anybody elses brain mris showing lotsa white spots?

[Guest guest]

Does anyones elses brain show innumerable white spots with MS being ruled

out?With symptoms such as balance problems,extreme fatigue,whoile body

hurting,extreme lightheadedness feeling like your gonna faint 24-7?Been to

numerous neuros throughtout the US ,ents,octo neuros,had ear and balance studies

all normal.Lyme Westernblot igm bands 23 and 41 positive all igg bands

neg..Anybody with anmything similar going on.Also all lyme coinfections are now

neg through igenex bartonella at one time was positive but has since gone neg

[Guest guest]

I also have numerous white spots on the brain and I am having severe balance problems. I have had numerous MRIs and have seen several Nuros. I am still been evaluted for MS by one Nuro. My western blot was positive for bands 66, 58,45,41,39,18,41,23. I have been treated twice with IVs plus doxy by mouth for several months. I have also tried several supplementals. So far, nothing has worked but I am still trying.

By the way 2 of the Nuros I saw said I did not have MS. Also, one of the doctors told me that I had the most positive Western Blot they have ever seen.

Hope you get better very soon. Pleas let me know how things are going.

Ronnie

To: Lyme_and_Rife Sent: Thursday, July 5, 2012 12:10 PMSubject: anybody elses brain mris showing lotsa white spots?

Does anyones elses brain show innumerable white spots with MS being ruled out?With symptoms such as balance problems,extreme fatigue,whoile body hurting,extreme lightheadedness feeling like your gonna faint 24-7?Been to numerous neuros throughtout the US ,ents,octo neuros,had ear and balance studies all normal.Lyme Westernblot igm bands 23 and 41 positive all igg bands neg..Anybody with anmything similar going on.Also all lyme coinfections are now neg through igenex bartonella at one time was positive but has since gone neg

[Guest guest]

My son had the same results on MRI. His fainting spells led us to the MRI. His symptoms included all the ones you listed and then many others began in the years after the MRI as he continued to go undiagnosed. We never repeated the MRI after he began antibiotic treatment for Lyme. Yours sounds like a classic case of neuro borreliosis. That 23 IGM you have is diagnostic for Lyme if you ask any LLMD. If you ask Hopkins or Mayo, they will waste your precious time and resources. I would encourage you to begin treatment as soon as you can. It will not get better overnight and at times it will seem that you will not improve--it takes time when the infection is deep seated.

You will get better. Hang in there!

Does anyones elses brain show innumerable white spots with MS being ruled out?With symptoms such as balance problems,extreme fatigue,whoile body hurting,extreme lightheadedness feeling like your gonna faint 24-7?Been to numerous neuros throughtout the US ,ents,octo neuros,had ear and balance studies all normal.Lyme Westernblot igm bands 23 and 41 positive all igg bands neg..Anybody with anmything similar going on.Also all lyme coinfections are now neg through igenex bartonella at one time was positive but has since gone neg------------------------------------If your post is not about electronic devices used in the treatment of Lyme then please put an OT: in the subject line. -------------------------------

[Guest guest]

Heres the problem a little over a year ago i was given a depro medrol shot .My gf and i went out tob dinner and then afterwards to karaoke.When i tried to sing i couldnt get the words outta my mouth properly and i knew something was wrong.We went home and that mon i saw my doc who ordered a brain mri and bloods.The bloods he ordered were lyme, ,hhv6,hiv.

When he got the results he called me told me my mri had a few spots and that the western blot bands 23 and 41 were positive igm and all iggs were negative also hhv6 was positive as well everything else neg.So he told me i was cdc positive and had me go get a pic line put in and to do 28 days of iv rocephin.4 days into the meds i was rushed to the er with severe pains in my head i couldnt walk both arms and legs were very weak,and my balance was way off.I didnt last the 28 days as it kept making me worse.I lasted 22 days.I then had a repeat mri and now my brain is full of spots.I have been all over the US to every major hospital except Mayo and Hopkins .I saw numerous neuros all they kept saying we know theres something wrong but we dont know what it is.I had 3 lumbar punctures all were normal and the lyme serum in the spinal fluid was indeterminate.I just got rechecked for lyme again and the same bands are positive with no igg band showing

reactivity..My primary keeps telling me he feels its lyme but why did i get so much worse and never better on rocephin.No one has answers ..

Subject: Re: anybody elses brain mris showing lotsa white spots?To: Lyme_and_Rife Date: Thursday, July 5, 2012, 2:38 PM

My son had the same results on MRI. His fainting spells led us to the MRI. His symptoms included all the ones you listed and then many others began in the years after the MRI as he continued to go undiagnosed. We never repeated the MRI after he began antibiotic treatment for Lyme. Yours sounds like a classic case of neuro borreliosis. That 23 IGM you have is diagnostic for Lyme if you ask any LLMD. If you ask Hopkins or Mayo, they will waste your precious time and resources. I would encourage you to begin treatment as soon as you can. It will not get better overnight and at times it will seem that you will not improve--it takes time when the infection is deep seated.

You will get better. Hang in there!

Does anyones elses brain show innumerable white spots with MS being ruled out?With symptoms such as balance problems,extreme fatigue,whoile body hurting,extreme lightheadedness feeling like your gonna faint 24-7?Been to numerous neuros throughtout the US ,ents,octo neuros,had ear and balance studies all normal.Lyme Westernblot igm bands 23 and 41 positive all igg bands neg..Anybody with anmything similar going on.Also all lyme coinfections are now neg through igenex bartonella at one time was positive but has since gone neg------------------------------------If your post is not about electronic devices used in the treatment of Lyme then please put an OT: in the subject line. -------------------------------

[Guest guest]

Hi Ronnie

Thank you very much for responding here.It sounds like we are in similar situations.

I have been all over the USA to most of the major teaching institutions and seen a lotta of neuros with no answers all they say we know theres something wrong but we dont know what it is.I am scheduled to go to Hopkins .Havent been to the MAYO.I have had 3 lumbars all were normal no MS bands and my mris with gad are not lightening up as the should if it was MS.My lyme serum in the spinal was indeterminate.My western blot was done at labcorp theres only has 3 bands on igm my test had 2 positive bands 23 and 41 igm which here in n.y. makes that a cdc positive.All my igg bands are negative.

The issue here with me is my first mri i had done march of 2011 showed only a few white spots and after being on iv rocephin for 22 days i had them pull the pic at 22 even tho i was suppose to be on it for 28 due to the severity of the symptoms it created.After the 22 days i had another mri taken and now it shows innumerable white spots..I also just got retested for lyme and the same bands igm are positive with no iggs being positive .My primary Doc told me he still thinks this is lyme .What i dont understand is why did the rocephin do that and why did it make me so much worse this was over a year ago since i took the rocephin.No one has any answers..Also why is my igm still coming back positive with the 23 and 41 band and the iggs are still negative showing no reactivity..Before the iv rocephin there was definitly something going on in my body for years and like i said why did the rocephin make matters so much worse.No one has

any answers ...

Subject: Re: anybody elses brain mris showing lotsa white spots?To: "Lyme_and_Rife " <Lyme_and_Rife >Date: Thursday, July 5, 2012, 2:23 PM

I also have numerous white spots on the brain and I am having severe balance problems. I have had numerous MRIs and have seen several Nuros. I am still been evaluted for MS by one Nuro. My western blot was positive for bands 66, 58,45,41,39,18,41,23. I have been treated twice with IVs plus doxy by mouth for several months. I have also tried several supplementals. So far, nothing has worked but I am still trying.

By the way 2 of the Nuros I saw said I did not have MS. Also, one of the doctors told me that I had the most positive Western Blot they have ever seen.

Hope you get better very soon. Pleas let me know how things are going.

Ronnie

To: Lyme_and_Rife Sent: Thursday, July 5, 2012 12:10 PMSubject: anybody elses brain mris showing lotsa white spots?

Does anyones elses brain show innumerable white spots with MS being ruled out?With symptoms such as balance problems,extreme fatigue,whoile body hurting,extreme lightheadedness feeling like your gonna faint 24-7?Been to numerous neuros throughtout the US ,ents,octo neuros,had ear and balance studies all normal.Lyme Westernblot igm bands 23 and 41 positive all igg bands neg..Anybody with anmything similar going on.Also all lyme coinfections are now neg through igenex bartonella at one time was positive but has since gone neg

[Guest guest]

I had it too on the RMI I do not know if it is gone or not bu tI ma not paralysed anymo reand my brain fog depend on herxing

Kindly Marie

To: Lyme_and_Rife Sent: Thursday, July 5, 2012 5:42 PMSubject: Re: anybody elses brain mris showing lotsa white spots?

Hi Ronnie

Thank you very much for responding here.It sounds like we are in similar situations.

I have been all over the USA to most of the major teaching institutions and seen a lotta of neuros with no answers all they say we know theres something wrong but we dont know what it is.I am scheduled to go to Hopkins .Havent been to the MAYO.I have had 3 lumbars all were normal no MS bands and my mris with gad are not lightening up as the should if it was MS.My lyme serum in the spinal was indeterminate.My western blot was done at labcorp theres only has 3 bands on igm my test had 2 positive bands 23 and 41 igm which here in n.y. makes that a cdc positive.All my igg bands are negative.

The issue here with me is my first mri i had done march of 2011 showed only a few white spots and after being on iv rocephin for 22 days i had them pull the pic at 22 even tho i was suppose to be on it for 28 due to the severity of the symptoms it created.After the 22 days i had another mri taken and now it shows innumerable white spots..I also just got retested for lyme and the same bands igm are positive with no iggs being positive .My primary Doc told me he still thinks this is lyme .What i dont understand is why did the rocephin do that and why did it make me so much worse this was over a year ago since i took the rocephin.No one has any answers..Also why is my igm still coming back positive with the 23 and 41 band and the iggs are still negative showing no reactivity..Before the iv rocephin there was definitly something going on in my body for years and like i said why did the rocephin make matters so much worse.No one has

any answers ...

Subject: Re: anybody elses brain mris showing lotsa white spots?To: "Lyme_and_Rife " <Lyme_and_Rife >Date: Thursday, July 5, 2012, 2:23 PM

I also have numerous white spots on the brain and I am having severe balance problems. I have had numerous MRIs and have seen several Nuros. I am still been evaluted for MS by one Nuro. My western blot was positive for bands 66, 58,45,41,39,18,41,23. I have been treated twice with IVs plus doxy by mouth for several months. I have also tried several supplementals. So far, nothing has worked but I am still trying.

By the way 2 of the Nuros I saw said I did not have MS. Also, one of the doctors told me that I had the most positive Western Blot they have ever seen.

Hope you get better very soon. Pleas let me know how things are going.

Ronnie

To: Lyme_and_Rife Sent: Thursday, July 5, 2012 12:10 PMSubject: anybody elses brain mris showing lotsa white spots?

Does anyones elses brain show innumerable white spots with MS being ruled out?With symptoms such as balance problems,extreme fatigue,whoile body hurting,extreme lightheadedness feeling like your gonna faint 24-7?Been to numerous neuros throughtout the US ,ents,octo neuros,had ear and balance studies all normal.Lyme Westernblot igm bands 23 and 41 positive all igg bands neg..Anybody with anmything similar going on.Also all lyme coinfections are now neg through igenex bartonella at one time was positive but has since gone neg

[Guest guest]

Hi, My experience is that Lyme treatment can make you worse before you get better!  Lyme die off releases heaps of toxins which must also be removed as you treat with the use of enemas, saunas, seaweed (eg biofilam) Pinella and Burbur (some use up to 100 drops from nutrimedix) and more Look up Lyme detox.  Toxins poison your system and make you feel worse.   Some antibiotics can also create die off too severe for your body to cope with if you hav severe Lyme.  My husband had anaphalactic shock from penicillin because of this and is luck to be alive, because we did not know he had lyme at the time.  We have since blood tested pos and are under a lyme literate doc.  He now can take antibiotics and is improving but the doc started him on very low doses. We bought a doug coil from roger sirmon and are now treating lyme with this and getting huge improvements  my balance is now great most of the time.  The other thing we swear by is Nattokinase  2000 units x 2 a day and serraptase  40 000 units per cap I take 3 capsule am and want to get up to 3 pm as well..  I feel much better since starting this, they make my head and whole circulation feel much better, clearer.  I use doc best brand. I have gone from holding on to walls and taking stematol to  very rarely having balance problems.  My doc has me on Plaquinel, akamin and revolves through bacterim, clindamycin,  azithromyacin.   This gave me my first great improvement. I have neuro lyme and you are supposed to get better with Iv only.  My case is proving this to be not necessarily so for everyone, Many paths to Rome and all.  Have you got a good lyme Literate doc?  Or if not, a Doug Coil? Best of luck From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of T.BSent: Friday, 6 July 2012 7:42 AMTo: Lyme_and_Rife Subject: Re: anybody elses brain mris showing lotsa white spots? Hi RonnieThank you very much for responding here.It sounds like we are in similar situations.I have been all over the USA to most of the major teaching institutions and seen a laotta of neuros with no answers all they say we know theres something wrong but we dont know what it is.I am scheduled to go to Hopkins .Havent been to the MAYO.I have had 3 lumbars all were normal no MS bands and my mris with gad are not lightening up as the should if it was MS.My lyme serum in the spinal was indeterminate.My western blot was done at labcorp theres only has 3 bands on igm my test had 2 positive bands 23 and 41 igm which here in n.y. makes that a cdc positive.All my igg bands are negative.The issue here with me is my first mri i had done march of 2011 showed only a few white spots and after being on iv rocephin for 22 days i had them pull the pic at 22 even tho i was suppose to be on it for 28 due to the severity of the symptoms it created.After the 22 days i had another mri taken and now it shows innumerable white spots..I also just got retested for lyme and the same bands igm are positive with no iggs being positive .My primary Doc told me he still thinks this is lyme .What i dont understand is why did the rocephin do that and why did it make me so much worse this was over a year ago since i took the rocephin.No one has any answers..Also why is my igm still coming back positive with the 23 and 41 band and the iggs are still negative showing no reactivity..Before the iv rocephin there was definitly something going on in my body for years and like i said why did the rocephin make matters so much worse.No one has any answers ...Subject: Re: anybody elses brain mris showing lotsa white spots?To: " Lyme_and_Rife " <Lyme_and_Rife >Date: Thursday, July 5, 2012, 2:23 PM I also have numerous white spots on the brain and I am having severe balance problems. I have had numerous MRIs and have seen several Nuros. I am still been evaluted for MS by one Nuro. My western blot was positive for bands 66, 58,45,41,39,18,41,23. I have been treated twice with IVs plus doxy by mouth for several months. I have also tried several supplementals. So far, nothing has worked but I am still trying. By the way 2 of the Nuros I saw said I did not have MS. Also, one of the doctors told me that I had the most positive Western Blot they have ever seen.Hope you get better very soon. Pleas let me know how things are going. Ronnie To: Lyme_and_Rife Sent: Thursday, July 5, 2012 12:10 PMSubject: anybody elses brain mris showing lotsa white spots? Does anyones elses brain show innumerable white spots with MS being ruled out?With symptoms such as balance problems,extreme fatigue,whoile body hurting,extreme lightheadedness feeling like your gonna faint 24-7?Been to numerous neuros throughtout the US ,ents,octo neuros,had ear and balance studies all normal.Lyme Westernblot igm bands 23 and 41 positive all igg bands neg..Anybody with anmything similar going on.Also all lyme coinfections are now neg through igenex bartonella at one time was positive but has since gone neg

[Guest guest]

Hi

I just bought a doug coil machine i also have a infra sauna,and mild hbot .The mild hbot cost a small fortune i did about 90 dives saw no improvement i also was on samento and alimax also saw no major improvement.Wont do pharm antibiotics ever again because of what iv rocephin did to me .I was told by the man i bought mt coil machine from that when you coil you shouldnt use any type of antibiotic either pharm or herbal as it causes the spiro to go into cyst form and that the coil machine cant kill it in that form.I am praying this coil machine helps me as i am doing poorly here everyday i feel like i am gonna die and am readfy to go to the er but i have been there so many times and they have no idea what to do for me.I have no use for the medical establishment it seems its all about ego and money not about finding a solution to the problem and helping the person.I was really disillusioned by this prior to being sick i never knew how bad the system

and doctors really are this woke me up to the reality of our healthcare..

Subject: Re: anybody elses brain mris showing lotsa white spots?To: "Lyme_and_Rife " <Lyme_and_Rife >Date: Thursday, July 5, 2012, 2:23 PM

I also have numerous white spots on the brain and I am having severe balance problems. I have had numerous MRIs and have seen several Nuros. I am still been evaluted for MS by one Nuro. My western blot was positive for bands 66, 58,45,41,39,18,41,23. I have been treated twice with IVs plus doxy by mouth for several months. I have also tried several supplementals. So far, nothing has worked but I am still trying.

By the way 2 of the Nuros I saw said I did not have MS. Also, one of the doctors told me that I had the most positive Western Blot they have ever seen.

Hope you get better very soon. Pleas let me know how things are going.

Ronnie

To: Lyme_and_Rife Sent: Thursday, July 5, 2012 12:10 PMSubject: anybody elses brain mris showing lotsa white spots?

Does anyones elses brain show innumerable white spots with MS being ruled out?With symptoms such as balance problems,extreme fatigue,whoile body hurting,extreme lightheadedness feeling like your gonna faint 24-7?Been to numerous neuros throughtout the US ,ents,octo neuros,had ear and balance studies all normal.Lyme Westernblot igm bands 23 and 41 positive all igg bands neg..Anybody with anmything similar going on.Also all lyme coinfections are now neg through igenex bartonella at one time was positive but has since gone neg