RE: Depakote use for movements and inattention

[Guest guest]

Did you consider cogentin for the movement issue?

Depakote use for movements and inattention

Our son has been Risperidone for a few months and although the aggression

has come down substantially, his movement disorder has increased. We are

considering going to the doctor tomorrow to discuss the use of Depakote. His

PITANDs movements are very strong and I have read the use of Valproic acid

helps Syndenham's Chorea movements. Any help towards this decision would be

appreciated. He is currently on Azithromycin 250mg 3x week, .25mg of

Risperidone, B complex (AOR Brand), probiotics and Genestra Amino Acid

protein powder. His movements and inattention are his biggest issues. He

responds poorly to stimulants and cannot tolerate Strattera. They do not

make Tenex here in Canada. We have tried Clonidine but it makes him groggy.

We have a positive Lyme test from IGeneX and are waiting on results for

co-infections. We have negative Babesia from IGeneX.

[Guest guest]

The dose for azithro should be 10mgs per kg.........usually for 5 days straight

and then go to a weekly or biweekly dose for PANDAS.  Have you tried a steroid

burst ?

 

 

From: and Freeman <freemanbk@...>

Subject: Depakote use for movements and inattention

Date: Wednesday, January 5, 2011, 10:07 PM

 

Our son has been Risperidone for a few months and although the aggression

has come down substantially, his movement disorder has increased. We are

considering going to the doctor tomorrow to discuss the use of Depakote. His

PITANDs movements are very strong and I have read the use of Valproic acid

helps Syndenham's Chorea movements. Any help towards this decision would be

appreciated. He is currently on Azithromycin 250mg 3x week, .25mg of

Risperidone, B complex (AOR Brand), probiotics and Genestra Amino Acid

protein powder. His movements and inattention are his biggest issues. He

responds poorly to stimulants and cannot tolerate Strattera. They do not

make Tenex here in Canada. We have tried Clonidine but it makes him groggy.

We have a positive Lyme test from IGeneX and are waiting on results for

co-infections. We have negative Babesia from IGeneX.

[Guest guest]

Hi .

Can I ask where your dosing for Azithromycin comes from? I would love to have a

paper or reference to show our doctor. Thanks!

A few years ago, our son had an asthma attack and the doctors used prednisone

and ventolin on him. It literally took us months to get his anger under control.

He was not the same child after the steroids. He has since used ventolin without

too much problem but I have made sure to stay clear of prednisone and avoid

steroids wherever possible. He had a positive Lyme test through IGeneX and I

have been told that some children with LD do not react very well to steroids.

Our ped. does not want to go down that road again (with steroids) and I agree.

It was like our child became possessed by some angry mean demon and it was a

very bad time for our whole family. So that is why we have opted for abx

treatment.

From: [mailto: ] On Behalf Of Fund

Sent: January-07-11 10:55 AM

Subject: Re: Depakote use for movements and inattention

The dose for azithro should be 10mgs per kg.........usually for 5 days straight

and then go to a weekly or biweekly dose for PANDAS. Have you tried a steroid

burst ?

From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

Subject: Depakote use for movements and inattention

<mailto:%40>

Date: Wednesday, January 5, 2011, 10:07 PM

Our son has been Risperidone for a few months and although the aggression

has come down substantially, his movement disorder has increased. We are

considering going to the doctor tomorrow to discuss the use of Depakote. His

PITANDs movements are very strong and I have read the use of Valproic acid

helps Syndenham's Chorea movements. Any help towards this decision would be

appreciated. He is currently on Azithromycin 250mg 3x week, .25mg of

Risperidone, B complex (AOR Brand), probiotics and Genestra Amino Acid

protein powder. His movements and inattention are his biggest issues. He

responds poorly to stimulants and cannot tolerate Strattera. They do not

make Tenex here in Canada. We have tried Clonidine but it makes him groggy.

We have a positive Lyme test from IGeneX and are waiting on results for

co-infections. We have negative Babesia from IGeneX.

[Guest guest]

Hi.

If you child is a patient of Dr. Goldberg, I would check with him because it is

my understanding that that these types of medications can hurt a developing

child's brain in the long run.   Again, check with him.

 

Lynn

From: and Freeman <freemanbk@...>

Subject: Depakote use for movements and inattention

Date: Wednesday, January 5, 2011, 10:07 PM

 

Our son has been Risperidone for a few months and although the aggression

has come down substantially, his movement disorder has increased. We are

considering going to the doctor tomorrow to discuss the use of Depakote. His

PITANDs movements are very strong and I have read the use of Valproic acid

helps Syndenham's Chorea movements. Any help towards this decision would be

appreciated. He is currently on Azithromycin 250mg 3x week, .25mg of

Risperidone, B complex (AOR Brand), probiotics and Genestra Amino Acid

protein powder. His movements and inattention are his biggest issues. He

responds poorly to stimulants and cannot tolerate Strattera. They do not

make Tenex here in Canada. We have tried Clonidine but it makes him groggy.

We have a positive Lyme test from IGeneX and are waiting on results for

co-infections. We have negative Babesia from IGeneX.

[Guest guest]

I had never even heard of it before! Thank you. Has your child been on this? I

will discuss it with our dr.

From: [mailto: ] On Behalf Of

mbsl@...

Sent: January-06-11 10:27 PM

Subject: Re: Depakote use for movements and inattention

Did you consider cogentin for the movement issue?

Depakote use for movements and inattention

Our son has been Risperidone for a few months and although the aggression

has come down substantially, his movement disorder has increased. We are

considering going to the doctor tomorrow to discuss the use of Depakote. His

PITANDs movements are very strong and I have read the use of Valproic acid

helps Syndenham's Chorea movements. Any help towards this decision would be

appreciated. He is currently on Azithromycin 250mg 3x week, .25mg of

Risperidone, B complex (AOR Brand), probiotics and Genestra Amino Acid

protein powder. His movements and inattention are his biggest issues. He

responds poorly to stimulants and cannot tolerate Strattera. They do not

make Tenex here in Canada. We have tried Clonidine but it makes him groggy.

We have a positive Lyme test from IGeneX and are waiting on results for

co-infections. We have negative Babesia from IGeneX.

[Guest guest]

The dosing for the azithro for PANDAS comes from a you tube video with Dr

Schulman. If you google Dr Schulman and PANDAS you should find it. I also

confirmed the dose with my sons Doc who is on the PANDAS medical advisory

board. 

 

I have heard that steroids should NOT be used on lyme patients. I am not sure

how azithro works for lyme but I have heard minocycline does help lyme there are

however some side effects.

 

From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

Subject: Depakote use for movements and inattention

<mailto:%40>

Date: Wednesday, January 5, 2011, 10:07 PM

Our son has been Risperidone for a few months and although the aggression

has come down substantially, his movement disorder has increased. We are

considering going to the doctor tomorrow to discuss the use of Depakote. His

PITANDs movements are very strong and I have read the use of Valproic acid

helps Syndenham's Chorea movements. Any help towards this decision would be

appreciated. He is currently on Azithromycin 250mg 3x week, .25mg of

Risperidone, B complex (AOR Brand), probiotics and Genestra Amino Acid

protein powder. His movements and inattention are his biggest issues. He

responds poorly to stimulants and cannot tolerate Strattera. They do not

make Tenex here in Canada. We have tried Clonidine but it makes him groggy.

We have a positive Lyme test from IGeneX and are waiting on results for

co-infections. We have negative Babesia from IGeneX.

[Guest guest]

Hi. Cogentin is used to counteract the muscle stiffness and odd muse movements

caused by neuroleptics. The atypical neuroleptics are less likely to cause

movement issues but still it's possible. My son's jaw movements stopped with the

cogentin but he has extreme dry mouth and chapped lips now.

The MD that prescribed the risperdal will know if cogentin will help.

Good luck!

Sent from my iPhone

On Jan 8, 2011, at 7:49 AM, " and Freeman "

<freemanbk@...> wrote:

> I had never even heard of it before! Thank you. Has your child been on this? I

will discuss it with our dr.

>

> From: [mailto: ] On Behalf Of

mbsl@...

> Sent: January-06-11 10:27 PM

>

> Subject: Re: Depakote use for movements and inattention

>

> Did you consider cogentin for the movement issue?

>

> Depakote use for movements and inattention

>

> Our son has been Risperidone for a few months and although the aggression

> has come down substantially, his movement disorder has increased. We are

> considering going to the doctor tomorrow to discuss the use of Depakote. His

> PITANDs movements are very strong and I have read the use of Valproic acid

> helps Syndenham's Chorea movements. Any help towards this decision would be

> appreciated. He is currently on Azithromycin 250mg 3x week, .25mg of

> Risperidone, B complex (AOR Brand), probiotics and Genestra Amino Acid

> protein powder. His movements and inattention are his biggest issues. He

> responds poorly to stimulants and cannot tolerate Strattera. They do not

> make Tenex here in Canada. We have tried Clonidine but it makes him groggy.

> We have a positive Lyme test from IGeneX and are waiting on results for

> co-infections. We have negative Babesia from IGeneX.

>

>

[Guest guest]

One of the psychs I work with was telling me that he uses amantadine for

movement disorders as a side effect of other meds.  I'm on it, and was asking

him about it because I just don't know why it's helping me so much

cognitively. 

Perhaps that's an option?  I have some adult version of PANDAS....

________________________________

From: and Freeman <freemanbk@...>

Sent: Sat, January 8, 2011 6:49:42 AM

Subject: RE: Depakote use for movements and inattention

 

I had never even heard of it before! Thank you. Has your child been on this? I

will discuss it with our dr.

From: [mailto: ] On Behalf Of

mbsl@...

Sent: January-06-11 10:27 PM

Subject: Re: Depakote use for movements and inattention

Did you consider cogentin for the movement issue?

Depakote use for movements and inattention

Our son has been Risperidone for a few months and although the aggression

has come down substantially, his movement disorder has increased. We are

considering going to the doctor tomorrow to discuss the use of Depakote. His

PITANDs movements are very strong and I have read the use of Valproic acid

helps Syndenham's Chorea movements. Any help towards this decision would be

appreciated. He is currently on Azithromycin 250mg 3x week, .25mg of

Risperidone, B complex (AOR Brand), probiotics and Genestra Amino Acid

protein powder. His movements and inattention are his biggest issues. He

responds poorly to stimulants and cannot tolerate Strattera. They do not

make Tenex here in Canada. We have tried Clonidine but it makes him groggy.

We have a positive Lyme test from IGeneX and are waiting on results for

co-infections. We have negative Babesia from IGeneX.