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RE: fatigue

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The thing to watch out for is that sometimes when your Hct gets too high, your

doc might stop procrit altogether for a while. They did this to me when I was on

PD and I really bottomed-out. I don't recall the Hct but I felt just awful.

Tapering is much better.

Marty

fatigue

I was diagnosed with IgAN in October and am always tired. I am not

just tired from a stressful day or just tired on occasion, but am

totally exausted all the time. If I go shopping for an hour or so it

takes me two days to recover, I asked my nephrologist if it was

because of the IgAN and he said no it wasn't related and that the

only affects of IgAN that I should notice is blood in my urine. I've

been to my general practioner and my gynocologist and they can't find

any thing wrong with me. I am 27 years old and am in perfect health

other than the IgAN, is my nephrologist wrong, can IgAN cause such

fatigue? I don't even take the ace inhibitor the dr. precscribed for

me because it makes me so weak and tired that I can't even get out of

bed. I've tried everthing that I could think of to increase my

energy level, even yoga and meditation, but nothing seems to work.

Do you have any suggestions or does anyone else have the same problem?

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I hate feeling depressed, i hate some of the thoughts i have. I'm trying to

snap out of it but find it very very hard, writing this is very very hard. Do

you ever feel that even though you might have lots of people around you , you

are the loneliest person in the world?

Re: fatigue

>

>

> > I think it is related...I've found fatigue after playing tennis for

> awhile,

> > or cutting the lawn. I also find it increasingly hard to get out of

bed

> in

> > the morning. It also may be related to the blood pressure meds, I'm

on a

> > beta blocker, and cardizem cd for that.

> >

> > don

>

>

>

>

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The amount of times I thought that are countless. " People dont understand

me " , " dont care " , " why should they care " ... and so on. But when I get a hug

from my family, a smile from a friend, I know that I am only as alone as I

think I am. Perception is everything.

Re: fatigue

> >

> >

> > > I think it is related...I've found fatigue after playing tennis

for

> > awhile,

> > > or cutting the lawn. I also find it increasingly hard to get out

of

> bed

> > in

> > > the morning. It also may be related to the blood pressure meds,

I'm

> on a

> > > beta blocker, and cardizem cd for that.

> > >

> > > don

> >

> >

> >

> >

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Kaz

Depression in itself is a recognised illness. It is a well known fact

that if you are on many drug therapies this can alter the brains

perception, thus changing your moods. Of course life events can also

cause depression. I work as a volunteer for a mental health charity,

and have undergone training on how to recognise depression etc. Please

don't feel that you are alone, believe me you are not. I have suffered

depression for many years for various reasons, and would say that this

last year I have lost 'my little black friend', but you never know if

and when it will return.

Please seek advice from your doctor, who will advise you about your

medications, and can sometimes tone it down to suit your needs. If you

have someone you could talk to like a counsellor would help you a lot.

Failing that please feel free to e:mail on my private address

karen@..., and I would be happy to help you in anyway I can.

Your not alone ok.

Best wishes.

Re: fatigue

I hate feeling depressed, i hate some of the thoughts i have. I'm trying

to snap out of it but find it very very hard, writing this is very very

hard. Do you ever feel that even though you might have lots of people

around you , you are the loneliest person in the world?

Re: fatigue

>

>

> > I think it is related...I've found fatigue after playing tennis

for

> awhile,

> > or cutting the lawn. I also find it increasingly hard to get

out of

bed

> in

> > the morning. It also may be related to the blood pressure meds,

I'm

on a

> > beta blocker, and cardizem cd for that.

> >

> > don

>

>

>

>

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I'd like to thank everyone for their advice. I'm feeling better today :) I think

i need adult conversation, i don't get a lot of that lately.

kaz

Re: fatigue

>

>

> > I think it is related...I've found fatigue after playing tennis

for

> awhile,

> > or cutting the lawn. I also find it increasingly hard to get

out of

bed

> in

> > the morning. It also may be related to the blood pressure meds,

I'm

on a

> > beta blocker, and cardizem cd for that.

> >

> > don

>

>

>

>

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Thanks Pierre, its interesting what you are saying about the beta blockers.

I am on 50mg of atenolol and I must admit to feeling quite depressed these

last 4 months or so. I can still carry on with normal life but I seem to be

tetchy all the time and not very tolerant. Could this be due to the

medication?

Jeanie

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Yes it could Jeanie. You should talk to your doctor. I'm not saying that's

what it is necessarily, but this is a known possible side effect of beta

blockers. Maybe there's something else you could be on instead.

Pierre

Re: fatigue

> Thanks Pierre, its interesting what you are saying about the beta

blockers.

> I am on 50mg of atenolol and I must admit to feeling quite depressed these

> last 4 months or so. I can still carry on with normal life but I seem to

be

> tetchy all the time and not very tolerant. Could this be due to the

> medication?

>

> Jeanie

>

>

>

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Hi Jeannie. What's your pulse rate? When I was on 50mg of atenolol my pulse got

very low so they cut it to 25mg. I've been on that for 8-10 years.

Marty

Re: fatigue

Thanks Pierre, its interesting what you are saying about the beta blockers.

I am on 50mg of atenolol and I must admit to feeling quite depressed these

last 4 months or so. I can still carry on with normal life but I seem to be

tetchy all the time and not very tolerant. Could this be due to the

medication?

Jeanie

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Guest guest

My wife is like that and she doesn't take anything : )

By the way, there is a new report out about the effectiveness of ARB's

(Cozaar specifically in this study) vs atenolol. The link to it is on the

News page of www.igan.ca

Pierre

Re: fatigue

> Thanks Pierre, my hubby is on atenelol as well - no wonder we have both

got

> the grumps.!!!!!

>

> Jeanie

>

>

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Guest guest

I can also relate to the fatigue problem. I'm a 24 (nearly 25) year old who was

diagnosed with IgAN last April. My kidney function is still perfectly normal (my

last creatinine was 0.8 mg/dl), but I still have the fatigue. But I do have

other health problems, including asthma, diabetes, hypertension, and also

occasionally go into atrial fibrillation, and I'm on about 5 different lots of

medication at the moment. Unfortunately, I havent yet found anything to help

with the fatigue, so I'm still working on that one. Anyway, all the best.

kevin pirkle wrote:

Hi, I'm a 30 yo male diagnosed 4 years ago after biopsy. I can relate with you.

I stay exhausted most of the time. I'm lucky that I work in a family business,

because I spend alot of time resting at home.

I take Vasotec, Avalide, Toprol, and Lopid to control blood pressure &

cholesterol. Neph says that none of the meds should cause exhaustion. I know

that I'm not imagining things, because I stay weak and tired all of the time.

I have always been very active until the past year when I started feeling so

tired. I've even quit drinking alcohol to try to regain energy, but that really

hasn't made a difference. Taking multi-vitamins(Wal Mart brand) has helped some.

huntmetx wrote: I was diagnosed with IgAN in

October and am always tired. I am not

just tired from a stressful day or just tired on occasion, but am

totally exausted all the time. If I go shopping for an hour or so it

takes me two days to recover, I asked my nephrologist if it was

because of the IgAN and he said no it wasn't related and that the

only affects of IgAN that I should notice is blood in my urine. I've

been to my general practioner and my gynocologist and they can't find

any thing wrong with me. I am 27 years old and am in perfect health

other than the IgAN, is my nephrologist wrong, can IgAN cause such

fatigue? I don't even take the ace inhibitor the dr. precscribed for

me because it makes me so weak and tired that I can't even get out of

bed. I've tried everthing that I could think of to increase my

energy level, even yoga and meditation, but nothing seems to work.

Do you have any suggestions or does anyone else have the same problem?

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