Re: Re:PLEASE READ... Love him or hate him, I sent this email

[Guest guest]

Hi -

I don't really know how to answer your question about why he got sick with no

family history, except that there are many others who don't have the medical

history to be forwarned, either.  But since the paradigm is that autism

and

Chronic Fatigue Syndrome are pretty much the same, the main difference being

the

age of onset, then we look to the CFS world and learn about soooo many people

who were vibrantly healthy productive people, athletes, etc, and they suddenly

get 'the flu' and never get well. 

My interest in XMRV is very high.  There just has to be an infectious cause to

CFS that goes beyond just a trigger that sets off something that doesn't stop

(that's a personal hope & wish, not scientific fact). 

 I do, though, believe that many of the current practices in pediatrics and the

currrent vaccine schedule is harmful to some, but that we could one day have

tests to identify most of those children before they ever reacted.  I have a

long history of bad reactions to vaccines and some skin testing - I don't think

they're benign (especially for me) - but I still don't believe they're the

specific cause.  That being said, I have waivers for the remaining jabs on my

youngest, and am about to get one for my oldest.  Because I don't think enough

is known.  I really believe there are some who can't have them - and even

mainstream medicine knows that.  But how do we classify who?  That is to me

the

biggest crime - to ignore the observation of all these parents and call it some

kind of coincidence or mass hysteria - when they are TAUGHT to listen to

parent's instincts, and not look harder into what is really going on. 

Honestly,

I think we don't have the technology yet, nor as much knowledge of the immune

system as we need to identify how it happens.  I don't personally believe one

bit that 'big pharma' just wants to make money and that's why they refuse to

acknowledge a connection - I believe that they believe as much in their paradigm

as we do in ours.

It has to be environmental, and viruses ARE environmental - some people don't

realize that.

But you did not do anything to your child to cause this.  You did what you

thought was right for your child.

My second son didn't get even a third of the vaccines, because he was reacting

so badly.  He started on the protocol when he was 18 months old along

w/his

big brother, but had gone dairy free at 9 months old, little things like

that. 

He was developing typically, but Dr G said " This one - he should have been much

worse off - his blood work is a lot worse than his brothers. "   He was on the

meds almost 3 years, but while his brother's labs were looking good, his were

not where we wanted them, but we had to stop the protocol for financial reasons

(I was getting very sick & couldn't work).  By the next year after the meds, he

was in full-blown Chronic Fatigue Syndrome.  I couldn't get help for over a

year, and he really regressed.  Now he's being diagnosed PDD, but I - miss

hypervigilant - would never have missed spectrum signs when he was 5 yrs old. 

But he's a lot different in how he is affected - it's primarily cognitive,

memory, behavioral, focus - he's far better socially developed but has a lot of

social problems in the school environment because of his cognition and how his

brain is functioning, not to mention being unable to run and play like other

kids.

He didn't get the MMR, he even had good care for a couple of years there, and

yet he still got sick.  My oldest did regress from the MMR, but got better. 

It

was having the flu that pushed him over.  It was there very subtly early on. 

I

said " It's almost as if he has autism " when he was 6 weeks old, and yet he

appeared bright and healthy and interactive (at times).  I just sensed ...

something.  Many kids w/autism never had a vaccine nor have an unhealthy family

history.

My mind keeps leaping back to the similarity in symptoms of HIV+ kids having

regressions that look so much like autism. There's also documentation of a

couple of 'autism-like' regressions in 'healthy' people at age 12 after mono -

&

that's just a couple of published case studies - how many more occured that

never got documented?   I can also tell you that CFS can often feel like

autism.  I became ill about age 13 (well, I had PANDAS by 9) from mono - and by

the second episode of it, in middle school, I couldn't make eye contact or

hardly even speak until I was around 16 years old.  I started toe-walking

(although I'd try to stay off them so I walked toe-heel most of the time).  My

ability to speak fluctuated, as did my ability to answer people.  I have few

memories of those years, but a few very clear ones of my mom just freaking out

on me because I wouldn't talk or answer her questions and me being paralyzed and

not being able to talk or to explain it or understand why.  Then my father died

of acute leukemia (some leukemia and lymphoma are being associated w/MLVs and

other retroviruses), so all those 'problems' I had just became chalked up to

that.

I don't doubt one minute that autism is set off in many many cases by

vaccines. 

I think it worsens what may not have been as bad.  But I also think the problem

was already there, and that something sometime was bound to be a trigger. 

I just really believe it has to have a viral connection for a huge number of

people.  Not many other things cause world-wide epidemics.

________________________________

From: Fight Autism <autism.fight@...>

" " < >

Sent: Fri, January 7, 2011 9:32:44 AM

Subject: Re:PLEASE READ... Love him or hate him, I sent this email

 

Great letter... I have a question. I am new to nids and before I began the

protocol I strongly believed that the MMR caused my sons autism. I still believe

so because there is no one in my family that has any immune system issues and my

husband and I are perfectly healthy, thank god.

So how can you explain my sons autism? A baby who was perfectly healthy, crashes

after receiving the MMR?

I'm still really confused about .... don't really understand the concept or

WHY only our kids are affected with the A word... It kills me sometimes because

I don't know what happened or what I did wrong. I have another baby who was just

born recently and I am so fearful about giving him vaccines that I decided to

hold off until age 2. I just can't risk it again because the experience I had

with my son falling into autism was a NIGHTMARE. I dont even know if he'll ever

get better again even with the protocol I'm doing.

If I can get some feedback and in simple English please, why only our kids are

affected and how and if the nids protocol works, Id greatly appreciate it....

Thank you

How long do these kids on continue on Valtrex, anti-fungal, and SSRI?

Because I dont want to have my son on Rx for too long...

Thank you.