Guest guest Posted June 19, 2002 Report Share Posted June 19, 2002 ph, I believe that J. McCandless is in the southern California area. She sometimes posts to this list. Best wishes, Ann > Hi; I live in Los Angeles and cannot find a pharmacy near me that sells oral > DMSA or DMPS. Also I'm looking for a doctor who could help with all of this; > and would like to know the cost of DMSA and DMPS on a per month basis for a > 170 pound adult. > I've been sick with severe lethargy; joint stiffness, fatigue, depression, > adrenal weekness, inability to be intimite; for several years. It came on > very slowly. After a full battery of tests the 2 abnormal results were an > equivicol lyme western blot (4 bands positive) and very high mercury & copper > on a hair test; both of which are interesting since I've never had a filling > and live in southern California. I'd gotten about 40% better with standard > process supplements and diet. now I've been on antibiotics for 3 months > (minocyclene and tinidozale) and those are definitely helping; but all > chelation of metals so far has been with minerals and alginate. NDF didn't > help much at all. I read Andy Cutler's book and would like to give the oral > DMSA or DMPS plus ALA a try; but need to know a doctor to see, how to locate > a pharmacy ( I called many compounding pharmacies in phone book and none make > it), and how much it costs. > thanks > -ph Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2002 Report Share Posted June 19, 2002 Chemet (DMSA) is available by prescription everywhere. You just need a doc to write the prescription. I think it is the same with DMPS. If you have insurance with prescription coverage, it would be covered by your insurance. So, probably you would only have a co-pay each time you fill the RX. You just need to find someone in your area that does chelation therapy and is an MD. Perhaps an MD who practices alternative medicine. Surely in LA there must be plenty of those. Why not try http://www.acam.org , and do a doctor search for L.A.? Chelation therapy is listed as one of the specialties, but you should be sure to ask about what type of chelation because some may only do EDTA. [ ] new member Hi; I live in Los Angeles and cannot find a pharmacy near me that sells oral DMSA or DMPS. Also I'm looking for a doctor who could help with all of this; and would like to know the cost of DMSA and DMPS on a per month basis for a 170 pound adult. I've been sick with severe lethargy; joint stiffness, fatigue, depression, adrenal weekness, inability to be intimite; for several years. It came on very slowly. After a full battery of tests the 2 abnormal results were an equivicol lyme western blot (4 bands positive) and very high mercury & copper on a hair test; both of which are interesting since I've never had a filling and live in southern California. I'd gotten about 40% better with standard process supplements and diet. now I've been on antibiotics for 3 months (minocyclene and tinidozale) and those are definitely helping; but all chelation of metals so far has been with minerals and alginate. NDF didn't help much at all. I read Andy Cutler's book and would like to give the oral DMSA or DMPS plus ALA a try; but need to know a doctor to see, how to locate a pharmacy ( I called many compounding pharmacies in phone book and none make it), and how much it costs. thanks -ph ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Hello . > Actually, I am a lurker whose has rejoined. We are finally going to go ahead and do the hair testing, but, do we have to go to a doctor to have it done? no -- you can read about how to do it w/o a doctor, here: /files/HOW_TO_hair_test It costs $79. best wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 , I see Debbie has answered your questions just perfectly, so I will just welcome you to the group and please keep us updated on your son's progress. dustie, mom to , DOC Grad '03 > Hello everyone, > > Just yesterday I signed on to the list serve and have been reading everyone's > responses and comments - they have been very helpful. > > I have a 9 month old son who will be casted for his DOC bad on Monday. > > I have a few questions....... > > 1. I read a few comments about that some children's heads return to original > shape after treatment, has anyone experienced that? > 2. Has anyone been dissatisfied with this type of treatment? Or satisfied? > 3. What is the difference between active and passive helmet? > 4. The cranial facial plastic surgeon who looked at my son's head did not > order a test (i.e, cat scan or MRI, did anyone get one and should I request one? > 5. Has anyone had any luck getting their insurance to cover the DOC band if > their insurance is Vista formerly Foundation Health? > > Thank you for your responses. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 Hi and welcome to the group! My daughter wore the STARband. Both the STARband and DOCband are active bands. They apply gentle pressure to areas that we don't want to grow which allow growth in the areas that need to fill in. A passive helmet relies strictly on growth. If you are asking about regression. It is VERY rare. STARting at 9 months your son should not have to worry about regression. My daughter started her treatment at 9 months and wore her band for 12 weeks. She received 80% correction which we are thrilled with. We are so satisfied. KNowing what I know now, I would do it all over again in an instant. It was the best thing we did for Jenna. The plagio experts on this board may notice SLIGHT flatness still in one area, her head is now in what many orthotists consider "normal range". We changed her life and it only took 12 weeks. Jenna didn't have any specialist tests. Her specialist is the top in our area. He could tell by feeling and looking that Jenna didn't have cranio. Sorry I can't help with the insurance. We have BCBS of Kansas City. They didn't pay a dime. Please let us know how the casting goes. I would bring a bottle, pacifier if he takes either one. A favorite toy or many have used lollipops. Angie and Jenna(STARband grad) Re: new member Hello everyone,Just yesterday I signed on to the list serve and have been reading everyone's responses and comments - they have been very helpful.I have a 9 month old son who will be casted for his DOC bad on Monday.I have a few questions.......1. I read a few comments about that some children's heads return to original shape after treatment, has anyone experienced that?2. Has anyone been dissatisfied with this type of treatment? Or satisfied?3. What is the difference between active and passive helmet?4. The cranial facial plastic surgeon who looked at my son's head did not order a test (i.e, cat scan or MRI, did anyone get one and should I request one?5. Has anyone had any luck getting their insurance to cover the DOC band if their insurance is Vista formerly Foundation Health?Thank you for your responses. For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 Welcome to the group! My ortho told me what they use to determine the severity but I can't remember. I hope one of the moderators might be able to help us out. Angie and Jenna(STArband grad 1/21/03) New Member Hi,I just joined a few days ago and am desperately looking for information on Positional Plagiocephaly. I understand what it is and how it comes about. What I don't get is what determines mild, moderate or severe. It seems very subjective to me. Can anyone out there help? I am looking for very specific answers. My son is 6 months old with a flat spot that is trying to round on its own, and what I consider a slight shift of his right ear.Thanks,Tonya For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 Tonya, hi and welcome!! You are very right that the severity of the plagio is subjective. The amount of correction is very subjective. The part of plagio that is not subjective is the dx. Finding a doctor that even know's what it is. Has your son be dx with plagio? How long has it been trying to round out of it's own? If you thinking of banding him, I would start the process now.....it can take a while to finally get the band/helmet of your choosing. I hope I've helped some. Let us know what you decided to do. Dustie > Hi, > I just joined a few days ago and am desperately looking for > information on Positional Plagiocephaly. I understand what it is and > how it comes about. What I don't get is what determines mild, > moderate or severe. It seems very subjective to me. > > Can anyone out there help? I am looking for very specific answers. > > My son is 6 months old with a flat spot that is trying to round on > its own, and what I consider a slight shift of his right ear. > > Thanks, > Tonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 Thank you for the information. I think told me more in two paragraphs than either our neurosurgeon or the Cranial Tech rep that came with him. My son has been diagnosed with positional Plagio. The neurosurgeon suggested banding him, although neither he nor the Cranial Tech rep gave us any idea as to the severity or the hoped for correction. ' head has been trying to round for about a month, so we are getting very aggressive with the repositioning and seeking a second opinion. Wish us luck, Tonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Hi Krista, Welcome to the group! There are so many helpful parents here who will be a great support before, during and after your helmeting experience This is my input for your questions... 1. How long does it take to get the helmet once the head is cast? Do you know what type of helmet you are getting? We used the STARband on my daughter and after being casted it took about a week for us to get it on her. > 2. How long would you say it took your child to adapt to the helmet? The helmet really never seemed to bother . It takes about a day or two for them to be in the helmet 23 hours a day. The orthotist gave us a schedule of how long to keep it on and then take off for different incriments of time leading up to 23 hours a day. > 3. Was your child's sleep disrupted at first? 's sleep was somewhat disrupted. I don't think the helmet was as much of a problem as it was to figure out how to dress her with the helmet on. The helmet was causing her to be warmer at night. As soon as I started to dress her lighter and take off her socks we did much better. has always been a 12 hour a night sleeper and the helmet didn't change that. > 4. What are som practical things to know about the helmet, i.e. > should we get more clothing for her that won't have to pull over her head? I didn't buy any special clothing while was in her helmet. Her onesies were stretchy enough to slip right over the helemet and most all of her clothes had enough buttons to undo and get over the helmet or even pull up on her from the bottom. The most practical information I can give you is to be sure to clean the helmet everyday during your hour off with alcohol. It can really start to get stinky. We would give the helmet a good rubdown with alcohol and then let it set outside in the sun (even just 10 minutes in the sunlight would rid the helmet of the smell). has always had a lot of hair so I would also rub her head with a dampened washcloth sprayed with Mustela's Physiobebe (a no rinse cleansing liquid). I'm sure your fist hurdle will be dealing with insurance. We had Cigna PPO and were denied. Good luck, I hope this info helps. & (16 months, STARband Grad) > Hello, everyone! I am the mother of a 6 1/2 month old and we are just > beginning our journey...We saw a Neurosurgeon yesterday, who > diagnosed our daughter's plagiocephaly as " mild to moderate " and > basically said it was our call as to whether or not to do the helmet. > We discussed it and have decided to proceed with getting the helmet. > We now have the insurance hurdles ahead of us. I was wondering if > anyone could help with a few questions: > 1. How long does it take to get the helmet once the head is cast? > 2. How long would you say it took your child to adapt to the helmet? > 3. Was your child's sleep disrupted at first? > 4. What are som practical things to know about the helmet, i.e. > should we get more clothing for her that won't have to pull over her > head? > > Thanks in advance for all help! > > -Krista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 welcome to the group krista, cool name by the way (my oldest daughter is named Krista) anyway,we are from Cananda so some things will be diferent if you are from the states,(where do you hail from anyway, it will help you to get in touch with members from your area) Our daughter KariLin has had her helmet for about a month now and she is doin great ! she was only fussy the first night and she's been fine ever since.Casting was a breeze , it didnt bother her a bit. as far as how long after casting we got lucky the doc out here had her helmet (or lid as i afectionatly call it) a week after she was casted but dont hope for that, i dont know what it is like in your area, we havent changed her cloths too much, with her helmet we have to take it off to adjust it and clean it a few times a day so we just do any shirt changing needed while its off. well it is a long road you have in front of you but congrats on getting this far!! Your daughter will thank you for it one day, good luck Krista, keep us posted.. Kris, KariLin's Dad > Hello, everyone! I am the mother of a 6 1/2 month old and we are just > beginning our journey...We saw a Neurosurgeon yesterday, who > diagnosed our daughter's plagiocephaly as " mild to moderate " and > basically said it was our call as to whether or not to do the helmet. > We discussed it and have decided to proceed with getting the helmet. > We now have the insurance hurdles ahead of us. I was wondering if > anyone could help with a few questions: > 1. How long does it take to get the helmet once the head is cast? > 2. How long would you say it took your child to adapt to the helmet? > 3. Was your child's sleep disrupted at first? > 4. What are som practical things to know about the helmet, i.e. > should we get more clothing for her that won't have to pull over her > head? > > Thanks in advance for all help! > > -Krista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Hi Krista, I am in same position that you are....with a 6 month old....and a mild to moderate diagnosis....we just got our insurance authorization yesterday, so that part is now behind us....I am interested in reading the replies to your questions...since they are similar to what I have been thinking..... Good luck! It's such a good feeling knowing that you are not alone with all of questions, worries and concerns... , mom to Aidan in GR MI > Hello, everyone! I am the mother of a 6 1/2 month old and we are just > beginning our journey...We saw a Neurosurgeon yesterday, who > diagnosed our daughter's plagiocephaly as " mild to moderate " and > basically said it was our call as to whether or not to do the helmet. > We discussed it and have decided to proceed with getting the helmet. > We now have the insurance hurdles ahead of us. I was wondering if > anyone could help with a few questions: > 1. How long does it take to get the helmet once the head is cast? > 2. How long would you say it took your child to adapt to the helmet? > 3. Was your child's sleep disrupted at first? > 4. What are som practical things to know about the helmet, i.e. > should we get more clothing for her that won't have to pull over her > head? > > Thanks in advance for all help! > > -Krista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Hi krista! It's a hard decision when they tell you " mild to moderate " and that's it your decision! We decided to do it and are just getting started. Morgen is 7 1/2 mos. old and her first week has been great as far as her adjustment. The first day she was a little fussy, but by the end of the day she acted almost like it wasn't there. Her sleep was only disrupted midly and she has always been able to put herself back to sleep when she woke up. It has definately been easier than I thought! Same as others, we didn't buy any special clothes, we just change her when her " hat " is off. It only took us about 10 days to get the helmet. She is in a Starband. Good Luck! > Hello, everyone! I am the mother of a 6 1/2 month old and we are just > beginning our journey...We saw a Neurosurgeon yesterday, who > diagnosed our daughter's plagiocephaly as " mild to moderate " and > basically said it was our call as to whether or not to do the helmet. > We discussed it and have decided to proceed with getting the helmet. > We now have the insurance hurdles ahead of us. I was wondering if > anyone could help with a few questions: > 1. How long does it take to get the helmet once the head is cast? > 2. How long would you say it took your child to adapt to the helmet? > 3. Was your child's sleep disrupted at first? > 4. What are som practical things to know about the helmet, i.e. > should we get more clothing for her that won't have to pull over her > head? > > Thanks in advance for all help! > > -Krista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Hi Krista, Welcome to the group! To answer your questions: 1-Your baby should be fitted within 2 weeks from the casting. 2-Most babies adjust very well to being in a band or helmet. Most within a few days if not right away. 3-My baby's sleep was the same as before she was banded. Some babies need to adjust to sleeping in their band. 4-In this heat the less clothing the better. No shoes or socks. You need to keep her dressed lightly. Her body temp needs to adjust to her band. In the beginning she is going to sweat A LOT. I didn't buy her different clothes, most of what she had fit over her band. Keep us posted. > Hello, everyone! I am the mother of a 6 1/2 month old and we are just > beginning our journey...We saw a Neurosurgeon yesterday, who > diagnosed our daughter's plagiocephaly as " mild to moderate " and > basically said it was our call as to whether or not to do the helmet. > We discussed it and have decided to proceed with getting the helmet. > We now have the insurance hurdles ahead of us. I was wondering if > anyone could help with a few questions: > 1. How long does it take to get the helmet once the head is cast? > 2. How long would you say it took your child to adapt to the helmet? > 3. Was your child's sleep disrupted at first? > 4. What are som practical things to know about the helmet, i.e. > should we get more clothing for her that won't have to pull over her > head? > > Thanks in advance for all help! > > -Krista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Hi Krista and welcome to the group. Your daughter is at the perfect age for helmet treatment, I think you'll be pleased with the results you get. My son was banded at 7 months and wore the DOC band for 12 weeks with good results, his plagio was considered moderate. Some practical advise is to keep your daughter cool. The biggest problem is sweating, which can make your daughter uncomfortable and irritable, and make the helmet smelly. I wouldn't worry about buying new clothes, most shirts with snaps or buttons fit over the helmet. You can take the helmet off to change the clothes that don't fit. Some insurance info - The helmet is usually cover under Durable Medical Equipment as an orthotic device. Check you policy and see what your coverage is. Some insurances will try to deny for reasons such as " cosmetic or not medically neccessary " - which can be appealed and won in most cases. If you need more insurance help check out the website at www.cappskids.org they have a very good insurance help section. Good luck and keep us posted. mom to Jake 13mo(doc band grad 4/03) and Tyler 3yrs. > Hello, everyone! I am the mother of a 6 1/2 month old and we are just > beginning our journey...We saw a Neurosurgeon yesterday, who > diagnosed our daughter's plagiocephaly as " mild to moderate " and > basically said it was our call as to whether or not to do the helmet. > We discussed it and have decided to proceed with getting the helmet. > We now have the insurance hurdles ahead of us. I was wondering if > anyone could help with a few questions: > 1. How long does it take to get the helmet once the head is cast? > 2. How long would you say it took your child to adapt to the helmet? > 3. Was your child's sleep disrupted at first? > 4. What are som practical things to know about the helmet, i.e. > should we get more clothing for her that won't have to pull over her > head? > > Thanks in advance for all help! > > -Krista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Hello Krista & welcome!! I've tried replying twice now, get 1/2 way done and my puter freezes on me!! But I see just replied telling you exactly the same as I was trying to say, so I'll second what she told you. My daughter adjusted to her band immediately and slept just fine from day one. No problems. Where do you live? Do you know what type of helmet she'll be getting? Debbie Abby's mom shew I got my reply off!!stripes6060 <taime@...> wrote: Hi Krista,Welcome to the group!To answer your questions:1-Your baby should be fitted within 2 weeks from the casting.2-Most babies adjust very well to being in a band or helmet. Most within a few days if not right away.3-My baby's sleep was the same as before she was banded. Some babies need to adjust to sleeping in their band.4-In this heat the less clothing the better. No shoes or socks. You need to keep her dressed lightly. Her body temp needs to adjust to her band. In the beginning she is going to sweat A LOT. I didn't buy her different clothes, most of what she had fit over her band. Keep us posted.> Hello, everyone! I am the mother of a 6 1/2 month old and we are just > beginning our journey...We saw a Neurosurgeon yesterday, who > diagnosed our daughter's plagiocephaly as "mild to moderate" and > basically said it was our call as to whether or not to do the helmet. > We discussed it and have decided to proceed with getting the helmet. > We now have the insurance hurdles ahead of us. I was wondering if > anyone could help with a few questions:> 1. How long does it take to get the helmet once the head is cast?> 2. How long would you say it took your child to adapt to the helmet?> 3. Was your child's sleep disrupted at first?> 4. What are som practical things to know about the helmet, i.e. > should we get more clothing for her that won't have to pull over her > head?> > Thanks in advance for all help!> > -KristaFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 > Hello, everyone! I am the mother of a 6 1/2 month old and we are just > beginning our journey...We saw a Neurosurgeon yesterday, who > diagnosed our daughter's plagiocephaly as " mild to moderate " and > basically said it was our call as to whether or not to do the helmet. > We discussed it and have decided to proceed with getting the helmet. > We now have the insurance hurdles ahead of us. I was wondering if > anyone could help with a few questions: > 1. How long does it take to get the helmet once the head is cast? > 2. How long would you say it took your child to adapt to the helmet? > 3. Was your child's sleep disrupted at first? > 4. What are som practical things to know about the helmet, i.e. > should we get more clothing for her that won't have to pull over her > head? Hi Krista You mDE THE RIGHT DECISION TO GO FORWARD WITH THE HEADBAND. My daughter also has moderate plagio and she has been banded now for almost two weeks. She is 6 months. She adjusted very quickly to her band. THe first night she woke up twice, but after that she went back to sleeping through the night. It took about two weeks to get her band after she was casted. Regarding the clothes you will be able to take the headband on and off so you can put clothes on, although most of Beccas clothes are able to fit over her band. But if they don't I just take her band off. You will get very used to takling it oln and off in a couple of days. Good luck and keep us posted _ Becca's mommy DOCbanded 7/30/03 > Thanks in advance for all help! > > -Krista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Hi: Congrats on your decision! Here are my answers: 1. It took about 2 weeks to getthe helmet once it was cast. 2/3. Kurt had no trouble adjusting to it and slept right through the night the first night he had it on. No problems at all in the sleep department. 4. I thought I would need a bunch of button up clothes, but not really. Some things are big enough to either pull up over his bottom or right over the helmet. If not, I just take the helmet off to dress him, then put it back on. No biggie really. Good luck! Kim mom to Kurt (STARbanded 5/8/03)kristarella03 <kristarella03@...> wrote: Hello, everyone! I am the mother of a 6 1/2 month old and we are just beginning our journey...We saw a Neurosurgeon yesterday, who diagnosed our daughter's plagiocephaly as "mild to moderate" and basically said it was our call as to whether or not to do the helmet. We discussed it and have decided to proceed with getting the helmet. We now have the insurance hurdles ahead of us. I was wondering if anyone could help with a few questions:1. How long does it take to get the helmet once the head is cast?2. How long would you say it took your child to adapt to the helmet?3. Was your child's sleep disrupted at first?4. What are som practical things to know about the helmet, i.e. should we get more clothing for her that won't have to pull over her head?Thanks in advance for all help!-Krista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 Krista, I will just welcome you to the group and wish you luck!! Please keep us updated on how things are going with you and your little one. You rec'd some great replies from others. Dustie, mom to , DOC Grad '03 > Hello, everyone! I am the mother of a 6 1/2 month old and we are just > beginning our journey...We saw a Neurosurgeon yesterday, who > diagnosed our daughter's plagiocephaly as " mild to moderate " and > basically said it was our call as to whether or not to do the helmet. > We discussed it and have decided to proceed with getting the helmet. > We now have the insurance hurdles ahead of us. I was wondering if > anyone could help with a few questions: > 1. How long does it take to get the helmet once the head is cast? > 2. How long would you say it took your child to adapt to the helmet? > 3. Was your child's sleep disrupted at first? > 4. What are som practical things to know about the helmet, i.e. > should we get more clothing for her that won't have to pull over her > head? > > Thanks in advance for all help! > > -Krista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 In a message dated 8/9/2003 11:49:24 AM Eastern Daylight Time, kristarella03@... writes: 1. How long does it take to get the helmet once the head is cast? 2. How long would you say it took your child to adapt to the helmet? 3. Was your child's sleep disrupted at first? 4. What are som practical things to know about the helmet, i.e. should we get more clothing for her that won't have to pull over her head? Hi Krista, Welcome to the group! Each company has their own protocol for what their time frames are, but you really want to get that helmet back ideally within 10 days- they grow so quickly that the head shape is changing fast! My son didn't have much of a problem adapting to the band, never any sleep issues, he may have fussed a few times when trying to put the band on- but I think he just didn't want us messing with his head! We did buy more button down clothes as opposed to onesies and pull overs- mainly for daycare so it would be easier to take messy clothes off. Good luck and keep us posted! nicholas'mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 Hi krista 1. How long does it take to get the helmet once the head is cast? it took us 8 days to get it after casting 2. How long would you say it took your child to adapt to the helmet? she was ok with it after the first day she hated the velcro noise 3. Was your child's sleep disrupted at first? nope she actually slept better without me turning her every 2 hours 4. What are som practical things to know about the helmet, i.e. should we get more clothing for her that won't have to pull over her head? I dress her in gap onesies more cause they stretch over the helmet. The one big thing you should know is it bothers us more then them. day after laurel got hers she was her smiley self! Amy & Laurel doc banded 8-1 @ 8months old > In a message dated 8/9/2003 11:49:24 AM Eastern Daylight Time, > kristarella03@y... writes: > > > 1. How long does it take to get the helmet once the head is cast? > > 2. How long would you say it took your child to adapt to the helmet? > > 3. Was your child's sleep disrupted at first? > > 4. What are som practical things to know about the helmet, i.e. > > should we get more clothing for her that won't have to pull over her > > head? > > > > > > Hi Krista, > Welcome to the group! Each company has their own protocol for what their > time frames are, but you really want to get that helmet back ideally within 10 > days- they grow so quickly that the head shape is changing fast! My son didn't > have much of a problem adapting to the band, never any sleep issues, he may > have fussed a few times when trying to put the band on- but I think he just > didn't want us messing with his head! We did buy more button down clothes as > opposed to onesies and pull overs- mainly for daycare so it would be easier to > take messy clothes off. Good luck and keep us posted! > > nicholas'mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 Hi and Welcome to the group!! The good news is that your son is still at a nice age to receive some really good correction. What kind of Band/Helmet is he wearing? Active or Passive? Active bands normally show results fairly quickly, passive tend to take longer as they rely on growth for improvement. Good for you for standing up for your son. What are you located, maybe someone in the group has some info on the type of band you are using. Dustie, mom to , DOC Grad '03, TX > my son NIcholas is 9 1/2mths old and he just received his helmet on > monday 8.11.03. Just alittle history: he was born at 37 wks with > RDS ,he was in step down NICU for 7 days, always on his right side. > At his 6wks checkup I told the peditrian his head is flat on the > right, of course for him " NOTHING to worry about " Over the next few > mths, I tried repositioning with little improvement only. Every > visit I told the MD I'm very concerned he kept saying he'll get > better on his own. Finally, at his 9 month checkup, I was very > serious, and I told him my son needed an intervention. How long does > it take before I'll see some improvement? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 Welcome tp the group! My son recieved his band a week shy of three months and I started seeing msome improvment whithin the first week. Where are you located and what kind of band are you using? Donna and Xavier DOCband 7/25 -- In Plagiocephaly , " snuffy292002 " <snuffy292002@y...> wrote: > my son NIcholas is 9 1/2mths old and he just received his helmet on > monday 8.11.03. Just alittle history: he was born at 37 wks with > RDS ,he was in step down NICU for 7 days, always on his right side. > At his 6wks checkup I told the peditrian his head is flat on the > right, of course for him " NOTHING to worry about " Over the next few > mths, I tried repositioning with little improvement only. Every > visit I told the MD I'm very concerned he kept saying he'll get > better on his own. Finally, at his 9 month checkup, I was very > serious, and I told him my son needed an intervention. How long does > it take before I'll see some improvement? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 Hello & welcome to our group! What type of helmet is wearing? At his age, if he's in an active style band, such as a STAR or DOC (do you know what type he's in?), he should get noticeable correction in about 2-3 wks time. Active bands apply very slight pressures to the non flat side of the childs head, also called "holding points" becuz they hold the non flat areas of the head/forehead which then allows the flat areas to catch up to those other non flat areas. Passive style helmets do not apply any pressures or holding points, they are simply shaped the way the head should be, and rely on growth spurts for correction (as do active bands, but passive rely solely on growth spurts). Usually it takes longer to see correction in passive helmets, but I'd say w/i a month you should see correction. Glad you found our group Debbie Abby's mom DOCGrad snuffy292002 <snuffy292002@...> wrote: my son NIcholas is 9 1/2mths old and he just received his helmet on monday 8.11.03. Just alittle history: he was born at 37 wks with RDS ,he was in step down NICU for 7 days, always on his right side. At his 6wks checkup I told the peditrian his head is flat on the right, of course for him "NOTHING to worry about" Over the next few mths, I tried repositioning with little improvement only. Every visit I told the MD I'm very concerned he kept saying he'll get better on his own. Finally, at his 9 month checkup, I was very serious, and I told him my son needed an intervention. How long does it take before I'll see some improvement? For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 Hi snuffy welcome My dd was put in a doc band @8 months shes been wearing it 1/2 month and i can see some big chages already. Im sorry your dr waited so long. I kept hearing it will fix itself. I wish you and nicholas tons of success! Amy & Laurel doc banded 8-01 @ 8 months > my son NIcholas is 9 1/2mths old and he just received his helmet on > monday 8.11.03. Just alittle history: he was born at 37 wks with > RDS ,he was in step down NICU for 7 days, always on his right side. > At his 6wks checkup I told the peditrian his head is flat on the > right, of course for him " NOTHING to worry about " Over the next few > mths, I tried repositioning with little improvement only. Every > visit I told the MD I'm very concerned he kept saying he'll get > better on his own. Finally, at his 9 month checkup, I was very > serious, and I told him my son needed an intervention. How long does > it take before I'll see some improvement? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 Welcome to a wonderful support group! As others have asked - if we know more about the type of helmet (active vs. passive) etc, some of us can offer our experience with our banded babies! It sounds like you're on the right path though, and is still at a great age for correction! Kerri 's mom (DOCgrad) > my son NIcholas is 9 1/2mths old and he just received his helmet on > monday 8.11.03. Just alittle history: he was born at 37 wks with > RDS ,he was in step down NICU for 7 days, always on his right side. > At his 6wks checkup I told the peditrian his head is flat on the > right, of course for him " NOTHING to worry about " Over the next few > mths, I tried repositioning with little improvement only. Every > visit I told the MD I'm very concerned he kept saying he'll get > better on his own. Finally, at his 9 month checkup, I was very > serious, and I told him my son needed an intervention. How long does > it take before I'll see some improvement? Quote Link to comment Share on other sites More sharing options...
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