RE: Our first appt with Dr. G

[Guest guest]

Hi, Kathi.

I have three boys on the protocol and I know how you feel regarding the diet. It

appears to counter all we are told about proper nutrition. My middle son, Noah,

who has the " A " word, also had Cyclical Vomiting Syndrome when we started with

Dr. G. He vomited once a month for 3 to 5 days and suffered horrendous migraines

before and and after vomiting episodes. The poor baby lived like this for more

than two years. Four months into antviral therapy and the diet, it stopped.

No more vomiting and the migraines went from 4 to 5 per month to maybe 1 or 2

per month.

Gut issues are tough and not always what they appear to be. My husband has been

suffering symptoms for nearly a decade like what you describe with your son. He

has had countless colonoscopies and endoscopies over the years with no real

answers except severe esophageal gastritis and a large hiatel hernia. He was

just given medications that didn't work. Finally, we went to Cedars and found

out he has a rare condition called eosonophilic esophagitis, and it's probably

caused by something he's eating. In my opinion, it's probably grain based in

nature. We are waiting for food allergy results. I believe a lot of gastro

problems may be explained by people eating offending foods.

Regarding the SCD diet, I have read about it but not in a while. With the

exception of mango, the foods you listed should be fine. Although I use organic

fruits and vegetables whenever possible, I steer clear of organic meats because

the feed used to raise these animals is usually whole grain. Believe it or not,

that can affect the gut and the child. Dr. G has a patient overseas that

suddenly went into a tailspin after doing well. Turned out parents had switched

her to grain fed veal. Once they removed it, she returned to her former level of

functioning.

Regarding the diet, you just have to minimize grain-based carbs, offer plenty of

protein and vegetables and two servings of fruit per day. There is no

requirement to offer bread; it's often just used as a vehicle to get kids to eat

protein. We use potato bread.

I hope this helps. Please keep posting. The parents on this list are amazing!

All the best,

Robyn

From: Kathi <kathi0908@...>

Subject: Our first appt with Dr. G

Date: Friday, January 28, 2011, 10:16 AM

 

Hi Everyone,

We flew to LA from Philly to see Dr. G this past Monday. My son just turned

5 and we’ve been doing biomeds since he was about 19 months old (started out

slow and have tried several things, no chelation or HBOT; mostly

supplements, some antifungals, antibacterial/antiprotozoals, etc). Anyway,

as you all know, he wants me to remove all of Liam supplements, including

LDN (b/c it has no long term studies, so there’s no long term info on what

it could do to our children), enzymes, probiotics, etc etc. We don’t have

to remove the LDN yet (doing all supps right now, then when we talk next

probably the LDN). I want to know if any of you removed LDN and if you just

dropped it or went slowly??

SO, I am going to try all this b/c I think Liam needs this approach and I

know I can’t do this half-assed ;-) In the meantime, we are on a strict

SCDiet and have been for about 20 months. Right now he’s eating pork, beef,

chicken, salmon, peas, carrots, string beans, cauliflower, spaghetti and

butternut squashes, apples, pears, bananas, mango (I know this one is a

tropical fruit so now it’s out). Everything is organic, free range, grass

fed, etc. healthiest I can find. However, I’m really nervous about adding

other foods. Before doing SCD he had major GI issues, screamed/cried in

pain so much until we got him dx’ed with the enterolitis/crohn’s disease

(which as you know Dr. G doesn’t really believe in re DX and TX of that, but

it did help Liam stop banging his head so much and he finally started

gaining weight). He’s a big gut kiddo and head banger, hitter, when he’s in

pain with his belly. He’s come a long way on SCD and gained some weight

during the past 1 ½ years (was stuck at 28 lbs for 1.5 years before SCD).

I am not sure where’s best to start…thinking once a week with organic white

potatoes…?? Does anyone have a suggestion for a good book that focuses on

low allergen foods? I don’t feel like I got enough info on this at the

doctor’s office and I think it’s really important to have more guidance. I

went to the store yesterday and looked at the wonder bread, which he

suggested and I just can’t give it to Liam. It has soy in it (I’ve read too

much about how bad soy is for us b/c its 90% genetically modified in the US,

plus he’s allergic anyway, per testing at UMDNJ), lists milk and wheat too.

I was surprised to see soy and milk listed, no matter what Wonder bread type

I picked up. I also was surprised that Dr. G told me he was fine with soy,

since it’s such a big GMO food and it seems our kids immune system wouldn’t

respond well (still need to read more on this and understand his

perspective, as we didn’t spend time on it, so probably why I’m a little

confused….any additional info, please share).

So I guess my main question is to share any books / ideas on the diet. I

don’t feel like there’s a lot of info and we’ve been down a very long,

hard

road since my son started projectile vomiting at 2 weeks old and screaming

at every bottle/meal. We are finally off of meds for reflux and have

brought his gut a long way, but still have a long way to go. I don’t want

him to crash again b/c I just can’t imagine putting him through another

endoscopy/colonoscopy, etc etc or steroids. I want to really figure out

what’s best for him for a diet approach that won’t make him have a major

Crohn’s flare.

Thanks for reading; sorry this is so long!

Kathi

[Guest guest]

Find a local farm that sells grass fed beef, lamb and so forth. Best.

Sent from my iPhone

On Jan 28, 2011, at 3:22 PM, Robyn & Greg Coggins <rngcoggs@...>

wrote:

> Hi, Kathi.

>

> I have three boys on the protocol and I know how you feel regarding the diet.

It appears to counter all we are told about proper nutrition. My middle son,

Noah, who has the " A " word, also had Cyclical Vomiting Syndrome when we started

with Dr. G. He vomited once a month for 3 to 5 days and suffered horrendous

migraines before and and after vomiting episodes. The poor baby lived like this

for more than two years. Four months into antviral therapy and the diet, it

stopped. No more vomiting and the migraines went from 4 to 5 per month to maybe

1 or 2 per month.

>

> Gut issues are tough and not always what they appear to be. My husband has

been suffering symptoms for nearly a decade like what you describe with your

son. He has had countless colonoscopies and endoscopies over the years with no

real answers except severe esophageal gastritis and a large hiatel hernia. He

was just given medications that didn't work. Finally, we went to Cedars and

found out he has a rare condition called eosonophilic esophagitis, and it's

probably caused by something he's eating. In my opinion, it's probably grain

based in nature. We are waiting for food allergy results. I believe a lot of

gastro problems may be explained by people eating offending foods.

>

> Regarding the SCD diet, I have read about it but not in a while. With the

exception of mango, the foods you listed should be fine. Although I use organic

fruits and vegetables whenever possible, I steer clear of organic meats because

the feed used to raise these animals is usually whole grain. Believe it or not,

that can affect the gut and the child. Dr. G has a patient overseas that

suddenly went into a tailspin after doing well. Turned out parents had switched

her to grain fed veal. Once they removed it, she returned to her former level of

functioning.

>

> Regarding the diet, you just have to minimize grain-based carbs, offer plenty

of protein and vegetables and two servings of fruit per day. There is no

requirement to offer bread; it's often just used as a vehicle to get kids to eat

protein. We use potato bread.

>

> I hope this helps. Please keep posting. The parents on this list are amazing!

>

> All the best,

>

> Robyn

>

>

>

> From: Kathi <kathi0908@...>

> Subject: Our first appt with Dr. G

>

> Date: Friday, January 28, 2011, 10:16 AM

>

>

>

> Hi Everyone,

>

> We flew to LA from Philly to see Dr. G this past Monday. My son just turned

>

> 5 and we’ve been doing biomeds since he was about 19 months old (started out

>

> slow and have tried several things, no chelation or HBOT; mostly

>

> supplements, some antifungals, antibacterial/antiprotozoals, etc). Anyway,

>

> as you all know, he wants me to remove all of Liam supplements, including

>

> LDN (b/c it has no long term studies, so there’s no long term info on what

>

> it could do to our children), enzymes, probiotics, etc etc. We don’t have

>

> to remove the LDN yet (doing all supps right now, then when we talk next

>

> probably the LDN). I want to know if any of you removed LDN and if you just

>

> dropped it or went slowly??

>

> SO, I am going to try all this b/c I think Liam needs this approach and I

>

> know I can’t do this half-assed ;-) In the meantime, we are on a strict

>

> SCDiet and have been for about 20 months. Right now he’s eating pork, beef,

>

> chicken, salmon, peas, carrots, string beans, cauliflower, spaghetti and

>

> butternut squashes, apples, pears, bananas, mango (I know this one is a

>

> tropical fruit so now it’s out). Everything is organic, free range, grass

>

> fed, etc. healthiest I can find. However, I’m really nervous about adding

>

> other foods. Before doing SCD he had major GI issues, screamed/cried in

>

> pain so much until we got him dx’ed with the enterolitis/crohn’s disease

>

> (which as you know Dr. G doesn’t really believe in re DX and TX of that, but

>

> it did help Liam stop banging his head so much and he finally started

>

> gaining weight). He’s a big gut kiddo and head banger, hitter, when he’s

in

>

> pain with his belly. He’s come a long way on SCD and gained some weight

>

> during the past 1 ½ years (was stuck at 28 lbs for 1.5 years before SCD).

>

> I am not sure where’s best to start…thinking once a week with organic

white

>

> potatoes…?? Does anyone have a suggestion for a good book that focuses on

>

> low allergen foods? I don’t feel like I got enough info on this at the

>

> doctor’s office and I think it’s really important to have more guidance. I

>

> went to the store yesterday and looked at the wonder bread, which he

>

> suggested and I just can’t give it to Liam. It has soy in it (I’ve read

too

>

> much about how bad soy is for us b/c its 90% genetically modified in the US,

>

> plus he’s allergic anyway, per testing at UMDNJ), lists milk and wheat too.

>

> I was surprised to see soy and milk listed, no matter what Wonder bread type

>

> I picked up. I also was surprised that Dr. G told me he was fine with soy,

>

> since it’s such a big GMO food and it seems our kids immune system

wouldn’t

>

> respond well (still need to read more on this and understand his

>

> perspective, as we didn’t spend time on it, so probably why I’m a little

>

> confused….any additional info, please share).

>

> So I guess my main question is to share any books / ideas on the diet. I

>

> don’t feel like there’s a lot of info and we’ve been down a very long,

hard

>

> road since my son started projectile vomiting at 2 weeks old and screaming

>

> at every bottle/meal. We are finally off of meds for reflux and have

>

> brought his gut a long way, but still have a long way to go. I don’t want

>

> him to crash again b/c I just can’t imagine putting him through another

>

> endoscopy/colonoscopy, etc etc or steroids. I want to really figure out

>

> what’s best for him for a diet approach that won’t make him have a major

>

> Crohn’s flare.

>

> Thanks for reading; sorry this is so long!

>

> Kathi

>

>

[Guest guest]

Robyn,

Thanks so much. Fyi…there are a lot of folks on the SCD that they or their

kids have EE (esonophilic esophagitis); Liam was tested for it with both his

endoscopies (biopsies) and he doesn’t have it. A LOT of those folks think

that grains, specifically gluten, absolutely exacerbates the symptoms of EE.

Maybe your husband could read breaking the viscious cycle or check out

pecanbread.com or BTVC.com (they have too).

I am so excited to start the valtrex next week, as he’s had terrible headaches

since infancy; makes me so sad! Thank you for sharing that. If I could get

offending foods out (doing another igg test; haven’t done one since he’s

been 2 1/2), I am sure the headaches will get better; been rotating and

removing, just can’t figure out why the headaches are still there and the dark

circles;(

I am trying to search today for a good potato bread recipe, so since you

mentioned it below, can you share --- I’d love a store bought one for

back-up, if you have a brand?? Oh and I buy our meats only from grass-fed beef.

The problem is the chicken. I get it from whole foods – organic, free range,

but it’s hard to find non-grain fed. If you know of a brand, please share. I

am looking into our local farmers markets for it through localharvest.org and

eatwild.com, which have both been awesome references for local stuff the past

few years since we got hard core on this stuff (it’s often cheaper than whole

foods and just as good, if not better meats;-)

I am praying that all this time, effort, travel was worth it; we shall see. I

refuse to get my hopes up; been disappointed too much, so going day by day, but

I am optimistic.

Thanks again,

Kathi

From: [mailto: ] On Behalf Of Robyn &

Greg Coggins

Sent: Friday, January 28, 2011 3:23 PM

Subject: Re: Our first appt with Dr. G

Hi, Kathi.

I have three boys on the protocol and I know how you feel regarding the diet. It

appears to counter all we are told about proper nutrition. My middle son, Noah,

who has the " A " word, also had Cyclical Vomiting Syndrome when we started with

Dr. G. He vomited once a month for 3 to 5 days and suffered horrendous migraines

before and and after vomiting episodes. The poor baby lived like this for more

than two years. Four months into antviral therapy and the diet, it stopped.

No more vomiting and the migraines went from 4 to 5 per month to maybe 1 or 2

per month.

Gut issues are tough and not always what they appear to be. My husband has been

suffering symptoms for nearly a decade like what you describe with your son. He

has had countless colonoscopies and endoscopies over the years with no real

answers except severe esophageal gastritis and a large hiatel hernia. He was

just given medications that didn't work. Finally, we went to Cedars and found

out he has a rare condition called eosonophilic esophagitis, and it's probably

caused by something he's eating. In my opinion, it's probably grain based in

nature. We are waiting for food allergy results. I believe a lot of gastro

problems may be explained by people eating offending foods.

Regarding the SCD diet, I have read about it but not in a while. With the

exception of mango, the foods you listed should be fine. Although I use organic

fruits and vegetables whenever possible, I steer clear of organic meats because

the feed used to raise these animals is usually whole grain. Believe it or not,

that can affect the gut and the child. Dr. G has a patient overseas that

suddenly went into a tailspin after doing well. Turned out parents had switched

her to grain fed veal. Once they removed it, she returned to her former level of

functioning.

Regarding the diet, you just have to minimize grain-based carbs, offer plenty of

protein and vegetables and two servings of fruit per day. There is no

requirement to offer bread; it's often just used as a vehicle to get kids to eat

protein. We use potato bread.

I hope this helps. Please keep posting. The parents on this list are amazing!

All the best,

Robyn

From: Kathi <kathi0908@... <mailto:kathi0908%40verizon.net> >

Subject: Our first appt with Dr. G

<mailto:%40>

Date: Friday, January 28, 2011, 10:16 AM

Hi Everyone,

We flew to LA from Philly to see Dr. G this past Monday. My son just turned

5 and we’ve been doing biomeds since he was about 19 months old (started out

slow and have tried several things, no chelation or HBOT; mostly

supplements, some antifungals, antibacterial/antiprotozoals, etc). Anyway,

as you all know, he wants me to remove all of Liam supplements, including

LDN (b/c it has no long term studies, so there’s no long term info on what

it could do to our children), enzymes, probiotics, etc etc. We don’t have

to remove the LDN yet (doing all supps right now, then when we talk next

probably the LDN). I want to know if any of you removed LDN and if you just

dropped it or went slowly??

SO, I am going to try all this b/c I think Liam needs this approach and I

know I can’t do this half-assed ;-) In the meantime, we are on a strict

SCDiet and have been for about 20 months. Right now he’s eating pork, beef,

chicken, salmon, peas, carrots, string beans, cauliflower, spaghetti and

butternut squashes, apples, pears, bananas, mango (I know this one is a

tropical fruit so now it’s out). Everything is organic, free range, grass

fed, etc. healthiest I can find. However, I’m really nervous about adding

other foods. Before doing SCD he had major GI issues, screamed/cried in

pain so much until we got him dx’ed with the enterolitis/crohn’s disease

(which as you know Dr. G doesn’t really believe in re DX and TX of that, but

it did help Liam stop banging his head so much and he finally started

gaining weight). He’s a big gut kiddo and head banger, hitter, when he’s in

pain with his belly. He’s come a long way on SCD and gained some weight

during the past 1 ½ years (was stuck at 28 lbs for 1.5 years before SCD).

I am not sure where’s best to start…thinking once a week with organic white

potatoes…?? Does anyone have a suggestion for a good book that focuses on

low allergen foods? I don’t feel like I got enough info on this at the

doctor’s office and I think it’s really important to have more guidance. I

went to the store yesterday and looked at the wonder bread, which he

suggested and I just can’t give it to Liam. It has soy in it (I’ve read too

much about how bad soy is for us b/c its 90% genetically modified in the US,

plus he’s allergic anyway, per testing at UMDNJ), lists milk and wheat too.

I was surprised to see soy and milk listed, no matter what Wonder bread type

I picked up. I also was surprised that Dr. G told me he was fine with soy,

since it’s such a big GMO food and it seems our kids immune system wouldn’t

respond well (still need to read more on this and understand his

perspective, as we didn’t spend time on it, so probably why I’m a little

confused….any additional info, please share).

So I guess my main question is to share any books / ideas on the diet. I

don’t feel like there’s a lot of info and we’ve been down a very long,

hard

road since my son started projectile vomiting at 2 weeks old and screaming

at every bottle/meal. We are finally off of meds for reflux and have

brought his gut a long way, but still have a long way to go. I don’t want

him to crash again b/c I just can’t imagine putting him through another

endoscopy/colonoscopy, etc etc or steroids. I want to really figure out

what’s best for him for a diet approach that won’t make him have a major

Crohn’s flare.

Thanks for reading; sorry this is so long!

Kathi

[Guest guest]

Hi, Kathi.

Thanks for the websites regarding Esonophilic Esophagitis. I'll pass them on to

my husband. Regarding the bread issue, we use Orowheat potato bread. I have no

suggestions on non-grain fed chicken. We live in an area that has few resources

for organic meats.

Cautiously optimistic is a good attitude for embarking on any new protocol. You

don't want to deny or imagine improvements. I pray you have a positive

experience. I don't know what we would do without Dr. Goldberg.

All the best,

Robyn

From: Kathi <kathi0908@... <mailto:kathi0908%40verizon.net> >

Subject: Our first appt with Dr. G

<mailto:%40>

Date: Friday, January 28, 2011, 10:16 AM

Hi Everyone,

We flew to LA from Philly to see Dr. G this past Monday. My son just turned

5 and we’ve been doing biomeds since he was about 19 months old (started out

slow and have tried several things, no chelation or HBOT; mostly

supplements, some antifungals, antibacterial/antiprotozoals, etc). Anyway,

as you all know, he wants me to remove all of Liam supplements, including

LDN (b/c it has no long term studies, so there’s no long term info on what

it could do to our children), enzymes, probiotics, etc etc. We don’t have

to remove the LDN yet (doing all supps right now, then when we talk next

probably the LDN). I want to know if any of you removed LDN and if you just

dropped it or went slowly??

SO, I am going to try all this b/c I think Liam needs this approach and I

know I can’t do this half-assed ;-) In the meantime, we are on a strict

SCDiet and have been for about 20 months. Right now he’s eating pork, beef,

chicken, salmon, peas, carrots, string beans, cauliflower, spaghetti and

butternut squashes, apples, pears, bananas, mango (I know this one is a

tropical fruit so now it’s out). Everything is organic, free range, grass

fed, etc. healthiest I can find. However, I’m really nervous about adding

other foods. Before doing SCD he had major GI issues, screamed/cried in

pain so much until we got him dx’ed with the enterolitis/crohn’s disease

(which as you know Dr. G doesn’t really believe in re DX and TX of that, but

it did help Liam stop banging his head so much and he finally started

gaining weight). He’s a big gut kiddo and head banger, hitter, when he’s in

pain with his belly. He’s come a long way on SCD and gained some weight

during the past 1 ½ years (was stuck at 28 lbs for 1.5 years before SCD).

I am not sure where’s best to start…thinking once a week with organic white

potatoes…?? Does anyone have a suggestion for a good book that focuses on

low allergen foods? I don’t feel like I got enough info on this at the

doctor’s office and I think it’s really important to have more guidance. I

went to the store yesterday and looked at the wonder bread, which he

suggested and I just can’t give it to Liam. It has soy in it (I’ve read too

much about how bad soy is for us b/c its 90% genetically modified in the US,

plus he’s allergic anyway, per testing at UMDNJ), lists milk and wheat too.

I was surprised to see soy and milk listed, no matter what Wonder bread type

I picked up. I also was surprised that Dr. G told me he was fine with soy,

since it’s such a big GMO food and it seems our kids immune system wouldn’t

respond well (still need to read more on this and understand his

perspective, as we didn’t spend time on it, so probably why I’m a little

confused….any additional info, please share).

So I guess my main question is to share any books / ideas on the diet. I

don’t feel like there’s a lot of info and we’ve been down a very long,

hard

road since my son started projectile vomiting at 2 weeks old and screaming

at every bottle/meal. We are finally off of meds for reflux and have

brought his gut a long way, but still have a long way to go. I don’t want

him to crash again b/c I just can’t imagine putting him through another

endoscopy/colonoscopy, etc etc or steroids. I want to really figure out

what’s best for him for a diet approach that won’t make him have a major

Crohn’s flare.

Thanks for reading; sorry this is so long!

Kathi

[Guest guest]

You can find grass-fed beef farmers thru the Weston Price Foundation, and there

are usually local chapters with their own .  You may have to find

people who would go in on it with you as they're often sold as full sides of

beef, which I wouldn't know how to utilize.

You may be fascinated by the raw milk information you would find there, about

the enzymes, probiotics, and how certain types of cow milk type don't

stimulate

the immune system the same way, and how it's considered to reduce allergies,

but

it's not ok with the protocol.  And there are plenty of people w/kids with

autism who have tried it and ended up developing their own Weston Price groups

with dairy allergies because they weren't able to use it.  Just a forwarning. 

I'm fascinated by WPI and utilize a few things like the broths, but we can't go

as far as sprouted grains to be able to use whole grains or anything like

that. 

If we didn't have the kind of immune dysfunction we have, I'd be all over that

diet.

HTH

________________________________

From: <rogerbruneau@...>

" " < >

Sent: Fri, January 28, 2011 2:57:19 PM

Subject: Re: Our first appt with Dr. G

 

Find a local farm that sells grass fed beef, lamb and so forth. Best.

Sent from my iPhone

On Jan 28, 2011, at 3:22 PM, Robyn & Greg Coggins <rngcoggs@...>

wrote:

> Hi, Kathi.

>

> I have three boys on the protocol and I know how you feel regarding the diet.

>It appears to counter all we are told about proper nutrition. My middle son,

>Noah, who has the " A " word, also had Cyclical Vomiting Syndrome when we started

>with Dr. G. He vomited once a month for 3 to 5 days and suffered horrendous

>migraines before and and after vomiting episodes. The poor baby lived like this

>for more than two years. Four months into antviral therapy and the diet,

it

>stopped. No more vomiting and the migraines went from 4 to 5 per month to maybe

>1 or 2 per month.

>

> Gut issues are tough and not always what they appear to be. My husband has

been

>suffering symptoms for nearly a decade like what you describe with your son. He

>has had countless colonoscopies and endoscopies over the years with no real

>answers except severe esophageal gastritis and a large hiatel hernia. He was

>just given medications that didn't work. Finally, we went to Cedars and found

>out he has a rare condition called eosonophilic esophagitis, and it's probably

>caused by something he's eating. In my opinion, it's probably grain based in

>nature. We are waiting for food allergy results. I believe a lot of gastro

>problems may be explained by people eating offending foods.

>

> Regarding the SCD diet, I have read about it but not in a while. With the

>exception of mango, the foods you listed should be fine. Although I use organic

>fruits and vegetables whenever possible, I steer clear of organic meats because

>the feed used to raise these animals is usually whole grain. Believe it or not,

>that can affect the gut and the child. Dr. G has a patient overseas that

>suddenly went into a tailspin after doing well. Turned out parents had switched

>her to grain fed veal. Once they removed it, she returned to her former level

of

>functioning.

>

> Regarding the diet, you just have to minimize grain-based carbs, offer plenty

>of protein and vegetables and two servings of fruit per day. There is no

>requirement to offer bread; it's often just used as a vehicle to get kids to

eat

>protein. We use potato bread.

>

> I hope this helps. Please keep posting. The parents on this list are amazing!

>

> All the best,

>

> Robyn

>

>

>

> From: Kathi <kathi0908@...>

> Subject: Our first appt with Dr. G

>

> Date: Friday, January 28, 2011, 10:16 AM

>

>

>

> Hi Everyone,

>

> We flew to LA from Philly to see Dr. G this past Monday. My son just turned

>

> 5 and we’ve been doing biomeds since he was about 19 months old (started out

>

> slow and have tried several things, no chelation or HBOT; mostly

>

> supplements, some antifungals, antibacterial/antiprotozoals, etc). Anyway,

>

> as you all know, he wants me to remove all of Liam supplements, including

>

> LDN (b/c it has no long term studies, so there’s no long term info on what

>

> it could do to our children), enzymes, probiotics, etc etc. We don’t have

>

> to remove the LDN yet (doing all supps right now, then when we talk next

>

> probably the LDN). I want to know if any of you removed LDN and if you just

>

> dropped it or went slowly??

>

> SO, I am going to try all this b/c I think Liam needs this approach and I

>

> know I can’t do this half-assed ;-) In the meantime, we are on a strict

>

> SCDiet and have been for about 20 months. Right now he’s eating pork, beef,

>

> chicken, salmon, peas, carrots, string beans, cauliflower, spaghetti and

>

> butternut squashes, apples, pears, bananas, mango (I know this one is a

>

> tropical fruit so now it’s out). Everything is organic, free range, grass

>

> fed, etc. healthiest I can find. However, I’m really nervous about adding

>

> other foods. Before doing SCD he had major GI issues, screamed/cried in

>

> pain so much until we got him dx’ed with the enterolitis/crohn’s disease

>

> (which as you know Dr. G doesn’t really believe in re DX and TX of that, but

>

> it did help Liam stop banging his head so much and he finally started

>

> gaining weight). He’s a big gut kiddo and head banger, hitter, when he’s

in

>

> pain with his belly. He’s come a long way on SCD and gained some weight

>

> during the past 1 ½ years (was stuck at 28 lbs for 1.5 years before SCD).

>

> I am not sure where’s best to start…thinking once a week with organic

white

>

> potatoes…?? Does anyone have a suggestion for a good book that focuses on

>

> low allergen foods? I don’t feel like I got enough info on this at the

>

> doctor’s office and I think it’s really important to have more guidance. I

>

> went to the store yesterday and looked at the wonder bread, which he

>

> suggested and I just can’t give it to Liam. It has soy in it (I’ve read

too

>

> much about how bad soy is for us b/c its 90% genetically modified in the US,

>

> plus he’s allergic anyway, per testing at UMDNJ), lists milk and wheat too.

>

> I was surprised to see soy and milk listed, no matter what Wonder bread type

>

> I picked up. I also was surprised that Dr. G told me he was fine with soy,

>

> since it’s such a big GMO food and it seems our kids immune system

wouldn’t

>

> respond well (still need to read more on this and understand his

>

> perspective, as we didn’t spend time on it, so probably why I’m a little

>

> confused….any additional info, please share).

>

> So I guess my main question is to share any books / ideas on the diet. I

>

> don’t feel like there’s a lot of info and we’ve been down a very long,

hard

>

> road since my son started projectile vomiting at 2 weeks old and screaming

>

> at every bottle/meal. We are finally off of meds for reflux and have

>

> brought his gut a long way, but still have a long way to go. I don’t want

>

> him to crash again b/c I just can’t imagine putting him through another

>

> endoscopy/colonoscopy, etc etc or steroids. I want to really figure out

>

> what’s best for him for a diet approach that won’t make him have a major

>

> Crohn’s flare.

>

> Thanks for reading; sorry this is so long!

>

> Kathi

>

>