rheumaticonelist>, <1984@...>

>Subject: Re: rheumatic please help

>Date: Sat, Feb 12, 2000, 5:12 PM

>

> From: " Bob Zarn " <bzarn@...>

>

> I tried again and got the same thing. Document Done and the page still just

> had the AOL hometown logo header. I even entered mixed connective tissue

> disease in the search area, hit go. It gave me 11 sites to look up. One of

> them was yours. I clicked on it and got the same response. Nothing.

> Carol/Piney

> Re: rheumatic please help

>

>

>> From: 1984@...

>>

>> In a message dated 2/12/2000 3:24:35 PM Eastern Standard Time,

>> RTC@... writes:

>> > http://hometown.aol.com/lindartc/index.htm

>> You are up and running ....... It did take a few sec's to turn up

> and

>> you might think it was a blank page coming up if one did not wait....

>>

>> ---------------------------

[Guest guest]

Hi --I had no problem loading your page this time but I have had

problems occasionally in the past. It is a great page!

Carol E from NY

[Guest guest]

Jean;

This is the " opiate withdrawal " effect that can be precipitated by

Peptizyde. The DPP IV peptidase and other proteases, not found in

the Zyme Prime, can cause a reduction in the amount of

exorphin " opiate-like " peptides produced from certain proteins such

as casein and gluten.

You can either ride it out at the current dosing of Peptizyde

(symptoms usually resolve in 1 or 2 weeks) or cut back on the dose

and increase it gradually til you reach the 1 cap per meal level.

Don't worry, many have gone through this, and it will pass.

Devin

> I have been following the amazing success stories of some of your

children

> for some time and decided to try enzymes for my 11 year old son.

He has

> never been on a restricted diet and has no known food sensitivity,

although

> he is a picky eater.

> About 1 month ago, my son began Houston ZymePrime(1/2 capsule at

every meal),

> which was increased to one capsule per meal over the course of a

week. He

> tolerated this well and his behavior was good. (During the school

year he

> had episodes of aggressive, angry behavior which had leveled out

over the

> preceding 2 months.)

> He then began Peptizyde,in the same manner. For the past 2 weeks,

he has

> taken both enzymes at every meal. Unfortunately, my son's behavior

is

> getting worse. He has an extremely short fuse, is verbally

abusive, has

> tic-like mannerisms, and is agitated on a daily basis. This may

occur for a

> maximum of 20 minutes, on and off during the day, until I can get

him to his

> room for a time-out. He returns calm, mellow, and very sorry.

> I am very confused since he has a history of similar problems,

although not

> as frequent or severe. I don't know whether the enzymes are having

no effect

> on him or are causing the behavior(die-off). Any input would be

greatly

> appreciated. I'm torn between stopping completely, riding this

out, or

> trying something different. At this point I am clueless.

>

> Thanks so much. Jean

>

>

>

[Guest guest]

please unsuscribe me

[ ] Re: Please help

Jean;

This is the " opiate withdrawal " effect that can be precipitated by

Peptizyde. The DPP IV peptidase and other proteases, not found in

the Zyme Prime, can cause a reduction in the amount of

exorphin " opiate-like " peptides produced from certain proteins such

as casein and gluten.

You can either ride it out at the current dosing of Peptizyde

(symptoms usually resolve in 1 or 2 weeks) or cut back on the dose

and increase it gradually til you reach the 1 cap per meal level.

Don't worry, many have gone through this, and it will pass.

Devin

> I have been following the amazing success stories of some of your

children

> for some time and decided to try enzymes for my 11 year old son.

He has

> never been on a restricted diet and has no known food sensitivity,

although

> he is a picky eater.

> About 1 month ago, my son began Houston ZymePrime(1/2 capsule at

every meal),

> which was increased to one capsule per meal over the course of a

week. He

> tolerated this well and his behavior was good. (During the school

year he

> had episodes of aggressive, angry behavior which had leveled out

over the

> preceding 2 months.)

> He then began Peptizyde,in the same manner. For the past 2 weeks,

he has

> taken both enzymes at every meal. Unfortunately, my son's behavior

is

> getting worse. He has an extremely short fuse, is verbally

abusive, has

> tic-like mannerisms, and is agitated on a daily basis. This may

occur for a

> maximum of 20 minutes, on and off during the day, until I can get

him to his

> room for a time-out. He returns calm, mellow, and very sorry.

> I am very confused since he has a history of similar problems,

although not

> as frequent or severe. I don't know whether the enzymes are having

no effect

> on him or are causing the behavior(die-off). Any input would be

greatly

> appreciated. I'm torn between stopping completely, riding this

out, or

> trying something different. At this point I am clueless.

>

> Thanks so much. Jean

>

>

>

[Guest guest]

> He then began Peptizyde,in the same manner. For the past 2 weeks,

he has

> taken both enzymes at every meal. Unfortunately, my son's behavior

is

> getting worse. He has an extremely short fuse, is verbally abusive,

has

> tic-like mannerisms, and is agitated on a daily basis. This may

occur for a

> maximum of 20 minutes, on and off during the day, until I can get

him to his

> room for a time-out. He returns calm, mellow, and very sorry.

This sounds like it might be die off, but because it only lasts for

20 minutes or so, it also sounds like it might be a sensitivity to the

papain in the Peptizyde. You can consider reducing the dose, or if

you still see this behavior after another week, consider trying the

AFP Peptizyde, which does not contain papain.

Dana

[Guest guest]

In a message dated 09/06/2002 4:00:06 AM Eastern Daylight Time,

trev_newton@... writes:

> I need to know if anyone has any documentation that talks about an

> injury being the catalyst that awakens the PA in the body. I need to

> show a link to the injury and my PA.

>

>

Trevor - I don't know that you can prove that link. I think some of believe

that, but I don't know that it is proven that an injury " awakens " PA. If

your injury resulted in infection, that might be more of a proven link as

strep and other bacterial infections are believed to be linked to PA. In any

case, good luck.

[Guest guest]

Trevor

I certainly can link both the onset and progression of my PA to injury and most

doctors I have seen have agreed that PA can be triggered by trauma. I had

whiplash in an auto accident on 1985 preceded diagnosis of Spondilosis in the

neck which has progressively got worse and and a fall from a ladder onto

concrete in 1997(resulting in a severely fractured calcamium) preceded by a year

or two formal diagnosis of PA.

I am sure many others will be able to identify trauma preceding the onset.

Geoff

[ ] Please help

This is my second post regarding this, and I'm afraid as time goes on

that my old message will be lost.

I am being discharged from the military because of my PA. I was

diagnosed because I was injured in 1999 and it didn't seem to heal.

I now have pain in almost all of my joints and basically can't do

much.

I need to know if anyone has any documentation that talks about an

injury being the catalyst that awakens the PA in the body. I need to

show a link to the injury and my PA.

Thanks in advance.

Trevor

____________________________

Moderator's note: Have you checked with the National Psoriasis Foundation yet?

There publication at:

http://www.psoriasis.org/pdf/booklet%20pdfs/psoriaticarth.pdf

says the following:

" Certain infections, including 'strep throat,' have been identified as

possible triggers. Physical trauma also has been known to trigger PsA. "

Their contact info is:

6600 SW 92nd Avenue, Suite 300

Portland, OR 97223-7195 USA

Tel: 503-244-7404

Fax: 503-245-0626

E-Mail: getinfo@...

Web Site: www.psoriasis.org

-- Ron

[Guest guest]

,

I too have twins they are 29 months old . One is still not talking just " MMMM

" for more or when he wants to eat .. He hasn't been formally DXed with

Apraxia but they won't rule it our either ..It is so hard not to be scared

and feel overwhelmed .

I am very new to all of this so alot more people on this list will give you

better answers.

You will find lots of information here that will help .

Take care,

Marie

[Guest guest]

Hi ,

It's so tough in the beginning, I know just what you're going through! I

wasn't able to even look at any information about apraxia without crying

until 5 mos. after he was suspected of having apraxia.

I personally don't know of anyone who could tell you your child defintely has

apraxia at 25 months. That's how old my son was when he recieved his first

speech evaluation. What the SLP told us was that he was showing a lot of

" red flags " for having apraxia but they don't like to formally diagnose until

the age of three. But the good thing is your children can start being

treated " as if " they have the diagnosis of apraxia.

One of the main things to keep in mind if your child does have apraxia is

that progress can be painfully slow. After a year of therapy (2-3 x per

week) my son still only had about 10 words and a few of those were

approximations, not even clearly the word. But in the second year of therapy

has gone from those 10 words to literally hundreds of words! He

strings upwards of 6 words together in a sentence routinely now. Mind you

his intelligibility isn't very good ( I would say he could be understood by a

stranger maybe 60% of the time) but wow, all this in the past year!

Just hang in there, you're in the right place = )

Where do you live? You may be able to join up with other parents in your

area which is extremely helpful.

If you haven't already I suggest you join the apraxia-kids list as well.

From other parents is where you'll get your most valuable information.

Hope this helps,

Amber Stankis

Delaware, Mom to 9 (typically developing) & 4.1 (oral/verbal

apraxia and SID)

[Guest guest]

-Hi ,

Welecome to a great group! It is scarry in the beginning I too

remember when I heard the word " Apraxia " for the first time, I never

left the computer!!

My son JAck was diagnosed " Unofficially " at 21 months at Boston

Children's hospital by a SLP from the Comunication disorder dept. The

OFFicial came many months later because the wait for a Developmental

Ped. and SLP team was about 8 months. Jack has Oral apraxia which can

be diagnosed as early as 18 months which is what Jack has. He had

problems, pursing his lips, blowing out candles, blowing, lack of

tongue control etc. He too was diagnosed with Mild PDD but many

children who are apraxic get that diagnosis at one time or another!

You didn't say who told you they may both possibly have " Apraxia " was

it EI? A call into the local hospital for a eval. might be a good

Idea with a Developmental ped. SLP or both If you haven't done so

already. It is good that they are getting services.

Jack has come alot further than I ever expected him to in such a

short time. Last year he had about 10 words and now he is using 7-8

word sentences,95% intellegible to me and about 75% to others a huge

leap in such a short time!

Your boys will get there too!!!!

Hope this was helpful,

Eileen mom to JAck 3.4 Oral Apraxia, Sensory intergration dysfunction

and 1.10

-- In @y..., " mariakelleher2002 "

<mariakelleher@h...> wrote:

> Hi,

>

> I am new to the group and have some questions.

>

> I have twin 25 month old boys who are not talking yet. They are

just

> starting to say 'ba ba' for 'bye bye' and 'mmmm' for 'more'

or 'eeee'

> for 'me'. They originally thought they may have mild PDD-NOS, but

now

> they think one or both may have apraxia instead.

>

> I have spent the last 8 months researching all about autism, but

now

> I want to find out all I can about apraxia. I don't want to waste

any

> more time and want to make sure they get the treatment they need. I

> understand treatment for apraxia is different than treatment for

> speech delay.

>

> My EI speech therapist said they're too young to be diagnosed with

> apraxia, but I've seen other people say their child was diagnosed

> even younger. Can apraxia be diagnosed at 2 years old? I am

> especially concerned because I read that the earlier it is

diagnosed

> the better.

>

> Also, I read some things that said MOST of the time, children with

> apraxia will learn to talk, as long as they are diagnosed early and

> get intensive therapy. But I've also read things that make it sound

> more frightening and less likely they will ever talk. Which one is

> closer to the truth?

>

> Can anyone recommend a good book or two about apraxia?

>

> I am still scared to death. Any info you can give me would be

greatly

> appreciated.

>

> Regards,

>

>

[Guest guest]

Hi ,

I too can tell you it can be really overwhelming in the beginning.

But I must share with you that you really found a wonderful group of

people who are willing to share and listen. For me on some days

this is all I really need.

I have 2 boys both with a formal dx of dyspraxia. In Canada only a

dev. ped. can dx apraxia. Speech therapists can tell you they

suspect apraxia although cannot dx because they are not dr. and

could loose their licence. I'm not sure if it works the same as

where you live.

My son is now 4.6 yrs and has been in therapy since the age of

17 months. At that point the SLP thought he was apraxic and started

working with him (it runs in our family). For my younger son Noah

(27 months) I had him assessed at 10 months and then again at 13

months. I knew we were looking at the same thing again. As a baby

there was no babbling, or any noises.

Last February (when Noah was 18 months) I received the formal dx for

both and Noah. Well worth the wait for us since we had to

wait 1 yr. to see this doctor.

Currently is doing great! Noah's progress is much much

slower. He has been in speech therapy since the age of 17 months

and until a few weeks he had 2 words, many approximations and 20+

signs. We started both boys on the magic of ProEFA and he is

currently in a spurt. Works are coming and we just got " daddy " for

the first time last week. In the past few weeks he has gone from 2

words to approx 10 and many more approximations. He is trying to

say everything which is not like him because he was a silent child

for the past 2 yrs. Both my children are in speech currently 3x per

week although 3 of the 6 times are private. Our private is with a

wonderful Prompt instructor (one of the top in Toronto).

I would encourage you find a really good speech therapist for your

boys. We have been learning sign language which has helped in

decreasing Noah's frustration level.

Please let me know if I can answer anymore questions.

(4.6 yrs, dyspraxia, hypotonia, SID)

Noah (2.3 yrs, profound dyspraxia, hypotonia, SID and stopped eating

foods Sept 2001)

> Hi,

>

> I am new to the group and have some questions.

>

> I have twin 25 month old boys who are not talking yet. They are

just

> starting to say 'ba ba' for 'bye bye' and 'mmmm' for 'more'

or 'eeee'

> for 'me'. They originally thought they may have mild PDD-NOS, but

now

> they think one or both may have apraxia instead.

>

> I have spent the last 8 months researching all about autism, but

now

> I want to find out all I can about apraxia. I don't want to waste

any

> more time and want to make sure they get the treatment they need.

I

> understand treatment for apraxia is different than treatment for

> speech delay.

>

> My EI speech therapist said they're too young to be diagnosed with

> apraxia, but I've seen other people say their child was diagnosed

> even younger. Can apraxia be diagnosed at 2 years old? I am

> especially concerned because I read that the earlier it is

diagnosed

> the better.

>

> Also, I read some things that said MOST of the time, children with

> apraxia will learn to talk, as long as they are diagnosed early

and

> get intensive therapy. But I've also read things that make it

sound

> more frightening and less likely they will ever talk. Which one is

> closer to the truth?

>

> Can anyone recommend a good book or two about apraxia?

>

> I am still scared to death. Any info you can give me would be

greatly

> appreciated.

>

> Regards,

>

>

[Guest guest]

I have 5 (almost 6) year old twin daughters that have been diagnosed

with apraxia at 2 years old.

One of them is still very severe, but she is talking. She now has a

hard time with lots of 2 syllable words, and she can only say a few

3 or more syllable words. However she is now saying most 1 syllable

words. She still has lots of articulation problems.

My other daughter is talking quite well. She still has articulation

problems, but that is about it.

One of the handouts that I received from our speech therapist said

that if they can say anything (ba, ma, etc) then the speech

therapist can get them to talk. It may take a long time, but they

can get them to talk.

So, I think your kids will talk. It's also very early to tell what

they are going to do. One of my daughters wasn't saying much of

anything, and then at 3 she started talking. I hope your kids will

be the same way.

Good luck.

Suzi

> Hi,

>

> I am new to the group and have some questions.

>

> I have twin 25 month old boys who are not talking yet. They are

just

> starting to say 'ba ba' for 'bye bye' and 'mmmm' for 'more'

or 'eeee'

> for 'me'. They originally thought they may have mild PDD-NOS, but

now

> they think one or both may have apraxia instead.

>

> I have spent the last 8 months researching all about autism, but

now

> I want to find out all I can about apraxia. I don't want to waste

any

> more time and want to make sure they get the treatment they need.

I

> understand treatment for apraxia is different than treatment for

> speech delay.

>

> My EI speech therapist said they're too young to be diagnosed with

> apraxia, but I've seen other people say their child was diagnosed

> even younger. Can apraxia be diagnosed at 2 years old? I am

> especially concerned because I read that the earlier it is

diagnosed

> the better.

>

> Also, I read some things that said MOST of the time, children with

> apraxia will learn to talk, as long as they are diagnosed early

and

> get intensive therapy. But I've also read things that make it

sound

> more frightening and less likely they will ever talk. Which one is

> closer to the truth?

>

> Can anyone recommend a good book or two about apraxia?

>

> I am still scared to death. Any info you can give me would be

greatly

> appreciated.

>

> Regards,

>

>

[Guest guest]

- Hi - I'm also new to the group AND I have 20 month-old boy-girl

twins , and I'm a speech-language pathologist. My daughter is demonstrating

signs of verbal apraxia and I'm frustrated, too. I just recently started

tuning into her more because my son is taking off with his speech and is

putting two words together, She only has about 4 words and has difficulty

imitating sound sequences.

You might already know, but excellent speech resources are things by

Kaufman and Pamella Marshalla- both experts in the apraxia/dyspraxia field.

Keep me posted on your progress.

Jana

[Guest guest]

Thanks for your emails. It is good to know that I am not alone, and

to hear that there is hope.

But can someone please tell me what specifically I should be doing?

Besides getting an evaluation, what about supplements? I see some

things about " EFAs " - it sounds like all of you agree that there are

specific ones that are helping your kids. Can you please tell me

what, how much, etc.?

FYI, I have been giving my children lots of things since there is

still the question of mild PDD-NOS. They are on the GFCF diet, and

get DMG, Cod Liver Oil, Coromega, pro-biotics, colostrum, zinc,

calcium, Super Nu Thera (a B6/magnesium supplement). And I recently

bought carn-aware and evening primrose oil (does anyone know where

and how much to apply this?).

I think coromega and Cod Liver Oil have fatty acids, right? Can

someone explain the difference between 3 and 6, and how do I know how

much to give of each? Some people talked about ProEFA or others - is

this the same thing? Or should I give those instead, or in addition??

Sorry for so many questions, but I'm confused!

Thanks in advance,

--- In @y..., " luckygmstwife " <suzi_knowles@p...>

wrote:

> I have 5 (almost 6) year old twin daughters that have been

diagnosed

> with apraxia at 2 years old.

>

> One of them is still very severe, but she is talking. She now has

a

> hard time with lots of 2 syllable words, and she can only say a few

> 3 or more syllable words. However she is now saying most 1

syllable

> words. She still has lots of articulation problems.

>

> My other daughter is talking quite well. She still has

articulation

> problems, but that is about it.

>

> One of the handouts that I received from our speech therapist said

> that if they can say anything (ba, ma, etc) then the speech

> therapist can get them to talk. It may take a long time, but they

> can get them to talk.

>

> So, I think your kids will talk. It's also very early to tell what

> they are going to do. One of my daughters wasn't saying much of

> anything, and then at 3 she started talking. I hope your kids will

> be the same way.

>

> Good luck.

>

> Suzi

>

>

[Guest guest]

<PRE>I still am learning more and more about ProEFA- I still don't know enough

yet

to advise you. I haven't yet ventured that area for my daughter, but I'm

looking into it seriously. I have just really focused on speech issues- oral

motor training and sound imitation using tactile cuing. And we've also beefed

up her sign language and gestural use.

[Guest guest]

Hi,

Thanks for responding. I'll check into those names - are there any

books in particular you can recommend?

What about ProEFA, or other supplements? Which one(s) should I be

giving them? They already get coromega and cod liver oil, and I

bought evening primrose oil but haven't used it yet. I don't want to

give them too much, and I don't if I should give them ProEFA in

addition to that, or instead.

Anyone is the Boston area know of any good SLPs, or a place to get

diagnosed?

Thanks so much,

> - Hi - I'm also new to the group AND I have 20 month-old boy-

girl

> twins , and I'm a speech-language pathologist. My daughter is

demonstrating

> signs of verbal apraxia and I'm frustrated, too. I just recently

started

> tuning into her more because my son is taking off with his speech

and is

> putting two words together, She only has about 4 words and has

difficulty

> imitating sound sequences.

>

> You might already know, but excellent speech resources are things

by

> Kaufman and Pamella Marshalla- both experts in the

apraxia/dyspraxia field.

>

> Keep me posted on your progress.

>

> Jana

[Guest guest]

Hi ,

> " For my younger son Noah (27 months) I had him assessed at 10 months and

>then again at 13 months. "

I would like to know what kind of doctor assessed your child at 10 mon & 13 mon?

Will it be too young? My younger son Darren who is 14 months now. He started

babbling since 4 month old. His babbling increased at 8 months. He used to say

" mama, dada, gaga,momo... " But for whatever reason,he stopped babbling at around

10-11 month. He still can say mama, momo but very rarely. I don't hear the dada,

gaga anymore. Because my older son Dylan (3.6) is apraxic and did not have real

words until 3. I'm very concerned and worried about Darren. We all thought he

may start talking early as he babbled a lot before. But now I'm worried.

I don't know if the ped will tell me to wait and be patient since he is only 14

month old. But I don't want to waste time like what happened to Dylan.

Tks.

Agnes

--- jennand3men <jacnoa@...> wrote:

> Hi ,

>

> I too can tell you it can be really overwhelming in the beginning.

> But I must share with you that you really found a wonderful group of

> people who are willing to share and listen. For me on some days

> this is all I really need.

> I have 2 boys both with a formal dx of dyspraxia. In Canada only a

> dev. ped. can dx apraxia. Speech therapists can tell you they

> suspect apraxia although cannot dx because they are not dr. and

> could loose their licence. I'm not sure if it works the same as

> where you live.

> My son is now 4.6 yrs and has been in therapy since the age of

> 17 months. At that point the SLP thought he was apraxic and started

> working with him (it runs in our family). For my younger son Noah

> (27 months) I had him assessed at 10 months and then again at 13

> months. I knew we were looking at the same thing again. As a baby

> there was no babbling, or any noises.

[Guest guest]

Hi Agnes,

Noah was assessed at age 10 months and thirteen months by speech.

At 13 months we confirmed that there was a real problem. As my

older son is apraxic I knew we were heading down the same road. We

went every week to a private therapist (one of the top in our city)

and she watched as he sat in silence while my older son was in

therapy. He was silent.......no words and very, very little

babbling. When Noah was 17.5 months we finally got in to see the

dev. ped for both my boys. She is the one who made the dx and again

one of the top in our city (Toronto, Ontario).

I would suggest to you find the best speech/dr's you can find. I

went through several with my older son until I found a knowledgable,

caring, and wonderful person for my children. That really has made

all the difference. I have had to go the private route for both of

them because unfortulantly the services in Ontario are terrible (I

too cannot afford it but I felt we really had no other choice.)

Please let me know if I can help anymore.

> > Hi ,

> >

> > I too can tell you it can be really overwhelming in the

beginning.

> > But I must share with you that you really found a wonderful

group of

> > people who are willing to share and listen. For me on some days

> > this is all I really need.

> > I have 2 boys both with a formal dx of dyspraxia. In Canada

only a

> > dev. ped. can dx apraxia. Speech therapists can tell you they

> > suspect apraxia although cannot dx because they are not dr. and

> > could loose their licence. I'm not sure if it works the same as

> > where you live.

> > My son is now 4.6 yrs and has been in therapy since the

age of

> > 17 months. At that point the SLP thought he was apraxic and

started

> > working with him (it runs in our family). For my younger son

Noah

> > (27 months) I had him assessed at 10 months and then again at 13

> > months. I knew we were looking at the same thing again. As a

baby

> > there was no babbling, or any noises.

[Guest guest]

You don't say what treatments/meds you are on, but it sounds like you need to

get to a doctor, preferably a rheumatologist.

Hope you are feeling better,

[Guest guest]

> My dr. treated my sons yeast ovegrowth of Albicans, and candida

> krusei with a product called CandiBactin_BR he became extremely

> violent, head banging, biting us, out of control.

This can be major withdrawal, or it can be an intolerance to that

yeast treatment.

>>GSE wont do either because he has a citrus

> allergy.

Consider oil of oregano, that works for quite a few kids.

http://www.danasview.net/yeast.htm

>>a noticed very red rectum and a few tiny red

> dots on his penis that he keeps touching.

This sounds like he has yeast, or he is eating a food or supplement

that he REALLY does not tolerate.

>> banging his knee into his

> forhead really hard.

Yeast or phenols

http://www.danasview.net/phenol.htm

He might do okay with No-Fenol enzyme, that will help the yeast and

the phenol issue.

Dana

[Guest guest]

I understand that Oil of Oregano is also good for killing yeast.

My heart goes out to him - he must be feeling miserable.

Annette

> GSE wont do either because he has a citrus

> allergy.