Guest guest Posted February 25, 2011 Report Share Posted February 25, 2011 My son is 6.1 years and is high functioning autistic. We have done a great number of interventions, diet, chelation, ridiculous amount of supplements etc. over the past 2 years to no avail. I recently heard about and contacted the New York office for help. We live in Johannesburg, South Africa so Dr. has agreed to help us long distance provided we get a primary care giver in SA willing to follow the protocol. It has taken me some time to find a doctor even willing to review the science behind the protocol but I have eventually succeeded. Our local doctor is reviewing the protocol for what blood work is required under guidance from Dr. , I hope !! My son, Troy has been on SCD for about 6 weeks now. He seems to be doing better on the diet. I understand the diet is very different from SCD, especially since we rely heavily on Almond and Cashew Nuts. I also make his yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is there a book I can buy explaining the diet so I can change his diet yet again as I am sure our doctor in SA is not going to have a clue about the diet. In terms of supplements Troy is at the moment on Vitamin C & D, Milk Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or should I stop the supplements for now? We are so desperate to get going on the protocol and thought we could start with the correct supplements and diet for now as we wait for the blood work from our doctor. I would so appreciate any feedback or help as we feel so alone in this battle so far away from everyone. No medical professional in SA has a clue about , that is so frightening. Thanks so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2011 Report Share Posted February 28, 2011 HI , We've been on SCD for almost 2 years now. The basis for SCD-AUTISM is not too different from in that you should be doing veggies, meats/fish/ckn, some fruits. For SCD you really shouldn't start nuts for at least the first 3 (most say 6) months; many kids can't handle them. So if you are following pecanbread.com (SCD for autism/spectrum disorders), you wouldn't use nuts yet and no cow diary, instead you would use goat milk to make the homemade yogurt. Dr. G allows goat milk/yogurt, so long as the child is fine with it. However, he doesn't allow tropical fruits or nuts. So, if you stick with the basics of SCD, don't do nuts, and sub goat for milk diary, you should be fine. He does allow processed peanut butter like peter pan. Not sure if you can get that in SA. I would stick with SCD before seeing the doctor, but that's just me. We just saw him for the first time at the end of January and I've only tried potato chips once. Basically, in addition to SCD, you could add rice and or potatos a couple times a week and some other veggies that are starchy that SCD doesn't allow (e.g., sweet potato, again real limited). The basis of the diet is really like SCD. You want to keep processed food to a minimum and keep with organic, free-range, grass-fed meats and organic fruits/veggies (keeping the diet as clean as possible). There's a file in the group database on the diet. I was going to attach it for you, but it's not working right now. Dr. G (from my limited experience, as we're just starting this protocol), doesn't do big combos of drugs. He started our son on valtrex and told us one thing at a time so that we can see the response. Our son has been on Flagyl a few times and he wasn't real happy about it for the reason he was Rx'ed it, but not sure why you guys are on it. He is going to rx us an antifungal (seems to go with ketoconzaole=Nizoral more than Diflucan, but not sure exactly why; I'm sure others can chime in about this), but, again he wants our son a little more stable before he adds the Nizoral. So, in short, he does use the antifungals and antivirals, but I do find he uses different doses than our DAN! was using and other docs and he bases this on bloodwork that he follows to adjust the dosages. I would just focus on the diet until you get to see/talk with Dr. Russel and keep changes to a minimal so that you won't be adding incorrect things/doses that you'd have to change later. Just an idea. I wish you all the best. Kathi From: [mailto: ] On Behalf Of Sent: Saturday, February 26, 2011 2:15 AM Subject: Just Starting Out with My son is 6.1 years and is high functioning autistic. We have done a great number of interventions, diet, chelation, ridiculous amount of supplements etc. over the past 2 years to no avail. I recently heard about and contacted the New York office for help. We live in Johannesburg, South Africa so Dr. has agreed to help us long distance provided we get a primary care giver in SA willing to follow the protocol. It has taken me some time to find a doctor even willing to review the science behind the protocol but I have eventually succeeded. Our local doctor is reviewing the protocol for what blood work is required under guidance from Dr. , I hope !! My son, Troy has been on SCD for about 6 weeks now. He seems to be doing better on the diet. I understand the diet is very different from SCD, especially since we rely heavily on Almond and Cashew Nuts. I also make his yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is there a book I can buy explaining the diet so I can change his diet yet again as I am sure our doctor in SA is not going to have a clue about the diet. In terms of supplements Troy is at the moment on Vitamin C & D, Milk Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or should I stop the supplements for now? We are so desperate to get going on the protocol and thought we could start with the correct supplements and diet for now as we wait for the blood work from our doctor. I would so appreciate any feedback or help as we feel so alone in this battle so far away from everyone. No medical professional in SA has a clue about , that is so frightening. Thanks so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2011 Report Share Posted February 28, 2011 Hi Kathi, Thank you so much for the response. I will make the changes to his diet as below. May I ask what was the dose of Valtrex prescribed for your son and how much does he weigh? The NNY clinic does not want us to fly to the USA for consultation with Dr. R but would have us working with a doctor in SA instead. I am really nervous about this decision and would rather consult directly with a doctor in the USA that is experienced with . Does anyone know if Dr. G would consult long distance with us? So we would go to the USA for the initial consolation and thereafter do the follow up consolations via skype. If so, has anyone got his offices e-mail address. Regards, _____ From: [mailto: ] On Behalf Of Kathi Sent: 28 February 2011 07:38 PM Subject: RE: Just Starting Out with HI , We've been on SCD for almost 2 years now. The basis for SCD-AUTISM is not too different from in that you should be doing veggies, meats/fish/ckn, some fruits. For SCD you really shouldn't start nuts for at least the first 3 (most say 6) months; many kids can't handle them. So if you are following pecanbread.com (SCD for autism/spectrum disorders), you wouldn't use nuts yet and no cow diary, instead you would use goat milk to make the homemade yogurt. Dr. G allows goat milk/yogurt, so long as the child is fine with it. However, he doesn't allow tropical fruits or nuts. So, if you stick with the basics of SCD, don't do nuts, and sub goat for milk diary, you should be fine. He does allow processed peanut butter like peter pan. Not sure if you can get that in SA. I would stick with SCD before seeing the doctor, but that's just me. We just saw him for the first time at the end of January and I've only tried potato chips once. Basically, in addition to SCD, you could add rice and or potatos a couple times a week and some other veggies that are starchy that SCD doesn't allow (e.g., sweet potato, again real limited). The basis of the diet is really like SCD. You want to keep processed food to a minimum and keep with organic, free-range, grass-fed meats and organic fruits/veggies (keeping the diet as clean as possible). There's a file in the group database on the diet. I was going to attach it for you, but it's not working right now. Dr. G (from my limited experience, as we're just starting this protocol), doesn't do big combos of drugs. He started our son on valtrex and told us one thing at a time so that we can see the response. Our son has been on Flagyl a few times and he wasn't real happy about it for the reason he was Rx'ed it, but not sure why you guys are on it. He is going to rx us an antifungal (seems to go with ketoconzaole=Nizoral more than Diflucan, but not sure exactly why; I'm sure others can chime in about this), but, again he wants our son a little more stable before he adds the Nizoral. So, in short, he does use the antifungals and antivirals, but I do find he uses different doses than our DAN! was using and other docs and he bases this on bloodwork that he follows to adjust the dosages. I would just focus on the diet until you get to see/talk with Dr. Russel and keep changes to a minimal so that you won't be adding incorrect things/doses that you'd have to change later. Just an idea. I wish you all the best. Kathi From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Sent: Saturday, February 26, 2011 2:15 AM <mailto:%40> Subject: Just Starting Out with My son is 6.1 years and is high functioning autistic. We have done a great number of interventions, diet, chelation, ridiculous amount of supplements etc. over the past 2 years to no avail. I recently heard about and contacted the New York office for help. We live in Johannesburg, South Africa so Dr. has agreed to help us long distance provided we get a primary care giver in SA willing to follow the protocol. It has taken me some time to find a doctor even willing to review the science behind the protocol but I have eventually succeeded. Our local doctor is reviewing the protocol for what blood work is required under guidance from Dr. , I hope !! My son, Troy has been on SCD for about 6 weeks now. He seems to be doing better on the diet. I understand the diet is very different from SCD, especially since we rely heavily on Almond and Cashew Nuts. I also make his yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is there a book I can buy explaining the diet so I can change his diet yet again as I am sure our doctor in SA is not going to have a clue about the diet. In terms of supplements Troy is at the moment on Vitamin C & D, Milk Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or should I stop the supplements for now? We are so desperate to get going on the protocol and thought we could start with the correct supplements and diet for now as we wait for the blood work from our doctor. I would so appreciate any feedback or help as we feel so alone in this battle so far away from everyone. No medical professional in SA has a clue about , that is so frightening. Thanks so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Many of us met with Dr. G in person once and then do monthly phone consults along with written updates and labwork requisitions.  Best,  From: <evelyng@...> Subject: RE: Just Starting Out with Date: Tuesday, March 1, 2011, 2:39 AM  Hi Kathi, Thank you so much for the response. I will make the changes to his diet as below. May I ask what was the dose of Valtrex prescribed for your son and how much does he weigh? The NNY clinic does not want us to fly to the USA for consultation with Dr. R but would have us working with a doctor in SA instead. I am really nervous about this decision and would rather consult directly with a doctor in the USA that is experienced with . Does anyone know if Dr. G would consult long distance with us? So we would go to the USA for the initial consolation and thereafter do the follow up consolations via skype. If so, has anyone got his offices e-mail address. Regards, _____ From: [mailto: ] On Behalf Of Kathi Sent: 28 February 2011 07:38 PM Subject: RE: Just Starting Out with HI , We've been on SCD for almost 2 years now. The basis for SCD-AUTISM is not too different from in that you should be doing veggies, meats/fish/ckn, some fruits. For SCD you really shouldn't start nuts for at least the first 3 (most say 6) months; many kids can't handle them. So if you are following pecanbread.com (SCD for autism/spectrum disorders), you wouldn't use nuts yet and no cow diary, instead you would use goat milk to make the homemade yogurt. Dr. G allows goat milk/yogurt, so long as the child is fine with it. However, he doesn't allow tropical fruits or nuts. So, if you stick with the basics of SCD, don't do nuts, and sub goat for milk diary, you should be fine. He does allow processed peanut butter like peter pan. Not sure if you can get that in SA. I would stick with SCD before seeing the doctor, but that's just me. We just saw him for the first time at the end of January and I've only tried potato chips once. Basically, in addition to SCD, you could add rice and or potatos a couple times a week and some other veggies that are starchy that SCD doesn't allow (e.g., sweet potato, again real limited). The basis of the diet is really like SCD. You want to keep processed food to a minimum and keep with organic, free-range, grass-fed meats and organic fruits/veggies (keeping the diet as clean as possible). There's a file in the group database on the diet. I was going to attach it for you, but it's not working right now. Dr. G (from my limited experience, as we're just starting this protocol), doesn't do big combos of drugs. He started our son on valtrex and told us one thing at a time so that we can see the response. Our son has been on Flagyl a few times and he wasn't real happy about it for the reason he was Rx'ed it, but not sure why you guys are on it. He is going to rx us an antifungal (seems to go with ketoconzaole=Nizoral more than Diflucan, but not sure exactly why; I'm sure others can chime in about this), but, again he wants our son a little more stable before he adds the Nizoral. So, in short, he does use the antifungals and antivirals, but I do find he uses different doses than our DAN! was using and other docs and he bases this on bloodwork that he follows to adjust the dosages. I would just focus on the diet until you get to see/talk with Dr. Russel and keep changes to a minimal so that you won't be adding incorrect things/doses that you'd have to change later. Just an idea. I wish you all the best. Kathi From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Sent: Saturday, February 26, 2011 2:15 AM <mailto:%40> Subject: Just Starting Out with My son is 6.1 years and is high functioning autistic. We have done a great number of interventions, diet, chelation, ridiculous amount of supplements etc. over the past 2 years to no avail. I recently heard about and contacted the New York office for help. We live in Johannesburg, South Africa so Dr. has agreed to help us long distance provided we get a primary care giver in SA willing to follow the protocol. It has taken me some time to find a doctor even willing to review the science behind the protocol but I have eventually succeeded. Our local doctor is reviewing the protocol for what blood work is required under guidance from Dr. , I hope !! My son, Troy has been on SCD for about 6 weeks now. He seems to be doing better on the diet. I understand the diet is very different from SCD, especially since we rely heavily on Almond and Cashew Nuts. I also make his yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is there a book I can buy explaining the diet so I can change his diet yet again as I am sure our doctor in SA is not going to have a clue about the diet. In terms of supplements Troy is at the moment on Vitamin C & D, Milk Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or should I stop the supplements for now? We are so desperate to get going on the protocol and thought we could start with the correct supplements and diet for now as we wait for the blood work from our doctor. I would so appreciate any feedback or help as we feel so alone in this battle so far away from everyone. No medical professional in SA has a clue about , that is so frightening. Thanks so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Hi , I can tell you Liam’s dose, but, please keep in mind this is according to his weight (35lbs) and also his blood work and I’m not a doctor (oh how some days I wish I were!). We did ¼ of a tablet 3x per day (so that was 125 mg tid) for 2 weeks; now we are on ½ tablet 3x per day (so that’s 250 mg tid). The tablets that we get are 500 mg, so we cut them; not an exact science, but my husband’s a pharmacist by education, so he’s great at cutting the pills for meJ Dr. G does want you to come to the initial visit, but will do phone consults after that. His office was very helpful and answered all of my questions prior to going b/c we flew from the east coast of the US to the them and it was something we weren’t sure we could do with my son. We now do phone consults. You could call them and talk with them, and they will also get back to you via email: office@... Best of luck to you all. Keep asking questions, as there are a lot of people here that have great info and are always helpful! Kathi From: [mailto: ] On Behalf Of Sent: Tuesday, March 01, 2011 2:39 AM Hi Kathi, Thank you so much for the response. I will make the changes to his diet as below. May I ask what was the dose of Valtrex prescribed for your son and how much does he weigh? The NNY clinic does not want us to fly to the USA for consultation with Dr. R but would have us working with a doctor in SA instead. I am really nervous about this decision and would rather consult directly with a doctor in the USA that is experienced with . Does anyone know if Dr. G would consult long distance with us? So we would go to the USA for the initial consolation and thereafter do the follow up consolations via skype. If so, has anyone got his offices e-mail address. Regards, _____ From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Kathi Sent: 28 February 2011 07:38 PM <mailto:%40> Subject: RE: Just Starting Out with HI , We've been on SCD for almost 2 years now. The basis for SCD-AUTISM is not too different from in that you should be doing veggies, meats/fish/ckn, some fruits. For SCD you really shouldn't start nuts for at least the first 3 (most say 6) months; many kids can't handle them. So if you are following pecanbread.com (SCD for autism/spectrum disorders), you wouldn't use nuts yet and no cow diary, instead you would use goat milk to make the homemade yogurt. Dr. G allows goat milk/yogurt, so long as the child is fine with it. However, he doesn't allow tropical fruits or nuts. So, if you stick with the basics of SCD, don't do nuts, and sub goat for milk diary, you should be fine. He does allow processed peanut butter like peter pan. Not sure if you can get that in SA. I would stick with SCD before seeing the doctor, but that's just me. We just saw him for the first time at the end of January and I've only tried potato chips once. Basically, in addition to SCD, you could add rice and or potatos a couple times a week and some other veggies that are starchy that SCD doesn't allow (e.g., sweet potato, again real limited). The basis of the diet is really like SCD. You want to keep processed food to a minimum and keep with organic, free-range, grass-fed meats and organic fruits/veggies (keeping the diet as clean as possible). There's a file in the group database on the diet. I was going to attach it for you, but it's not working right now. Dr. G (from my limited experience, as we're just starting this protocol), doesn't do big combos of drugs. He started our son on valtrex and told us one thing at a time so that we can see the response. Our son has been on Flagyl a few times and he wasn't real happy about it for the reason he was Rx'ed it, but not sure why you guys are on it. He is going to rx us an antifungal (seems to go with ketoconzaole=Nizoral more than Diflucan, but not sure exactly why; I'm sure others can chime in about this), but, again he wants our son a little more stable before he adds the Nizoral. So, in short, he does use the antifungals and antivirals, but I do find he uses different doses than our DAN! was using and other docs and he bases this on bloodwork that he follows to adjust the dosages. I would just focus on the diet until you get to see/talk with Dr. Russel and keep changes to a minimal so that you won't be adding incorrect things/doses that you'd have to change later. Just an idea. I wish you all the best. Kathi From: <mailto:%40> <mailto:%40> [mailto: <mailto:%40> <mailto:%40> ] On Behalf Of Sent: Saturday, February 26, 2011 2:15 AM <mailto:%40> <mailto:%40> Subject: Just Starting Out with My son is 6.1 years and is high functioning autistic. We have done a great number of interventions, diet, chelation, ridiculous amount of supplements etc. over the past 2 years to no avail. I recently heard about and contacted the New York office for help. We live in Johannesburg, South Africa so Dr. has agreed to help us long distance provided we get a primary care giver in SA willing to follow the protocol. It has taken me some time to find a doctor even willing to review the science behind the protocol but I have eventually succeeded. Our local doctor is reviewing the protocol for what blood work is required under guidance from Dr. , I hope !! My son, Troy has been on SCD for about 6 weeks now. He seems to be doing better on the diet. I understand the diet is very different from SCD, especially since we rely heavily on Almond and Cashew Nuts. I also make his yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is there a book I can buy explaining the diet so I can change his diet yet again as I am sure our doctor in SA is not going to have a clue about the diet. In terms of supplements Troy is at the moment on Vitamin C & D, Milk Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or should I stop the supplements for now? We are so desperate to get going on the protocol and thought we could start with the correct supplements and diet for now as we wait for the blood work from our doctor. I would so appreciate any feedback or help as we feel so alone in this battle so far away from everyone. No medical professional in SA has a clue about , that is so frightening. Thanks so much. 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Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Dr G will consult long distance - we started with him when we lived in Singapore. You will need a good local Dr to work with to get bloodwork and prescribe meds - thought there is a great pharmacy that will ship worldwide with UPS on Dr G's prescriptions. You will have to come over for the initial consultation however _____ From: [mailto: ] On Behalf Of Sent: Monday, February 28, 2011 11:39 PM Subject: RE: Just Starting Out with Hi Kathi, Thank you so much for the response. I will make the changes to his diet as below. May I ask what was the dose of Valtrex prescribed for your son and how much does he weigh? The NNY clinic does not want us to fly to the USA for consultation with Dr. R but would have us working with a doctor in SA instead. I am really nervous about this decision and would rather consult directly with a doctor in the USA that is experienced with . Does anyone know if Dr. G would consult long distance with us? So we would go to the USA for the initial consolation and thereafter do the follow up consolations via skype. If so, has anyone got his offices e-mail address. Regards, _____ From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Kathi Sent: 28 February 2011 07:38 PM <mailto:%40> Subject: RE: Just Starting Out with HI , We've been on SCD for almost 2 years now. The basis for SCD-AUTISM is not too different from in that you should be doing veggies, meats/fish/ckn, some fruits. For SCD you really shouldn't start nuts for at least the first 3 (most say 6) months; many kids can't handle them. So if you are following pecanbread.com (SCD for autism/spectrum disorders), you wouldn't use nuts yet and no cow diary, instead you would use goat milk to make the homemade yogurt. Dr. G allows goat milk/yogurt, so long as the child is fine with it. However, he doesn't allow tropical fruits or nuts. So, if you stick with the basics of SCD, don't do nuts, and sub goat for milk diary, you should be fine. He does allow processed peanut butter like peter pan. Not sure if you can get that in SA. I would stick with SCD before seeing the doctor, but that's just me. We just saw him for the first time at the end of January and I've only tried potato chips once. Basically, in addition to SCD, you could add rice and or potatos a couple times a week and some other veggies that are starchy that SCD doesn't allow (e.g., sweet potato, again real limited). The basis of the diet is really like SCD. You want to keep processed food to a minimum and keep with organic, free-range, grass-fed meats and organic fruits/veggies (keeping the diet as clean as possible). There's a file in the group database on the diet. I was going to attach it for you, but it's not working right now. Dr. G (from my limited experience, as we're just starting this protocol), doesn't do big combos of drugs. He started our son on valtrex and told us one thing at a time so that we can see the response. Our son has been on Flagyl a few times and he wasn't real happy about it for the reason he was Rx'ed it, but not sure why you guys are on it. He is going to rx us an antifungal (seems to go with ketoconzaole=Nizoral more than Diflucan, but not sure exactly why; I'm sure others can chime in about this), but, again he wants our son a little more stable before he adds the Nizoral. So, in short, he does use the antifungals and antivirals, but I do find he uses different doses than our DAN! was using and other docs and he bases this on bloodwork that he follows to adjust the dosages. I would just focus on the diet until you get to see/talk with Dr. Russel and keep changes to a minimal so that you won't be adding incorrect things/doses that you'd have to change later. Just an idea. I wish you all the best. Kathi From: <mailto:%40> <mailto:%40> [mailto: <mailto:%40> <mailto:%40> ] On Behalf Of Sent: Saturday, February 26, 2011 2:15 AM <mailto:%40> <mailto:%40> Subject: Just Starting Out with My son is 6.1 years and is high functioning autistic. We have done a great number of interventions, diet, chelation, ridiculous amount of supplements etc. over the past 2 years to no avail. I recently heard about and contacted the New York office for help. We live in Johannesburg, South Africa so Dr. has agreed to help us long distance provided we get a primary care giver in SA willing to follow the protocol. It has taken me some time to find a doctor even willing to review the science behind the protocol but I have eventually succeeded. Our local doctor is reviewing the protocol for what blood work is required under guidance from Dr. , I hope !! My son, Troy has been on SCD for about 6 weeks now. He seems to be doing better on the diet. I understand the diet is very different from SCD, especially since we rely heavily on Almond and Cashew Nuts. I also make his yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is there a book I can buy explaining the diet so I can change his diet yet again as I am sure our doctor in SA is not going to have a clue about the diet. In terms of supplements Troy is at the moment on Vitamin C & D, Milk Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or should I stop the supplements for now? We are so desperate to get going on the protocol and thought we could start with the correct supplements and diet for now as we wait for the blood work from our doctor. I would so appreciate any feedback or help as we feel so alone in this battle so far away from everyone. No medical professional in SA has a clue about , that is so frightening. Thanks so much. 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Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Hi We live in South Africa(Cape Town)and have been consulting with Dr Goldberg in LA for the last 10 years and have taken our son over to consult with him a number of times.You may contact us directly at steven@... please send your contact details Regards Sent via my BlackBerry from Vodacom - let your email find you! Just Starting Out with My son is 6.1 years and is high functioning autistic. We have done a great number of interventions, diet, chelation, ridiculous amount of supplements etc. over the past 2 years to no avail. I recently heard about and contacted the New York office for help. We live in Johannesburg, South Africa so Dr. has agreed to help us long distance provided we get a primary care giver in SA willing to follow the protocol. It has taken me some time to find a doctor even willing to review the science behind the protocol but I have eventually succeeded. Our local doctor is reviewing the protocol for what blood work is required under guidance from Dr. , I hope !! My son, Troy has been on SCD for about 6 weeks now. He seems to be doing better on the diet. I understand the diet is very different from SCD, especially since we rely heavily on Almond and Cashew Nuts. I also make his yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is there a book I can buy explaining the diet so I can change his diet yet again as I am sure our doctor in SA is not going to have a clue about the diet. In terms of supplements Troy is at the moment on Vitamin C & D, Milk Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or should I stop the supplements for now? We are so desperate to get going on the protocol and thought we could start with the correct supplements and diet for now as we wait for the blood work from our doctor. I would so appreciate any feedback or help as we feel so alone in this battle so far away from everyone. No medical professional in SA has a clue about , that is so frightening. Thanks so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Can I ask what is the pharmacy name that will ship? Thanks! Sent from my iPhone On Mar 1, 2011, at 1:43 PM, Crosss <crosswilsons@...> wrote: > Dr G will consult long distance - we started with him when we lived in > Singapore. You will need a good local Dr to work with to get bloodwork and > prescribe meds - thought there is a great pharmacy that will ship worldwide > with UPS on Dr G's prescriptions. > > You will have to come over for the initial consultation however > > > > _____ > > From: [mailto: ] On Behalf Of > Sent: Monday, February 28, 2011 11:39 PM > > Subject: RE: Just Starting Out with > > Hi Kathi, > > Thank you so much for the response. I will make the changes to his diet as > below. > > May I ask what was the dose of Valtrex prescribed for your son and how much > does he weigh? > > The NNY clinic does not want us to fly to the USA for consultation with Dr. > R but would have us working with a doctor in SA instead. I am really > nervous about this decision and would rather consult directly with a doctor > in the USA that is experienced with . Does anyone know if Dr. G would > consult long distance with us? So we would go to the USA for the initial > consolation and thereafter do the follow up consolations via skype. If so, > has anyone got his offices e-mail address. > > Regards, > > > > _____ > > From: <mailto:%40> > [mailto: <mailto:%40> ] On Behalf Of > Kathi > Sent: 28 February 2011 07:38 PM > <mailto:%40> > Subject: RE: Just Starting Out with > > HI , > > We've been on SCD for almost 2 years now. The basis for SCD-AUTISM is not > too different from in that you should be doing veggies, meats/fish/ckn, > some fruits. For SCD you really shouldn't start nuts for at least the first > 3 (most say 6) months; many kids can't handle them. So if you are following > pecanbread.com (SCD for autism/spectrum disorders), you wouldn't use nuts > yet and no cow diary, instead you would use goat milk to make the homemade > yogurt. Dr. G allows goat milk/yogurt, so long as the child is fine with it. > However, he doesn't allow tropical fruits or nuts. So, if you stick with > the basics of SCD, don't do nuts, and sub goat for milk diary, you should be > fine. He does allow processed peanut butter like peter pan. Not sure if > you can get that in SA. > > I would stick with SCD before seeing the doctor, but that's just me. We > just saw him for the first time at the end of January and I've only tried > potato chips once. Basically, in addition to SCD, you could add rice and or > potatos a couple times a week and some other veggies that are starchy that > SCD doesn't allow (e.g., sweet potato, again real limited). The basis of > the diet is really like SCD. You want to keep processed food to a > minimum and keep with organic, free-range, grass-fed meats and organic > fruits/veggies (keeping the diet as clean as possible). There's a file in > the group database on the diet. I was going to attach it for you, but > it's not working right now. > > Dr. G (from my limited experience, as we're just starting this protocol), > doesn't do big combos of drugs. He started our son on valtrex and told us > one thing at a time so that we can see the response. Our son has been on > Flagyl a few times and he wasn't real happy about it for the reason he was > Rx'ed it, but not sure why you guys are on it. He is going to rx us an > antifungal (seems to go with ketoconzaole=Nizoral more than Diflucan, but > not sure exactly why; I'm sure others can chime in about this), but, again > he wants our son a little more stable before he adds the Nizoral. So, in > short, he does use the antifungals and antivirals, but I do find he uses > different doses than our DAN! was using and other docs and he bases this on > bloodwork that he follows to adjust the dosages. > > I would just focus on the diet until you get to see/talk with Dr. Russel and > keep changes to a minimal so that you won't be adding incorrect things/doses > that you'd have to change later. Just an idea. I wish you all the best. > > Kathi > > From: <mailto:%40> > <mailto:%40> > [mailto: <mailto:%40> > <mailto:%40> ] On Behalf Of > > Sent: Saturday, February 26, 2011 2:15 AM > <mailto:%40> > <mailto:%40> > Subject: Just Starting Out with > > My son is 6.1 years and is high functioning autistic. We have done a great > number of interventions, diet, chelation, ridiculous amount of supplements > etc. over the past 2 years to no avail. I recently heard about and > contacted the New York office for help. We live in Johannesburg, South > Africa so Dr. has agreed to help us long distance provided we get a > primary care giver in SA willing to follow the protocol. It has taken > me some time to find a doctor even willing to review the science behind the > protocol but I have eventually succeeded. Our local doctor is reviewing the > protocol for what blood work is required under guidance from Dr. , I > hope !! > > My son, Troy has been on SCD for about 6 weeks now. He seems to be doing > better on the diet. I understand the diet is very different from SCD, > especially since we rely heavily on Almond and Cashew Nuts. I also make his > yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is > there a book I can buy explaining the diet so I can change his diet yet > again as I am sure our doctor in SA is not going to have a clue about the > diet. > > In terms of supplements Troy is at the moment on Vitamin C & D, Milk > Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on > Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or > should I stop the supplements for now? > > We are so desperate to get going on the protocol and thought we could start > with the correct supplements and diet for now as we wait for the blood work > from our doctor. > > I would so appreciate any feedback or help as we feel so alone in this > battle so far away from everyone. No medical professional in SA has a clue > about , that is so frightening. > > Thanks so much. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Thank you to everyone that responded to me so quickly. I will make an appointment with Dr. G and risk the 28 hour flight with my son to LA. _____ From: [mailto: ] On Behalf Of Kathi Sent: 01 March 2011 06:23 PM Subject: RE: Just Starting Out with Hi , I can tell you Liam’s dose, but, please keep in mind this is according to his weight (35lbs) and also his blood work and I’m not a doctor (oh how some days I wish I were!). We did ¼ of a tablet 3x per day (so that was 125 mg tid) for 2 weeks; now we are on ½ tablet 3x per day (so that’s 250 mg tid). The tablets that we get are 500 mg, so we cut them; not an exact science, but my husband’s a pharmacist by education, so he’s great at cutting the pills for meJ Dr. G does want you to come to the initial visit, but will do phone consults after that. His office was very helpful and answered all of my questions prior to going b/c we flew from the east coast of the US to the them and it was something we weren’t sure we could do with my son. We now do phone consults. You could call them and talk with them, and they will also get back to you via email: office@... <mailto:office%40neuroimmunedr.com> Best of luck to you all. Keep asking questions, as there are a lot of people here that have great info and are always helpful! Kathi From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Sent: Tuesday, March 01, 2011 2:39 AM <mailto:%40> Hi Kathi, Thank you so much for the response. I will make the changes to his diet as below. May I ask what was the dose of Valtrex prescribed for your son and how much does he weigh? The NNY clinic does not want us to fly to the USA for consultation with Dr. R but would have us working with a doctor in SA instead. I am really nervous about this decision and would rather consult directly with a doctor in the USA that is experienced with . Does anyone know if Dr. G would consult long distance with us? So we would go to the USA for the initial consolation and thereafter do the follow up consolations via skype. If so, has anyone got his offices e-mail address. Regards, _____ From: <mailto:%40> <mailto:%40> [mailto: <mailto:%40> <mailto:%40> ] On Behalf Of Kathi Sent: 28 February 2011 07:38 PM <mailto:%40> <mailto:%40> Subject: RE: Just Starting Out with HI , We've been on SCD for almost 2 years now. The basis for SCD-AUTISM is not too different from in that you should be doing veggies, meats/fish/ckn, some fruits. For SCD you really shouldn't start nuts for at least the first 3 (most say 6) months; many kids can't handle them. So if you are following pecanbread.com (SCD for autism/spectrum disorders), you wouldn't use nuts yet and no cow diary, instead you would use goat milk to make the homemade yogurt. Dr. G allows goat milk/yogurt, so long as the child is fine with it. However, he doesn't allow tropical fruits or nuts. So, if you stick with the basics of SCD, don't do nuts, and sub goat for milk diary, you should be fine. He does allow processed peanut butter like peter pan. Not sure if you can get that in SA. I would stick with SCD before seeing the doctor, but that's just me. We just saw him for the first time at the end of January and I've only tried potato chips once. Basically, in addition to SCD, you could add rice and or potatos a couple times a week and some other veggies that are starchy that SCD doesn't allow (e.g., sweet potato, again real limited). The basis of the diet is really like SCD. You want to keep processed food to a minimum and keep with organic, free-range, grass-fed meats and organic fruits/veggies (keeping the diet as clean as possible). There's a file in the group database on the diet. I was going to attach it for you, but it's not working right now. Dr. G (from my limited experience, as we're just starting this protocol), doesn't do big combos of drugs. He started our son on valtrex and told us one thing at a time so that we can see the response. Our son has been on Flagyl a few times and he wasn't real happy about it for the reason he was Rx'ed it, but not sure why you guys are on it. He is going to rx us an antifungal (seems to go with ketoconzaole=Nizoral more than Diflucan, but not sure exactly why; I'm sure others can chime in about this), but, again he wants our son a little more stable before he adds the Nizoral. So, in short, he does use the antifungals and antivirals, but I do find he uses different doses than our DAN! was using and other docs and he bases this on bloodwork that he follows to adjust the dosages. I would just focus on the diet until you get to see/talk with Dr. Russel and keep changes to a minimal so that you won't be adding incorrect things/doses that you'd have to change later. Just an idea. I wish you all the best. Kathi From: <mailto:%40> <mailto:%40> <mailto:%40> [mailto: <mailto:%40> <mailto:%40> <mailto:%40> ] On Behalf Of Sent: Saturday, February 26, 2011 2:15 AM <mailto:%40> <mailto:%40> <mailto:%40> Subject: Just Starting Out with My son is 6.1 years and is high functioning autistic. We have done a great number of interventions, diet, chelation, ridiculous amount of supplements etc. over the past 2 years to no avail. I recently heard about and contacted the New York office for help. We live in Johannesburg, South Africa so Dr. has agreed to help us long distance provided we get a primary care giver in SA willing to follow the protocol. It has taken me some time to find a doctor even willing to review the science behind the protocol but I have eventually succeeded. Our local doctor is reviewing the protocol for what blood work is required under guidance from Dr. , I hope !! My son, Troy has been on SCD for about 6 weeks now. He seems to be doing better on the diet. I understand the diet is very different from SCD, especially since we rely heavily on Almond and Cashew Nuts. I also make his yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is there a book I can buy explaining the diet so I can change his diet yet again as I am sure our doctor in SA is not going to have a clue about the diet. In terms of supplements Troy is at the moment on Vitamin C & D, Milk Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or should I stop the supplements for now? We are so desperate to get going on the protocol and thought we could start with the correct supplements and diet for now as we wait for the blood work from our doctor. I would so appreciate any feedback or help as we feel so alone in this battle so far away from everyone. No medical professional in SA has a clue about , that is so frightening. Thanks so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 Does Dr. G do the bloodwork and Neurospect scan on the first visit if you are traveling from out of state? Thank you, ________________________________ From: Bruneau <rogerbruneau@...> Sent: Tue, March 1, 2011 11:05:37 AM Subject: RE: Just Starting Out with Many of us met with Dr. G in person once and then do monthly phone consults along with written updates and labwork requisitions. Best, From: <evelyng@...> Subject: RE: Just Starting Out with Date: Tuesday, March 1, 2011, 2:39 AM Hi Kathi, Thank you so much for the response. I will make the changes to his diet as below. May I ask what was the dose of Valtrex prescribed for your son and how much does he weigh? The NNY clinic does not want us to fly to the USA for consultation with Dr. R but would have us working with a doctor in SA instead. I am really nervous about this decision and would rather consult directly with a doctor in the USA that is experienced with . Does anyone know if Dr. G would consult long distance with us? So we would go to the USA for the initial consolation and thereafter do the follow up consolations via skype. If so, has anyone got his offices e-mail address. Regards, _____ From: [mailto: ] On Behalf Of Kathi Sent: 28 February 2011 07:38 PM Subject: RE: Just Starting Out with HI , We've been on SCD for almost 2 years now. The basis for SCD-AUTISM is not too different from in that you should be doing veggies, meats/fish/ckn, some fruits. For SCD you really shouldn't start nuts for at least the first 3 (most say 6) months; many kids can't handle them. So if you are following pecanbread.com (SCD for autism/spectrum disorders), you wouldn't use nuts yet and no cow diary, instead you would use goat milk to make the homemade yogurt. Dr. G allows goat milk/yogurt, so long as the child is fine with it. However, he doesn't allow tropical fruits or nuts. So, if you stick with the basics of SCD, don't do nuts, and sub goat for milk diary, you should be fine. He does allow processed peanut butter like peter pan. Not sure if you can get that in SA. I would stick with SCD before seeing the doctor, but that's just me. We just saw him for the first time at the end of January and I've only tried potato chips once. Basically, in addition to SCD, you could add rice and or potatos a couple times a week and some other veggies that are starchy that SCD doesn't allow (e.g., sweet potato, again real limited). The basis of the diet is really like SCD. You want to keep processed food to a minimum and keep with organic, free-range, grass-fed meats and organic fruits/veggies (keeping the diet as clean as possible). There's a file in the group database on the diet. I was going to attach it for you, but it's not working right now. Dr. G (from my limited experience, as we're just starting this protocol), doesn't do big combos of drugs. He started our son on valtrex and told us one thing at a time so that we can see the response. Our son has been on Flagyl a few times and he wasn't real happy about it for the reason he was Rx'ed it, but not sure why you guys are on it. He is going to rx us an antifungal (seems to go with ketoconzaole=Nizoral more than Diflucan, but not sure exactly why; I'm sure others can chime in about this), but, again he wants our son a little more stable before he adds the Nizoral. So, in short, he does use the antifungals and antivirals, but I do find he uses different doses than our DAN! was using and other docs and he bases this on bloodwork that he follows to adjust the dosages. I would just focus on the diet until you get to see/talk with Dr. Russel and keep changes to a minimal so that you won't be adding incorrect things/doses that you'd have to change later. Just an idea. I wish you all the best. Kathi From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Sent: Saturday, February 26, 2011 2:15 AM <mailto:%40> Subject: Just Starting Out with My son is 6.1 years and is high functioning autistic. We have done a great number of interventions, diet, chelation, ridiculous amount of supplements etc. over the past 2 years to no avail. I recently heard about and contacted the New York office for help. We live in Johannesburg, South Africa so Dr. has agreed to help us long distance provided we get a primary care giver in SA willing to follow the protocol. It has taken me some time to find a doctor even willing to review the science behind the protocol but I have eventually succeeded. Our local doctor is reviewing the protocol for what blood work is required under guidance from Dr. , I hope !! My son, Troy has been on SCD for about 6 weeks now. He seems to be doing better on the diet. I understand the diet is very different from SCD, especially since we rely heavily on Almond and Cashew Nuts. I also make his yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is there a book I can buy explaining the diet so I can change his diet yet again as I am sure our doctor in SA is not going to have a clue about the diet. In terms of supplements Troy is at the moment on Vitamin C & D, Milk Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or should I stop the supplements for now? We are so desperate to get going on the protocol and thought we could start with the correct supplements and diet for now as we wait for the blood work from our doctor. I would so appreciate any feedback or help as we feel so alone in this battle so far away from everyone. No medical professional in SA has a clue about , that is so frightening. Thanks so much. 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Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 He doesn't do many NeuroSpect scans these days, although if you really really wanted one, you could probably arrange it. You can have the bloodwork done at the office, yes, but even better would be to have a local pediatrician run them if you could. It does help to have some local support on at least ordering the labs done to monitor each month. (I don't know if you can go straight to a lab like Quest or something yet to have them done under just Dr G's orders or not.) HTH ________________________________ From: Rykert <myluke06@...> Sent: Wed, March 2, 2011 7:43:13 AM Subject: Re: Just Starting Out with  Does Dr. G do the bloodwork and Neurospect scan on the first visit if you are traveling from out of state? Thank you, ________________________________ From: Bruneau <rogerbruneau@...> Sent: Tue, March 1, 2011 11:05:37 AM Subject: RE: Just Starting Out with Many of us met with Dr. G in person once and then do monthly phone consults along with written updates and labwork requisitions. Best, From: <evelyng@...> Subject: RE: Just Starting Out with Date: Tuesday, March 1, 2011, 2:39 AM Hi Kathi, Thank you so much for the response. I will make the changes to his diet as below. May I ask what was the dose of Valtrex prescribed for your son and how much does he weigh? The NNY clinic does not want us to fly to the USA for consultation with Dr. R but would have us working with a doctor in SA instead. I am really nervous about this decision and would rather consult directly with a doctor in the USA that is experienced with . Does anyone know if Dr. G would consult long distance with us? So we would go to the USA for the initial consolation and thereafter do the follow up consolations via skype. If so, has anyone got his offices e-mail address. Regards, _____ From: [mailto: ] On Behalf Of Kathi Sent: 28 February 2011 07:38 PM Subject: RE: Just Starting Out with HI , We've been on SCD for almost 2 years now. The basis for SCD-AUTISM is not too different from in that you should be doing veggies, meats/fish/ckn, some fruits. For SCD you really shouldn't start nuts for at least the first 3 (most say 6) months; many kids can't handle them. So if you are following pecanbread.com (SCD for autism/spectrum disorders), you wouldn't use nuts yet and no cow diary, instead you would use goat milk to make the homemade yogurt. Dr. G allows goat milk/yogurt, so long as the child is fine with it. However, he doesn't allow tropical fruits or nuts. So, if you stick with the basics of SCD, don't do nuts, and sub goat for milk diary, you should be fine. He does allow processed peanut butter like peter pan. Not sure if you can get that in SA. I would stick with SCD before seeing the doctor, but that's just me. We just saw him for the first time at the end of January and I've only tried potato chips once. Basically, in addition to SCD, you could add rice and or potatos a couple times a week and some other veggies that are starchy that SCD doesn't allow (e.g., sweet potato, again real limited). The basis of the diet is really like SCD. You want to keep processed food to a minimum and keep with organic, free-range, grass-fed meats and organic fruits/veggies (keeping the diet as clean as possible). There's a file in the group database on the diet. I was going to attach it for you, but it's not working right now. Dr. G (from my limited experience, as we're just starting this protocol), doesn't do big combos of drugs. He started our son on valtrex and told us one thing at a time so that we can see the response. Our son has been on Flagyl a few times and he wasn't real happy about it for the reason he was Rx'ed it, but not sure why you guys are on it. He is going to rx us an antifungal (seems to go with ketoconzaole=Nizoral more than Diflucan, but not sure exactly why; I'm sure others can chime in about this), but, again he wants our son a little more stable before he adds the Nizoral. So, in short, he does use the antifungals and antivirals, but I do find he uses different doses than our DAN! was using and other docs and he bases this on bloodwork that he follows to adjust the dosages. I would just focus on the diet until you get to see/talk with Dr. Russel and keep changes to a minimal so that you won't be adding incorrect things/doses that you'd have to change later. Just an idea. I wish you all the best. Kathi From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Sent: Saturday, February 26, 2011 2:15 AM <mailto:%40> Subject: Just Starting Out with My son is 6.1 years and is high functioning autistic. We have done a great number of interventions, diet, chelation, ridiculous amount of supplements etc. over the past 2 years to no avail. I recently heard about and contacted the New York office for help. We live in Johannesburg, South Africa so Dr. has agreed to help us long distance provided we get a primary care giver in SA willing to follow the protocol. It has taken me some time to find a doctor even willing to review the science behind the protocol but I have eventually succeeded. Our local doctor is reviewing the protocol for what blood work is required under guidance from Dr. , I hope !! My son, Troy has been on SCD for about 6 weeks now. He seems to be doing better on the diet. I understand the diet is very different from SCD, especially since we rely heavily on Almond and Cashew Nuts. I also make his yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is there a book I can buy explaining the diet so I can change his diet yet again as I am sure our doctor in SA is not going to have a clue about the diet. In terms of supplements Troy is at the moment on Vitamin C & D, Milk Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or should I stop the supplements for now? We are so desperate to get going on the protocol and thought we could start with the correct supplements and diet for now as we wait for the blood work from our doctor. I would so appreciate any feedback or help as we feel so alone in this battle so far away from everyone. No medical professional in SA has a clue about , that is so frightening. Thanks so much. 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Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 You can arrange for a quest office to do the draws and Dr G can fax them the order but I strongly suggest that you work with a primary Doc to both deal with the day to day illnesses and follow and track the labs. That way there is a complete chart and a second opinion to what is going on. You might need to talk to a couple of Docs before you find on that will embrace the protocol. Bill ________________________________ From: <thecolemans4@...> Sent: Wed, March 2, 2011 2:02:26 PM Subject: Re: Just Starting Out with He doesn't do many NeuroSpect scans these days, although if you really really wanted one, you could probably arrange it. You can have the bloodwork done at the office, yes, but even better would be to have a local pediatrician run them if you could. It does help to have some local support on at least ordering the labs done to monitor each month. (I don't know if you can go straight to a lab like Quest or something yet to have them done under just Dr G's orders or not.) HTH ________________________________ From: Rykert <myluke06@...> Sent: Wed, March 2, 2011 7:43:13 AM Subject: Re: Just Starting Out with Does Dr. G do the bloodwork and Neurospect scan on the first visit if you are traveling from out of state? Thank you, ________________________________ From: Bruneau <rogerbruneau@...> Sent: Tue, March 1, 2011 11:05:37 AM Subject: RE: Just Starting Out with Many of us met with Dr. G in person once and then do monthly phone consults along with written updates and labwork requisitions. Best, From: <evelyng@...> Subject: RE: Just Starting Out with Date: Tuesday, March 1, 2011, 2:39 AM Hi Kathi, Thank you so much for the response. I will make the changes to his diet as below. May I ask what was the dose of Valtrex prescribed for your son and how much does he weigh? The NNY clinic does not want us to fly to the USA for consultation with Dr. R but would have us working with a doctor in SA instead. I am really nervous about this decision and would rather consult directly with a doctor in the USA that is experienced with . Does anyone know if Dr. G would consult long distance with us? So we would go to the USA for the initial consolation and thereafter do the follow up consolations via skype. If so, has anyone got his offices e-mail address. Regards, _____ From: [mailto: ] On Behalf Of Kathi Sent: 28 February 2011 07:38 PM Subject: RE: Just Starting Out with HI , We've been on SCD for almost 2 years now. The basis for SCD-AUTISM is not too different from in that you should be doing veggies, meats/fish/ckn, some fruits. For SCD you really shouldn't start nuts for at least the first 3 (most say 6) months; many kids can't handle them. So if you are following pecanbread.com (SCD for autism/spectrum disorders), you wouldn't use nuts yet and no cow diary, instead you would use goat milk to make the homemade yogurt. Dr. G allows goat milk/yogurt, so long as the child is fine with it. However, he doesn't allow tropical fruits or nuts. So, if you stick with the basics of SCD, don't do nuts, and sub goat for milk diary, you should be fine. He does allow processed peanut butter like peter pan. Not sure if you can get that in SA. I would stick with SCD before seeing the doctor, but that's just me. We just saw him for the first time at the end of January and I've only tried potato chips once. Basically, in addition to SCD, you could add rice and or potatos a couple times a week and some other veggies that are starchy that SCD doesn't allow (e.g., sweet potato, again real limited). The basis of the diet is really like SCD. You want to keep processed food to a minimum and keep with organic, free-range, grass-fed meats and organic fruits/veggies (keeping the diet as clean as possible). There's a file in the group database on the diet. I was going to attach it for you, but it's not working right now. Dr. G (from my limited experience, as we're just starting this protocol), doesn't do big combos of drugs. He started our son on valtrex and told us one thing at a time so that we can see the response. Our son has been on Flagyl a few times and he wasn't real happy about it for the reason he was Rx'ed it, but not sure why you guys are on it. He is going to rx us an antifungal (seems to go with ketoconzaole=Nizoral more than Diflucan, but not sure exactly why; I'm sure others can chime in about this), but, again he wants our son a little more stable before he adds the Nizoral. So, in short, he does use the antifungals and antivirals, but I do find he uses different doses than our DAN! was using and other docs and he bases this on bloodwork that he follows to adjust the dosages. I would just focus on the diet until you get to see/talk with Dr. Russel and keep changes to a minimal so that you won't be adding incorrect things/doses that you'd have to change later. Just an idea. I wish you all the best. Kathi From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Sent: Saturday, February 26, 2011 2:15 AM <mailto:%40> Subject: Just Starting Out with My son is 6.1 years and is high functioning autistic. We have done a great number of interventions, diet, chelation, ridiculous amount of supplements etc. over the past 2 years to no avail. I recently heard about and contacted the New York office for help. We live in Johannesburg, South Africa so Dr. has agreed to help us long distance provided we get a primary care giver in SA willing to follow the protocol. It has taken me some time to find a doctor even willing to review the science behind the protocol but I have eventually succeeded. Our local doctor is reviewing the protocol for what blood work is required under guidance from Dr. , I hope !! My son, Troy has been on SCD for about 6 weeks now. He seems to be doing better on the diet. I understand the diet is very different from SCD, especially since we rely heavily on Almond and Cashew Nuts. I also make his yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is there a book I can buy explaining the diet so I can change his diet yet again as I am sure our doctor in SA is not going to have a clue about the diet. In terms of supplements Troy is at the moment on Vitamin C & D, Milk Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or should I stop the supplements for now? We are so desperate to get going on the protocol and thought we could start with the correct supplements and diet for now as we wait for the blood work from our doctor. I would so appreciate any feedback or help as we feel so alone in this battle so far away from everyone. No medical professional in SA has a clue about , that is so frightening. Thanks so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 Friendly Hills Pharmacy, Whittier CA 1 562 693 3791 ask for Dennis Amano _____ From: [mailto: ] On Behalf Of Angie Sent: Tuesday, March 01, 2011 4:15 PM Subject: Re: Just Starting Out with Can I ask what is the pharmacy name that will ship? Thanks! Sent from my iPhone On Mar 1, 2011, at 1:43 PM, Crosss <crosswilsons@... <mailto:crosswilsons%40socal.rr.com> > wrote: > Dr G will consult long distance - we started with him when we lived in > Singapore. You will need a good local Dr to work with to get bloodwork and > prescribe meds - thought there is a great pharmacy that will ship worldwide > with UPS on Dr G's prescriptions. > > You will have to come over for the initial consultation however > > > > _____ > > From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of > Sent: Monday, February 28, 2011 11:39 PM > <mailto:%40> > Subject: RE: Just Starting Out with > > Hi Kathi, > > Thank you so much for the response. I will make the changes to his diet as > below. > > May I ask what was the dose of Valtrex prescribed for your son and how much > does he weigh? > > The NNY clinic does not want us to fly to the USA for consultation with Dr. > R but would have us working with a doctor in SA instead. I am really > nervous about this decision and would rather consult directly with a doctor > in the USA that is experienced with . Does anyone know if Dr. G would > consult long distance with us? So we would go to the USA for the initial > consolation and thereafter do the follow up consolations via skype. If so, > has anyone got his offices e-mail address. > > Regards, > > > > _____ > > From: <mailto:%40> <mailto:%40> > [mailto: <mailto:%40> <mailto:%40> ] On Behalf Of > Kathi > Sent: 28 February 2011 07:38 PM > <mailto:%40> <mailto:%40> > Subject: RE: Just Starting Out with > > HI , > > We've been on SCD for almost 2 years now. The basis for SCD-AUTISM is not > too different from in that you should be doing veggies, meats/fish/ckn, > some fruits. For SCD you really shouldn't start nuts for at least the first > 3 (most say 6) months; many kids can't handle them. So if you are following > pecanbread.com (SCD for autism/spectrum disorders), you wouldn't use nuts > yet and no cow diary, instead you would use goat milk to make the homemade > yogurt. Dr. G allows goat milk/yogurt, so long as the child is fine with it. > However, he doesn't allow tropical fruits or nuts. So, if you stick with > the basics of SCD, don't do nuts, and sub goat for milk diary, you should be > fine. He does allow processed peanut butter like peter pan. Not sure if > you can get that in SA. > > I would stick with SCD before seeing the doctor, but that's just me. We > just saw him for the first time at the end of January and I've only tried > potato chips once. Basically, in addition to SCD, you could add rice and or > potatos a couple times a week and some other veggies that are starchy that > SCD doesn't allow (e.g., sweet potato, again real limited). The basis of > the diet is really like SCD. You want to keep processed food to a > minimum and keep with organic, free-range, grass-fed meats and organic > fruits/veggies (keeping the diet as clean as possible). There's a file in > the group database on the diet. I was going to attach it for you, but > it's not working right now. > > Dr. G (from my limited experience, as we're just starting this protocol), > doesn't do big combos of drugs. He started our son on valtrex and told us > one thing at a time so that we can see the response. Our son has been on > Flagyl a few times and he wasn't real happy about it for the reason he was > Rx'ed it, but not sure why you guys are on it. He is going to rx us an > antifungal (seems to go with ketoconzaole=Nizoral more than Diflucan, but > not sure exactly why; I'm sure others can chime in about this), but, again > he wants our son a little more stable before he adds the Nizoral. So, in > short, he does use the antifungals and antivirals, but I do find he uses > different doses than our DAN! was using and other docs and he bases this on > bloodwork that he follows to adjust the dosages. > > I would just focus on the diet until you get to see/talk with Dr. Russel and > keep changes to a minimal so that you won't be adding incorrect things/doses > that you'd have to change later. Just an idea. I wish you all the best. > > Kathi > > From: <mailto:%40> <mailto:%40> > <mailto:%40> > [mailto: <mailto:%40> <mailto:%40> > <mailto:%40> ] On Behalf Of > > Sent: Saturday, February 26, 2011 2:15 AM > <mailto:%40> <mailto:%40> > <mailto:%40> > Subject: Just Starting Out with > > My son is 6.1 years and is high functioning autistic. We have done a great > number of interventions, diet, chelation, ridiculous amount of supplements > etc. over the past 2 years to no avail. I recently heard about and > contacted the New York office for help. We live in Johannesburg, South > Africa so Dr. has agreed to help us long distance provided we get a > primary care giver in SA willing to follow the protocol. It has taken > me some time to find a doctor even willing to review the science behind the > protocol but I have eventually succeeded. Our local doctor is reviewing the > protocol for what blood work is required under guidance from Dr. , I > hope !! > > My son, Troy has been on SCD for about 6 weeks now. He seems to be doing > better on the diet. I understand the diet is very different from SCD, > especially since we rely heavily on Almond and Cashew Nuts. I also make his > yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is > there a book I can buy explaining the diet so I can change his diet yet > again as I am sure our doctor in SA is not going to have a clue about the > diet. > > In terms of supplements Troy is at the moment on Vitamin C & D, Milk > Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on > Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or > should I stop the supplements for now? > > We are so desperate to get going on the protocol and thought we could start > with the correct supplements and diet for now as we wait for the blood work > from our doctor. > > I would so appreciate any feedback or help as we feel so alone in this > battle so far away from everyone. No medical professional in SA has a clue > about , that is so frightening. > > Thanks so much. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 You got almost all the answers, but don´t forget to suspend the suplements. Also suspend the nuts. Will help to read the link with the radio intervention (recently posted) of dr. Goldberg, he is very explicit there. > > My son is 6.1 years and is high functioning autistic. We have done a great > number of interventions, diet, chelation, ridiculous amount of supplements > etc. over the past 2 years to no avail. I recently heard about and > contacted the New York office for help. We live in Johannesburg, South > Africa so Dr. has agreed to help us long distance provided we get a > primary care giver in SA willing to follow the protocol. It has taken > me some time to find a doctor even willing to review the science behind the > protocol but I have eventually succeeded. Our local doctor is reviewing the > protocol for what blood work is required under guidance from Dr. , I > hope !! > > > > My son, Troy has been on SCD for about 6 weeks now. He seems to be doing > better on the diet. I understand the diet is very different from SCD, > especially since we rely heavily on Almond and Cashew Nuts. I also make his > yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is > there a book I can buy explaining the diet so I can change his diet yet > again as I am sure our doctor in SA is not going to have a clue about the > diet. > > > > In terms of supplements Troy is at the moment on Vitamin C & D, Milk > Thistle, DMG,Omega 3 Oil and Melatonin. About 3 weeks ago we started him on > Valtrex, Flagyl and Fluzol. Do these supplements fit the protocol or > should I stop the supplements for now? > > > > We are so desperate to get going on the protocol and thought we could start > with the correct supplements and diet for now as we wait for the blood work > from our doctor. > > > > I would so appreciate any feedback or help as we feel so alone in this > battle so far away from everyone. No medical professional in SA has a clue > about , that is so frightening. > > > > Thanks so much. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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