There is no one better than Dr Goldberg

October 24, 2010

List mates,

I agree with Lori. There is no one better medically than Dr. G. And Sue,

why would you bash him on his own list not having ever been a patient? It

is okay for us in the family to voice concerns, but it is not okay for

someone else with no love, knowledge or experience to say anything about

this man who has devoted his life to helping so many.

Dr. Goldberg saved my kid and never would have made it without him.

Yes, we sometimes argue but I would rather have that than someone who

doesn't care or have any passion to help my kid. Sometimes I think Dr.

(although wonderful) is too nice. He doesn't make parents do what

is best for their children and demand accountability. You would never get

away with that with Dr. G. He never gives a refill if you don't do your

part of the bargain.

And I do understand Dr. Goldberg's moments of raising his voice. He cares

deeply about helping our kids and has given up so much of his own life to

help ours. I know he raises his voice because some parents don't understand

the importance of following his instructions to help their children. These

parents do the diet half assed and do not even eliminate the biggest trigger

for all our kids, dairy. Parents who do not follow the diet are truly

hurting their children and It really isn't that hard to do. We all slip up

at times, but you need to do what is best for your child overall. Other

parents give up on the program because they expect immediate results, or it

might be too hard to give pills or do the blood tests that keep their

children safe. These parents don't realize that the first year on the

program is to heal their children's immune systems and the second is for

teaching and rehabilitation. But it doesn't stop there. This is not an

instant cure!!! There is no magic bullet. Even XMRV will probably be just

another tool in the toolbox to help kids.

I don't know how many times I explained to parents that kids will not

immediately start talking or communicating. It takes three years for a

" normal " child to learn language and the kids often pick up where they

stopped learning. All children must go through the same developmental

steps. Two year old behavior at age five looks very different and weird.

Yet, to get better, that five year old must do two year old things. This

five year old is improving even though it doesn't' appear that way

sometimes.

And some parents do not do the rehabilitation piece at all but expect the

school or ABA providers to do it for them. Although there are many there to

help, NO ONE WILL DO THIS FOR YOU!!! We worked morning until night (untold

hours) to help learn what he missed when he was ill. I never left

this in other people's hands and I took the lead on what he needed to learn.

Hiring someone to do ABA is not effective unless the family knows how to use

these principles in the daily routine. And the person doing the ABA has to

be doing it correctly. And once a child can learn, you need to move to more

natural methods of teaching. We did it all ourselves and only had one other

therapist ( I trained) besides family members for about 9 hours a week.

And USE WHAT THEY LOVE TO TEACH THEM.

I have never had arguments with another human being like I have had with Dr.

Goldberg But I don't respect anyone more than him. His passion over the

years is what have helped so many and I will go to the mat defending him. I

hope my post isn't what started this discussion. If so, I must apologize to

Dr. G. And thank you for all you've done to help so many. I do ache for

the parents who have kids whose immune systems are just too compromised to

see the kind of results has but everyone can improve. We must get this

done. There are too many kids not getting better who could lead productive

lives. And I must apologize for my rant. Maybe is right and I am just

too " STRIDENT. "

My autistic kid had to explain this vocabulary and instruct me on how to

behave in public. That wouldn't have happened without all of Dr. G's

dedication over the years.

Best,

Marcia

2.3.

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2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTI4NzkxMjA3Mw--> Re: diet

Posted by: " Lori "

<mailto:lbharris@...?Subject=%20Re%3A%20diet> lbharris@...

<loribharris2003> loribharris2003

Sat Oct 23, 2010 3:47 pm (PDT)

To those on the list that do not know who Dr. G is, or have stopped his

treatment for your child...what are you doing on this list????

This list is a forum for patients or parents of patients of Dr. G (and more

recently Dr. and Kathy on) to discuss our progress, our

frustrations, our treatments, our successes, our experiences and so on, with

one another.

This is NOT a place to bash Dr. G!!!

This is a man, a doctor, who has completely dedicated his life to helping

our kids. Any time he " yells " at patients, or rather their parents, he is

doing it for the patient's own good. Dr. G knows how important the diet is

in the overall health of his patients. It is too easy for parents to take

the easy route and give in, or not listen to his advice, and let their kids

have the very things that Dr. Goldberg knows is going to cause inflammatory

reactions in many of his patients. He does this because he cares and he

knows that the child can be doing better, can be healthier, can be closer to

recovery. He needs to be their voice and the voice of the parent's

conscience.

We all need a wakeup call sometimes because this road is hard.

We have been a patient of Dr. G's for 8 years and not once, even closely has

Dr. Goldberg ever yelled at me or raised his voice. On the contrary, I feel

so indebted to him for listening to me, for believing me when I KNEW my son

didn't have " Autism " , and for saving my son from a life of isolation, poor

health and a bleak future that I feel compelled to want to please him and

NEVER want to disappoint him. He has given me the son that I was afraid I

was losing, the one I was told to " accept that he would always be strange

and weird " . No Dr. G is not God, nor does he have a " God complex " . He is

however our conscience and the voice of our children - his patients, pushing

us all to do better for the sake of our children's health and recovery.

If you are not going to listen to him, then you are better off leaving his

practice. His mission is not to make friends, but instead to make us

parents listen to his experience and save our children. Too many folks take

what part of his advice they want and substitute in what other protocols

they feel they want to work with as well. It doesn't work that way. You

have to give it and Dr. G your all if you want to stop the neuroinflammation

and therefore the " Autistic symptoms " . You have to surrender to all that he

says and do your best to make it work. Only then will you see real change

in your child, their labs, their behavior and their future.

If you want to talk poorly of Dr. G, do it off list, in private, because the

people that are here for the right reason do NOT want to hear it!

Lori

October 24, 2010

Beautifully said, Marcia! I echo your sentiments exactly. Dr. Goldberg is the

MOST passionate man about healing our kids. If that extends to reading me the

" riot act " every once in a while, I'll face the music gladly. God Bless him and

all of you.

Robyn

From: and Marcia Hinds <hindssite@...>

Subject: There is no one better than Dr Goldberg

lbharris@...,

Date: Sunday, October 24, 2010, 7:29 AM

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