Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 , I have a success story my son had Plagio and Tort. I noticed when he was about 2 months that he always looked to the left I brought it up to the Dr. @ his 2 month checkup and he told me to do streches on his neck. At my son's 4 month checkup I asked about it again they referred me to a cranio facial specialist that Dr. strongly recommended that I put me son in a band because repositioning is extrememly hard because the baby's are so active and are in control of what position they want to be in, you would have to watch him 24-7 to make sure he did not lay on the flat side, my son had flattening on the left side, his ear and forehead had shifted forward. I was first very against the helmet and then saw a child in the Dr's office that had a very abnormal facial appearance and I thought how lucky I am to have a very happy healthy child it was then that I knew I was going to band my son. We went to cranial technologies and he was banded at 5 months and wore the band for 11 weeks and it never bothered him at all!!!!!! I hope this helps make your decision I just wanted you to know that not every baby is unhappy with the band. (DOCband grads mom)karen <helge4@...> wrote: I am a new member. I am in the beginning stage. I have been reading the e-mails posted and I am getting a little scared. I don't want my son to grow up with a head abnormality but I also don't want him to cry all the time and go through what I have been reading of other parents. I keep going back and forth if my son's head is bad enough. I have been bringing up the subject at his doctors appt's since my son was 2 months old and he(my doctor) keeps telling me it will correct itself. I have really not seen many changes except that my son's hair is growing so it seems to hide his head shape better. My main concern is his ears. One is higher and pushed more forward then the other. My son is 8 months old now and I fear if we don't take action it may be too late. H. mother of Ben Grand Rapids MichiganFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 Hi , Welcome to the group! From what I understand, if there is facial asymmetry, then banding is usually recommended. Most babies adjust well to their bands. Some have a shaky start but that is usually taken care of with an adjustment or 2. Some babies heads do round out, most don't. Please keep us posted on your decision. > I am a new member. I am in the beginning stage. I have been reading > the e-mails posted and I am getting a little scared. I don't want my > son to grow up with a head abnormality but I also don't want him to > cry all the time and go through what I have been reading of other > parents. I keep going back and forth if my son's head is bad > enough. I have been bringing up the subject at his doctors appt's > since my son was 2 months old and he(my doctor) keeps telling me it > will correct itself. I have really not seen many changes except that > my son's hair is growing so it seems to hide his head shape better. > My main concern is his ears. One is higher and pushed more forward > then the other. My son is 8 months old now and I fear if we don't > take action it may be too late. > > H. mother of Ben > Grand Rapids Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 Hi and welcome to the group! , you are in wonderful hands with all the GR members we have here! Dustie > I am a new member. I am in the beginning stage. I have been reading > the e-mails posted and I am getting a little scared. I don't want my > son to grow up with a head abnormality but I also don't want him to > cry all the time and go through what I have been reading of other > parents. I keep going back and forth if my son's head is bad > enough. I have been bringing up the subject at his doctors appt's > since my son was 2 months old and he(my doctor) keeps telling me it > will correct itself. I have really not seen many changes except that > my son's hair is growing so it seems to hide his head shape better. > My main concern is his ears. One is higher and pushed more forward > then the other. My son is 8 months old now and I fear if we don't > take action it may be too late. > > H. mother of Ben > Grand Rapids Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 Hi ! My son Gus has been banded for almost 8 weeks now. He did have a slight adjustment period at the beginning for about a week or so, but overall I don't think he notices the band at all. Once he got used to the band, he actually slept better too. WE have had several periods of time (b/c of sickness/fever) that he has not been able to wear the band, and I seriously think he can't tell the difference b/t wearing the band and not wearing it. It is also an excellent crash helmet as he learns to walk/crawl! It has been harder for us than it has for Gus! Best of all, Gus has had excellent correction so far. We just miss his bald little head! Good luck in your decision! Kim--Gus' mom DOC Band 8/21/03 > I am a new member. I am in the beginning stage. I have been reading > the e-mails posted and I am getting a little scared. I don't want my > son to grow up with a head abnormality but I also don't want him to > cry all the time and go through what I have been reading of other > parents. I keep going back and forth if my son's head is bad > enough. I have been bringing up the subject at his doctors appt's > since my son was 2 months old and he(my doctor) keeps telling me it > will correct itself. I have really not seen many changes except that > my son's hair is growing so it seems to hide his head shape better. > My main concern is his ears. One is higher and pushed more forward > then the other. My son is 8 months old now and I fear if we don't > take action it may be too late. > > H. mother of Ben > Grand Rapids Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 Hi and welcome to the group. We were told the same thing by our ped, so we got a new one, and she felt the same way I did. Action was taken, our son was seen for his helmet. I would consider talking to someone else about your son's plagio. Call up your ped and tell him/her that you would like a refearl to another doctor, one that deals with plagio, or you would like to be seen by a specialist. I hope that i have helped you out. Best wishes, Heidi, mom to Jeffry, local helmet grad, MN Hugs & Drool, Jeffry, Heidi & Brett Zimmerman >From: " karen " <helge4@...> >Reply-Plagiocephaly >Plagiocephaly >Subject: new member >Date: Tue, 14 Oct 2003 13:40:01 -0000 > >I am a new member. I am in the beginning stage. I have been reading >the e-mails posted and I am getting a little scared. I don't want my >son to grow up with a head abnormality but I also don't want him to >cry all the time and go through what I have been reading of other >parents. I keep going back and forth if my son's head is bad >enough. I have been bringing up the subject at his doctors appt's >since my son was 2 months old and he(my doctor) keeps telling me it >will correct itself. I have really not seen many changes except that >my son's hair is growing so it seems to hide his head shape better. >My main concern is his ears. One is higher and pushed more forward >then the other. My son is 8 months old now and I fear if we don't >take action it may be too late. > > H. mother of Ben >Grand Rapids Michigan > > > >For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 Hi , I would definitely get a 2nd opinion. Also, just wanted to let you know when my daughter had her band, she didn't mind one bit, it bothered me then it did her! In fact when I would take it off for her monthly checkup she would look around for it, she wanted it back. It protected her from lots of bumps and bruises too. I know it is hard, it made me cry when we first got it, but then it went so smooth, time went by so fast and the results were fabulous! I am glad we got the correction for her. Hang in there, and keep us posted! Yvette mom to Katelyn Starband grad. > Hi and welcome to the group. We were told the same thing by our ped, > so we got a new one, and she felt the same way I did. Action was taken, our > son was seen for his helmet. I would consider talking to someone else about > your son's plagio. Call up your ped and tell him/her that you would like a > refearl to another doctor, one that deals with plagio, or you would like to > be seen by a specialist. I hope that i have helped you out. Best wishes, > Heidi, mom to Jeffry, local helmet grad, MN > > > > Hugs & Drool, > Jeffry, Heidi & Brett > Zimmerman > > > > > > >From: " karen " <helge4@s...> > >Reply-Plagiocephaly > >Plagiocephaly > >Subject: new member > >Date: Tue, 14 Oct 2003 13:40:01 -0000 > > > >I am a new member. I am in the beginning stage. I have been reading > >the e-mails posted and I am getting a little scared. I don't want my > >son to grow up with a head abnormality but I also don't want him to > >cry all the time and go through what I have been reading of other > >parents. I keep going back and forth if my son's head is bad > >enough. I have been bringing up the subject at his doctors appt's > >since my son was 2 months old and he(my doctor) keeps telling me it > >will correct itself. I have really not seen many changes except that > >my son's hair is growing so it seems to hide his head shape better. > >My main concern is his ears. One is higher and pushed more forward > >then the other. My son is 8 months old now and I fear if we don't > >take action it may be too late. > > > > H. mother of Ben > >Grand Rapids Michigan > > > > > > > >For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 , I was definately in your place about three months ago. I wasn't sure this was what my daughter needed either. But unlike you I had a pediatrician who agreed that now was the time to do something. I know it all seems scary to you but nothing is as bad as it seems. We chose to use Cranial Technologies (DOC band). They have been great. Catriona has not had one single problem and we saw progress within a few days. I don't think it is too late for your son. But I can only advise you to take action NOW! I wish that I had not even waited as long as I did. It is better to go through this now than to regret it later when it is too late. I have heard stories since Catri was banded about people dealing with all sorts of head and jaw and neck issues in their teens because they had a peditrician who claimed it would just get better. All I can tell you is that you will not regret getting help for you son. Your gut reaction as a mother is right! Does your son have torticollis as well? (does his head tilt all the time?) Good Luck to you as you make your decisions. Sherri and Catriona (DOC banded 9/25) Acworth GAkaren <helge4@...> wrote: I am a new member. I am in the beginning stage. I have been reading the e-mails posted and I am getting a little scared. I don't want my son to grow up with a head abnormality but I also don't want him to cry all the time and go through what I have been reading of other parents. I keep going back and forth if my son's head is bad enough. I have been bringing up the subject at his doctors appt's since my son was 2 months old and he(my doctor) keeps telling me it will correct itself. I have really not seen many changes except that my son's hair is growing so it seems to hide his head shape better. My main concern is his ears. One is higher and pushed more forward then the other. My son is 8 months old now and I fear if we don't take action it may be too late. H. mother of Ben Grand Rapids MichiganFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Hi Sandy, I recognized your name from the Tort board. Welcome to the plagio group. As you have noticed, this group is really active! Good luck with treatment for Willow! - mom to Aidan STARband 08/26/03 GR Mi > Hello everyone. > I've kinda been reading without posting for a little while b/c we > were thinking of the idea of banding our 51/2month old daughter > Willow. She has torticollis and developed plagio. My husband is > military and we are stationed here in Germany. We went to see Dr. > Blecher past tuesday and Willow was casted right away. She is 1.2cm > asym. and they told us it was moderate. We could let it go still > without med complications later on, but my husband and I had been > thinking about this for the past 3 months. We have tried to repo > Willow, but with the tort and her determination to lay only the way > she wants to it did not do very much. It did get better, but still > not the way we would like it to be. It felt like it would get > better then flat out again - get better and back to flat. We > started pt about 2 wks ago after one pt failure and we seem to be on > the right track now with getting Willow's tort treated and her > plagio. Now I just hope that we can resolve the tort or get it > under control well enough for her to be able to lay on the entire > head when she is done with that tx. Thank you all for listening. > Sandy Mom to Willow / tort and in a band next week Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Hi and welcome!!!! My husband is also military and we'll be moving to Giebelstadt in February. My son will be STARbanded on Monday here in NY state. I've contacted Dr. Belcher to do followup once we arrive in Germany. Where are you guys stationed? How do you like it? Did Tricare cover the band? Sorry for so many questions. WELCOME! and 13 months > Hello everyone. > I've kinda been reading without posting for a little while b/c we > were thinking of the idea of banding our 51/2month old daughter > Willow. She has torticollis and developed plagio. My husband is > military and we are stationed here in Germany. We went to see Dr. > Blecher past tuesday and Willow was casted right away. She is 1.2cm > asym. and they told us it was moderate. We could let it go still > without med complications later on, but my husband and I had been > thinking about this for the past 3 months. We have tried to repo > Willow, but with the tort and her determination to lay only the way > she wants to it did not do very much. It did get better, but still > not the way we would like it to be. It felt like it would get > better then flat out again - get better and back to flat. We > started pt about 2 wks ago after one pt failure and we seem to be on > the right track now with getting Willow's tort treated and her > plagio. Now I just hope that we can resolve the tort or get it > under control well enough for her to be able to lay on the entire > head when she is done with that tx. Thank you all for listening. > Sandy Mom to Willow / tort and in a band next week Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Hi Sandy and welcome to the group. I'm glad that Dr. Blecher has been so good to Willow. Please keep us posted on how she is doing with PT and the banding. Dustie > Hello everyone. > I've kinda been reading without posting for a little while b/c we > were thinking of the idea of banding our 51/2month old daughter > Willow. She has torticollis and developed plagio. My husband is > military and we are stationed here in Germany. We went to see Dr. > Blecher past tuesday and Willow was casted right away. She is 1.2cm > asym. and they told us it was moderate. We could let it go still > without med complications later on, but my husband and I had been > thinking about this for the past 3 months. We have tried to repo > Willow, but with the tort and her determination to lay only the way > she wants to it did not do very much. It did get better, but still > not the way we would like it to be. It felt like it would get > better then flat out again - get better and back to flat. We > started pt about 2 wks ago after one pt failure and we seem to be on > the right track now with getting Willow's tort treated and her > plagio. Now I just hope that we can resolve the tort or get it > under control well enough for her to be able to lay on the entire > head when she is done with that tx. Thank you all for listening. > Sandy Mom to Willow / tort and in a band next week Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Welcome to the group. This is a great place to find support, ask questions, and communicate w/ folks going thru the same thing. Glad you found us. Good luck w/ the band--you will be amazed at how quickly you get results! Kim--Gus' mom DOC Band 8/21/03 > Hello everyone. > I've kinda been reading without posting for a little while b/c we > were thinking of the idea of banding our 51/2month old daughter > Willow. She has torticollis and developed plagio. My husband is > military and we are stationed here in Germany. We went to see Dr. > Blecher past tuesday and Willow was casted right away. She is 1.2cm > asym. and they told us it was moderate. We could let it go still > without med complications later on, but my husband and I had been > thinking about this for the past 3 months. We have tried to repo > Willow, but with the tort and her determination to lay only the way > she wants to it did not do very much. It did get better, but still > not the way we would like it to be. It felt like it would get > better then flat out again - get better and back to flat. We > started pt about 2 wks ago after one pt failure and we seem to be on > the right track now with getting Willow's tort treated and her > plagio. Now I just hope that we can resolve the tort or get it > under control well enough for her to be able to lay on the entire > head when she is done with that tx. Thank you all for listening. > Sandy Mom to Willow / tort and in a band next week Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Hi Sandy, Welcome to the group! I've heard only great things about Dr. Blecher! You're in very good hands. Please keep us posted on Willow's progress. > Hello everyone. > I've kinda been reading without posting for a little while b/c we > were thinking of the idea of banding our 51/2month old daughter > Willow. She has torticollis and developed plagio. My husband is > military and we are stationed here in Germany. We went to see Dr. > Blecher past tuesday and Willow was casted right away. She is 1.2cm > asym. and they told us it was moderate. We could let it go still > without med complications later on, but my husband and I had been > thinking about this for the past 3 months. We have tried to repo > Willow, but with the tort and her determination to lay only the way > she wants to it did not do very much. It did get better, but still > not the way we would like it to be. It felt like it would get > better then flat out again - get better and back to flat. We > started pt about 2 wks ago after one pt failure and we seem to be on > the right track now with getting Willow's tort treated and her > plagio. Now I just hope that we can resolve the tort or get it > under control well enough for her to be able to lay on the entire > head when she is done with that tx. Thank you all for listening. > Sandy Mom to Willow / tort and in a band next week Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hi Liv! Welcome to the group! I also have twin daughters 5 months now. Raegan was diagnosed with plagiocephaly at 4 months, though I talked to our pediatrician at 2 1/2 months and told him about the flat spot on Raegan's head. He guided me through repositioning techniques which we did until we saw him again at 4 months. We recieved our DOC band 12/22/03. I know several people have had very good results with repositioning, I will attest to the fact that it is a hard job, especially with 2! (I got a little crazy and was very worried about Kaelyn's head getting flat, so she went through a lot of the repositioning as well, although her head is as round as can be.) It did take us about 1 month to get a band after seeing our pediatrician. We were referred to a craniofacial surgeoon and then to RDA who does the casting and measurements to make the band. They had to send all that information on to craniotechnologies who then made the band an shipped it back. That alone took a lot of time, but it would have taken longer if I had not pushed the insurance company and found an error in their policy book to get our pre-authorization request looked at quickly. We could have tacked on another 2 weeks. So definately keep your options open knowing that getting a band is a long process. Good luck and keep us informed on how its going! mother Bryce 3, Kaelyn 5mos, Raegan 5mos (DOC Band 12/22/03) Overland Park, KS --- In Plagiocephaly , " stelzo720 " <stelzo720@y...> wrote: > hi, > i hope to here any advise from parents with similar issues. I have a 51/2 > month old twin baby girls with a slight flat head. I was told by a head doctor > that they might need to wear a head gear for it but other doctors and > paediatricians told me that it will eventually return to its proper shape. It's not > severe and i am putting them to sleep on their sides. Is there anything else i > can do ? > > many thanks. > > > liv Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hi Liv! Welcome to the group! I also have twin daughters 5 months now. Raegan was diagnosed with plagiocephaly at 4 months, though I talked to our pediatrician at 2 1/2 months and told him about the flat spot on Raegan's head. He guided me through repositioning techniques which we did until we saw him again at 4 months. We recieved our DOC band 12/22/03. I know several people have had very good results with repositioning, I will attest to the fact that it is a hard job, especially with 2! (I got a little crazy and was very worried about Kaelyn's head getting flat, so she went through a lot of the repositioning as well, although her head is as round as can be.) It did take us about 1 month to get a band after seeing our pediatrician. We were referred to a craniofacial surgeoon and then to RDA who does the casting and measurements to make the band. They had to send all that information on to craniotechnologies who then made the band an shipped it back. That alone took a lot of time, but it would have taken longer if I had not pushed the insurance company and found an error in their policy book to get our pre-authorization request looked at quickly. We could have tacked on another 2 weeks. So definately keep your options open knowing that getting a band is a long process. Good luck and keep us informed on how its going! mother Bryce 3, Kaelyn 5mos, Raegan 5mos (DOC Band 12/22/03) Overland Park, KS --- In Plagiocephaly , " stelzo720 " <stelzo720@y...> wrote: > hi, > i hope to here any advise from parents with similar issues. I have a 51/2 > month old twin baby girls with a slight flat head. I was told by a head doctor > that they might need to wear a head gear for it but other doctors and > paediatricians told me that it will eventually return to its proper shape. It's not > severe and i am putting them to sleep on their sides. Is there anything else i > can do ? > > many thanks. > > > liv Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Hi Liv and welcome to the group. You have found the right place for attempting to reposition your baby girls. Christie is our resident repo guru. Good luck and keep us posted on how things are going. Oh, take LOTS of pictures to help you track prgress! Dustie, mom to , DOCGrad'03 Texas --- In Plagiocephaly , " stelzo720 " <stelzo720@y...> wrote: > hi, > i hope to here any advise from parents with similar issues. I have a 51/2 > month old twin baby girls with a slight flat head. I was told by a head doctor > that they might need to wear a head gear for it but other doctors and > paediatricians told me that it will eventually return to its proper shape. It's not > severe and i am putting them to sleep on their sides. Is there anything else i > can do ? > > many thanks. > > > liv Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Hi LIz, Welcome to the group. Paige will be in excellent hands at CT and will have a nice rounder head in no time! My daughter's plagio also began in utero, but she didn't have tort. The band really isn't so bad and believe it or not you do get used to the stares and stuff. I use stickers and Mod Podge to decorate. My favs are the Susy Ratto Brush letters and Me And My Big Ideas stickers. www.scrapbookbargain.com carries both. Have fun with it! Has Paige already been casted? How old is she? , mom to Hannah, DOC #3 3/30 Cape Cod, Ma > Hi everyone I'm new here, we just found out a few days ago that our > daughter Paige is going to get a DOC band. She got plagio from being > stuck under my rib in utero. It made us feel a little better knowing > there was really nothing we could have done to prevent it. My > husband thinks it is something we did in positioning her. She also > has been diagnosed with congenital torticollis and will be doing > physical therapy. > Does anyone have any ideas for decorating? Is there a website that > has good tips? We have three girls but this is our first experience > with plagio. The only thing I'm not looking forward to is the stares > and stuff. I remember seeing kids in the mall with bands and feeling > sorry for them, so I know what people will be thinking when they see > her. I just hope this is the best thing for her. > > Thanks for letting me ramble, > Liz > > P.S. Is there anyone out there from AZ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Hi Liz, Welcome to the group! Please let us know when Paige gets her band and how she is adjusting. > Hi everyone I'm new here, we just found out a few days ago that our > daughter Paige is going to get a DOC band. She got plagio from being > stuck under my rib in utero. It made us feel a little better knowing > there was really nothing we could have done to prevent it. My > husband thinks it is something we did in positioning her. She also > has been diagnosed with congenital torticollis and will be doing > physical therapy. > Does anyone have any ideas for decorating? Is there a website that > has good tips? We have three girls but this is our first experience > with plagio. The only thing I'm not looking forward to is the stares > and stuff. I remember seeing kids in the mall with bands and feeling > sorry for them, so I know what people will be thinking when they see > her. I just hope this is the best thing for her. > > Thanks for letting me ramble, > Liz > > P.S. Is there anyone out there from AZ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Hi Liz - I am here in Phoenix Az. My son is now a year old but was DOCbanded at 4 months until 9 months and we recieved great correction. The people at Cranial Technologies are wonderful! Donna and Xavier DOCgrad > Hi everyone I'm new here, we just found out a few days ago that our > daughter Paige is going to get a DOC band. She got plagio from being > stuck under my rib in utero. It made us feel a little better knowing > there was really nothing we could have done to prevent it. My > husband thinks it is something we did in positioning her. She also > has been diagnosed with congenital torticollis and will be doing > physical therapy. > Does anyone have any ideas for decorating? Is there a website that > has good tips? We have three girls but this is our first experience > with plagio. The only thing I'm not looking forward to is the stares > and stuff. I remember seeing kids in the mall with bands and feeling > sorry for them, so I know what people will be thinking when they see > her. I just hope this is the best thing for her. > > Thanks for letting me ramble, > Liz > > P.S. Is there anyone out there from AZ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hi Angie, Welcome to the group. Does Bru have cranio? How old is he? Natasha > Hi, first let me introduce myself. My name is Angie and I have 5 > children. The oldest being my husband! Anyways...my youngest son is > being fitted for a band on the 19th. His casting was very traumatic > for me. I wasn't at all prepared for what he went through! Bru > started out life rough. He was born at 33 weeks and I'm still > covinced that his prematurity had something to attribute to this, > although I've been told otherwise. He also was born without any > softspots. Bru has gone for xrays and we have ruled out surgery > although the plates in his head have fused, it's still growing on > schedule. The back of his head nearly lines up with his neck and he's > flattened more on the left side in the back. Thus causeing the right > front side of his head to be pushed in somewhat. The dr even told me > something I had never noticed before. Because the left side is flat > in the back, the right front had to compensate I guess, thus making > his right eye smaller then his left. Anyone else hear of this or have > gone through this kind of correction? I am open to every piece of > information I can get my hands on.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hi Angie & Welcome to our group: Prematurity IS indeed a leading cause of plagiocephaly. Babies skulls are even more soft & malleable when born prematurely, as well as the way they are often positioned in the NICU often plays a role in developing positional plagio. What type of helmet was Bru casted for? Castings aren't much fun, but they are quick & painless and I'm sure Bru has long forgotten about the process The one eye smaller is a typical plagio sign and happens to many of our babies. Was it only the fontanel soft spot that was prematurely fused on Bru? Or are more of his sutures already fused? What have your Drs said about this? Often, if bones are prematurely fused, the only way to correct this would be thru surgery and the bands won't provide correction. The condition is " craniosynostosis " . I hope the band will help Bru! Please keep us posted. Welcome again. Debbie > > Hi, first let me introduce myself. My name is Angie and I have 5 > > children. The oldest being my husband! Anyways...my youngest son > is > > being fitted for a band on the 19th. His casting was very > traumatic > > for me. I wasn't at all prepared for what he went through! Bru > > started out life rough. He was born at 33 weeks and I'm still > > covinced that his prematurity had something to attribute to this, > > although I've been told otherwise. He also was born without any > > softspots. Bru has gone for xrays and we have ruled out surgery > > although the plates in his head have fused, it's still growing on > > schedule. The back of his head nearly lines up with his neck and > he's > > flattened more on the left side in the back. Thus causeing the > right > > front side of his head to be pushed in somewhat. The dr even told > me > > something I had never noticed before. Because the left side is > flat > > in the back, the right front had to compensate I guess, thus > making > > his right eye smaller then his left. Anyone else hear of this or > have > > gone through this kind of correction? I am open to every piece of > > information I can get my hands on.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hello Angie and welcome to our group. I have the same questions Natasha already asked you in her reply... But I want to share part of my story with you. Im the mother of twin boys who will turn 10 months old this thursday. They were born at 34 weeks and had to spend 17 days at NICU. Ignacio, who was baby A, was born with a flat spot in the back right side of his head. It was caused by the position he acquired inside my uterus and due to the fact that his brother was sitting on top of him for the last 13 weeks of the pregnancy. We asked the doctors about the flatness and they told us not to worry... that it will round on its own. Well... when Ignacios was two and a half months old his flatness was worse. It wasn't until his four month check up that the ped mentioned he might have torticollis and that it was the cause of the flatness not to be dissapearing. Since we weren't happy with his performance we change peds and the first thing the new ped did was some X-Rays and he also referred us to a neurosurgeon to rule out cranio. Thanks God it wasnt cranio so we ruled out surgery and we decided to get the band treatment. We also got some physical therapy for his tort and, at present, it is resolved. Ignacio started his band treatment at six months old (adjusted age 4 and a half) and we are still on treatment. We have gotten some very good results although we new from the beginning we would not get the " perfect round head " since his sutures are impacted downward and the only way to push them up is with surgery. We just celebrated our four month in the band withou any complications and we are looking forward to his graduation which, I think, could be some time around his first birthday. Regharding your concerns that his prematurity could had something to do with his plagio... I've read that premature babies are at greater risk of developing plagio. Why??? Their skulls are really soft and premmies don't move around too much so their heads are most of the time in the same position. Also, the time they spent at NICU can contribute... if your son stayed at NICU you would probably had the same experience I had which was that he was in the same position every time I went to see him. Im no expert on this but I have my doubts on how the band treatment will work out for Bru since his sutures are already fused. What did they explain you??? Annie Mom to twins, Ignacio (DOC 12/2/03 & 2/17/04) and San , PR > Hi, first let me introduce myself. My name is Angie and I have 5 > children. The oldest being my husband! Anyways...my youngest son is > being fitted for a band on the 19th. His casting was very traumatic > for me. I wasn't at all prepared for what he went through! Bru > started out life rough. He was born at 33 weeks and I'm still > covinced that his prematurity had something to attribute to this, > although I've been told otherwise. He also was born without any > softspots. Bru has gone for xrays and we have ruled out surgery > although the plates in his head have fused, it's still growing on > schedule. The back of his head nearly lines up with his neck and he's > flattened more on the left side in the back. Thus causeing the right > front side of his head to be pushed in somewhat. The dr even told me > something I had never noticed before. Because the left side is flat > in the back, the right front had to compensate I guess, thus making > his right eye smaller then his left. Anyone else hear of this or have > gone through this kind of correction? I am open to every piece of > information I can get my hands on.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 HI Angie and welcome to the group. I see that others have already replied to many of your questions, and aked you a million more, so I will just stop here with this welcome. - mom to Aidan .. > Hi, first let me introduce myself. My name is Angie and I have 5 > children. The oldest being my husband! Anyways...my youngest son is > being fitted for a band on the 19th. His casting was very traumatic > for me. I wasn't at all prepared for what he went through! Bru > started out life rough. He was born at 33 weeks and I'm still > covinced that his prematurity had something to attribute to this, > although I've been told otherwise. He also was born without any > softspots. Bru has gone for xrays and we have ruled out surgery > although the plates in his head have fused, it's still growing on > schedule. The back of his head nearly lines up with his neck and he's > flattened more on the left side in the back. Thus causeing the right > front side of his head to be pushed in somewhat. The dr even told me > something I had never noticed before. Because the left side is flat > in the back, the right front had to compensate I guess, thus making > his right eye smaller then his left. Anyone else hear of this or have > gone through this kind of correction? I am open to every piece of > information I can get my hands on.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hi and welcome to the group. I am sure you will find it a source of great support. I sure did when I joined. Best wishes… Becky (repo’ing 6-mo-old ) in Pgh, PA From: sunnyhaze2974 [mailto:angielavallee21@...] Sent: Monday, April 05, 2004 1:38 AM Plagiocephaly Subject: New Member Hi, first let me introduce myself. My name is Angie and I have 5 children. The oldest being my husband! Anyways...my youngest son is being fitted for a band on the 19th. His casting was very traumatic for me. I wasn't at all prepared for what he went through! Bru started out life rough. He was born at 33 weeks and I'm still covinced that his prematurity had something to attribute to this, although I've been told otherwise. He also was born without any softspots. Bru has gone for xrays and we have ruled out surgery although the plates in his head have fused, it's still growing on schedule. The back of his head nearly lines up with his neck and he's flattened more on the left side in the back. Thus causeing the right front side of his head to be pushed in somewhat. The dr even told me something I had never noticed before. Because the left side is flat in the back, the right front had to compensate I guess, thus making his right eye smaller then his left. Anyone else hear of this or have gone through this kind of correction? I am open to every piece of information I can get my hands on.... For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hi Angie, Welcome to the group. SOrry the casting was so traumatic, but it really is the worst part about the whole banding process. I'm confused at how Bru has had sutures close early, but they think a band will help without surgery. Have you thought about getting a second opinion? The facial assymetry is very common in plagio, as well as being born premature is a leading cause of plagio. Where are you located? , mom to Hannah, DOC #3 3/30 Cape Cod, Ma > Hi, first let me introduce myself. My name is Angie and I have 5 > children. The oldest being my husband! Anyways...my youngest son is > being fitted for a band on the 19th. His casting was very traumatic > for me. I wasn't at all prepared for what he went through! Bru > started out life rough. He was born at 33 weeks and I'm still > covinced that his prematurity had something to attribute to this, > although I've been told otherwise. He also was born without any > softspots. Bru has gone for xrays and we have ruled out surgery > although the plates in his head have fused, it's still growing on > schedule. The back of his head nearly lines up with his neck and he's > flattened more on the left side in the back. Thus causeing the right > front side of his head to be pushed in somewhat. The dr even told me > something I had never noticed before. Because the left side is flat > in the back, the right front had to compensate I guess, thus making > his right eye smaller then his left. Anyone else hear of this or have > gone through this kind of correction? I am open to every piece of > information I can get my hands on.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Well thats where i'm confused....his plates are sealed but his head is still growing. Bru is 10 months old today...8 adjusted! Angie Baclawski sunnyhaze2974 ----Original Message Follows---- From: "Natasha Gubash" <ngubash@...> Reply-Plagiocephaly Plagiocephaly Subject: Re: New Member Date: Mon, 05 Apr 2004 11:53:59 -0000 Hi Angie, Welcome to the group. Does Bru have cranio? How old is he? Natasha > Hi, first let me introduce myself. My name is Angie and I have 5 > children. The oldest being my husband! Anyways...my youngest son is > being fitted for a band on the 19th. His casting was very traumatic > for me. I wasn't at all prepared for what he went through! Bru > started out life rough. He was born at 33 weeks and I'm still > covinced that his prematurity had something to attribute to this, > although I've been told otherwise. He also was born without any > softspots. Bru has gone for xrays and we have ruled out surgery > although the plates in his head have fused, it's still growing on > schedule. The back of his head nearly lines up with his neck and he's > flattened more on the left side in the back. Thus causeing the right > front side of his head to be pushed in somewhat. The dr even told me > something I had never noticed before. Because the left side is flat > in the back, the right front had to compensate I guess, thus making > his right eye smaller then his left. Anyone else hear of this or have > gone through this kind of correction? I am open to every piece of > information I can get my hands on.... STOP MORE SPAM with MSN Premium and get 2 months FREE* Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.