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Re: PANDAS Treatment

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Hey ~

 

Are you seeing Dr. or Dr. Goldberg?  My son tested positive for PANDAS

with Dr Cunningham, in Oklahoma.  We see Dr. , in Texas.  With our son,

Dr. is making sure all the other lab work is in working order BEFORE

starting PANDAS treatment.  It makes good sense to us.  Especially, since my

son was at the lower end of testing positive for PANDAS!

 

HTH

-ED

    

From: Fund <susan_fund@...>

Subject: PANDAS Treatment

Date: Sunday, October 24, 2010, 12:39 PM

 

My son has a severe case of PANDAS. He has been on azithromycin(250mgs per day)

and celexa(20mgs per day) for one month with some minor progress. His doc just

prescribed prednisone 20 mgs per day for one to two months. My son is 13 yrs old

and weighs 150 pounds. Do these doses sound correct? We are also looking into

IVIG incase the above does not alleviate his symptoms

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We are not seeeing Dr G or Dr R. We live in MA and are using a DAN doc who does

understand PANDAS. I was just wondering what doses otheres are using in their

PANDAS treatments. My son has had elevated strep titers for years with many

PANDAS symptoms in addition to his autism. He was exposed again to strep in June

from his sibling and had a major regression

 

From: Fund <susan_fund@...>

Subject: PANDAS Treatment

Date: Sunday, October 24, 2010, 12:39 PM

 

My son has a severe case of PANDAS. He has been on azithromycin(250mgs per day)

and celexa(20mgs per day) for one month with some minor progress. His doc just

prescribed prednisone 20 mgs per day for one to two months. My son is 13 yrs old

and weighs 150 pounds. Do these doses sound correct? We are also looking into

IVIG incase the above does not alleviate his symptoms

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