Looking for 'summary' to take to son's family doctor

[Guest guest]

Hi, all,

I've just signed up and am looking through the links section for a 'simple'

explanation to take to my son's family doc to get things rolling until we can

figure out our next step. Somewhere it mentioned a letter to take to your doctor

but the link was no good. Also the link for suggested testing didn't work.

We're hoping to get in to see Dr. Goldberg and take a trip to L.A. but in the

meantime would like to start running some of the more general testing to look

for neuro and immune dysfunction. I already know he has very low N.K.cells,

elevated inflammatory cytokines, (constant head pressure) and some very high IgG

viral titers.

Can someone direct me to this information I'm looking for?

Thanks in advance,

O

[Guest guest]

,

Here is a short summary but you should really buy him Dr. G's book to read

so he will get it. Here is a link to the book:

You can order it here:

http://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Dstripbooks

<http://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Dstripbooks & field-

keywords=the+myth+of+autism> & field-keywords=the+myth+of+autism

Please know your son can get better with proper medical treatment and then

rehabilitation. No parent should accept that their child cannot be helped.

is living proof that kids can get better. I too had to go against

accepted practice to help my son. As for the meds, it was very scary to me

to put my kid on pharmaceuticals. In the beginning I was also worried about

what the medicines would do long term. That was when Dr. G asked me if my

child had diabetes would I give him insulin? Our kids are sick and until

the big cure comes along, they need these meds to make them healthy. That

is why we do blood tests every two months to catch any potential things that

can become problematic. In the 16 years my son has been doing this all his

liver functions have all been normal.

I had to take a risk if my son was going to have any chance at all at life.

I couldn't let him stay autistic with no hope for a normal existence. Just

realize every child has different medical needs. And the causes of their

autistic symptoms (that are truly Neuroimmune dysfunction and for most not

autism at all) are different too. The viral issues were big for . And

if this had been the same for everyone autism would have been cured already.

Treating these kids medically is difficult and works best when someone is

trained in the NiDS approach. For my kid and most, Dr Goldberg and Dr.

only institute one change at time to make sure they know what is

working and that they are not overtaxing a child's immune system. They

usually start off with an antiviral medication at the correct dose: a dose

strong enough to fight the viruses and not weak enough to cause a resistance

to these meds later.

Next, is usually an antifungal to control yeast. But he uses the big guns

like Nizoral or Diflucan. At the same time they try to take the stress off

the immune system by addressing diet and other allergies or anything that

could help cool it down. In addition, they treat for sinusitis and any

other health issues. And finally he adds an SSRI (like Celexa or Zoloft

or whatever he thinks your child will respond best to ) at a very small dose

to modulate the immune system not to control behavior. SSRI's are immune

modulators.

Some kids use tenex and other meds depending on their medical labs etc.

Also some of our kids have blood work that show ferriton deficiencies, so

many have to take iron. and This aids in correcting things like the problem

they have with food textures or always eating the same thing. For children

with low NK cells he prescribes Immunivir.

My son, , was diagnosed when he was four years old. A psychiatrist who

was the leading authority on autism said my child would never be okay.

According to this expert, was going to end up in an institution or

group home. Now at 22, the only institution attends is Santa Clara

University where he studies mechanical engineering on a merit scholarship.

excels academically and is in the Engineering Honor Society (top 10%

GPA). He's a member of Sigma Chi Fraternity and was president of the Jewish

Student Association. And he just received a NASA paid internship and

scholarship. But more importantly, is a typical college student who

drinks an occasional beer, goes on dates, stays out too late with friends

and then sleeps through eight o'clock classes. I couldn't be more proud!

Unbelievable as it seems, this is the same child who wanted to spend all

day, every day, plugging in a portable radio into each outlet in the house.

Back then, I wasn't sure if I had the strength to be more stubborn than my

son. There were mornings I didn't want to get out of bed to face another

day filled with autism. The worst times were when I didn't have a direction

or a plan. I was hanging onto my sanity by my fingernails. But, at the end

of the day, I was faced with a choice: let drift off forever into his

own world, or drag him kicking and screaming into ours.

After we helped medically, it was possible for him to learn.

Behavioral and educational interventions were used in conjunction with the

medical treatment to catch up on everything he missed. Initially, we

used Applied Behavior Analysis (ABA) for his rehabilitation and when he was

ready we moved towards more natural ways of teaching. It took years to

correct 's deficits in speech and social skills. It was almost like

taking a stroke victim and bringing them back. Our story is not about

coping with autism, but rather fighting back and not accepting the

misconceptions associated with this diagnosis. This process is definitely

not for sissies or parents looking for that magic cure.

Hope this helps,

Marcia