RE: Reply-To:X--Newman-Property:Content-Type; b=Gqd5YcbyigK9qbpXYlY02iF8/40wiK07XIpt3oDT/QGsvrxHuKye590CfqW8hAnFXIPJSpVQeEa0rplXYsPOSwEdvtnFUGD7pMqs8zQ/zOaSsNosaekcOcXFB5Gi27WL

[Guest guest]

Hi Anitha,

I HATE to tell you to eliminate more food, but Dr. G has done it to us so

many times over the years, and he has been right, even though my son was on

such a limited diet, it was always ``modify`` and ``remove``. His IgE was

in the 3000`s when we started and now is in the 300`s, with a range

reference of 0 - 60!. Each time the IgE gets better, so does my sons

behaviour.that part is not rocket science!!!..

First of all, eliminate any and all soy. For many folks, the protein is the

same as that of cow dairy and my kid used to get very hyper on any soy.

Your son's head banging is telling you something that he cannot say with

words. It may hurt like a headache, feel congested, dull, something.

Absolutely NO Tim Bits, Oreo Cookies, or any carbs that are empty and do not

have nutrition, especially when mixed with refined sugar and, or

chocolate!!!

Try and substitute your rice dishes with potatoes, even French fries that

don't have coating are okay as they are usually potatoes, oil and salt, just

like plain potato chips. But use just to fill and get the main nutrition

from fish, meat and veggies.

Try applesauce or pear sauce, without added sugar. Sometimes the same fruit

served different ways.sliced, cubes, cooked, raw, shredded. We do this with

a lot of veggies as well like cucumbers, yellow peppers, carrots, green

beans...

Most speech and OT therapists do themselves a disservice with the ABA treats

they use like goldfish crackers, Smarties and so on. Even a tiny bit of

something bad can be reactive. Think of folks with peanut allergies.just

transferred from a hand on a door knob can be fatal! No amount is okay if

your kid can't tolerate it.

Save the grapes or potato chips for your ABA.

Try meat in all sorts of fun, kid friendly ways.mini meat loaves cooked in a

mini muffin pan. They freeze well and can be ready on hand, or try mini,

mini meatballs, the size of a small gumball. This is time consuming however,

so I usually opt for the mini muffin pan. This can be done with beef,

chicken, turkey , salmon etc.Just mash or ground it up and add basic

seasoning that can be tolerated.

How many ways can you serve a boiled weiner - sticks, mini sticks, circles

with a tooth pick, half circles, even triangles or wedges. Some times the

same food that you know is tolerated must be served again and again because

you know it is safe and not reactive for your child. Kids are okay with

this. Most like the familiarity of food they know and it is grown ups that

get bored and need food adventure and variety!

If your son can tolerate them, try eggs once or twice a week. Boiled,

chopped, fried, poached, etc.

Try real mayonnaise, like Hellmans. Not the half the fat stuff that is

filled with corn starch. It is better for them then ketchup, has less sugar

and less reactive ingredients - again if your son can have eggs.

Try Rice Krispies dry. To make it more interesting, you could try just a

quarter of a banana, if tolerated cut into the tiniest pieces. You could

also play ``count the Krispies`` and count them, then estimate how many a

spoon holds, a bigger spoon and so on.

My son eats the same thing every day for breakfast. It is the most

nutrition we can pack into him in the morning that fills him. A bowl of

Rice Krispies, 2 weiners and a large glass of water. IF he is doing really

well you could venture into goat milk. However always try things plain and

look for reactions. Then add extras for taste if needed.

We gave up ordering pizza 9 years ago when we went GFCF. Even with

modifications of the diet, we still don't order pizza. Recently, as we

have introduced goat cheese, I can make him one on a plain white tortilla,

brushed with olive oil, loaded with chicken pieces, diced yellow peppers and

goat mozzarella or cheddar grated. No tomato sauce as tomatoes are a

problem for my boy, whether they are raw or cooked. This is a real treat

and something he really looks forward to!

As some of the kids get older they are not as reactive to different foods

and you may be able to slip the odd cookie, or pizza in for a treat or a

social occasion, but I have seen such dramatic differences in my son with a

strict diet, I am afraid to ever take those chances. Besides, we are still

battling to get his IgE into a normal range, so all these years later, we

still ``modify`` and ``remove``.

I remember thinking that my son was going to starve whenever we implemented

a dietary change. Yet somehow, he never did. Kids are growing and hungry

and far more adaptable then we think they are. Keep trying new things that

are in the safe zone. Even if they don`t like it at first, frequent

exposure breeds familiarity and comfort. I remember when my son, for years

would not touch a potato that was not a French fry. Now he eats them all

ways and won`t eat fries unless they are Mc`s or Swiss Chalet. He has

developed good taste!!!!

Usually we have to eliminate a lot of things before we can introduce new

things so you can see what is safe and what is not. When you introduce one

thing at a time it is easier to see your sons reaction, if there is one.

Hope this helps,

Lori

_____

From: [mailto: ] On Behalf Of Shyam

Nair

Sent: February-25-11 4:30 AM

nids

Subject: Reply-To:X--Newman-Property:Content-Type;

b=Gqd5YcbyigK9qbpXYlY02iF8/40wiK07XIpt3oDT/QGsvrxHuKye590CfqW8hAnFXIPJSpVQeE

a0rplXYsPOSwEdvtnFUGD7pMqs8zQ/zOaSsNosaekcOcXFB5Gi27WL

Hi Sloan,

Great news ,so nice to hear about your son. Our son is 6 years old and we

saw Dr G Same time last year in April for the first time.We are still

struggling with nids diet,and my sons allergy tests comes so high and still

dr G says diet is not clean and he got dark circles under his eyes.He is not

very verbal. He is addicted to fruits and other carbs,sugary stuff. We try

to eliminate suagr a lot bu twe give more than two slices of fruit a day.

rarely cheat on diet like buying him timbits[small dogunuts] once a week

just one or two.

He is getting ABA services and they need reinforcers[in the form of food]

for therapy which is working he is sitting and doing stuffs at the table for

that we have to use may be one orange and one very small plum for whole day.

he gets few grapes or some other fruit for eating his medicines. But he got

lots of tantrums during therapy the reason we dont know why he hitts his

head on the floor or hit on his feet,rarely hurts others if they try to stop

hitting head.He wont eat his food during lunch time see ot hers food and

keep on asking those stuff like berries ,crackers etc.. unfortunately no one

is on any kind of diet so.

After seeing his last blood work we stopped buying timbits really limiting

carbs and sugars. When we did allergy test when we were in Dr G office they

showed aviod sign on rice,peanut butter and when i asked Dr G' he told to

limit rice [ once in two weeks and peanut butter is fine] Anyway i stopped

peanut butter and i give rice once in a week i give rice based snack. I read

most of the parents give non cheese pizza . Do you ever do that? we order

from pizza hut no cheese pizza, just want to know is that fi ne?

If you dont mind can pls let us know how one day diet of your son looks

like? This is my son's one day diet

Breakfast one french toast [made of soy butter,egg and soy milk,sugar],some

fried tuna with shallots ,piece of peach

Snack-one oreo cokkie, pottao chips

Lunch- 1/2 of a chicken b, 1/2 slice of bread

Eve snack- water, pottao chips

Dinner-1 tilapia fried,stir fried beets,potatos and onions, small serving of

plum yogurt[home made with 3 tea spoons of soy vanila yogurt and 1/2 of a

small plum]

Thank you for your time

Anitha

<mailto:%40>

From: Sloan_smith@... <mailto:Sloan_smith%40>

Date: Fri, 25 Feb 2011 03:30:14 +0000

Subject: Re: My Son & Nids

Thanks all! Its always back and forth, but always better. Thats the main

thing about I can say compared to the other types of treatments.

In answer to the question about SSRI: he did start on Paxil, and then Dr. G

changed him.. not because he had a negative effect, but I think that is the

way he treat... he is always looking for a better reaction and he does

switch to find the best fit for the patient.

> >

> > A happy update about my son: In April, it will be one year that he has

been on the protocol. He is 6 years old and entered Kindergarden in the

fall. He is doing AMAZING!

> >

> > He has learned to read, he loves school and is proud of his work.

> > He has gained almost 10 pounds.

> > He is sweet and tells me he loves me all the time. He made me breakfast

in bed!

> > He plays with his brother, he pretend plays (something he was not doing

before)

> > He is silly and laughs!

> > His teacher says his progress from September to now is unusually rapid.

> > He can tell me WHY he doesn't want to do certain things (whereas before

it was a screaming tantrum). For example: he said the other day when he

didn't want to go to the playground that it was too bright there and it hurt

his eyes. This sort of explanation was never present before.

> >

> > He is still struggling socially, but its not for lack of wanting to be

included. He has a hard time with the rapid back and forth of kids. Its like

his brain is struggling to process everything at one. But the changes in him

are nothing short of amazing.

> >

>