Guest guest Posted August 24, 2006 Report Share Posted August 24, 2006 Hello Shivani, he is not specific, but more in general: Melatonin (I recommend min. 3 mg tablet just before going to bed, when you are very exposed to HF) Zinc S.O.D. or super oxide dimutase Ginko Bilboa Bilberry extract Caffeic acid Catalase Coq10 DHA Acetyl-carnitine/R-Lipoic acid Lycopene All these are normally good for being in good shape and health! And I would add; Vitamin C, Vitamin C, Vitamin C, Vitamin C or ascorbic acid as we take it everyday. And those ionic foot spa. See: http://www.electronichealing.co.uk/products/detox_foot_spa.htm Greetings, Claessens member Verband Baubiologie www.milieuziektes.nl www.milieuziektes.be www.hetbitje.nl checked by Norton Antivirus Dr. Goldberg's book > If anyone has read Would you put your head in a Microwave Oven, by > Gerald Goldberg, MD, would you please list the herbs and supplements he > recommends? > And, if you took any of them, what your experience was? > Thanks, > Shivani > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2006 Report Share Posted August 24, 2006 > And those ionic foot spa. > See: http://www.electronichealing.co.uk/products/detox_foot_spa.htm This foot spa is a lot less expensive than others that I've seen. Is this what you are using, ? I know you had good initial response to the foot spa, but what about long term benefits? Do the improvements continue? Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2006 Report Share Posted August 24, 2006 Hello Marc, I still have the very expensive american IonCleanse, but we are still enthousiastic about it. There were also a lot of discussions in the Rife listst of , and I learned a lot to it. So I came to this aforementioned type, which is also medically approved and less expensive. We still use distilled water. I checked it, and run the machine without any feet in it, ans I only got av er slight yellow discoloration. And now we get less black specks (heavy metals), and more from the liver and joints. It is still brownish, but much less than in the beginning. Other people do have other colors. My wife does not have any trouble with GSM masts. Also with many DECT phones and wireless modems. There are only some types of DETC phones that bother her, and I still do not know what it is that bothers her. Overhere the DECT phones ate pulsed with 100 Hz, so there is no difference. The frequency goes from 1880 - 1900 MHz, so a span of 20 MHz. I measured the strentgh of the signals, but that is not the point. I suppose that it is the special *biological window* that may give the responses. So for instance 1883.5 and 1887.6 as an example do enter her *biological window* amd other frequencies do not. I am thinking of buying a frequency generator and test her, but I do know, that it is the combination of the high frequency carrier wave together with the pulsrate. I use a lot my Endotronic meters, especially the Profi Spion (which I described in *het bitje*) and which gives excellent sounds of the pulsrates. I also found that people do not have trouble with the phone signals as such, but when they hear the sounds from the speaker of this meter, they experience trouble. So we know more everyday, but the number of questions do also rise. Last week I had a visitor who reacted heavy to electrical cables and even to batteries! It was clearly visible by a swollen and fire-red head. I am now chasing radiosignals, which can have an impact also. Mistletoe can help there. Greetings, Claessens member Verband Baubiologie www.milieuziektes.nl www.milieuziektes.be www.hetbitje.nl checked by Norton Antivirus Re: Dr. Goldberg's book >> And those ionic foot spa. >> See: http://www.electronichealing.co.uk/products/detox_foot_spa.htm > > This foot spa is a lot less expensive than others that I've seen. > Is this what you are using, ? I know you had good initial > response to the foot spa, but what about long term benefits? Do > the improvements continue? > > Marc > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 If I had a sound generator for the pulse rates only I would stick to that myself. I have the device from Resonanat Light.com. The prices keep going up on them. I couldn't afford one now. I take mine and place it on a subwoofer and tinker with the setup till I can get the subwoofer vibrating with the rife machine. I record it and make a CD of different frequencies. Listening to the sound only is better for me because I can get burning in the feet from using the rife plasma tube. Re: Dr. Goldberg's book >> And those ionic foot spa. >> See: http://www.electronichealing.co.uk/products/detox_foot_spa.htm > > This foot spa is a lot less expensive than others that I've seen. > Is this what you are using, ? I know you had good initial > response to the foot spa, but what about long term benefits? Do > the improvements continue? > > Marc > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 Just thought some of you might like to know that Dr. Goldberg¹s book ³The Myth of Autism: How a Misunderstood Epidemic Is Destroying Our Children² arrived at my house yesterday (in the middle of our big ice storm here in Indiana). It came UPS. I had pre-ordered it from Amazon. Caroline G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 Oh, that's great! I hope mine arrives today! Sent from my iPhone On Feb 2, 2011, at 12:57 PM, Caroline Glover <sfglover@...> wrote: Just thought some of you might like to know that Dr. Goldberg’s book “The Myth of Autism: How a Misunderstood Epidemic Is Destroying Our Children†arrived at my house yesterday (in the middle of our big ice storm here in Indiana). It came UPS. I had pre-ordered it from Amazon. Caroline G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 We also received our copy under the same circumstances! Can't wait to read it! Gayle Re: Re: Dr. Goldberg's book Just thought some of you might like to know that Dr. Goldberg¹s book ³The Myth of Autism: How a Misunderstood Epidemic Is Destroying Our Children² arrived at my house yesterday (in the middle of our big ice storm here in Indiana). It came UPS. I had pre-ordered it from Amazon. Caroline G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 Sent via MOTOBLUR™ on Verizon Wireless Re: Re: Dr. Goldberg's book Just thought some of you might like to know that Dr. Goldberg¹s book ³The Myth of Autism: How a Misunderstood Epidemic Is Destroying Our Children² arrived at my house yesterday (in the middle of our big ice storm here in Indiana). It came UPS. I had pre-ordered it from Amazon. Caroline G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 My Amazon pre-ordered copy did not arrive today, and we’re in “sunny†Southern CA! I can’t wait to read it. What do you think of it? Kristy Nardini TazziniTM Stainless Steel Bottles <http://www.tazzini.com/> http://www.tazzini.com kristy@... Phone: 858.243.1929 Fax: 858.724.1418 <http://www.twitter.com/tazzini> Tweet with Us <http://www.facebook.com/tazzinicompany> Follow on Facebook From: [mailto: ] On Behalf Of gvizjazz@... Sent: Wednesday, February 02, 2011 11:53 AM Subject: Re: Re: Dr. Goldberg's book We also received our copy under the same circumstances! Can't wait to read it! Gayle Re: Re: Dr. Goldberg's book Just thought some of you might like to know that Dr. Goldberg¹s book ³The Myth of Autism: How a Misunderstood Epidemic Is Destroying Our Children² arrived at my house yesterday (in the middle of our big ice storm here in Indiana). It came UPS. I had pre-ordered it from Amazon. Caroline G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 We got ours on Tuesday. > > Just thought some of you might like to know that Dr. Goldberg¹s book ³The > Myth of Autism: How a Misunderstood Epidemic Is Destroying Our Children² > arrived at my house yesterday (in the middle of our big ice storm here in > Indiana). It came UPS. I had pre-ordered it from Amazon. > > Caroline G. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2011 Report Share Posted February 4, 2011 Kristy, I really haven¹t had a chance to sit down with it yet... we had all 5 kids home for much of this week with the storm and some were home sick on all the days that the rest went to school. I read the foreword by Dr. Mena and I¹m going to have to go back to that one while I¹m online so I can look some medical terminology up that I haven¹t heard before. Very interesting! I skimmed the parent stories in the back and felt they were beautifully written. I guess I¹ve been eating my dessert first and saving the best part for last... the main text of the book. I have only rapidly skimmed the rest of the book, but my first impression is that it is chock-full of fine material. For those of us who have been around a while, we¹ll recognize much of the information from other things he has written (or told us... since he has been teaching us all along the way). It seems an excellent compilation of his journey to help our children, and I¹m hopeful that doctors will be able to utilize the abundant information to help children if they are interested to do so. I also hope this book helps convince some medical/research personnel that our children are ILL... we need people who can make a difference in research. I¹m hoping to sit down on some quiet days (as if I ever have one) and read the book slowly, with a pencil in hand so I can write notes in the margins. I also want to note certain items so that we can refer people on the list to pages regarding certain topics if they have questions. I saw a few typos, etc. that I hope they can correct if there is a second edition printed. I used to work at a magazine... very closely with the editors, and their typo anxiety rubbed off on me... not that you can tell from my sorry typing. I was in the art department at the magazine (not an editor). Anyway, I hope you get your book soon... surely it won¹t be long! I just read that there are no Amazon warehouses in California because the taxes are too high (that may or may not be true)... but there is one in Indiana (my state), so maybe that¹s how I got my book so quickly. Caroline From: Kristy Nardini <knardini@...> Reply-< > Date: Wed, 02 Feb 2011 21:20:27 -0800 < > Subject: RE: Re: Dr. Goldberg's book My Amazon pre-ordered copy did not arrive today, and we¹re in ³sunny² Southern CA! I can¹t wait to read it. What do you think of it? Kristy Nardini Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 I have read the whole book. I was disappointed that there were not more full recovery stories as I believed that there were. Nonetheless, I loved all the parent accounts, they make me so happy. Although I believe that the cause of " autism " is immune/pathogenic, I did not understand why the assumption that it must be viral. If a person recovers on antivirals, it was probably viral, but other than that what about lyme, assorted bacteria, mycobacteria, worms, protozoa? The only mention was strep and yeast. Don't get me wrong, we are going to pursue antiviral therapy, but not quit treating lyme, strep, bartonella, babesia, and worms which we have diagnosed and seen tremendous gains from treating. Unfortunately, I guess we will need to work with a different doctor. Caryn > > > Kristy, > > I really haven¹t had a chance to sit down with it yet... we had all 5 kids > home for much of this week with the storm and some were home sick on all the > days that the rest went to school. I read the foreword by Dr. Mena and I¹m > going to have to go back to that one while I¹m online so I can look some > medical terminology up that I haven¹t heard before. Very interesting! > > I skimmed the parent stories in the back and felt they were beautifully > written. > > I guess I¹ve been eating my dessert first and saving the best part for > last... the main text of the book. > > I have only rapidly skimmed the rest of the book, but my first impression is > that it is chock-full of fine material. For those of us who have been > around a while, we¹ll recognize much of the information from other things he > has written (or told us... since he has been teaching us all along the way). > It seems an excellent compilation of his journey to help our children, and > I¹m hopeful that doctors will be able to utilize the abundant information to > help children if they are interested to do so. I also hope this book helps > convince some medical/research personnel that our children are ILL... we > need people who can make a difference in research. > > I¹m hoping to sit down on some quiet days (as if I ever have one) and read > the book slowly, with a pencil in hand so I can write notes in the margins. > I also want to note certain items so that we can refer people on the > list to pages regarding certain topics if they have questions. > > I saw a few typos, etc. that I hope they can correct if there is a second > edition printed. I used to work at a magazine... very closely with the > editors, and their typo anxiety rubbed off on me... not that you can tell > from my sorry typing. I was in the art department at the magazine (not an > editor). > > Anyway, I hope you get your book soon... surely it won¹t be long! I just > read that there are no Amazon warehouses in California because the taxes are > too high (that may or may not be true)... but there is one in Indiana (my > state), so maybe that¹s how I got my book so quickly. > > Caroline > > From: Kristy Nardini <knardini@...> > Reply-< > > Date: Wed, 02 Feb 2011 21:20:27 -0800 > < > > Subject: RE: Re: Dr. Goldberg's book > > My Amazon pre-ordered copy did not arrive today, and we¹re in ³sunny² > Southern CA! I can¹t wait to read it. What do you think of it? > > Kristy Nardini > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 Hi Caryn, I could be wrong, but I believe the underlying belief is that if lyme, strep, and other bacteria are able to take their place in our body, that it is more of an end result of an immune dysfunction than the initial cause, and that viral manipulation of the immune system is what is present to allow these bacterial infections. And I don't know that it is ONLY viral, but that viruses do play a huge part in it. For instance, I think one of the markers of chronic lyme is low NKs, and we know that HHV6 can infect NKs and modulate them, even when they are latent. Now, with the XMRV findings, we have another virus that is known to affect NKs and their function, and this could be the 'big pathogen' we're looking for, or another end result, but the findings in this virus are matching up strongly to CFS. And it's being found that many of the and CFS therapies do target this virus, even that dairy hormones can increase replication, etc. It's kind of like AIDS - where the presence of specific bacterial (and viral) infections are the end result of HIV, even though those bacteria cause some specific illness and symptoms.... HTH ________________________________ From: Caryn_Reid <caryn_reid@...> Sent: Sat, February 5, 2011 7:53:00 AM Subject: Re: Dr. Goldberg's book  I have read the whole book. I was disappointed that there were not more full recovery stories as I believed that there were. Nonetheless, I loved all the parent accounts, they make me so happy. Although I believe that the cause of " autism " is immune/pathogenic, I did not understand why the assumption that it must be viral. If a person recovers on antivirals, it was probably viral, but other than that what about lyme, assorted bacteria, mycobacteria, worms, protozoa? The only mention was strep and yeast. Don't get me wrong, we are going to pursue antiviral therapy, but not quit treating lyme, strep, bartonella, babesia, and worms which we have diagnosed and seen tremendous gains from treating. Unfortunately, I guess we will need to work with a different doctor. Caryn > > > Kristy, > > I really haven¹t had a chance to sit down with it yet... we had all 5 kids > home for much of this week with the storm and some were home sick on all the > days that the rest went to school. I read the foreword by Dr. Mena and I¹m > going to have to go back to that one while I¹m online so I can look some > medical terminology up that I haven¹t heard before. Very interesting! > > I skimmed the parent stories in the back and felt they were beautifully > written. > > I guess I¹ve been eating my dessert first and saving the best part for > last... the main text of the book. > > I have only rapidly skimmed the rest of the book, but my first impression is > that it is chock-full of fine material. For those of us who have been > around a while, we¹ll recognize much of the information from other things he > has written (or told us... since he has been teaching us all along the way). > It seems an excellent compilation of his journey to help our children, and > I¹m hopeful that doctors will be able to utilize the abundant information to > help children if they are interested to do so. I also hope this book helps > convince some medical/research personnel that our children are ILL... we > need people who can make a difference in research. > > I¹m hoping to sit down on some quiet days (as if I ever have one) and read > the book slowly, with a pencil in hand so I can write notes in the margins. > I also want to note certain items so that we can refer people on the > list to pages regarding certain topics if they have questions. > > I saw a few typos, etc. that I hope they can correct if there is a second > edition printed. I used to work at a magazine... very closely with the > editors, and their typo anxiety rubbed off on me... not that you can tell > from my sorry typing. I was in the art department at the magazine (not an > editor). > > Anyway, I hope you get your book soon... surely it won¹t be long! I just > read that there are no Amazon warehouses in California because the taxes are > too high (that may or may not be true)... but there is one in Indiana (my > state), so maybe that¹s how I got my book so quickly. > > Caroline > > From: Kristy Nardini <knardini@...> > Reply-< > > Date: Wed, 02 Feb 2011 21:20:27 -0800 > < > > Subject: RE: Re: Dr. Goldberg's book > > My Amazon pre-ordered copy did not arrive today, and we¹re in ³sunny² > Southern CA! I can¹t wait to read it. What do you think of it? > > Kristy Nardini > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 I have always felt we have something like AIDS and is as good a word as any (better than autism or crazy). I am not ruling out that the causative is viral, I just have not ruled it in yet. Caryn > > > > > > Kristy, > > > > I really haven¹t had a chance to sit down with it yet... we had all 5 kids > > home for much of this week with the storm and some were home sick on all the > > days that the rest went to school. I read the foreword by Dr. Mena and I¹m > > going to have to go back to that one while I¹m online so I can look some > > medical terminology up that I haven¹t heard before. Very interesting! > > > > I skimmed the parent stories in the back and felt they were beautifully > > written. > > > > I guess I¹ve been eating my dessert first and saving the best part for > > last... the main text of the book. > > > > I have only rapidly skimmed the rest of the book, but my first impression is > > that it is chock-full of fine material. For those of us who have been > > around a while, we¹ll recognize much of the information from other things he > > has written (or told us... since he has been teaching us all along the way). > > It seems an excellent compilation of his journey to help our children, and > > I¹m hopeful that doctors will be able to utilize the abundant information to > > help children if they are interested to do so. I also hope this book helps > > convince some medical/research personnel that our children are ILL... we > > need people who can make a difference in research. > > > > I¹m hoping to sit down on some quiet days (as if I ever have one) and read > > the book slowly, with a pencil in hand so I can write notes in the margins. > > I also want to note certain items so that we can refer people on the > > list to pages regarding certain topics if they have questions. > > > > I saw a few typos, etc. that I hope they can correct if there is a second > > edition printed. I used to work at a magazine... very closely with the > > editors, and their typo anxiety rubbed off on me... not that you can tell > > from my sorry typing. I was in the art department at the magazine (not an > > editor). > > > > Anyway, I hope you get your book soon... surely it won¹t be long! I just > > read that there are no Amazon warehouses in California because the taxes are > > too high (that may or may not be true)... but there is one in Indiana (my > > state), so maybe that¹s how I got my book so quickly. > > > > Caroline > > > > From: Kristy Nardini <knardini@> > > Reply-< > > > Date: Wed, 02 Feb 2011 21:20:27 -0800 > > < > > > Subject: RE: Re: Dr. Goldberg's book > > > > My Amazon pre-ordered copy did not arrive today, and we¹re in ³sunny² > > Southern CA! I can¹t wait to read it. What do you think of it? > > > > Kristy Nardini > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 Thanks for this. It was all getting way too confusing for me.! Jerri > > Hi Caryn, > I could be wrong, but I believe the underlying belief is that if lyme, > strep, > and other bacteria are able to take their place in our body, that it > is more of > an end result of an immune dysfunction than the initial cause, and > that viral > manipulation of the immune system is what is present to allow these > bacterial > infections. And I don't know that it is ONLY viral, but that viruses > do play a > huge part in it. > For instance, I think one of the markers of chronic lyme is low NKs, > and we know > that HHV6 can infect NKs and modulate them, even when they are > latent. Now, > with the XMRV findings, we have another virus that is known to affect > NKs and > their function, and this could be the 'big pathogen' we're looking > for, or > another end result, but the findings in this virus are matching up > strongly to > CFS. And it's being found that many of the and CFS therapies do > target > this virus, even that dairy hormones can increase replication, etc. > > It's kind of like AIDS - where the presence of specific bacterial (and > viral) > infections are the end result of HIV, even though those bacteria cause > some > specific illness and symptoms.... > HTH > > > ________________________________ > From: Caryn_Reid <caryn_reid@... <mailto:caryn_reid%40>> > <mailto:%40> > Sent: Sat, February 5, 2011 7:53:00 AM > Subject: Re: Dr. Goldberg's book > > > I have read the whole book. I was disappointed that there were not > more full > recovery stories as I believed that there were. Nonetheless, I loved > all the > parent accounts, they make me so happy. > > Although I believe that the cause of " autism " is immune/pathogenic, I > did not > understand why the assumption that it must be viral. If a person > recovers on > antivirals, it was probably viral, but other than that what about > lyme, assorted > bacteria, mycobacteria, worms, protozoa? The only mention was strep > and yeast. > > Don't get me wrong, we are going to pursue antiviral therapy, but not > quit > treating lyme, strep, bartonella, babesia, and worms which we have > diagnosed and > seen tremendous gains from treating. Unfortunately, I guess we will > need to work > with a different doctor. > > Caryn > > > > > > > > Kristy, > > > > I really haven¹t had a chance to sit down with it yet... we had all > 5 kids > > home for much of this week with the storm and some were home sick on > all the > > days that the rest went to school. I read the foreword by Dr. Mena > and I¹m > > going to have to go back to that one while I¹m online so I can look some > > medical terminology up that I haven¹t heard before. Very interesting! > > > > I skimmed the parent stories in the back and felt they were beautifully > > written. > > > > I guess I¹ve been eating my dessert first and saving the best part for > > last... the main text of the book. > > > > I have only rapidly skimmed the rest of the book, but my first > impression is > > that it is chock-full of fine material. For those of us who have been > > around a while, we¹ll recognize much of the information from other > things he > > has written (or told us... since he has been teaching us all along > the way). > > It seems an excellent compilation of his journey to help our > children, and > > I¹m hopeful that doctors will be able to utilize the abundant > information to > > help children if they are interested to do so. I also hope this book > helps > > convince some medical/research personnel that our children are ILL... we > > need people who can make a difference in research. > > > > I¹m hoping to sit down on some quiet days (as if I ever have one) > and read > > the book slowly, with a pencil in hand so I can write notes in the > margins. > > I also want to note certain items so that we can refer people on the > > > list to pages regarding certain topics if they have questions. > > > > I saw a few typos, etc. that I hope they can correct if there is a > second > > edition printed. I used to work at a magazine... very closely with the > > editors, and their typo anxiety rubbed off on me... not that you can > tell > > from my sorry typing. I was in the art department at the magazine > (not an > > editor). > > > > Anyway, I hope you get your book soon... surely it won¹t be long! I just > > read that there are no Amazon warehouses in California because the > taxes are > > too high (that may or may not be true)... but there is one in > Indiana (my > > state), so maybe that¹s how I got my book so quickly. > > > > Caroline > > > > From: Kristy Nardini <knardini@...> > > Reply-< <mailto:%40>> > > Date: Wed, 02 Feb 2011 21:20:27 -0800 > > < <mailto:%40>> > > Subject: RE: Re: Dr. Goldberg's book > > > > My Amazon pre-ordered copy did not arrive today, and we¹re in ³sunny² > > Southern CA! I can¹t wait to read it. What do you think of it? > > > > Kristy Nardini > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 What really opened my eyes to the viral issue was the book The Virus Within so you may want to read the account of the first CFS patients. Perhaps that could help you rule it in or out. Just a thought. Laureen On 2/5/11 1:13 PM, " Caryn_Reid " <caryn_reid@...> wrote: > > > > > > I have always felt we have something like AIDS and is as good a word as > any (better than autism or crazy). I am not ruling out that the causative is > viral, I just have not ruled it in yet. > > Caryn > > >>> > > >>> > > >>> > > Kristy, >>> > > >>> > > I really haven¹t had a chance to sit down with it yet... we had all 5 >>> kids >>> > > home for much of this week with the storm and some were home sick on all the >>> > > days that the rest went to school. I read the foreword by Dr. Mena and >>> I¹m >>> > > going to have to go back to that one while I¹m online so I can look >>> some >>> > > medical terminology up that I haven¹t heard before. Very interesting! >>> > > >>> > > I skimmed the parent stories in the back and felt they were beautifully >>> > > written. >>> > > >>> > > I guess I¹ve been eating my dessert first and saving the best part for >>> > > last... the main text of the book. >>> > > >>> > > I have only rapidly skimmed the rest of the book, but my first >>> impression is >>> > > that it is chock-full of fine material. For those of us who have been >>> > > around a while, we¹ll recognize much of the information from other >>> things he >>> > > has written (or told us... since he has been teaching us all along the >>> way). >>> > > It seems an excellent compilation of his journey to help our children, and >>> > > I¹m hopeful that doctors will be able to utilize the abundant >>> information to >>> > > help children if they are interested to do so. I also hope this book >>> helps >>> > > convince some medical/research personnel that our children are ILL... we >>> > > need people who can make a difference in research. >>> > > >>> > > I¹m hoping to sit down on some quiet days (as if I ever have one) and >>> read >>> > > the book slowly, with a pencil in hand so I can write notes in the >>> margins. >>> > > I also want to note certain items so that we can refer people on the >>> >>> > > list to pages regarding certain topics if they have questions. >>> > > >>> > > I saw a few typos, etc. that I hope they can correct if there is a >>> second >>> > > edition printed. I used to work at a magazine... very closely with the >>> > > editors, and their typo anxiety rubbed off on me... not that you can >>> tell >>> > > from my sorry typing. I was in the art department at the magazine (not an >>> > > editor). >>> > > >>> > > Anyway, I hope you get your book soon... surely it won¹t be long! I >>> just >>> > > read that there are no Amazon warehouses in California because the taxes are >>> > > too high (that may or may not be true)... but there is one in Indiana (my >>> > > state), so maybe that¹s how I got my book so quickly. >>> > > >>> > > Caroline >>> > > >>> > > From: Kristy Nardini <knardini@> >>> > > Reply-< <mailto:%40> > >>> > > Date: Wed, 02 Feb 2011 21:20:27 -0800 >>> > > < <mailto:%40> > >>> > > Subject: RE: Re: Dr. Goldberg's book >>> > > >>> > > My Amazon pre-ordered copy did not arrive today, and we¹re in ³sunny² >>> > > Southern CA! I can¹t wait to read it. What do you think of it? >>> > > >>> > > Kristy Nardini >>> > > >>> > > >>> > > >>> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 I read his book... I thought it was pretty frickin good. Fairly consise, pretty easy to understand... There seemed like some holes... areas where I wanted more info. Like on his website under CFS treatments (I think) there was a lot of good info that seemed to be missing from the book. I wanted to know more about possible future treatments. More current info about XMRV. I guess just more. When he says something in the DAN movement is bad, he often gives a sort of cursory explination as to why, or doesn't give the whole story about that particular treatment (that being said I think that many people are trying to treat a mysterious disease more or less by themselves with help from the internet with no medical, or research background, and some of the DAN practices might well be VERY dangerous (though probably not all).. they also have a lot of success stories... and some of their treatments mirror Dr. G's (antivirals, antifungals, No dairy, feingold diet, some of their goals seem to be the same... to regulate the immune system, rid body of bad pathogens or at least help it keep them in check) I believe this treatment/diagnosis just makes sense. Finally someone looks at my child and says... well he's sick... we'll I have known he was sick... he has looked and acted sick for years... and someone looking at CFS (and related illnesses fibromayalgia, etc.) and saying... your sick... I've known I was sick for years (though at time's I've nearly been convinced by doctors that I was just crazy/a hypochondriach) Here is one thing that I can't help thinking though... Doesn't this virus or pathogen causing immune disfunction seem kind of obvious... if a bunch of people present as sick (i.e. autism and the many related symptoms, CF, Fibromayalgia, MS, etc. ) than maybe, i don't know... they are sick. He can't be the first person to say, well I think maybe they are sick... i.e. there is some pathogen making them sick, and from the markers it looks like it might be affecting their immune system. I guess it just seems odd to me that this hasn't been thouroughly researched before and been disproven or something. Has it been? Is there something I don't know here. Why would so many doctors/researchers ignore markers if they are just that, markers of a problem (one's that in many cases they used to pay attention to... it seemed a little unclear why they fell out of favor) I am not a real conspiracy person, so that part just leaves me sort of scratching my head. Aren't their millions/billions of viruses/bacteria/ fungi/ retro viruses etc out there ... obviously we can't know about and have the technology to identify them all. Can it really be a case of too much pride in the medical research industry, a world wide medical research community unwilling to look at a very obvious possible cause, that seems to be indicated by markers they know can indicate that very thing. Does Dr. G just do such a good job explaining it that it seems like it should have been obvious? I sort of wonder if there is a body of research that is not talked about in the book where they already looked into these obvious causes and said No it can't be that and here is why. It does leave me scratching my head a little bit. But... That being said, from the moment I heard Dr G speak (on utube) a light went on, I said...that's what's wrong with my kid (and for that matter, me). For years I kept thinking my son looks sick, tired... he's not screaming because he has behavioral problems, he's screaming because he doesn't feel good, and his brain won't seem to do what others are asking him to do and what he himself inately knows it should do, and he's frustrated. So anyway I just wanted to throw those thoughts out there and see what came back. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2011 Report Share Posted February 9, 2011 Hi, We had the pleasure to meet dr G last week and he had a copy of his book at his office and he got to share his book with us while we there. It was so sweet of him. He is a great man and very caring. H Holmes. ________________________________ From: <thecolemans4@...> Sent: Sat, February 5, 2011 1:10:15 PM Subject: Re: Re: Dr. Goldberg's book  Hi Caryn, I could be wrong, but I believe the underlying belief is that if lyme, strep, and other bacteria are able to take their place in our body, that it is more of an end result of an immune dysfunction than the initial cause, and that viral manipulation of the immune system is what is present to allow these bacterial infections. And I don't know that it is ONLY viral, but that viruses do play a huge part in it. For instance, I think one of the markers of chronic lyme is low NKs, and we know that HHV6 can infect NKs and modulate them, even when they are latent. Now, with the XMRV findings, we have another virus that is known to affect NKs and their function, and this could be the 'big pathogen' we're looking for, or another end result, but the findings in this virus are matching up strongly to CFS. And it's being found that many of the and CFS therapies do target this virus, even that dairy hormones can increase replication, etc. It's kind of like AIDS - where the presence of specific bacterial (and viral) infections are the end result of HIV, even though those bacteria cause some specific illness and symptoms.... HTH ________________________________ From: Caryn_Reid <caryn_reid@...> Sent: Sat, February 5, 2011 7:53:00 AM Subject: Re: Dr. Goldberg's book  I have read the whole book. I was disappointed that there were not more full recovery stories as I believed that there were. Nonetheless, I loved all the parent accounts, they make me so happy. Although I believe that the cause of " autism " is immune/pathogenic, I did not understand why the assumption that it must be viral. If a person recovers on antivirals, it was probably viral, but other than that what about lyme, assorted bacteria, mycobacteria, worms, protozoa? The only mention was strep and yeast. Don't get me wrong, we are going to pursue antiviral therapy, but not quit treating lyme, strep, bartonella, babesia, and worms which we have diagnosed and seen tremendous gains from treating. Unfortunately, I guess we will need to work with a different doctor. Caryn > > > Kristy, > > I really haven¹t had a chance to sit down with it yet... we had all 5 kids > home for much of this week with the storm and some were home sick on all the > days that the rest went to school. I read the foreword by Dr. Mena and I¹m > going to have to go back to that one while I¹m online so I can look some > medical terminology up that I haven¹t heard before. Very interesting! > > I skimmed the parent stories in the back and felt they were beautifully > written. > > I guess I¹ve been eating my dessert first and saving the best part for > last... the main text of the book. > > I have only rapidly skimmed the rest of the book, but my first impression is > that it is chock-full of fine material. For those of us who have been > around a while, we¹ll recognize much of the information from other things he > has written (or told us... since he has been teaching us all along the way). > It seems an excellent compilation of his journey to help our children, and > I¹m hopeful that doctors will be able to utilize the abundant information to > help children if they are interested to do so. I also hope this book helps > convince some medical/research personnel that our children are ILL... we > need people who can make a difference in research. > > I¹m hoping to sit down on some quiet days (as if I ever have one) and read > the book slowly, with a pencil in hand so I can write notes in the margins. > I also want to note certain items so that we can refer people on the > list to pages regarding certain topics if they have questions. > > I saw a few typos, etc. that I hope they can correct if there is a second > edition printed. I used to work at a magazine... very closely with the > editors, and their typo anxiety rubbed off on me... not that you can tell > from my sorry typing. I was in the art department at the magazine (not an > editor). > > Anyway, I hope you get your book soon... surely it won¹t be long! I just > read that there are no Amazon warehouses in California because the taxes are > too high (that may or may not be true)... but there is one in Indiana (my > state), so maybe that¹s how I got my book so quickly. > > Caroline > > From: Kristy Nardini <knardini@...> > Reply-< > > Date: Wed, 02 Feb 2011 21:20:27 -0800 > < > > Subject: RE: Re: Dr. Goldberg's book > > My Amazon pre-ordered copy did not arrive today, and we¹re in ³sunny² > Southern CA! I can¹t wait to read it. What do you think of it? > > Kristy Nardini > > > > Quote Link to comment Share on other sites More sharing options...
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