Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 Jen, thank you for all the great info. I was on a 200mg pain patch along with 6 to 8 Oxycontins an hour for almost 1 year and I became sick as soon as my meds would ware off. I can't really tell if it was the meds that where making me sick or the insane pain levels I had. I was also at the hospital every three days crying for help and to be honest it was to KEEP my supply as long as I could because insurence would not allow me to take as much as I was and would cut me off at the pharmacy. From then to now I look at my self as being fixed. reality is I can walk some and go to the bathroom, dress myself as long as I don't try to put on socks and shoes. lol God forbid I try to tie them. lol I know i'm not getting any better and not taking something is only making matters worse. but I was addicted to the high right from the start and moved up the ladder real quick. Now I'm looking at taking care of my kids to so I need to drive and be alert very alert. I'm hoping to see my new pain doc this week who will not use narc for pain management and I pray for some relief she can offer. quote " gain custody of your children, being in constant pain is > going to greatly hinder your interactions with them. " yes this has from day one but i have changed my interactions with my kids around my pain. I play football and baseball with them in my wheel chair but I'm the coach. we make up crazy plays and have secret hand signs when we play. they have more fun then before because we come up with crazy fun things to do even if i can't. don't get me wrong sometimes I do more than I can handle because my brain says I'm 38 but my body is 90 and pay that price. but in all if there is a will there is a way. my kids taught me that real quick. I don't have to move around with them to have fun. they tell me it's me just being there is whats the best! It's funny how a childs love for a parent(s) is so pure and nothing gets in its way. We should all try to remember that! Its late so I'm going to pretend to sleep for a while LOL Jen thanks again > " Jen " wrote: > When I first started out in my CP " journey " , I had major issues with taking pain medications too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2006 Report Share Posted December 17, 2006 , WOW! That is a lot of medication, about a toxic level for most people. I have to be honest and say you're lucky you're still alive, and it really gives me a better understanding of your resistance to take pain meds again. I do want to say another thing though, too. You don't have to be ashamed to share your past history on here. Many people have done things in the past that they are not particularly proud of, but we are not here to judge. We are here to offer support and understanding. I'm very glad to hear that you are seeing a new pain management doctor this week. They can offer a wide variety of treatments, and if you state that you would prefer to stay away from opioids for pain control, then she will most likely honor those wishes. No doctor is going to force pain meds on you! I know how you feel when you say you are 38, stuck in the body of someone much older. I'll be 36 soon, and sometimes, I feel the exact same way. It's embarrassing when people twice my age move faster than I do! I'm doing better now that I'm not in the factory where the toxins were making me even sicker, as was the extremely heavy lifting, but I'm still far from being a " normal " person. I'm thrilled to hear that you have such great interaction with your kids, and it sounds like they've adapted really well. But you do have to learn where your limit is with the physical stuff, no matter what your brain is telling you. I was 31 when I developed Fibro, and 33 or 34 when I started having really bad back problems, but I was determined that it wasn't going to change my life any. I had to learn the very hard lesson that being a person with chronic pain and illness does change your life, and you have to change with it. The toughest battle for me was admitting that it's a forever change. And your kids are right. It doesn't matter what you do with them that matters, it's just that you're there. All they truly need is to know that they are loved. Unless they're teenage girls, but that's a different story! LOL! Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2006 Report Share Posted December 17, 2006 hey Jen, " The toughest battle for me was admitting that it's a forever change. " YES IT IS! but its the first step to getting better! Thats funny you said TOXIC levels! my cousin would come over and joke around with me to give me 5 dollars to lick my arm LOL and if I ever had to take a urin test I would melt the cup LOL. yes the only people close to me are a little sick in the head LOL but they are the one who where alway there making I was ok and letting the sun in when it was all dark. PS I thought my last post was just a private e mail? so thats the little trick you do to get someone to fess up huh LOL I really enjoy this group and can't thank every one enough. Talk to you soon, Jen wrote: , WOW! That is a lot of medication, about a toxic level for most people. I have to be honest and say you're lucky you're still alive, and it really gives me a better understanding of your resistance to take pain meds again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 > my kids taught me that real quick. I don't have to move around with them to have fun. they tell me it's me just being there is whats the best! It's funny how a childs love for a parent(s) is so pure and nothing gets in its way. We should all try to remember tha Dear , I'm glad you was able to stop the oxy. when you did.Thanks for the reminder about my kids. although I have teens sometimes it does get hard when they want me to do something and I can't because I have to set down orlpe down. I am 40 and I always feel like I am in a 90 yr old body! it is the pits but I guess I will survive.I guess the most embarassing moment for me was wben my grandma was alive and was running circles around me even on her walker lol. oh well guess I will go as i am tired these days! Glad eo met you hope to talk to you soon again. ,SC Quote Link to comment Share on other sites More sharing options...
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