Just Starting Out

[Guest guest]

Thanks, !

I feel like it might be tight enough in the back, but (I may be paranoid here)

but it seems like his forehead is getting worse even after a couple days... I

don't see the red marks that people/websites reference when taking the helmet

off in the prominent area on his forehead.

He seems to tolerate it ok when sleeping, but really does not like it when

awake. He will just turn his head from side to side, and because I think it is

big, it rubs against his cheeks and the back of his neck. I lined it with

moleskin, so hopefully this helps. I also noticed that when he lays down, on

one side, it smooshes his ear. Again, I can't tell if this is because right now

it is too big, therefore it will get better, but it's really be a tough week.

We did the 6 hours yesterday, and he did " ok " with it. I wear him in the Bjorn

when he is awake, and this seems to help. We have a check up with the ortho on

Wednesday, so I'll bring my long list then.

Thanks for the encouragement!

-melanie

> >

> > Hi all,

> >

> > I have a 3 month old that just started his helmet therapy using a Hanger

helmet. He tolerated the first day/first hour ok - he actually slept in it, but

yesterday cried the entire 2 hours. It was awful and I couldn't wait to take it

off. My son is pretty mellow and rarely cries, so hearing him be upset that

long was super tough. The helmet also seems too big for him to get any comfort.

It also doesn't seem to put any pressure on his forehead.

> >

> > I'm am sure many of you also dealt with the initial getting used to it

blues, and I feel silly for being this 'weak' so early, but thought I'd just put

his out there anyway.

> >

> > Thanks for listening,

> >

> >

>

[Guest guest]

Hi. My daughter had to have a helment. it takes a while for them to get used to it but trust me in the end its all worth it. Keep your head up and good luck with the rest of the treatment.

From: melanie <kp@...>Plagiocephaly Sent: Fri, October 15, 2010 12:24:30 PMSubject: Just starting out

Hi all,I have a 3 month old that just started his helmet therapy using a Hanger helmet. He tolerated the first day/first hour ok - he actually slept in it, but yesterday cried the entire 2 hours. It was awful and I couldn't wait to take it off. My son is pretty mellow and rarely cries, so hearing him be upset that long was super tough. The helmet also seems too big for him to get any comfort. It also doesn't seem to put any pressure on his forehead. I'm am sure many of you also dealt with the initial getting used to it blues, and I feel silly for being this 'weak' so early, but thought I'd just put his out there anyway. Thanks for listening,

[Guest guest]

My son is 6.1 years and is high functioning autistic. We have done a great

number of interventions, diet, chelation, ridiculous amount of supplements

etc. over the past 2 years to no avail. I recently heard about and

contacted the New York office for help. We live in Johannesburg, South

Africa so Dr. has agreed to help us long distance provided we get a

primary care giver in SA willing to follow the protocol. It has taken

me some time to find a doctor even willing to review the science behind the

protocol but I have eventually succeeded. Our local doctor is reviewing the

protocol for what blood work is required under guidance from Dr. , I

hope !!

My son, Troy has been on SCD for about 6 weeks now. He seems to be doing

better on the diet. I understand the diet is very different from SCD,

especially since we rely heavily on Almond and Cashew Nuts. I also make his

yoghurt from cow's milk and he eats an enormous amount of fruit a day. Is

there a book I can buy explaining the diet so I can change his diet yet

again as I am sure our doctor in SA is not going to have a clue about the

diet.

In terms of supplements Troy is at the moment on Vitamin C & D, Milk

Thistle, DMG and Omega 3 Oil. About 3 weeks ago we started him on Valtrex,

Flagyl and Fluzol. Do these supplements fit the protocol or should I

stop the supplements for now?

We are so desperate to get going on the protocol and thought we could start

with the correct supplements and diet for now as we wait for the blood work

from our doctor.

I would so appreciate any feedback or help as we feel so alone in this

battle so far away from everyone. No medical professional in SA has a clue

about , that is so frightening.

Thanks so much.