Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 and - stop the Diflucan! These are not good symptoms. He could be having seizures as diflucan reduces seizure threshold. Can you call your doctor and tell him this? Go back to Nystatin!! Pam > > When we started Diflucan a few days ago, our son's language changed and now > sounds like he is having a stroke. He is mixing his letters up in the words > and his eyes are twitching like crazy. Can anyone give any advice? Is this > good/bad or should we just stick to Nystatin? Thanks! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Hi , We saw terrible, I mean really awful kill off with Diflucan with my son 2 or three times.and I didn't even think yeast was a problem for him. My usually very sweet passive child would throw himself at lockers at school, lie on the floor and spit and kick, verbally stim, scream, smash his head against a wall.it was horrible and never did I feel like packing it in more then when we started new antifungals. However, I had faith in the protocol and Dr. G, as he had always been right in the past. I kept in touch with his office, sought support from this list and somehow, my poor little guy rode it out, even though he said his brain was cracking. To add insult to injury, his kill off usually lasted at least 30 days, but I really did not see him return to the brighter side of himself until about 6 - 8 weeks when all of a sudden I would realize all the horrors were not happening anymore and WOW, look how great he was doing!!! This was truly the hardest part of the protocol for us and I would not have gotten through it if I didn't realize that a medication like Diflucan is not a psychotic drug and would not have my child reacting like this if it weren't for the Herxheimer reaction, which meant that all the toxins were stirred up, in his bloodstream and ultimately getting out of his system. This, in some sad twisted way is what you want. It means it is doing what you want it to do. Keep your son comfortable, be extra patient, lower your expectations for a month or two, give him some OTC pain relief for his physical discomfort if needed, give him lots and lots and lots of water and exercise to help the process. Remember your son is sick and if he ever needed love and support from his family, it is now! I even kept my son out of school for 2 weeks just because he was acting so bizarre, I didn't want his peers to see him like that for fear of removing all the social progress he had made, or putting him into a situation when he literally could not control himself and as a result be judged by teachers, students and so on. Hang in there. This is a very rough road, but my son was always, always much brighter and healthier on the other side of his ghastly kill offs. Get support where you can because I would be freaked out the whole time because any time you see your kid back slide, it eats a parent up. Ride it out, and whatever you do, don't stop. This is a really good sign, but you won't really see that for a while yet. Lori _____ From: [mailto: ] On Behalf Of and Freeman Sent: February-19-11 7:22 PM Subject: Reactions with Diflucan When we started Diflucan a few days ago, our son's language changed and now sounds like he is having a stroke. He is mixing his letters up in the words and his eyes are twitching like crazy. Can anyone give any advice? Is this good/bad or should we just stick to Nystatin? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 In our case, we experienced diflucan affecting language too, at the 3rd day. In our case, it was a positive - completely changed from pure echolalia to spontaneous 1 & 2 word utterances, which quickly advanced from there. So yes, changes in language early on would not be a surprise. Some kids have some very scary die-off reactions. If you're not with Dr G, you may not have started at the half-dose & moved up. Even if you were on nystatin before switching to diflucan, you can absolutely experience a major die-off when you start a systemic antifungal like diflucan or nizoral. I know it's scarey, but I've seen kids seem to regress so severely in those first few days come out the other side way brighter & more focused. But if you could cut the dose in half a couple of days & slowly move back up, it may help. Hope it's not the very pink version... ________________________________ From: and Freeman <freemanbk@...> Sent: Sat, February 19, 2011 6:22:07 PM Subject: Reactions with Diflucan  When we started Diflucan a few days ago, our son's language changed and now sounds like he is having a stroke. He is mixing his letters up in the words and his eyes are twitching like crazy. Can anyone give any advice? Is this good/bad or should we just stick to Nystatin? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 This wouldn't be a answer but for many kids if you kill off the yeast bacteria takes over. so a DAN doctor would prescribe diflucan and flagyl at the same time. Someone else can give you a answer. > > Hi , > > > > We saw terrible, I mean really awful kill off with Diflucan with my son 2 or > three times.and I didn't even think yeast was a problem for him. > > > > My usually very sweet passive child would throw himself at lockers at > school, lie on the floor and spit and kick, verbally stim, scream, smash his > head against a wall.it was horrible and never did I feel like packing it in > more then when we started new antifungals. > > However, I had faith in the protocol and Dr. G, as he had always been right > in the past. I kept in touch with his office, sought support from this list > and somehow, my poor little guy rode it out, even though he said his brain > was cracking. > > To add insult to injury, his kill off usually lasted at least 30 days, but I > really did not see him return to the brighter side of himself until about 6 > - 8 weeks when all of a sudden I would realize all the horrors were not > happening anymore and WOW, look how great he was doing!!! > > > > This was truly the hardest part of the protocol for us and I would not have > gotten through it if I didn't realize that a medication like Diflucan is not > a psychotic drug and would not have my child reacting like this if it > weren't for the Herxheimer reaction, which meant that all the toxins were > stirred up, in his bloodstream and ultimately getting out of his system. > This, in some sad twisted way is what you want. It means it is doing what > you want it to do. > > > > Keep your son comfortable, be extra patient, lower your expectations for a > month or two, give him some OTC pain relief for his physical discomfort if > needed, give him lots and lots and lots of water and exercise to help the > process. Remember your son is sick and if he ever needed love and support > from his family, it is now! > > I even kept my son out of school for 2 weeks just because he was acting so > bizarre, I didn't want his peers to see him like that for fear of removing > all the social progress he had made, or putting him into a situation when he > literally could not control himself and as a result be judged by teachers, > students and so on. > > > > Hang in there. This is a very rough road, but my son was always, always > much brighter and healthier on the other side of his ghastly kill offs. Get > support where you can because I would be freaked out the whole time because > any time you see your kid back slide, it eats a parent up. Ride it out, and > whatever you do, don't stop. This is a really good sign, but you won't > really see that for a while yet. > > > > Lori > > > > > > > > _____ > > From: [mailto: ] On Behalf Of > and Freeman > Sent: February-19-11 7:22 PM > > Subject: Reactions with Diflucan > > > > > > When we started Diflucan a few days ago, our son's language changed and now > sounds like he is having a stroke. He is mixing his letters up in the words > and his eyes are twitching like crazy. Can anyone give any advice? Is this > good/bad or should we just stick to Nystatin? Thanks! > > Quote Link to comment Share on other sites More sharing options...
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