Guest guest Posted June 10, 2012 Report Share Posted June 10, 2012 I am wondering if most people who rife/coil continue on abx, alternate them or get rid of abx all together. I'm trying to figure out how to manage it all. My kids' pediatric LLMD thinks of rife as an added therapy to abx. I have heard some personal stories off this forum that people stopped abx all together and even though it took them a year to feel marked improvement (because like starting over), it was well worth it. I realize each patient is going to have different outcomes but was wondering what people on this forum thought. Also, if abx's are driving bacteria into cyst form, what if only a cystbuster abx like Tindamax was used in conjuction with rife/coil? Thanks! Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2012 Report Share Posted June 10, 2012 Hi Kris,A year! That's a short time. When effectively treating Lyme, patience is the largest requirement. From my perspective, abx for chronic Lyme is a giant step backward, merely postponing symptoms and adding time to ultimate recovery. If I were bitten yesterday, I'd take 8 weeks of Doxycycline in a heartbeat, despite the damage my gut would suffer and have to be remedied later. It DOES stop acute Lyme. But for chronic Lyme, the sooner one lets go if abx, the better, for giving proven Lyme-killers like S & C or Rife a chance to slowly work, peeling the onion, layer by layer, year by year. I'm sure there may be a few LLMDS out there who are knowledgeable enough to pulse and vary different abx to effectively treat chronic Lyme, but most don't seem to be and the results are expensive and counter-prroductive. Just my layperson's opinion.A friend of mine with Lyme kids was told, very off the record, by her pediatric LLMD, that Rife would be the best bet, but that he could only offer abx according to the medical powers-that-be. She took his advice and her kids are doing well now.Be well,Léna I am wondering if most people who rife/coil continue on abx, alternate them or get rid of abx all together. I'm trying to figure out how to manage it all. My kids' pediatric LLMD thinks of rife as an added therapy to abx. I have heard some personal stories off this forum that people stopped abx all together and even though it took them a year to feel marked improvement (because like starting over), it was well worth it. I realize each patient is going to have different outcomes but was wondering what people on this forum thought. Also, if abx's are driving bacteria into cyst form, what if only a cystbuster abx like Tindamax was used in conjuction with rife/coil? Thanks! Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2012 Report Share Posted June 11, 2012 Thanks for the advice. My friend I was referring to was very sick and on abx for 3 yrs and then got rid of abx all together and switched to rife. She said after a year she finally noticed she was feeling better. She still rifes to this day for a multitude of things and can rife like 10 hrs/ wk where 3 years ago very minimally/wk. She had spent a lot of $ on a great naturopath who said when he 1st met her she was plagued w/ a ton of microbes and now he detects very little. Her DO who has done a few years of cranial sacral therapy is amazed by her turn around too. She had worked hard @ it for 6 years (3 w/ abx and 3 without). Wonder if your friend's kids and my kids see the same pediatric LLMD. I was shocked when mine told us he fully supported rife. Thanks for info!K Sent from my iPhone Hi Kris,A year! That's a short time. When effectively treating Lyme, patience is the largest requirement. From my perspective, abx for chronic Lyme is a giant step backward, merely postponing symptoms and adding time to ultimate recovery. If I were bitten yesterday, I'd take 8 weeks of Doxycycline in a heartbeat, despite the damage my gut would suffer and have to be remedied later. It DOES stop acute Lyme. But for chronic Lyme, the sooner one lets go if abx, the better, for giving proven Lyme-killers like S & C or Rife a chance to slowly work, peeling the onion, layer by layer, year by year. I'm sure there may be a few LLMDS out there who are knowledgeable enough to pulse and vary different abx to effectively treat chronic Lyme, but most don't seem to be and the results are expensive and counter-prroductive. Just my layperson's opinion.A friend of mine with Lyme kids was told, very off the record, by her pediatric LLMD, that Rife would be the best bet, but that he could only offer abx according to the medical powers-that-be. She took his advice and her kids are doing well now.Be well,Léna I am wondering if most people who rife/coil continue on abx, alternate them or get rid of abx all together. I'm trying to figure out how to manage it all. My kids' pediatric LLMD thinks of rife as an added therapy to abx. I have heard some personal stories off this forum that people stopped abx all together and even though it took them a year to feel marked improvement (because like starting over), it was well worth it. I realize each patient is going to have different outcomes but was wondering what people on this forum thought. Also, if abx's are driving bacteria into cyst form, what if only a cystbuster abx like Tindamax was used in conjuction with rife/coil? Thanks! Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2012 Report Share Posted June 11, 2012 This family was in upstate NY. It's such a pity that good doctors not only can't use what they know can help, but can get into trouble by merely suggesting it.Be well,Léna. Thanks for the advice. My friend I was referring to was very sick and on abx for 3 yrs and then got rid of abx all together and switched to rife. She said after a year she finally noticed she was feeling better. She still rifes to this day for a multitude of things and can rife like 10 hrs/ wk where 3 years ago very minimally/wk. She had spent a lot of $ on a great naturopath who said when he 1st met her she was plagued w/ a ton of microbes and now he detects very little. Her DO who has done a few years of cranial sacral therapy is amazed by her turn around too. She had worked hard @ it for 6 years (3 w/ abx and 3 without). Wonder if your friend's kids and my kids see the same pediatric LLMD. I was shocked when mine told us he fully supported rife. Thanks for info!K Sent from my iPhone Hi Kris,A year! That's a short time. When effectively treating Lyme, patience is the largest requirement. From my perspective, abx for chronic Lyme is a giant step backward, merely postponing symptoms and adding time to ultimate recovery. If I were bitten yesterday, I'd take 8 weeks of Doxycycline in a heartbeat, despite the damage my gut would suffer and have to be remedied later. It DOES stop acute Lyme. But for chronic Lyme, the sooner one lets go if abx, the better, for giving proven Lyme-killers like S & C or Rife a chance to slowly work, peeling the onion, layer by layer, year by year. I'm sure there may be a few LLMDS out there who are knowledgeable enough to pulse and vary different abx to effectively treat chronic Lyme, but most don't seem to be and the results are expensive and counter-prroductive. Just my layperson's opinion.A friend of mine with Lyme kids was told, very off the record, by her pediatric LLMD, that Rife would be the best bet, but that he could only offer abx according to the medical powers-that-be. She took his advice and her kids are doing well now.Be well,Léna I am wondering if most people who rife/coil continue on abx, alternate them or get rid of abx all together. I'm trying to figure out how to manage it all. My kids' pediatric LLMD thinks of rife as an added therapy to abx. I have heard some personal stories off this forum that people stopped abx all together and even though it took them a year to feel marked improvement (because like starting over), it was well worth it. I realize each patient is going to have different outcomes but was wondering what people on this forum thought. Also, if abx's are driving bacteria into cyst form, what if only a cystbuster abx like Tindamax was used in conjuction with rife/coil? Thanks! Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2012 Report Share Posted June 11, 2012 It is a shame. Their hands are tied. And we get hit in return by spending a lot out of pocket and traveling to dr's. We travel from PA to CT for my kids' dr and to DC for my dr. Sent from my iPhone This family was in upstate NY. It's such a pity that good doctors not only can't use what they know can help, but can get into trouble by merely suggesting it.Be well,Léna. Thanks for the advice. My friend I was referring to was very sick and on abx for 3 yrs and then got rid of abx all together and switched to rife. She said after a year she finally noticed she was feeling better. She still rifes to this day for a multitude of things and can rife like 10 hrs/ wk where 3 years ago very minimally/wk. She had spent a lot of $ on a great naturopath who said when he 1st met her she was plagued w/ a ton of microbes and now he detects very little. Her DO who has done a few years of cranial sacral therapy is amazed by her turn around too. She had worked hard @ it for 6 years (3 w/ abx and 3 without). Wonder if your friend's kids and my kids see the same pediatric LLMD. I was shocked when mine told us he fully supported rife. Thanks for info!K Sent from my iPhone Hi Kris,A year! That's a short time. When effectively treating Lyme, patience is the largest requirement. From my perspective, abx for chronic Lyme is a giant step backward, merely postponing symptoms and adding time to ultimate recovery. If I were bitten yesterday, I'd take 8 weeks of Doxycycline in a heartbeat, despite the damage my gut would suffer and have to be remedied later. It DOES stop acute Lyme. But for chronic Lyme, the sooner one lets go if abx, the better, for giving proven Lyme-killers like S & C or Rife a chance to slowly work, peeling the onion, layer by layer, year by year. I'm sure there may be a few LLMDS out there who are knowledgeable enough to pulse and vary different abx to effectively treat chronic Lyme, but most don't seem to be and the results are expensive and counter-prroductive. Just my layperson's opinion.A friend of mine with Lyme kids was told, very off the record, by her pediatric LLMD, that Rife would be the best bet, but that he could only offer abx according to the medical powers-that-be. She took his advice and her kids are doing well now.Be well,Léna I am wondering if most people who rife/coil continue on abx, alternate them or get rid of abx all together. I'm trying to figure out how to manage it all. My kids' pediatric LLMD thinks of rife as an added therapy to abx. I have heard some personal stories off this forum that people stopped abx all together and even though it took them a year to feel marked improvement (because like starting over), it was well worth it. I realize each patient is going to have different outcomes but was wondering what people on this forum thought. Also, if abx's are driving bacteria into cyst form, what if only a cystbuster abx like Tindamax was used in conjuction with rife/coil? Thanks! Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2012 Report Share Posted June 12, 2012 Hi Kris, If your kids doc is Dr. J in CT, he has a great reputation... If I had a kid with Lyme and I wanted to use a LLMD, Dr. J would be that person... And if your other doctor in DC is also a Dr. J, well my hat's off to you!! He is another of the great LLMD's... So if I have guessed correctly on both of these doctors, you have my two best choices, one as a pediactric LLMD, the other as a regular LLMD... Take care, Jim > >>> > >>>> > >>>> I am wondering if most people who rife/coil continue on abx, alternate them or get rid of abx all together. I'm trying to figure out how to manage it all. My kids' pediatric LLMD thinks of rife as an added therapy to abx. I have heard some personal stories off this forum that people stopped abx all together and even though it took them a year to feel marked improvement (because like starting over), it was well worth it. I realize each patient is going to have different outcomes but was wondering what people on this forum thought. > >>>> > >>>> Also, if abx's are driving bacteria into cyst form, what if only a cystbuster abx like Tindamax was used in conjuction with rife/coil? > >>>> > >>>> Thanks! > >>>> Kris > >>>> > >>> > >>> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2012 Report Share Posted June 12, 2012 Yes, u win the prize on guessing our LLMDs! It took some time to get to these dr's. We were given the run around w/ PANDAS Dx's for both kids. And maybe that is part of Lyme...maybe strep is just an opportunistic infection from the Lyme wearing down their little bodies??? It is very confusing because PANDAS and Bart have very similar symptoms. All I know is PANDAS Tx is not the same as Lyme Tx! PANDAS TX didn't cut it. Not aggressive enough. Took about 5 months for me to really know it was Lyme and Bart and another month for Igenex testing and knowledge to find an LLMD. Took 4 more months to get to Dr. J in CT but a very good but less famous LLMD in polis, MD in the meantime saw all 3 of us to get us on the the right track. (I had gotten very sick after a flu shot a month prior. I was probably sick way before that but thought I was just exhausted from 2 ill children.). So yes, we see 2 great LLMDs but I'm still not totally sure how to change direction to rife and forgoing abx's when these dr's have led us down the abx road. Not saying forgoing the abx's isn't the right answer. Just wish I had a great naturopath to help steer the detox ship. I am seeing one but don't think she is the answer. This forum is opening my eyes to a lot of good stuff. Just trying to digest it all before executing it. Hi Kris, If your kids doc is Dr. J in CT, he has a great reputation... If I had a kid with Lyme and I wanted to use a LLMD, Dr. J would be that person... And if your other doctor in DC is also a Dr. J, well my hat's off to you!! He is another of the great LLMD's... So if I have guessed correctly on both of these doctors, you have my two best choices, one as a pediactric LLMD, the other as a regular LLMD... Take care, Jim > >>> > >>>> > >>>> I am wondering if most people who rife/coil continue on abx, alternate them or get rid of abx all together. I'm trying to figure out how to manage it all. My kids' pediatric LLMD thinks of rife as an added therapy to abx. I have heard some personal stories off this forum that people stopped abx all together and even though it took them a year to feel marked improvement (because like starting over), it was well worth it. I realize each patient is going to have different outcomes but was wondering what people on this forum thought. > >>>> > >>>> Also, if abx's are driving bacteria into cyst form, what if only a cystbuster abx like Tindamax was used in conjuction with rife/coil? > >>>> > >>>> Thanks! > >>>> Kris > >>>> > >>> > >>> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
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