RE: Re:Oldie on Culturelle & why it might irritate PANDAS

[Guest guest]

I 'd really appreciated if you let me know what is a Panda Kid?? Thanks

________________________________

From: Ranee Fear <rfear@...>

Sent: Wed, September 29, 2010 9:17:45 AM

Subject: Re:Oldie on Culturelle & why it might irritate PANDAS

I think I need help understanding this as well. Wouldn't this mean that

MOST probiotics are bad for PANDAS kids since the majority have streptocci

and all that I have seen have some form of lactobacilli? Or is that not the

same as lactobacillus? Not a good thing since these kids are usually on

long term antibiotics.

[Guest guest]

Paediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococci

Bacteria http://en.wikipedia.org/wiki/PANDAS

Keep in mind, the criteria for diagnosis are changing in (1) age of onset (used

to be 3 years and now that is being reconsidered) and (2) the type of infection

(i.e. it may not be strep. It may be viral, lyme, another bacteria, etc. that is

raising the CamKinase scores.)

From: [mailto: ] On Behalf Of ROMY

GRUNDEL

Sent: September-29-10 11:26 AM

Subject: Re: Re:Oldie on Culturelle & why it might irritate PANDAS

I 'd really appreciated if you let me know what is a Panda Kid?? Thanks

________________________________

From: Ranee Fear <rfear@... <mailto:rfear%40cox.net> >

<mailto:%40>

Sent: Wed, September 29, 2010 9:17:45 AM

Subject: Re:Oldie on Culturelle & why it might irritate PANDAS

I think I need help understanding this as well. Wouldn't this mean that

MOST probiotics are bad for PANDAS kids since the majority have streptocci

and all that I have seen have some form of lactobacilli? Or is that not the

same as lactobacillus? Not a good thing since these kids are usually on

long term antibiotics.

[Guest guest]

No -

Most kids should be able to take the probiotics, but once in a while *some* may

not be able to.  If giving probiotics, though, it should be limited to few

strains, and be aware of the possibility.  And avoid l.rhamasuss, especially

culturelle - it's definitely the worst and I've seen a lot of feedback on that

one over the years.

Plenty of PANDAS kids are on probiotics without making things worse.

There's just a few of us who can't take them. 

HTH

________________________________

From: Ranee Fear <rfear@...>

Sent: Wed, September 29, 2010 9:17:45 AM

Subject: Re:Oldie on Culturelle & why it might irritate PANDAS

 

I think I need help understanding this as well. Wouldn't this mean that

MOST probiotics are bad for PANDAS kids since the majority have streptocci

and all that I have seen have some form of lactobacilli? Or is that not the

same as lactobacillus? Not a good thing since these kids are usually on

long term antibiotics.