Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Also: I have posted some pictures (look in the photos section under Nids kids) of my son. There are 4 images of him on the top before he got ill. Look below and see what he looked like right around his 4th birthday, he was so sick and sad. The difference is amazing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 > > A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! > > He has learned to read, he loves school and is proud of his work. > He has gained almost 10 pounds. > He is sweet and tells me he loves me all the time. He made me breakfast in bed! > He plays with his brother, he pretend plays (something he was not doing before) > He is silly and laughs! > His teacher says his progress from September to now is unusually rapid. > He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. > > He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. > Sloan So happy for you!! love hearing these stories about children getting better. Congratulations!! Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 This sounds so much like my son! Kristy From: [mailto: ] On Behalf Of Sloan Sent: Sunday, February 20, 2011 9:07 PM Subject: My Son & Nids A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! He has learned to read, he loves school and is proud of his work. He has gained almost 10 pounds. He is sweet and tells me he loves me all the time. He made me breakfast in bed! He plays with his brother, he pretend plays (something he was not doing before) He is silly and laughs! His teacher says his progress from September to now is unusually rapid. He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 CONGRATULATIONS SLOAN!!! Tammy F. > > A happy update about my son: In April, it will be one year that he has > been on the protocol. He is 6 years old and entered Kindergarden > in the fall. He is doing AMAZING! > > He has learned to read, he loves school and is proud of his work. > He has gained almost 10 pounds. > He is sweet and tells me he loves me all the time. He made me > breakfast in bed! > He plays with his brother, he pretend plays (something he was not > doing before) > He is silly and laughs! > His teacher says his progress from September to now is unusually rapid. > He can tell me WHY he doesn't want to do certain things (whereas > before it was a screaming tantrum). For example: he said the other day > when he didn't want to go to the playground that it was too bright > there and it hurt his eyes. This sort of explanation was never present > before. > > He is still struggling socially, but its not for lack of wanting to be > included. He has a hard time with the rapid back and forth of kids. > Its like his brain is struggling to process everything at one. But the > changes in him are nothing short of amazing. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Congrats Sloan. I just love stories like yours. It is what we are all working towards for every kid. Keep posting those stories of success and hope. It keeps those who still haven't reached where you are getting up every morning and continuing to do this very difficult job of helping our kids. Every child is different but they all can improve and there is hope for full recovery like . Your son is on his way and also has an amazing mom. Remember the social is the last to come so don't worry. wanted friends too but didn't know how to do it. But he had the desire too. There is an inexpensive book that helped me: , Lonnie How Kids Make Friends (This inexpensive paperback was not written especially for autistic children, but has very important information all kids need to know to make friends.) It can be ordered on Amazon or at 1 (800) 717-0770 It has only been a year, and we did not have that much progress that rapidly. Back then Dr G was not yet using antivirals with every kid so I think they are getting better faster now. I know he will make it after what you described. He is way ahead of where was at that point. Best Marcia Also here is a short exert from my book on the social stuff: " What would happen if the " autism " gene was eliminated from the gene pool? You would have a bunch of people standing around in a cave, chatting and socializing and not getting anything done. " ~ Temple Grandin Chapter 15 The Social is the Last to Come.Somebody Please Invite my Kid to a Birthday Party Teaching social skills is a long, grueling process and not for sissies. I started encouraging social interaction when was around five, but at first I had no clue how to teach these important skills. I had no idea how I was going to get to learn all the complex social skills when I couldn't even get him to say " Hi " or look when someone walked in a room? I knew the social was the most important thing I had to teach . If he didn't know how to interact, he would never have friends or any of the most worthwhile things in life. Will words also encouraged me to keep going. He said, " Even if you are on the right track, you'll get run over if you just sit there. " So I borrowed kids from the neighborhood to teach how to interact. At first, fought me and didn't want anything to do with anyone who came over to play. This was messing with his constant need for order and predictability. I used to tell him having friends over is mandatory and either he could pick who was coming for a play date or I would. At first, he hid in the back of the house when kids came over. We used ABA techniques to help him overcome these things that were hard for him. In the short run, it would have been much easier to let my son stay " autistic " and not play with other children. Easier to let him wander the house plugging in his portable radio over and over again in every outlet in the house; easier not to have the confrontations when I expected him to do something he didn't want to do. I didn't want to watch him scream when he didn't know what to do with other kids. If I had given in to him; he never would have learned the right way to behave with other children. Staying " autistic " was not an option!!! We started these play dates with neighbors children with only one playmate at a time. We usually picked things to do where the rules of engagement were clear; jumping on the trampoline, going to the playground, sledding, board games or video games. We kept at it. It was a slow and exasperating process. Everything had to be taught. usually had a scowl on his face and that empty look in his eyes. I had to teach him about facial posture; how to smile and look approachable. We practiced these things everywhere whenever we had a spare minute. One of our favorite games was when we were at a restaurant waiting for our food. I would ask him to point out people he thought were easy to talk to and nice. We discovered together what these people usually had in common. They smiled with their eyes as well as their mouth. They had good eye contact and seemed interested in what you were saying. Then we would search the restaurant for the people with bad facial posture. The ones who looked angry even though they weren't: the ones whose face looked like they had just bitten into a sour lemon. </message/45999;_ylc=X3oDMTJxZWQzNWpjBF9TA zk3MzU5NzE1BGdycElkAzEyODk0MARncnBzcElkAzE3MDUwNjE2MTYEbXNnSWQDNDU5OTkEc2VjA 2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTI5ODI3Njg0MA--> My Son & NiDS Posted by: " Sloan " <mailto:Sloan_smith@...?Subject=%20Re%3A%20My%20Son%20%26%20Nids> Sloan_smith@... <sloan_smith> sloan_smith Sun Feb 20, 2011 9:07 pm (PST) A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarten in the fall. He is doing AMAZING! He has learned to read, he loves school and is proud of his work. He has gained almost 10 pounds. He is sweet and tells me he loves me all the time. He made me breakfast in bed! He plays with his brother, he pretend plays (something he was not doing before) He is silly and laughs! His teacher says his progress from September to now is unusually rapid. He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. He is still struggling socially, but it's not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. It's like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. Back to top <mailto:Sloan_smith@...?Subject=Re%3A%20My%20Son%20%26%20Nids> Reply to sender | <mailto: ?Subject=%20Re%3A%20My%20Son%20%26%20Nids> Reply to group | </post;_ylc=X3oDMTJxcGZtYTkzBF9TAzk3MzU5Nz E1BGdycElkAzEyODk0MARncnBzcElkAzE3MDUwNjE2MTYEbXNnSWQDNDU5OTkEc2VjA2Rtc2cEc2 xrA3JwbHkEc3RpbWUDMTI5ODI3Njg0MA--?act=reply & messageNum=45999> Reply via web post </message/45999;_ylc=X3oDMTM2NDVwNW9sBF9TA zk3MzU5NzE1BGdycElkAzEyODk0MARncnBzcElkAzE3MDUwNjE2MTYEbXNnSWQDNDU5OTkEc2VjA 2Rtc2cEc2xrA3Z0cGMEc3RpbWUDMTI5ODI3Njg0MAR0cGNJZAM0NTk5OQ--> Messages in this topic (4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Sloan, this is such an awesome news - very happy for you and your family. Reading your update reminds me of our son so much, although we are not there yet but there is lot of that affection, playing with sibling, social struggle in terms of not knowing what to do ________________________________ From: Sloan <Sloan_smith@...> Sent: Sun, February 20, 2011 9:07:06 PM Subject: My Son & Nids A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! He has learned to read, he loves school and is proud of his work. He has gained almost 10 pounds. He is sweet and tells me he loves me all the time. He made me breakfast in bed! He plays with his brother, he pretend plays (something he was not doing before) He is silly and laughs! His teacher says his progress from September to now is unusually rapid. He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Thank you so much for sharing. You must be so proud of him and the hard work he is doing! Blessings, Robyn From: Kay <kp_mlist@...> Subject: Re: My Son & Nids Date: Monday, February 21, 2011, 11:11 AM  Sloan, this is such an awesome news - very happy for you and your family. Reading your update reminds me of our son so much, although we are not there yet but there is lot of that affection, playing with sibling, social struggle in terms of not knowing what to do ________________________________ From: Sloan <Sloan_smith@...> Sent: Sun, February 20, 2011 9:07:06 PM Subject: My Son & Nids A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! He has learned to read, he loves school and is proud of his work. He has gained almost 10 pounds. He is sweet and tells me he loves me all the time. He made me breakfast in bed! He plays with his brother, he pretend plays (something he was not doing before) He is silly and laughs! His teacher says his progress from September to now is unusually rapid. He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Hi Kay, Its so hard to say... but we saw immediate improvement with taking him off all the supplements we had him on. The diet is big, I can always tell when he had eaten something bad: red ears and hyper behaviour. Then several hours later, very withdrawn. The celexa (he was on paxil) seemed to make a big improvement in his feeling more sure of himself. We saw him interacting more with other kids after that. His social empathy is really strong... He still seems spacey a lot, but we have been on straterra for 2 weeks and wow! he is much more calm and able to last longer in an interaction. His viral titers have only gone down minimally so that is puzzling. Keeping him away from sugar is key. He is like a drug addict with it!Meanwhile, we have had a speech therapist who i think is brilliant and is always challenging him. She has given us great insight with bad behaviors.Also, the school he is in this year is a regular elementary school, very traditional, and as such is VERY structured. He thrives in this kind of environment because he really understands what is expected of him and is then very able to learn! The school we had him in last year was a reggio-based school, and while wonderfully creative... was such a bad environment for him. Just too open-ended and filled with very smart kids who had little boundries. This left my son lost. Best of luck with you! From: Kay <kp_mlist@...> Subject: Re: My Son & Nids Sloan_smith@... Date: Monday, February 21, 2011, 2:14 PM Sloan, What do you think made the most difference or was it everything working together? Like to hear your perspective both on the meds & therapy. Thanks,Kay From: Sloan <Sloan_smith@...> Sent: Sun, February 20, 2011 9:07:06 PM Subject: My Son & Nids  A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! He has learned to read, he loves school and is proud of his work. He has gained almost 10 pounds. He is sweet and tells me he loves me all the time. He made me breakfast in bed! He plays with his brother, he pretend plays (something he was not doing before) He is silly and laughs! His teacher says his progress from September to now is unusually rapid. He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Sloan, I'm so happy for the improvements with your son! I was wondering. Was he on Paxil first and then Dr G switched him to Celexa? Why the switch? Was there a reaction to Paxil, or does he just switch it up as a matter of protocol? Also, what is Strattera? I haven't heard of it before. Thanks, Sheryl Sent from my iPhone On Feb 21, 2011, at 7:14 PM, Sloan <Sloan_smith@...> wrote: > Hi Kay, Its so hard to say... but we saw immediate improvement with taking him off all the supplements we had him on. The diet is big, I can always tell when he had eaten something bad: red ears and hyper behaviour. Then several hours later, very withdrawn. > The celexa (he was on paxil) seemed to make a big improvement in his feeling more sure of himself. We saw him interacting more with other kids after that. His social empathy is really strong... He still seems spacey a lot, but we have been on straterra for 2 weeks and wow! he is much more calm and able to last longer in an interaction. His viral titers have only gone down minimally so that is puzzling. Keeping him away from sugar is key. He is like a drug addict with it!Meanwhile, we have had a speech therapist who i think is brilliant and is always challenging him. She has given us great insight with bad behaviors.Also, the school he is in this year is a regular elementary school, very traditional, and as such is VERY structured. He thrives in this kind of environment because he really understands what is expected of him and is then very able to learn! The school we had him in last year was a reggio-based school, and while wonderfully creative... was > such a bad environment for him. Just too open-ended and filled with very smart kids who had little boundries. This left my son lost. > Best of luck with you! > > > > From: Kay <kp_mlist@...> > Subject: Re: My Son & Nids > Sloan_smith@... > Date: Monday, February 21, 2011, 2:14 PM > > Sloan, What do you think made the most difference or was it everything working together? Like to hear your perspective both on the meds & therapy. > Thanks,Kay > From: Sloan <Sloan_smith@...> > > Sent: Sun, February 20, 2011 9:07:06 PM > Subject: My Son & > Nids > > > > A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! > > He has learned to read, he loves school and is proud of his work. > > He has gained almost 10 pounds. > > He is sweet and tells me he loves me all the time. He made me breakfast in bed! > > He plays with his brother, he pretend plays (something he was not doing before) > > He is silly and laughs! > > His teacher says his progress from September to now is unusually rapid. > > He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. > > He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Thanks Sloan. Were any of the other immune markers off for you - like NK Cells etc & did they get better over time. I have heard that titers doesn't move for everyone ________________________________ From: Sloan <Sloan_smith@...> Kay <kp_mlist@...> Cc: Sent: Mon, February 21, 2011 7:14:22 PM Subject: Re: My Son & Nids Hi Kay, Its so hard to say... but we saw immediate improvement with taking him off all the supplements we had him on. The diet is big, I can always tell when he had eaten something bad: red ears and hyper behaviour. Then several hours later, very withdrawn. The celexa (he was on paxil) seemed to make a big improvement in his feeling more sure of himself. We saw him interacting more with other kids after that. His social empathy is really strong... He still seems spacey a lot, but we have been on straterra for 2 weeks and wow! he is much more calm and able to last longer in an interaction. His viral titers have only gone down minimally so that is puzzling. Keeping him away from sugar is key. He is like a drug addict with it!Meanwhile, we have had a speech therapist who i think is brilliant and is always challenging him. She has given us great insight with bad behaviors.Also, the school he is in this year is a regular elementary school, very traditional, and as such is VERY structured. He thrives in this kind of environment because he really understands what is expected of him and is then very able to learn! The school we had him in last year was a reggio-based school, and while wonderfully creative... was such a bad environment for him. Just too open-ended and filled with very smart kids who had little boundries. This left my son lost. Best of luck with you! From: Kay <kp_mlist@...> Subject: Re: My Son & Nids Sloan_smith@... Date: Monday, February 21, 2011, 2:14 PM Sloan, What do you think made the most difference or was it everything working together? Like to hear your perspective both on the meds & therapy. Thanks,Kay From: Sloan <Sloan_smith@...> Sent: Sun, February 20, 2011 9:07:06 PM Subject: My Son & Nids A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! He has learned to read, he loves school and is proud of his work. He has gained almost 10 pounds. He is sweet and tells me he loves me all the time. He made me breakfast in bed! He plays with his brother, he pretend plays (something he was not doing before) He is silly and laughs! His teacher says his progress from September to now is unusually rapid. He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 Strattera is a drug for ADHD. It works by increasing norepinephrine much like a ssri does for serotonin. My son did great on it for a long time but now he can’t take it as he gets angry and mean. He gets norep. overload even after one day on it. From: [mailto: ] On Behalf Of Sheryl Sent: February-22-11 12:18 AM Subject: Re: My Son & Nids Sloan, I'm so happy for the improvements with your son! I was wondering. Was he on Paxil first and then Dr G switched him to Celexa? Why the switch? Was there a reaction to Paxil, or does he just switch it up as a matter of protocol? Also, what is Strattera? I haven't heard of it before. Thanks, Sheryl Sent from my iPhone On Feb 21, 2011, at 7:14 PM, Sloan <Sloan_smith@... <mailto:Sloan_smith%40> > wrote: > Hi Kay, Its so hard to say... but we saw immediate improvement with taking him off all the supplements we had him on. The diet is big, I can always tell when he had eaten something bad: red ears and hyper behaviour. Then several hours later, very withdrawn. > The celexa (he was on paxil) seemed to make a big improvement in his feeling more sure of himself. We saw him interacting more with other kids after that. His social empathy is really strong... He still seems spacey a lot, but we have been on straterra for 2 weeks and wow! he is much more calm and able to last longer in an interaction. His viral titers have only gone down minimally so that is puzzling. Keeping him away from sugar is key. He is like a drug addict with it!Meanwhile, we have had a speech therapist who i think is brilliant and is always challenging him. She has given us great insight with bad behaviors.Also, the school he is in this year is a regular elementary school, very traditional, and as such is VERY structured. He thrives in this kind of environment because he really understands what is expected of him and is then very able to learn! The school we had him in last year was a reggio-based school, and while wonderfully creative... was > such a bad environment for him. Just too open-ended and filled with very smart kids who had little boundries. This left my son lost. > Best of luck with you! > > --- On Mon, 2/21/11, Kay <kp_mlist@... <mailto:kp_mlist%40> > wrote: > > From: Kay <kp_mlist@... <mailto:kp_mlist%40> > > Subject: Re: My Son & Nids > Sloan_smith@... <mailto:Sloan_smith%40> > Date: Monday, February 21, 2011, 2:14 PM > > Sloan, What do you think made the most difference or was it everything working together? Like to hear your perspective both on the meds & therapy. > Thanks,Kay > From: Sloan <Sloan_smith@... <mailto:Sloan_smith%40> > > <mailto:%40> > Sent: Sun, February 20, 2011 9:07:06 PM > Subject: My Son & > Nids > > > > A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! > > He has learned to read, he loves school and is proud of his work. > > He has gained almost 10 pounds. > > He is sweet and tells me he loves me all the time. He made me breakfast in bed! > > He plays with his brother, he pretend plays (something he was not doing before) > > He is silly and laughs! > > His teacher says his progress from September to now is unusually rapid. > > He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. > > He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 Sloan, that is so awesome! I'm sure even more positives are to come. Very cool. jackie > > A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! > > He has learned to read, he loves school and is proud of his work. > He has gained almost 10 pounds. > He is sweet and tells me he loves me all the time. He made me breakfast in bed! > He plays with his brother, he pretend plays (something he was not doing before) > He is silly and laughs! > His teacher says his progress from September to now is unusually rapid. > He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. > > He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2011 Report Share Posted February 24, 2011 Thanks all! Its always back and forth, but always better. Thats the main thing about I can say compared to the other types of treatments. In answer to the question about SSRI: he did start on Paxil, and then Dr. G changed him.. not because he had a negative effect, but I think that is the way he treat... he is always looking for a better reaction and he does switch to find the best fit for the patient. > > > > A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! > > > > He has learned to read, he loves school and is proud of his work. > > He has gained almost 10 pounds. > > He is sweet and tells me he loves me all the time. He made me breakfast in bed! > > He plays with his brother, he pretend plays (something he was not doing before) > > He is silly and laughs! > > His teacher says his progress from September to now is unusually rapid. > > He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. > > > > He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2011 Report Share Posted February 24, 2011 His NK cells started at around 4 and I think they are around 5 now... I dont have the labs right now, but they improved. > > From: Kay <kp_mlist@...> > Subject: Re: My Son & Nids > Sloan_smith@... > Date: Monday, February 21, 2011, 2:14 PM > > Sloan, What do you think made the most difference or was it everything working > together? Like to hear your perspective both on the meds & therapy. > Thanks,Kay > From: Sloan <Sloan_smith@...> > > Sent: Sun, February 20, 2011 9:07:06 PM > Subject: My Son & > Nids > > > > A happy update about my son: In April, it will be one year that he has been on > the protocol. He is 6 years old and entered Kindergarden in the fall. He is > doing AMAZING! > > He has learned to read, he loves school and is proud of his work. > > He has gained almost 10 pounds. > > He is sweet and tells me he loves me all the time. He made me breakfast in bed! > > He plays with his brother, he pretend plays (something he was not doing before) > > He is silly and laughs! > > His teacher says his progress from September to now is unusually rapid. > > He can tell me WHY he doesn't want to do certain things (whereas before it was a > screaming tantrum). For example: he said the other day when he didn't want to go > to the playground that it was too bright there and it hurt his eyes. This sort > of explanation was never present before. > > He is still struggling socially, but its not for lack of wanting to be included. > He has a hard time with the rapid back and forth of kids. Its like his brain is > struggling to process everything at one. But the changes in him are nothing > short of amazing. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2011 Report Share Posted February 24, 2011 Imunovir raised my sons K cells from 5 to 8 in about 6 months From: Sloan <Sloan_smith@...> Subject: Re: My Son & Nids Date: Thursday, February 24, 2011, 10:32 PM  His NK cells started at around 4 and I think they are around 5 now... I dont have the labs right now, but they improved. > > From: Kay <kp_mlist@...> > Subject: Re: My Son & Nids > Sloan_smith@... > Date: Monday, February 21, 2011, 2:14 PM > > Sloan, What do you think made the most difference or was it everything working > together? Like to hear your perspective both on the meds & therapy. > Thanks,Kay > From: Sloan <Sloan_smith@...> > > Sent: Sun, February 20, 2011 9:07:06 PM > Subject: My Son & > Nids > > > > A happy update about my son: In April, it will be one year that he has been on > the protocol. He is 6 years old and entered Kindergarden in the fall. He is > doing AMAZING! > > He has learned to read, he loves school and is proud of his work. > > He has gained almost 10 pounds. > > He is sweet and tells me he loves me all the time. He made me breakfast in bed! > > He plays with his brother, he pretend plays (something he was not doing before) > > He is silly and laughs! > > His teacher says his progress from September to now is unusually rapid. > > He can tell me WHY he doesn't want to do certain things (whereas before it was a > screaming tantrum). For example: he said the other day when he didn't want to go > to the playground that it was too bright there and it hurt his eyes. This sort > of explanation was never present before. > > He is still struggling socially, but its not for lack of wanting to be included. > He has a hard time with the rapid back and forth of kids. Its like his brain is > struggling to process everything at one. But the changes in him are nothing > short of amazing. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2011 Report Share Posted February 25, 2011 Hi Sloan, Great news ,so nice to hear about your son. Our son is 6 years old and we saw Dr G Same time last year in April for the first time.We are still struggling with nids diet,and my sons allergy tests comes so high and still dr G says diet is not clean and he got dark circles under his eyes.He is not very verbal. He is addicted to fruits and other carbs,sugary stuff. We try to eliminate suagr a lot bu twe give more than two slices of fruit a day. rarely cheat on diet like buying him timbits[small dogunuts] once a week just one or two. He is getting ABA services and they need reinforcers[in the form of food] for therapy which is working he is sitting and doing stuffs at the table for that we have to use may be one orange and one very small plum for whole day. he gets few grapes or some other fruit for eating his medicines. But he got lots of tantrums during therapy the reason we dont know why he hitts his head on the floor or hit on his feet,rarely hurts others if they try to stop hitting head.He wont eat his food during lunch time see others food and keep on asking those stuff like berries ,crackers etc.. unfortunately no one is on any kind of diet so. After seeing his last blood work we stopped buying timbits really limiting carbs and sugars. When we did allergy test when we were in Dr G office they showed aviod sign on rice,peanut butter and when i asked Dr G' he told to limit rice [ once in two weeks and peanut butter is fine] Anyway i stopped peanut butter and i give rice once in a week i give rice based snack. I read most of the parents give non cheese pizza . Do you ever do that? we order from pizza hut no cheese pizza, just want to know is that fine? If you dont mind can pls let us know how one day diet of your son looks like? This is my son's one day diet Breakfast one french toast [made of soy butter,egg and soy milk,sugar],some fried tuna with shallots ,piece of peach Snack-one oreo cokkie, pottao chips Lunch- 1/2 of a chicken b, 1/2 slice of bread Eve snack- water, pottao chips Dinner-1 tilapia fried,stir fried beets,potatos and onions, small serving of plum yogurt[home made with 3 tea spoons of soy vanila yogurt and 1/2 of a small plum] Thank you for your time Anitha From: Sloan_smith@... Date: Fri, 25 Feb 2011 03:30:14 +0000 Subject: Re: My Son & Nids Thanks all! Its always back and forth, but always better. Thats the main thing about I can say compared to the other types of treatments. In answer to the question about SSRI: he did start on Paxil, and then Dr. G changed him.. not because he had a negative effect, but I think that is the way he treat... he is always looking for a better reaction and he does switch to find the best fit for the patient. > > > > A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! > > > > He has learned to read, he loves school and is proud of his work. > > He has gained almost 10 pounds. > > He is sweet and tells me he loves me all the time. He made me breakfast in bed! > > He plays with his brother, he pretend plays (something he was not doing before) > > He is silly and laughs! > > His teacher says his progress from September to now is unusually rapid. > > He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. > > > > He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2011 Report Share Posted February 25, 2011 Our sons day goes like this... Breakfast. Rice crispies cereal with 1/2 banana and goat milk Snack. Fruit or carrots with peanut butter or hummus Lunch. Sandwich with meat or cheese, potato chips, pear sauce Snack. Goat yogurt Dinner. Meat, salad or greens, lentil dal or beans Dessert. Goat yogurt with Stevia Sent from my iPhone On Feb 25, 2011, at 4:29 AM, Shyam Nair <shyam_k_nair@...> wrote: > > Hi Sloan, > > Great news ,so nice to hear about your son. Our son is 6 years old and we saw Dr G Same time last year in April for the first time.We are still struggling with nids diet,and my sons allergy tests comes so high and still dr G says diet is not clean and he got dark circles under his eyes.He is not very verbal. He is addicted to fruits and other carbs,sugary stuff. We try to eliminate suagr a lot bu twe give more than two slices of fruit a day. rarely cheat on diet like buying him timbits[small dogunuts] once a week just one or two. > > He is getting ABA services and they need reinforcers[in the form of food] for therapy which is working he is sitting and doing stuffs at the table for that we have to use may be one orange and one very small plum for whole day. he gets few grapes or some other fruit for eating his medicines. But he got lots of tantrums during therapy the reason we dont know why he hitts his head on the floor or hit on his feet,rarely hurts others if they try to stop hitting head.He wont eat his food during lunch time see others food and keep on asking those stuff like berries ,crackers etc.. unfortunately no one is on any kind of diet so. > > After seeing his last blood work we stopped buying timbits really limiting carbs and sugars. When we did allergy test when we were in Dr G office they showed aviod sign on rice,peanut butter and when i asked Dr G' he told to limit rice [ once in two weeks and peanut butter is fine] Anyway i stopped peanut butter and i give rice once in a week i give rice based snack. I read most of the parents give non cheese pizza . Do you ever do that? we order from pizza hut no cheese pizza, just want to know is that fine? > > If you dont mind can pls let us know how one day diet of your son looks like? This is my son's one day diet > > Breakfast one french toast [made of soy butter,egg and soy milk,sugar],some fried tuna with shallots ,piece of peach > Snack-one oreo cokkie, pottao chips > Lunch- 1/2 of a chicken b, 1/2 slice of bread > Eve snack- water, pottao chips > Dinner-1 tilapia fried,stir fried beets,potatos and onions, small serving of plum yogurt[home made with 3 tea spoons of soy vanila yogurt and 1/2 of a small plum] > > Thank you for your time > > Anitha > > > > > From: Sloan_smith@... > Date: Fri, 25 Feb 2011 03:30:14 +0000 > Subject: Re: My Son & Nids > > Thanks all! Its always back and forth, but always better. Thats the main thing about I can say compared to the other types of treatments. > In answer to the question about SSRI: he did start on Paxil, and then Dr. G changed him.. not because he had a negative effect, but I think that is the way he treat... he is always looking for a better reaction and he does switch to find the best fit for the patient. > > > > > > > > A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! > > > > > > He has learned to read, he loves school and is proud of his work. > > > He has gained almost 10 pounds. > > > He is sweet and tells me he loves me all the time. He made me breakfast in bed! > > > He plays with his brother, he pretend plays (something he was not doing before) > > > He is silly and laughs! > > > His teacher says his progress from September to now is unusually rapid. > > > He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. > > > > > > He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2011 Report Share Posted February 25, 2011 Dear Anitha I send you a webside where you can find a lot of diets for helping autistic kids. www.tacanow.org Thank you Romy From: Shyam Nair <shyam_k_nair@...> Subject: RE: Re: My Son & Nids nids Date: Friday, February 25, 2011, 4:29 AM  Hi Sloan, Great news ,so nice to hear about your son. Our son is 6 years old and we saw Dr G Same time last year in April for the first time.We are still struggling with nids diet,and my sons allergy tests comes so high and still dr G says diet is not clean and he got dark circles under his eyes.He is not very verbal. He is addicted to fruits and other carbs,sugary stuff. We try to eliminate suagr a lot bu twe give more than two slices of fruit a day. rarely cheat on diet like buying him timbits[small dogunuts] once a week just one or two. He is getting ABA services and they need reinforcers[in the form of food] for therapy which is working he is sitting and doing stuffs at the table for that we have to use may be one orange and one very small plum for whole day. he gets few grapes or some other fruit for eating his medicines. But he got lots of tantrums during therapy the reason we dont know why he hitts his head on the floor or hit on his feet,rarely hurts others if they try to stop hitting head.He wont eat his food during lunch time see others food and keep on asking those stuff like berries ,crackers etc.. unfortunately no one is on any kind of diet so. After seeing his last blood work we stopped buying timbits really limiting carbs and sugars. When we did allergy test when we were in Dr G office they showed aviod sign on rice,peanut butter and when i asked Dr G' he told to limit rice [ once in two weeks and peanut butter is fine] Anyway i stopped peanut butter and i give rice once in a week i give rice based snack. I read most of the parents give non cheese pizza . Do you ever do that? we order from pizza hut no cheese pizza, just want to know is that fine? If you dont mind can pls let us know how one day diet of your son looks like? This is my son's one day diet Breakfast one french toast [made of soy butter,egg and soy milk,sugar],some fried tuna with shallots ,piece of peach Snack-one oreo cokkie, pottao chips Lunch- 1/2 of a chicken b, 1/2 slice of bread Eve snack- water, pottao chips Dinner-1 tilapia fried,stir fried beets,potatos and onions, small serving of plum yogurt[home made with 3 tea spoons of soy vanila yogurt and 1/2 of a small plum] Thank you for your time Anitha From: Sloan_smith@... Date: Fri, 25 Feb 2011 03:30:14 +0000 Subject: Re: My Son & Nids Thanks all! Its always back and forth, but always better. Thats the main thing about I can say compared to the other types of treatments. In answer to the question about SSRI: he did start on Paxil, and then Dr. G changed him.. not because he had a negative effect, but I think that is the way he treat... he is always looking for a better reaction and he does switch to find the best fit for the patient. > > > > A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! > > > > He has learned to read, he loves school and is proud of his work. > > He has gained almost 10 pounds. > > He is sweet and tells me he loves me all the time. He made me breakfast in bed! > > He plays with his brother, he pretend plays (something he was not doing before) > > He is silly and laughs! > > His teacher says his progress from September to now is unusually rapid. > > He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. > > > > He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. > > > Quote Link to comment Share on other sites More sharing options...
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