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My son has a rare genetic disorder on top of the AS/ADHD. Part of this is congenital anosmia....the inability to smell due to lack of olfactory bulbs and tracts. I always wondered if this played any roll in his sensory issues.

-Charlotte

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  • 1 year later...
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Sherri,

We recently had my son evaluated for sensory issues, he also has OCD. He is

compulsed to hug tightly onto people and is constantly chewing on his shirts. He

rubs his fingers together till they are sore, he twists ties on blankets. These

are just a few. We have not heard back from the evaluation yet, but I was just

wondering if your child has any of the same symptoms. I do know he has anxiety

which this also is a sign of, but a friend of mine who has a child with sensory

problems, suggested that I get him tested also. Just wondering

I just want to thank everyone who writes. I mostly read because I am so new to

this. Your information is greatly appreciated

Thanks

Re: New sleep issues

He does have sensory issues--mostly hyposensitivity/ seeking tactile

and proprioceptive input (which I know could be a factor in him

crashing into people, I know, but I also know it isn't just that).

It seems that when there are problems, there are problems with every

issue at once and it's hard to figure out what's going on.

Sherri

>

> This is a shot in the dark, but has your son ever been diagnosed

with

> sensory issues?

>

> The reason I ask this is..My son has sensory prosessing d/o. when

he gets

> agitated about something in life it flares up. He used

the " wrinkly "

> description one time and come to find out it was a new soap that I

had in

> the tub that he decided to use, but didn't like the feeling of. He

was not

> aware of what it was he didn't like.. but knew there was something

wrong.

> This also hit at a time of stress over a change in routine for him.

>

> I know this doesn't help the root of the problem of his sleep

problem, but

> maybe it would be one less " discomfort " for his system to have to

deal with.

> Good luck!

>

> Blessed Be

>

> monica

>

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  • 3 years later...

Hi Dave,

Our entire family is using Nutriiveda and in our family it is working

with everyone. My youngest does not need to lose weight but really

needs it for

a sports injury and she feels so much better on the Nutriiveda than

off. She is using it once a day and has not lost any weight. She

has noticed she

no longer craves junk food so she said she feels like she is eating

healthier as well. She has not really been able to run long

distances since her injury

but now with the Nutriiveda she is running once again. This morning

she is already out running 5 miles with her older sister. I would

give it a try. Please

consult your doctor with any and all concerns you may have prior to

beginning the Nutriiveda. Mel's doctor is very pleased with

Nutriiveda so pleased

that when I brought a canister in to show him he asked if he could

have it. I will see how he feels next week after being on the

Nutriiveda for a week.

Robin

On Dec 16, 2009, at 7:31 AM, dave@... wrote:

> We are still having problems with Sensory Issues. What can be done

> to help our son?

> Would Nutriiveda or Ayurveda help with Sensory? Our son is very

> slim could we give this to him and not be concerned with him losing

> weight?

>

> Dave

>

>

> Sent from my BlackBerry� wireless device from U.S. Cellular

>

> ------------------------------------

>

>

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  • 10 months later...

Guys

This was sent to me and I find it very interesting. I have posted here with my

response below. Anyone else have any thoughts?

Bill,

Hope you are your son are doing well.

I have some thoughts/question that you may have some perspective

I stumbled upon this when researching sensory/pressure seeking behavior, which

we have seen quite a bit recently.

There is a rare muscular disorder Inclusion Body myositis that is supposed to be

caused by some sort of auto-immunity

http://resources.metapress.com/pdf-preview.axd?code=w2371735613n8512 & size=larges\

t

http://journals.lww.com/aidsonline/fulltext/2003/05230/inclusion_body_myositis__\

_another_possible.24.aspx

Mito dysfunction is also seen in this disease - quite like type disorders.

There maybe no connection to this to except that they are immune related

but I am curious as to the theories on sensory dysfunction in kids esp pressure

seeking type behavior. Is there an explanation of what is going on at the brian

or muscular level - why the pressure is calming?

Thanks,

Kay

Kay

Yes that is very interesting and I agree that this is probably yet another

aspect of and is probably a piece of the puzzle. When Connor is off base I

can attribute soo many of the behavioral issues to sensory problems that it is

obvious that what is going on in his brain is occurring throughout his entire

nervious system. I have always used one technique that we call burrito

treatment. I keep a very heavy blanket/ dense and thick / and I will get him on

the floor and roll him up into a burrito as a game. It is amazingly calming and

I get him back in a few minutes. What ever is going on, on this cellular level

must be viral by the very description. The new assays they are using casing the

genome around will sort it out eventually.

In regard to the list I do not know who monitors it but I suspect it is Dr

G's wife . If you are a patient of his you can call the office, if not, post

them to me and I will put them up.

Bill

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