Re: Dr. Kendall interviews about Neuro Immune Dysfunction

[Guest guest]

Seriously Dr uses things like Provigil, they gave it to my dad before he

died! He had dementia, not a childs growing brain. Sorry it is not a " Do no

Harm " approach

Elyse

Important Safety Information

What is PROVIGIL?

PROVIGIL is a prescription medicine used to improve wakefulness in adults who

experience excessive sleepiness (ES) due to one of the following diagnosed sleep

disorders: obstructive sleep apnea (OSA), shift work sleep disorder (SWSD), or

narcolepsy.

In patients with OSA, PROVIGIL is used along with other medical treatments for

this sleep disorder. PROVIGIL is not a replacement for your current treatment.

Consult your doctor about the importance of continuing your current OSA

treatment while taking PROVIGIL.

PROVIGIL is a federally controlled substance (C-IV) because it has the potential

to be abused or lead to dependence. Please use PROVIGIL only as directed and

keep in a safe place to prevent misuse and abuse.

What important information should I know about PROVIGIL?

•PROVIGIL may cause you to have a serious rash or a serious allergic reaction

that may result in hospitalization or be life-threatening.

•If you develop a rash, hives, sores, swelling, or trouble swallowing or

breathing, stop taking PROVIGIL and call your doctor right away or get emergency

treatment.

Who should not take PROVIGIL?

•PROVIGIL is not approved for use in children.

•Anyone who has had a rash or allergic reaction to PROVIGIL or NUVIGIL®

(armodafinil) Tablets [C-IV], or is allergic to any of the following

ingredients: modafinil, armodafinil, croscarmellose sodium, lactose, magnesium

stearate, microcrystalline cellulose, povidone, or pregelatinized starch.

•Anyone with mitral valve prolapse who has experienced mitral valve prolapse

syndrome.

What are possible side effects of PROVIGIL?

•Common side effects of PROVIGIL are headache, nausea, nervousness, stuffy nose,

diarrhea, back pain, anxiety, trouble sleeping, dizziness, and upset stomach.

•If you experience chest pain, depression, anxiety, hallucinations, psychosis,

mania, thoughts of suicide, aggression, or other mental problems, stop taking

PROVIGIL and call your doctor right away or get emergency treatment.

•These are not all of the side effects of PROVIGIL. For more information about

other side effects, ask your doctor or pharmacist.

What should I avoid while taking PROVIGIL?

•Do not drive or do other dangerous activities until you and your doctor know

how PROVIGIL affects you.

•Avoid drinking alcohol.

What should I tell my doctor before starting PROVIGIL?

•Tell your doctor if you have: history of mental health problems (including

psychosis), heart problems or had a heart attack, high blood pressure, liver or

kidney problems, a history of drug or alcohol abuse or addiction, or are

pregnant, planning to become pregnant, or breastfeeding.

•Women who use hormonal birth control may have a higher chance of getting

pregnant, while taking PROVIGIL, and for one month after stopping. Talk to your

doctor about other birth control methods while taking PROVIGIL.

You are encouraged to report negative side effects of prescription drugs to the

FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088, or by fax at

1-800-FDA-0178.

For more information, ask your doctor, or call 1-800-896-5855.

This information does not take the place of talking with your doctor about your

condition or treatment.

>

> Hi all,

> Below is a video and an audio interview from Dr. Kendall from the

NeuroSensory Centers of America on Neuro Immune Disorders and Autism. He talks

about Valtrex, antivirals, inflammation and autism. After you watch and listen

interviews using the links below you will probably have a better understanding

about neuro immune disorders like you have never had before.

>

> Dr. Kendall video interview

> http://www.drkendalstewart.com/stewart-interview.html

>

> Dr. Kendall interview about Viruses and Autism

> http://www.autismone.org/content/episode-8-viruses

>

> NeuroSensory Centers of America

> http://www.neurosensorycenters.com/

>

> NeuroSensory Centers of America has offices in Texas, Pennsylvania and

Georgia.

> http://www.neurosensorycenters.com/patient/center_locator.html

>

> Regards,

>

> Stop Calling It Autism!

> http://www.stopcallingitautism.org

>

[Guest guest]

Many of the drugs being used to treat the symptoms of autism are being applied

in off label uses.

 

That means they are not being used to treat for the FDA approved

indications.   Each parent must make a decision regarding what treatments are

right for their child and have trust in the treating physician.  Many of the

SSRI's discussed on this board are not FDA approved for any autism treatment or

for use in children. 

 

I found Dr. 's interview very interesting and informative. 

 

Many times I have been shocked to hear parents on this board asking another

parent what dosage of a medication their child should be taking........to me

that could be considered practicing medicine without a license as has been

acused of doing. 

 

I do not know or the others who have used this board to cast critical

comments back and forth.  This is not the place to do this. 

 

Just like everything in life,  we can gather much information and knowlege from

many sources, but sift out what we don't agree with, have doubts about and keep

what applies to our situation.

 

Going forward I hope this discussion board moves past the name calling.  I

have appreciated how much support is offered here and the encouragement

given.  Our fight is to recover our kids from autism and not with each other.

 

Joyce 

From: ElyseG <elyse-g@...>

Subject: Re: Dr. Kendall interviews about Neuro Immune

Dysfunction

Date: Monday, January 3, 2011, 9:48 PM

 

Seriously Dr uses things like Provigil, they gave it to my dad before he

died! He had dementia, not a childs growing brain. Sorry it is not a " Do no Harm

" approach

Elyse

Important Safety Information

What is PROVIGIL?

PROVIGIL is a prescription medicine used to improve wakefulness in adults who

experience excessive sleepiness (ES) due to one of the following diagnosed sleep

disorders: obstructive sleep apnea (OSA), shift work sleep disorder (SWSD), or

narcolepsy.

In patients with OSA, PROVIGIL is used along with other medical treatments for

this sleep disorder. PROVIGIL is not a replacement for your current treatment.

Consult your doctor about the importance of continuing your current OSA

treatment while taking PROVIGIL.

PROVIGIL is a federally controlled substance (C-IV) because it has the potential

to be abused or lead to dependence. Please use PROVIGIL only as directed and

keep in a safe place to prevent misuse and abuse.

What important information should I know about PROVIGIL?

•PROVIGIL may cause you to have a serious rash or a serious allergic reaction

that may result in hospitalization or be life-threatening.

•If you develop a rash, hives, sores, swelling, or trouble swallowing or

breathing, stop taking PROVIGIL and call your doctor right away or get emergency

treatment.

Who should not take PROVIGIL?

•PROVIGIL is not approved for use in children.

•Anyone who has had a rash or allergic reaction to PROVIGIL or NUVIGIL®

(armodafinil) Tablets [C-IV], or is allergic to any of the following

ingredients: modafinil, armodafinil, croscarmellose sodium, lactose, magnesium

stearate, microcrystalline cellulose, povidone, or pregelatinized starch.

•Anyone with mitral valve prolapse who has experienced mitral valve prolapse

syndrome.

What are possible side effects of PROVIGIL?

•Common side effects of PROVIGIL are headache, nausea, nervousness, stuffy

nose, diarrhea, back pain, anxiety, trouble sleeping, dizziness, and upset

stomach.

•If you experience chest pain, depression, anxiety, hallucinations, psychosis,

mania, thoughts of suicide, aggression, or other mental problems, stop taking

PROVIGIL and call your doctor right away or get emergency treatment.

•These are not all of the side effects of PROVIGIL. For more information about

other side effects, ask your doctor or pharmacist.

What should I avoid while taking PROVIGIL?

•Do not drive or do other dangerous activities until you and your doctor know

how PROVIGIL affects you.

•Avoid drinking alcohol.

What should I tell my doctor before starting PROVIGIL?

•Tell your doctor if you have: history of mental health problems (including

psychosis), heart problems or had a heart attack, high blood pressure, liver or

kidney problems, a history of drug or alcohol abuse or addiction, or are

pregnant, planning to become pregnant, or breastfeeding.

•Women who use hormonal birth control may have a higher chance of getting

pregnant, while taking PROVIGIL, and for one month after stopping. Talk to your

doctor about other birth control methods while taking PROVIGIL.

You are encouraged to report negative side effects of prescription drugs to the

FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088, or by fax at

1-800-FDA-0178.

For more information, ask your doctor, or call 1-800-896-5855.

This information does not take the place of talking with your doctor about your

condition or treatment.

>

> Hi all,

> Below is a video and an audio interview from Dr. Kendall from the

NeuroSensory Centers of America on Neuro Immune Disorders and Autism. He talks

about Valtrex, antivirals, inflammation and autism. After you watch and listen

interviews using the links below you will probably have a better understanding

about neuro immune disorders like you have never had before.

>

> Dr. Kendall video interview

> http://www.drkendalstewart.com/stewart-interview.html

>

> Dr. Kendall interview about Viruses and Autism

> http://www.autismone.org/content/episode-8-viruses

>

> NeuroSensory Centers of America

> http://www.neurosensorycenters.com/

>

> NeuroSensory Centers of America has offices in Texas, Pennsylvania and

Georgia.

> http://www.neurosensorycenters.com/patient/center_locator.html

>

> Regards,

>

> Stop Calling It Autism!

> http://www.stopcallingitautism.org

>

[Guest guest]

Elyse, While I agree that I don't think Provigil would be something I would let

my son take, the points that Dr. makes about " feeding the neuro and

immune systems " so that they can heal needs more attention in our situation.

For all the years we've known about the problems hiding in Cam's myelin covering

only now that he's on the Anti-virals are we truly in a position to try and

trigger healing in his nerves. I've been giving Cam many of the suggested

supplements since our first experiences on the long road, myself too and I can

tell when he is lacking in some of them...the tics get worse. Honestly the best

thing I've learned through all of this, be eclectic and continue what works

until you have the right set of conditions for your child to perform under.

> >

> > Hi all,

> > Below is a video and an audio interview from Dr. Kendall from the

NeuroSensory Centers of America on Neuro Immune Disorders and Autism. He talks

about Valtrex, antivirals, inflammation and autism. After you watch and listen

interviews using the links below you will probably have a better understanding

about neuro immune disorders like you have never had before.

> >

> > Dr. Kendall video interview

> > http://www.drkendalstewart.com/stewart-interview.html

> >

> > Dr. Kendall interview about Viruses and Autism

> > http://www.autismone.org/content/episode-8-viruses

> >

> > NeuroSensory Centers of America

> > http://www.neurosensorycenters.com/

> >

> > NeuroSensory Centers of America has offices in Texas, Pennsylvania and

Georgia.

> > http://www.neurosensorycenters.com/patient/center_locator.html

> >

> > Regards,

> >

> > Stop Calling It Autism!

> > http://www.stopcallingitautism.org

> >

>

[Guest guest]

Why do you think it is wrong to ask another parent what dosage their child took?

We do not want to be operating in the dark.

If your child takes a medication and you see some gains, don't you want to know

if other doctors are prescribing 3 times the dose so that you can talk to your

doctor about an increase or consider changing doctors?

It is important that we share information and become educated.

Caryn

> >

> > Hi all,

> > Below is a video and an audio interview from Dr. Kendall from the

NeuroSensory Centers of America on Neuro Immune Disorders and Autism. He talks

about Valtrex, antivirals, inflammation and autism. After you watch and listen

interviews using the links below you will probably have a better understanding

about neuro immune disorders like you have never had before.

> >

> > Dr. Kendall video interview

> > http://www.drkendalstewart.com/stewart-interview.html

> >

> > Dr. Kendall interview about Viruses and Autism

> > http://www.autismone.org/content/episode-8-viruses

> >

> > NeuroSensory Centers of America

> > http://www.neurosensorycenters.com/

> >

> > NeuroSensory Centers of America has offices in Texas, Pennsylvania and

Georgia.

> > http://www.neurosensorycenters.com/patient/center_locator.html

> >

> > Regards,

> >

> > Stop Calling It Autism!

> > http://www.stopcallingitautism.org

> >

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

My earlier post did not go through.

I highly disagree that sharing dosage information is inappropriate. It is a

necessary part of becoming educated in the protocol you are researching and the

practioner you are choosing.

Personally, other than sharing symptoms and doctors names, sharing protocols

which include drs dosing strategy is the whole reason to participate on boards.

Regarding antivirals, many practitioners are using too low and too frequent

dosing to be optimal. If you were not educated on dosing from other parents,

you would blindly take the wrong dose.

Let's all educate ourselves.

Caryn

>

> Many of the drugs being used to treat the symptoms of autism are being applied

in off label uses.

>  

> That means they are not being used to treat for the FDA approved

indications.   Each parent must make a decision regarding what treatments are

right for their child and have trust in the treating physician.  Many of the

SSRI's discussed on this board are not FDA approved for any autism treatment or

for use in children. 

>  

> I found Dr. 's interview very interesting and informative. 

>  

> Many times I have been shocked to hear parents on this board asking another

parent what dosage of a medication their child should be taking........to me

that could be considered practicing medicine without a license as has been

acused of doing. 

>  

> I do not know or the others who have used this board to cast critical

comments back and forth.  This is not the place to do this. 

>  

> Just like everything in life,  we can gather much information and knowlege

from many sources, but sift out what we don't agree with, have doubts about and

keep what applies to our situation.

>  

> Going forward I hope this discussion board moves past the name calling.  I

have appreciated how much support is offered here and the encouragement

given.  Our fight is to recover our kids from autism and not with each other.

>  

> Joyce 

>

> --