Our first appt with Dr. G

[Guest guest]

Hi Everyone,

We flew to LA from Philly to see Dr. G this past Monday. My son just turned

5 and we’ve been doing biomeds since he was about 19 months old (started out

slow and have tried several things, no chelation or HBOT; mostly

supplements, some antifungals, antibacterial/antiprotozoals, etc). Anyway,

as you all know, he wants me to remove all of Liam supplements, including

LDN (b/c it has no long term studies, so there’s no long term info on what

it could do to our children), enzymes, probiotics, etc etc. We don’t have

to remove the LDN yet (doing all supps right now, then when we talk next

probably the LDN). I want to know if any of you removed LDN and if you just

dropped it or went slowly??

SO, I am going to try all this b/c I think Liam needs this approach and I

know I can’t do this half-assed ;-) In the meantime, we are on a strict

SCDiet and have been for about 20 months. Right now he’s eating pork, beef,

chicken, salmon, peas, carrots, string beans, cauliflower, spaghetti and

butternut squashes, apples, pears, bananas, mango (I know this one is a

tropical fruit so now it’s out). Everything is organic, free range, grass

fed, etc. healthiest I can find. However, I’m really nervous about adding

other foods. Before doing SCD he had major GI issues, screamed/cried in

pain so much until we got him dx’ed with the enterolitis/crohn’s disease

(which as you know Dr. G doesn’t really believe in re DX and TX of that, but

it did help Liam stop banging his head so much and he finally started

gaining weight). He’s a big gut kiddo and head banger, hitter, when he’s in

pain with his belly. He’s come a long way on SCD and gained some weight

during the past 1 ½ years (was stuck at 28 lbs for 1.5 years before SCD).

I am not sure where’s best to start…thinking once a week with organic white

potatoes…?? Does anyone have a suggestion for a good book that focuses on

low allergen foods? I don’t feel like I got enough info on this at the

doctor’s office and I think it’s really important to have more guidance. I

went to the store yesterday and looked at the wonder bread, which he

suggested and I just can’t give it to Liam. It has soy in it (I’ve read too

much about how bad soy is for us b/c its 90% genetically modified in the US,

plus he’s allergic anyway, per testing at UMDNJ), lists milk and wheat too.

I was surprised to see soy and milk listed, no matter what Wonder bread type

I picked up. I also was surprised that Dr. G told me he was fine with soy,

since it’s such a big GMO food and it seems our kids immune system wouldn’t

respond well (still need to read more on this and understand his

perspective, as we didn’t spend time on it, so probably why I’m a little

confused….any additional info, please share).

So I guess my main question is to share any books / ideas on the diet. I

don’t feel like there’s a lot of info and we’ve been down a very long, hard

road since my son started projectile vomiting at 2 weeks old and screaming

at every bottle/meal. We are finally off of meds for reflux and have

brought his gut a long way, but still have a long way to go. I don’t want

him to crash again b/c I just can’t imagine putting him through another

endoscopy/colonoscopy, etc etc or steroids. I want to really figure out

what’s best for him for a diet approach that won’t make him have a major

Crohn’s flare.

Thanks for reading; sorry this is so long!

Kathi