Plight of Youngsters Struck down by ME

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http://www.express.co.uk/posts/view/228730/Plight-of-youngsters-struck-down-Plig\

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By Lucy ston

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MORE than 54,000 children are suffering with the debilitating condition ME.

One in 100 under-18s, including infants and toddlers, are affected by the

problem, which causes chronic fatigue, a study by specialists at Bristol

University reveals.

Separate research shows the condition is the biggest medical cause of long-term

school absence. Researcher Dr Esther Crawley said: “Until recently we have not

known the scale of the problem. There are areas of the country where parents are

desperate to get treatment yet their primary care trust refuses to fund it.â€

It is not known what causes myalgic encephalopathy. It is also unclear whether

the increase in childhood cases is down to larger numbers developing the

condition or better surveillance.

Five-year-old Ben Bazneh, of Stow­market, Suffolk, developed ME after his

childhood vaccinations at 14 months old. His mother Joanne said: “He was a

very lively toddler but after his jab he developed a fever and his glands

swelled. He became overwhelmingly tired and never recovered.

“His life is shocking. His brain is normal, he just wants to have fun, but if

we let him do too much he becomes shattered and cries, ‘Stupid Mr Tired. I

hate him. Tell him to leave me alone’.â€

The ­Association of Young People with ME is on 08451 232389 and ayme.org.uk

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