Guest guest Posted March 4, 2011 Report Share Posted March 4, 2011 Hey Kathy, It really sounds like you're having a reaction to a food or supplement. It especially sounds like there may be a lot of soy protein in the diet (soybean oil is fine, soy lecithen is evil if you're prone to aggression and oppositional behavior from soy). The hard thing about soy is that it can take weeks to start slowly causing problems, so you've long forgotten that there's any possibility that it could be causing a reaction. And then, once you stop all sources of it (and it's in freaking everything), it takes a full 5 days before you start to see improvement. But you can be on it a long time, and life will just steadily seem worse and worse. It seems to get in the way of any other improvement. The other two things we see cause aggression and oppositional behavior is Zyrtec & Allegra. And boy, when the kid is on both & sensitive to both, wow. Oh - and our most recent nasty trigger was Tenex. I keep starting it and stopping it a year later after I finally figure out that it's not doing well. There are tons of other supplements and foods that could be triggers if he's taking a lot of different types of supplements or eating a lot of replacement foods, whole grains, carbs, etc. I don't have enough experience with those. Oh - and a nice ray of sunshine - pollen just showed up all over my car yesterday in the south. That's about to make all hell break loose for 70% of us - real fun coming up there. Everyone's going to be like " He was doing great until a few weeks ago... "  (Not to be discouraging or anything.) Honestly I guess it could be viral, but usually with viral you're going to see more things like loss of eye contact, foggy brain, dark circles (although that's more likely allergies), maybe fatigue (although in kids fatigue can be real difficult to see because they can seem to be hyper at the same time they're tired). I'd suspect bacterial infections to cause it before viruses - like a sinus infection, strep or mycoplasma pneumonia (ever present if you have a chronic underlying infection). Treating/suppressing viruses tend to be the slow impacting long term treatment for most people - but it's the one that most likely has the most impact and the least dramatic signs. That desperate need for deep pressure - I really do associate it w/bacterial infections, at least in our life experience, as well as the meds mentioned above. It can also be yeast, but I see it improve here the most when either boy is on antibiotics. One kid needs deep pressure & will even beg for 'slap fights', and the other one will hang upside down and drape himself all over everything, or lay on his head with his butt in the air (hilarious), and I've noticed it is nowhere near that level after both have been on a round of antibiotics. If it were yeast, then the antibiotics would have likely made that worse, not better - except that we're all on antifungals and that keeps us very level in the yeast area thank goodness. It might be a good time to be weaning off supplements, especially the most allergenic ones, and any megadoses of vitamins, and off any B12. But I'm just curious if any of the above are part of the daily regimine. I hope you find a solution quickly - that's so miserable to go thru. We just came out on the better side of a whole year because of one thing my oldest was eating for lunch that had soy lecithen, and while he got a lot better when we finally figured that out & stopped it, it got even better as soon as we stopped Tenex. Now I look forward to coming home every day, which is just wonderful.  ________________________________ From: Dean <dvsdean@...> Sent: Fri, March 4, 2011 9:51:13 AM Subject: Viral behaviors ?  Hi, I'm back from the past yr ago. I finally came to my senses and realized DAN for 7 yrs is not going to help us if it has not already done so. Thanks to a friend of mine she got me back on track. We have an appointment with DR in 25 days ,yes I am counting down. My son behavior is getting worse this month . He is grabbing therapist hair and face. He was choking the consultant by pulling her scarf. It took another person to get him to let go. He was crying so hard that he had purplish small dots all over his face and behind his ears. I have never seen him mad like that in a long while. Also he can not get enough deep pressure . I can literally sit on him and he would love it. I guess I need a hug machine , Where is Temple Grandin? For all that have been down the route have you experience these behaviors ? I am assuming it can be Viral ? or Yeast or all of the above? Oh I hope I can make it . It seems like each yr he gets worse. I also notice that the more facial expressions and talking with enthusiasm he reacts better. Thanks Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2011 Report Share Posted March 4, 2011 , My son from under 6 months until over 3 had congestion , running nose, low grade fever and a barking cough on and off along with ear infections. While going through this off and on he started to say some words and just about when he was suppose to string 2 words together he went into the brain fog. Then I lost my son . He could not answer me ,. He was a child trying to start talking and singing with me and then silence. I do think it is bacteria , not sure what. He was off on on antibiotics during ear infections. The strange thing I notice on his strep titers is that it was way lower than the low range. Is that strange?I read that IGM on the low side is saying immune system is stressed. I tried DAN and the doctors could never help me with all this. We tried Tenex at 4 yrs old along with Zoloft. A neurologist I spoke with told me that Zoloft can make some kids hyper and not calm. So I don't know if it was the Zoloft or the Tenex making him still hyper. He is off supplements. He is on Lamictal for behavior. Probably wean off this since this really is not helping. He still can get in a rage even with Lamictal. I was looking at my son brain spect scan and there are some red and orange spots many areas . DO you know if that means inflammation? What type of antibiotics have you seen used? I know if makes a difference on what type of bacteria. My husband doesn't like using antibiotics a lot. He thinks the antibiotics used when my son was younger messed him up to this condition. Can you still be viral if you had these symptoms 7 yrs ago? My son has purplish circles and is pale color. He doesn't have the rosy cheeks like the rest of us. He used to be more in a fog when he was younger.I wonder if you can have a viral kid and the symptoms were there ,but not address .Then the virus can go latent inside him. I'm thinking we might have more than one thing . Also I have a baby picture of him when he look awful . He looks grayish with a running nose and in a brain fog . His eyes were tearing up with the sickness . He would have a low grade fever off and on. Also before he received his 15 month shots he had a swollen lymph node behind his right ear. My gut said to leave, but darn doctor talk me into it. So I am sure that didn't help his immune symptom . I will have to look into this soy lecithen . Why do we have all this stuff in food. Do you just stay away from all soy? Best Kathy > > Hey Kathy, > > It really sounds like you're having a reaction to a food or supplement. It > especially sounds like there may be a lot of soy protein in the diet (soybean > oil is fine, soy lecithen is evil if you're prone to aggression and oppositional > behavior from soy). The hard thing about soy is that it can take weeks to start > slowly causing problems, so you've long forgotten that there's any possibility > that it could be causing a reaction. And then, once you stop all sources of it > (and it's in freaking everything), it takes a full 5 days before you start to > see improvement. But you can be on it a long time, and life will just steadily > seem worse and worse. It seems to get in the way of any other improvement. > > > The other two things we see cause aggression and oppositional behavior is Zyrtec > & Allegra. And boy, when the kid is on both & sensitive to both, wow. Oh - and > our most recent nasty trigger was Tenex. I keep starting it and stopping it a > year later after I finally figure out that it's not doing well. > > There are tons of other supplements and foods that could be triggers if he's > taking a lot of different types of supplements or eating a lot of replacement > foods, whole grains, carbs, etc. I don't have enough experience with those. > > Oh - and a nice ray of sunshine - pollen just showed up all over my car > yesterday in the south. That's about to make all hell break loose for 70% of us > - real fun coming up there. Everyone's going to be like " He was doing great > until a few weeks ago... "  (Not to be discouraging or anything.) > > Honestly I guess it could be viral, but usually with viral you're going to see > more things like loss of eye contact, foggy brain, dark circles (although that's > more likely allergies), maybe fatigue (although in kids fatigue can be real > difficult to see because they can seem to be hyper at the same time they're > tired). I'd suspect bacterial infections to cause it before viruses - like a > sinus infection, strep or mycoplasma pneumonia (ever present if you have a > chronic underlying infection). Treating/suppressing viruses tend to be the slow > impacting long term treatment for most people - but it's the one that most > likely has the most impact and the least dramatic signs. > > That desperate need for deep pressure - I really do associate it w/bacterial > infections, at least in our life experience, as well as the meds mentioned > above. It can also be yeast, but I see it improve here the most when either boy > is on antibiotics. One kid needs deep pressure & will even beg for 'slap > fights', and the other one will hang upside down and drape himself all over > everything, or lay on his head with his butt in the air (hilarious), and I've > noticed it is nowhere near that level after both have been on a round of > antibiotics. If it were yeast, then the antibiotics would have likely made that > worse, not better - except that we're all on antifungals and that keeps us very > level in the yeast area thank goodness. > > It might be a good time to be weaning off supplements, especially the most > allergenic ones, and any megadoses of vitamins, and off any B12. But I'm just > curious if any of the above are part of the daily regimine. > > I hope you find a solution quickly - that's so miserable to go thru. We just > came out on the better side of a whole year because of one thing my oldest was > eating for lunch that had soy lecithen, and while he got a lot better when we > finally figured that out & stopped it, it got even better as soon as we stopped > Tenex. Now I look forward to coming home every day, which is just wonderful. > > > >  > > ________________________________ > From: Dean <dvsdean@...> > > Sent: Fri, March 4, 2011 9:51:13 AM > Subject: Viral behaviors ? > >  > Hi, > > I'm back from the past yr ago. I finally came to my senses and realized DAN for > 7 yrs is not going to help us if it has not already done so. Thanks to a friend > of mine she got me back on track. We have an appointment with DR in 25 > days ,yes I am counting down. > > My son behavior is getting worse this month . He is grabbing therapist hair and > face. He was choking the consultant by pulling her scarf. It took another person > to get him to let go. He was crying so hard that he had purplish small dots all > over his face and behind his ears. I have never seen him mad like that in a long > while. Also he can not get enough deep pressure . I can literally sit on him and > he would love it. I guess I need a hug machine , Where is Temple Grandin? > > For all that have been down the route have you experience these behaviors ? > I am assuming it can be Viral ? or Yeast or all of the above? Oh I hope I can > make it . It seems like each yr he gets worse. I also notice that the more > facial expressions and talking with enthusiasm he reacts better. > > Thanks > Kathy > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2011 Report Share Posted March 5, 2011 Thanks . I wrote back a long reply last night 12 hours ago and I don't see it. I don't know if I'm having problems posting or not. I'm testing to see if this is posted. If so then I guess the other one is lost, I wish I can post and it goes up right away. I'll look into what you mentioned. Kathy > > Hey Kathy, > > It really sounds like you're having a reaction to a food or supplement. It > especially sounds like there may be a lot of soy protein in the diet (soybean > oil is fine, soy lecithen is evil if you're prone to aggression and oppositional > behavior from soy). The hard thing about soy is that it can take weeks to start > slowly causing problems, so you've long forgotten that there's any possibility > that it could be causing a reaction. And then, once you stop all sources of it > (and it's in freaking everything), it takes a full 5 days before you start to > see improvement. But you can be on it a long time, and life will just steadily > seem worse and worse. It seems to get in the way of any other improvement. > > > The other two things we see cause aggression and oppositional behavior is Zyrtec > & Allegra. And boy, when the kid is on both & sensitive to both, wow. Oh - and > our most recent nasty trigger was Tenex. I keep starting it and stopping it a > year later after I finally figure out that it's not doing well. > > There are tons of other supplements and foods that could be triggers if he's > taking a lot of different types of supplements or eating a lot of replacement > foods, whole grains, carbs, etc. I don't have enough experience with those. > > Oh - and a nice ray of sunshine - pollen just showed up all over my car > yesterday in the south. That's about to make all hell break loose for 70% of us > - real fun coming up there. Everyone's going to be like " He was doing great > until a few weeks ago... "  (Not to be discouraging or anything.) > > Honestly I guess it could be viral, but usually with viral you're going to see > more things like loss of eye contact, foggy brain, dark circles (although that's > more likely allergies), maybe fatigue (although in kids fatigue can be real > difficult to see because they can seem to be hyper at the same time they're > tired). I'd suspect bacterial infections to cause it before viruses - like a > sinus infection, strep or mycoplasma pneumonia (ever present if you have a > chronic underlying infection). Treating/suppressing viruses tend to be the slow > impacting long term treatment for most people - but it's the one that most > likely has the most impact and the least dramatic signs. > > That desperate need for deep pressure - I really do associate it w/bacterial > infections, at least in our life experience, as well as the meds mentioned > above. It can also be yeast, but I see it improve here the most when either boy > is on antibiotics. One kid needs deep pressure & will even beg for 'slap > fights', and the other one will hang upside down and drape himself all over > everything, or lay on his head with his butt in the air (hilarious), and I've > noticed it is nowhere near that level after both have been on a round of > antibiotics. If it were yeast, then the antibiotics would have likely made that > worse, not better - except that we're all on antifungals and that keeps us very > level in the yeast area thank goodness. > > It might be a good time to be weaning off supplements, especially the most > allergenic ones, and any megadoses of vitamins, and off any B12. But I'm just > curious if any of the above are part of the daily regimine. > > I hope you find a solution quickly - that's so miserable to go thru. We just > came out on the better side of a whole year because of one thing my oldest was > eating for lunch that had soy lecithen, and while he got a lot better when we > finally figured that out & stopped it, it got even better as soon as we stopped > Tenex. Now I look forward to coming home every day, which is just wonderful. > > > >  > > ________________________________ > From: Dean <dvsdean@...> > > Sent: Fri, March 4, 2011 9:51:13 AM > Subject: Viral behaviors ? > >  > Hi, > > I'm back from the past yr ago. I finally came to my senses and realized DAN for > 7 yrs is not going to help us if it has not already done so. Thanks to a friend > of mine she got me back on track. We have an appointment with DR in 25 > days ,yes I am counting down. > > My son behavior is getting worse this month . He is grabbing therapist hair and > face. He was choking the consultant by pulling her scarf. It took another person > to get him to let go. He was crying so hard that he had purplish small dots all > over his face and behind his ears. I have never seen him mad like that in a long > while. Also he can not get enough deep pressure . I can literally sit on him and > he would love it. I guess I need a hug machine , Where is Temple Grandin? > > For all that have been down the route have you experience these behaviors ? > I am assuming it can be Viral ? or Yeast or all of the above? Oh I hope I can > make it . It seems like each yr he gets worse. I also notice that the more > facial expressions and talking with enthusiasm he reacts better. > > Thanks > Kathy > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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