please help

[Guest guest]

We use the picture cards with our child who is 6. She is not moving ahead

with vocab because she knows the pictures and uses them when she wants

something but no other time they are used. I don't really know where to go

from here. I feel that since she has CP that effects her hands that sign is

out. She can say most of the picture cards but not too clearly. How did you

get the Apraxia dx?? Sedona has Epileptic Aquired Apraxia. Due to Landau

Kleffner Syndrome. She doesn't fit the LKS dx anymore. What should I do

about school ??? What program should I look for?? She is in a Autistic

Program now Full day but she is not autistic. She knows what she wants and

if you ask her to show you the picture of a red square she can. If you ask

her what the red square is she can't always tell you.

-- Re: [ ] what does this mean?

Just another thought. Picture cards are an abstract venue as a means of

looking into comprehension. Your seven year old sounds as though she has

not

completely moved from concrete to abstract thinking and many at this age

have not.

She probably has no real life experience with strong winds blowing umbrellas

backwards or perhaps she has no background knowledge of the sun melting her

ice cream cone.

Show her a card with an activity that she has experience with and she will

probably surprise you.

She has probably asked you for help in the past when needing to get off a

bench or reaching for something.

Those cards are not good measures of your child's receptive language skills

unless only those that are meaningful and relevant are used

[Guest guest]

I was using the picture cards with our non-verbal son. Then I read

the book about teaching him to read and now he uses words to

communicate (just one word at a time). I'm trying to teach him to

spell the word now but I'm not having much success. He'll do the

first letter of the word and that's all. The book I recommend is How

To Teach Your Baby To Read, by Glenn Doman. Also, I got him into the

internet reading program called Time2Read. He loves it. They give

discounts for brain injured children.

(ny 5 1/2)

[Guest guest]

guardia or crytopsoridium are to small to be easily filtered.

could be either of those.

sometimes the quickest way is just take a short course flagyl or

whatever is used for those parasites rather than test.

gee you have been risking it, i get my water from a river or a

spring, ALWAYS take it up to the first level in a pressure cooker,

but five minutes boiling should be adequate. the other thing is use a

bottle in still water and take the water midway between the top and

bottom.

> we (daughter and self) might have parasites or other such water

> borne problems.

>

> too tired/spacey too look for answers.

> what shall we do?

>

> seems to be now a week of chronic diarrhea for us.

> comes and goes, for a day stops.

> even when not, severe stomach cramps OFTEN.

> wether eat or not.

> doeznt matter.

>

> asking doc to do samples of stool seems too difficult right now.

> with no " cure " from doc. what does it matter which strain it is.

>

> son never got it.

>

> our drinking water comes from the lake.

> summer is ofcourse busy time at the lake.

> besides all the dogs swim in it.

> we do have brita filter, but what does that do to parasites?

> nothing?

[Guest guest]

Giardia is a real possibility. Collecting stool isn't real practical since it

probably isn't formed any longer. Labs have these things that look like toilet

seat covers, but like a child's potty chair it doesn't have a hole in it. Then

you just pour it into the collection bottles you're given. ----- Original

Message -----

From: lilghostie35

Sent: Saturday, August 23, 2003 9:56 PM

Subject: please help

we (daughter and self) might have parasites or other such water

borne problems.

too tired/spacey too look for answers.

what shall we do?

seems to be now a week of chronic diarrhea for us.

comes and goes, for a day stops.

even when not, severe stomach cramps OFTEN.

wether eat or not.

doeznt matter.

asking doc to do samples of stool seems too difficult right now.

with no " cure " from doc. what does it matter which strain it is.

son never got it.

our drinking water comes from the lake.

summer is ofcourse busy time at the lake.

besides all the dogs swim in it.

we do have brita filter, but what does that do to parasites?

nothing?

[Guest guest]

Hi, Minna

I don't know how accurate this site is but there is information about

Grapefruit Seed Extract for parasites and for helping to purify water.

http://www.nutriteam.com/parasites.htm#FDA

http://www.nutriteam.com/index2.html#holiday

I hope you both feel better soon. Very soon!

> we (daughter and self) might have parasites or other such water

> borne problems.

>

> too tired/spacey too look for answers.

> what shall we do?

>

> seems to be now a week of chronic diarrhea for us.

> comes and goes, for a day stops.

> even when not, severe stomach cramps OFTEN.

> wether eat or not.

> doeznt matter.

>

> asking doc to do samples of stool seems too difficult right now.

> with no " cure " from doc. what does it matter which strain it is.

>

> son never got it.

>

> our drinking water comes from the lake.

> summer is ofcourse busy time at the lake.

> besides all the dogs swim in it.

> we do have brita filter, but what does that do to parasites?

> nothing?

[Guest guest]

That was a great site. Thanks.

Re: please help

Hi, Minna

I don't know how accurate this site is but there is information about

Grapefruit Seed Extract for parasites and for helping to purify water.

http://www.nutriteam.com/parasites.htm#FDA

http://www.nutriteam.com/index2.html#holiday

I hope you both feel better soon. Very soon!

> we (daughter and self) might have parasites or other such water

> borne problems.

>

> too tired/spacey too look for answers.

> what shall we do?

>

> seems to be now a week of chronic diarrhea for us.

> comes and goes, for a day stops.

> even when not, severe stomach cramps OFTEN.

> wether eat or not.

> doeznt matter.

>

> asking doc to do samples of stool seems too difficult right now.

> with no " cure " from doc. what does it matter which strain it is.

>

> son never got it.

>

> our drinking water comes from the lake.

> summer is ofcourse busy time at the lake.

> besides all the dogs swim in it.

> we do have brita filter, but what does that do to parasites?

> nothing?

[Guest guest]

Hi,

What kind of cacer does she have?

nah

> Hi, I have an unusual cancer situation. I am reading Dr. Hulda's

> book, " The Cure For All Cancers " . I am in a rush to save my cat.

> She has cancer and she does not have long. If anyone out there has

> completed the Parasite cleanse and has givin it to their pets.

> Please tell me how your cat reacted. Any advice about this system

or

> any system would be greatly helpful. I am having problems knowing

> what to do. The capsules are on the internet, but the amounts for

> pets don't make sense from what I read in the book.

>

> Please help!

[Guest guest]

If you are using monolaurin it could be coconut allergy related. If

you are using lauricidin, it is not made from coconuts and wouldn't

necessarily mean an allergic reaction but I suppose it could. I

would be more inclined to say it was die off if you were using

lauricidin. If monolaurin, then consider die off but also consider a

coconut allergy.

And yes, if she's been gfcf the rash could be related to the cookies

and not have anything to do with the monolaurin. If you give the

next dose of monolaurin and it looks progressively worse with each

dose,t hen you'll know it's related to the monolaurin. If it goes

away, I would say it was the cookies.

W

--- In , " tod_s_2000 " <tod_s_2000@y...>

wrote:

> Listmates--I have been giving my daughter monolaurin for the last

> week, adn have seen some real impovement. However, this morning she

> has gotten a rash on her neck, bottom, back, and chest. Could this

be

> die-off?? Should I stop the monolaurin? Also, she got ahold of 2-

> cookies and ate them before we could stop her this moring, and she

is

> GFCF. Could that cause the rash? Please adivse. Thanks--Tod

[Guest guest]

Thanks!! Sorry for the cross post!

> > Listmates--I have been giving my daughter monolaurin for the last

> > week, adn have seen some real impovement. However, this morning

she

> > has gotten a rash on her neck, bottom, back, and chest. Could

this

> be

> > die-off?? Should I stop the monolaurin? Also, she got ahold of 2-

> > cookies and ate them before we could stop her this moring, and

she

> is

> > GFCF. Could that cause the rash? Please adivse. Thanks--Tod

[Guest guest]

Hi Holly,

I think you need to find out where this lead comes from and if she

has current exposure. If you live in an old house (built before

1980) it could be lead paint. It could also be vinyl blinds. You can

buy lead testing kit and test all things in your house. If you find

out that there is lead in the house you should do something about

it, I don't know exactly what...may be even move if you have such

possibility, or remove all lead sources from the house. Then you

need to start chelation with DMSA - read the files section of this

group, and you will have all information how to do it. It should

take several years (about 2)to chelate lead.

Good luck

Margaret

> Hi, I am a fairly new member and do not know where to begin. My

four

> year old, diagnosed with autism, had her hair tested and we just

got

> back the test results from Doctor's Data. I thought that she had

> mercury poisoning because of serious reactions to her vaccines.

The

> test results show that her lead level is " extremely high. "

>

> Result 4.6

> Reference Range < 1.0

>

> What do these numbers mean? I read somewhere that if lead is

> severely high that the child must be hospitalized. I don't know

if

> she is in the severely high range. Just wondering if anyone at

all

> can shed some light on this as I am extremely concerned.

Her " total

> toxic respresentation " was past the ninety-five percentile.

>

> Thanks, Holly

[Guest guest]

> test results show that her lead level is " extremely high. "

>

> Result 4.6

> Reference Range < 1.0

>

> What do these numbers mean?

That she should have less than 1.0, but she tested as 4.6.

I read somewhere that if lead is

> severely high that the child must be hospitalized. I don't know if

> she is in the severely high range. Just wondering if anyone at all

> can shed some light on this as I am extremely concerned.

Here is a lead chelation testimonial, which discusses quite a few things you

might find informative

http://www.danasview.net/cheltest.htm

Her " total

> toxic respresentation " was past the ninety-five percentile.

What else was high?

Dana

[Guest guest]

> > test results show that her lead level is " extremely high. "

> >

> > Result 4.6

> > Reference Range < 1.0

> >

> > What do these numbers mean?

>

>

> That she should have less than 1.0, but she tested as 4.6.

>

>

> I read somewhere that if lead is

> > severely high that the child must be hospitalized. I don't know

if

> > she is in the severely high range. Just wondering if anyone at

all

> > can shed some light on this as I am extremely concerned.

>

>

> Here is a lead chelation testimonial, which discusses quite a few

things you might find informative

>

> http://www.danasview.net/cheltest.htm

>

>

> Her " total

> > toxic respresentation " was past the ninety-five percentile.

>

>

> What else was high?

> The only thing in the red was lead, but her antimony was almost to

the red. It came back, aluminum high, antimony high, bismuth high,

cadmium high, lead extremely high, silver high, tin high, magnesium

low, copper normal, chromium high, boron high, and lithium low. It's

the " extremely high " category for the lead that scares me. If anyone

else that has had this reading can share with me, I'd truly

appreciate it. Thanks, Holly

> Dana

[Guest guest]

> > What else was high?

> > The only thing in the red was lead, but her antimony was almost to

> the red. It came back, aluminum high, antimony high, bismuth high,

> cadmium high, lead extremely high, silver high, tin high,

In this list, the lead and antimony would concern me most, the aluminum and tin

second. Have you checked for food and

environmental sources?

http://www.danasview.net/metals.htm

Dana

[Guest guest]

I would go to the files and get your child on the detox protocol asap(after

pre-loading of course)!

R

[Guest guest]

> Hi, I am a fairly new member and do not know where to begin. My four

> year old, diagnosed with autism, had her hair tested and we just got

> back the test results from Doctor's Data. I thought that she had

> mercury poisoning because of serious reactions to her vaccines. The

> test results show that her lead level is " extremely high. "

>

> Result 4.6

> Reference Range < 1.0

>

> What do these numbers mean?

That she has more lead in her hair than at least 95% of

a control group that was used to come up with the reference

ranges. I would say she has lead toxicity.

> I read somewhere that if lead is

> severely high that the child must be hospitalized. I don't know if

> she is in the severely high range. Just wondering if anyone at all

> can shed some light on this as I am extremely concerned. Her " total

> toxic respresentation " was past the ninety-five percentile.

I would not suggest hospitalization. I would suggest that you

consider chelating with DMSA (which is very good at removing lead).

http://home.earthlink.net/~moriam/Andy_dose_sched.html

good wishes,

Moria

[Guest guest]

> > The only thing in the red was lead, but her antimony was almost to

> the red. It came back, aluminum high, antimony high, bismuth high,

> cadmium high, lead extremely high, silver high, tin high, magnesium

> low, copper normal, chromium high, boron high, and lithium low. It's

> the " extremely high " category for the lead that scares me. If anyone

> else that has had this reading can share with me, I'd truly

> appreciate it. Thanks, Holly

Holly, if you want to look for other results with lead this high,

I can tell you how to search for this, but it is going to take some

time and patience---- so here is how if you want to do it:

1. go here:

http://home.earthlink.net/~moriam/HOW_TO_hair_test.html

Look for the section on " posted results " of hair tests.

There will be a whole bunch of links. Click on each link

and look at lead values.

This includes DDI hair tests (with complete information)

but ONLY through some date (maybe a year ago or longer?)

2. A lot more hair tests have been posted since then.

To find them, select an element that is listed in the

" format " of a DDI hair test, but which is NOT commonly

discussed on the list. Such as " Rubidium " or " Zirconium " .

Search in the message archive for this word. (It will

appear in EVERY posted hair test result posting.)

Check for lead results.

I am POSTITIVE there have been lead results posted that

are higher what yours was. I remember one that I thought

was just amazingly high.

good wishes,

Moria

[Guest guest]

Just to put your childs hairtest results into perspective. My daughter's level

of lead in her hair was 15 with the same reference reange of < 1. After 9 rounds

of ALA only it went down to 9.6. After another 18 rounds (13 of which included

DMSA) it went down to 2.7.

I hope this reduces your shock a bit.

Dagmar.

The

> test results show that her lead level is " extremely high. "

>

> Result 4.6

> Reference Range < 1.0

>

> What do these numbers mean?

[Guest guest]

In a message dated 1/12/04 2:21:03 AM, dagmarjahr@... writes:

<< Just to put your childs hairtest results into perspective. My daughter's

level of lead in her hair was 15 with the same reference reange of < 1. After 9

rounds of ALA only it went down to 9.6. After another 18 rounds (13 of which

included DMSA) it went down to 2.7.

I hope this reduces your shock a bit.

>>

Thanks for posting that, Dagmar. And great for your daughter!

Nell

[Guest guest]

just my opinion but i would keep the digestive enzymes and stop the

probiotic.

-- In , " sbynautilus " <nautilus@r...>

wrote:

> Dear Listmates,

>

> Please advise whether it is true that prior to having some test for

> Yeast/Micro-Organism/Anaerobic Bacteria (about a week before), we

> have to stop giving probiotics & digestive enzymes to our kids.

>

> Looking forward to hearing from your soon.

>

> Kind regards,

> Rudy-Indonesia

[Guest guest]

After increasing pain in my feet i went back to the rheummatologist who told me

that the best he can do is keep me on 20mg of mtx and add sulfazine (sp) because

the pain is mainly in my tendons, not my joints, and that the biologics are

designed to help joint pain. has anyone heard about this?

[Guest guest]

-heummatologist who told me that the best he can do is keep me on

20mg of mtx and add sulfazine (sp) because the pain is mainly in my

tendons, not my joints, and that the biologics are designed to help

joint pain. has anyone heard about this?

Hi Leonora,

I, too, am confused about this one. The biologics interupt the

imflammatory process by blocking a T-cell called tumer necrosis

factor. I thought this could involve tendons,muscles,cartilidge,

and not just the bones. I know one term they use is

enthesitis....inflammation where the tendons meet the bones and it is

helped by the biologics as far as I know. And if you have NO joint

pain....why the MTX and sulfazine??? And, as I understand it, much of

our problem is located in the lining around the joints (synovial

lining) Do your tendons hurt you at the joint areas???? someone

gave us an excellent article on the biologics and pa by Dr.

christopher Ritchlen www.medscape.com/rheumatologyhomepage It is

listed there on the Rheumotology homepage and includes drawings of

where the TNF cells are located.

Maybe he feels the MTX is covering your pa...and no Enbrel is

needed. Have you looked in our database for approved Docs for

someone who could give you a second opinion?

Good Luck,

Marti

[Guest guest]

Marti,

Thank youfor your response. I find it confusing that current doctor calls my

case " extremely mild " -- I mean, without the 100mg of Inocin I take daily plus

the 300mg of neurotin I wouldn't be able to stand up. He thinks that I am

really upset about " other things " in my life that I have not discussed with him.

Sure this is true -- I have lost my boyfriend and most of my social life because

I am hardly able to get anywhere.

This is not to day that he is not a good doctor. He gave me a thorough exam,

always returns my phone calls, and has a great reputation. On the other hand

though I had to ask for the x-ray (which I heard is common protocol) and he

changed his mind about the Enbrel for seemingly no reason. Also, while the pain

is only in a few joints (toes) the achilles tendon by the bone hurts as well as

the synovial lining in the balls of my feet.

I really would like to see Dr. Ritchlen. I am located in the NYC area and would

be willing to take a bus or a drive if it is not too far.

Basically

[Guest guest]

-

>

> I really would like to see Dr. Ritchlen. I am located in the NYC

area and would be willing to take a bus or a drive if it is not too

far.

>

>Hi Leonora,

I believe Dr. Ritchlin is at the University in Rochester, N.Y.I know

several of our members are fortunate to see him so they could give

you more specifics.

This really can be a confusing and frustrating disease both for us

and the docs. hang in there!!

Marti

[Guest guest]

Hello Ivan

Has your ped commented on your son's head at all? Where are you

located so members in that area can give you advice to where you

could go and get evaluated. At his age you would want to band him

to get roundness. I don't believe at this point that repo could

help anymore. There is alot of information in our files section

that you could go to and read up on. Maybe you can even find

providers where you are. Welcome to the group.

Sandy Willow's Mom

> Hi All,

>

> My son was 13 mths old. He has a flat spot on one side of his head

> due to sleep facing one side. Need someone advise what should i do

> to overcome this problem.

>

>

> Thanks & Regards,

> Ivan

[Guest guest]

Welcome!

Its not uncommon for MDs - even specialists - to be ignorant of the

treatment for low T. I suggest you read the AACE Guidelines for

diagnosis and treatment of Hypogonadism. You can find it in

the " Links " section of the forum in the yellow bar to the left.

Please prepare yourself for the task of driving your own proper

medical treatment. Unfortunately, most of us have had to get very

assertive to get the care we need.

HCG is the alternative drug you're referring to which could preserve

your fertility. It really depends on the type of hypogonadism you

have. Primary Hypogonadism is failure of the testes themselves. HCG

will not help this form of Hypo. Secondary Hypogonadism is a failure

of the brain to send the proper messenger hormones to the testes. HCG

may help in this case. In any event, you need thorough testing to

determine the type of Hypo you have and the proper course of

treatment.

Regards,

K4

> Hello -

>

> I'm new to the group. My T level has been low (about 330) since

> about January. I have low libido and low ejaculate. My erections

> are fine when they happen, but are rare because of the libido

> problem. I've been to 2 doctors, my family doctor and a urologist,

> they've helped very little. My fam. doctor tried me on levitra but

> that didn't solve the problem at all, as expected. My urologist

> didn't seem to have a clue and when I saw him a few weeks ago, he

> said " well maybe we'll think about putting you on testosterone

> gel " . He didn't seem to have any idea.

>

> I finally got an appointment with an endocrinologist and will be

> going on 6/10. I'm only 27 so I want to avoid doing anything

extreme

> such as TRT. I've heard of alternative treatments for someone my

> age who wants to remain fertile. What kind of treatment can I

> expect? I've read a lot of different things from reading previous

> posts. I'm very nervous...I used to have a solid sex drive so it

> has been a bit demoralizing.

>

> This seems like a great group! Any help would be appreciated. I

> need to put my mind at ease...thanks

>

> Dave