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protocol and XMRV in families affected by Autism and other Neuroimmune Diseases

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Sheryl,

My son is recovered and in college at 22 as a result of the protocol.

Please know your son can get better with proper medical treatment and then

rehabilitation. No parent should accept that their child cannot be helped.

We treated with antivirals on the protocol. Maybe he has the XMRV

retrovirus, and it was addressed by using the antivirals and other things we

did to help his immune problem. I don't know the answer to that question.

However, is living proof that kids can get better.

was diagnosed when he was four years old. A psychiatrist who was the

leading authority on autism said my child would never be okay. According to

this expert, was going to end up in an institution or group home. Now

at 22, the only institution attends is a University where he studies

mechanical engineering on a merit scholarship. excels academically and

is in the Engineering Honor Society (top 10% GPA). He's a member of Sigma

Chi Fraternity and was president of the Jewish Student Association. And he

just received a NASA paid internship and scholarship. But more

importantly, is a typical college student who drinks an occasional

beer, goes on dates, stays out too late with friends and then sleeps through

eight o'clock classes. I couldn't be more proud!

Unbelievable as it seems, this is the same child who wanted to spend all

day, every day, plugging in a portable radio into each outlet in the house.

Back then, I wasn't sure if I had the strength to be more stubborn than my

son. There were mornings I didn't want to get out of bed to face another

day filled with autism. The worst times were when I didn't have a direction

or a plan. I was hanging onto my sanity by my fingernails. But, at the end

of the day, I was faced with a choice: let drift off forever into his

own world, or drag him kicking and screaming into ours.

Now it may look like we knew what we were doing back then. But we didn't.

It was trial and error to see what worked to help him. After we helped

medically, it was possible for him to learn. Behavioral and educational

interventions were used in conjunction with the medical treatment to catch

up on everything he missed. Initially, we used Applied Behavior

Analysis (ABA) for his rehabilitation and when he was ready we moved towards

more natural ways of teaching. It took years to correct 's deficits in

speech and social skills. It was almost like taking a stroke victim and

bringing them back. Our story is not about coping with autism, but rather

fighting back and not accepting the misconceptions associated with this

diagnosis. This process is definitely not for sissies or parents looking

for that magic cure. If you would like more info on what we did medically,

please email me privately.

Hope this helps,

Marcia

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