RE: RE: Eye contact lost on Diflucan

[Guest guest]

In the theory that this could be 'die off', what about activated charocoal 2 hrs

after giving diflucan?

We use it to take down die off symptoms and it works. It can help with the

release of toxins. For my son, he always regressed and lost skills at the start

of new antifungals, but 3 weeks later was back and sharper.

I hope he will get better soon! Hang on!

Robin Driver

Sent via MOTOBLURâ„¢ on Verizon Wireless

RE: Eye contact lost on Diflucan

Can somebody give me some advice...it was very hard day...:-(

Well with the change from Nystatin to Diflucan his eyes have not been able

to focus on anything! He has completely lost eye contact. I yelled at him

tonight for not being able to look at me and he said he can't help - he

cannot keep them focused on anything. I am seriously considering going back

to Nystatin. He was doing much better on it and we were seeing a lot of

improvements.

[Guest guest]

How long has he been taking diflucan? This could be a die-off reaction.

I recall years ago when my yeast was high, two times during die-off

periods, I had cycles of extreme difficulty looking people in the eye.

Strangely,

I could focus on object but it really seemed to be a motor issue in

getting my eyes to stay focused on a person. I am not on spectrum and usually

have no trouble making eye contact. I'd give it at least two weeks before

ruling out die-off.

On the flip side, my son has never been able to tolerate Diflucan. The

red dye is a problem with some people but my son couldn't tolerate it even

when we had it compounded without the dye.

Gaylen

In a message dated 2/19/2011 8:51:02 P.M. Central Standard Time,

freemanbk@... writes:

Can somebody give me some advice...it was very hard day...:-(

Well with the change from Nystatin to Diflucan his eyes have not been able

to focus on anything! He has completely lost eye contact. I yelled at him

tonight for not being able to look at me and he said he can't help - he

cannot keep them focused on anything. I am seriously considering going back

to Nystatin. He was doing much better on it and we were seeing a lot of

improvements.

[Non-text portions of this message have been removed]

[Guest guest]

I second Gaylen on the possibility it's die-off it it has been less than

approximately 2 weeks since you started.  Also, the dose may matter ... can you

post his weight & dose?  Did Dr G prescribe it, or another doc?  Dr G starts

out

at half the dose to lighten die-off then bumps it up.

But if it's been over a month & you're still seeing this problem, I'd start

wondering if you have the one with pink dye, he could be one who's real

sensitive.  I have one kid who doesn't do so great on diflucan & one who does

fine, but they both seem to do best on Nizoral.  You might want to give that

one

a shot first.

But truly, if your kid did well on nystatin, usually they do far better on a

better antifungal, so I hope you can hang in there to figure out what the real

problem is. 

HTH

 

________________________________

From: " Googahly@... " <Googahly@...>

Sent: Sun, February 20, 2011 1:08:50 AM

Subject: Re: RE: Eye contact lost on Diflucan

 

How long has he been taking diflucan? This could be a die-off reaction.

I recall years ago when my yeast was high, two times during die-off

periods, I had cycles of extreme difficulty looking people in the eye.

Strangely,

I could focus on object but it really seemed to be a motor issue in

getting my eyes to stay focused on a person. I am not on spectrum and usually

have no trouble making eye contact. I'd give it at least two weeks before

ruling out die-off.

On the flip side, my son has never been able to tolerate Diflucan. The

red dye is a problem with some people but my son couldn't tolerate it even

when we had it compounded without the dye.

Gaylen

In a message dated 2/19/2011 8:51:02 P.M. Central Standard Time,

freemanbk@... writes:

Can somebody give me some advice...it was very hard day...:-(

Well with the change from Nystatin to Diflucan his eyes have not been able

to focus on anything! He has completely lost eye contact. I yelled at him

tonight for not being able to look at me and he said he can't help - he

cannot keep them focused on anything. I am seriously considering going back

to Nystatin. He was doing much better on it and we were seeing a lot of

improvements.

[Guest guest]

Since we don’t have an experienced dr looking after our son’s care I will

just leave him on the nystatin and valtrex for a while. Then maybe I can talk to

someone who is more experienced about what our next step is.

From: [mailto: ] On Behalf Of

Sent: February-20-11 11:39 PM

Subject: Re: RE: Eye contact lost on Diflucan

I second Gaylen on the possibility it's die-off it it has been less than

approximately 2 weeks since you started. Also, the dose may matter ... can you

post his weight & dose? Did Dr G prescribe it, or another doc? Dr G starts out

at half the dose to lighten die-off then bumps it up.

But if it's been over a month & you're still seeing this problem, I'd start

wondering if you have the one with pink dye, he could be one who's real

sensitive. I have one kid who doesn't do so great on diflucan & one who does

fine, but they both seem to do best on Nizoral. You might want to give that one

a shot first.

But truly, if your kid did well on nystatin, usually they do far better on a

better antifungal, so I hope you can hang in there to figure out what the real

problem is.

HTH

________________________________

From: " Googahly@... <mailto:Googahly%40aol.com> " <Googahly@...

<mailto:Googahly%40aol.com> >

<mailto:%40>

Sent: Sun, February 20, 2011 1:08:50 AM

Subject: Re: RE: Eye contact lost on Diflucan

How long has he been taking diflucan? This could be a die-off reaction.

I recall years ago when my yeast was high, two times during die-off

periods, I had cycles of extreme difficulty looking people in the eye.

Strangely,

I could focus on object but it really seemed to be a motor issue in

getting my eyes to stay focused on a person. I am not on spectrum and usually

have no trouble making eye contact. I'd give it at least two weeks before

ruling out die-off.

On the flip side, my son has never been able to tolerate Diflucan. The

red dye is a problem with some people but my son couldn't tolerate it even

when we had it compounded without the dye.

Gaylen

In a message dated 2/19/2011 8:51:02 P.M. Central Standard Time,

freemanbk@... <mailto:freemanbk%40ns.sympatico.ca> writes:

Can somebody give me some advice...it was very hard day...:-(

Well with the change from Nystatin to Diflucan his eyes have not been able

to focus on anything! He has completely lost eye contact. I yelled at him

tonight for not being able to look at me and he said he can't help - he

cannot keep them focused on anything. I am seriously considering going back

to Nystatin. He was doing much better on it and we were seeing a lot of

improvements.

[Guest guest]

, my daughter did not tolerate the Diflucan at all.  But it looks like you

started two drugs at once and that is tough on our kids.  When we saw Dr.

we only did one change at a time, so that if something was not helpful

or had an adverse reaction we knew exactly what was going on.  Another thing,

that would cause 2 die-offs at once which would be especially tough on our

children.

Hope this helps,

Jen

From: and Freeman <freemanbk@...>

Subject: RE: RE: Eye contact lost on Diflucan

Date: Sunday, February 20, 2011, 10:00 PM

 

Since we don’t have an experienced dr looking after our son’s care I will

just leave him on the nystatin and valtrex for a while. Then maybe I can talk to

someone who is more experienced about what our next step is.

From: [mailto: ] On Behalf Of

Sent: February-20-11 11:39 PM

Subject: Re: RE: Eye contact lost on Diflucan

I second Gaylen on the possibility it's die-off it it has been less than

approximately 2 weeks since you started. Also, the dose may matter ... can you

post his weight & dose? Did Dr G prescribe it, or another doc? Dr G starts out

at half the dose to lighten die-off then bumps it up.

But if it's been over a month & you're still seeing this problem, I'd start

wondering if you have the one with pink dye, he could be one who's real

sensitive. I have one kid who doesn't do so great on diflucan & one who does

fine, but they both seem to do best on Nizoral. You might want to give that one

a shot first.

But truly, if your kid did well on nystatin, usually they do far better on a

better antifungal, so I hope you can hang in there to figure out what the real

problem is.

HTH

________________________________

From: " Googahly@... <mailto:Googahly%40aol.com> " <Googahly@...

<mailto:Googahly%40aol.com> >

<mailto:%40>

Sent: Sun, February 20, 2011 1:08:50 AM

Subject: Re: RE: Eye contact lost on Diflucan

How long has he been taking diflucan? This could be a die-off reaction.

I recall years ago when my yeast was high, two times during die-off

periods, I had cycles of extreme difficulty looking people in the eye.

Strangely,

I could focus on object but it really seemed to be a motor issue in

getting my eyes to stay focused on a person. I am not on spectrum and usually

have no trouble making eye contact. I'd give it at least two weeks before

ruling out die-off.

On the flip side, my son has never been able to tolerate Diflucan. The

red dye is a problem with some people but my son couldn't tolerate it even

when we had it compounded without the dye.

Gaylen

In a message dated 2/19/2011 8:51:02 P.M. Central Standard Time,

freemanbk@... <mailto:freemanbk%40ns.sympatico.ca> writes:

Can somebody give me some advice...it was very hard day...:-(

Well with the change from Nystatin to Diflucan his eyes have not been able

to focus on anything! He has completely lost eye contact. I yelled at him

tonight for not being able to look at me and he said he can't help - he

cannot keep them focused on anything. I am seriously considering going back

to Nystatin. He was doing much better on it and we were seeing a lot of

improvements.

[Guest guest]

If it helps any - I know how excrutiating it is to not be able to afford the

care you feel (that I already knew from experience) would help your child.  I

already had to stop the protocol and watch one child regress into a severe case

of CFS for a good two years before we were able to return.  I did have a local

DAN! doctor we could have seen and be covered by insurance, but I wouldn't go

there because I knew his treatment plan.

Dr G said before that he had seen children the same age, same type of history -

found them very comparable to each other.  One of those kids had had a great

deal of DAN! intervention, and the other child had had only the low allergy

diet and SSRI.  He said that the child who had just done SSRIs and diet was in

far better shape than the child who had had tons of supplements and other

therapies.  He felt that those two things together (diet, SSRI) were more

important than any other part of the therapy.

I would say to parents who can't get treatment right now - you can always

control diet (and I wasn't actually doing so well with it back then - I was sick

and barely functioning myself and couldn't keep it all together), and you can

almost always get an SSRI.  If you can't get an SSRI, seems like you'd be able

to change doctors.  Then later down the road, if the medical perception of this

illness changes (and WPI may be finding a lot of solid info to show that it is),

your kid can be in a decent position.  There are many kids who have made so

much

progress on diet alone, and if you can get good care from your local doctor, ie

not letting sinus infections or ear infections 'wait', etc, your child still

has

a chance to do well.  I do believe the meds help, but they don't necessarily

ensure recovery alone.

That has always encouraged me.  It kept me (somewhat) sane when I was watching

my little one lose language and eye contact and not be able to hold a spoon. 

I've lived with this chronic illness (PANDAS, mono @ 12 then no eye contact or

social interactions with my peers for 3+ years, then CFS & dysautonomia all of

my 20s, then another onset of PANDAS that I'm still dealing with) all my life

without any proper medical care, and I have continued to progress, have various

stages of illness and somewhat wellness.  I have still been able to enjoy a

great deal of my life.  Not that I'd like to have better care, but if I had, I

may not have known how to help my kids today.  (Even with the best care, many

many patients with CFS are still bedridden.)

I hope that helps, that you can accept just today, this week, etc, while still

setting goals for the future for medical care.

 

________________________________

From: and Freeman <freemanbk@...>

Sent: Sun, February 20, 2011 10:00:38 PM

Subject: RE: RE: Eye contact lost on Diflucan

 

Since we don’t have an experienced dr looking after our son’s care I will

just

leave him on the nystatin and valtrex for a while. Then maybe I can talk to

someone who is more experienced about what our next step is.

From: [mailto: ] On Behalf Of

Sent: February-20-11 11:39 PM

Subject: Re: RE: Eye contact lost on Diflucan

I second Gaylen on the possibility it's die-off it it has been less than

approximately 2 weeks since you started. Also, the dose may matter ... can you

post his weight & dose? Did Dr G prescribe it, or another doc? Dr G starts out

at half the dose to lighten die-off then bumps it up.

But if it's been over a month & you're still seeing this problem, I'd start

wondering if you have the one with pink dye, he could be one who's real

sensitive. I have one kid who doesn't do so great on diflucan & one who does

fine, but they both seem to do best on Nizoral. You might want to give that one

a shot first.

But truly, if your kid did well on nystatin, usually they do far better on a

better antifungal, so I hope you can hang in there to figure out what the real

problem is.

HTH

________________________________

From: " Googahly@... <mailto:Googahly%40aol.com> " <Googahly@...

<mailto:Googahly%40aol.com> >

<mailto:%40>

Sent: Sun, February 20, 2011 1:08:50 AM

Subject: Re: RE: Eye contact lost on Diflucan

How long has he been taking diflucan? This could be a die-off reaction.

I recall years ago when my yeast was high, two times during die-off

periods, I had cycles of extreme difficulty looking people in the eye.

Strangely,

I could focus on object but it really seemed to be a motor issue in

getting my eyes to stay focused on a person. I am not on spectrum and usually

have no trouble making eye contact. I'd give it at least two weeks before

ruling out die-off.

On the flip side, my son has never been able to tolerate Diflucan. The

red dye is a problem with some people but my son couldn't tolerate it even

when we had it compounded without the dye.

Gaylen

In a message dated 2/19/2011 8:51:02 P.M. Central Standard Time,

freemanbk@... <mailto:freemanbk%40ns.sympatico.ca> writes:

Can somebody give me some advice...it was very hard day...:-(

Well with the change from Nystatin to Diflucan his eyes have not been able

to focus on anything! He has completely lost eye contact. I yelled at him

tonight for not being able to look at me and he said he can't help - he

cannot keep them focused on anything. I am seriously considering going back

to Nystatin. He was doing much better on it and we were seeing a lot of

improvements.

[Guest guest]

Point well taken...Thanks Jen!

From: [mailto: ] On Behalf Of

Hankinson

Sent: February-21-11 11:17 AM

Subject: RE: RE: Eye contact lost on Diflucan

, my daughter did not tolerate the Diflucan at all. But it looks like you

started two drugs at once and that is tough on our kids. When we saw Dr.

we only did one change at a time, so that if something was not helpful

or had an adverse reaction we knew exactly what was going on. Another thing,

that would cause 2 die-offs at once which would be especially tough on our

children.

Hope this helps,

Jen

From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

Subject: RE: RE: Eye contact lost on Diflucan

<mailto:%40>

Date: Sunday, February 20, 2011, 10:00 PM

Since we don’t have an experienced dr looking after our son’s care I will

just leave him on the nystatin and valtrex for a while. Then maybe I can talk to

someone who is more experienced about what our next step is.

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Sent: February-20-11 11:39 PM

<mailto:%40>

Subject: Re: RE: Eye contact lost on Diflucan

I second Gaylen on the possibility it's die-off it it has been less than

approximately 2 weeks since you started. Also, the dose may matter ... can you

post his weight & dose? Did Dr G prescribe it, or another doc? Dr G starts out

at half the dose to lighten die-off then bumps it up.

But if it's been over a month & you're still seeing this problem, I'd start

wondering if you have the one with pink dye, he could be one who's real

sensitive. I have one kid who doesn't do so great on diflucan & one who does

fine, but they both seem to do best on Nizoral. You might want to give that one

a shot first.

But truly, if your kid did well on nystatin, usually they do far better on a

better antifungal, so I hope you can hang in there to figure out what the real

problem is.

HTH

________________________________

From: " Googahly@... <mailto:Googahly%40aol.com> <mailto:Googahly%40aol.com>

" <Googahly@... <mailto:Googahly%40aol.com> <mailto:Googahly%40aol.com> >

<mailto:%40>

<mailto:%40>

Sent: Sun, February 20, 2011 1:08:50 AM

Subject: Re: RE: Eye contact lost on Diflucan

How long has he been taking diflucan? This could be a die-off reaction.

I recall years ago when my yeast was high, two times during die-off

periods, I had cycles of extreme difficulty looking people in the eye.

Strangely,

I could focus on object but it really seemed to be a motor issue in

getting my eyes to stay focused on a person. I am not on spectrum and usually

have no trouble making eye contact. I'd give it at least two weeks before

ruling out die-off.

On the flip side, my son has never been able to tolerate Diflucan. The

red dye is a problem with some people but my son couldn't tolerate it even

when we had it compounded without the dye.

Gaylen

In a message dated 2/19/2011 8:51:02 P.M. Central Standard Time,

freemanbk@... <mailto:freemanbk%40ns.sympatico.ca>

<mailto:freemanbk%40ns.sympatico.ca> writes:

Can somebody give me some advice...it was very hard day...:-(

Well with the change from Nystatin to Diflucan his eyes have not been able

to focus on anything! He has completely lost eye contact. I yelled at him

tonight for not being able to look at me and he said he can't help - he

cannot keep them focused on anything. I am seriously considering going back

to Nystatin. He was doing much better on it and we were seeing a lot of

improvements.

[Guest guest]

Sorry , I replied on a different thread about starting kyodophilus but

did not realize that you also just started two drugs. Maybe someone else

could advise about starting probiotics while your son is experiencing

die-offs. Thanks.

_____

From: [mailto: ] On Behalf Of

Hankinson

Sent: February 21, 2011 10:17 AM

Subject: RE: RE: Eye contact lost on Diflucan

, my daughter did not tolerate the Diflucan at all. But it looks like

you started two drugs at once and that is tough on our kids. When we saw

Dr. we only did one change at a time, so that if something was not

helpful or had an adverse reaction we knew exactly what was going on.

Another thing, that would cause 2 die-offs at once which would be especially

tough on our children.

Hope this helps,

Jen

From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

Subject: RE: RE: Eye contact lost on Diflucan

<mailto:%40>

Date: Sunday, February 20, 2011, 10:00 PM

Since we don't have an experienced dr looking after our son's care I will

just leave him on the nystatin and valtrex for a while. Then maybe I can

talk to someone who is more experienced about what our next step is.

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Sent: February-20-11 11:39 PM

<mailto:%40>

Subject: Re: RE: Eye contact lost on Diflucan

I second Gaylen on the possibility it's die-off it it has been less than

approximately 2 weeks since you started. Also, the dose may matter ... can

you

post his weight & dose? Did Dr G prescribe it, or another doc? Dr G starts

out

at half the dose to lighten die-off then bumps it up.

But if it's been over a month & you're still seeing this problem, I'd start

wondering if you have the one with pink dye, he could be one who's real

sensitive. I have one kid who doesn't do so great on diflucan & one who does

fine, but they both seem to do best on Nizoral. You might want to give that

one

a shot first.

But truly, if your kid did well on nystatin, usually they do far better on a

better antifungal, so I hope you can hang in there to figure out what the

real

problem is.

HTH

________________________________

From: " Googahly@... <mailto:Googahly%40aol.com>

<mailto:Googahly%40aol.com> " <Googahly@... <mailto:Googahly%40aol.com>

<mailto:Googahly%40aol.com> >

<mailto:%40>

<mailto:%40>

Sent: Sun, February 20, 2011 1:08:50 AM

Subject: Re: RE: Eye contact lost on Diflucan

How long has he been taking diflucan? This could be a die-off reaction.

I recall years ago when my yeast was high, two times during die-off

periods, I had cycles of extreme difficulty looking people in the eye.

Strangely,

I could focus on object but it really seemed to be a motor issue in

getting my eyes to stay focused on a person. I am not on spectrum and

usually

have no trouble making eye contact. I'd give it at least two weeks before

ruling out die-off.

On the flip side, my son has never been able to tolerate Diflucan. The

red dye is a problem with some people but my son couldn't tolerate it even

when we had it compounded without the dye.

Gaylen

In a message dated 2/19/2011 8:51:02 P.M. Central Standard Time,

freemanbk@... <mailto:freemanbk%40ns.sympatico.ca>

<mailto:freemanbk%40ns.sympatico.ca> writes:

Can somebody give me some advice...it was very hard day...:-(

Well with the change from Nystatin to Diflucan his eyes have not been able

to focus on anything! He has completely lost eye contact. I yelled at him

tonight for not being able to look at me and he said he can't help - he

cannot keep them focused on anything. I am seriously considering going back

to Nystatin. He was doing much better on it and we were seeing a lot of

improvements.

[Guest guest]

And, strangely enough, for my son Diflucan worked well.

But his liver enzymes were raised at the last blood draw, so the doc changed to

Nystatin. He went crazy on that! It took 3 days for him to calm after that.

whew! It's like a cyclone hits, isn't it? Maybe that meant he was having a

die off, but maybe it was just making him crazy. I'm just not sure.

Sheryl

________________________________

From: Hankinson <jlhank80@...>

Sent: Mon, February 21, 2011 7:17:07 AM

Subject: RE: RE: Eye contact lost on Diflucan

, my daughter did not tolerate the Diflucan at all. But it looks like you

started two drugs at once and that is tough on our kids. When we saw Dr.

we only did one change at a time, so that if something was not helpful

or had an adverse reaction we knew exactly what was going on. Another thing,

that would cause 2 die-offs at once which would be especially tough on our

children.

Hope this helps,

Jen

From: and Freeman <freemanbk@...>

Subject: RE: RE: Eye contact lost on Diflucan

Date: Sunday, February 20, 2011, 10:00 PM

Since we don’t have an experienced dr looking after our son’s care I will

just

leave him on the nystatin and valtrex for a while. Then maybe I can talk to

someone who is more experienced about what our next step is.

From: [mailto: ] On Behalf Of

Sent: February-20-11 11:39 PM

Subject: Re: RE: Eye contact lost on Diflucan

I second Gaylen on the possibility it's die-off it it has been less than

approximately 2 weeks since you started. Also, the dose may matter ... can you

post his weight & dose? Did Dr G prescribe it, or another doc? Dr G starts out

at half the dose to lighten die-off then bumps it up.

But if it's been over a month & you're still seeing this problem, I'd start

wondering if you have the one with pink dye, he could be one who's real

sensitive. I have one kid who doesn't do so great on diflucan & one who does

fine, but they both seem to do best on Nizoral. You might want to give that one

a shot first.

But truly, if your kid did well on nystatin, usually they do far better on a

better antifungal, so I hope you can hang in there to figure out what the real

problem is.

HTH

________________________________

From: " Googahly@... <mailto:Googahly%40aol.com> " <Googahly@...

<mailto:Googahly%40aol.com> >

<mailto:%40>

Sent: Sun, February 20, 2011 1:08:50 AM

Subject: Re: RE: Eye contact lost on Diflucan

How long has he been taking diflucan? This could be a die-off reaction.

I recall years ago when my yeast was high, two times during die-off

periods, I had cycles of extreme difficulty looking people in the eye.

Strangely,

I could focus on object but it really seemed to be a motor issue in

getting my eyes to stay focused on a person. I am not on spectrum and usually

have no trouble making eye contact. I'd give it at least two weeks before

ruling out die-off.

On the flip side, my son has never been able to tolerate Diflucan. The

red dye is a problem with some people but my son couldn't tolerate it even

when we had it compounded without the dye.

Gaylen

In a message dated 2/19/2011 8:51:02 P.M. Central Standard Time,

freemanbk@... <mailto:freemanbk%40ns.sympatico.ca> writes:

Can somebody give me some advice...it was very hard day...:-(

Well with the change from Nystatin to Diflucan his eyes have not been able

to focus on anything! He has completely lost eye contact. I yelled at him

tonight for not being able to look at me and he said he can't help - he

cannot keep them focused on anything. I am seriously considering going back

to Nystatin. He was doing much better on it and we were seeing a lot of

improvements.

[Guest guest]

Do you guys do antifungals and antivirals at the same time? Just wondering how

Dr. G does it.

Thanks.

dawn

________________________________

From: Sheryl Saturnino <ssaturnino@...>

Sent: Mon, February 21, 2011 6:11:03 PM

Subject: Re: RE: Eye contact lost on Diflucan

And, strangely enough, for my son Diflucan worked well.

But his liver enzymes were raised at the last blood draw, so the doc changed to

Nystatin. He went crazy on that! It took 3 days for him to calm after that.

whew! It's like a cyclone hits, isn't it? Maybe that meant he was having a

die off, but maybe it was just making him crazy. I'm just not sure.

Sheryl

________________________________

From: Hankinson <jlhank80@...>

Sent: Mon, February 21, 2011 7:17:07 AM

Subject: RE: RE: Eye contact lost on Diflucan

, my daughter did not tolerate the Diflucan at all. But it looks like you

started two drugs at once and that is tough on our kids. When we saw Dr.

we only did one change at a time, so that if something was not helpful

or had an adverse reaction we knew exactly what was going on. Another thing,

that would cause 2 die-offs at once which would be especially tough on our

children.

Hope this helps,

Jen

From: and Freeman <freemanbk@...>

Subject: RE: RE: Eye contact lost on Diflucan

Date: Sunday, February 20, 2011, 10:00 PM

Since we don’t have an experienced dr looking after our son’s care I will

just

leave him on the nystatin and valtrex for a while. Then maybe I can talk to

someone who is more experienced about what our next step is.

From: [mailto: ] On Behalf Of

Sent: February-20-11 11:39 PM

Subject: Re: RE: Eye contact lost on Diflucan

I second Gaylen on the possibility it's die-off it it has been less than

approximately 2 weeks since you started. Also, the dose may matter ... can you

post his weight & dose? Did Dr G prescribe it, or another doc? Dr G starts out

at half the dose to lighten die-off then bumps it up.

But if it's been over a month & you're still seeing this problem, I'd start

wondering if you have the one with pink dye, he could be one who's real

sensitive. I have one kid who doesn't do so great on diflucan & one who does

fine, but they both seem to do best on Nizoral. You might want to give that one

a shot first.

But truly, if your kid did well on nystatin, usually they do far better on a

better antifungal, so I hope you can hang in there to figure out what the real

problem is.

HTH

________________________________

From: " Googahly@... <mailto:Googahly%40aol.com> " <Googahly@...

<mailto:Googahly%40aol.com> >

<mailto:%40>

Sent: Sun, February 20, 2011 1:08:50 AM

Subject: Re: RE: Eye contact lost on Diflucan

How long has he been taking diflucan? This could be a die-off reaction.

I recall years ago when my yeast was high, two times during die-off

periods, I had cycles of extreme difficulty looking people in the eye.

Strangely,

I could focus on object but it really seemed to be a motor issue in

getting my eyes to stay focused on a person. I am not on spectrum and usually

have no trouble making eye contact. I'd give it at least two weeks before

ruling out die-off.

On the flip side, my son has never been able to tolerate Diflucan. The

red dye is a problem with some people but my son couldn't tolerate it even

when we had it compounded without the dye.

Gaylen

In a message dated 2/19/2011 8:51:02 P.M. Central Standard Time,

freemanbk@... <mailto:freemanbk%40ns.sympatico.ca> writes:

Can somebody give me some advice...it was very hard day...:-(

Well with the change from Nystatin to Diflucan his eyes have not been able

to focus on anything! He has completely lost eye contact. I yelled at him

tonight for not being able to look at me and he said he can't help - he

cannot keep them focused on anything. I am seriously considering going back

to Nystatin. He was doing much better on it and we were seeing a lot of

improvements.

[Guest guest]

Sheryl,

That would be die off and a good thing! Just hold on for a rough road and

know that when all the toxins are out of his system (often weeks of

craziness!) he will be better for it.healthier and much improved behaviour

then before starting the antifungal!

Lori

_____

From: [mailto: ] On Behalf Of Sheryl

Saturnino

Sent: February-21-11 9:11 PM

Subject: Re: RE: Eye contact lost on Diflucan

And, strangely enough, for my son Diflucan worked well.

But his liver enzymes were raised at the last blood draw, so the doc changed

to

Nystatin. He went crazy on that! It took 3 days for him to calm after that.

whew! It's like a cyclone hits, isn't it? Maybe that meant he was having a

die off, but maybe it was just making him crazy. I'm just not sure.

Sheryl

________________________________

From: Hankinson <jlhank80@... <mailto:jlhank80%40> >

<mailto:%40>

Sent: Mon, February 21, 2011 7:17:07 AM

Subject: RE: RE: Eye contact lost on Diflucan

, my daughter did not tolerate the Diflucan at all. But it looks like

you

started two drugs at once and that is tough on our kids. When we saw Dr.

we only did one change at a time, so that if something was not

helpful

or had an adverse reaction we knew exactly what was going on. Another thing,

that would cause 2 die-offs at once which would be especially tough on our

children.

Hope this helps,

Jen

From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

Subject: RE: RE: Eye contact lost on Diflucan

<mailto:%40>

Date: Sunday, February 20, 2011, 10:00 PM

Since we don't have an experienced dr looking after our son's care I will

just

leave him on the nystatin and valtrex for a while. Then maybe I can talk to

someone who is more experienced about what our next step is.

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Sent: February-20-11 11:39 PM

<mailto:%40>

Subject: Re: RE: Eye contact lost on Diflucan

I second Gaylen on the possibility it's die-off it it has been less than

approximately 2 weeks since you started. Also, the dose may matter ... can

you

post his weight & dose? Did Dr G prescribe it, or another doc? Dr G starts

out

at half the dose to lighten die-off then bumps it up.

But if it's been over a month & you're still seeing this problem, I'd start

wondering if you have the one with pink dye, he could be one who's real

sensitive. I have one kid who doesn't do so great on diflucan & one who does

fine, but they both seem to do best on Nizoral. You might want to give that

one

a shot first.

But truly, if your kid did well on nystatin, usually they do far better on a

better antifungal, so I hope you can hang in there to figure out what the

real

problem is.

HTH

________________________________

From: " Googahly@... <mailto:Googahly%40aol.com>

<mailto:Googahly%40aol.com> " <Googahly@... <mailto:Googahly%40aol.com>

<mailto:Googahly%40aol.com> >

<mailto:%40>

<mailto:%40>

Sent: Sun, February 20, 2011 1:08:50 AM

Subject: Re: RE: Eye contact lost on Diflucan

How long has he been taking diflucan? This could be a die-off reaction.

I recall years ago when my yeast was high, two times during die-off

periods, I had cycles of extreme difficulty looking people in the eye.

Strangely,

I could focus on object but it really seemed to be a motor issue in

getting my eyes to stay focused on a person. I am not on spectrum and

usually

have no trouble making eye contact. I'd give it at least two weeks before

ruling out die-off.

On the flip side, my son has never been able to tolerate Diflucan. The

red dye is a problem with some people but my son couldn't tolerate it even

when we had it compounded without the dye.

Gaylen

In a message dated 2/19/2011 8:51:02 P.M. Central Standard Time,

freemanbk@... <mailto:freemanbk%40ns.sympatico.ca>

<mailto:freemanbk%40ns.sympatico.ca> writes:

Can somebody give me some advice...it was very hard day...:-(

Well with the change from Nystatin to Diflucan his eyes have not been able

to focus on anything! He has completely lost eye contact. I yelled at him

tonight for not being able to look at me and he said he can't help - he

cannot keep them focused on anything. I am seriously considering going back

to Nystatin. He was doing much better on it and we were seeing a lot of

improvements.

[Guest guest]

, is the Diflucan pink? We have to get our son's compounded

because he cannot tolerate the red/pink die.

On Feb 21, 2011, at 7:45 AM, and Freeman wrote:

> Point well taken...Thanks Jen!

>

> From: [mailto: ] On Behalf

> Of Hankinson

> Sent: February-21-11 11:17 AM

>

> Subject: RE: RE: Eye contact lost on Diflucan

>

> , my daughter did not tolerate the Diflucan at all. But it

> looks like you started two drugs at once and that is tough on our

> kids. When we saw Dr. we only did one change at a time, so

> that if something was not helpful or had an adverse reaction we knew

> exactly what was going on. Another thing, that would cause 2 die-

> offs at once which would be especially tough on our children.

> Hope this helps,

> Jen

>

>

>

> From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca

> > >

> Subject: RE: RE: Eye contact lost on Diflucan

> <mailto:%40>

> Date: Sunday, February 20, 2011, 10:00 PM

>

> Since we don’t have an experienced dr looking after our son’s care I

> will just leave him on the nystatin and valtrex for a while. Then

> maybe I can talk to someone who is more experienced about what our

> next step is.

>

> From: <mailto:%40>

[mailto:

> <mailto:%40> ] On Behalf Of

> Sent: February-20-11 11:39 PM

> <mailto:%40>

> Subject: Re: RE: Eye contact lost on Diflucan

>

> I second Gaylen on the possibility it's die-off it it has been less

> than

> approximately 2 weeks since you started. Also, the dose may

> matter ... can you

> post his weight & dose? Did Dr G prescribe it, or another doc? Dr G

> starts out

> at half the dose to lighten die-off then bumps it up.

>

> But if it's been over a month & you're still seeing this problem,

> I'd start

> wondering if you have the one with pink dye, he could be one who's

> real

> sensitive. I have one kid who doesn't do so great on diflucan & one

> who does

> fine, but they both seem to do best on Nizoral. You might want to

> give that one

> a shot first.

>

> But truly, if your kid did well on nystatin, usually they do far

> better on a

> better antifungal, so I hope you can hang in there to figure out

> what the real

> problem is.

>

> HTH

>

>

> ________________________________

> From: " Googahly@... <mailto:Googahly%40aol.com> <mailto:Googahly%40aol.com

> > " <Googahly@... <mailto:Googahly%40aol.com> <mailto:Googahly%40aol.com

> > >

> <mailto:%40>

<mailto:%40

> >

> Sent: Sun, February 20, 2011 1:08:50 AM

> Subject: Re: RE: Eye contact lost on Diflucan

>

> How long has he been taking diflucan? This could be a die-off

> reaction.

> I recall years ago when my yeast was high, two times during die-off

> periods, I had cycles of extreme difficulty looking people in the eye.

> Strangely,

>

> I could focus on object but it really seemed to be a motor issue in

> getting my eyes to stay focused on a person. I am not on spectrum

> and usually

> have no trouble making eye contact. I'd give it at least two weeks

> before

> ruling out die-off.

>

> On the flip side, my son has never been able to tolerate Diflucan. The

> red dye is a problem with some people but my son couldn't tolerate

> it even

> when we had it compounded without the dye.

> Gaylen

>

> In a message dated 2/19/2011 8:51:02 P.M. Central Standard Time,

> freemanbk@... <mailto:freemanbk%40ns.sympatico.ca>

<mailto:freemanbk%40ns.sympatico.ca

> > writes:

>

> Can somebody give me some advice...it was very hard day...:-(

>

> Well with the change from Nystatin to Diflucan his eyes have not

> been able

> to focus on anything! He has completely lost eye contact. I yelled

> at him

> tonight for not being able to look at me and he said he can't help -

> he

> cannot keep them focused on anything. I am seriously considering

> going back

> to Nystatin. He was doing much better on it and we were seeing a lot

> of

> improvements.

>

>