Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 > I have actually been the person the school recommends parents >talk to when they first get the diagnosis.>>>>>>>>>>>>>> Wow. Here our school is not allowed to a parent with a child that has autism if there is someone else willing to talk to them or get/give advice. Our speech teacher has told me a year ago that she was surprised that I knew so much about the special ed laws and such. Yet I can't find out other parents that have a child with Autism. And you know that is sad cause I know I could help alot of them. Any ideas? Marj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 I have the good fortune to be in a great district. I had toyed with the idea of putting together a support group in my town, but there is one nearby. Unfortunately, they meet at night and with my husbands’ travel schedule, nights are tricky for me. I was originally asked if I would mind if they gave my name to parents, and then I offered it up. I have not been contacted by anyone that I didn’t already know in some capacity, so I don’t know if it made a difference to be available. I still leave it open with them, though. Perhaps people are just too shy, or feel they can handle it on their own. NH is great for special ed., if you know where to go. There is a resource here called Parent Information Center, and I know they are in other states, maybe in yours. They actually train parent advocates to assist in IEP meetings, etc. It was tempting, but I think my plate is a little full to be offering up hours of my time. As for getting your name out there or forming some sort of support group, would your school put your name in the newsletter? Again, I have a great school here and they would do that. By law, they cannot give you the names of the kids with AS, but you can ask them to forward your name onto those parents. Some districts do not want the parents forming any kind of alliance, because then they learn what their rights are and can get what might not otherwise be offered. Maybe the PTA will help. That should fall right in their ballpark. Good luck. Re: ( ) Please help > I have actually been the person the school recommends parents >talk to when they first get the diagnosis.>>>>>>>>>>>>>> Wow. Here our school is not allowed to a parent with a child that has autism if there is someone else willing to talk to them or get/give advice. Our speech teacher has told me a year ago that she was surprised that I knew so much about the special ed laws and such. Yet I can't find out other parents that have a child with Autism. And you know that is sad cause I know I could help alot of them. Any ideas? Marj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 In my school district, the school psychologist started the parent support group and sent a notice out to all the parents with children that had an IEP. In the letter she explained that, she was starting a parent support group, the day it would meet, and to meet in the school. this went very well. DeMio <demio@...> wrote: I have the good fortune to be in a great district. I had toyed with the idea of putting together a support group in my town, but there is one nearby. Unfortunately, they meet at night and with my husbands’ travel schedule, nights are tricky for me. I was originally asked if I would mind if they gave my name to parents, and then I offered it up. I have not been contacted by anyone that I didn’t already know in some capacity, so I don’t know if it made a difference to be available. I still leave it open with them, though. Perhaps people are just too shy, or feel they can handle it on their own. NH is great for special ed., if you know where to go. There is a resource here called Parent Information Center, and I know they are in other states, maybe in yours. They actually train parent advocates to assist in IEP meetings, etc. It was tempting, but I think my plate is a little full to be offering up hours of my time. As for getting your name out there or forming some sort of support group, would your school put your name in the newsletter? Again, I have a great school here and they would do that. By law, they cannot give you the names of the kids with AS, but you can ask them to forward your name onto those parents. Some districts do not want the parents forming any kind of alliance, because then they learn what their rights are and can get what might not otherwise be offered. Maybe the PTA will help. That should fall right in their ballpark. Good luck. Re: ( ) Please help > I have actually been the person the school recommends parents >talk to when they first get the diagnosis.>>>>>>>>>>>>>> Wow. Here our school is not allowed to a parent with a child that has autism if there is someone else willing to talk to them or get/give advice. Our speech teacher has told me a year ago that she was surprised that I knew so much about the special ed laws and such. Yet I can't find out other parents that have a child with Autism. And you know that is sad cause I know I could help alot of them. Any ideas? Marj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 Every state has a Parent Information Center. I work for the one here in Rhode Island. I would also seek out your Local Advisory Committee on Special Education or the local Autism Center. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 MY Two cents.. I put an ad in the local paper.. asking about parents who may be interested in autism awareness.. or a play group.. yup.. some schools are scared to death that you will start talking to eachother.. and GOD FORBID get organized and demand what is right and lawful for your children. or better yet.. a letter to the editor is free.. and in April I actually got a full page article on my son and Autism awareness. You have a good heart people.. and the main thing is to get through this together. -- Re: ( ) Please help > I have actually been the person the school recommends parents >talk to when they first get the diagnosis.>>>>>>>>>>>>>> Wow. Here our school is not allowed to a parent with a child that has autism if there is someone else willing to talk to them or get/give advice. Our speech teacher has told me a year ago that she was surprised that I knew so much about the special ed laws and such. Yet I can't find out other parents that have a child with Autism. And you know that is sad cause I know I could help alot of them. Any ideas? Marj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 I haven't gotten any replies. I would appreciate any help.......... Patty > > My 3 yr old son has apraxia and I am desperate. Can someone recommend > some EFA's? What is the difference between these and EPA's? I'm > currently giving him Complete Omegas 3-6-9 by Nordic Naturals and not > sure if this is the right one. What else should I be doing? Should he > be getting OT? He was, but not anymore since Regional Service stopped > paying (he doesn't have any fine motor problems). I was getting him > about 2 hours of speech therapy, but right now he is only in a 45 min. > therapy session with one other child, and is getting 1 hour of speech > in school. Also, does the Prompt method work? I'd appreciate any > feedback. > > Thanks, > Patty > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Hi Patty! The EFA formula you're using is great - it's almost exactly (or maybe it is) the same as Pro-EFA, and a little cheaper! What dose are you using now? If you haven't seen a surge in a week or two, you can increase the dose, or you can add in an EPA formula (like Pro-EPA). Some people on this board have had a lot of success with a high EPA to DHA ratio. (EPA and DHA are both Omega 3s, but there's a theory that the EPA is more important, the GLA in your formula fights imflammation (also important). Use your own instincts when it comes to how much therapy. Is he pretty receptive and does he work hard at therapy? If so, maybe he would be okay with more. Our therapist has always been concerned that we don't overload our daughter with therapy. There is a table on www.cherab.org that is a therapy matrix based on severity you may want to look at. Is he making progress? Fast enough for your tastes? Is there a way you can easily increase therapy or will it be a big fight or expense? Keep in mind that it's really the quality that counts! Are you satisfied with the quality he's getting now? If not, you could request a new therapist more suitable to his needs (this goes for if he just doesn't " click " with his therapists too. And lastly, are you able to work with him a lot at home? Don't feel bad if you can't - my daughter just isn't very cooperative for me but will work so hard for her therapists so I don't push her too hard at home. Has he ever been evaluated by an OT? Sometimes kids with verbal apraxia can also have oral apraxia, fine motor delays, sensory problems, poor self-help skills etc. My daughter was extremely delayed in some aspects of fine motor and self-help, but somehow in only 3 months of therapy caught up 100% (I do think that fish oils and other supplements have been a great help). I hope I could help you out a bit. You don't have to actually answer all those questions I asked - they're just for you to think about. Good luck! Kerri > > > > My 3 yr old son has apraxia and I am desperate. Can someone > recommend > > some EFA's? What is the difference between these and EPA's? I'm > > currently giving him Complete Omegas 3-6-9 by Nordic Naturals and > not > > sure if this is the right one. What else should I be doing? > Should he > > be getting OT? He was, but not anymore since Regional Service > stopped > > paying (he doesn't have any fine motor problems). I was getting > him > > about 2 hours of speech therapy, but right now he is only in a 45 > min. > > therapy session with one other child, and is getting 1 hour of > speech > > in school. Also, does the Prompt method work? I'd appreciate any > > feedback. > > > > Thanks, > > Patty > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Hi Kerry, I was giving him 1/4 tsp a day as they recommended, but recently increased to 1/2 tsp to see if I would see a surge. I hope that's not too much. It's the liquid form. Maybe I will try adding Pro-EPA. 3Yes, his receptive language is very good, and he made great progress with 2 45-min sessions a week since last July. He's now saying 3-4 word sentences, but since he started preschool 3 wks ago, we've had to change his schedule and is now getting just one session a week with another child, which has been going really well, but I really want him to get individual sessions. I'm planning on changing therapists (to a place closer where I live that I heard is good), but they only have one 45 min. session a week available and no other openings He's had OT. He's a picky eater and is hypersensitive to different tastes and textures. His fine motor skills are ok, but has problems with self-regulation. Thanks for giving me that website Patty Jeff <kerripat@...> wrote: Hi Patty! The EFA formula you're using is great - it's almost exactly (or maybe it is) the same as Pro-EFA, and a little cheaper! What dose are you using now? If you haven't seen a surge in a week or two, you can increase the dose, or you can add in an EPA formula (like Pro-EPA). Some people on this board have had a lot of success with a high EPA to DHA ratio. (EPA and DHA are both Omega 3s, but there's a theory that the EPA is more important, the GLA in your formula fights imflammation (also important). Use your own instincts when it comes to how much therapy. Is he pretty receptive and does he work hard at therapy? If so, maybe he would be okay with more. Our therapist has always been concerned that we don't overload our daughter with therapy. There is a table on www.cherab.org that is a therapy matrix based on severity you may want to look at. Is he making progress? Fast enough for your tastes? Is there a way you can easily increase therapy or will it be a big fight or expense? Keep in mind that it's really the quality that counts! Are you satisfied with the quality he's getting now? If not, you could request a new therapist more suitable to his needs (this goes for if he just doesn't " click " with his therapists too. And lastly, are you able to work with him a lot at home? Don't feel bad if you can't - my daughter just isn't very cooperative for me but will work so hard for her therapists so I don't push her too hard at home. Has he ever been evaluated by an OT? Sometimes kids with verbal apraxia can also have oral apraxia, fine motor delays, sensory problems, poor self-help skills etc. My daughter was extremely delayed in some aspects of fine motor and self-help, but somehow in only 3 months of therapy caught up 100% (I do think that fish oils and other supplements have been a great help). I hope I could help you out a bit. You don't have to actually answer all those questions I asked - they're just for you to think about. Good luck! Kerri > > > > My 3 yr old son has apraxia and I am desperate. Can someone > recommend > > some EFA's? What is the difference between these and EPA's? I'm > > currently giving him Complete Omegas 3-6-9 by Nordic Naturals and > not > > sure if this is the right one. What else should I be doing? > Should he > > be getting OT? He was, but not anymore since Regional Service > stopped > > paying (he doesn't have any fine motor problems). I was getting > him > > about 2 hours of speech therapy, but right now he is only in a 45 > min. > > therapy session with one other child, and is getting 1 hour of > speech > > in school. Also, does the Prompt method work? I'd appreciate any > > feedback. > > > > Thanks, > > Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 1-yes 2yes 3no 4 yes charlotte henry west des moines iowa > > Hi, My name is Brown and i live in Rutland, Vermont. I am a > preschool teacher and a mother of a 3 year old daughter. I am taking > a course to get my CDA (child development associates) and have taken > a semester on children with specaial needs. For my final project i > am interviewing parents of children with special needs. If you could > help me that would be great. All i need you to do is answer 4 yes or > no questions and also include your first name, where your from and > how old you child is and what disability they have. Thank you so > much. > Brown > > > Questions > 1. Do you feel people look at you differently because you have a > child that is " different " - YES OR NO > > 2. Does your child get enough time with their therapist? YES OR NO > > 3. If you knew when you were pregnant that your child would have > special needs would you have terminated the pregnancy? YES OR NO > > 4. Do you feel you child is included in all aspects of his or her > daycare/ preschool/ school YES OR NO > > Thanks again > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 Hello, 1. Yes 2. No 3. No 4. No We live in Kirkland, Illinois. is 5 1/2 yrs. old and diagnosed with motor planning apraxia. Teri & > > Hi, My name is Brown and i live in Rutland, Vermont. I am a > preschool teacher and a mother of a 3 year old daughter. I am taking > a course to get my CDA (child development associates) and have taken > a semester on children with specaial needs. For my final project i > am interviewing parents of children with special needs. If you could > help me that would be great. All i need you to do is answer 4 yes or > no questions and also include your first name, where your from and > how old you child is and what disability they have. Thank you so > much. > Brown > > > Questions > 1. Do you feel people look at you differently because you have a > child that is " different " - YES OR NO > > 2. Does your child get enough time with their therapist? YES OR NO > > 3. If you knew when you were pregnant that your child would have > special needs would you have terminated the pregnancy? YES OR NO > > 4. Do you feel you child is included in all aspects of his or her > daycare/ preschool/ school YES OR NO > > Thanks again > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 Who do we reply to? At 06:47 PM 4/4/2006, you wrote: >Hi, My name is Brown and i live in Rutland, Vermont. I am a >preschool teacher and a mother of a 3 year old daughter. I am taking >a course to get my CDA (child development associates) and have taken >a semester on children with specaial needs. For my final project i >am interviewing parents of children with special needs. If you could >help me that would be great. All i need you to do is answer 4 yes or >no questions and also include your first name, where your from and >how old you child is and what disability they have. Thank you so >much. > Brown > > >Questions >1. Do you feel people look at you differently because you have a >child that is " different " - YES OR NO > >2. Does your child get enough time with their therapist? YES OR NO > >3. If you knew when you were pregnant that your child would have >special needs would you have terminated the pregnancy? YES OR NO > >4. Do you feel you child is included in all aspects of his or her >daycare/ preschool/ school YES OR NO > >Thanks again Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 1. no 2. yes 3. no 4. yes Grassia <miche@...> Sent by: cc: @yaho Subject: Re: [ ] PLEASE HELP ogroups.com 04/05/2006 12:05 AM Please respond to Who do we reply to? At 06:47 PM 4/4/2006, you wrote: >Hi, My name is Brown and i live in Rutland, Vermont. I am a >preschool teacher and a mother of a 3 year old daughter. I am taking >a course to get my CDA (child development associates) and have taken >a semester on children with specaial needs. For my final project i >am interviewing parents of children with special needs. If you could >help me that would be great. All i need you to do is answer 4 yes or >no questions and also include your first name, where your from and >how old you child is and what disability they have. Thank you so >much. > Brown > > >Questions >1. Do you feel people look at you differently because you have a >child that is " different " - YES OR NO > >2. Does your child get enough time with their therapist? YES OR NO > >3. If you knew when you were pregnant that your child would have >special needs would you have terminated the pregnancy? YES OR NO > >4. Do you feel you child is included in all aspects of his or her >daycare/ preschool/ school YES OR NO > >Thanks again Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 1.yes 2.yes 3.no 4.yes is 3 years old with global dyspraxia and verbal apraxia. On 4/4/06 8:47 PM, " jbmistletoe " <jbmistletoe@...> wrote: > Hi, My name is Brown and i live in Rutland, Vermont. I am a > preschool teacher and a mother of a 3 year old daughter. I am taking > a course to get my CDA (child development associates) and have taken > a semester on children with specaial needs. For my final project i > am interviewing parents of children with special needs. If you could > help me that would be great. All i need you to do is answer 4 yes or > no questions and also include your first name, where your from and > how old you child is and what disability they have. Thank you so > much. > Brown > > > Questions > 1. Do you feel people look at you differently because you have a > child that is " different " - YES OR NO > > 2. Does your child get enough time with their therapist? YES OR NO > > 3. If you knew when you were pregnant that your child would have > special needs would you have terminated the pregnancy? YES OR NO > > 4. Do you feel you child is included in all aspects of his or her > daycare/ preschool/ school YES OR NO > > Thanks again > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 1. yes 2. no 3. no 4. yes Lorraine Modesto, California 2 kids daughter 14, OCD, Anxiety, Language delays, Learning disabilities, Sensory integration dysfunction, son 12, PDDNOS, CAPD, Dyspraxia, Severe receptive and expressive language delays, Severe academics learning disabilities, sensory integration dysfunction. I hope this helps. -------------- Original message -------------- From: " jbmistletoe " <jbmistletoe@...> Hi, My name is Brown and i live in Rutland, Vermont. I am a preschool teacher and a mother of a 3 year old daughter. I am taking a course to get my CDA (child development associates) and have taken a semester on children with specaial needs. For my final project i am interviewing parents of children with special needs. If you could help me that would be great. All i need you to do is answer 4 yes or no questions and also include your first name, where your from and how old you child is and what disability they have. Thank you so much. Brown Questions 1. Do you feel people look at you differently because you have a child that is " different " - YES OR NO 2. Does your child get enough time with their therapist? YES OR NO 3. If you knew when you were pregnant that your child would have special needs would you have terminated the pregnancy? YES OR NO 4. Do you feel you child is included in all aspects of his or her daycare/ preschool/ school YES OR NO Thanks again Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 > >Hi, My name is Brown and i live in Rutland, Vermont. I am a > >preschool teacher and a mother of a 3 year old daughter. I am taking > >a course to get my CDA (child development associates) and have taken > >a semester on children with specaial needs. For my final project i > >am interviewing parents of children with special needs. If you could > >help me that would be great. All i need you to do is answer 4 yes or > >no questions and also include your first name, where your from and > >how old you child is and what disability they have. Thank you so > >much. > > Brown > > > > > >Questions > >1. Do you feel people look at you differently because you have a > >child that is " different " - YES OR NO > > > >2. Does your child get enough time with their therapist? YES OR NO > > > >3. If you knew when you were pregnant that your child would have > >special needs would you have terminated the pregnancy? YES OR NO > > > >4. Do you feel you child is included in all aspects of his or her > >daycare/ preschool/ school YES OR NO > > > >Thanks again > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Questions 1. Do you feel people look at you differently because you have a child that is " different " - I have 6 kids, 1 bio, 1 that is half hispanic, 4 that are Chinese, 2 with limb differences, all 6 with different sn's. I really don't think they are staring because Phoebe can't talk..lol 2. Does your child get enough time with their therapist? No, our insurance won't pay for more than one day. 3. If you knew when you were pregnant that your child would have special needs would you have terminated the pregnancy? NOOOOO!! 4. Do you feel you child is included in all aspects of his or her daycare/ preschool/ school YES Kathy...Port Orchard, WA 17, S/P Omphalacele repair, CP, Gerstman Syndrome, OCD, Tourettes, heart, lung and eye problems Zackary 11 RAD, PTSD Abby 5 hearing impaired Phoebe 3 verbal apraxia, SID 2 limb difference Saoirse 1 limb difference Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Hello We live in Perth Western Australia. Andrianna is 2.5 years old with Global Developmental Delays and Dyspraxia.. 1. yes 2. no 3. no 4. yes CreBear31@... wrote: Hello, 1. Yes 2. No 3. No 4. no We live in Kirkland, Illinois. is 5 1/2 yrs. old and diagnosed with motor planning apraxia. Teri & > > Hi, My name is Brown and i live in Rutland, Vermont. I am a > preschool teacher and a mother of a 3 year old daughter. I am taking > a course to get my CDA (child development associates) and have taken > a semester on children with specaial needs. For my final project i > am interviewing parents of children with special needs. If you could > help me that would be great. All i need you to do is answer 4 yes or > no questions and also include your first name, where your from and > how old you child is and what disability they have. Thank you so > much. > Brown > > > Questions > 1. Do you feel people look at you differently because you have a > child that is " different " - YES OR NO > > 2. Does your child get enough time with their therapist? YES OR NO > > 3. If you knew when you were pregnant that your child would have > special needs would you have terminated the pregnancy? YES OR NO > > 4. Do you feel you child is included in all aspects of his or her > daycare/ preschool/ school YES OR NO > > Thanks again > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 > > Hi, My name is Brown and i live in Rutland, Vermont. I am a > preschool teacher and a mother of a 3 year old daughter. I am taking > a course to get my CDA (child development associates) and have taken > a semester on children with specaial needs. For my final project i > am interviewing parents of children with special needs. If you could > help me that would be great. All i need you to do is answer 4 yes or > no questions and also include your first name, where your from and > how old you child is and what disability they have. Thank you so > much. > Brown > > > Questions > 1. Do you feel people look at you differently because you have a > child that is " different " - YES > 2. Does your child get enough time with their therapist? YES for OT, we stopped it ourselves. NO probably for ST, he has semantic pragmatic language disorder and won't get any this summer. > > 3. If you knew when you were pregnant that your child would have > special needs would you have terminated the pregnancy? NO > > 4. Do you feel you child is included in all aspects of his or her > daycare/ preschool/ school YES > Thanks again has receptive/expressive speech and language disorder, difficulty modulating his emotions, history of torticollis/plagiocephaly, had sensory integration disorder which turned out to be gluten ataxia, and latent varicella virus (causing shingles and possible problems with cranial nerves from this source). Family immunodeficiency Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 In a message dated 4/4/2006 9:01:01 PM Central Daylight Time, jbmistletoe@... writes: > Brown > > > Questions > 1. Do you feel people look at you differently because you have a > child that is " different " - NO > > 2. Does your child get enough time with their therapist? NO > > 3. If you knew when you were pregnant that your child would have > special needs would you have terminated the pregnancy? DOES NOT APPLY > > 4. Do you feel you child is included in all aspects of his or her > daycare/ preschool/ school YES > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Re: [ ] PLEASE HELP In a message dated 4/4/2006 9:01:01 PM Central Daylight Time, jbmistletoe@... writes: > Brown > > > Questions > 1. Do you feel people look at you differently because you have a > child that is " different " - YES > > 2. Does your child get enough time with their therapist? NO > > 3. If you knew when you were pregnant that your child would have > special needs would you have terminated the pregnancy? ABSOLUTELY NOT - HE IS THE LIGHT OF MY LIFE > > 4. Do you feel you child is included in all aspects of his or her > daycare/ preschool/ school YES > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 Ok here are some links ... 1st step for Insurance.doc Insurance Help - where to start FDA Approved Cranial Orthoses as of 01-28-04.doc Is your helmet/band FDA approved? Check here for helmet/bands that are FDA approved as of 01/28/04 int99fda.pdf US FDA Regulation of Orthotic Treatment of Deformation Plagio Plagio Studies and Research Some studies, research, guidelines, etc. on plagiocephaly. Owing to space constraints in this Files section, many more studies can be found linked in the Links section, Plagiocephaly Studies and Research folder. AAP-Plagio.pdf American Acadamy of Pediatrics links increase of plagio cases since Back To Sleep Campaign 07/03 AAP re9946.doc support doc ct pub act 03-37.doc Connecticut Law Child Deformation Senate Bill.pdf Treatment of Children's Deformities Act of 2003 Cranialdysfunctioninotitismedia.jpg whole health reference article H-185.967 CoverageChildren'sDeformities,Disfigureme.rtf Coverage of Children's Deformities, Disfigurement and AAP Releases American Academy of Pediatrics reports regarding plagiocephaly Plagiocephaly Studies and Research Links to studies on plagiocephaly, including treatment protocol, helmet/band efficacy, repositioning efficacy, natural rounding efficacy, causes of plagio, health and developmental risks related to plagio, tort, and more; could be useful in insurance appeals. American Medical Association Policies The AMA's policies on definition of "cosmetic" and "reconstructive" as well as correction of children's deformities are extremely useful for appeals. Check these links here to read the AMA's policies on these subjects. Legislation Concerning Coverage of Cranial Orthoses for Treatment of Plagiocephaly If you have received a denial based on "no restoration of function," then you may want to read pending bills in Congress that would require coverage of a deformity correction even if no "function" is returned in the process. Also included are any links to any known developments on the legislative front involving cranial orthoses coverage. Besides helping you with the drafting of an appeal letter, information in this folder may provide some ideas for getting involved on a grass-roots level in the fight for insurance coverage of helmets/bands. Litigation Concerning Coverage of Cranial Orthoses for Treatment of Plagiocephaly Read here about any court decisions made in our legal system regarding the fight for insurance coverage of helmets and bands. In addition, information about seeking legal help specifically to win your fight for insurance coverage is located here. http://www.cranialtech.com/ParentsArea/researchArticles.html You will need to go to each of these links and pull what you feel is helpful. na, DOC Grad Feb 04Kiersten, DOC Grad Apr 06www.thefilyaws.com/plagio/plagio.html >> I am looking for any information about clinical studies proving that > the cranial helmets work. I also need to know where to find > information on the problems that plagio causes. If anyone can help I > would really appreciate it. I know that I have read somewhere that it > causes many medical problems but I can't find it now. Medical hearing > Fri June 2 to fight the denial of coverage.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 I think one of the most comprehensive places I have seen articles is on cranial tech's website. http://www.cranialtech.com When yo get there go to Parents Area, Resources and then Research Articles. You may find what you are looking for there. Best of luck to you. Bobbi H. 6.5 months tort/brachy/plagio DOC band 5/8/06 PHX > I am looking for any information about clinical studies proving that > the cranial helmets work. I also need to know where to find > information on the problems that plagio causes. If anyone can help I > would really appreciate it. I know that I have read somewhere that it > causes many medical problems but I can't find it now. Medical hearing > Fri June 2 to fight the denial of coverage. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 Good luck on June 2. We will be thinking of you guys. Haylee mom to Andre 21 months/tort/docband #1 22/11/05 doc band #2 coming soon & Lesly 21 months P.S. If you are planning to go to Cranial Technologies you could try giving their headquarters a call. They may be able to provide you with some studies to help prove your case. > > I am looking for any information about clinical studies proving that > the cranial helmets work. I also need to know where to find > information on the problems that plagio causes. If anyone can help I > would really appreciate it. I know that I have read somewhere that it > causes many medical problems but I can't find it now. Medical hearing > Fri June 2 to fight the denial of coverage. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2006 Report Share Posted July 4, 2006 Saline implants have made many of us sick...can you tell us your symptoms ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2006 Report Share Posted July 4, 2006 Hi , Many of us here have gotten quite ill from saline implants, myself included. I got sick within a few weeks of being implanted, and I decided to have them explanted after six months. It's been 8 months since explant and I'm still on the mend as far as symptoms go, but my piece of mind is much better with the implants out. I felt like a ticking timebomb with them in. The explant surgery is usually much easier than the implant surgery, just make sure that your doctor removes the capsules (and get it in writing that he/she will do this), and make sure they use drains. Make sure they use the " en bloc " procedure, which means that they'll remove the implants without draining them in your body, and they'll remove the capsules, too. My symptoms were joint pain, brain fog, headaches, lymph node pain, digestive problems, sore fingers and toes, numbness in my finger tips, neck pains. I wish you all the best and am glad that you've found us. Sis > > I live in San Diego and put in Saline implants in 1995. I had them for 7 years and my doctor convinced me to switch to Silicone. After a year with silicone I became very ill and opted to remove them and replace them with saline. My health has still deteriorated. I have multiple chemical sensitivities. I am scheduled to have my implants out in Septemeber and am really scared. Do you have Saline Implant ladies in your support groups? And, do you believe saline implants can also make someone ill? Most people think I am crazy and that this is a result of the stress in my life, although it has been reduced for 1 year now. I believe I have 2 choices, my boobs or my health. They are so much a part of my self-image it's scary. > > Thank you for all your help. > > Best, > La jolla, CA > Quote Link to comment Share on other sites More sharing options...
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