Re: my son

March 29, 2002

On my pre-esrd renal diet (for people whose serum creatinine is > 300 umol/L

or 3.5 mg/dl or thereabouts), tea and coffee are " free foods " , meaning that

they don't count unless there are fluid restrictions, and if

potassium-restricted, limit to coffee to one cup per day. Other than that,

they don't seem to care whether it has caffeine or not.

Soda, or soft drinks as we call them here, is fine, even encouraged as an

energy-booster (helps to compensate for the low protein). Only dark colas

are out due to phosphorus content.

Chocolate has potassium, so limited if potassium is a problem.

Ice cream is out due to phosphorus.

Now, when I look at the long list of " foods to avoid " , I don't think I would

want to bother too much avoiding things that are actually allowed : )

In fact, they even served coffee and tea at the renal lectures I attended.

Pierre

my son

> > > > > > > > >

> > > > > > > > > > hello, my name is tammy I have a five year old son

> > named

> > > > > > Braden

> > > > > > > > that

> > > > > > > > > > was recently dx via biopsy for iga. I have read a

> lot

> > > of info

> > > > > > on

> > > > > > > > the

> > > > > > > > > > net but i am not sure what to believe. Does fish

> oil

> > > help in

> > > > > > small

> > > > > > > > > > children? tonsillectomy? low protein diet? My son

> > also

> > > has

> > > > > > severe

> > > > > > > > > > food allergies, I have seen a few refrences to

> > > allergies but

> > > > > > > > nothing

> > > > > > > > > > concret, does anyone know anything about it? Also

> my

> > > son had a

> > > > > > > > rare

> > > > > > > > > > immune disease named Kawasaki's as a infant, has

> > anyone

> > > else

> > > > > > had

> > > > > > > > > > other immune disorders? I am very confused and sad

> > > about this

> > > > > > dx i

> > > > > > > > > > could use a friend also going through it. Thanks

> for

> > > your

> > > > > > time and

> > > > > > > > > > help. Tammy

> > > > > > > > > >

March 29, 2002

Hi Ingrid

First off my comment 'everything in moderation young lady' was not a

direction from me to you, this was what my Neph tells me ok, don't want

you thinking I am some critical old bag LOL!!!!

Tea was also given the thumbs down by my Neph, de-caff is fine though,

and to be honest I cant taste the difference anyway, I can with coffee

but not tea. Chocolate I rarely eat, due to diary allergies, but

sometimes I just have to have some, cravings etc, but then I stick with

white chocolate, for some reason it doesn't seem so bad then!!!

Ice cream also out for me, but I do have a Vegan Ice Cream, which is

just fine for me.

I think if you use the 'treat' as a rule of thumb, your Neph would be

happy, and you need not deprive yourself either. Have a chat with your

Neph Ingrid, and get him or her to be more specific, that is what I did,

so mine wrote a list of DON'T's food wise for me, and to be honest, they

are only things that you would eliminate if you were on healthy eating

regime.

Re: my son

I truly fear weaning myself off of caffinated coffee. I even work

part time at a coffee shop just because I don't want to send the

money on the coffee:)

But you're right " everything in moderation "

One more Q though. Are teas as 'harsh' (to use my utterly vague and

unscientific terminology:) as coffee? I don't drink soda so that

form is not an issue. Plus, chocolate has caffeine. Is that form as

bad. Oh brother, and I thought I had already done myself plenty of

adjusting:) Ice cream - one of my favorite things on earth to eat -

is already a treat, so I guess more things will become treats. I

guess that that is something to look forward to.

Ingrid

> > > > > > > > Tammy,

> > > > > > > >

> > > > > > > > My son Matt has had IGAN for 5 years now, he is now

18

> > and his

> > > > > > > creatinne

> > > > > > > > level is .9, he takes 10 fish oil capsules a nite and

> is

> > on 25

> > > > > mg

> > > > > > > of cozaar

> > > > > > > > per day. His doctor said tonsillectomy will not be

> > effective and

> > > > > > > that Matt

> > > > > > > > does not have to eat a low protein diet. We try to

keep

> > his

> > > > > immune

> > > > > > > system

> > > > > > > > healthy with low sugar, lots of veggies, alot of

sleep,

> no

> > > > > > > caffiene. I

> > > > > > > > agree with you it is very confusing. But, we need to

> try

> > to be

> > > > > > > strong and

> > > > > > > > have a hopeful outlook for our children. I pray often

> for

> > my

> > > > > son's

> > > > > > > health!

> > > > > > > > Helene

> > > > > > > >

> > > > > > > > my son

> > > > > > > >

> > > > > > > > > hello, my name is tammy I have a five year old son

> named

> > > > > Braden

> > > > > > > that

> > > > > > > > > was recently dx via biopsy for iga. I have read a

lot

> > of info

> > > > > on

> > > > > > > the

> > > > > > > > > net but i am not sure what to believe. Does fish

oil

> > help in

> > > > > small

> > > > > > > > > children? tonsillectomy? low protein diet? My son

> also

> > has

> > > > > severe

> > > > > > > > > food allergies, I have seen a few refrences to

> > allergies but

> > > > > > > nothing

> > > > > > > > > concret, does anyone know anything about it? Also

my

> > son had a

> > > > > > > rare

> > > > > > > > > immune disease named Kawasaki's as a infant, has

> anyone

> > else

> > > > > had

> > > > > > > > > other immune disorders? I am very confused and sad

> > about this

> > > > > dx i

> > > > > > > > > could use a friend also going through it. Thanks

for

> > your

> > > > > time and

> > > > > > > > > help. Tammy

> > > > > > > > >

March 29, 2002

KAren,

I definitely took the 'young lady' comment as you had intended.

Don't worry:) It takes a hell of a lot to ruffle my feathers and I

doubt I would have been offended anyway, but thanks for checking.

Part of the problem is that my neph is fabulously interested and

carring, but has not interest in the food side of things. He says

that I don't need to worry, and in reality I don't, BUT I do think

getting a head start on a healthy diet and just being aware of what

other people are saying and doing is always good. And I did talk to

the dietician before doing anything at all. I'm being careful and my

neph is keeping track of my albumin as I don't eat any meat and only

rarely have fish. I think I need to bring it up with the dietician,

but she'll jsut say the same as your neph - " moderation " . Well, at

least I am getting good ideas for a healthy diet this way instead of

just relying on general healthy diet suggestions.

I find it strange though that white chocolate would be better. I

think it tastes horrid and can't belive that it would be an adequate

substitute - but then again, my family is filled with arguements as

to the best type of chocolate - dark, light, white...

Thanks for all the ideas. I like hearing what so many others are

saying.

And have a nice long weekend. At least it is one here in the States -

I plan on sleeping mine away:)

Ingrid

> > > > > > > > > Tammy,

> > > > > > > > >

> > > > > > > > > My son Matt has had IGAN for 5 years now, he is now

> 18

> > > and his

> > > > > > > > creatinne

> > > > > > > > > level is .9, he takes 10 fish oil capsules a nite

and

> > is

> > > on 25

> > > > > > mg

> > > > > > > > of cozaar

> > > > > > > > > per day. His doctor said tonsillectomy will not be

> > > effective and

> > > > > > > > that Matt

> > > > > > > > > does not have to eat a low protein diet. We try to

> keep

> > > his

> > > > > > immune

> > > > > > > > system

> > > > > > > > > healthy with low sugar, lots of veggies, alot of

> sleep,

> > no

> > > > > > > > caffiene. I

> > > > > > > > > agree with you it is very confusing. But, we need

to

> > try

> > > to be

> > > > > > > > strong and

> > > > > > > > > have a hopeful outlook for our children. I pray

often

> > for

> > > my

> > > > > > son's

> > > > > > > > health!

> > > > > > > > > Helene

> > > > > > > > >

> > > > > > > > > my son

> > > > > > > > >

> > > > > > > > > > hello, my name is tammy I have a five year old

son

> > named

> > > > > > Braden

> > > > > > > > that

> > > > > > > > > > was recently dx via biopsy for iga. I have read a

> lot

> > > of info

> > > > > > on

> > > > > > > > the

> > > > > > > > > > net but i am not sure what to believe. Does fish

> oil

> > > help in

> > > > > > small

> > > > > > > > > > children? tonsillectomy? low protein diet? My son

> > also

> > > has

> > > > > > severe

> > > > > > > > > > food allergies, I have seen a few refrences to

> > > allergies but

> > > > > > > > nothing

> > > > > > > > > > concret, does anyone know anything about it? Also

> my

> > > son had a

> > > > > > > > rare

> > > > > > > > > > immune disease named Kawasaki's as a infant, has

> > anyone

> > > else

> > > > > > had

> > > > > > > > > > other immune disorders? I am very confused and

sad

> > > about this

> > > > > > dx i

> > > > > > > > > > could use a friend also going through it. Thanks

> for

> > > your

> > > > > > time and

> > > > > > > > > > help. Tammy

> > > > > > > > > >

March 29, 2002

Ingrid

Phew that's alright then LOL, no ruffled feathers.

The white chocolate being better for me, is my warped assumption, I know

full well that chocolate is dairy, whether it be brown or pink with red

spots on LOL. I am only trying to justify myself for eating what I

shouldn't have LOL.

If you have already spoken to a dietician and have been given the

standard 'moderation' line, then I would simply adhere to that. I have

so many restrictions due to allergies, that I now really enjoy what I

can have. I would say at this point, that I do try to re-introduce

things that previously upset me, like bananas, for years I have avoided

them, because I came out in a puffy rash, lately I have discovered it is

the flesh, not the fruit that irritates me, so I now eat them again, oh

joy nana sandwiches!!!!

Same with red meat, lamb really used to make me feel sick, but if I

overcook it, like it is nearly charred, I am fine. Pork is ok too now,

but Beef or Steaks forget it, unless they incinerated LOL!!!! How

anyone like my husband could eat a steak rare, ugh, gross!!!!!

I do have things I shouldn't Ingrid, simply because I am a bit of a

madam, and do rebel, but my Neph knows what I get up to, he once caught

me outside at the hospital, with a huge take out full on coffee and

having a crafty cigarette!!! Well he berated me on the spot, made me

stub out my ciggy, tip the coffee down the drain, and took me up to the

waiting room, where I got more of the same, deservedly of course. Now 1

year on, I don't smoke at all (he threatened to stop seeing me if I

didn't stop). He also said that he would know if I have been smoking

or not, as he reckoned they could tell from my blood tests, whether this

is true or not, I don't take the risk LOL.

So I enjoy what I can have, plus the naughty but nice bits occasionally.