Guest guest Posted February 25, 2011 Report Share Posted February 25, 2011 Great tips, Lori! Another thing I use during discrete trial training with ABA is nitrite free pepperoni, cut into bits. He loves it and it's not sugar! I get it at my health food store. Sent from my iPhone On Feb 25, 2011, at 9:06 AM, " Lori " <lbharris@...> wrote: > Hi Anitha, > > I HATE to tell you to eliminate more food, but Dr. G has done it to us so > many times over the years, and he has been right, even though my son was on > such a limited diet, it was always ``modify`` and ``remove``. His IgE was > in the 3000`s when we started and now is in the 300`s, with a range > reference of 0 - 60!. Each time the IgE gets better, so does my sons > behaviour.that part is not rocket science!!!.. > > First of all, eliminate any and all soy. For many folks, the protein is the > same as that of cow dairy and my kid used to get very hyper on any soy. > > Your son's head banging is telling you something that he cannot say with > words. It may hurt like a headache, feel congested, dull, something. > > Absolutely NO Tim Bits, Oreo Cookies, or any carbs that are empty and do not > have nutrition, especially when mixed with refined sugar and, or > chocolate!!! > > Try and substitute your rice dishes with potatoes, even French fries that > don't have coating are okay as they are usually potatoes, oil and salt, just > like plain potato chips. But use just to fill and get the main nutrition > from fish, meat and veggies. > > Try applesauce or pear sauce, without added sugar. Sometimes the same fruit > served different ways.sliced, cubes, cooked, raw, shredded. We do this with > a lot of veggies as well like cucumbers, yellow peppers, carrots, green > beans... > > Most speech and OT therapists do themselves a disservice with the ABA treats > they use like goldfish crackers, Smarties and so on. Even a tiny bit of > something bad can be reactive. Think of folks with peanut allergies.just > transferred from a hand on a door knob can be fatal! No amount is okay if > your kid can't tolerate it. > > Save the grapes or potato chips for your ABA. > > Try meat in all sorts of fun, kid friendly ways.mini meat loaves cooked in a > mini muffin pan. They freeze well and can be ready on hand, or try mini, > mini meatballs, the size of a small gumball. This is time consuming however, > so I usually opt for the mini muffin pan. This can be done with beef, > chicken, turkey , salmon etc.Just mash or ground it up and add basic > seasoning that can be tolerated. > > How many ways can you serve a boiled weiner - sticks, mini sticks, circles > with a tooth pick, half circles, even triangles or wedges. Some times the > same food that you know is tolerated must be served again and again because > you know it is safe and not reactive for your child. Kids are okay with > this. Most like the familiarity of food they know and it is grown ups that > get bored and need food adventure and variety! > > If your son can tolerate them, try eggs once or twice a week. Boiled, > chopped, fried, poached, etc. > > Try real mayonnaise, like Hellmans. Not the half the fat stuff that is > filled with corn starch. It is better for them then ketchup, has less sugar > and less reactive ingredients - again if your son can have eggs. > > Try Rice Krispies dry. To make it more interesting, you could try just a > quarter of a banana, if tolerated cut into the tiniest pieces. You could > also play ``count the Krispies`` and count them, then estimate how many a > spoon holds, a bigger spoon and so on. > > My son eats the same thing every day for breakfast. It is the most > nutrition we can pack into him in the morning that fills him. A bowl of > Rice Krispies, 2 weiners and a large glass of water. IF he is doing really > well you could venture into goat milk. However always try things plain and > look for reactions. Then add extras for taste if needed. > > We gave up ordering pizza 9 years ago when we went GFCF. Even with > modifications of the diet, we still don't order pizza. Recently, as we > have introduced goat cheese, I can make him one on a plain white tortilla, > brushed with olive oil, loaded with chicken pieces, diced yellow peppers and > goat mozzarella or cheddar grated. No tomato sauce as tomatoes are a > problem for my boy, whether they are raw or cooked. This is a real treat > and something he really looks forward to! > > As some of the kids get older they are not as reactive to different foods > and you may be able to slip the odd cookie, or pizza in for a treat or a > social occasion, but I have seen such dramatic differences in my son with a > strict diet, I am afraid to ever take those chances. Besides, we are still > battling to get his IgE into a normal range, so all these years later, we > still ``modify`` and ``remove``. > > I remember thinking that my son was going to starve whenever we implemented > a dietary change. Yet somehow, he never did. Kids are growing and hungry > and far more adaptable then we think they are. Keep trying new things that > are in the safe zone. Even if they don`t like it at first, frequent > exposure breeds familiarity and comfort. I remember when my son, for years > would not touch a potato that was not a French fry. Now he eats them all > ways and won`t eat fries unless they are Mc`s or Swiss Chalet. He has > developed good taste!!!! > > Usually we have to eliminate a lot of things before we can introduce new > things so you can see what is safe and what is not. When you introduce one > thing at a time it is easier to see your sons reaction, if there is one. > > Hope this helps, > > Lori > > _____ > > From: [mailto: ] On Behalf Of Shyam > Nair > Sent: February-25-11 4:30 AM > nids > Subject: Reply-To:X--Newman-Property:Content-Type; > b=Gqd5YcbyigK9qbpXYlY02iF8/40wiK07XIpt3oDT/QGsvrxHuKye590CfqW8hAnFXIPJSpVQeE > a0rplXYsPOSwEdvtnFUGD7pMqs8zQ/zOaSsNosaekcOcXFB5Gi27WL > > Hi Sloan, > > Great news ,so nice to hear about your son. Our son is 6 years old and we > saw Dr G Same time last year in April for the first time.We are still > struggling with nids diet,and my sons allergy tests comes so high and still > dr G says diet is not clean and he got dark circles under his eyes.He is not > very verbal. He is addicted to fruits and other carbs,sugary stuff. We try > to eliminate suagr a lot bu twe give more than two slices of fruit a day. > rarely cheat on diet like buying him timbits[small dogunuts] once a week > just one or two. > > He is getting ABA services and they need reinforcers[in the form of food] > for therapy which is working he is sitting and doing stuffs at the table for > that we have to use may be one orange and one very small plum for whole day. > he gets few grapes or some other fruit for eating his medicines. But he got > lots of tantrums during therapy the reason we dont know why he hitts his > head on the floor or hit on his feet,rarely hurts others if they try to stop > hitting head.He wont eat his food during lunch time see ot hers food and > keep on asking those stuff like berries ,crackers etc.. unfortunately no one > is on any kind of diet so. > > After seeing his last blood work we stopped buying timbits really limiting > carbs and sugars. When we did allergy test when we were in Dr G office they > showed aviod sign on rice,peanut butter and when i asked Dr G' he told to > limit rice [ once in two weeks and peanut butter is fine] Anyway i stopped > peanut butter and i give rice once in a week i give rice based snack. I read > most of the parents give non cheese pizza . Do you ever do that? we order > from pizza hut no cheese pizza, just want to know is that fi ne? > > If you dont mind can pls let us know how one day diet of your son looks > like? This is my son's one day diet > > Breakfast one french toast [made of soy butter,egg and soy milk,sugar],some > fried tuna with shallots ,piece of peach > Snack-one oreo cokkie, pottao chips > Lunch- 1/2 of a chicken b, 1/2 slice of bread > Eve snack- water, pottao chips > Dinner-1 tilapia fried,stir fried beets,potatos and onions, small serving of > plum yogurt[home made with 3 tea spoons of soy vanila yogurt and 1/2 of a > small plum] > > Thank you for your time > > Anitha > > <mailto:%40> > From: Sloan_smith@... <mailto:Sloan_smith%40> > Date: Fri, 25 Feb 2011 03:30:14 +0000 > Subject: Re: My Son & Nids > > Thanks all! Its always back and forth, but always better. Thats the main > thing about I can say compared to the other types of treatments. > In answer to the question about SSRI: he did start on Paxil, and then Dr. G > changed him.. not because he had a negative effect, but I think that is the > way he treat... he is always looking for a better reaction and he does > switch to find the best fit for the patient. > > > > > > > > A happy update about my son: In April, it will be one year that he has > been on the protocol. He is 6 years old and entered Kindergarden in the > fall. He is doing AMAZING! > > > > > > He has learned to read, he loves school and is proud of his work. > > > He has gained almost 10 pounds. > > > He is sweet and tells me he loves me all the time. He made me breakfast > in bed! > > > He plays with his brother, he pretend plays (something he was not doing > before) > > > He is silly and laughs! > > > His teacher says his progress from September to now is unusually rapid. > > > He can tell me WHY he doesn't want to do certain things (whereas before > it was a screaming tantrum). For example: he said the other day when he > didn't want to go to the playground that it was too bright there and it hurt > his eyes. This sort of explanation was never present before. > > > > > > He is still struggling socially, but its not for lack of wanting to be > included. He has a hard time with the rapid back and forth of kids. Its like > his brain is struggling to process everything at one. But the changes in him > are nothing short of amazing. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2011 Report Share Posted February 26, 2011 Hi Lori, I really appreciate the time to take to explain each and everything. Today we are driving buffalo to get his medicines. Once again thanks for all your mails. We will talk to you later. Thanks, Anitha From: lbharris@... Date: Fri, 25 Feb 2011 12:06:13 -0500 Subject: RE: Reply-To:X--Newman-Property:Content-Type; b=Gqd5YcbyigK9qbpXYlY02iF8/40wiK07XIpt3oDT/QGsvrxHuKye590CfqW8hAnFXIPJSpVQeEa0rp\ lXYsPOSwEdvtnFUGD7pMqs8zQ/zOaSsNosaekcOcXFB5Gi27WL Hi Anitha, I HATE to tell you to eliminate more food, but Dr. G has done it to us so many times over the years, and he has been right, even though my son was on such a limited diet, it was always ``modify`` and ``remove``. His IgE was in the 3000`s when we started and now is in the 300`s, with a range reference of 0 - 60!. Each time the IgE gets better, so does my sons behaviour.that part is not rocket science!!!.. First of all, eliminate any and all soy. For many folks, the protein is the same as that of cow dairy and my kid used to get very hyper on any soy. Your son's head banging is telling you something that he cannot say with words. It may hurt like a headache, feel congested, dull, something. Absolutely NO Tim Bits, Oreo Cookies, or any carbs that are empty and do not have nutrition, especially when mixed with refined sugar and, or chocolate!!! Try and substitute your rice dishes with potatoes, even French fries that don't have coating are okay as they are usually potatoes, oil and salt, just like plain potato chips. But use just to fill and get the main nutrition from fish, meat and veggies. Try applesauce or pear sauce, without added sugar. Sometimes the same fruit served different ways.sliced, cubes, cooked, raw, shredded. We do this with a lot of veggies as well like cucumbers, yellow peppers, carrots, green beans... Most speech and OT therapists do themselves a disservice with the ABA treats they use like goldfish crackers, Smarties and so on. Even a tiny bit of something bad can be reactive. Think of folks with peanut allergies.just transferred from a hand on a door knob can be fatal! No amount is okay if your kid can't tolerate it. Save the grapes or potato chips for your ABA. Try meat in all sorts of fun, kid friendly ways.mini meat loaves cooked in a mini muffin pan. They freeze well and can be ready on hand, or try mini, mini meatballs, the size of a small gumball. This is time consuming however, so I usually opt for the mini muffin pan. This can be done with beef, chicken, turkey , salmon etc.Just mash or ground it up and add basic seasoning that can be tolerated. How many ways can you serve a boiled weiner - sticks, mini sticks, circles with a tooth pick, half circles, even triangles or wedges. Some times the same food that you know is tolerated must be served again and again because you know it is safe and not reactive for your child. Kids are okay with this. Most like the familiarity of food they know and it is grown ups that get bored and need food adventure and variety! If your son can tolerate them, try eggs once or twice a week. Boiled, chopped, fried, poached, etc. Try real mayonnaise, like Hellmans. Not the half the fat stuff that is filled with corn starch. It is better for them then ketchup, has less sugar and less reactive ingredients - again if your son can have eggs. Try Rice Krispies dry. To make it more interesting, you could try just a quarter of a banana, if tolerated cut into the tiniest pieces. You could also play ``count the Krispies`` and count them, then estimate how many a spoon holds, a bigger spoon and so on. My son eats the same thing every day for breakfast. It is the most nutrition we can pack into him in the morning that fills him. A bowl of Rice Krispies, 2 weiners and a large glass of water. IF he is doing really well you could venture into goat milk. However always try things plain and look for reactions. Then add extras for taste if needed. We gave up ordering pizza 9 years ago when we went GFCF. Even with modifications of the diet, we still don't order pizza. Recently, as we have introduced goat cheese, I can make him one on a plain white tortilla, brushed with olive oil, loaded with chicken pieces, diced yellow peppers and goat mozzarella or cheddar grated. No tomato sauce as tomatoes are a problem for my boy, whether they are raw or cooked. This is a real treat and something he really looks forward to! As some of the kids get older they are not as reactive to different foods and you may be able to slip the odd cookie, or pizza in for a treat or a social occasion, but I have seen such dramatic differences in my son with a strict diet, I am afraid to ever take those chances. Besides, we are still battling to get his IgE into a normal range, so all these years later, we still ``modify`` and ``remove``. I remember thinking that my son was going to starve whenever we implemented a dietary change. Yet somehow, he never did. Kids are growing and hungry and far more adaptable then we think they are. Keep trying new things that are in the safe zone. Even if they don`t like it at first, frequent exposure breeds familiarity and comfort. I remember when my son, for years would not touch a potato that was not a French fry. Now he eats them all ways and won`t eat fries unless they are Mc`s or Swiss Chalet. He has developed good taste!!!! Usually we have to eliminate a lot of things before we can introduce new things so you can see what is safe and what is not. When you introduce one thing at a time it is easier to see your sons reaction, if there is one. Hope this helps, Lori _____ From: [mailto: ] On Behalf Of Shyam Nair Sent: February-25-11 4:30 AM nids Subject: Reply-To:X--Newman-Property:Content-Type; b=Gqd5YcbyigK9qbpXYlY02iF8/40wiK07XIpt3oDT/QGsvrxHuKye590CfqW8hAnFXIPJSpVQeE a0rplXYsPOSwEdvtnFUGD7pMqs8zQ/zOaSsNosaekcOcXFB5Gi27WL Hi Sloan, Great news ,so nice to hear about your son. Our son is 6 years old and we saw Dr G Same time last year in April for the first time.We are still struggling with nids diet,and my sons allergy tests comes so high and still dr G says diet is not clean and he got dark circles under his eyes.He is not very verbal. He is addicted to fruits and other carbs,sugary stuff. We try to eliminate suagr a lot bu twe give more than two slices of fruit a day. rarely cheat on diet like buying him timbits[small dogunuts] once a week just one or two. He is getting ABA services and they need reinforcers[in the form of food] for therapy which is working he is sitting and doing stuffs at the table for that we have to use may be one orange and one very small plum for whole day. he gets few grapes or some other fruit for eating his medicines. But he got lots of tantrums during therapy the reason we dont know why he hitts his head on the floor or hit on his feet,rarely hurts others if they try to stop hitting head.He wont eat his food during lunch time see ot hers food and keep on asking those stuff like berries ,crackers etc.. unfortunately no one is on any kind of diet so. After seeing his last blood work we stopped buying timbits really limiting carbs and sugars. When we did allergy test when we were in Dr G office they showed aviod sign on rice,peanut butter and when i asked Dr G' he told to limit rice [ once in two weeks and peanut butter is fine] Anyway i stopped peanut butter and i give rice once in a week i give rice based snack. I read most of the parents give non cheese pizza . Do you ever do that? we order from pizza hut no cheese pizza, just want to know is that fi ne? If you dont mind can pls let us know how one day diet of your son looks like? This is my son's one day diet Breakfast one french toast [made of soy butter,egg and soy milk,sugar],some fried tuna with shallots ,piece of peach Snack-one oreo cokkie, pottao chips Lunch- 1/2 of a chicken b, 1/2 slice of bread Eve snack- water, pottao chips Dinner-1 tilapia fried,stir fried beets,potatos and onions, small serving of plum yogurt[home made with 3 tea spoons of soy vanila yogurt and 1/2 of a small plum] Thank you for your time Anitha <mailto:%40> From: Sloan_smith@... <mailto:Sloan_smith%40> Date: Fri, 25 Feb 2011 03:30:14 +0000 Subject: Re: My Son & Nids Thanks all! Its always back and forth, but always better. Thats the main thing about I can say compared to the other types of treatments. In answer to the question about SSRI: he did start on Paxil, and then Dr. G changed him.. not because he had a negative effect, but I think that is the way he treat... he is always looking for a better reaction and he does switch to find the best fit for the patient. > > > > A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! > > > > He has learned to read, he loves school and is proud of his work. > > He has gained almost 10 pounds. > > He is sweet and tells me he loves me all the time. He made me breakfast in bed! > > He plays with his brother, he pretend plays (something he was not doing before) > > He is silly and laughs! > > His teacher says his progress from September to now is unusually rapid. > > He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. > > > > He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2011 Report Share Posted February 28, 2011 Anitha, Can you not get your GP or ped to rewrite Dr. G's prescriptions here in Ontario? Are you able to get any insurance coverage for your out of country prescriptions? I just worry, because over time this treatment does cost a lot. We don't get a lot back from my husband's work insurance plan, however, without it, the prescriptions would be cost prohibitive. We used to be very comfortable financially, but 3 kids, a lot of programs for each of them like hockey, Karate, dance, soccer, swimming, private piano and guitar lessons..plus Dr.G's prescriptions and our large percentage of the prescriptions, the list goes on and on.and we need to be careful financially as we are in it for the long haul to keep our son healthy! While you are very motivated now, I would hate to see you stop treatment because it costs so much, when you should be able to get coverage through your insurance, at least for a percentage.Not to mention the nuisance to drive to Buffalo to pick them up. The one med that we have to order from the States is Tenex. Thankfully it is inexpensive! However we used to drive an hour each way to pick it up and recently had a hard time getting there on time. I had the Walgreens in Niagara Falls NY Fed Ex it to me and it only cost about $30. That certainly savd a lot of time and gas and is so very worth it to us. Might be something to consider when the new baby comes! Hang in there. Call or write if you need to talk. My thoughts are with you. Best of luck with everything! Lori _____ From: [mailto: ] On Behalf Of Shyam Nair Sent: February-26-11 6:12 AM nids Subject: RE: RE: Reply-To:X--Newman-Property:Content-Type; b=Gqd5YcbyigK9qbpXYlY02iF8/40wiK07XIpt3oDT/QGsvrxHuKye590CfqW8hAnFXIPJSpVQeE a0rplXYsPOSwEdvtnFUGD7pMqs8zQ/zOaSsNosaekcOcXFB5Gi27WL Hi Lori, I really appreciate the time to take to explain each and everything. Today we are driving buffalo to get his medicines. Once again thanks for all your mails. We will talk to you later. Thanks, Anitha <mailto:%40> From: lbharris@... <mailto:lbharris%40cogeco.ca> Date: Fri, 25 Feb 2011 12:06:13 -0500 Subject: RE: Reply-To:X--Newman-Property:Content-Type; b=Gqd5YcbyigK9qbpXYlY02iF8/40wiK07XIpt3oDT/QGsvrxHuKye590CfqW8hAnFXIPJSpVQeE a0rplXYsPOSwEdvtnFUGD7pMqs8zQ/zOaSsNosaekcOcXFB5Gi27WL Hi Anitha, I HATE to tell you to eliminate more food, but Dr. G has done it to us so many times over the years, and he has been right, even though my son was on such a limited diet, it was always ``modify`` and ``remove``. His IgE was in the 3000`s when we started and now is in the 300`s, with a range reference of 0 - 60!. Each time the IgE gets better, so does my sons behaviour.that part is not rocket science!!!.. First of all, eliminate any and all soy. For many folks, the protein is the same as that of cow dairy and my kid used to get very hyper on any soy. Your son's head banging is telling you something that he cannot say with words. It may hurt like a headache, feel congested, dull, something. Absolutely NO Tim Bits, Oreo Cookies, or any carbs that are empty and do not have nutrition, especially when mixed with refined sugar and, or chocolate!!! Try and substitute your rice dishes with potatoes, even French fries that don't have coating are okay as they are usually potatoes, oil and salt, just like plain potato chips. But use just to fill and get the main nutrition from fish, meat and veggies. Try applesauce or pear sauce, without added sugar. Sometimes the same fruit served different ways.sliced, cubes, cooked, raw, shredded. We do this with a lot of veggies as well like cucumbers, yellow peppers, carrots, green beans... Most speech and OT therapists do themselves a disservice with the ABA treats they use like goldfish crackers, Smarties and so on. Even a tiny bit of something bad can be reactive. Think of folks with peanut allergies.just transferred from a hand on a door knob can be fatal! No amount is okay if your kid can't tolerate it. Save the grapes or potato chips for your ABA. Try meat in all sorts of fun, kid friendly ways.mini meat loaves cooked in a mini muffin pan. They freeze well and can be ready on hand, or try mini, mini meatballs, the size of a small gumball. This is time consuming however, so I usually opt for the mini muffin pan. This can be done with beef, chicken, turkey , salmon etc.Just mash or ground it up and add basic seasoning that can be tolerated. How many ways can you serve a boiled weiner - sticks, mini sticks, circles with a tooth pick, half circles, even triangles or wedges. Some times the same food that you know is tolerated must be served again and again because you know it is safe and not reactive for your child. Kids are okay with this. Most like the familiarity of food they know and it is grown ups that get bored and need food adventure and variety! If your son can tolerate them, try eggs once or twice a week. Boiled, chopped, fried, poached, etc. Try real mayonnaise, like Hellmans. Not the half the fat stuff that is filled with corn starch. It is better for them then ketchup, has less sugar and less reactive ingredients - again if your son can have eggs. Try Rice Krispies dry. To make it more interesting, you could try just a quarter of a banana, if tolerated cut into the tiniest pieces. You could also play ``count the Krispies`` and count them, then estimate how many a spoon holds, a bigger spoon and so on. My son eats the same thing every day for breakfast. It is the most nutrition we can pack into him in the morning that fills him. A bowl of Rice Krispies, 2 weiners and a large glass of water. IF he is doing really well you could venture into goat milk. However always try things plain and look for reactions. Then add extras for taste if needed. We gave up ordering pizza 9 years ago when we went GFCF. Even with modifications of the diet, we still don't order pizza. Recently, as we have introduced goat cheese, I can make him one on a plain white tortilla, brushed with olive oil, loaded with chicken pieces, diced yellow peppers and goat mozzarella or cheddar grated. No tomato sauce as tomatoes are a problem for my boy, whether they are raw or cooked. This is a real treat and something he really looks forward to! As some of the kids get older they are not as reactive to different foods and you may be able to slip the odd cookie, or pizza in for a treat or a social occasion, but I have seen such dramatic differences in my son with a strict diet, I am afraid to ever take those chances. Besides, we are still battling to get his IgE into a normal range, so all these years later, we still ``modify`` and ``remove``. I remember thinking that my son was going to starve whenever we implemented a dietary change. Yet somehow, he never did. Kids are growing and hungry and far more adaptable then we think they are. Keep trying new things that are in the safe zone. Even if they don`t like it at first, frequent exposure breeds familiarity and comfort. I remember when my son, for years would not touch a potato that was not a French fry. Now he eats them all ways and won`t eat fries unless they are Mc`s or Swiss Chalet. He has developed good taste!!!! Usually we have to eliminate a lot of things before we can introduce new things so you can see what is safe and what is not. When you introduce one thing at a time it is easier to see your sons reaction, if there is one. Hope this helps, Lori _____ From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Shyam Nair Sent: February-25-11 4:30 AM nids <mailto:nids%40> Subject: Reply-To:X--Newman-Property:Content-Type; b=Gqd5YcbyigK9qbpXYlY02iF8/40wiK07XIpt3oDT/QGsvrxHuKye590CfqW8hAnFXIPJSpVQeE a0rplXYsPOSwEdvtnFUGD7pMqs8zQ/zOaSsNosaekcOcXFB5Gi27WL Hi Sloan, Great news ,so nice to hear about your son. Our son is 6 years old and we saw Dr G Same time last year in April for the first time.We are still struggling with nids diet,and my sons allergy tests comes so high and still dr G says diet is not clean and he got dark circles under his eyes.He is not very verbal. He is addicted to fruits and other carbs,sugary stuff. We try to eliminate suagr a lot bu twe give more than two slices of fruit a day. rarely cheat on diet like buying him timbits[small dogunuts] once a week just one or two. He is getting ABA services and they need reinforcers[in the form of food] for therapy which is working he is sitting and doing stuffs at the table for that we have to use may be one orange and one very small plum for whole day. he gets few grapes or some other fruit for eating his medicines. But he got lots of tantrums during therapy the reason we dont know why he hitts his head on the floor or hit on his feet,rarely hurts others if they try to stop hitting head.He wont eat his food during lunch time see ot hers food and keep on asking those stuff like berries ,crackers etc.. unfortunately no one is on any kind of diet so. After seeing his last blood work we stopped buying timbits really limiting carbs and sugars. When we did allergy test when we were in Dr G office they showed aviod sign on rice,peanut butter and when i asked Dr G' he told to limit rice [ once in two weeks and peanut butter is fine] Anyway i stopped peanut butter and i give rice once in a week i give rice based snack. I read most of the parents give non cheese pizza . Do you ever do that? we order from pizza hut no cheese pizza, just want to know is that fi ne? If you dont mind can pls let us know how one day diet of your son looks like? This is my son's one day diet Breakfast one french toast [made of soy butter,egg and soy milk,sugar],some fried tuna with shallots ,piece of peach Snack-one oreo cokkie, pottao chips Lunch- 1/2 of a chicken b, 1/2 slice of bread Eve snack- water, pottao chips Dinner-1 tilapia fried,stir fried beets,potatos and onions, small serving of plum yogurt[home made with 3 tea spoons of soy vanila yogurt and 1/2 of a small plum] Thank you for your time Anitha <mailto:%40> <mailto:%40> From: Sloan_smith@... <mailto:Sloan_smith%40> <mailto:Sloan_smith%40> Date: Fri, 25 Feb 2011 03:30:14 +0000 Subject: Re: My Son & Nids Thanks all! Its always back and forth, but always better. Thats the main thing about I can say compared to the other types of treatments. In answer to the question about SSRI: he did start on Paxil, and then Dr. G changed him.. not because he had a negative effect, but I think that is the way he treat... he is always looking for a better reaction and he does switch to find the best fit for the patient. > > > > A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! > > > > He has learned to read, he loves school and is proud of his work. > > He has gained almost 10 pounds. > > He is sweet and tells me he loves me all the time. He made me breakfast in bed! > > He plays with his brother, he pretend plays (something he was not doing before) > > He is silly and laughs! > > His teacher says his progress from September to now is unusually rapid. > > He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. > > > > He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2011 Report Share Posted February 28, 2011 Lori, I am having the same problem, as we discussed. I cannot get my pead, or family gp to rewrite prescriptions. They have very nicely (one not so nicely) 'opted out' of treating or discussing autism. The fact that my oldest son has suffered with chronic illness since birth and now seems to be regressing into autism is completely lost on them. They have no answers and will not be liable for reactions to meds, etc. Not sure yet if our insurance covers out of country expenses.still on my 'to do' list. _____ From: [mailto: ] On Behalf Of Lori Sent: February 28, 2011 1:18 PM Subject: RE: RE: Reply-To:X--Newman-Property:Content-Type; b=Gqd5YcbyigK9qbpXYlY02iF8/40wiK07XIpt3oDT/QGsvrxHuKye590CfqW8hAnFXIPJSpVQeE a0rplXYsPOSwEdvtnFUGD7pMqs8zQ/zOaSsNosaekcOcXFB5Gi27WL Anitha, Can you not get your GP or ped to rewrite Dr. G's prescriptions here in Ontario? Are you able to get any insurance coverage for your out of country prescriptions? I just worry, because over time this treatment does cost a lot. We don't get a lot back from my husband's work insurance plan, however, without it, the prescriptions would be cost prohibitive. We used to be very comfortable financially, but 3 kids, a lot of programs for each of them like hockey, Karate, dance, soccer, swimming, private piano and guitar lessons..plus Dr.G's prescriptions and our large percentage of the prescriptions, the list goes on and on.and we need to be careful financially as we are in it for the long haul to keep our son healthy! While you are very motivated now, I would hate to see you stop treatment because it costs so much, when you should be able to get coverage through your insurance, at least for a percentage.Not to mention the nuisance to drive to Buffalo to pick them up. The one med that we have to order from the States is Tenex. Thankfully it is inexpensive! However we used to drive an hour each way to pick it up and recently had a hard time getting there on time. I had the Walgreens in Niagara Falls NY Fed Ex it to me and it only cost about $30. That certainly savd a lot of time and gas and is so very worth it to us. Might be something to consider when the new baby comes! Hang in there. Call or write if you need to talk. My thoughts are with you. Best of luck with everything! Lori _____ From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Shyam Nair Sent: February-26-11 6:12 AM nids <mailto:nids%40> Subject: RE: RE: Reply-To:X--Newman-Property:Content-Type; b=Gqd5YcbyigK9qbpXYlY02iF8/40wiK07XIpt3oDT/QGsvrxHuKye590CfqW8hAnFXIPJSpVQeE a0rplXYsPOSwEdvtnFUGD7pMqs8zQ/zOaSsNosaekcOcXFB5Gi27WL Hi Lori, I really appreciate the time to take to explain each and everything. Today we are driving buffalo to get his medicines. Once again thanks for all your mails. We will talk to you later. Thanks, Anitha <mailto:%40> <mailto:%40> From: lbharris@... <mailto:lbharris%40cogeco.ca> <mailto:lbharris%40cogeco.ca> Date: Fri, 25 Feb 2011 12:06:13 -0500 Subject: RE: Reply-To:X--Newman-Property:Content-Type; b=Gqd5YcbyigK9qbpXYlY02iF8/40wiK07XIpt3oDT/QGsvrxHuKye590CfqW8hAnFXIPJSpVQeE a0rplXYsPOSwEdvtnFUGD7pMqs8zQ/zOaSsNosaekcOcXFB5Gi27WL Hi Anitha, I HATE to tell you to eliminate more food, but Dr. G has done it to us so many times over the years, and he has been right, even though my son was on such a limited diet, it was always ``modify`` and ``remove``. His IgE was in the 3000`s when we started and now is in the 300`s, with a range reference of 0 - 60!. Each time the IgE gets better, so does my sons behaviour.that part is not rocket science!!!.. First of all, eliminate any and all soy. For many folks, the protein is the same as that of cow dairy and my kid used to get very hyper on any soy. Your son's head banging is telling you something that he cannot say with words. It may hurt like a headache, feel congested, dull, something. Absolutely NO Tim Bits, Oreo Cookies, or any carbs that are empty and do not have nutrition, especially when mixed with refined sugar and, or chocolate!!! Try and substitute your rice dishes with potatoes, even French fries that don't have coating are okay as they are usually potatoes, oil and salt, just like plain potato chips. But use just to fill and get the main nutrition from fish, meat and veggies. Try applesauce or pear sauce, without added sugar. Sometimes the same fruit served different ways.sliced, cubes, cooked, raw, shredded. We do this with a lot of veggies as well like cucumbers, yellow peppers, carrots, green beans... Most speech and OT therapists do themselves a disservice with the ABA treats they use like goldfish crackers, Smarties and so on. Even a tiny bit of something bad can be reactive. Think of folks with peanut allergies.just transferred from a hand on a door knob can be fatal! No amount is okay if your kid can't tolerate it. Save the grapes or potato chips for your ABA. Try meat in all sorts of fun, kid friendly ways.mini meat loaves cooked in a mini muffin pan. They freeze well and can be ready on hand, or try mini, mini meatballs, the size of a small gumball. This is time consuming however, so I usually opt for the mini muffin pan. This can be done with beef, chicken, turkey , salmon etc.Just mash or ground it up and add basic seasoning that can be tolerated. How many ways can you serve a boiled weiner - sticks, mini sticks, circles with a tooth pick, half circles, even triangles or wedges. Some times the same food that you know is tolerated must be served again and again because you know it is safe and not reactive for your child. Kids are okay with this. Most like the familiarity of food they know and it is grown ups that get bored and need food adventure and variety! If your son can tolerate them, try eggs once or twice a week. Boiled, chopped, fried, poached, etc. Try real mayonnaise, like Hellmans. Not the half the fat stuff that is filled with corn starch. It is better for them then ketchup, has less sugar and less reactive ingredients - again if your son can have eggs. Try Rice Krispies dry. To make it more interesting, you could try just a quarter of a banana, if tolerated cut into the tiniest pieces. You could also play ``count the Krispies`` and count them, then estimate how many a spoon holds, a bigger spoon and so on. My son eats the same thing every day for breakfast. It is the most nutrition we can pack into him in the morning that fills him. A bowl of Rice Krispies, 2 weiners and a large glass of water. IF he is doing really well you could venture into goat milk. However always try things plain and look for reactions. Then add extras for taste if needed. We gave up ordering pizza 9 years ago when we went GFCF. Even with modifications of the diet, we still don't order pizza. Recently, as we have introduced goat cheese, I can make him one on a plain white tortilla, brushed with olive oil, loaded with chicken pieces, diced yellow peppers and goat mozzarella or cheddar grated. No tomato sauce as tomatoes are a problem for my boy, whether they are raw or cooked. This is a real treat and something he really looks forward to! As some of the kids get older they are not as reactive to different foods and you may be able to slip the odd cookie, or pizza in for a treat or a social occasion, but I have seen such dramatic differences in my son with a strict diet, I am afraid to ever take those chances. Besides, we are still battling to get his IgE into a normal range, so all these years later, we still ``modify`` and ``remove``. I remember thinking that my son was going to starve whenever we implemented a dietary change. Yet somehow, he never did. Kids are growing and hungry and far more adaptable then we think they are. Keep trying new things that are in the safe zone. Even if they don`t like it at first, frequent exposure breeds familiarity and comfort. I remember when my son, for years would not touch a potato that was not a French fry. Now he eats them all ways and won`t eat fries unless they are Mc`s or Swiss Chalet. He has developed good taste!!!! Usually we have to eliminate a lot of things before we can introduce new things so you can see what is safe and what is not. When you introduce one thing at a time it is easier to see your sons reaction, if there is one. Hope this helps, Lori _____ From: <mailto:%40> <mailto:%40> [mailto: <mailto:%40> <mailto:%40> ] On Behalf Of Shyam Nair Sent: February-25-11 4:30 AM nids <mailto:nids%40> <mailto:nids%40> Subject: Reply-To:X--Newman-Property:Content-Type; b=Gqd5YcbyigK9qbpXYlY02iF8/40wiK07XIpt3oDT/QGsvrxHuKye590CfqW8hAnFXIPJSpVQeE a0rplXYsPOSwEdvtnFUGD7pMqs8zQ/zOaSsNosaekcOcXFB5Gi27WL Hi Sloan, Great news ,so nice to hear about your son. Our son is 6 years old and we saw Dr G Same time last year in April for the first time.We are still struggling with nids diet,and my sons allergy tests comes so high and still dr G says diet is not clean and he got dark circles under his eyes.He is not very verbal. He is addicted to fruits and other carbs,sugary stuff. We try to eliminate suagr a lot bu twe give more than two slices of fruit a day. rarely cheat on diet like buying him timbits[small dogunuts] once a week just one or two. He is getting ABA services and they need reinforcers[in the form of food] for therapy which is working he is sitting and doing stuffs at the table for that we have to use may be one orange and one very small plum for whole day. he gets few grapes or some other fruit for eating his medicines. But he got lots of tantrums during therapy the reason we dont know why he hitts his head on the floor or hit on his feet,rarely hurts others if they try to stop hitting head.He wont eat his food during lunch time see ot hers food and keep on asking those stuff like berries ,crackers etc.. unfortunately no one is on any kind of diet so. After seeing his last blood work we stopped buying timbits really limiting carbs and sugars. When we did allergy test when we were in Dr G office they showed aviod sign on rice,peanut butter and when i asked Dr G' he told to limit rice [ once in two weeks and peanut butter is fine] Anyway i stopped peanut butter and i give rice once in a week i give rice based snack. I read most of the parents give non cheese pizza . Do you ever do that? we order from pizza hut no cheese pizza, just want to know is that fi ne? If you dont mind can pls let us know how one day diet of your son looks like? This is my son's one day diet Breakfast one french toast [made of soy butter,egg and soy milk,sugar],some fried tuna with shallots ,piece of peach Snack-one oreo cokkie, pottao chips Lunch- 1/2 of a chicken b, 1/2 slice of bread Eve snack- water, pottao chips Dinner-1 tilapia fried,stir fried beets,potatos and onions, small serving of plum yogurt[home made with 3 tea spoons of soy vanila yogurt and 1/2 of a small plum] Thank you for your time Anitha <mailto:%40> <mailto:%40> <mailto:%40> From: Sloan_smith@... <mailto:Sloan_smith%40> <mailto:Sloan_smith%40> <mailto:Sloan_smith%40> Date: Fri, 25 Feb 2011 03:30:14 +0000 Subject: Re: My Son & Nids Thanks all! Its always back and forth, but always better. Thats the main thing about I can say compared to the other types of treatments. In answer to the question about SSRI: he did start on Paxil, and then Dr. G changed him.. not because he had a negative effect, but I think that is the way he treat... he is always looking for a better reaction and he does switch to find the best fit for the patient. > > > > A happy update about my son: In April, it will be one year that he has been on the protocol. He is 6 years old and entered Kindergarden in the fall. He is doing AMAZING! > > > > He has learned to read, he loves school and is proud of his work. > > He has gained almost 10 pounds. > > He is sweet and tells me he loves me all the time. He made me breakfast in bed! > > He plays with his brother, he pretend plays (something he was not doing before) > > He is silly and laughs! > > His teacher says his progress from September to now is unusually rapid. > > He can tell me WHY he doesn't want to do certain things (whereas before it was a screaming tantrum). For example: he said the other day when he didn't want to go to the playground that it was too bright there and it hurt his eyes. This sort of explanation was never present before. > > > > He is still struggling socially, but its not for lack of wanting to be included. He has a hard time with the rapid back and forth of kids. Its like his brain is struggling to process everything at one. But the changes in him are nothing short of amazing. > > > Quote Link to comment Share on other sites More sharing options...
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