Re: XMRV in families affected by Autism and other Neuroimmune Diseases

[Guest guest]

Now what......?!

I am not trying to stir the pot.....it is just that we ALL have viruses in our

body. Correct me if I am wrong, but we don't even have cures for the current

viruses " treats " .....

Just thinking out loud!!

..

Sent on the Sprint® Now Network from my BlackBerry®

XMRV in families affected by Autism and other Neuroimmune

Diseases

I have attached a photo of the poster from Dr. Mikovits' presentation this past

week.  Entire families were tested for the XMRV retrovirus and antibodies, and

the evidence shows that almost the whole family is affected.  This is an

infectious disease that should be addressed and deserves much attention!

 

Here is an explanation for the poster:

 In each of the 6 clusters, the top 2 are the parents with the children

underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

Under each shape is their XMRV result. V= virus found in culture, Av = antibody

test, NT=not tested

Family 1, upper left corner – One parent XMRV + for virus by culture and XMRV

+ for antibody, one parent XMRV + for the antibody. Neither parent symptomatic.

Child with Autism, XMRV + for the virus.

Family 2, top row, middle – One parent with CFS and XMRV+ for antibody. Two

children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

Family 3, upper right corner – One parent with CFS and XMRV+ for virus by

culture. Child with Autism, XMRV+ for virus by culture.

Family 4, bottom left corner – One parent with CFS and XMRV + for virus by

culture. Two children with Autism, both XMRV+ for virus by culture.

Family 5, bottom row, middle – One parent with CFS, Fibromyalgia and XMRV+ by

antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

Family 6, bottom right corner – One parent with CFS and XMRV+ by antibody.

Child with Autism, not tested for XMRV.

A quick summary provided by Dr. Mikovits regarding families. She can confirm,

there is XMRV in children under the age of 5. To date they have confirmed XMRV

in 16 of 17 families with neuroimmune disease amongst multiple members. Finally,

that more work needs to be done to confirm pathogenesis and transmission

[Guest guest]

I am not sure what you are getting at but XMRV is a retrovirus...another

retrovirus you may have heard of before? HIV. XMRV is a most likely a very

serious pathogen, maybe even the root cause of immune dysfunction in autism, CFS

and more. This retrovirus has been found in the most aggressive forms of

prostate cancer, and in breast cancer. This is probably one of the biggest

discoveries related to autism yet.

>

> Now what......?!

>

> I am not trying to stir the pot.....it is just that we ALL have viruses in our

body. Correct me if I am wrong, but we don't even have cures for the current

viruses " treats " .....

>

> Just thinking out loud!!

>

>

> .

> Sent on the Sprint® Now Network from my BlackBerry®

>

> XMRV in families affected by Autism and other Neuroimmune

Diseases

>

> I have attached a photo of the poster from Dr. Mikovits' presentation this

past week.  Entire families were tested for the XMRV retrovirus and

antibodies, and the evidence shows that almost the whole family is affected. 

This is an infectious disease that should be addressed and deserves much

attention!

>  

> Here is an explanation for the poster:

>  In each of the 6 clusters, the top 2 are the parents with the children

underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

Under each shape is their XMRV result. V= virus found in culture, Av = antibody

test, NT=not tested

>

> Family 1, upper left corner †" One parent XMRV + for virus by culture and

XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

symptomatic. Child with Autism, XMRV + for the virus.

>

> Family 2, top row, middle †" One parent with CFS and XMRV+ for antibody. Two

children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

>

> Family 3, upper right corner †" One parent with CFS and XMRV+ for virus by

culture. Child with Autism, XMRV+ for virus by culture.

>

> Family 4, bottom left corner †" One parent with CFS and XMRV + for virus by

culture. Two children with Autism, both XMRV+ for virus by culture.

>

> Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and XMRV+

by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

>

> Family 6, bottom right corner †" One parent with CFS and XMRV+ by antibody.

Child with Autism, not tested for XMRV.

>

> A quick summary provided by Dr. Mikovits regarding families. She can confirm,

there is XMRV in children under the age of 5. To date they have confirmed XMRV

in 16 of 17 families with neuroimmune disease amongst multiple members. Finally,

that more work needs to be done to confirm pathogenesis and transmission

>

>

>

>

>

[Guest guest]

Is there a cure for XMRV??

--- El mié, 1/19/11, <jlhank80@...> escribió:

De: <jlhank80@...>

Asunto: Re: XMRV in families affected by Autism and other Neuroimmune

Diseases

A:

Fecha: miércoles, 19 de enero de 2011, 12:02 pm

 

I am not sure what you are getting at but XMRV is a retrovirus...another

retrovirus you may have heard of before? HIV. XMRV is a most likely a very

serious pathogen, maybe even the root cause of immune dysfunction in autism, CFS

and more. This retrovirus has been found in the most aggressive forms of

prostate cancer, and in breast cancer. This is probably one of the biggest

discoveries related to autism yet.

>

> Now what......?!

>

> I am not trying to stir the pot.....it is just that we ALL have viruses in our

body. Correct me if I am wrong, but we don't even have cures for the current

viruses " treats " .....

>

> Just thinking out loud!!

>

>

> .

> Sent on the Sprint® Now Network from my BlackBerry®

>

> XMRV in families affected by Autism and other Neuroimmune

Diseases

>

> I have attached a photo of the poster from Dr. Mikovits' presentation this

past week.  Entire families were tested for the XMRV retrovirus and

antibodies, and the evidence shows that almost the whole family is

affected.  This is an infectious disease that should be addressed and

deserves much attention!

>  

> Here is an explanation for the poster:

>  In each of the 6 clusters, the top 2 are the parents with the children

underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

Under each shape is their XMRV result. V= virus found in culture, Av = antibody

test, NT=not tested

>

> Family 1, upper left corner †" One parent XMRV + for virus by culture and

XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

symptomatic. Child with Autism, XMRV + for the virus.

>

> Family 2, top row, middle †" One parent with CFS and XMRV+ for antibody.

Two children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

>

> Family 3, upper right corner †" One parent with CFS and XMRV+ for virus by

culture. Child with Autism, XMRV+ for virus by culture.

>

> Family 4, bottom left corner †" One parent with CFS and XMRV + for virus

by culture. Two children with Autism, both XMRV+ for virus by culture.

>

> Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+ by antivody. Child with Autism, XMRV+ for virus by culture and by

antibody.

>

> Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody. Child with Autism, not tested for XMRV.

>

> A quick summary provided by Dr. Mikovits regarding families. She can confirm,

there is XMRV in children under the age of 5. To date they have confirmed XMRV

in 16 of 17 families with neuroimmune disease amongst multiple members. Finally,

that more work needs to be done to confirm pathogenesis and transmission

>

>

>

>

>

[Guest guest]

True researchers have looked & looked for viral associations for CFS for years,

and they find lots of them, but not at any level that they can " associate " the

illness with or prove causation.  Yet infectious disease docs & immunologists

and some other docs that have worked with CFS patients have seen this as a viral

condition, and, like AIDS, it's common to have a bunch of other infections that

can't be suppressed well in both CFS & Autism.

The percentage associated (starting around 67% and up to 82ish%) are very high

percentages, as opposed to only 4% of healthy people.  That's a pretty

staggering number.

People with HIV were typically very ill before more meds came out, but Dr Klimas

says that nowadays, she spends more time just treating her HIV pts for typical

illnesses like high BP, etc, because they have come so far in treating HIV -

very different today than just a decade ago.

If this virus were to pan out and have a causative roll, it would be a huge deal

in so many ways... from how it's treated, to how insurance will pay for

services, to ... maybe a cure? 

________________________________

From: " erikadyan71@... " <erikadyan71@...>

Sent: Wed, January 19, 2011 12:29:10 PM

Subject: Re: XMRV in families affected by Autism and other Neuroimmune

Diseases

 

Now what......?!

I am not trying to stir the pot.....it is just that we ALL have viruses in our

body. Correct me if I am wrong, but we don't even have cures for the current

viruses " treats " .....

Just thinking out loud!!

..

Sent on the Sprint® Now Network from my BlackBerry®

XMRV in families affected by Autism and other Neuroimmune

Diseases

I have attached a photo of the poster from Dr. Mikovits' presentation this past

week.  Entire families were tested for the XMRV retrovirus and antibodies, and

the evidence shows that almost the whole family is affected.  This is an

infectious disease that should be addressed and deserves much attention!

 

Here is an explanation for the poster:

 In each of the 6 clusters, the top 2 are the parents with the children

underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

Under each shape is their XMRV result. V= virus found in culture, Av = antibody

test, NT=not tested

Family 1, upper left corner – One parent XMRV + for virus by culture and XMRV

+

for antibody, one parent XMRV + for the antibody. Neither parent symptomatic.

Child with Autism, XMRV + for the virus.

Family 2, top row, middle – One parent with CFS and XMRV+ for antibody. Two

children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

Family 3, upper right corner – One parent with CFS and XMRV+ for virus by

culture. Child with Autism, XMRV+ for virus by culture.

Family 4, bottom left corner – One parent with CFS and XMRV + for virus by

culture. Two children with Autism, both XMRV+ for virus by culture.

Family 5, bottom row, middle – One parent with CFS, Fibromyalgia and XMRV+ by

antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

Family 6, bottom right corner – One parent with CFS and XMRV+ by antibody.

Child

with Autism, not tested for XMRV.

A quick summary provided by Dr. Mikovits regarding families. She can confirm,

there is XMRV in children under the age of 5. To date they have confirmed XMRV

in 16 of 17 families with neuroimmune disease amongst multiple members. Finally,

that more work needs to be done to confirm pathogenesis and transmission

[Guest guest]

And its these types of retroviruses that we think trigger the immune system’s

inability to properly control the other viruses that NIDs treats – like HHV 6,

CMV, EBV etc. And I pose the question…. Is the system is firing off producing

antibodies to these viruses – which react to the typical tests, but in fact it

is trying to fight off something else – like a retrovirus?

My son has constantly high IgG titres to EBV and CMV, but negative IGM titres

for the last 12 years. An exhaustive study at UCLA by the Professor ,

head of pediatric immunology (at Dr G’s recommendation) on my son’s EBC

could not, via PCR find any evidence of an EBV infection!

This is what we are talking about

_____

From: [mailto: ] On Behalf Of

Sent: Wednesday, January 19, 2011 12:02 PM

Subject: Re: XMRV in families affected by Autism and other Neuroimmune

Diseases

I am not sure what you are getting at but XMRV is a retrovirus...another

retrovirus you may have heard of before? HIV. XMRV is a most likely a very

serious pathogen, maybe even the root cause of immune dysfunction in autism, CFS

and more. This retrovirus has been found in the most aggressive forms of

prostate cancer, and in breast cancer. This is probably one of the biggest

discoveries related to autism yet.

--- In <mailto:%40> , erikadyan71@...

wrote:

>

> Now what......?!

>

> I am not trying to stir the pot.....it is just that we ALL have viruses in our

body. Correct me if I am wrong, but we don't even have cures for the current

viruses " treats " .....

>

> Just thinking out loud!!

>

>

> .

> Sent on the Sprint® Now Network from my BlackBerry®

>

> XMRV in families affected by Autism and other Neuroimmune

Diseases

>

> I have attached a photo of the poster from Dr. Mikovits' presentation this

past week. Entire families were tested for the XMRV retrovirus and

antibodies, and the evidence shows that almost the whole family is affected.Â

This is an infectious disease that should be addressed and deserves much

attention!

> Â

> Here is an explanation for the poster:

> Â In each of the 6 clusters, the top 2 are the parents with the children

underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

Under each shape is their XMRV result. V= virus found in culture, Av = antibody

test, NT=not tested

>

> Family 1, upper left corner †" One parent XMRV + for virus by culture and

XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

symptomatic. Child with Autism, XMRV + for the virus.

>

> Family 2, top row, middle †" One parent with CFS and XMRV+ for antibody.

Two children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

>

> Family 3, upper right corner †" One parent with CFS and XMRV+ for virus by

culture. Child with Autism, XMRV+ for virus by culture.

>

> Family 4, bottom left corner †" One parent with CFS and XMRV + for virus

by culture. Two children with Autism, both XMRV+ for virus by culture.

>

> Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+ by antivody. Child with Autism, XMRV+ for virus by culture and by

antibody.

>

> Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody. Child with Autism, not tested for XMRV.

>

> A quick summary provided by Dr. Mikovits regarding families. She can confirm,

there is XMRV in children under the age of 5. To date they have confirmed XMRV

in 16 of 17 families with neuroimmune disease amongst multiple members. Finally,

that more work needs to be done to confirm pathogenesis and transmission

>

>

>

>

>

[Guest guest]

While this research could be of huge importance to us, it frightens me to think

that my whole family might be affected. What does this mean for my 3 NT kids?

Their future spouses and children? Social stigma? Etc.

It's one thing to find out the prob., it's another to be told the problem, with

no permanent solution for my kids in the future. If this virus can be spread

through bodily fluids: drinking from the same cup or sexually, where does leave

them? I am very overwhelmed by the ramifications.

Sent from my iPhone

On Jan 19, 2011, at 6:26 PM, " Crosss " <crosswilsons@...> wrote:

> And its these types of retroviruses that we think trigger the immune

system’s inability to properly control the other viruses that NIDs treats –

like HHV 6, CMV, EBV etc. And I pose the question…. Is the system is firing

off producing antibodies to these viruses – which react to the typical tests,

but in fact it is trying to fight off something else – like a retrovirus?

>

> My son has constantly high IgG titres to EBV and CMV, but negative IGM titres

for the last 12 years. An exhaustive study at UCLA by the Professor ,

head of pediatric immunology (at Dr G’s recommendation) on my son’s EBC

could not, via PCR find any evidence of an EBV infection!

>

> This is what we are talking about

>

>

>

> _____

>

> From: [mailto: ] On Behalf Of

> Sent: Wednesday, January 19, 2011 12:02 PM

>

> Subject: Re: XMRV in families affected by Autism and other Neuroimmune

Diseases

>

> I am not sure what you are getting at but XMRV is a retrovirus...another

retrovirus you may have heard of before? HIV. XMRV is a most likely a very

serious pathogen, maybe even the root cause of immune dysfunction in autism, CFS

and more. This retrovirus has been found in the most aggressive forms of

prostate cancer, and in breast cancer. This is probably one of the biggest

discoveries related to autism yet.

>

> --- In <mailto:%40> , erikadyan71@...

wrote:

> >

> > Now what......?!

> >

> > I am not trying to stir the pot.....it is just that we ALL have viruses in

our body. Correct me if I am wrong, but we don't even have cures for the current

viruses " treats " .....

> >

> > Just thinking out loud!!

> >

> >

> > .

> > Sent on the Sprint® Now Network from my BlackBerry®

> >

> > XMRV in families affected by Autism and other Neuroimmune

Diseases

> >

> > I have attached a photo of the poster from Dr. Mikovits' presentation this

past week. Entire families were tested for the XMRV retrovirus and

antibodies, and the evidence shows that almost the whole family is affected.Â

This is an infectious disease that should be addressed and deserves much

attention!

> > Â

> > Here is an explanation for the poster:

> > Â In each of the 6 clusters, the top 2 are the parents with the children

underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

Under each shape is their XMRV result. V= virus found in culture, Av = antibody

test, NT=not tested

> >

> > Family 1, upper left corner †" One parent XMRV + for virus by culture

and XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

symptomatic. Child with Autism, XMRV + for the virus.

> >

> > Family 2, top row, middle †" One parent with CFS and XMRV+ for antibody.

Two children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

> >

> > Family 3, upper right corner †" One parent with CFS and XMRV+ for virus

by culture. Child with Autism, XMRV+ for virus by culture.

> >

> > Family 4, bottom left corner †" One parent with CFS and XMRV + for virus

by culture. Two children with Autism, both XMRV+ for virus by culture.

> >

> > Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+ by antivody. Child with Autism, XMRV+ for virus by culture and by

antibody.

> >

> > Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody. Child with Autism, not tested for XMRV.

> >

> > A quick summary provided by Dr. Mikovits regarding families. She can

confirm, there is XMRV in children under the age of 5. To date they have

confirmed XMRV in 16 of 17 families with neuroimmune disease amongst multiple

members. Finally, that more work needs to be done to confirm pathogenesis and

transmission

> >

> >

> >

> >

> >

[Guest guest]

What does it mean for society as a whole?

________________________________

From: Sheryl <ssaturnino@...>

" " < >

Sent: Wed, January 19, 2011 9:41:51 PM

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

While this research could be of huge importance to us, it frightens me to think

that my whole family might be affected. What does this mean for my 3 NT kids?

Their future spouses and children? Social stigma? Etc.

It's one thing to find out the prob., it's another to be told the problem, with

no permanent solution for my kids in the future. If this virus can be spread

through bodily fluids: drinking from the same cup or sexually, where does leave

them? I am very overwhelmed by the ramifications.

Sent from my iPhone

On Jan 19, 2011, at 6:26 PM, " Crosss " <crosswilsons@...> wrote:

> And its these types of retroviruses that we think trigger the immune

system’s

>inability to properly control the other viruses that NIDs treats – like HHV

6,

>CMV, EBV etc. And I pose the question…. Is the system is firing off producing

>antibodies to these viruses – which react to the typical tests, but in fact

it

>is trying to fight off something else – like a retrovirus?

>

> My son has constantly high IgG titres to EBV and CMV, but negative IGM titres

>for the last 12 years. An exhaustive study at UCLA by the Professor ,

>head of pediatric immunology (at Dr G’s recommendation) on my son’s EBC

could

>not, via PCR find any evidence of an EBV infection!

>

>

> This is what we are talking about

>

>

>

> _____

>

> From: [mailto: ] On Behalf Of

> Sent: Wednesday, January 19, 2011 12:02 PM

>

> Subject: Re: XMRV in families affected by Autism and other Neuroimmune

>Diseases

>

> I am not sure what you are getting at but XMRV is a retrovirus...another

>retrovirus you may have heard of before? HIV. XMRV is a most likely a very

>serious pathogen, maybe even the root cause of immune dysfunction in autism,

CFS

>and more. This retrovirus has been found in the most aggressive forms of

>prostate cancer, and in breast cancer. This is probably one of the biggest

>discoveries related to autism yet.

>

> --- In <mailto:%40> , erikadyan71@...

>wrote:

> >

> > Now what......?!

> >

> > I am not trying to stir the pot.....it is just that we ALL have viruses in

>our body. Correct me if I am wrong, but we don't even have cures for the

current

>viruses " treats " .....

> >

> > Just thinking out loud!!

> >

> >

> > .

> > Sent on the Sprint® Now Network from my BlackBerry®

> >

> > XMRV in families affected by Autism and other Neuroimmune

>Diseases

> >

> > I have attached a photo of the poster from Dr. Mikovits' presentation this

>past week. Entire families were tested for the XMRV retrovirus and

antibodies,

>and the evidence shows that almost the whole family is affected. This is an

>infectious disease that should be addressed and deserves much attention!

> > Â

> > Here is an explanation for the poster:

> > Â In each of the 6 clusters, the top 2 are the parents with the children

>underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

>Under each shape is their XMRV result. V= virus found in culture, Av = antibody

>test, NT=not tested

>

> >

> > Family 1, upper left corner †" One parent XMRV + for virus by culture

and

>XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

>symptomatic. Child with Autism, XMRV + for the virus.

>

> >

> > Family 2, top row, middle †" One parent with CFS and XMRV+ for antibody.

Two

>children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

>

> >

> > Family 3, upper right corner †" One parent with CFS and XMRV+ for virus

by

>culture. Child with Autism, XMRV+ for virus by culture.

>

> >

> > Family 4, bottom left corner †" One parent with CFS and XMRV + for virus

by

>culture. Two children with Autism, both XMRV+ for virus by culture.

>

> >

> > Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+

>by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

>

> >

> > Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody.

>Child with Autism, not tested for XMRV.

>

> >

> > A quick summary provided by Dr. Mikovits regarding families. She can

confirm,

>there is XMRV in children under the age of 5. To date they have confirmed XMRV

>in 16 of 17 families with neuroimmune disease amongst multiple members.

Finally,

>that more work needs to be done to confirm pathogenesis and transmission

> >

> >

> >

> >

> >

[Guest guest]

Thats a really good question, . I have no idea if the antibodies to EBV

are cross-reactive to XMRV. Here is some information about EBV and how it

relates to XMRV:

http://cfidsresearch.blogspot.com/2010/12/ebv-and-xmrv-new-disease-model.html

-Jen

>

> And its these types of retroviruses that we think trigger the immune

system’s inability to properly control the other viruses that NIDs treats †"

like HHV 6, CMV, EBV etc. And I pose the question…. Is the system is firing

off producing antibodies to these viruses †" which react to the typical tests,

but in fact it is trying to fight off something else †" like a retrovirus?

>

> My son has constantly high IgG titres to EBV and CMV, but negative IGM titres

for the last 12 years. An exhaustive study at UCLA by the Professor ,

head of pediatric immunology (at Dr G’s recommendation) on my son’s EBC

could not, via PCR find any evidence of an EBV infection!

>

>

>

> This is what we are talking about

>

>

>

>

>

>

>

>

>

> _____

>

> From: [mailto: ] On Behalf Of

> Sent: Wednesday, January 19, 2011 12:02 PM

>

> Subject: Re: XMRV in families affected by Autism and other Neuroimmune

Diseases

>

>

>

>

>

> I am not sure what you are getting at but XMRV is a retrovirus...another

retrovirus you may have heard of before? HIV. XMRV is a most likely a very

serious pathogen, maybe even the root cause of immune dysfunction in autism, CFS

and more. This retrovirus has been found in the most aggressive forms of

prostate cancer, and in breast cancer. This is probably one of the biggest

discoveries related to autism yet.

>

> --- In <mailto:%40> , erikadyan71@

wrote:

> >

> > Now what......?!

> >

> > I am not trying to stir the pot.....it is just that we ALL have viruses in

our body. Correct me if I am wrong, but we don't even have cures for the current

viruses " treats " .....

> >

> > Just thinking out loud!!

> >

> >

> > .

> > Sent on the Sprint® Now Network from my BlackBerry®

> >

> > XMRV in families affected by Autism and other Neuroimmune

Diseases

> >

> > I have attached a photo of the poster from Dr. Mikovits' presentation this

past week. Entire families were tested for the XMRV retrovirus and

antibodies, and the evidence shows that almost the whole family is affected.Â

This is an infectious disease that should be addressed and deserves much

attention!

> > Â

> > Here is an explanation for the poster:

> > Â In each of the 6 clusters, the top 2 are the parents with the children

underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

Under each shape is their XMRV result. V= virus found in culture, Av = antibody

test, NT=not tested

> >

> > Family 1, upper left corner †" One parent XMRV + for virus by culture

and XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

symptomatic. Child with Autism, XMRV + for the virus.

> >

> > Family 2, top row, middle †" One parent with CFS and XMRV+ for antibody.

Two children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

> >

> > Family 3, upper right corner †" One parent with CFS and XMRV+ for virus

by culture. Child with Autism, XMRV+ for virus by culture.

> >

> > Family 4, bottom left corner †" One parent with CFS and XMRV + for virus

by culture. Two children with Autism, both XMRV+ for virus by culture.

> >

> > Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+ by antivody. Child with Autism, XMRV+ for virus by culture and by

antibody.

> >

> > Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody. Child with Autism, not tested for XMRV.

> >

> > A quick summary provided by Dr. Mikovits regarding families. She can

confirm, there is XMRV in children under the age of 5. To date they have

confirmed XMRV in 16 of 17 families with neuroimmune disease amongst multiple

members. Finally, that more work needs to be done to confirm pathogenesis and

transmission

> >

> >

> >

> >

> >

[Guest guest]

Sheryl, it does have some frightening ramifications, yet I am so hopeful,

because this is the beginning of some real help for our kids with autism, their

siblings, and even ourselves! There is something holding up research from

moving forward...funding!!! Maybe NOW people will get that our kids are

actually SICK!

>

> > And its these types of retroviruses that we think trigger the immune

system’s inability to properly control the other viruses that NIDs treats †"

like HHV 6, CMV, EBV etc. And I pose the question…. Is the system is firing

off producing antibodies to these viruses †" which react to the typical tests,

but in fact it is trying to fight off something else †" like a retrovirus?

> >

> > My son has constantly high IgG titres to EBV and CMV, but negative IGM

titres for the last 12 years. An exhaustive study at UCLA by the Professor

, head of pediatric immunology (at Dr G’s recommendation) on my son’s

EBC could not, via PCR find any evidence of an EBV infection!

> >

> > This is what we are talking about

> >

> >

> >

> > _____

> >

> > From: [mailto: ] On Behalf Of

> > Sent: Wednesday, January 19, 2011 12:02 PM

> >

> > Subject: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

> >

> > I am not sure what you are getting at but XMRV is a retrovirus...another

retrovirus you may have heard of before? HIV. XMRV is a most likely a very

serious pathogen, maybe even the root cause of immune dysfunction in autism, CFS

and more. This retrovirus has been found in the most aggressive forms of

prostate cancer, and in breast cancer. This is probably one of the biggest

discoveries related to autism yet.

> >

> > --- In <mailto:%40> , erikadyan71@

wrote:

> > >

> > > Now what......?!

> > >

> > > I am not trying to stir the pot.....it is just that we ALL have viruses in

our body. Correct me if I am wrong, but we don't even have cures for the current

viruses " treats " .....

> > >

> > > Just thinking out loud!!

> > >

> > >

> > > .

> > > Sent on the Sprint® Now Network from my BlackBerry®

> > >

> > > XMRV in families affected by Autism and other Neuroimmune

Diseases

> > >

> > > I have attached a photo of the poster from Dr. Mikovits' presentation this

past week. Entire families were tested for the XMRV retrovirus and

antibodies, and the evidence shows that almost the whole family is affected.Â

This is an infectious disease that should be addressed and deserves much

attention!

> > > Â

> > > Here is an explanation for the poster:

> > > Â In each of the 6 clusters, the top 2 are the parents with the children

underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

Under each shape is their XMRV result. V= virus found in culture, Av = antibody

test, NT=not tested

> > >

> > > Family 1, upper left corner †" One parent XMRV + for virus by culture

and XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

symptomatic. Child with Autism, XMRV + for the virus.

> > >

> > > Family 2, top row, middle †" One parent with CFS and XMRV+ for

antibody. Two children with Autism; one XMRV+ for virus by culture, one XMRV+ by

antibody.

> > >

> > > Family 3, upper right corner †" One parent with CFS and XMRV+ for

virus by culture. Child with Autism, XMRV+ for virus by culture.

> > >

> > > Family 4, bottom left corner †" One parent with CFS and XMRV + for

virus by culture. Two children with Autism, both XMRV+ for virus by culture.

> > >

> > > Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+ by antivody. Child with Autism, XMRV+ for virus by culture and by

antibody.

> > >

> > > Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody. Child with Autism, not tested for XMRV.

> > >

> > > A quick summary provided by Dr. Mikovits regarding families. She can

confirm, there is XMRV in children under the age of 5. To date they have

confirmed XMRV in 16 of 17 families with neuroimmune disease amongst multiple

members. Finally, that more work needs to be done to confirm pathogenesis and

transmission

> > >

> > >

> > >

> > >

> > >

[Guest guest]

, are you the who helped coordinate study samples for the XMRV

study? I gave my blood for it, but my son was not 13 or over, so he couldn't

participate. I have never received results from that study.

Sent from my iPhone

On Jan 19, 2011, at 8:48 PM, " " <jlhank80@...> wrote:

> Sheryl, it does have some frightening ramifications, yet I am so hopeful,

because this is the beginning of some real help for our kids with autism, their

siblings, and even ourselves! There is something holding up research from moving

forward...funding!!! Maybe NOW people will get that our kids are actually SICK!

>

>

> >

> > > And its these types of retroviruses that we think trigger the immune

system’s inability to properly control the other viruses that NIDs treats

†" like HHV 6, CMV, EBV etc. And I pose the question…. Is the system

is firing off producing antibodies to these viruses †" which react to the

typical tests, but in fact it is trying to fight off something else †" like

a retrovirus?

> > >

> > > My son has constantly high IgG titres to EBV and CMV, but negative IGM

titres for the last 12 years. An exhaustive study at UCLA by the Professor

, head of pediatric immunology (at Dr G’s recommendation) on my

son’s EBC could not, via PCR find any evidence of an EBV infection!

> > >

> > > This is what we are talking about

> > >

> > >

> > >

> > > _____

> > >

> > > From: [mailto: ] On Behalf Of

> > > Sent: Wednesday, January 19, 2011 12:02 PM

> > >

> > > Subject: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

> > >

> > > I am not sure what you are getting at but XMRV is a retrovirus...another

retrovirus you may have heard of before? HIV. XMRV is a most likely a very

serious pathogen, maybe even the root cause of immune dysfunction in autism, CFS

and more. This retrovirus has been found in the most aggressive forms of

prostate cancer, and in breast cancer. This is probably one of the biggest

discoveries related to autism yet.

> > >

> > > --- In <mailto:%40> , erikadyan71@

wrote:

> > > >

> > > > Now what......?!

> > > >

> > > > I am not trying to stir the pot.....it is just that we ALL have viruses

in our body. Correct me if I am wrong, but we don't even have cures for the

current viruses " treats " .....

> > > >

> > > > Just thinking out loud!!

> > > >

> > > >

> > > > .

> > > > Sent on the Sprint® Now Network from my BlackBerry®

> > > >

> > > > XMRV in families affected by Autism and other

Neuroimmune Diseases

> > > >

> > > > I have attached a photo of the poster from Dr. Mikovits' presentation

this past week. Entire families were tested for the XMRV retrovirus

and antibodies, and the evidence shows that almost the whole family is

affected. This is an infectious disease that should be addressed and

deserves much attention!

> > > > Â

> > > > Here is an explanation for the poster:

> > > > Â In each of the 6 clusters, the top 2 are the parents with the

children underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN =

AUTISM. Under each shape is their XMRV result. V= virus found in culture, Av =

antibody test, NT=not tested

> > > >

> > > > Family 1, upper left corner †" One parent XMRV + for virus by

culture and XMRV + for antibody, one parent XMRV + for the antibody. Neither

parent symptomatic. Child with Autism, XMRV + for the virus.

> > > >

> > > > Family 2, top row, middle †" One parent with CFS and XMRV+ for

antibody. Two children with Autism; one XMRV+ for virus by culture, one XMRV+ by

antibody.

> > > >

> > > > Family 3, upper right corner †" One parent with CFS and XMRV+

for virus by culture. Child with Autism, XMRV+ for virus by culture.

> > > >

> > > > Family 4, bottom left corner †" One parent with CFS and XMRV +

for virus by culture. Two children with Autism, both XMRV+ for virus by culture.

> > > >

> > > > Family 5, bottom row, middle †" One parent with CFS,

Fibromyalgia and XMRV+ by antivody. Child with Autism, XMRV+ for virus by

culture and by antibody.

> > > >

> > > > Family 6, bottom right corner †" One parent with CFS and XMRV+

by antibody. Child with Autism, not tested for XMRV.

> > > >

> > > > A quick summary provided by Dr. Mikovits regarding families. She can

confirm, there is XMRV in children under the age of 5. To date they have

confirmed XMRV in 16 of 17 families with neuroimmune disease amongst multiple

members. Finally, that more work needs to be done to confirm pathogenesis and

transmission

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

I've thought about that a lot too.

I think we have to weigh between the possibility that our NT kids could develop

CFS or lymphoma later, as well as have kids with autism later. 

That's why a vaccine for this (gasp!) is going to be important - so that our

kids can have a better hope of having normal relationships later too...

________________________________

From: Sheryl <ssaturnino@...>

" " < >

Sent: Wed, January 19, 2011 8:41:51 PM

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

 

While this research could be of huge importance to us, it frightens me to think

that my whole family might be affected. What does this mean for my 3 NT kids?

Their future spouses and children? Social stigma? Etc.

It's one thing to find out the prob., it's another to be told the problem, with

no permanent solution for my kids in the future. If this virus can be spread

through bodily fluids: drinking from the same cup or sexually, where does leave

them? I am very overwhelmed by the ramifications.

Sent from my iPhone

On Jan 19, 2011, at 6:26 PM, " Crosss " <crosswilsons@...> wrote:

> And its these types of retroviruses that we think trigger the immune

system’s

>inability to properly control the other viruses that NIDs treats – like HHV

6,

>CMV, EBV etc. And I pose the question…. Is the system is firing off producing

>antibodies to these viruses – which react to the typical tests, but in fact

it

>is trying to fight off something else – like a retrovirus?

>

> My son has constantly high IgG titres to EBV and CMV, but negative IGM titres

>for the last 12 years. An exhaustive study at UCLA by the Professor ,

>head of pediatric immunology (at Dr G’s recommendation) on my son’s EBC

could

>not, via PCR find any evidence of an EBV infection!

>

>

> This is what we are talking about

>

>

>

> _____

>

> From: [mailto: ] On Behalf Of

> Sent: Wednesday, January 19, 2011 12:02 PM

>

> Subject: Re: XMRV in families affected by Autism and other Neuroimmune

>Diseases

>

> I am not sure what you are getting at but XMRV is a retrovirus...another

>retrovirus you may have heard of before? HIV. XMRV is a most likely a very

>serious pathogen, maybe even the root cause of immune dysfunction in autism,

CFS

>and more. This retrovirus has been found in the most aggressive forms of

>prostate cancer, and in breast cancer. This is probably one of the biggest

>discoveries related to autism yet.

>

> --- In <mailto:%40> , erikadyan71@...

>wrote:

> >

> > Now what......?!

> >

> > I am not trying to stir the pot.....it is just that we ALL have viruses in

>our body. Correct me if I am wrong, but we don't even have cures for the

current

>viruses " treats " .....

> >

> > Just thinking out loud!!

> >

> >

> > .

> > Sent on the Sprint® Now Network from my BlackBerry®

> >

> > XMRV in families affected by Autism and other Neuroimmune

>Diseases

> >

> > I have attached a photo of the poster from Dr. Mikovits' presentation this

>past week. Entire families were tested for the XMRV retrovirus and

antibodies,

>and the evidence shows that almost the whole family is affected. This is an

>infectious disease that should be addressed and deserves much attention!

> > Â

> > Here is an explanation for the poster:

> > Â In each of the 6 clusters, the top 2 are the parents with the children

>underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

>Under each shape is their XMRV result. V= virus found in culture, Av = antibody

>test, NT=not tested

>

> >

> > Family 1, upper left corner †" One parent XMRV + for virus by culture

and

>XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

>symptomatic. Child with Autism, XMRV + for the virus.

>

> >

> > Family 2, top row, middle †" One parent with CFS and XMRV+ for antibody.

Two

>children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

>

> >

> > Family 3, upper right corner †" One parent with CFS and XMRV+ for virus

by

>culture. Child with Autism, XMRV+ for virus by culture.

>

> >

> > Family 4, bottom left corner †" One parent with CFS and XMRV + for virus

by

>culture. Two children with Autism, both XMRV+ for virus by culture.

>

> >

> > Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+

>by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

>

> >

> > Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody.

>Child with Autism, not tested for XMRV.

>

> >

> > A quick summary provided by Dr. Mikovits regarding families. She can

confirm,

>there is XMRV in children under the age of 5. To date they have confirmed XMRV

>in 16 of 17 families with neuroimmune disease amongst multiple members.

Finally,

>that more work needs to be done to confirm pathogenesis and transmission

> >

> >

> >

> >

> >

[Guest guest]

So true.  I worry about our special ed teachers where I work, and I worry about

the typical kids that attend our school.  If we do have a serious virus, then I

want to know, taboo or not, so that I don't spread it.  I've behaved as if I

have a transmissable virus for many years anyway.  At the very least, I didn't

want to spread strep, which I've had chronic for years.

We have all the people with AIDS who have gone before us with this, and while

some people less knowledgable about it may still put stigma there, most

understand that they aren't going to catch it by being close by.  Now whether

or

not XMRV will be much easier to transmit (only time will tell), we will have to

address stigmas and educate as well, and we have the privacy laws to protect us

too.

It does make me wonder, if this ends up showing that it can spread via coughing

or sneezing, if the schools would have the right to quarantine our kids or

not. 

If that happened, I'm not sure what I'd do.

But it's not like many are taking it seriously for now, so no hurry on that

worry.  No point in borrowing worry from the future - we have enough right now.

  (Easier said than done.)

________________________________

From: <jlhank80@...>

Sent: Wed, January 19, 2011 10:48:35 PM

Subject: Re: XMRV in families affected by Autism and other Neuroimmune

Diseases

 

Sheryl, it does have some frightening ramifications, yet I am so hopeful,

because this is the beginning of some real help for our kids with autism, their

siblings, and even ourselves! There is something holding up research from moving

forward...funding!!! Maybe NOW people will get that our kids are actually SICK!

>

> > And its these types of retroviruses that we think trigger the immune

>system’s inability to properly control the other viruses that NIDs

treats †"

>like HHV 6, CMV, EBV etc. And I pose the question…. Is the system is

firing

>off producing antibodies to these viruses †" which react to the typical

tests,

>but in fact it is trying to fight off something else †" like a retrovirus?

> >

> > My son has constantly high IgG titres to EBV and CMV, but negative IGM

titres

>for the last 12 years. An exhaustive study at UCLA by the Professor ,

>head of pediatric immunology (at Dr G’s recommendation) on my

son’s EBC

>could not, via PCR find any evidence of an EBV infection!

>

> >

> > This is what we are talking about

> >

> >

> >

> > _____

> >

> > From: [mailto: ] On Behalf Of

>

> > Sent: Wednesday, January 19, 2011 12:02 PM

> >

> > Subject: Re: XMRV in families affected by Autism and other

Neuroimmune

>Diseases

> >

> > I am not sure what you are getting at but XMRV is a retrovirus...another

>retrovirus you may have heard of before? HIV. XMRV is a most likely a very

>serious pathogen, maybe even the root cause of immune dysfunction in autism,

CFS

>and more. This retrovirus has been found in the most aggressive forms of

>prostate cancer, and in breast cancer. This is probably one of the biggest

>discoveries related to autism yet.

> >

> > --- In <mailto:%40> , erikadyan71@

>wrote:

> > >

> > > Now what......?!

> > >

> > > I am not trying to stir the pot.....it is just that we ALL have viruses in

>our body. Correct me if I am wrong, but we don't even have cures for the

current

>viruses " treats " .....

> > >

> > > Just thinking out loud!!

> > >

> > >

> > > .

> > > Sent on the Sprint® Now Network from my BlackBerry®

> > >

> > > XMRV in families affected by Autism and other Neuroimmune

>Diseases

> > >

> > > I have attached a photo of the poster from Dr. Mikovits' presentation this

>past week. Entire families were tested for the XMRV retrovirus and

>antibodies, and the evidence shows that almost the whole family is

affected.Â

>This is an infectious disease that should be addressed and deserves much

>attention!

> > > Â

> > > Here is an explanation for the poster:

> > > Â In each of the 6 clusters, the top 2 are the parents with the

children

>underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

>Under each shape is their XMRV result. V= virus found in culture, Av = antibody

>test, NT=not tested

>

> > >

> > > Family 1, upper left corner †" One parent XMRV + for virus by

culture

>and XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

>symptomatic. Child with Autism, XMRV + for the virus.

>

> > >

> > > Family 2, top row, middle †" One parent with CFS and XMRV+ for

>antibody. Two children with Autism; one XMRV+ for virus by culture, one XMRV+

by

>antibody.

>

> > >

> > > Family 3, upper right corner †" One parent with CFS and XMRV+

for virus

>by culture. Child with Autism, XMRV+ for virus by culture.

>

> > >

> > > Family 4, bottom left corner †" One parent with CFS and XMRV +

for

>virus by culture. Two children with Autism, both XMRV+ for virus by culture.

>

> > >

> > > Family 5, bottom row, middle †" One parent with CFS,

Fibromyalgia and

>XMRV+ by antivody. Child with Autism, XMRV+ for virus by culture and by

>antibody.

>

> > >

> > > Family 6, bottom right corner †" One parent with CFS and XMRV+

by

>antibody. Child with Autism, not tested for XMRV.

>

> > >

> > > A quick summary provided by Dr. Mikovits regarding families. She can

>confirm, there is XMRV in children under the age of 5. To date they have

>confirmed XMRV in 16 of 17 families with neuroimmune disease amongst multiple

>members. Finally, that more work needs to be done to confirm pathogenesis and

>transmission

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi ,

 

I just wanted to share a recent experience I had with my son's school.. I

stupidly told his teachers that he tested positive for HHV 6 (Roseola) which,

btw, is actually very common in kids.  My son got sick at school one day

(nausea) and had alos been spitting.  Someone must have complained and the

school almost threatening to quarantine my son unless I got a lettter from

his doctor.. this was over Roseola whch most kids have had by age 4. I was

freaking out over this b/c I'd have to keep my son home indefintely.

 

My advice is to never share  (or be very selective) medical information

especially with anything infectious like a virus with the school because they

can and will use it against you and your child.

 

From: <thecolemans4@...>

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

Date: Thursday, January 20, 2011, 10:58 AM

 

So true.  I worry about our special ed teachers where I work, and I worry about

the typical kids that attend our school.  If we do have a serious virus, then I

want to know, taboo or not, so that I don't spread it.  I've behaved as if I

have a transmissable virus for many years anyway.  At the very least, I didn't

want to spread strep, which I've had chronic for years.

We have all the people with AIDS who have gone before us with this, and while

some people less knowledgable about it may still put stigma there, most

understand that they aren't going to catch it by being close by.  Now whether

or

not XMRV will be much easier to transmit (only time will tell), we will have to

address stigmas and educate as well, and we have the privacy laws to protect us

too.

It does make me wonder, if this ends up showing that it can spread via coughing

or sneezing, if the schools would have the right to quarantine our kids or

not. 

If that happened, I'm not sure what I'd do.

But it's not like many are taking it seriously for now, so no hurry on that

worry.  No point in borrowing worry from the future - we have enough right now.

  (Easier said than done.)

________________________________

From: <jlhank80@...>

Sent: Wed, January 19, 2011 10:48:35 PM

Subject: Re: XMRV in families affected by Autism and other Neuroimmune

Diseases

 

Sheryl, it does have some frightening ramifications, yet I am so hopeful,

because this is the beginning of some real help for our kids with autism, their

siblings, and even ourselves! There is something holding up research from moving

forward...funding!!! Maybe NOW people will get that our kids are actually SICK!

>

> > And its these types of retroviruses that we think trigger the immune

>system’s inability to properly control the other viruses that NIDs

treats †"

>like HHV 6, CMV, EBV etc. And I pose the question…. Is the system is

firing

>off producing antibodies to these viruses †" which react to the typical

tests,

>but in fact it is trying to fight off something else †" like a retrovirus?

> >

> > My son has constantly high IgG titres to EBV and CMV, but negative IGM

titres

>for the last 12 years. An exhaustive study at UCLA by the Professor ,

>head of pediatric immunology (at Dr G’s recommendation) on my

son’s EBC

>could not, via PCR find any evidence of an EBV infection!

>

> >

> > This is what we are talking about

> >

> >

> >

> > _____

> >

> > From: [mailto: ] On Behalf Of

>

> > Sent: Wednesday, January 19, 2011 12:02 PM

> >

> > Subject: Re: XMRV in families affected by Autism and other

Neuroimmune

>Diseases

> >

> > I am not sure what you are getting at but XMRV is a retrovirus...another

>retrovirus you may have heard of before? HIV. XMRV is a most likely a very

>serious pathogen, maybe even the root cause of immune dysfunction in autism,

CFS

>and more. This retrovirus has been found in the most aggressive forms of

>prostate cancer, and in breast cancer. This is probably one of the biggest

>discoveries related to autism yet.

> >

> > --- In <mailto:%40> , erikadyan71@

>wrote:

> > >

> > > Now what......?!

> > >

> > > I am not trying to stir the pot.....it is just that we ALL have viruses in

>our body. Correct me if I am wrong, but we don't even have cures for the

current

>viruses " treats " .....

> > >

> > > Just thinking out loud!!

> > >

> > >

> > > .

> > > Sent on the Sprint® Now Network from my BlackBerry®

> > >

> > > XMRV in families affected by Autism and other Neuroimmune

>Diseases

> > >

> > > I have attached a photo of the poster from Dr. Mikovits' presentation this

>past week. Entire families were tested for the XMRV retrovirus and

>antibodies, and the evidence shows that almost the whole family is

affected.Â

>This is an infectious disease that should be addressed and deserves much

>attention!

> > > Â

> > > Here is an explanation for the poster:

> > > Â In each of the 6 clusters, the top 2 are the parents with the

children

>underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

>Under each shape is their XMRV result. V= virus found in culture, Av = antibody

>test, NT=not tested

>

> > >

> > > Family 1, upper left corner †" One parent XMRV + for virus by

culture

>and XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

>symptomatic. Child with Autism, XMRV + for the virus.

>

> > >

> > > Family 2, top row, middle †" One parent with CFS and XMRV+ for

>antibody. Two children with Autism; one XMRV+ for virus by culture, one XMRV+

by

>antibody.

>

> > >

> > > Family 3, upper right corner †" One parent with CFS and XMRV+

for virus

>by culture. Child with Autism, XMRV+ for virus by culture.

>

> > >

> > > Family 4, bottom left corner †" One parent with CFS and XMRV +

for

>virus by culture. Two children with Autism, both XMRV+ for virus by culture.

>

> > >

> > > Family 5, bottom row, middle †" One parent with CFS,

Fibromyalgia and

>XMRV+ by antivody. Child with Autism, XMRV+ for virus by culture and by

>antibody.

>

> > >

> > > Family 6, bottom right corner †" One parent with CFS and XMRV+

by

>antibody. Child with Autism, not tested for XMRV.

>

> > >

> > > A quick summary provided by Dr. Mikovits regarding families. She can

>confirm, there is XMRV in children under the age of 5. To date they have

>confirmed XMRV in 16 of 17 families with neuroimmune disease amongst multiple

>members. Finally, that more work needs to be done to confirm pathogenesis and

>transmission

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Isn`t that why we are to keep them on the ``` diet…to keep their immune

system cooled off…

Just from the diet alone, my other two children have been infinitely healthier

then their older brother, who we have learned so much through his poor health

over the years.

I know Dr. G encourages keeping triggers away from my other children. It

wouldn`t hurt anyone to follow the diet and eliminate a lot of the junk that is

in the average diet…especially kids! Ever look at the lunches other kids

bring to school. Aside from cheese, cheese, cheese (all cow!), it is additives,

chemicals, colourings, sugar and generally garbage.

No wonder kids are getting ill at epidemic rates (ADD, ADHD, Autism etc…). I

think the virus (xmrv) is perhaps a big trigger, but a strong immune system

should be able to keep it under control. Otherwise we would see the pandemic

that experts keep warning us about.

Just me two cents…

Lori

_____

From: [mailto: ] On Behalf Of

Sent: January-20-11 8:39 AM

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

I've thought about that a lot too.

I think we have to weigh between the possibility that our NT kids could develop

CFS or lymphoma later, as well as have kids with autism later.

That's why a vaccine for this (gasp!) is going to be important - so that our

kids can have a better hope of having normal relationships later too...

________________________________

From: Sheryl <ssaturnino@... <mailto:ssaturnino%40> >

" <mailto:%40> "

< <mailto:%40> >

Sent: Wed, January 19, 2011 8:41:51 PM

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

While this research could be of huge importance to us, it frightens me to think

that my whole family might be affected. What does this mean for my 3 NT kids?

Their future spouses and children? Social stigma? Etc.

It's one thing to find out the prob., it's another to be told the problem, with

no permanent solution for my kids in the future. If this virus can be spread

through bodily fluids: drinking from the same cup or sexually, where does leave

them? I am very overwhelmed by the ramifications.

Sent from my iPhone

On Jan 19, 2011, at 6:26 PM, " Crosss " <crosswilsons@...

<mailto:crosswilsons%40socal.rr.com> > wrote:

> And its these types of retroviruses that we think trigger the immune

system’s

>inability to properly control the other viruses that NIDs treats – like HHV

6,

>CMV, EBV etc. And I pose the question…. Is the system is firing off producing

>antibodies to these viruses – which react to the typical tests, but in fact

it

>is trying to fight off something else – like a retrovirus?

>

> My son has constantly high IgG titres to EBV and CMV, but negative IGM titres

>for the last 12 years. An exhaustive study at UCLA by the Professor ,

>head of pediatric immunology (at Dr G’s recommendation) on my son’s EBC

could

>not, via PCR find any evidence of an EBV infection!

>

>

> This is what we are talking about

>

>

>

> _____

>

> From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

> Sent: Wednesday, January 19, 2011 12:02 PM

> <mailto:%40>

> Subject: Re: XMRV in families affected by Autism and other Neuroimmune

>Diseases

>

> I am not sure what you are getting at but XMRV is a retrovirus...another

>retrovirus you may have heard of before? HIV. XMRV is a most likely a very

>serious pathogen, maybe even the root cause of immune dysfunction in autism,

CFS

>and more. This retrovirus has been found in the most aggressive forms of

>prostate cancer, and in breast cancer. This is probably one of the biggest

>discoveries related to autism yet.

>

> --- In <mailto:%40>

<mailto:%40> , erikadyan71@...

>wrote:

> >

> > Now what......?!

> >

> > I am not trying to stir the pot.....it is just that we ALL have viruses in

>our body. Correct me if I am wrong, but we don't even have cures for the

current

>viruses " treats " .....

> >

> > Just thinking out loud!!

> >

> >

> > .

> > Sent on the Sprint® Now Network from my BlackBerry®

> >

> > XMRV in families affected by Autism and other Neuroimmune

>Diseases

> >

> > I have attached a photo of the poster from Dr. Mikovits' presentation this

>past week. Entire families were tested for the XMRV retrovirus and

antibodies,

>and the evidence shows that almost the whole family is affected. This is an

>infectious disease that should be addressed and deserves much attention!

> > Â

> > Here is an explanation for the poster:

> > Â In each of the 6 clusters, the top 2 are the parents with the children

>underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

>Under each shape is their XMRV result. V= virus found in culture, Av = antibody

>test, NT=not tested

>

> >

> > Family 1, upper left corner †" One parent XMRV + for virus by culture

and

>XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

>symptomatic. Child with Autism, XMRV + for the virus.

>

> >

> > Family 2, top row, middle †" One parent with CFS and XMRV+ for antibody.

Two

>children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

>

> >

> > Family 3, upper right corner †" One parent with CFS and XMRV+ for virus

by

>culture. Child with Autism, XMRV+ for virus by culture.

>

> >

> > Family 4, bottom left corner †" One parent with CFS and XMRV + for virus

by

>culture. Two children with Autism, both XMRV+ for virus by culture.

>

> >

> > Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+

>by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

>

> >

> > Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody.

>Child with Autism, not tested for XMRV.

>

> >

> > A quick summary provided by Dr. Mikovits regarding families. She can

confirm,

>there is XMRV in children under the age of 5. To date they have confirmed XMRV

>in 16 of 17 families with neuroimmune disease amongst multiple members.

Finally,

>that more work needs to be done to confirm pathogenesis and transmission

> >

> >

> >

> >

> >

[Guest guest]

Seems to make sense...possibly there are many viruses that have not been

discovered yet because they have not posed any real threat to humans. Now that

we have a diet and environment that makes us all more susceptible, possibly that

is why this virus is able to wreak haven in those with compromised immune

systems. So, possibly it is not that this is a virus that only some have BUT

maybe it is a virus that most of us have and our bodies are able to keep it in

check...It may not even be detectable in most human beings but we still may have

either had it or have it but it is undetectable just like in some who have (or

had) AIDS...Any comments?

From: [mailto: ] On Behalf Of Lori

Sent: January-20-11 2:11 PM

Subject: RE: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

Isn`t that why we are to keep them on the ``` diet…to keep their immune

system cooled off…

Just from the diet alone, my other two children have been infinitely healthier

then their older brother, who we have learned so much through his poor health

over the years.

I know Dr. G encourages keeping triggers away from my other children. It

wouldn`t hurt anyone to follow the diet and eliminate a lot of the junk that is

in the average diet…especially kids! Ever look at the lunches other kids bring

to school. Aside from cheese, cheese, cheese (all cow!), it is additives,

chemicals, colourings, sugar and generally garbage.

No wonder kids are getting ill at epidemic rates (ADD, ADHD, Autism etc…). I

think the virus (xmrv) is perhaps a big trigger, but a strong immune system

should be able to keep it under control. Otherwise we would see the pandemic

that experts keep warning us about.

Just me two cents…

Lori

_____

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Sent: January-20-11 8:39 AM

<mailto:%40>

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

I've thought about that a lot too.

I think we have to weigh between the possibility that our NT kids could develop

CFS or lymphoma later, as well as have kids with autism later.

That's why a vaccine for this (gasp!) is going to be important - so that our

kids can have a better hope of having normal relationships later too...

________________________________

From: Sheryl <ssaturnino@... <mailto:ssaturnino%40>

<mailto:ssaturnino%40> >

" <mailto:%40>

<mailto:%40> " <

<mailto:%40> <mailto:%40> >

Sent: Wed, January 19, 2011 8:41:51 PM

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

While this research could be of huge importance to us, it frightens me to think

that my whole family might be affected. What does this mean for my 3 NT kids?

Their future spouses and children? Social stigma? Etc.

It's one thing to find out the prob., it's another to be told the problem, with

no permanent solution for my kids in the future. If this virus can be spread

through bodily fluids: drinking from the same cup or sexually, where does leave

them? I am very overwhelmed by the ramifications.

Sent from my iPhone

On Jan 19, 2011, at 6:26 PM, " Crosss " <crosswilsons@...

<mailto:crosswilsons%40socal.rr.com> <mailto:crosswilsons%40socal.rr.com> >

wrote:

> And its these types of retroviruses that we think trigger the immune

system’s

>inability to properly control the other viruses that NIDs treats – like HHV

6,

>CMV, EBV etc. And I pose the question…. Is the system is firing off producing

>antibodies to these viruses – which react to the typical tests, but in fact

it

>is trying to fight off something else – like a retrovirus?

>

> My son has constantly high IgG titres to EBV and CMV, but negative IGM titres

>for the last 12 years. An exhaustive study at UCLA by the Professor ,

>head of pediatric immunology (at Dr G’s recommendation) on my son’s EBC

could

>not, via PCR find any evidence of an EBV infection!

>

>

> This is what we are talking about

>

>

>

> _____

>

> From: <mailto:%40>

<mailto:%40> [mailto:

<mailto:%40> <mailto:%40> ] On Behalf Of

> Sent: Wednesday, January 19, 2011 12:02 PM

> <mailto:%40>

<mailto:%40>

> Subject: Re: XMRV in families affected by Autism and other Neuroimmune

>Diseases

>

> I am not sure what you are getting at but XMRV is a retrovirus...another

>retrovirus you may have heard of before? HIV. XMRV is a most likely a very

>serious pathogen, maybe even the root cause of immune dysfunction in autism,

CFS

>and more. This retrovirus has been found in the most aggressive forms of

>prostate cancer, and in breast cancer. This is probably one of the biggest

>discoveries related to autism yet.

>

> --- In <mailto:%40>

<mailto:%40> <mailto:%40> ,

erikadyan71@...

>wrote:

> >

> > Now what......?!

> >

> > I am not trying to stir the pot.....it is just that we ALL have viruses in

>our body. Correct me if I am wrong, but we don't even have cures for the

current

>viruses " treats " .....

> >

> > Just thinking out loud!!

> >

> >

> > .

> > Sent on the Sprint® Now Network from my BlackBerry®

> >

> > XMRV in families affected by Autism and other Neuroimmune

>Diseases

> >

> > I have attached a photo of the poster from Dr. Mikovits' presentation this

>past week. Entire families were tested for the XMRV retrovirus and

antibodies,

>and the evidence shows that almost the whole family is affected. This is an

>infectious disease that should be addressed and deserves much attention!

> > Â

> > Here is an explanation for the poster:

> > Â In each of the 6 clusters, the top 2 are the parents with the children

>underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

>Under each shape is their XMRV result. V= virus found in culture, Av = antibody

>test, NT=not tested

>

> >

> > Family 1, upper left corner †" One parent XMRV + for virus by culture

and

>XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

>symptomatic. Child with Autism, XMRV + for the virus.

>

> >

> > Family 2, top row, middle †" One parent with CFS and XMRV+ for antibody.

Two

>children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

>

> >

> > Family 3, upper right corner †" One parent with CFS and XMRV+ for virus

by

>culture. Child with Autism, XMRV+ for virus by culture.

>

> >

> > Family 4, bottom left corner †" One parent with CFS and XMRV + for virus

by

>culture. Two children with Autism, both XMRV+ for virus by culture.

>

> >

> > Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+

>by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

>

> >

> > Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody.

>Child with Autism, not tested for XMRV.

>

> >

> > A quick summary provided by Dr. Mikovits regarding families. She can

confirm,

>there is XMRV in children under the age of 5. To date they have confirmed XMRV

>in 16 of 17 families with neuroimmune disease amongst multiple members.

Finally,

>that more work needs to be done to confirm pathogenesis and transmission

> >

> >

> >

> >

> >

[Guest guest]

That may be true, but the virus would be transmitted from person to person in

bodily fluids, like HIV. So, if we all have it, my NT kids would have to tell

any future spouses and maybe that would be a deal breaker if they knew they

might have severely affected kids. You see my point?

Who wants to sign up for that?

The repercussions are very serious. There is currently no cure for any virus,

that I know of. Just things to supress them, like acyclovir and valtrex and for

HIV-other drugs. Viruses are insidious organisms that take over cell

replication to reproduce themselves in the body. Retroviruses are an even more

complicated version.

How do you guys feel about that? About repercussions for our children and

grandchildren?

________________________________

From: Lori <lbharris@...>

Sent: Thu, January 20, 2011 10:11:02 AM

Subject: RE: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

Isn`t that why we are to keep them on the ``` diet…to keep their immune

system cooled off…

Just from the diet alone, my other two children have been infinitely healthier

then their older brother, who we have learned so much through his poor health

over the years.

I know Dr. G encourages keeping triggers away from my other children. It

wouldn`t hurt anyone to follow the diet and eliminate a lot of the junk that is

in the average diet…especially kids! Ever look at the lunches other kids

bring

to school. Aside from cheese, cheese, cheese (all cow!), it is additives,

chemicals, colourings, sugar and generally garbage.

No wonder kids are getting ill at epidemic rates (ADD, ADHD, Autism etc…). I

think the virus (xmrv) is perhaps a big trigger, but a strong immune system

should be able to keep it under control. Otherwise we would see the pandemic

that experts keep warning us about.

Just me two cents…

Lori

_____

From: [mailto: ] On Behalf Of

Sent: January-20-11 8:39 AM

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

I've thought about that a lot too.

I think we have to weigh between the possibility that our NT kids could develop

CFS or lymphoma later, as well as have kids with autism later.

That's why a vaccine for this (gasp!) is going to be important - so that our

kids can have a better hope of having normal relationships later too...

________________________________

From: Sheryl <ssaturnino@... <mailto:ssaturnino%40> >

" <mailto:%40> "

< <mailto:%40> >

Sent: Wed, January 19, 2011 8:41:51 PM

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

While this research could be of huge importance to us, it frightens me to think

that my whole family might be affected. What does this mean for my 3 NT kids?

Their future spouses and children? Social stigma? Etc.

It's one thing to find out the prob., it's another to be told the problem, with

no permanent solution for my kids in the future. If this virus can be spread

through bodily fluids: drinking from the same cup or sexually, where does leave

them? I am very overwhelmed by the ramifications.

Sent from my iPhone

On Jan 19, 2011, at 6:26 PM, " Crosss " <crosswilsons@...

<mailto:crosswilsons%40socal.rr.com> > wrote:

> And its these types of retroviruses that we think trigger the immune

system’s

>inability to properly control the other viruses that NIDs treats – like HHV

6,

>CMV, EBV etc. And I pose the question…. Is the system is firing off producing

>antibodies to these viruses – which react to the typical tests, but in fact

it

>is trying to fight off something else – like a retrovirus?

>

> My son has constantly high IgG titres to EBV and CMV, but negative IGM titres

>for the last 12 years. An exhaustive study at UCLA by the Professor ,

>head of pediatric immunology (at Dr G’s recommendation) on my son’s EBC

could

>not, via PCR find any evidence of an EBV infection!

>

>

> This is what we are talking about

>

>

>

> _____

>

> From: <mailto:%40>

>[mailto: <mailto:%40> ] On Behalf Of

>

> Sent: Wednesday, January 19, 2011 12:02 PM

> <mailto:%40>

> Subject: Re: XMRV in families affected by Autism and other Neuroimmune

>Diseases

>

> I am not sure what you are getting at but XMRV is a retrovirus...another

>retrovirus you may have heard of before? HIV. XMRV is a most likely a very

>serious pathogen, maybe even the root cause of immune dysfunction in autism,

CFS

>

>and more. This retrovirus has been found in the most aggressive forms of

>prostate cancer, and in breast cancer. This is probably one of the biggest

>discoveries related to autism yet.

>

> --- In <mailto:%40>

><mailto:%40> , erikadyan71@...

>

>wrote:

> >

> > Now what......?!

> >

> > I am not trying to stir the pot.....it is just that we ALL have viruses in

>our body. Correct me if I am wrong, but we don't even have cures for the

current

>

>viruses " treats " .....

> >

> > Just thinking out loud!!

> >

> >

> > .

> > Sent on the Sprint® Now Network from my BlackBerry®

> >

> > XMRV in families affected by Autism and other Neuroimmune

>Diseases

> >

> > I have attached a photo of the poster from Dr. Mikovits' presentation this

>past week. Entire families were tested for the XMRV retrovirus and

antibodies,

>

>and the evidence shows that almost the whole family is affected. This is an

>infectious disease that should be addressed and deserves much attention!

> > Â

> > Here is an explanation for the poster:

> > Â In each of the 6 clusters, the top 2 are the parents with the children

>underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

>Under each shape is their XMRV result. V= virus found in culture, Av = antibody

>test, NT=not tested

>

> >

> > Family 1, upper left corner †" One parent XMRV + for virus by culture

and

>XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

>symptomatic. Child with Autism, XMRV + for the virus.

>

> >

> > Family 2, top row, middle †" One parent with CFS and XMRV+ for antibody.

Two

>

>children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

>

> >

> > Family 3, upper right corner †" One parent with CFS and XMRV+ for virus

by

>culture. Child with Autism, XMRV+ for virus by culture.

>

> >

> > Family 4, bottom left corner †" One parent with CFS and XMRV + for virus

by

>culture. Two children with Autism, both XMRV+ for virus by culture.

>

> >

> > Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+

>by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

>

> >

> > Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody.

>Child with Autism, not tested for XMRV.

>

> >

> > A quick summary provided by Dr. Mikovits regarding families. She can

confirm,

>

>there is XMRV in children under the age of 5. To date they have confirmed XMRV

>in 16 of 17 families with neuroimmune disease amongst multiple members.

Finally,

>

>that more work needs to be done to confirm pathogenesis and transmission

> >

> >

> >

> >

> >

[Guest guest]

Lori, I have 2 NT kids besides, and they developed food allergies too! So now

the whole family is on a GF/CF diet along with any other triggers we have

figured out along the way (like nuts, egg yolks) cause problems for us too. Its

very possible that the whole family is affected and we need to do everything we

can to keep inflammation under control until we figure out who is or isnt

affected by this retrovirus. I wonder if I passed on what I have to my kids

since I nursed them...

-Jen

>

> > And its these types of retroviruses that we think trigger the immune

system’s

> >inability to properly control the other viruses that NIDs treats †" like HHV

6,

> >CMV, EBV etc. And I pose the question…. Is the system is firing off

producing

> >antibodies to these viruses †" which react to the typical tests, but in fact

it

> >is trying to fight off something else †" like a retrovirus?

> >

> > My son has constantly high IgG titres to EBV and CMV, but negative IGM

titres

> >for the last 12 years. An exhaustive study at UCLA by the Professor ,

> >head of pediatric immunology (at Dr G’s recommendation) on my son’s EBC

could

> >not, via PCR find any evidence of an EBV infection!

> >

> >

> > This is what we are talking about

> >

> >

> >

> > _____

> >

> > From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

> > Sent: Wednesday, January 19, 2011 12:02 PM

> > <mailto:%40>

> > Subject: Re: XMRV in families affected by Autism and other

Neuroimmune

> >Diseases

> >

> > I am not sure what you are getting at but XMRV is a retrovirus...another

> >retrovirus you may have heard of before? HIV. XMRV is a most likely a very

> >serious pathogen, maybe even the root cause of immune dysfunction in autism,

CFS

> >and more. This retrovirus has been found in the most aggressive forms of

> >prostate cancer, and in breast cancer. This is probably one of the biggest

> >discoveries related to autism yet.

> >

> > --- In <mailto:%40>

<mailto:%40> , erikadyan71@

> >wrote:

> > >

> > > Now what......?!

> > >

> > > I am not trying to stir the pot.....it is just that we ALL have viruses in

> >our body. Correct me if I am wrong, but we don't even have cures for the

current

> >viruses " treats " .....

> > >

> > > Just thinking out loud!!

> > >

> > >

> > > .

> > > Sent on the Sprint® Now Network from my BlackBerry®

> > >

> > > XMRV in families affected by Autism and other Neuroimmune

> >Diseases

> > >

> > > I have attached a photo of the poster from Dr. Mikovits' presentation this

> >past week. Entire families were tested for the XMRV retrovirus and

antibodies,

> >and the evidence shows that almost the whole family is affected. This is

an

> >infectious disease that should be addressed and deserves much attention!

> > > Â

> > > Here is an explanation for the poster:

> > > Â In each of the 6 clusters, the top 2 are the parents with the children

> >underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

> >Under each shape is their XMRV result. V= virus found in culture, Av =

antibody

> >test, NT=not tested

> >

> > >

> > > Family 1, upper left corner †" One parent XMRV + for virus by culture

and

> >XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

> >symptomatic. Child with Autism, XMRV + for the virus.

> >

> > >

> > > Family 2, top row, middle †" One parent with CFS and XMRV+ for

antibody. Two

> >children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

> >

> > >

> > > Family 3, upper right corner †" One parent with CFS and XMRV+ for

virus by

> >culture. Child with Autism, XMRV+ for virus by culture.

> >

> > >

> > > Family 4, bottom left corner †" One parent with CFS and XMRV + for

virus by

> >culture. Two children with Autism, both XMRV+ for virus by culture.

> >

> > >

> > > Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+

> >by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

> >

> > >

> > > Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody.

> >Child with Autism, not tested for XMRV.

> >

> > >

> > > A quick summary provided by Dr. Mikovits regarding families. She can

confirm,

> >there is XMRV in children under the age of 5. To date they have confirmed

XMRV

> >in 16 of 17 families with neuroimmune disease amongst multiple members.

Finally,

> >that more work needs to be done to confirm pathogenesis and transmission

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Well...

Even if XMRV is a factor here, Dr G has never had a child born under his care

who has a sibling w/autism or a Mom w/CFS develop autism if they followed low

allergy/ diet while pregnant, plus the first two years, and did an

alternate

vaccine schedule.  So even if we have XMRV, there should be things we can do to

prevent future children from becoming ill.   Just like nowadays people can be

HIV+ for decades and yet still be vibrantly healthy.

But I do hope a vaccine would become available for my boys' future wives.  They

have 10+ years to get there for us.  If vaccines end up not causing autism,

then

maybe the vaccine wouldn't be the worst thing...

HTH

________________________________

From: Sheryl Saturnino <ssaturnino@...>

Sent: Thu, January 20, 2011 1:24:06 PM

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

 

That may be true, but the virus would be transmitted from person to person in

bodily fluids, like HIV. So, if we all have it, my NT kids would have to tell

any future spouses and maybe that would be a deal breaker if they knew they

might have severely affected kids. You see my point?

Who wants to sign up for that?

The repercussions are very serious. There is currently no cure for any virus,

that I know of. Just things to supress them, like acyclovir and valtrex and for

HIV-other drugs. Viruses are insidious organisms that take over cell

replication to reproduce themselves in the body. Retroviruses are an even more

complicated version.

How do you guys feel about that? About repercussions for our children and

grandchildren?

________________________________

From: Lori <lbharris@...>

Sent: Thu, January 20, 2011 10:11:02 AM

Subject: RE: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

Isn`t that why we are to keep them on the ``` diet…to keep their immune

system cooled off…

Just from the diet alone, my other two children have been infinitely healthier

then their older brother, who we have learned so much through his poor health

over the years.

I know Dr. G encourages keeping triggers away from my other children. It

wouldn`t hurt anyone to follow the diet and eliminate a lot of the junk that is

in the average diet…especially kids! Ever look at the lunches other kids bring

to school. Aside from cheese, cheese, cheese (all cow!), it is additives,

chemicals, colourings, sugar and generally garbage.

No wonder kids are getting ill at epidemic rates (ADD, ADHD, Autism etc…). I

think the virus (xmrv) is perhaps a big trigger, but a strong immune system

should be able to keep it under control. Otherwise we would see the pandemic

that experts keep warning us about.

Just me two cents…

Lori

_____

From: [mailto: ] On Behalf Of

Sent: January-20-11 8:39 AM

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

I've thought about that a lot too.

I think we have to weigh between the possibility that our NT kids could develop

CFS or lymphoma later, as well as have kids with autism later.

That's why a vaccine for this (gasp!) is going to be important - so that our

kids can have a better hope of having normal relationships later too...

________________________________

From: Sheryl <ssaturnino@... <mailto:ssaturnino%40> >

" <mailto:%40> "

< <mailto:%40> >

Sent: Wed, January 19, 2011 8:41:51 PM

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

While this research could be of huge importance to us, it frightens me to think

that my whole family might be affected. What does this mean for my 3 NT kids?

Their future spouses and children? Social stigma? Etc.

It's one thing to find out the prob., it's another to be told the problem, with

no permanent solution for my kids in the future. If this virus can be spread

through bodily fluids: drinking from the same cup or sexually, where does leave

them? I am very overwhelmed by the ramifications.

Sent from my iPhone

On Jan 19, 2011, at 6:26 PM, " Crosss " <crosswilsons@...

<mailto:crosswilsons%40socal.rr.com> > wrote:

> And its these types of retroviruses that we think trigger the immune

system’s

>inability to properly control the other viruses that NIDs treats – like HHV

6,

>CMV, EBV etc. And I pose the question…. Is the system is firing off producing

>antibodies to these viruses – which react to the typical tests, but in fact

it

>is trying to fight off something else – like a retrovirus?

>

> My son has constantly high IgG titres to EBV and CMV, but negative IGM titres

>for the last 12 years. An exhaustive study at UCLA by the Professor ,

>head of pediatric immunology (at Dr G’s recommendation) on my son’s EBC

could

>not, via PCR find any evidence of an EBV infection!

>

>

> This is what we are talking about

>

>

>

> _____

>

> From: <mailto:%40>

>[mailto: <mailto:%40> ] On Behalf Of

>

> Sent: Wednesday, January 19, 2011 12:02 PM

> <mailto:%40>

> Subject: Re: XMRV in families affected by Autism and other Neuroimmune

>Diseases

>

> I am not sure what you are getting at but XMRV is a retrovirus...another

>retrovirus you may have heard of before? HIV. XMRV is a most likely a very

>serious pathogen, maybe even the root cause of immune dysfunction in autism,

CFS

>

>

>and more. This retrovirus has been found in the most aggressive forms of

>prostate cancer, and in breast cancer. This is probably one of the biggest

>discoveries related to autism yet.

>

> --- In <mailto:%40>

><mailto:%40> , erikadyan71@...

>

>wrote:

> >

> > Now what......?!

> >

> > I am not trying to stir the pot.....it is just that we ALL have viruses in

>our body. Correct me if I am wrong, but we don't even have cures for the

current

>

>

>viruses " treats " .....

> >

> > Just thinking out loud!!

> >

> >

> > .

> > Sent on the Sprint® Now Network from my BlackBerry®

> >

> > XMRV in families affected by Autism and other Neuroimmune

>Diseases

> >

> > I have attached a photo of the poster from Dr. Mikovits' presentation this

>past week. Entire families were tested for the XMRV retrovirus and

antibodies,

>

>

>and the evidence shows that almost the whole family is affected. This is an

>infectious disease that should be addressed and deserves much attention!

> > Â

> > Here is an explanation for the poster:

> > Â In each of the 6 clusters, the top 2 are the parents with the children

>underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

>Under each shape is their XMRV result. V= virus found in culture, Av = antibody

>test, NT=not tested

>

> >

> > Family 1, upper left corner †" One parent XMRV + for virus by culture

and

>XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

>symptomatic. Child with Autism, XMRV + for the virus.

>

> >

> > Family 2, top row, middle †" One parent with CFS and XMRV+ for antibody.

Two

>

>

>children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

>

> >

> > Family 3, upper right corner †" One parent with CFS and XMRV+ for virus

by

>culture. Child with Autism, XMRV+ for virus by culture.

>

> >

> > Family 4, bottom left corner †" One parent with CFS and XMRV + for virus

by

>culture. Two children with Autism, both XMRV+ for virus by culture.

>

> >

> > Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+

>by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

>

> >

> > Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody.

>Child with Autism, not tested for XMRV.

>

> >

> > A quick summary provided by Dr. Mikovits regarding families. She can

confirm,

>

>

>there is XMRV in children under the age of 5. To date they have confirmed XMRV

>in 16 of 17 families with neuroimmune disease amongst multiple members.

Finally,

>

>

>that more work needs to be done to confirm pathogenesis and transmission

> >

> >

> >

> >

> >

[Guest guest]

As far as XMRV and allergies it will effect adult differently than kids. Most

kids out grow allergies at puberty. Adult without allergies probably will not be

as compromised.

Just a thought

Bill

________________________________

From: <jlhank80@...>

Sent: Thu, January 20, 2011 3:24:13 PM

Subject: Re: XMRV in families affected by Autism and other Neuroimmune

Diseases

Lori, I have 2 NT kids besides, and they developed food allergies too! So now

the whole family is on a GF/CF diet along with any other triggers we have

figured out along the way (like nuts, egg yolks) cause problems for us too. Its

very possible that the whole family is affected and we need to do everything we

can to keep inflammation under control until we figure out who is or isnt

affected by this retrovirus. I wonder if I passed on what I have to my kids

since I nursed them...

-Jen

>

> > And its these types of retroviruses that we think trigger the immune

>system’s

>

> >inability to properly control the other viruses that NIDs treats †" like

HHV

>6,

>

> >CMV, EBV etc. And I pose the question…. Is the system is firing off

>producing

>

> >antibodies to these viruses †" which react to the typical tests, but in

fact

>it

>

> >is trying to fight off something else †" like a retrovirus?

> >

> > My son has constantly high IgG titres to EBV and CMV, but negative IGM

titres

>

> >for the last 12 years. An exhaustive study at UCLA by the Professor ,

> >head of pediatric immunology (at Dr G’s recommendation) on my

son’s EBC

>could

>

> >not, via PCR find any evidence of an EBV infection!

> >

> >

> > This is what we are talking about

> >

> >

> >

> > _____

> >

> > From: <mailto:%40>

>[mailto: <mailto:%40> ] On Behalf Of

>

> > Sent: Wednesday, January 19, 2011 12:02 PM

> > <mailto:%40>

> > Subject: Re: XMRV in families affected by Autism and other

Neuroimmune

>

> >Diseases

> >

> > I am not sure what you are getting at but XMRV is a retrovirus...another

> >retrovirus you may have heard of before? HIV. XMRV is a most likely a very

> >serious pathogen, maybe even the root cause of immune dysfunction in autism,

>CFS

>

> >and more. This retrovirus has been found in the most aggressive forms of

> >prostate cancer, and in breast cancer. This is probably one of the biggest

> >discoveries related to autism yet.

> >

> > --- In <mailto:%40>

><mailto:%40> , erikadyan71@

>

> >wrote:

> > >

> > > Now what......?!

> > >

> > > I am not trying to stir the pot.....it is just that we ALL have viruses in

> >our body. Correct me if I am wrong, but we don't even have cures for the

>current

>

> >viruses " treats " .....

> > >

> > > Just thinking out loud!!

> > >

> > >

> > > .

> > > Sent on the Sprint® Now Network from my BlackBerry®

> > >

> > > XMRV in families affected by Autism and other Neuroimmune

> >Diseases

> > >

> > > I have attached a photo of the poster from Dr. Mikovits' presentation this

> >past week. Entire families were tested for the XMRV retrovirus and

>antibodies,

>

> >and the evidence shows that almost the whole family is affected.Â

This is

>an

>

> >infectious disease that should be addressed and deserves much attention!

> > > Â

> > > Here is an explanation for the poster:

> > > Â In each of the 6 clusters, the top 2 are the parents with the

children

> >underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

> >Under each shape is their XMRV result. V= virus found in culture, Av =

>antibody

>

> >test, NT=not tested

> >

> > >

> > > Family 1, upper left corner †" One parent XMRV + for virus by

culture

>and

>

> >XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

> >symptomatic. Child with Autism, XMRV + for the virus.

> >

> > >

> > > Family 2, top row, middle †" One parent with CFS and XMRV+ for

>antibody. Two

>

> >children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

> >

> > >

> > > Family 3, upper right corner †" One parent with CFS and XMRV+

for virus

>by

>

> >culture. Child with Autism, XMRV+ for virus by culture.

> >

> > >

> > > Family 4, bottom left corner †" One parent with CFS and XMRV +

for

>virus by

>

> >culture. Two children with Autism, both XMRV+ for virus by culture.

> >

> > >

> > > Family 5, bottom row, middle †" One parent with CFS,

Fibromyalgia and

>XMRV+

>

> >by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

> >

> > >

> > > Family 6, bottom right corner †" One parent with CFS and XMRV+

by

>antibody.

>

> >Child with Autism, not tested for XMRV.

> >

> > >

> > > A quick summary provided by Dr. Mikovits regarding families. She can

>confirm,

>

> >there is XMRV in children under the age of 5. To date they have confirmed

XMRV

>

> >in 16 of 17 families with neuroimmune disease amongst multiple members.

>Finally,

>

> >that more work needs to be done to confirm pathogenesis and transmission

> > >

> > >

> > >

> > >

> > >

[Guest guest]

So dr. Goldberg never had a sibling of his patients become autistic? I had my

newborn a while ago and I do follow his diet throughout pregnancy and now that

I'm nursing which I plan to do for 2 years. I know dr. G reassures about

vaccines but my gut instincts tells me not to vaccinate. My older son who was

diagnosed at age 2 did not do well at all with vaccines. It was after MMR that

we went to the we that night for a 105 temp and he never spoke again. Toty

regressed since then. Would you still vaccinate your baby if you experienced

what I did???

On Jan 20, 2011, at 12:43 PM, <thecolemans4@...> wrote:

> Well...

> Even if XMRV is a factor here, Dr G has never had a child born under his care

> who has a sibling w/autism or a Mom w/CFS develop autism if they followed low

> allergy/ diet while pregnant, plus the first two years, and did an

alternate

> vaccine schedule. So even if we have XMRV, there should be things we can do

to

> prevent future children from becoming ill. Just like nowadays people can be

> HIV+ for decades and yet still be vibrantly healthy.

> But I do hope a vaccine would become available for my boys' future wives.

They

> have 10+ years to get there for us. If vaccines end up not causing autism,

then

> maybe the vaccine wouldn't be the worst thing...

> HTH

>

>

> ________________________________

> From: Sheryl Saturnino <ssaturnino@...>

>

> Sent: Thu, January 20, 2011 1:24:06 PM

> Subject: Re: Re: XMRV in families affected by Autism and other

> Neuroimmune Diseases

>

>

> That may be true, but the virus would be transmitted from person to person in

> bodily fluids, like HIV. So, if we all have it, my NT kids would have to tell

> any future spouses and maybe that would be a deal breaker if they knew they

> might have severely affected kids. You see my point?

> Who wants to sign up for that?

>

> The repercussions are very serious. There is currently no cure for any virus,

> that I know of. Just things to supress them, like acyclovir and valtrex and

for

> HIV-other drugs. Viruses are insidious organisms that take over cell

> replication to reproduce themselves in the body. Retroviruses are an even more

> complicated version.

>

> How do you guys feel about that? About repercussions for our children and

> grandchildren?

>

> ________________________________

> From: Lori <lbharris@...>

>

> Sent: Thu, January 20, 2011 10:11:02 AM

> Subject: RE: Re: XMRV in families affected by Autism and other

> Neuroimmune Diseases

>

> Isn`t that why we are to keep them on the ``` diet…to keep their immune

> system cooled off…

>

> Just from the diet alone, my other two children have been infinitely healthier

> then their older brother, who we have learned so much through his poor health

> over the years.

>

> I know Dr. G encourages keeping triggers away from my other children. It

> wouldn`t hurt anyone to follow the diet and eliminate a lot of the junk that

is

> in the average diet…especially kids! Ever look at the lunches other kids

bring

> to school. Aside from cheese, cheese, cheese (all cow!), it is additives,

> chemicals, colourings, sugar and generally garbage.

>

> No wonder kids are getting ill at epidemic rates (ADD, ADHD, Autism etc…). I

> think the virus (xmrv) is perhaps a big trigger, but a strong immune system

> should be able to keep it under control. Otherwise we would see the pandemic

> that experts keep warning us about.

>

> Just me two cents…

>

> Lori

>

> _____

>

> From: [mailto: ] On Behalf Of

>

> Sent: January-20-11 8:39 AM

>

> Subject: Re: Re: XMRV in families affected by Autism and other

> Neuroimmune Diseases

>

> I've thought about that a lot too.

>

> I think we have to weigh between the possibility that our NT kids could

develop

> CFS or lymphoma later, as well as have kids with autism later.

>

> That's why a vaccine for this (gasp!) is going to be important - so that our

> kids can have a better hope of having normal relationships later too...

>

>

>

> ________________________________

> From: Sheryl <ssaturnino@... <mailto:ssaturnino%40> >

> " <mailto:%40> "

> < <mailto:%40> >

> Sent: Wed, January 19, 2011 8:41:51 PM

> Subject: Re: Re: XMRV in families affected by Autism and other

> Neuroimmune Diseases

>

> While this research could be of huge importance to us, it frightens me to

think

> that my whole family might be affected. What does this mean for my 3 NT kids?

> Their future spouses and children? Social stigma? Etc.

>

> It's one thing to find out the prob., it's another to be told the problem,

with

> no permanent solution for my kids in the future. If this virus can be spread

> through bodily fluids: drinking from the same cup or sexually, where does

leave

> them? I am very overwhelmed by the ramifications.

>

> Sent from my iPhone

>

> On Jan 19, 2011, at 6:26 PM, " Crosss " <crosswilsons@...

> <mailto:crosswilsons%40socal.rr.com> > wrote:

>

> > And its these types of retroviruses that we think trigger the immune

system’s

> >inability to properly control the other viruses that NIDs treats – like HHV

6,

> >CMV, EBV etc. And I pose the question…. Is the system is firing off

producing

> >antibodies to these viruses – which react to the typical tests, but in fact

it

> >is trying to fight off something else – like a retrovirus?

> >

> > My son has constantly high IgG titres to EBV and CMV, but negative IGM

titres

> >for the last 12 years. An exhaustive study at UCLA by the Professor ,

> >head of pediatric immunology (at Dr G’s recommendation) on my son’s EBC

could

> >not, via PCR find any evidence of an EBV infection!

> >

> >

> > This is what we are talking about

> >

> >

> >

> > _____

> >

> > From: <mailto:%40>

> >[mailto: <mailto:%40> ] On Behalf Of

> >

> > Sent: Wednesday, January 19, 2011 12:02 PM

> > <mailto:%40>

> > Subject: Re: XMRV in families affected by Autism and other

Neuroimmune

> >Diseases

> >

> > I am not sure what you are getting at but XMRV is a retrovirus...another

> >retrovirus you may have heard of before? HIV. XMRV is a most likely a very

> >serious pathogen, maybe even the root cause of immune dysfunction in autism,

CFS

> >

> >

> >and more. This retrovirus has been found in the most aggressive forms of

> >prostate cancer, and in breast cancer. This is probably one of the biggest

> >discoveries related to autism yet.

> >

> > --- In <mailto:%40>

> ><mailto:%40> , erikadyan71@...

> >

> >wrote:

> > >

> > > Now what......?!

> > >

> > > I am not trying to stir the pot.....it is just that we ALL have viruses in

> >our body. Correct me if I am wrong, but we don't even have cures for the

current

> >

> >

> >viruses " treats " .....

> > >

> > > Just thinking out loud!!

> > >

> > >

> > > .

> > > Sent on the Sprint® Now Network from my BlackBerry®

> > >

> > > XMRV in families affected by Autism and other Neuroimmune

> >Diseases

> > >

> > > I have attached a photo of the poster from Dr. Mikovits' presentation this

> >past week. Entire families were tested for the XMRV retrovirus and

antibodies,

> >

> >

> >and the evidence shows that almost the whole family is affected. This is

an

> >infectious disease that should be addressed and deserves much attention!

> > > Â

> > > Here is an explanation for the poster:

> > > Â In each of the 6 clusters, the top 2 are the parents with the children

> >underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

> >Under each shape is their XMRV result. V= virus found in culture, Av =

antibody

>

> >test, NT=not tested

> >

> > >

> > > Family 1, upper left corner †" One parent XMRV + for virus by culture

and

> >XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

> >symptomatic. Child with Autism, XMRV + for the virus.

> >

> > >

> > > Family 2, top row, middle †" One parent with CFS and XMRV+ for

antibody. Two

> >

> >

> >children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

> >

> > >

> > > Family 3, upper right corner †" One parent with CFS and XMRV+ for

virus by

> >culture. Child with Autism, XMRV+ for virus by culture.

> >

> > >

> > > Family 4, bottom left corner †" One parent with CFS and XMRV + for

virus by

>

> >culture. Two children with Autism, both XMRV+ for virus by culture.

> >

> > >

> > > Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+

>

> >by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

> >

> > >

> > > Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody.

>

> >Child with Autism, not tested for XMRV.

> >

> > >

> > > A quick summary provided by Dr. Mikovits regarding families. She can

confirm,

> >

> >

> >there is XMRV in children under the age of 5. To date they have confirmed

XMRV

> >in 16 of 17 families with neuroimmune disease amongst multiple members.

Finally,

> >

> >

> >that more work needs to be done to confirm pathogenesis and transmission

> > >

> > >

> > >

> > >

> > >

[Guest guest]

You are right, Lori. I am amazed at what my kids ingested before I started the

diet. Since, we began the diet and Kyodophilus 6 months ago, my son's IgA

(which was almost non-existent) has normalized and he regained language, eye

contact, imitation play, etc. Both my boys are also better able to keep other

viruses in check now.

_____

From: [mailto: ] On Behalf Of Lori

Sent: January 20, 2011 1:11 PM

Subject: RE: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

Isn`t that why we are to keep them on the ``` diet…to keep their immune

system cooled off…

Just from the diet alone, my other two children have been infinitely healthier

then their older brother, who we have learned so much through his poor health

over the years.

I know Dr. G encourages keeping triggers away from my other children. It

wouldn`t hurt anyone to follow the diet and eliminate a lot of the junk that is

in the average diet…especially kids! Ever look at the lunches other kids bring

to school. Aside from cheese, cheese, cheese (all cow!), it is additives,

chemicals, colourings, sugar and generally garbage.

No wonder kids are getting ill at epidemic rates (ADD, ADHD, Autism etc…). I

think the virus (xmrv) is perhaps a big trigger, but a strong immune system

should be able to keep it under control. Otherwise we would see the pandemic

that experts keep warning us about.

Just me two cents…

Lori

_____

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Sent: January-20-11 8:39 AM

<mailto:%40>

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

I've thought about that a lot too.

I think we have to weigh between the possibility that our NT kids could develop

CFS or lymphoma later, as well as have kids with autism later.

That's why a vaccine for this (gasp!) is going to be important - so that our

kids can have a better hope of having normal relationships later too...

________________________________

From: Sheryl <ssaturnino@... <mailto:ssaturnino%40>

<mailto:ssaturnino%40> >

" <mailto:%40>

<mailto:%40> " <

<mailto:%40> <mailto:%40> >

Sent: Wed, January 19, 2011 8:41:51 PM

Subject: Re: Re: XMRV in families affected by Autism and other

Neuroimmune Diseases

While this research could be of huge importance to us, it frightens me to think

that my whole family might be affected. What does this mean for my 3 NT kids?

Their future spouses and children? Social stigma? Etc.

It's one thing to find out the prob., it's another to be told the problem, with

no permanent solution for my kids in the future. If this virus can be spread

through bodily fluids: drinking from the same cup or sexually, where does leave

them? I am very overwhelmed by the ramifications.

Sent from my iPhone

On Jan 19, 2011, at 6:26 PM, " Crosss " <crosswilsons@...

<mailto:crosswilsons%40socal.rr.com> <mailto:crosswilsons%40socal.rr.com> >

wrote:

> And its these types of retroviruses that we think trigger the immune

system’s

>inability to properly control the other viruses that NIDs treats – like HHV

6,

>CMV, EBV etc. And I pose the question…. Is the system is firing off producing

>antibodies to these viruses – which react to the typical tests, but in fact

it

>is trying to fight off something else – like a retrovirus?

>

> My son has constantly high IgG titres to EBV and CMV, but negative IGM titres

>for the last 12 years. An exhaustive study at UCLA by the Professor ,

>head of pediatric immunology (at Dr G’s recommendation) on my son’s EBC

could

>not, via PCR find any evidence of an EBV infection!

>

>

> This is what we are talking about

>

>

>

> _____

>

> From: <mailto:%40>

<mailto:%40> [mailto:

<mailto:%40> <mailto:%40> ] On Behalf Of

> Sent: Wednesday, January 19, 2011 12:02 PM

> <mailto:%40>

<mailto:%40>

> Subject: Re: XMRV in families affected by Autism and other Neuroimmune

>Diseases

>

> I am not sure what you are getting at but XMRV is a retrovirus...another

>retrovirus you may have heard of before? HIV. XMRV is a most likely a very

>serious pathogen, maybe even the root cause of immune dysfunction in autism,

CFS

>and more. This retrovirus has been found in the most aggressive forms of

>prostate cancer, and in breast cancer. This is probably one of the biggest

>discoveries related to autism yet.

>

> --- In <mailto:%40>

<mailto:%40> <mailto:%40> ,

erikadyan71@...

>wrote:

> >

> > Now what......?!

> >

> > I am not trying to stir the pot.....it is just that we ALL have viruses in

>our body. Correct me if I am wrong, but we don't even have cures for the

current

>viruses " treats " .....

> >

> > Just thinking out loud!!

> >

> >

> > .

> > Sent on the Sprint® Now Network from my BlackBerry®

> >

> > XMRV in families affected by Autism and other Neuroimmune

>Diseases

> >

> > I have attached a photo of the poster from Dr. Mikovits' presentation this

>past week. Entire families were tested for the XMRV retrovirus and

antibodies,

>and the evidence shows that almost the whole family is affected. This is an

>infectious disease that should be addressed and deserves much attention!

> > Â

> > Here is an explanation for the poster:

> > Â In each of the 6 clusters, the top 2 are the parents with the children

>underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

>Under each shape is their XMRV result. V= virus found in culture, Av = antibody

>test, NT=not tested

>

> >

> > Family 1, upper left corner †" One parent XMRV + for virus by culture

and

>XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

>symptomatic. Child with Autism, XMRV + for the virus.

>

> >

> > Family 2, top row, middle †" One parent with CFS and XMRV+ for antibody.

Two

>children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

>

> >

> > Family 3, upper right corner †" One parent with CFS and XMRV+ for virus

by

>culture. Child with Autism, XMRV+ for virus by culture.

>

> >

> > Family 4, bottom left corner †" One parent with CFS and XMRV + for virus

by

>culture. Two children with Autism, both XMRV+ for virus by culture.

>

> >

> > Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and

XMRV+

>by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

>

> >

> > Family 6, bottom right corner †" One parent with CFS and XMRV+ by

antibody.

>Child with Autism, not tested for XMRV.

>

> >

> > A quick summary provided by Dr. Mikovits regarding families. She can

confirm,

>there is XMRV in children under the age of 5. To date they have confirmed XMRV

>in 16 of 17 families with neuroimmune disease amongst multiple members.

Finally,

>that more work needs to be done to confirm pathogenesis and transmission

> >

> >

> >

> >

> >

[Guest guest]

Bill, allergies isn't the best word for this, sensitivities or intolerances are

better words...I have suddenly developed food " allergies " myself. We will learn

soon the specific pathologies caused by XMRV, but it looks as if it does cause

immune system dysfunction and it may be the underlying reason for Multiple

Chemical Sensitivity (diagnosed in adults).

I have many personal friends who are confirmed XMRV positive and they suffer

from horrible allergies, hives, chemical sensitivities and more. I know that is

anecdotal but time will tell.

Not that everyone who has the retrovirus will have allergy issues but it could

be one manifestation.

> >

> > > And its these types of retroviruses that we think trigger the immune

> >system’s

> >

> > >inability to properly control the other viruses that NIDs treats †"

like HHV

> >6,

> >

> > >CMV, EBV etc. And I pose the question…. Is the system is firing off

> >producing

> >

> > >antibodies to these viruses †" which react to the typical tests, but in

fact

> >it

> >

> > >is trying to fight off something else †" like a retrovirus?

> > >

> > > My son has constantly high IgG titres to EBV and CMV, but negative IGM

titres

> >

> > >for the last 12 years. An exhaustive study at UCLA by the Professor

,

> > >head of pediatric immunology (at Dr G’s recommendation) on my

son’s EBC

> >could

> >

> > >not, via PCR find any evidence of an EBV infection!

> > >

> > >

> > > This is what we are talking about

> > >

> > >

> > >

> > > _____

> > >

> > > From: <mailto:%40>

> >[mailto: <mailto:%40> ] On Behalf Of

> >

> > > Sent: Wednesday, January 19, 2011 12:02 PM

> > > <mailto:%40>

> > > Subject: Re: XMRV in families affected by Autism and other

Neuroimmune

> >

> > >Diseases

> > >

> > > I am not sure what you are getting at but XMRV is a retrovirus...another

> > >retrovirus you may have heard of before? HIV. XMRV is a most likely a very

> > >serious pathogen, maybe even the root cause of immune dysfunction in

autism,

> >CFS

> >

> > >and more. This retrovirus has been found in the most aggressive forms of

> > >prostate cancer, and in breast cancer. This is probably one of the biggest

> > >discoveries related to autism yet.

> > >

> > > --- In <mailto:%40>

> ><mailto:%40> , erikadyan71@

> >

> > >wrote:

> > > >

> > > > Now what......?!

> > > >

> > > > I am not trying to stir the pot.....it is just that we ALL have viruses

in

>

> > >our body. Correct me if I am wrong, but we don't even have cures for the

> >current

> >

> > >viruses " treats " .....

> > > >

> > > > Just thinking out loud!!

> > > >

> > > >

> > > > .

> > > > Sent on the Sprint® Now Network from my BlackBerry®

> > > >

> > > > XMRV in families affected by Autism and other

Neuroimmune

> > >Diseases

> > > >

> > > > I have attached a photo of the poster from Dr. Mikovits' presentation

this

>

> > >past week. Entire families were tested for the XMRV retrovirus

and

> >antibodies,

> >

> > >and the evidence shows that almost the whole family is affected.Â

This is

> >an

> >

> > >infectious disease that should be addressed and deserves much attention!

> > > > Â

> > > > Here is an explanation for the poster:

> > > > Â In each of the 6 clusters, the top 2 are the parents with the

children

> > >underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN =

AUTISM.

> > >Under each shape is their XMRV result. V= virus found in culture, Av =

> >antibody

> >

> > >test, NT=not tested

> > >

> > > >

> > > > Family 1, upper left corner †" One parent XMRV + for virus by

culture

> >and

> >

> > >XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

> > >symptomatic. Child with Autism, XMRV + for the virus.

> > >

> > > >

> > > > Family 2, top row, middle †" One parent with CFS and XMRV+ for

> >antibody. Two

> >

> > >children with Autism; one XMRV+ for virus by culture, one XMRV+ by

antibody.

> > >

> > > >

> > > > Family 3, upper right corner †" One parent with CFS and XMRV+

for virus

> >by

> >

> > >culture. Child with Autism, XMRV+ for virus by culture.

> > >

> > > >

> > > > Family 4, bottom left corner †" One parent with CFS and XMRV +

for

> >virus by

> >

> > >culture. Two children with Autism, both XMRV+ for virus by culture.

> > >

> > > >

> > > > Family 5, bottom row, middle †" One parent with CFS,

Fibromyalgia and

> >XMRV+

> >

> > >by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

> > >

> > > >

> > > > Family 6, bottom right corner †" One parent with CFS and XMRV+

by

> >antibody.

> >

> > >Child with Autism, not tested for XMRV.

> > >

> > > >

> > > > A quick summary provided by Dr. Mikovits regarding families. She can

> >confirm,

> >

> > >there is XMRV in children under the age of 5. To date they have confirmed

XMRV

> >

> > >in 16 of 17 families with neuroimmune disease amongst multiple members.

> >Finally,

> >

> > >that more work needs to be done to confirm pathogenesis and transmission

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

I agree. As my illness became worse, I have ME/CFS and Lyme, I became very

sensitive to many chemicals. They would make me very ill. As I began treatment

and strengthened my immune system this chemical sensitivity disappeared. Now

that I have stopped treatment and am getting worse again…I notice this

chemical sensitivity coming back. I agree that this is not a typical allergy. I

wonder , if we can get the underlying cause under control, if these food and

chemical sensitivities will disappear?

Jill

From: [mailto: ] On Behalf Of

Sent: Thursday, January 20, 2011 7:47 PM

Subject: Re: XMRV in families affected by Autism and other Neuroimmune

Diseases

Bill, allergies isn't the best word for this, sensitivities or intolerances are

better words...I have suddenly developed food " allergies " myself. We will learn

soon the specific pathologies caused by XMRV, but it looks as if it does cause

immune system dysfunction and it may be the underlying reason for Multiple

Chemical Sensitivity (diagnosed in adults).

I have many personal friends who are confirmed XMRV positive and they suffer

from horrible allergies, hives, chemical sensitivities and more. I know that is

anecdotal but time will tell.

Not that everyone who has the retrovirus will have allergy issues but it could

be one manifestation.

> >

> > > And its these types of retroviruses that we think trigger the immune

> >system’s

> >

> > >inability to properly control the other viruses that NIDs treats

†" like HHV

> >6,

> >

> > >CMV, EBV etc. And I pose the question…. Is the system is

firing off

> >producing

> >

> > >antibodies to these viruses †" which react to the typical tests,

but in fact

> >it

> >

> > >is trying to fight off something else †" like a retrovirus?

> > >

> > > My son has constantly high IgG titres to EBV and CMV, but negative IGM

titres

> >

> > >for the last 12 years. An exhaustive study at UCLA by the Professor

,

> > >head of pediatric immunology (at Dr G’s recommendation) on

my son’s EBC

> >could

> >

> > >not, via PCR find any evidence of an EBV infection!

> > >

> > >

> > > This is what we are talking about

> > >

> > >

> > >

> > > _____

> > >

> > > From: <mailto:%40>

<mailto:%40>

> >[mailto: <mailto:%40>

<mailto:%40> ] On Behalf Of

> >

> > > Sent: Wednesday, January 19, 2011 12:02 PM

> > > <mailto:%40>

<mailto:%40>

> > > Subject: Re: XMRV in families affected by Autism and other

Neuroimmune

> >

> > >Diseases

> > >

> > > I am not sure what you are getting at but XMRV is a retrovirus...another

> > >retrovirus you may have heard of before? HIV. XMRV is a most likely a very

> > >serious pathogen, maybe even the root cause of immune dysfunction in

autism,

> >CFS

> >

> > >and more. This retrovirus has been found in the most aggressive forms of

> > >prostate cancer, and in breast cancer. This is probably one of the biggest

> > >discoveries related to autism yet.

> > >

> > > --- In <mailto:%40>

<mailto:%40>

> ><mailto:%40> , erikadyan71@

> >

> > >wrote:

> > > >

> > > > Now what......?!

> > > >

> > > > I am not trying to stir the pot.....it is just that we ALL have viruses

in

>

> > >our body. Correct me if I am wrong, but we don't even have cures for the

> >current

> >

> > >viruses " treats " .....

> > > >

> > > > Just thinking out loud!!

> > > >

> > > >

> > > > .

> > > > Sent on the Sprint® Now Network from my

BlackBerry®

> > > >

> > > > XMRV in families affected by Autism and other

Neuroimmune

> > >Diseases

> > > >

> > > > I have attached a photo of the poster from Dr. Mikovits' presentation

this

>

> > >past week. Entire families were tested for the XMRVÂ

retrovirus and

> >antibodies,

> >

> > >and the evidence shows that almost the whole family is

affected. This is

> >an

> >

> > >infectious disease that should be addressed and deserves much attention!

> > > > Â

> > > > Here is an explanation for the poster:

> > > > Â In each of the 6 clusters, the top 2 are the parents with

the children

> > >underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN =

AUTISM.

> > >Under each shape is their XMRV result. V= virus found in culture, Av =

> >antibody

> >

> > >test, NT=not tested

> > >

> > > >

> > > > Family 1, upper left corner †" One parent XMRV +

for virus by culture

> >and

> >

> > >XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

> > >symptomatic. Child with Autism, XMRV + for the virus.

> > >

> > > >

> > > > Family 2, top row, middle †" One parent with CFS

and XMRV+ for

> >antibody. Two

> >

> > >children with Autism; one XMRV+ for virus by culture, one XMRV+ by

antibody.

> > >

> > > >

> > > > Family 3, upper right corner †" One parent with

CFS and XMRV+ for virus

> >by

> >

> > >culture. Child with Autism, XMRV+ for virus by culture.

> > >

> > > >

> > > > Family 4, bottom left corner †" One parent with

CFS and XMRV + for

> >virus by

> >

> > >culture. Two children with Autism, both XMRV+ for virus by culture.

> > >

> > > >

> > > > Family 5, bottom row, middle †" One parent with

CFS, Fibromyalgia and

> >XMRV+

> >

> > >by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

> > >

> > > >

> > > > Family 6, bottom right corner †" One parent with

CFS and XMRV+ by

> >antibody.

> >

> > >Child with Autism, not tested for XMRV.

> > >

> > > >

> > > > A quick summary provided by Dr. Mikovits regarding families. She can

> >confirm,

> >

> > >there is XMRV in children under the age of 5. To date they have confirmed

XMRV

> >

> > >in 16 of 17 families with neuroimmune disease amongst multiple members.

> >Finally,

> >

> > >that more work needs to be done to confirm pathogenesis and transmission

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

If tested XMRV positive, what is the next step? Any medication yet?

Thanks,

Lucy

>

> I have attached a photo of the poster from Dr. Mikovits' presentation this

past week.  Entire families were tested for the XMRV retrovirus and

antibodies, and the evidence shows that almost the whole family is affected. 

This is an infectious disease that should be addressed and deserves much

attention!

>  

> Here is an explanation for the poster:

>  In each of the 6 clusters, the top 2 are the parents with the children

underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

Under each shape is their XMRV result. V= virus found in culture, Av = antibody

test, NT=not tested

>

> Family 1, upper left corner †" One parent XMRV + for virus by culture and

XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

symptomatic. Child with Autism, XMRV + for the virus.

>

> Family 2, top row, middle †" One parent with CFS and XMRV+ for antibody. Two

children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

>

> Family 3, upper right corner †" One parent with CFS and XMRV+ for virus by

culture. Child with Autism, XMRV+ for virus by culture.

>

> Family 4, bottom left corner †" One parent with CFS and XMRV + for virus by

culture. Two children with Autism, both XMRV+ for virus by culture.

>

> Family 5, bottom row, middle †" One parent with CFS, Fibromyalgia and XMRV+

by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

>

> Family 6, bottom right corner †" One parent with CFS and XMRV+ by antibody.

Child with Autism, not tested for XMRV.

>

> A quick summary provided by Dr. Mikovits regarding families. She can confirm,

there is XMRV in children under the age of 5. To date they have confirmed XMRV

in 16 of 17 families with neuroimmune disease amongst multiple members. Finally,

that more work needs to be done to confirm pathogenesis and transmission

>

>

>

>

>

[Guest guest]

Hi Jen,

Dr. G has been drilling into his patient, their siblings and families, to keep

their immune systems cool. The easiest and most effective way is through diet.

Ideally, through gestation and through infancy is the easiest and most effective

time to eliminate any and all foods known to cause allergies, therefore

introducing them at a much later age then standardly recommended.

I know Dr. G saved my second son, who was 17 months when we started with Dr.

Goldberg and already had a chronically green mucousy discharge from his nose,

foul (did I say FOUL!!!!) bowel movements, a bout with pneumonia, born jaundice

and a few other physical symptoms that were indicative of immune issues,

allergies perhaps asthma and most likely somewhere in the ASD spectrum if left

unchecked. Diet alone made a HUGE difference for this guy. By the time I

became pregnant with my third child, I was well aware of what to do in pregnancy

and in her early years and Dr. G walked me through each step, including

vaccination recommendations and schedule. Both younger sibs are fine, really

fine, even the middle guy that I was most concerned about who started off with

more immune triggers then his older ``ASD`` brother, was recently tested by the

school, at age 9, for being gifted. After 3 elimination screens, he came within

2 % of the 98% needed to be in the gifted program here in Ontario. He is very

athletic, plays select hockey and soccer, guitar, is extremely social, knows

everyone and is liked by everyone, is very energetic, sweet, funny – he really

is the whole package, yet I am still careful with his diet and especially cow`s

dairy. However, he is absolutely fine, physically, socially, cognitively -

healthy, healthy, healthy. I strongly feel that as long as his diet is free of

immune triggers that will cause inflammatory reactions, he will be way ahead of

his peers in terms of long term health. My youngest has absolutely no allergies

and while she can eat anything, I still don`t allow her the things that I know

can and will stress her immune system. Certain things will just NEVER be part

of our diet and I believe that will give my kids the edge in terms of their long

term health, regardless of what underlying viruses may be within their makeup,

or they have been exposed to from me, their environment or anywhere else.

Don`t stress yourself or spend valuable energy worrying whether you passed a

virus along to your children through nursing them, or even growing them or

birthing them. This happens to adopted children too. Breast feeding is the

healthiest way to feed your baby and the alternative of formula is filled with

so much garbage like processed bovine dairy, corn derivatives and a host of

other unpronounceable things that would not have done your babies any better.

Without guilt, or paranoia, we must also realize that a great part of the

population is or will be ill. Not just from xmrv, or any other virus or retro

virus that may or may not turn up, but because the world is changing and this

world has become so quick and dirty that there are no simple answers. Debates

on food and air quality, chemicals, processing, electromagnetic fields with cell

phones and wireless devices, and so on…nothing is simple and there are no easy

answers. We just learn, evolve and continue to make the best choices for our

children. We can`t freak out at the possibilities. If it were as simple as the

worst case scenario, I really believe there would be far more ill children and

adults. Kids are recovering. However, it is a life`s work to keep any child

healthy in this world today. Yet without over simplifying, I think a lot of the

solution is still diet, diet, diet. Garbage in, garbage out. It is tough.

Folks complain. But it works at keeping the immune system cool and letting the

body function it`s best. While it is obviously not the whole answer, it is the

best start and the best maintenance, for any child, any adult.

Again, just my two, or three cents.

Lori

_____

From: [mailto: ] On Behalf Of

Sent: January-20-11 3:24 PM

Subject: Re: XMRV in families affected by Autism and other Neuroimmune

Diseases

Lori, I have 2 NT kids besides, and they developed food allergies too! So now

the whole family is on a GF/CF diet along with any other triggers we have

figured out along the way (like nuts, egg yolks) cause problems for us too. Its

very possible that the whole family is affected and we need to do everything we

can to keep inflammation under control until we figure out who is or isnt

affected by this retrovirus. I wonder if I passed on what I have to my kids

since I nursed them...

-Jen

>

> > And its these types of retroviruses that we think trigger the immune

system’s

> >inability to properly control the other viruses that NIDs treats †" like

HHV 6,

> >CMV, EBV etc. And I pose the question…. Is the system is firing off

producing

> >antibodies to these viruses †" which react to the typical tests, but in

fact it

> >is trying to fight off something else †" like a retrovirus?

> >

> > My son has constantly high IgG titres to EBV and CMV, but negative IGM

titres

> >for the last 12 years. An exhaustive study at UCLA by the Professor ,

> >head of pediatric immunology (at Dr G’s recommendation) on my

son’s EBC could

> >not, via PCR find any evidence of an EBV infection!

> >

> >

> > This is what we are talking about

> >

> >

> >

> > _____

> >

> > From: <mailto:%40>

<mailto:%40> [mailto:

<mailto:%40> <mailto:%40> ] On Behalf Of

> > Sent: Wednesday, January 19, 2011 12:02 PM

> > <mailto:%40>

<mailto:%40>

> > Subject: Re: XMRV in families affected by Autism and other

Neuroimmune

> >Diseases

> >

> > I am not sure what you are getting at but XMRV is a retrovirus...another

> >retrovirus you may have heard of before? HIV. XMRV is a most likely a very

> >serious pathogen, maybe even the root cause of immune dysfunction in autism,

CFS

> >and more. This retrovirus has been found in the most aggressive forms of

> >prostate cancer, and in breast cancer. This is probably one of the biggest

> >discoveries related to autism yet.

> >

> > --- In <mailto:%40>

<mailto:%40> <mailto:%40> , erikadyan71@

> >wrote:

> > >

> > > Now what......?!

> > >

> > > I am not trying to stir the pot.....it is just that we ALL have viruses in

> >our body. Correct me if I am wrong, but we don't even have cures for the

current

> >viruses " treats " .....

> > >

> > > Just thinking out loud!!

> > >

> > >

> > > .

> > > Sent on the Sprint® Now Network from my BlackBerry®

> > >

> > > XMRV in families affected by Autism and other Neuroimmune

> >Diseases

> > >

> > > I have attached a photo of the poster from Dr. Mikovits' presentation this

> >past week. Entire families were tested for the XMRV retrovirus and

antibodies,

> >and the evidence shows that almost the whole family is affected.Â

This is an

> >infectious disease that should be addressed and deserves much attention!

> > > Â

> > > Here is an explanation for the poster:

> > > Â In each of the 6 clusters, the top 2 are the parents with the

children

> >underneath them. LIGHT BLUE = FIBROMYALGIA, DARK BLUE = CFS, GREEN = AUTISM.

> >Under each shape is their XMRV result. V= virus found in culture, Av =

antibody

> >test, NT=not tested

> >

> > >

> > > Family 1, upper left corner †" One parent XMRV + for virus by

culture and

> >XMRV + for antibody, one parent XMRV + for the antibody. Neither parent

> >symptomatic. Child with Autism, XMRV + for the virus.

> >

> > >

> > > Family 2, top row, middle †" One parent with CFS and XMRV+ for

antibody. Two

> >children with Autism; one XMRV+ for virus by culture, one XMRV+ by antibody.

> >

> > >

> > > Family 3, upper right corner †" One parent with CFS and XMRV+

for virus by

> >culture. Child with Autism, XMRV+ for virus by culture.

> >

> > >

> > > Family 4, bottom left corner †" One parent with CFS and XMRV +

for virus by

> >culture. Two children with Autism, both XMRV+ for virus by culture.

> >

> > >

> > > Family 5, bottom row, middle †" One parent with CFS,

Fibromyalgia and XMRV+

> >by antivody. Child with Autism, XMRV+ for virus by culture and by antibody.

> >

> > >

> > > Family 6, bottom right corner †" One parent with CFS and XMRV+

by antibody.

> >Child with Autism, not tested for XMRV.

> >

> > >

> > > A quick summary provided by Dr. Mikovits regarding families. She can

confirm,

> >there is XMRV in children under the age of 5. To date they have confirmed

XMRV

> >in 16 of 17 families with neuroimmune disease amongst multiple members.

Finally,

> >that more work needs to be done to confirm pathogenesis and transmission

> > >

> > >

> > >

> > >

> > >