stem cell

[Guest guest]

Ive done alot of research on stem cell treatments (not transplant -

this is only used in very specific genetic diseases and cancers -

treatment is different). As the parent of a child (possibly children)

with an incurable, progressive, neuromuscular disorder that is slowly

damaging his brain, I have looked for possibly treatments everywhere I

can.

Stem cell treatments from what I understand and have researched are

largely believed to be a crock... They seem to offer unwarranted hope

to the most hopless and desperate people at insane costs. costs that

those very people will pay in a second for that hope.

They give subcutaneous or IV 'stem cells' (assuming they actually are -

theres some debate about that as well according to the major stem cell

transplant researcher/doctor at Duke University hospital) to patients

(a totally inefficient manner of administering stem cells as our immune

system would instantly start attacking them... the only time stem cells

can survive in our body is when we are getting a transplant and our

existing immune system has been completely wiped out wiht radiation and

chemo) and claim they can 'cure' any host of diseases (many of which

have nothing at all in the world to do with stem cells or bone marrow

or or anything that can be treated with replacing or adding stem

cells).

There is a reason stem cell treatments are only done in questionable

medical facilities in countries with very few restrictions on medical

practice (mexico, china, etc)... they cannot stand up to safety,

effectiveness, and health standards in any of the 'developed' countries

or those with medical standards.

I would be extremely careful before considering this as an option...

Its unproven. It hasnt been safety tested. I believe its a cruel

process as it gives people a very false hope in desperate situations,

and milks tremendous amounts of money out of desperate people.

Just my 2 cents.

Keely

www.caringbridge.org/visit/brandonandtyler

>

> Has anyone here tried stem cell yet?!!! And what is your opinion?!!!

> Love, Gabby. :0)

>

[Guest guest]

I did hear a Prof from Princeton who teaches bioethics state thatthey

actually found great success that is not talked about as much as you

would think, with cord blood. I did bank my apraxic child's cord

blood. They call me a lot to tell me all of this fabulous research

that makes their business necessary. With that said, whenever I have

asked them anything of substance, regarding immune issues that we

have in our family I hear crickets. I am truly disappointed and hope

to speak to an MD at this company in detail about what is currently

available. Anyone bank the cord blood and have a different

experience?

> >

> > Has anyone here tried stem cell yet?!!! And what is your

opinion?!!!

> > Love, Gabby. :0)

> >

>

[Guest guest]

See cord blood transplants are very successful at treating diseases

and disorders that are otherwise incurable, and the research is

pretty exciting, but this is quite different from the 'stem cell

treatments' that you hear about in hospitals in mexico and china...

the 'treatments' are a hoax... by and large there is nothing to show

it helps, and in theory it could well do harm by taxing an already

taxed immune system.

We didnt get to bank our cord blood unfortunately as I am in Canada

and here the only option is to bank at the public cord blood bank..

there are restrictions on who can donate there (no meds during

pregnancy for example) and I didnt meet them given my own medical

problems, and our family history of genetic disease.

I would have loved to have been able to, but going across teh border

to bank privately proved to be insanely expensive and the red tape

made it nearly impossible, so we didnt. I hoep they are able to

give you better guidance about it, it might be better to ask your

own doctor the questions, as they may be better qualified to

answer...

Keely

www.caringbridge.org/visit/brandonandtyler

> > >

> > > Has anyone here tried stem cell yet?!!! And what is your

> opinion?!!!

> > > Love, Gabby. :0)

> > >

> >

>

[Guest guest]

I wanted to weigh in on this one.

Cord blood transplants have been completed at Duke on a child with Cerebral

Palsy and another with a brain injury in the past couple of years. I have

personally spoken with the doctor that did the surgery AT LENGTH. I can become

(when necessary!) a harsh analytical with a million question and not

intimidated.

Duke Medical Center is at the forefront of this research in the United States.

This is only being completed as a procedure at Duke IF you have banked your own

child's cord blood and while there have been oodles of anecdotal positive

feedback from the cerebral palsy' child's parents, the doctor is still analyzing

the results to determine if the stem cells are, in fact, working.

Any transplants with anything other than your child's own cord blood are not

being completed at a reputable institution like Duke right now, because of what

someone previously posted on here......there is no likelihood that the body

would accept those cells without chemo and radiation ~~~~~~~entirely too risky

for children compromised to begin with.

She went onto to detail for me specific areas of research that is being

pursued and their hopes over the next several years for growth in this area.

Unfortunately, due to a traumatic early delivery, I was not able to bank my

child's cord blood. However, those of you privileged enough to do so, I would

certainly KEEP that maintained in your " blood bank, "

Best wishes,

---------------------------------

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Answers - Check it out.

[Guest guest]

,

Sorry it takes me so long to reply. Stem Cell is so great because the stem

cell go to the areas of weakness that need repair. If the body has other areas

which need repair more than what you are hoping to treat, the stem cells will

concentrate on that area first. This is the reason it sometimes takes more

treatments than one. It is best to go for stem cell when your child is pretty

healthy other than the problems you are concentratin on. That way you know you

are getting the best effect possible. There are no guarantees, it depends on

the patient and the needs.

Stem Cell is the future health benefit which is vital to special needs children

and adults. Unfortunately there are a lot of fortune seekers who have jumped in

to take advantage of the situation. Dr. has bypassed the profit motive

by working 2 years to organize a way to afford stem cells for his daughter and

others who cannot afford the high margins of profit and he makes it available

for 1/3 to 1/2 the cost of anywhere else in the world.

The best way to get answers is to join the StemCellDR and read

the archives of already answered questions and then ask any questions you need.

There is no sales pressure, no hype, just a group of nearly 200 people so far

looking for the same answers as you and I. I am type 2 diabetic and will be

going for stem cell for both myself and my wife Judy. My grandson, Garrett

will certainly be going for stem cell. The biggest single drawback is that we

get our hopes up and may not get the results we want. However, it is so

important to understand that any results and improvement is priceless.

I am also going to post this message to other groups because I feel strongly

that other parents should have the opportunity to investigate and decide for

themselves for their own children. After providing over 22,000 HBOT

treatments for children and adults with different types of special needs, I know

how high hopes can get and how important it is to find any type of help for

them. Significant improvements for many, smaller but important improvements

for others.

Adipose stem cell is the source of more stem cells than any other method known

today. It does not require aborted babies, or stem cells from sources where you

do not know what the characteristics are. It used the patients very own stem

cells which are so important and or guaranteed to be more compatible, safer, and

more effective for the patient than any others. I have looked at stem cells

for years and watched people spend thousands of dollars not knowing what the

results will be or where the stem cells came from. I have watched and waited

and now Garrett is 14 years old and finally a method and place that I trust

because Dr. is a personal friend of mine and he would never do anything

that would be a possible problem for my Garrett. And his daughter was the

first to receive the stem cells in the Dominican Republic and I knew that he

would be as cautious, as skeptical, as critical of all aspects as I am because I

know of his love for his 18 year old daughter, . In fact, I am adding

his personal testimony below, I'm sure he will not mind:

" Yes, she has much more presence of mind. She can drink from a bottle of soda or

a cup of water without spilling it down her chin all over her blouse.She can

recognize and name animals in a picture book.

For the very first time in her 18 year old life, she told me over the

phone--and she never spoke on the floor before-- " Daddy, I really do love you. "

She is repeating words and understanding them with a look of mirth in her eyes

as she realizes she is connecting the word with objects.

There's more, but suffice it to say, I believe her stem cell infusion has been a

turning point her life.

Blessings,Dr. "

There are those who will think I am trying to sell something but it is their

loss. I hope this info is of benefit.

Hartsoe

formerly Director of Miracle Mountain, now retired

[Guest guest]

I happened to come across a link to the nationalgeographic.com website yesterday

on healing burn victims using their own stem cells which remarkably enabled

their system to grow back skin completely in a few days.

The Skin Gun

A simple idea backed by stem cell research allows victims of severe burns to

heal in merely days.

http://channel.nationalgeographic.com/series/explorer/4828/Videos#tab-Videos/093\

47_00

An amazing breakthrough that can help these burn victims.

From this, I gather:

1) These are results on burn victims not autism (word) or other immune /

neuro-immune dysfunction suffering patients. However the possible application of

self stem cells for my child is worth investigating more information based on

the facts presented in this video.

2) Mileage may vary. What works for some patients does not necessarily work for

all patients as mentioned previously.

3) Watch out for the profiteers. Make sure the research is done with a reputable

source when investigating stem cell therapy to immune / neuro-immune

dysfunction patients.

The main concept I understood after watching this video was understanding there

is a possibility of helping treat my 7 year-old non-verbal son with an immune

system issue with this stem cell method once it is refined. This hope is what I

live for everyday.

________________________________

From: <rhartsoe@...>

Sent: Tue, February 1, 2011 2:30:44 PM

Subject: stem cell

,

Sorry it takes me so long to reply. Stem Cell is so great because the stem

cell go to the areas of weakness that need repair. If the body has other areas

which need repair more than what you are hoping to treat, the stem cells will

concentrate on that area first. This is the reason it sometimes takes more

treatments than one. It is best to go for stem cell when your child is pretty

healthy other than the problems you are concentratin on. That way you know you

are getting the best effect possible. There are no guarantees, it depends on

the patient and the needs.

Stem Cell is the future health benefit which is vital to special needs children

and adults. Unfortunately there are a lot of fortune seekers who have jumped in

to take advantage of the situation. Dr. has bypassed the profit motive

by working 2 years to organize a way to afford stem cells for his daughter and

others who cannot afford the high margins of profit and he makes it available

for 1/3 to 1/2 the cost of anywhere else in the world.

The best way to get answers is to join the StemCellDR and read

the archives of already answered questions and then ask any questions you need.

There is no sales pressure, no hype, just a group of nearly 200 people so far

looking for the same answers as you and I. I am type 2 diabetic and will be

going for stem cell for both myself and my wife Judy. My grandson, Garrett

will certainly be going for stem cell. The biggest single drawback is that we

get our hopes up and may not get the results we want. However, it is so

important to understand that any results and improvement is priceless.

I am also going to post this message to other groups because I feel strongly

that other parents should have the opportunity to investigate and decide for

themselves for their own children. After providing over 22,000 HBOT

treatments for children and adults with different types of special needs, I know

how high hopes can get and how important it is to find any type of help for

them. Significant improvements for many, smaller but important improvements

for others.

Adipose stem cell is the source of more stem cells than any other method known

today. It does not require aborted babies, or stem cells from sources where you

do not know what the characteristics are. It used the patients very own stem

cells which are so important and or guaranteed to be more compatible, safer, and

more effective for the patient than any others. I have looked at stem cells

for years and watched people spend thousands of dollars not knowing what the

results will be or where the stem cells came from. I have watched and waited

and now Garrett is 14 years old and finally a method and place that I trust

because Dr. is a personal friend of mine and he would never do anything

that would be a possible problem for my Garrett. And his daughter was the

first to receive the stem cells in the Dominican Republic and I knew that he

would be as cautious, as skeptical, as critical of all aspects as I am because I

know of his love for his 18 year old daughter, . In fact, I am adding

his personal testimony below, I'm sure he will not mind:

" Yes, she has much more presence of mind. She can drink from a bottle of soda or

a cup of water without spilling it down her chin all over her blouse.She can

recognize and name animals in a picture book.

For the very first time in her 18 year old life, she told me over the

phone--and she never spoke on the floor before-- " Daddy, I really do love you. "

She is repeating words and understanding them with a look of mirth in her eyes

as she realizes she is connecting the word with objects.

There's more, but suffice it to say, I believe her stem cell infusion has been a

turning point her life.

Blessings,Dr. "

There are those who will think I am trying to sell something but it is their

loss. I hope this info is of benefit.

Hartsoe

formerly Director of Miracle Mountain, now retired