lyme patient survey and upcoming blog

[Guest guest]

Hi all!

I've been getting the digest for a while each day and have appreciated folks

dialogue with each other. I couldn't post, though, for some reason and have

finally resubscribed and it is working!

I'm a lyme patient-- probably had it for 15 years but only diagnosed about 2

years ago. My protocol has run the gamut... ABX, herbs, supplements, prayer, art

therapy, and recently (in April) I bought a BCX Ultra and started rifing. It's

been great and I'll post a separate note about a question I've had. Soon I'll

also be starting to use and infrared sauna.

In the meantime, I wanted to make sure folks know about the Lyme Patient Survey.

I started this because I was frustrated with how little patient voices seem to

be in the public dialogue--there's a lot of talk about us, but not so much WITH

us, and I wanted to know what patients think, and what our experiences are. I'm

not working for anyone; this is a volunteer effort on my part (as well as an

attempt to assuage my own insatiable curiosity). I plan to share results on a

new blog.

Here's the survey link (it is open until this Sunday at noon). It takes 30-45

minutes to fill out. And if you are curious about the questions before deciding

if you want to answer them, you can find them posted on the blog.

Survey: https://www.surveymonkey.com/s/WKC87PT

Blog: http://lymevoices.blogspot.com/

Questions? Please ask me!

Thanks, Ma'ikwe

[Guest guest]

Thi sis a good idea Maike

may I suggest you to add what detox do you use and what toxine absorber

it is missing also ozone

than k you fo ryour work I may fill it when I have the energy

Kindly Marie

To: Lyme_and_Rife Sent: Monday, June 25, 2012 9:11 AMSubject: lyme patient survey and upcoming blog

Hi all!I've been getting the digest for a while each day and have appreciated folks dialogue with each other. I couldn't post, though, for some reason and have finally resubscribed and it is working!I'm a lyme patient-- probably had it for 15 years but only diagnosed about 2 years ago. My protocol has run the gamut... ABX, herbs, supplements, prayer, art therapy, and recently (in April) I bought a BCX Ultra and started rifing. It's been great and I'll post a separate note about a question I've had. Soon I'll also be starting to use and infrared sauna.In the meantime, I wanted to make sure folks know about the Lyme Patient Survey. I started this because I was frustrated with how little patient voices seem to be in the public dialogue--there's a lot of talk about us, but not so much WITH us, and I wanted to know what patients think, and what our experiences are. I'm not working for anyone; this is a volunteer effort on my part

(as well as an attempt to assuage my own insatiable curiosity). I plan to share results on a new blog.Here's the survey link (it is open until this Sunday at noon). It takes 30-45 minutes to fill out. And if you are curious about the questions before deciding if you want to answer them, you can find them posted on the blog.Survey: https://www.surveymonkey.com/s/WKC87PTBlog: http://lymevoices.blogspot.com/Questions? Please ask me!Thanks, Ma'ikwe