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In a message dated 4/3/01 11:13:54 AM Eastern Daylight Time, mfroof@...

writes:

<< Hi, Everyone......Gail......he was fine on the trip up and back. He does

good in the car.......all those long car trips he's grown up with!!! The

Dr.

took him off the Reglan/ Zantac and put him on Prevacid. She is hoping that

will decrease the acid production in his stomach and let his esophagus heal.

She didn't say what the next move to repair it would be......only that he

would need a bx. first. You still need to send me your phone #........we

will have a busy week next week, but would like to visit one day. Haven't

heard from the other Gail, in Cleveland. Take care,

Everyone.

Margaret >>

Margaret,

Glad Gareth handled the trip well. I will e-mail you my phone # and let's

hope the other Gail can meet us too!

Gail

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Guest guest

That's good that he was fine on the trip. I'm glad

that y'all had a good time.

>

> Hi, Everyone......Gail......he was fine on the trip

> up and back. He does

> good in the car.......all those long car trips he's

> grown up with!!! The Dr.

> took him off the Reglan/ Zantac and put him on

> Prevacid. She is hoping that

> will decrease the acid production in his stomach and

> let his esophagus heal.

> She didn't say what the next move to repair it would

> be......only that he

> would need a bx. first. You still need to send me

> your phone #........we

> will have a busy week next week, but would like to

> visit one day. Haven't

> heard from the other Gail, in Cleveland.

> Take care,

> Everyone.

> Margaret

>

> >

> >

> >

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

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  • 8 months later...

AND I can not take any NSAIDs (vioxx

> included). I get severe stomach pains (GERD) from them.

Meghan, Have you been taking any stomach meds for the GERD? I can't

take Celebrex any more and hated Vioxx so ended up on the generic for

Voltaren...diclofenac but I also take a prevacid daily for the " guts "

to feel okay.

When i got my prescription refilled the mail order company replaced

my prevacid with the " little purple pill " so will see what happens

when i run out of the prevacid. cross fingers.

PatB

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When you say " little purple pill " ...are you talking

about Nexium? I took that back in the summer and it

was absolutely great...except it was so expensive I

could not afford to keep taking it! Sure did help my

tummy though...but I am not having any tummy problems

now...except for occasional nausea...so don't need it.

Sharon

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GERD stands for gastroesophageal reflux disease.

My GERD started when I had to go on NSAIDs for a knee injury/surgery

(not arthritis related).

The only way I can control it is by not taking ANY nsaids, eating

small meals, never letting myself get very hungry and cutting out all

spices, ginger, peppermint, onions, peppers, garlic, too much

chocolate, etc. I don't drink coffee and not many sodas.

Warm water or green tea helps when I'm having an attack.

I don't know if it's part of the PA or not. Interesting idea...

The fact that most PA patients end up on NSAIDs doesn't help though,

I'm sure.

-Meghan

> As I wrote in my last post my derm. are wondering if Reflux is a

> commen problem for Pa-patients. Not from the medications most of us

> are eating, but a problem which comes with the deasease itselves.

> Of course the medications dosent help, and as I understand I'm not

> alone with reflux/stomac-problems.

> I cant even drink water in the morning without having problems with

> reflux. My doctor prescribed Nexium for me, and its a life-saver.

Now

> I can enjoy applejuice, and even red wine whenever I like.(uphs,

it,s

> sounds like I'm having wine all the time!!!)

> Nexium is a very expencive medication but for me its worth it.

> I'v spend christmas with a stomac-flu, and had to cut out all food

> and medications. Not a fun way to celebrate christmas.!

> Im finally eating again , and my stomac seems o.k., but Im

wondering

> when I can start my medications again. I'm only on celebrex right

> now, hoping they are not the reason I got sick. Anyone been here,

and

> Know what I should do?

> I,m probably starting on meth. end of january, still hasent made up

> my mind what to do.

> Well, I wish you all a wonderfull New Year's Eve.

> From Hege, still cold with -15 degrees today.

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  • 1 month later...

In a message dated 2/25/02 11:32:10 AM Pacific Standard Time,

writes:

>

> last year that Gareth has GERD...gastric esophageal reflux disorder.

> Gareth

> is 13 y/o and he's gone all these yrs. with pain and we never knew it.

> Gareth also gagged and threw-up alot....I just never knew anything about

> GERD. Keep this in the back of your mind for future reference. If you

> press

> gently right below the diaphragm, in the center, and he acts like it's

> painful, then you may want to r/o GERD.

Margaret,

is 13. He had a nissen procedure at the age of 3 for GERD. He also has

a hiatal hernia that no dr. mentioned. Showed up on a chest x-ray with

cardio. It is something that is monitored and is always in the back of my

mind. Recently has been able to tell me what and where things hurt so

it is improving. Of course he keeps wanting to go to the dr to have his ears

looked at just for the heck of it.

Karyn

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  • 9 months later...

Dear Autumn,

Thanks so much for your recommendations on books on GERD. It sounds

like you have suffered through a lot of pain with this condition. My

daughter has suffered GERD symptoms now for about 4 years but they are

reluctant to scope her because of her heart conditions. The Prilosec doesn't

seem to alleviate all the symptoms. My daughter's gastro says Barretts is

extremely rare (they don't see it) but you are the second person on this list

who has mentioned having the disease--I think the other person who had it was

only 11.

Thanks again

Martha (mom to Chrissy IgA deficiency etc.)

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Yes! I would like a copy of both papers! Thanks, Autumn! After Christmas is

fine, I really appreciate it!!!!!

Diane, Mom to Kody

Please feel free to visit my website for parents of children with multiple

special needs :

www.geocities.com/schmidtzoo/SNAK.index.html

-- GERD

With the recent discussions about GERD/Reflux I thought I would let the

group know about two books that I just bought. I have previously read " The

Fire Inside " but these recent books came highly recommended by my surgeon.

I have suffered from GERD terribly for a very long time (so have my two

sons). In September I was diagnosed with Barrett's esophagus (a

precancerous condition) and in November I had the Nissan fundoplication to

repair a very large hole in my esophagus. My disease is quite extensive and

I am only expected to have a 37-50% improvement with my GERD. The one book

is titled " How to Stop Heartburn " by Anil Minocha, M.D. There is a section

on infant reflux, as well. The book has a very high rating on Amazon.com.

The other book is titled " Tell Me What to Eat if I Have Acid Reflux " by

Elaine Magee, R.D. Both look like they will be very helpful and have a lot

of information. Maurita, these may be of some help to you, also.

Diane~I will look for that information for you. I know that I have it

somewhere in one of my many file boxes of medical info. It is a very

worthwhile read. I also have a copy of Sara Lebien's paper on males and PID

issues. Let me know if you would like a copy of that, as well.

I am quite behind in my holiday cleaning, wrapping and baking so I promise I

will look for these items right after xmas. Hope all is well with you and

yours.

Warm regards,

Autumn (Mark Cd5-Cd19 PID and )

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  • 2 months later...
Guest guest

Cheryl,

I was diagnosed with GERD years ago, prior to the transplant. At the time the med of the day was prilosic now it is prevacid. I have taken Prevacid also more recently to give my stomach a break form meds. Prednisone can irritate the stomach.. It really helped. I was given it by the liver transplant team so I don't believe you need to worry. Hope it gives you some relief.

Patty

-----Original Message-----From: Homeykat@... [mailto:Homeykat@...] Sent: Tuesday, March 11, 2003 1:39 PM Subject: [ ] GERDgood afternoon all,I was wondering if anyone in the group has acid reflux or GERD? My PCP diagnosed me with GERD yesterday and he thinks I also have stomach ulcers. I am getting an upper GI done in a couple of weeks. He prescribed Prevacid and looked it up in his PDR for me. It said people with hepatic disfunction should be on lower doses so he put me on a lower dose. I trust him, but I am so skittish about meds. My LFTs are a hair away from normal and I am afraid any medication is going to mess them up again. He sent my GI doctor an email about everything with instructions for her to call if there was any concern. Not looking for medical advice, just someone else that has taken these meds. It comforts me when others take the same meds as I do.Thanks,Cheryl

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Guest guest

I am taking Nexium for GERD. My understanding is that these are all

fine for the liver...so no worries. I totally trust my GI, and I

have a hepatologist, too, who approves these types of meds. Best to

take care of that tummy and esophagus!! I know how miserable it can

be, and the drugs do help! Good luck with it.

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Guest guest

Dear Cheryl:

I've had GERD for years, and after trial and error with several

medicines, have been on Prevacid daily for more than 6 of the 8

years that I've had AIH. I take the 30 mg pills and do just fine

with them. I'm really sensitive to most medications, too and

Prevacid was the only one that didn't have a lot of side effects.

Kathy (AIH)

Seattle area

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Guest guest

Dear Cheryl,

Randy also has had GERD for quite a few years and he takes Prilosec. He took it pre tx and takes it daily since the tx. No problems here.

Cheryl & Randy

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  • 2 months later...
  • 4 months later...

Why don't we set up a poll and see how many have this. I too have this and can't feel the acid coming up. I'd set up the poll but I don't know how.

Tami

GERD

This is all very interesting because I have had hoarseness for yrs now. Originally I was diagnosed with a polyp on my vocal cords, but when scoped, it was too small to laser. I finally diagnosed my own hoarseness as being due to fluticasone inhalations.(Flovent or Advair). Now the Samter's specialist tells me I probably have GERD which sets up the vocal cords to be sensitive to fluticasone. He drew this conclusion largely on my family history of GERD, not my own personal history. Sounds like GERD is seen often in Samterites tho.Sue G(AZ)

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One of the reasons I wanted to ask is because the Doctor said it was

a pretty common combination. My best guess is that it is we are so

used to having sore throats we just chalk it up to post nasal drip

and don't think twice, at least if it is the type of reflux without

heartburn....

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  • 3 months later...

My idea would be to ask you what it is that you were eating when first

started the diet and what exactly are you eating now. I mean exactly. We

need to find the cause.

ABO Specifics Inc. - http://www.foodforyourblood.com

GERD

Hi all!

Does anyone know of a co relational link between O's and occurrence

of GERD? Are we more or less likely to suffer from it? In any case,

is there an O specific plan of attack in relieving it?

When I first started the O diet (after many years of eating almost

exclusively avoids as a veggie), I felt a lot better, but I've

noticed some of my old digestive problems have returned. I won't

gross you out with the gory details, suffice to say my stomach hurts

constantly and nothing I eat " sits well " .

Any ideas on the subject would be appreciated.

Wonder and Joy,

Eva :)

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, I really am eating the same things as I was in the beginning:

a lots of beef and chicken, no dairy, no coffee, no wheat, corn,

potatoes, etc...

I think that when I first started the diet, it was such a big

difference that I couldn't help but feel better than I had been.

Now, I'm a used to feeling good instead of crappy so when I feel less

than terrific I notice it more.

It's frustrating.

Thanks for listening/reading,

Eva

> My idea would be to ask you what it is that you were eating when

first

> started the diet and what exactly are you eating now. I mean

exactly. We

> need to find the cause.

>

>

>

> ABO Specifics Inc. - http://www.foodforyourblood.com

> GERD

>

> Hi all!

>

> Does anyone know of a co relational link between O's and occurrence

> of GERD? Are we more or less likely to suffer from it? In any

case,

> is there an O specific plan of attack in relieving it?

>

> When I first started the O diet (after many years of eating almost

> exclusively avoids as a veggie), I felt a lot better, but I've

> noticed some of my old digestive problems have returned. I won't

> gross you out with the gory details, suffice to say my stomach

hurts

> constantly and nothing I eat " sits well " .

>

> Any ideas on the subject would be appreciated.

>

> Wonder and Joy,

>

> Eva :)

>

>

>

>

>

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Can I please see what you eat in a day. Give examples. I have an idea

but want to verify it. So let us see what you had in the last 3 days.

Quantities as well.

Gracias!

ABO Specifics Inc. - http://www.foodforyourblood.com

GERD

>

> Hi all!

>

> Does anyone know of a co relational link between O's and occurrence

> of GERD? Are we more or less likely to suffer from it? In any

case,

> is there an O specific plan of attack in relieving it?

>

> When I first started the O diet (after many years of eating almost

> exclusively avoids as a veggie), I felt a lot better, but I've

> noticed some of my old digestive problems have returned. I won't

> gross you out with the gory details, suffice to say my stomach

hurts

> constantly and nothing I eat " sits well " .

>

> Any ideas on the subject would be appreciated.

>

> Wonder and Joy,

>

> Eva :)

>

>

>

>

>

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In a message dated 2/6/2004 9:22:45 PM Eastern Standard Time,

billk@... writes:

> Breakfast: Typically oatmeal w/ raisins or oatmeal/rice cereal

> using soy milk.

>

> Snacks: 1/2 cup whole almonds 1/2 cup walnuts. Either a 1/2 banana

> or 1/2 cup blueberries and/or cherries.

>

Where's the protein and fat? If I ate this way, I'd have horrible reflux.

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Could be weak digestion and may need digestive enzymes and/or digestive acid

(HCL).

Any way to get pH readings and your urine and saliva?

You also may have to look at what you are combining, and how many things you are

combining.

KM

sassy_truthseeker <deaval@...> wrote:

Hi all!

Does anyone know of a co relational link between O's and occurrence

of GERD? Are we more or less likely to suffer from it? In any case,

is there an O specific plan of attack in relieving it?

When I first started the O diet (after many years of eating almost

exclusively avoids as a veggie), I felt a lot better, but I've

noticed some of my old digestive problems have returned. I won't

gross you out with the gory details, suffice to say my stomach hurts

constantly and nothing I eat " sits well " .

Any ideas on the subject would be appreciated.

Wonder and Joy,

Eva :)

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Hi all,

I can totally relate to Eva post. I been on the diet about 7

months. As a result my cronic vasomotor sinus condition has

improved dramatically, yet I have experienced increasing GERD

problem. I am now taking fibrcon tablets which have helped, but the

GERD frequency is persistant, and I often take bicarbonate of soda

or alkaseltzer tablets after meals.

My acid refux is also tied into changes in the weather. I have not

yet been able to get a good understanding of this relationship

other than it appears to be dictated by the relative humidity and

high/low pressure systems (and also stress related).

My diet consists of the following:

Breakfast: Typically oatmeal w/ raisins or oatmeal/rice cereal

using soy milk.

Snacks: 1/2 cup whole almonds 1/2 cup walnuts. Either a 1/2 banana

or 1/2 cup blueberries and/or cherries.

Lunch: Hard boiled egg, either tuna, chicken or beef. Occasionally

salads (containing lettuce, tomato, celery, carrots), and mozarella

string cheese.

Dinner: Chicken, Beef (roast, steak or ground), salmon

All replies are appreciated.

Bill

> Hi all!

>

> Does anyone know of a co relational link between O's and

occurrence

> of GERD? Are we more or less likely to suffer from it? In any

case,

> is there an O specific plan of attack in relieving it?

>

> When I first started the O diet (after many years of eating almost

> exclusively avoids as a veggie), I felt a lot better, but I've

> noticed some of my old digestive problems have returned. I won't

> gross you out with the gory details, suffice to say my stomach

hurts

> constantly and nothing I eat " sits well " .

>

> Any ideas on the subject would be appreciated.

>

> Wonder and Joy,

>

> Eva :)

>

>

>

>

>

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Have you checked your secretor status? If you are a non secretor, oatmeal, soy,

and mozzarella cheese are AVOIDs. Taking a lot of sodium bicarbonate and alka

seltzer could also be a problem. See the article by at

http://www.worldwidehealthcenter.net/articles-194.html.

Re: GERD

Hi all,

I can totally relate to Eva post. I been on the diet about 7

months. As a result my cronic vasomotor sinus condition has

improved dramatically, yet I have experienced increasing GERD

problem. I am now taking fibrcon tablets which have helped, but the

GERD frequency is persistant, and I often take bicarbonate of soda

or alkaseltzer tablets after meals.

My acid refux is also tied into changes in the weather. I have not

yet been able to get a good understanding of this relationship

other than it appears to be dictated by the relative humidity and

high/low pressure systems (and also stress related).

My diet consists of the following:

Breakfast: Typically oatmeal w/ raisins or oatmeal/rice cereal

using soy milk.

Snacks: 1/2 cup whole almonds 1/2 cup walnuts. Either a 1/2 banana

or 1/2 cup blueberries and/or cherries.

Lunch: Hard boiled egg, either tuna, chicken or beef. Occasionally

salads (containing lettuce, tomato, celery, carrots), and mozarella

string cheese.

Dinner: Chicken, Beef (roast, steak or ground), salmon

All replies are appreciated.

Bill

> Hi all!

>

> Does anyone know of a co relational link between O's and

occurrence

> of GERD? Are we more or less likely to suffer from it? In any

case,

> is there an O specific plan of attack in relieving it?

>

> When I first started the O diet (after many years of eating almost

> exclusively avoids as a veggie), I felt a lot better, but I've

> noticed some of my old digestive problems have returned. I won't

> gross you out with the gory details, suffice to say my stomach

hurts

> constantly and nothing I eat " sits well " .

>

> Any ideas on the subject would be appreciated.

>

> Wonder and Joy,

>

> Eva :)

>

>

>

>

>

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Max beat me to it: where is your protein and greens? I must have a

different version of the book. It says something like this in mine: The

very first sentence in the O section.

1 - Os STRIVE on protein.

2 - Greens form a critical component of the O diet. Up to 5 cups of

cooked & 5 cups of raw is suggested.

So my suggestion would be to go back to basics and also to reread the

books and follow 's recommendations.

PROTEIN, PROTEIN, PROTEIN, ALONG WITH ENOUGH GREEN VEGGIES, USE HB FATS

WITH EACH MEAL and let us know how much better you will feel in less

then 2 weeks.

That breakfast is very anti O.

ABO Specifics Inc. - http://www.foodforyourblood.com

*

My diet consists of the following:

Breakfast: Typically oatmeal w/ raisins or oatmeal/rice cereal

using soy milk.

Snacks: 1/2 cup whole almonds 1/2 cup walnuts. Either a 1/2 banana

or 1/2 cup blueberries and/or cherries.

Lunch: Hard boiled egg, either tuna, chicken or beef. Occasionally

salads (containing lettuce, tomato, celery, carrots), and mozarella

string cheese.

Dinner: Chicken, Beef (roast, steak or ground), salmon

All replies are appreciated.

Bill

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Hey Bill

In my experience, what people are calling " acid reflux " is really because of not

enough acid to digest your food. Especially O protein eaters. The soda and

alkaseltzer are the opposite of what you need. You should try Apple Cider

Vinegar instead. Use 1 TB vinegar and 1/4 cup water after your meal. Also,

don't drink a lot of water with your meals. Wait about 1 hour after you eat to

start drinking your water again.

Are you making sure you get enough water in each day? 1/2 your body weight in

ounces everyday.

KM

surfgent <billk@...> wrote:

Hi all,

I can totally relate to Eva post. I been on the diet about 7

months. As a result my cronic vasomotor sinus condition has

improved dramatically, yet I have experienced increasing GERD

problem. I am now taking fibrcon tablets which have helped, but the

GERD frequency is persistant, and I often take bicarbonate of soda

or alkaseltzer tablets after meals.

My acid refux is also tied into changes in the weather. I have not

yet been able to get a good understanding of this relationship

other than it appears to be dictated by the relative humidity and

high/low pressure systems (and also stress related).

My diet consists of the following:

Breakfast: Typically oatmeal w/ raisins or oatmeal/rice cereal

using soy milk.

Snacks: 1/2 cup whole almonds 1/2 cup walnuts. Either a 1/2 banana

or 1/2 cup blueberries and/or cherries.

Lunch: Hard boiled egg, either tuna, chicken or beef. Occasionally

salads (containing lettuce, tomato, celery, carrots), and mozarella

string cheese.

Dinner: Chicken, Beef (roast, steak or ground), salmon

All replies are appreciated.

Bill

> Hi all!

>

> Does anyone know of a co relational link between O's and

occurrence

> of GERD? Are we more or less likely to suffer from it? In any

case,

> is there an O specific plan of attack in relieving it?

>

> When I first started the O diet (after many years of eating almost

> exclusively avoids as a veggie), I felt a lot better, but I've

> noticed some of my old digestive problems have returned. I won't

> gross you out with the gory details, suffice to say my stomach

hurts

> constantly and nothing I eat " sits well " .

>

> Any ideas on the subject would be appreciated.

>

> Wonder and Joy,

>

> Eva :)

>

>

>

>

>

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